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Anyone Lumpy after DIEP?
I had my DIEP on 2/20. My radiated side has been difficult - the skin necrotized, so on 3/18 I had some skin grafting on that side. However, during that procedure it came to light that some of my left flap had died, so they removed that portion (about half the flap). I have my first post-op later this week. In the…
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March/April 2024 Surgery Support Thread
Please gather here to get and give support. Feel free to share your type of surgery, date, and let us know how you're preparing and how you're doing post-surgery. We're all here for you!
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I've Finished 5 years of Tamoxifen!
I took my last Tamoxifen pill yesterday and I'm happy about that. I didn't think I could make it through the entire 5 years. It was really a struggle and balancing act to take a daily pill that aggravated my throat/stomach without destroying it. I've been taking a lot of PPI medication which I hope I can decrease soon. I'm…
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Interpreting Mammograms: Calcifications
from the American College of Radiology Breast Imaging Boot Camp
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Upcoming Oncoplasty Lumpectomy
I’m having the surgery with reduction & lift next week. Hoping to go home same day. Can anyone share what their recovery was like? I’m off work on an (unpaid) medical leave, but live on a farm and single parent teens so I’m usually kinda busy. Thx
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Surgical Options
I was just diagnosed and am deciding between treatment options. I am already scheduled for surgery but now I am having doubts about the Lumpectomy and subsequent radiation therapy. In my honest opinion, I now feel that the mastectomy could be the better choice due to avoiding the radiotherapy and hormone therapy. Feeling…
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Ibrance Users greater than 24 months
How many of us have used Ibrance (plus an antiestrogen) greater than 24 months - even those who have moved on to next line of treatment. Apparently, the median PFS on this combo is now 27.6 months. For bone mets only the median PFS at 36.2 months. Data is from the Paloma 2 trial.
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I have a question for my mom
My mom just diagnosed with recurrence and we are waiting for the PET scan to see if it’s local or there is Mets the doctor is saying it’s unlikely to be Mets as the biopsy result shows ki67 is 10 % and The tumor size if 10mm my mom still worries and she is asking if they believe there is no Mets why they are doing a PET…
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Anyone experienced numbness and tingling on one side of your body?
My bc diagnosis was in 2021 and I had a lumpectomy and lymph node biopsy 12/21, followed by radiation 3/22. I was 71 at the time. My diagnosis was pure mucinous, clear margins, no lymph node spread, grade 2, stage 1.About a month ago I experienced complete numbness of my right leg and foot from the groin down. It lasted…
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letrozole and Coughing
“My mother has MBC to lungs She’s taking Letrozole. After three months, she started coughing and complains of a dry throat. Is coughing a side effect of the treatment?
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PET Scan
Hi I am wondering at what point will the oncologist order a PET scan. Is it mostly for patients with a high risk or symptoms of other issues? Or can I request one just to be sure that I am "all good"? Just anxious to see if I have or not have any other thing going on. I have a diagnostic mammogram and MRI coming up in…
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Pain Before Diagnosis
Hi everyone. I’m hoping you guys can give me some information or ideas. I have seen my ob and I have a diagnostic mammogram and ultrasound scheduled in 4 days. I’m wondering about the pain. It is my biggest symptom. The pain started out like I was cold. It wasn’t very painful, but my nipple hurt like I stepped into very…
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US CDC guidelines for Lung Cancer screening
In the US, CDC does have a guideline for lung screening. And for some reason, lung screening, is not as widely known as colorectal or breast screening. But nonetheless, the language on their site does not include those whom have had breast cancer or have gone thru breast cancer treatments under the "whom should be…
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Fall/Winter 2023/2024 Radiation Thread
Gather here to share experiences, ask question, get encouragement, and support others who are going through radiation therapy along with you. Please share your diagnosis, any previous treatment you've had, and your scheduled start date along with your radiation schedule. We're all here for you!
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Pathology Report- how long?
May I ask how long typically does it take before you receive your pathology report from surgery? I am through week one starting week two. I’m anxious because those results are what will give me more info as to my treatment plan and what to expect going forward. I know waiting is THE WORST.
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Gemcitabine / Carboplatin
Anyone have any experience or tips on this combo. I’m starting this combo on the 19th Nov since Ibrance/Falsodex and Xeloda failed after 11 months in. Thank you in advance for any tips or suggestions. I got my port placed Wednesday. Thanks so much, Karen
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Panic attack, sadness and breathing exercise
Hi everybody I'm usually happy and try to have my normal life, but sometimes I just feel like I'm going deeper snd deeper in to sadness, or having a strong panic attack . Especially now that I fpund out my cancer is back in my liver, after only an year of Ribociclib. I tough it was supposed to last 5 or 6 year, but not for…
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Has anyone else used black seed oil?
