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Hip Pain
Hello, I just had my breast reconstruction last Feb and Sept 2024. A Latimus Dorsal. Eight years after my mastectomy and chemo. Just before my surgery last Sept. I suddenly hurt my hip/groin area at the gym, so I thought, it was that. My x-ray does look like osteoarthritis there. It wasn't even gradual, it was a sudden…
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Vibrating breast
For just over a week I've had this weird vibration on the side of my left breast (like a cell phone was attached to it). I saw my obgyn today and she did a full breast exam and said everything feels fine. Contributing it to a possible pinched nerve or muscle spasm from an aching neck I've had for a little while. I asked…
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How Bad Is A DMX? - Considering a Prophylactic DMX
I just met with a new breast surgeon (the one who did my lumpectomy is no longer practicing) to discuss prophylactic DMX or SMX. I had a lumpectomy in my right breast in 2021 - small tumor (3mm), good KI67 score, no chemo. I'm age 67, will be 68 in October. I get annual MRIs due to very dense breasts, and a "suspicious"…
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Worried if I am high risk
reposted by Admin .
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ER+, PR+, Her2- Double Mastectomy, Factor V Leiden
Hello. I was diagnosed on 10/31/24, with ER+ (100%), PR+ (100%), HER2- (2+, FISH non amplified, Ki67 3%) in the right breast. Double Mastectomy on 12/26/24. Pathology came back with additional finding of lobular insitu in left breast. No radiation or Chemo recommended, Onco score low (11), however I have a blood mutation…
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Please help!
I had an ultrasound done and was given a BIRAD 0 so I required further testing. I just recently had a diagnostic mammogram and MRI. I have a while to wait before I get my results, but I'm wondering if anyone can give me insight as to why my one breast is so lit up compared to the other. And what organ? is this on the inner…
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14 year survivor, high platelet count WORRIED
Hi, friends! Welp…I'm 14 years out of Er+, PR-, Her2+, Stage 2, grade 3 cancer. Did all the things…BMX, lots of chemo, Herceptin…yadda yadda. I had some blood work done last month and my platelet count is at 465…high. I haven't had any recent surgeries or been on antibiotics. I'm worried it's a sign of recurrence. I…
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Discontinuing Anastrozole
Hi All - In 2024 I had diagnosis of Stage 2A ductal carcinoma ER/HR+ HER2 -. BRCA 2 positive. 3cm tumor no metastasis to lymph nodes. I took an aggressive stance on surgeries, opting for a double mastectomy with nipple removal (January 2024) and then removed my ovaries and fallopian tubes in September 2024. I started AI…
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Find a person who would understand what I am going through.
I’m in my mid-40s and caring for my wife, who has stage 4 breast cancer. The cancer has spread to bones, then, after a few years of treatments, to the liver…, and they are now trying to enroll her in clinical trials. She’s relatively young, so I’m hoping she qualifies—but overall, it just gives you a bit of extra time. We…
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I’m back !
Yesterday marked my 20th cancerversary …little did I know or expect that I’d be alive and doing extremely well 20 years later ! I was stage III with 22/22 positive nodes . Not a good way to begin my cancer journey but look at me now ! I’ve been privileged to see 4 grand children join our family and share with my husband…
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Weigh in: What are the best and worst gifts for people with breast cancer?
If you've been diagnosed with breast cancer, what were some of the most meaningful gifts you received, whether material or non-material? Were there any gifts or offers that weren’t helpful? And if you're a caregiver, what gifts or gestures have you given that seemed especially appreciated? Share your suggestions and…
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Lumpectomy Lounge....let's talk!
WELCOME TO THE LUMPECTOMY LOUNGE! I've searched and searched BC.org and couldn't find a specific post just for those of us who have had lumpectomies (unless there was one and it got buried). So, I thought that it was about time that we had our own place that we can come to...where we can discuss, ask questions, tell…
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Pain
I am in so much pain (ribs, spine, jaw, hip) right now I don’t know what to do with myself. I’ve loaded up on morphine, ibuprofen, paracetamol, codeine, and nothing is even scratching it. How do we get through moments like this?
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How much did your breast change/shrink after rads?
