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PTEN Gene mutation recommended mastectomy
I was recently diagnosed with PHTS after a gene test. This along with heredity and atypical ductal hyperplasia my doctor has recommended a double mastectomy. I'm 50, and I've decided that I'm going flat. I'm concerned that I'll have regret from a (will I still feel like me perspective) but I think it's the more logical…
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truqap experiences?
I’ve am on a trial and it’s just been approved today in the UK so will be available on the NHS Yippee ! I started 2 months ago would love to hear from anyone who has been on it for 6 months plus any info we’d be great ! Ie diet - side effects -=do they lessen - mainly fatigue Love to hear from you Janice
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In Treatment for Early Stage Disease (I-III)? Join us on Zoom, Tues & Thurs weekly!
Join our weekly virtual support group for all who are planning or going through active treatment for early stage disease (I-III). If you've just been diagnosed and are planning surgery, chemo, or radiation, join our weekly Zoom Meetups. We have two meetings for you to register for: Register here: Tuesdays at 1:00 PM…
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Starting Verzenio concerned about hair and nail regrowth
I will be starting Verzenio this month s/p chemo, bilateral mastectomy and left axillary lymph node dissection, and radiation for treatment of stage III ER/PR +, HER2 - breast cancer. I also started Anastrozole and am tolerating that well. My hair is just starting to grow back after finishing chemo last November 2024. It's…
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17 years out - Now possible brain mets?
Hi everyone, this site was such a tremendous source of support during my previous experience, but I have not been here in quite a while. I thought I put this part of my life away. I was diagnosed at 38 with TNBC, Stage 2 in 2008. Underwent lumpectomy, chemo and radiation. My port tried to kill me… got infected and put me…
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To chemo or not to chemo
I am premenopausal (43) diagnosed 12/30/2024. IDC 2.5 cm, HR+ (both highly ER+ and PR+), HER2-, Grade 3, oncotype 26, LN 1+. I had lumpectomy in Feb where they found a 3.5 cm DCIS tumor as well. I had to have a re-excision 2 weeks later because the margins weren't clear. I am looking for any testimonials of women who are…
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Anyone here with Her2+ stage 4?
hi lovely ladies, Need suggestions as my sister in law is having 4th stage metastatic liver cancer. From tomorrow she is gonna start with chemo and trastuzumab need all your prayers and suggestions help please
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Recurrence of Triple Negative
Hello, it has been many years since I visited this site, but I am seeking support and guidance on how to attack a triple negative recurrence. I had original diagnosis over 20 years ago, had lumpectomy/chemo/rad, and had a recurrence in 2018 in my breast. Mastectomy/chem for that treatment phase. This morning I learned that…
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Thyroid
Hi has anyone had hormone receptive breast cancer then had the worry about taking a hormonal drug for under active thyroid problems
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Please don’t ignore need help
I used to be member here when my mom had breast cancer. she is better but unfortunately my sister diagnosed with cancer and is going under treatment. I have bad pain and burning in my left breast . My last years memogramme was clear but on 2022 they had to clip in my left breast after biopsy. The results came negative. I…
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Just diagnosed IDC
I was diagnosed with IDC breast cancer on 02/2025. The clinical staging right now is stage 1.Had a multitude of CT scans today and see surgeon tomorrow for options. Everybody seems optimistic that they caught it early and with surgery and radiation should have good outcomes. But feeling really guilty that my cancer is only…
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Member of the "6 Month Watchful Waiting Club", Unite!
Oops, meant to say "Members" in the title - guess I need more coffee! Hi ladies, just wanted to start a thread to pull together thoughts from many boards on this subject. I've been in the 6 month club for 5 years now. Like someone else out here recently said - if I don't have cancer now, I surely will get it from all of…
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Male cancer that presents as HER 2+ metastatic breast cancer
My partner was diagnosed with CUP that is presenting as HER 2+ metastatic breast cancer. He received radiation treatment for a brain tumor and now is experiencing radiation necrosis. Boswellia has been prescribed. We are looking for some information about using this supplement. Thank you.
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Met with my medical and surgical oncologists yesterday (99% ER+ 96% PR+ HER2-, prognostic stage 2A)
Long post incoming, sorry. Following up on my initial IDC diagnosis — ER+ (99%) PR+ (96%) HER2-. Grade 2 tumor. Premenopausal (40F). Prognostic stage 1B or 2A per the MO, but leaning 2A. One 1.9cm mass and at least one axillary node confirmed positive from biopsy (three additional nodes noted to be suspicious on initial…
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CTs to Determine Circulatory Mets with Negative Nodes (warning - this is long!)
