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In treatment for TNBC stage 2. Feeling sad after losing my hair
Hi. I was diagnosed on Jan 20, 2026 with TNBC. Since then I’ve been through multiple scans, Dr.’s appts., biopsies, port placement and 3 (21 to go) chemo infusions. I have a positive attitude about it but the hair loss is really hard. I know it’s just hair to many but it has been how I see myself for 65 years now. Like all…
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Side effects from aromatase inhibitor other than joint pain.
I started on Anastozole (Arimidex) a little over a month ago. I know there are two others that are often given to post-menopausal HR+ women, Aromasin (exemestane) and Famara (letrozole). The joint pain and menopause like symptoms are what are mentioned most in articles. Although I've had some wrist pain, which I understand…
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15 years out with new finding
I will be 16 years out from diagnosis on 5/13/26 and had my annual diagnostic mammogram yesterday. Radiologist told me there was a new finding on my non cancer side so he did an ultrasound. It is less than a cm and he stated it appears to be in a duct. Given my history, he wants to do a biopsy which isn’t scheduled unto…
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Medicare Advantage Enrollment Ends 3/31 - Is it right for you? Learn the risks and benefits.
Are Medicare Advantage Plans Bad for People with Cancer? Check out our coverage.
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Why I chose to go flat after my single mastectomy
It's been a year since I had my single mastectomy for Stage 3 IBC. I decided to commemorate the occasion by sharing (a) what I learnt from a plastic surgeon regarding my reconstruction options and (b) why I chose to go flat. Hope my essay helps those who are thinking about foregoing reconstruction! Link to my essay:…
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Breast recon/implants -Successful Stories after Radiation
I wanted to find out if there were any success stories on this topic/procedure: Recentently I went to a PS . 4.5 years ago I had a lumpectomy, chemo and radiation. Although, my radiated breast is pretty much the same size, I have always wanted to get the fullness back in my breasts after having kids..etc... I'd always…
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Lumpectomy
Hi, I have IDC and I just had my lumpectomy. Surgery went well, the surgeon said he only took one lymph node. I do believe he also said that the tissue wasn’t enough to get a pathology report. But it looked normal when he removed it. I have my follow-up appt. Next week to find out more about the next steps. I would like to…
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What do you do for joint pain?
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Joint pain on Trastuzamab (Kanjinti)
Hi everyone, I completed 12 weeks of Taxol + Kanjinti at the end of January. Since then I have received 2 Kanjinti infusions, and will continue with these every 3 weeks until November. I am wondering if anyone has experienced joint pain in their elbows related to this treatment? Both of mine ache, especially after sleeping…
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💛 February 2026 Chemo Check-In—This Is Your Circle 💛
If chemo begins for you this February, you don’t have to walk into it alone. This space is here so you can land somewhere soft, honest, and understanding—surrounded by people who truly know what this chapter can feel like. Come as you are. Brave, anxious, exhausted, hopeful, unsure. All of it belongs here. We invite you to…
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Seeking Advice After Being Newly Diagnosed with DCIS
Greetings y'all, I learned on Thursday that the pathologist found DCIS in two biopsy samples taken from a clumped 3.6 cm lesion in my left breast (which was discovered via a MRI scan). The radiologist was unable to biopsy an additional 0.9 cm area of nonmass enhancement noted posterior along the pectoralis muscle 1.1 cm…
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Post radiation skin reaction
I’m 3 weeks post radiation treatment. Last week, my right breast (treated area) turned bright pink and itchy. I was given a topical steroid and have seen my radiation oncologist twice this week. He’s hoping the cream will start to do its job. Next step is an oral steroid. The need to want to itch is horrible. The more I…
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Very ill newbie asks about long term use of perjeta
Hi, first I'm very sorry that these things might have been adressed already, but I am very ill with ME and after had perjeta/herceptin treatment for more than 9 years now, my body and brain feels like it is breaking down and I have a hard time thinking, searching for info etc. I'm bed bound from ME, and have been so prior…
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48, DCIS, IDC, ER-,PR-,HER2+
Hello, newly diagnosed 2/16 with 2 sites of DCIS in left breast, IDC of 3mm per biopsy, HER2+ and waiting for my surgical oncologist appointment 3/2. The waiting is definitely hard.
