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Ringing of the bell. A perspective from someone with MBC. Please share yours!
Thanks to Jaimee for sharing her perspective! Please share yours below! Does your treatment center do this? If so, how does it make you feel? Share your thoughts. https://youtu.be/OMcEQ_lBg58
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fibrocystic breast condition.
Hi everyone, I’m a 45-year-old woman dealing with fibrocystic breast condition. I sometimes experience pain and hormonal symptoms that make daily life tough. I'm here to connect with others, learn from your experiences, and hopefully feel a bit less alone on this path. If you've found anything that helped with pain relief,…
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Cancer recurrence worried....
Hey all. My mother had breast cancer 8 years ago it was spread under armpit 2.3inches. They did surgery chemoteraphy and radiation everthing went okay. Now after 8 yeras my mother got anemia they did bone narrow biopsy that shows cancer cells there . The doctor says its cancer recurrence but they dont know where it is she…
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TAMOXIFEN & CYMBALTA
I read that Tamoxifen should not be taken with Cymbalta as the Cymbalta can make the Tamoxifen ineffective as well as increase the side effects. Is this true and if so, can someone recommend a replacement for Cymbalta?
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Hair loss and Kisqali
I have been recently diagnosed with Stage IV metastatic breast cancer after a year being stage II. I started Kisqali last week and was told I would only have hair thinning. I am loosing chunks of hair. Would love to hear if anyone has experienced this? My oncologist told me none of her patients had to get wigs and only had…
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newly diagnosed idc
seeking medical second opinion for newly diagnosed invasive ductas carcinoma of the breast
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KISQALI
I have completed one cycle and am on week off in 4 days I’m supposed to be back on My blood numbers tanked like worse than in chemotherapy My white blood cell count is 1.8 platelets 130 Will they pull me off medicine? I was in getting my fulvestrant shot not at same clinic as my onocologist so nurses were unable to answer…
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Does this sound like fibrocystic breast pain?
Hello, I am wondering if anyone has experience with fibrocystic pain? I have very lumpy very dense breasts and always had pain before my period. My cycles are not regular the last year or so as I am in perimenopause (46 years old). The pain has gotten worse on one side mostly (right). Last mammogram and u/s I had a lot of…
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Pik3ca E110del mutation? it's rare
anyone have a PIK3CA E110del mutation? I do. it's rare, like 1 in 4000 Pik3ca mutation is E110del. it kept me out of a clinical trial because I didn't have one of the top 10 mutations. arghghgh. we're going to try Piqray anyways. arghagrhgargharghghhgh. Same thing happened with my ESR1 mutation as well. I guess I'm…
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Experiences with Fosamax
Hello I recently had a Dexa scan because my oncologist wants to change my Tamoxifen to Anastrozole after my hysterectomy . I am 46 years old. Come to find out I have osteoporosis in my spine my T-score was -2.8. Also Osteopenia in my pelvic/hip area. I am in really good health and eat very healthy, take calcium and Vitamin…
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After first shot of Lupron
Hi I am new to this forum. My oncologist recommended a course for Lupron shoot every 3 months for 5 years as I am premenopausal. Then add Tamoxifen for 5 years after my radiation, which is schedule to start next week. The Lupron shoot was done in the middle of my cycle so I had my period at the regular time. But instead of…
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Medicaid Is Under Threat: Why That Matters for Breast Cancer Care
Check out our latest reporting: https://www.breastcancer.org/news/medicaid-cuts
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Are you having surgery in June 2025? Let's gather here to support one another!
Add to the discussion below to share your scheduled surgery date, type of surgery, what you're doing to prepare, ask any questions you have about what to expect, share your experience after surgery, how you're recovering, tips to help others recover, products and other practical advice for those coming after you. We're all…
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Has anyone had the BCI (Breast Cancer Index ) test?
I am 5 and 1/2 years out from my diagnosis of ER+PR+HER- IDC, post BMX, chemo and almost 5 years of endocrine therapy. (I've tried them all and currently on Letrozole). Hate them all pretty much the same. Got my results of BCI ( not from doctor yet-I requested from the company and will discuss at my next visit which is…
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Oncotype test and results
I just had a double mastectomy. The point was to have a lower risk of not having the cancer come back. They done a Oncotype Dx test and my score was 51. Now they are wanting me to do chemo. I am very scared and questioning rather I want to do that or not. I am 54 years old. I dont know what to do!
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Debra Trails...
