-
PASH
Hi Just wondering if there is anyone that is dealing with PASH and would love to discuss whom they are seeing and what direction their surgeon is taking. If you know of other websites or physicians that deal with PASH in the Chicago or the NorthShore area would like if you could provide that info. Found lump two years ago,…
-
Bigger of the PASH
Hi guys I had got biopsy and confirmed with PASH, B9, and i had regular check up these few years. However, it seems the size of the lump with PASH gets bigger. I know someone who suggested that just wait and see, but i m really worried about the enlargment. I am not sure if it the lump will be come back after removal? Will…
-
Movement! Set a goal that feels right for you.
Whether it’s chair exercises, daily walks, or training for something bigger. Every step matters, and you’re not alone. Join us, share your progress, and lift each other up.
-
POLL: How are you supporting your well-being?
How are you supporting your well-being? Our community is made stronger by the ways we care for ourselves and each other. What’s feeling most meaningful to you right now? How do you express care for yourself or others? Share your reflections and inspire others in our community—we’re on this journey together. Share your…
-
I guess it hit me today that my days are numbered
I’m not sure why today is any different than the last two months when I’ve known I’m stage 4 with bone mets and my days are going in the negative direction. Maybe because tomorrow is Mother’s Day, and as usual, nothing in the mail from my kids. I guess they aren’t thinking that this could be my last Mother’s day and that…
-
Should I skip recommended radiation?
I am grade 3 DCIS ER/PR negative and had a lumpectomy. My surgeon mentioned that I needed to take radiation due to high grade. He referred me to a radiation oncologist, whom I met this morning. The oncologist said my recurrence rate is 20 to 25%, and radiation can reduce it to be less than 10%. The side effects include…
-
A place to talk death and dying issues
This post is for those of us with concerns and issues about death and dying to talk about them. IF YOU CANNOT HANDLE IT, THAN GO TO A DIFFERENT POST PLEASE. We do not need people telling us to live life or to hear that other people have lived a long time, we have concerns. We are living life and would like for our…
-
Recurrent Breast Issue
Forgive the longer post. I'll try to be as concise as possible. To preface, I am non-lactating due to having a hysterectomy in 2019. I am 36 years old. Back in 2022, I had an excisional biopsy for a fibroadenoma in my left breast. About one month later, I developed a seroma and had it drained. Fast forward to 2024, I…
-
Focal architectural distortion
Hi All, i need some advice to help me stop from spiralling out of control. Thanks in advance for your guidance. I am 40 years old. My screening mammogram identified a focal asynmetry (BI RADS 0) in my left breast. The followup diagnostic mammogram said focal architectural distortion 12 o clock centrally 5 cm from the…
-
March/April 2025 Surgery Support Thread
Please gather here to get and give support. Feel free to share your type of surgery, date, and let us know how you're preparing and how you're doing post-surgery. We're all here for you!
-
Scheduled for Surgery May 2025? Gather here for support!
Add to the discussion below to share your scheduled surgery date, type of surgery, what you're doing to prepare, ask any questions you have about what to expect, share your experience after surgery, how you're recovering, tips to help others recover, products and other practical advice for those coming after you. We're all…
-
Familial history of BC and risk
I had stage 1 idc at 47 successfully treated, and a cousin had dcis. I’m concerned about my adult daughter’s risk, especially since she has dense breasts. She will get her first mammogram this year, but does an MRI every other year help detect problems sooner? Are oral contraceptives risky, or only after a diagnosis?
-
What does local recurrence after mastectomy look like?
Hi, what are the various ways that a local recurrence after mastectomy could look like?
-
wireless indentification tag?
