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Advice needed - symptoms ongoing for over 18 months now
Hello everyone. I posted on here a few times many months ago, but considering I’m still suffering with no answers, I decided to come back for some advice. First, I no longer have a gynecologist that I feel comfortable with as the woman I was seeing left the group and since then I’ve been bounced around with no relationship…
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Biomarker Testing Laws: How Are They Helping?
Biomarker Testing Laws: How Are They Helping? Float RightMediumAccessibilityDelete Jan 24, 2025 Joanna Doran explains new laws aimed at providing more comprehensive insurance coverage for biomarker testing. In cancer, biomarkers are features of the tumor, such as a genetic mutation or the presence of a certain protein.…
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Fall 2024 Breast Cancer Research Round Up
Fall 2024 Breast Cancer Research Round UpFeb 7, 2025 What does the latest breast cancer research mean for you? Dr. Kathy Miller explains. Hormonal birth control increases breast cancer risk in women with a BRCA1 mutation, but not women with a BRCA2 mutation. Levonorgestrel IUDs increase risk, but how much? The long-term…
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How Does Alcohol Affect Breast Cancer Risk?
How Does Alcohol Affect Breast Cancer Risk?Feb 21, 2025 About half the country doesn’t know that alcohol increases cancer risk. In January 2025, the U.S. Surgeon General put out an advisory on alcohol and cancer risk, calling for cancer risk-warning labels on alcoholic beverages. The advisory said alcohol contributes to…
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One Chemo Medicine Before Surgery for Early-Stage HER2-Positive Breast Cancer May Be Better Than Two
One Chemo Medicine Before Surgery for Early-Stage HER2-Positive Breast Cancer May Be Better Than Two Feb 5, 2025 Abraxane instead of Taxotere and carboplatin led to a better response and fewer serious side effects. Read more…
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Breast Cancer Survivors With BRCA Mutation Have Higher Risk of Second Cancer
Breast Cancer Survivors With BRCA Mutation Have Higher Risk of Second Cancer Jan 16, 2025 Risks were higher for a new cancer in the opposite breast, as well as ovarian, pancreatic, and prostate cancers. Read more…
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After Early-Stage Breast Cancer, Risk of Metastatic Recurrence Higher for Younger People
After Early-Stage Breast Cancer, Risk of Metastatic Recurrence Higher for Younger People Jan 16, 2025 Some breast cancers may be more likely to come back as metastatic disease five to 10 years after surgery in people ages 35 and younger. Read more…
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February 2025 Surgery Support Thread
Please gather here to get and give support. Feel free to share your type of surgery, date, and let us know how you're preparing and how you're doing post-surgery. We're all here for you!
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Spring surgeries
wondering if there are any other April or May surgeries? Just recovering from my late April mastectomy.
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Medicare Cranial Prosthesis Process / Coverage
Wondering if anyone has experience getting a wig aka "cranial prosthesis" through Medicare. My doctor tells me it has been submitted but something is keeping it from getting to Medicare. Any ideas? I keep pestering the doc admin and they keep trying, but not having any luck (since July 22). Odd because they said they can…
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Meningioma or metastases?
I was diagnosed 16 years ago, and had kind of put the fear of recurrence behind me. I recently had a bad sinus infection and started having intermittent episodes of double vision. After rounds of antibiotics and steroids, they have gotten better (fewer and not lasting as long) but my PCP had me go for an MRI to rule out…
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Hormone receptor status changed
My biopsy showed I was ER+ (90%), PR+ (30%) and HER2+ (3). I just had a lumpectomy and now my markers show I am ER low+ (5%), PR- (0%) and HER2+ (3). How is that possible and what does it mean if I'm ER low positive, PR -? Does that mean I won't have targeted hormone therapy? Is it better or worse than the triple positive…
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Single Hormone Status- IDC (ER+ PR- and Her2-) Newly Diagnosed
Hi! I am new here :) I was diagnosed 12/31/2024. So far I have had mammogram/US→ biopsies → diagnosed → MRI → results → Met with a Sugerical Oncologist → Currently waiting on oncotype results (from biopsy sample.) and I have a follow up with OS/Plastics this coming Monday. I have a large span of DCIS and 1.4cm IDC - both…
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Received my MRI report
I need more tests done. One of the tests is a galactogram.. has anyone had one? I googled it and it sounds painful 😣
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Did women who had an easy menopause and periods, have an easy time with IA?