Anyone have any thoughts, information, etc. on the Debra trails. I have googled it and am continuing to search for as much detail as I can find. I have IDC Grade 1, HR+, Her- and my tumor was less than 5mm. This is a very personal decision, but trying to gather as much information as I can prior to making my decision.
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I m afraid.....
Hi everyone I was diagnosed in April 2022 with a non-invasive DCIS, not IBC. I had a lumpectomy with clear margins, and they also performed a symmetrization and breast reduction on the other side. Then I had radiation therapy on the affected breast. On pathology, it was already classified as ACR 4C (BI-RADS 4C – high…
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Just diagnosed
hi my name is Kim and I was just diagnosed with invasive ductal carcinoma. I’m a grade 1 but haven’t been told my stage. My coordinator said it comes later. My tumor is 1.1 cm. I have an MRI next week then meet with the surgeon on the 13. I’m terrified and find myself not able to eat or sleep and cry. I watched my mom die…
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Poem Time Pink Warriors! 💪💗
“Damn Cancer” Chemo rolled in like a wrecking ball, Took my taste buds, took my gall. Food’s just texture—what’s that smell? Oh wait, it’s me… I can’t quite tell. Brain fog’s thick as a bowl of stew, Walked in a room—what’d I come to do? Forgot my pants, but found my hat, At least I remembered where the cat’s at. No wine,…
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Stage 1, grade 1 and pre-menopausal
hi sisters, It has struck me that most grade 1, stage 1 sisters seem to be post-menopausal (aka low estrogen) and younger women seem to be more often stage 2/grade 2. I am 42, recently diagnosed ER positive, still full of estrogen and becoming a little paranoid that there is something different about me or my cancer! I am…
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Verzenio & Letrozole
Second bout with breast cancer: I am a 61 Year Old woman diagnosed February 2025 Her 2 Positive 8 cm x 6 cm (large) breast tumor with metastatic skin cancer on ribs (considered stage 4) being treated with Letrozole and Vernizio I was first diagnosed in 2021 with a similar tumor but no metastases at that time. I received…
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Will be starting chemo
I jus done my Oncotype dx test and they are recommending me do chemo. I am very scared and dont want to do it. I had a double mastectomy to help prevent the recurrence. What do you think?
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CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
I'm hoping there isn't another thread like this. I did a search and saw one for stage 4, but nothing for everyone else. My very special friend on BCO (Tomboy), and I have talked about a Crazy Town thread for awhile now. I know she will be happy I finally took the bull by the horns!! I wrote a little story about visiting…
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Donate caps, hats etc cold cap
Hi! Newly diagnosed. Anyone know if i can purchase a penguin cold cap from someone or does anyone have one? They are expensive and was wondering if they could be used from person to person or does it have to be purchased new with a kit? Any help would be appreciated ❤️ Also not sure if this is allowed, but would love 2 Get…
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High Grade Mucinous Carcinoma at 40
Hello everyone, My lumpectomy and sentinal node biopsy pathology report came back. It was a 1.8cm high grade mucinous carcinoma. Tumor borders were clear but there was additional DCIS 0.5mm from the border. Nodes were negative. This was found when I just finished breastfeeding. I'm 40 and all I see is information on this…
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Enhertu
good morning wondering how many people lost there hair on enhertu ?
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Bottle o Tamoxifen
Dear All, (and Layne are you there?) Got my Tamox today and will start in a week. Where are my tamoxi pals? It says weight loss for one of the side effects. Now that's a good thing. Basha Edited by Mods to add content from the main Breastcancer.org site's section on Tamoxifen in Pill Form (Brand Name: Nolvadex): Benefits,…
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groin pain could be bone Mets? What does it feel like
if there is anybody out there, who sees this who has or had bone met, and would like to let me know what your symptoms or what it felt like I would really appreciate it. I've been having pain in my groin for several months on and off it feels deeper than the muscle because I can't push on the muscle and feel pain if that…
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Lung Nodule Incidental Finding
UPDATE - most likely benign - see below for details and cautions of how one scan leads to another…to another…to… Had a cardiac CT due to elevated LDL cholesterol. All clear so no statin - 0 calcium score. BUT a pulmonary nodule, partly solid, "measuring up to 9 mm" was found on the lower lobe of my right lung. No…
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Lupron Vs Ovary Removal
I was diagnosed with Stage 2A invasive lobular carcinoma. I had a lumpectomy and radiation which I completed in January 2025. I am currently getting monthly Lupron injections to put me into menopause and also taking letrozole. I am having significant mood swings with the lupin injections and I am considering having my…