Hi, facing another lumpectomy for dcis, and the surgeon explained they don't do wires anymore, that they use a wireless Identification tag which helps maintain breast tissue by targeting the precise area of cancer during surgery. (Not sure I'm saying this right…. ) Anyway, I'm told it's placed before surgery with…
-
Tuesday night MBC group
A place to stay in touch during the week. :)
-
Worried
I’ve been having Breast pain for a little over6 weeks. I went to my OBGYN she ordered a diagnostic mammogram and ultrasound. Both of which came back clear, they told me to continue screenings when I’m 40. I’m currently 33. I still have the pain intermittently and I’m a nervous wreck. This past weekend I developed horrible…
-
Waiting for test results
I was dx with stage 2B breast cancer in December 2006. ER+, PR+, HER - . Three tumors, 4 positive lymph nodes. Mastectomy, dose dense Chemotherapy and Radiation. It was a long year and I had a high risk of Mets. I have celebrated 17 years NED, good health and a wonderful life. I left my job and went to nursing school (a…
-
Plastic Surgeon in Maine Recommendations for Treatment of Capsular Contracture
Hi all. I had bilateral mastectomies in 2008 after a diagnosis of bilateral BC. I had implant reconstruction with a successful outcome. However, in the past couple of months, I have noticed capsular contraction on one side. Since my surgery, we have moved to Maine and I need to find a plastic surgeon who is an expert in…
-
Pulsing/Vibrating sensation in lumpectomy breast
Just wondering if anyone has experienced a pulsing type vibrating sensation in their breast following surgery and radiation and what they did about it? I am 4 months post-lumpectomy and 2 months post-radiation and for the last 4 days I have had a strange, constant, high speed vibrating sensation in the lumpectomy area. Is…
-
Finally got mamo + US diagnostic of Lower inner quadrant mass , 2 months
…. was Palpable on exam firm & fixed. Is slower growing Left lower inner quadrant nearer to breast bone. 2 months or so ago found it and then felt like very tiny hard pebble at first . Now feels more irregular & pronounced not hard to find at all anymore. No outer breast or skin signs or symptoms 1cm approx . Hypechoic…
-
Is chemo always needed for Triple positive
Heavy estrogen positive Moderate progesterone positive HER2 positive Is chemo always needed?
-
Armra Colostrum
So ~ I had a double mastectomy in 2016 , my cancer was estrogen driven, but was caught early…I am an otherwise healthy almost 74 year old (I feel like 50, most days 🙊) However, now I have a concern ~ my grandaughter had told me about “Armra,” which is a colostrum powder. She takes it to ward off viruses; so, of course, I…
-
Oncologist in Atlanta , GA area
Hi All, New to Atlanta area. Do you know of a breast oncologist in Atlanta area, preferably with experience in ILC . Thank you in Advance for your help
-
Any Long term two time breast cancer survivors out there?
Hello I was diagnosed with breast cancer (Triple positive) in 2017, went through the whole gamut of treatment - masectomy, taxol / Herceptin and 5 years of tamoxifen. It was classified last stage 1 early stage. Two years after I stopped tamoxifen, I got diagnosed with breast cancer again. This time it's ER/PR positive but…
-
Bone Pain from Mets or AI?
I am recovering from my third breast cancer dx and have been getting numbness and pain in my ribs, legs and hips. It gets worse at night when I lay down. During the day it doesn't bother me too much or stop me from going about my normal daily activities. I just had my normal bloodwork which was ordered by my cardiologist.…
-
Cancer Update
Its been a while. I really had to take a step back from engaging the community because the stories are so gut wrenching and sad. Nadia is doing great physically. We had a second scan in Feb. Liver Mets appear to be healing and the breast tumor is definitely smaller. They did confirm that this cancer had spread to her spine…
-
Insurance coverage for compression garments
I just switched to United Healthcare and am unable to find a retailer who is in network and carries 15-20 mg compression. Checking here in case to see if anyone else has found one. Thanks!
-
Scared to LOOK at new Me
Hello All, Has anyone felt like me? I had a skin sparring bilateral mastectomy last week. I had one fill-into my TE since surgery. I still have drains in. So far, I am healing well and feeling good. Yet, I have NOT looked down at the new me. I am scared to see the change and results. I don't regret having the surgery. But…
-
Advice for someone about to have breast surgery
Let's start a new thread to get this rolling!
-
DCIS Grade 2. Anyone told to skip hormone blockers?
I was diagnosed with a wide span of DCIS, Grade 2. I had a lumpectomy and reconstruction on my right breast and a reduction on my left, clear margins, no invasive detected. My oncologist recommends I do radiation but no hormone therapy. He feels it is not needed and will not change my long-term outcome. I am wondering if…