Warning - this is a book - LOL! I have just joined this group and really enjoying everyone's input on various topics, and sharing their journeys. I'm an mBC newbie, initially diagnosed in 2018 (post-meno) with Stage 1A HR+ HER2- IDC. I chose lumpectomy and radiation and started anastrozole after radiation (my OncoTyping…
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Pain on my mastectomy scar 15 years later
I have alway had discomfort sometimes bad. Now it worse and pretty constant. I have mastectomy left side with no implant had it taken out to help relieve pain obviously it didn’t help that much. Anyone else have this? Thx
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Stage one Her2+ negative KI_67 1% estrogen positive lumpctomy did on march
My surgy say to skip radition but take hermon thearpy but consultation with radition doctor say to take radition for 2 weeks so I confused which better for me with radition 2% without radition 8% for cancer come again
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81 year old: should I take Tamoxifen for an additional 5 years
Just finishing 5 years on Tamoxifen. Tried AI's before but had horrible side effects. Saw MO today. She said I could continue the Tamoxifen after the 5 years if I wanted. Would love to be rid of the SE's but I am thinking, what would I be gaining if you know what I mean staying on the drug. Wondered what you all think🙃?
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Triple negative 4mm - No chemio?
please help I have a TNBC, 4mm. My doc said no chemio but I am so so afraid. Please, could smb share an Experience? Please help, I need help
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Breast implants
I just turned 43 and was diagnosed with invasive ductal carcinoma grade 3 & high grade ductal carcinoma in situ. Im planning on a bilateral masectomy. Im meeting with my surgeon on Tuesday. Im having a hard time deciding on if I want to get implants or not. My question is how did you decide on reconstructive surgery or…
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Exemestane (Aromasin)
My MO recommended I leave letrozole because of SE and start exemestane. Can you please share your experience with this medication? Tips? Good news: Exemestane, a synthetic steroid drug widely prescribed to fight breast cancers that thrive on estrogens, not only inhibits the production of the hormone, but also appears to…
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Tamoxifen vs. Ovarian Suppression & AI
Hello! I am new here, newly diagnosed and trying to navigate all this. I was diagnosed with ILC in June 2024 and opted for a bilateral mastectomy, right breast was healthy. Currently with tissue expanders, waiting for implants in a couple months. Stage 1A, tumor was 1.7cm (grade 2), high ER+/high PR+, HER2-, Ki67 15%.…
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Should I push for MRI?
Hi all, A few years ago I posted here. I have had one breast that has breast tissue which feels thicker/firmer. Basically if you look up descriptions of ILC it's exactly what it sounds like in my breast. The other breast is much softer. I've had three ultrasounds, one where it was a consultation with a breast surgeon. Lots…
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Just diagnosed
Hi my name is Stacey. I just got the results from my biopsy today. The doctor said it’s invasive ductal carcinoma grade 2 and as of right now it’s between stage 1 and low 2 with clear lymph nodes but that could change after surgery. I did talk to the patient coordinator and she is going to schedule me to see the oncology…
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Hypoechoic mass on initial ultrasound, not concerning on subsequent ultrasound
My Mammogram came back normal, I'm 43 years old with no cancer history in the family. This is the first year I've asked for an ultrasound as I have dense breast tissue. The results were as follows: "Ultrasound was performed by the technologist. Representative images of all 4 quadrants and subareolar breasts were obtained.…
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Cannabis Basics
I have been using cannabis for the past few years. My main goal in using this is pain relief, de-stressor and for sleep. I have read some stories of using cannabis to cure cancer, but there is simply not enough data for me topursue it's use for that purpose. Let me start by saying that I live in a legal state, both medical…
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8 years post BMX...am I missing anything?
Hello all…. I've asked this question of my primary care, gyno, and breast surgeon and have yet to get what I feel is an informed answer, which is why I'm coming here! I was diagnosed with encapsulated papillary carcinoma in 2017 (ER+ HER 2-) and after multiple opinions, opted for a BMX. Although I've needed follow-up…
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Pre-Menopause Oophorectomy Side Effects Worse With Letrozole?
I had a bilateral salpingo oophorectomy (BSO/ovary removal) on March 4th. I had not begun menopause (based on MO ordered hormone tests). The side effects I've had since that surgery are debilitating. I'm supposed to start taking Letrozole tomorrow. I'm trying to find out (no response from SO or MO) if the symptoms will…
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Are you dealing with infections or bandaging during palliative care??
Hi everyone. I'm starting this topic because I haven't found a similar one to help answer questions and offer me advice. I know I'm a rare case managing my own palliative care, in Asia, while under the care of a great doctor who's using both eastern and western medical traditions. I'm on hormone therapy (Tamoxifen then…
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Ki-67- ONCOTYPE? What was everyone’s experience?
I’m just sort of curious. For those who had a ki-67 number before your oncotyoe, what were your numbers? I’m wondering how often a high ki-67 results in a high oncotype, and vice versa. What’s your experience?