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PET Scan results are on portal - have not heard from doctor
After being diagnosed with a new breast cancer (my third in the same breast but apparently not a recurrence based on pathology), I had a PET scan prior to my scheduled SMX. The results were in my portal a few hours after the test yesterday morning but now, a day and a half later, no one has called to discuss the results.…
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Changing time/symptoms, mets in lungs and spine
I am very new to having stage 4 metastatic breast cancer to my lungs and spine. I was initially treated as stage 2 in 2019, had surgery and radiation and was placed on Tamoxifen. In June 2023, I developed this persistent cough that wa making it hard to breathe. I had a PET and biopsy in August that confirmed my cancer…
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Worried
I noticed a patch on my breast couple of weeks ago. I feel no lumps and it doesn’t hurt. Any one can help with what this might be ? I’ve scheduled a dr appt but can’t stay off the internet googling (Edited by Mods to remove photo. Posting pictures of symptoms is prohibited per our Community Rules)
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Did you get a 2nd Opinion regarding Oncology Report?
Hello, My onctype report should be back this week, and I am scheduled to meet with an Oncologist. I am just wondering if people get second opinions on oncology and the steps taken after mastectomy or lumpectomy.
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Is this Lung mets? Petrified with every day...
that goes by with this cough. So I'd like to start this with the fact that most of my adult life (now 63) when I get a cough, it hangs on for weeks, Most of the time we are talking 4-5 weeks. I started having a very very slight cough, I want to say last winter. It was so slight, I would cough once or twice in the morning,…
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Warm & fuzzy owls, goats, kitties, dogs, birds ETC. PICS &LINKS
With W&F's take time to transfer your goodie connections---visual, youtube, short stories etc., or even go and find things to post here. It's a place our sisters and brothers can come to when they are recovering from sx's , chemo's, rads.......or as time passes for those that this damnable disease causes them to be to weak…
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How has your BC experience changed you
We want to hear about how your experience of BC has changed you and how/in what ways is your life different now. Have you made lifestyle, relationship, work changes?
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Exemestane and halting treatment to get pregnant
My daughter has just started 5 years of exemestane and an ovary suppressant. She wants to have a baby but has been advised not to halt treatment in a few years to try and get pregnant. But she would go back on the drug after a period off it. Has any young ladies here been in this situation?
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Finding and Treating Inactive Breast Cancer Cells
Finding and Treating Inactive Breast Cancer Cells Feb 2, 2024 Dr. Angela DeMichele explains her research on treating inactive breast cancer cells to prevent recurrence. At the European Society for Medical Oncology 2023 Congress, Dr. DeMichele presented results from the CLEVER study, which looked at ways to treat inactive…
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SUV 3.7 in breast on PET for ovary mass
ok so my story is I had BC in 2013 ER+ PR- lumpectomy left breast and rads and 5 years on hormone blockers. Next up was non Hodgkin primary bone in 2015 (very aggressive). Had RCHOP. And more rads. Genetic testing came up with CHEK2. I have a cyst on ovary that has been growing so after lots of other imaging and tumor…
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Exemestane suspend to get pregnant
Are there any younger women, premenepausal that are taking exemestane with an ovary suppressant, that have halted treatment to try for a baby, then returned to the drug after?
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Bone Scan
today I had my first ever bone scan. Also a ct scan. During my bone scan after the full body they did a close up of my forearms, chest and then a side chest view. Does that mean there was something concerning or is that normal with breast cancer?
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Scared to LOOK at new Me
Hello All, Has anyone felt like me? I had a skin sparring bilateral mastectomy last week. I had one fill-into my TE since surgery. I still have drains in. So far, I am healing well and feeling good. Yet, I have NOT looked down at the new me. I am scared to see the change and results. I don't regret having the surgery. But…
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Have you experienced cancer "ghosting"?
Have you experienced a withdrawal from any friends or family members since your cancer diagnosis? Please feel free to share your detailed experiences with others below.
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Would you get Covid vaccine?
My warrior sisters... If you have had bilateral suckers or more than stage 1 (hormone status is not relevant) and done w the usual treatments including optional hysterectomy or ovary removal, would you get the vaccine? Simple yes or no is appreciated. No additional info or explanation is requested. P.S. this survey is…
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High number of positive lymph nodes
Can lymph node survivors please chime in here. I had 11 positive nodes,some broken open with cancer and grade 3. After 3.5 years this still really worries me every day. Would love to hear stories of long term survival.