It's been recommended to me to have a lumpectomy with rads however through research I've discovered that obviously the lumpectomy removes volume, but that radiation can significantly shrink or damage the breast. I'm already a B cup and asymmetrical and the mass is in my smaller breast. I'm VERY concerned that the outcome…
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Concern over weight loss while on piqray
Hello All, This is my first time here. Is anyone on piqray here and experiencing severe weight loss. My mother has been diagnosed with MBC and has been on Piqray for over a month (after PIK3CA mutation detected in the liver biopsy test, previously been on Ibrance). Fortunately her blood sugar levels are quite ok, around…
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Complicated breast reconstruction due to necrosis
I had double mastectomy with immediate reconstruction/tissue expanders placed on November 4, 2024. A week later had post surgery follow up with both surgeons. I had a hemotoma on right side that was drained in office 250/300cc’s. Surgeon said compression necrosis at IMF incision site. My plastic surgeon proceeded to remove…
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ER-, PR-, Her2+ Stage IV
Anyone else out there
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Life altering perception
Since I was diagnosed I have absolutely had my perceptions change. I see life completely different. Things I let slide by are now things I want to get rid of. I've noticed I've cut a lot of people out of my life since this. I feel like I love the people close to me more and am more accepting of their perceived "flaws".…
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Anyone from South Carolina
Hi there I would love to chat with some of y'all going through the terrible c word. I'm here if anyone needs to vent or just a chat to make us feel better. I hope to hear from y'all soon.
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Chemotherapy, Benefits vs. Risks
I am new here and seeking feedback on my treatment plan, specifically regarding chemotherapy. I have been informed that, given my tumor size of 5 mm, chemotherapy is an option but is often not recommended. The doctor explained that there is limited research on the benefits of chemotherapy for such a small stage I tumor,…
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Partial response to TH.
Has anyone gone through chemo and didn’t get complete response and have to start Kadcycla?
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~* The Waiting Room *~
I have noticed there is always someone on the board who is waiting for results of a various scan or test. We all know how difficult the waiting for reslults can be! There is a lot of anxiety that comes along with this.I like to be able to follow up with people, but sometimes it is very hard to keep track of everyone…
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Surgery to prevent lymphodema and Leuprolide injection
First diagnosed in 2020 stage one grade 2 ( very small tumour). Had mastectomy on left breast. Tried tamoxifen but was unable to continue after 2 years due to severe chronic nausea( was down to 100 pounds and on gravol and ondasetron for months). In mid November 2024, my armpit was itchy and that is where I felt a lump.…
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Implants...does your "foobs" get itchy!!!
I've had my current set of implants....mentor silicone implants for 3 1/2 years now...and there are times I feel like I want to claw my chest off...this is mostly in the evening....I haven't been to the PS in 1 1/2 years (or is it 2 1/2 years) and have no plans to make an appt for him to just look at them and say yup, they…
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I cant stop thinking the worse
I cant stop thinking the worse. So in December I noticed I had some swelling and firmer breast tissue in the tail of spence area almost looked like axillary breast tissue. I had a baby a year ago so my boobs are not what they once were. Ever since becoming a Mom I have huge anxiety with my health and so booked in for an…
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Capecitabine not working
what’s next after capecitabine (xeloda) failure? I am ER+ and HER2- . Took ibrance and letrozole for 5 years NED. Then tried Fulvestrant with no luck and now capecitabine first scan shows progression. What’s next for me? I’m scared.
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Enhertu Dose Reduction Results
Hi! I've had 8 infusions of Enhertu at the full dose level and have experienced side effects of fatigue and general crappiness, not in keeping with my quality of life wishes. Because of this, I'm seriously considering going to a lower dose of 4.4 mg. I can't find any data on how effective the drug is at this lower level,…
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On Anastrozole. Should I start Zometa? Had one Bone met that's gone! Tamoxifen instead?
HISTORY I just started this MBC journey 7 months ago. I had one small bone met in upper sternum and some possible mets to soft tissue in mediastinum and lymph nodes in same area. Only the sternum was biopsied. ER+ (90%), PR+ (30%), HER2+. I started on HP protocal and anastrozole the end of July 2024. No chemo. End of…
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Recent MRI has me concerned
This week I had an MRI and the results have me concerned. The impression stated "irregular 1.2 cm mass in the left lower outer posterior depth demonstrating rapid wash in and persistent kinetics" - BiRads 4 I have been recommended for an MRI guided biopsy. My mother and my grandmother as well as two of my grandmother's…
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What are your “Mantras” to get you through a test, treatment, a bad day?
We all need tools to get us through our most difficult moments. If you have a mantra, or strategy, please share here!