I'm supposed to start Letrozole. I just got over chemo and RT and just waiting to get back on my feet before starting this poison. Trying to talk myself into it. I can't seem to get straight answers that satisfy me. Get tired of the Standard of Care or One Size Fits All. Why isn't a hormone test done at the beginning and…
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Heart issue(s) and breast cancer: What's your story?
Share with others here ❤️ For more information, please see our new page on Heart Tests for People With Breast Cancer.
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Pre- and Post-surgery supplements, vitamins and foods
I've been looking into what are good supplements to take before and after surgery. It's too late for me to start taking anything PREsurgery, but I thought this would help others--this is from Dr. Steven Sinatra. I plan on taking various supplements right after surgery to help with healing. Power Healing is a term I've…
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Can stretching cause breast pain?
ks ago I was doing some stretching and after that I noticed that a part of my lower left breast hurts when touched. I did not pay attention to it at first but until now it still doesn't go away. I am also nearing my period so I am thinking maybe it's just PMS but why is it only on that part and when I touched it, it feels…
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Estrogen prohibitor meds
Has anyone tried Anestrosole and Exemestane and have horrific leg pain. I've given up. It wakes me up and it hurts all day. They say you must take one of these for 5 years. There is no way I can do this without taking a strong pain/antiinflamatory. Discouraged Liz
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Her2 low / negative with Brca1 mutation
good day, I was recently diagnose with breast cancer. I have appt to see a breast surgeon soon. I have just got my pathology report and I used Chatgpt to get a better understanding of all of it. though am still confused at one point I am ER- PgR- and Her2 low / negative I was also genetic tested a few years back with the…
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BioZorb Recall
I want to let all of you know that have had a BioZorb implanted during your breast cancer surgery that the FDA has recently made a Class 1 Recall on the device. This is the most serious FDA Recall possible. Google BioZorb Recall, Hologic BioZorb recall, FDA BioZorb Recall and you will read a lot of information about the…
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CTdna positive results anyone?
Hi all, I'm just over 5 years out from a diagnosis of ER/PR+ Her2- stage III breast cancer . I did alllllll the treatment options back in the day and have been on hormone therapy (OS+letrozole) ever since. Recently I decided to do the fairly new circulating tumor DNA test to potentially take part in a clinical trial and it…
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Vepdegestrant?
has anyone tried this drug? there is a trial opening near me for combination of this and cdk4. not sure if two drugs in trials is less safe?
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January 2025 Surgery Support Thread
Please gather here to get and give support. Feel free to share your type of surgery, date, and let us know how you're preparing and how you're doing post-surgery. We're all here for you!
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downsizing
Hello whippetmom, I have had dcis stage 0 and they have done 9 recons with 2 blood sepsis with the first surgeion that I had 8 surgeries with,I had been working the whole time. My new surgeon placed 310 high profile in and I feel too big, am 59, 120 lbs 34d bleh,
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Ladies in their 40s
Hello All, I just wanted to start a new thread for ladies in their 40s. Although we are considered "middle aged," many of us are still dealing with issues concerning young women, such as fertility, pre-menopausal status and related treatment decisions, young children at home, being single etc. Both younger ladies (in their…
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Not diagnosed but worried….Input or Advice
Hi there, I'm posting this because I would appreciate some advice. I am very regular with my mammo/Ultrasounds as my sister was diagnosed with breast cancer at 49. I also have 2 aunts that have had breast cancer as well. Both my parents have passed from cancer(not breast). I have never been called back until now. I also…
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Post mastectomy nerve pain
OMG!!!! Does anyone else have shooting pains and your boobs feel like they are on fire? I'm a week post double mastectomy and the shooting pain and the feeling that my right breast is still there is not something to joke about. I have an extremely high tolerance for pain. I cooked supper two days post pop and have resumed…
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Hanging on to Hope.
Hello everyone, I am here to tell my story, and I am here to get support, opinions, prayers, and maybe some answers. My name is Millie, I am 35 years old, and I have a wonderful and beautiful 8 year old daughter that needs me. In October 2028 the Dr's decided to perform a partial hysterectomy. We'll years passed and…
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ADH and LCIS treatment recommended is anastrozole for 5 years
Hormonal Therapy recommended for LCIS and ADH by an oncologist. Medicine they are asking me to take is Anastrozole and I am looking for feedback from the community on the side effects experienced from this drug. It is not actually FDA approved for this prophylactic treatment of post menopausal women and these types of pre…