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Need guidance please chemo/ cold cap- was donated to me
Hi Breast can stage 2A her2Positive. I had one chemo treatment April 1 didn’t have cold cap- Next treatment April 22 - Some one just donated the cold cap to me. How do I go about using it. Does the hospital have the machine ? Do they charge just to use the machine it self? Any one know how this works. Do I call my chemo…
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stopping letrozole
I just came from the oncologist and after looking at my BCI and having been on letrozole for six years he told me to stop. I am terrified to do that. Has anyone stopped after 6 years? He said new research says 5 years is enough and now I'm just getting the side effects, not any real prevention of cancer from continuing to…
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Reporting forum feedback and technical issues
Hello Everyone, As with any new technology, it can take time to work through issues and adapt to the new site. We thank you for your patience and understanding, and are here to help support you. Our team is dedicated to giving you the best experience possible, with plans for adding features and enhancements over time. We…
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Very High Estradiol Levels
I am about a year and a half out from my breast cancer diagnosis and treatment. I have been taking tamoxifen since November of 2022. I had a hysterectomy in Sep. Of 2023 because of excessive bleeding caused by the tamoxifen. My surgeon left one ovary ( I only had one due to having the other one removed years prior ). I had…
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Single Mastectomy vs double Mastectomy
I am 37 years old and have been diagnosed with DCIS high grade in my right breast. I decided to do Mastectomy but not sure what to do with left breast as I want to keep it. I have a family history of breast cancer. any suggestions?
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AC-T Latest advice?
hi all, Am starting AC-T and wanted to know if there is any up to date advice or tips to consider? I have heard cold cap isn’t good with it but will use it anyway. Anyone used Paxman with AC-T? Welcome any tips to keep me sane!
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Stereotactic Breast Biopsy next week
It's been almost 7 years since my first discovery of BC (left side). I recently went in for my 14 th mammogram since then and calcification has been popping up on the right one for the last few 3D mammos. It went from 2 or 3 to about 20 tiny dots on the 03/2024 imaging. The report indication said: indeterminate cluster of…
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Reoccurrence after 26 years
Hello to the community. I was only 43 at first diagnosis, IDC, Stage 1, Lumpectomy and radiation. At that time I was not given any medication because my doctor felt it would put me into early menopause and risk of uterine cancer. I am 69 and Recently diagnosed with IDC Stage 1, 3 spots in same breast. I have only met with…
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Bone ALP values Help
ALP is getting high after chemo. It never go back to normal and My MO wasn’t concern. I went to Bone specialist and he found that it’s coming from Bone. I freak out. I am getting bone scan. I don’t have any symptoms. Any similar situations?
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DCIS newly diagnosed
Hi All, I was diagnosed last week with DCIS grade 3 ER- in my left breast. My breast surgeon and I agreed that a mastectomy was necessary because I have two areas of DCIS across my lower breast. I have to get genetic testing and an MRI next week to see if anything is missed in the right breast and would warrant a DMX. I…
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I WANT MY MOJO BACK!
Hey girls, You know, this loss of libido thing is just unnacceptable. I was in the chat room earlier today and mentioned it and man, you should've heard how many of us are experiencing this problem. I promised the ladies I'd post my rant, so here it comes (or....doesn't ). If bc were a man's disease, not only would there…
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Confused
Im a 2 time ILC breast cancer survivor. I’ve been watching a spot on my non- cancerous breast for the past 6 months. At times I think yes, there is definitely something there then the next day it is all but gone only to reappear again. I’m afraid if I make an appointment to have it checked it may have disappeared again.…
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Husband Not Interested in Sex After Mastectomy
Just wondering if there is a thread or a community of women out there with this issue? When I google it, it's usually the woman not interested in sex. It's been 4 years since my bi-lateral mastectomy and the same amount of time since my husband has touched me. Seriously, the last time we had sex was in the hotel room next…
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Late Effects Post Mx Rads
Hi. I had pmrt back in 2006 and have had a lot of issues over the years and wondering if anyone else does. To start, not even a year after my rads I needed an inhaler for a bad cold where I was up all night coughing. Now, I’m not sure what is going on. I had bronchitis about a month ago and I developed a non-stop cough.…