I am just curious if anyone else has been using black seed oil for breast cancer (nigella sativa) and the results they have experienced. I have been taking it for a few months and I am (so far anyways) stable. I am wondering if I stumbled across a hidden gem or am I the last to know about this stuff?!
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Bilateral mastectomy
I had a nipple sparing bilateral mastectomy on 4/1/24. Invasive carcinoma on the left and two spots of DCIS on the right. Lymph nodes were clear. I’m waiting for the Onco results. I am very anxious, and hoping that I won’t need chemo. Recovery has been tough, but I’m only 6 days post op. Pain management has been a…
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flax seed oil & cottage cheese
Yesterday I read flax seed oil & cottage cheese can cure cancer. Has anyone heard anything about it? There are a lot of testimonies of people whose cancers disappeared after using it. That with a few other remedies would be easier, affordable and I wouldn't have to have surgery. I need to speak with my naturpathic doctor…
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Anyone with Rotter’s Nodes Metastases??
My surgical consult thinks my recent recurrence involves the Rotter’s Nodes and surrounding pectoral muscles . They are trying to come up with a plan to treat it locally but everyone seems to be scratching their heads about how to approach it. I am now being sent to a thoracic surgeon for a consult. Not instilling a lot of…
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Have a lump with negative mammogram and Ultrasound but MRI shows Non Mass Enhancement
Good afternoon, After noticing a lump about 1.5 inches around in my left breast, I went for a mammogram and ultrasound which showed nothing. Because I have extremely dense breasts and there is a palpable lump, they sent me for an MRI with contrast. It came back with the following results: "Left breast: There is extensive…
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What counts as "active treatment"?
What counts as "active treatment"? I'm honestly asking, since I am in that weird liminal zone between "done with surgeries" (I hope), but "still taking meds."
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Embracing What Matters Most After a Metastatic Breast Cancer Diagnosis
Embracing What Matters Most After a Metastatic Breast Cancer Diagnosis Mar 1, 2024 Grief counselor Kelly Grosklags helps Melissa Jenkins moderate a special Virtual Community Meetup on embracing what matters after being diagnosed with metastatic breast cancer. Living with metastatic breast cancer can bring many changes,…
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Lobular Sucks!
Invasive Lobular Cancer (ILC) manifests very differently from the more common Invasive Ductal Cancer (IDC). It is considered an "old lady disease" and I should not be having to deal with it at my age, but here I am. It was difficult to scour the boards for patients like myself in order to learn from the experiences and…
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My Sister/BFF newly diagnosed with breast Cancer
Hello All my name is MsPhil long time member here. Praise God I took had breast cancer now a 30yr Surviver. My BFF/Sister diagnosed last month with DCIS stage 0 we saw oncologist Monday to see surgeon suggest Mastectomy as I took had. Please keep her in prayer as I have always kee All here in Prayer. Thanks
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5mg tamoxifen
Hi New here, just finished 2 surgeries and 15 radiation treatments dcis gr 1-2 Er/pr+ her2 neg. I am 65 Just going to start 5mg tamoxifen next Monday Apr 22. Hesitant when they did the pathology on my sample which was very small I had a slight break in one of the Ducts so that changed me to invasive but it was microscopic…
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Let Down Feeling...Not pregnant! HELP!
Hi. I'm 37 and have been having pain in my left breast as well as a very disturbing "let down feeling" in both breasts. I have nursed three children so I'm very familiar with the feeling. My youngest is 7. I had 2 fairly large cysts drained from my left breast in Oct 2016, and a fibroadenoma removed from the right in Nov…
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My BIRADS 4 experience, please have Faith
I had been having pain in my left breast for almost a year, until I decided to request a mammogram. I’m 39 years old, with no history of BC in my family. March 11th was my mammogram and they wanted to do a ultrasound right then in there too, before I left I was told “we found a mass and it needs to be biopsied” my world…
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Looking for hope
Hi, I am 45 and just recently had my first Mammo. I have very dense breasts which led me directly from mammo to ultrasound. The tech told me at least 5 or 6 times that my right breast was very “angry” and she understood why it was hurting. I have a biopsy scheduled for Thursday (one week after mammo/ut) and of course the…