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How long does bone pain last from Neulasta injection?
I had my first TCH on Friday 12/16 and then Neulasta on Sunday 12/28. I haven't had too many side effects except pain in my hips and lower back that is not relieved by Ibuprofen and Tylenol. I have chronic pain in those 2 areas anyway and usuallytake 1/2 dose NyQuil to sleep. This pain is much worse and just throbs…
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Before
will see Radiation Oncology in a couple weeks. Ny dr did say it would be the next step in my evaluation for treatment if necessary
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Just diagnosed with ILC
I was just diagnosed, and I'm meeting with my surgeon today. what questions should I be asking and what else should I be thinking about. Thats probably a very big question, it all feels very overwhelming. I just found this site yesterday, any other sites I should visit? thank you for your help.
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Starting my 24th year of MBC de novo!
Yay! Today is the start of my 24th year after my dx of Stage 4 MBC de novo. Still hanging in here! Here's my history.....Dx’d in December, 2002. ER+, Pr-, Her2+++ Metaplastic BC. Had A/C & Taxotere. Left side was DCIS and Her2+++, but right side was tubular and Her2-.In 2004 my liver was filled with tumors. I had a liver…
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Her2 positive, ER negative ,PR negative
I am interested to hear from folks who have this specific sub type and compare notes. I was diagnosed 6/2021 with L. Breast Ca Stage 11B, 2 positive nodes. Ki-67 90%. Had neoadjuvant TCHP x 6 July’21, double mastectomy 11/21, (tissue expanders, exchange to implants hopefully November 22) followed by Phesgo every 3 wks…
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Preparing for a DIEP Flap Reconstruction
Hi everyone, I'm 2 months out from DIEP Flap Reconstruction. I'm doing a delayed reconstruction on the left (had a total left mastectomy 12/24) and also getting a right mastectomy and immediate reconstruction on the right. I'd love any tips on what to have or buy to support recovery from this surgery. I understand that…
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MBC Virtual Support Groups: Register Here to Share Face-to-Face
Please join us for one of our Virtual Support Groups on Zoom -- register by clicking the links below: Do you have metastatic breast cancer (MBC; also called stage IV)? Register: Mondays at 2:00 PM EST, Tuesdays at 8:30 PM EST and Wednesdays at 4:00 PM EST Metastatic Lobular Breast Cancer Register: Third Thursday of every…
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Newly diagnosed DCIS
I just received my DCIS diagnosis on 2/20. My physician has ordered me an MRI due to punctuate calcifications seen between the two DCIS positive sites in my breast (which are 7 cm apart). Has anyone else had this?
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Aromatase Inhibitors and GERD?
Hello friends, Has anyone dealt with reflux or GERD while taking AI’s? If so, have you used medication to deal with it and what was the result? (I’m on my second AI, so that’s 2 1/2 years with severe reflux. Working with a gastroenterologist now to manage the reflux and try to stay on Exemestane for a few more years.)…
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Cancer Free!
I found 2 lumps in my breast in Jan. 2026, ( Mamo of last yr. did not pick them up) My Dr. worked fast, got me into a surgeon in Lewiston, Id. I have Metastic Breast Disease, surgery on Feb. 5th. Removing 1 Breast, yesterday follow up, to find I am " cancer free." The Surgeon removed 6 lymph nodes, 3 under my arm, 3 from…
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Hello out there!
Hi, I'm looking to connect with other women in their 40's. I'm 46, was diagnosed with ER/PR +, HER2- IDC in 2022. I've been looking through the threads but I can't find anything that is recent. Thanks so much!
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Fearful of Gadolinium Breast MRI
Hello, My dr. wants me to get a breast MRI which uses gadolinium. I am very afraid of this as my dad had a cardiac arrest during contrast and also in addition to BC in my family there's a lot of Parkinsons. I also have autoimmune issues! Basically…I don't need any more problems. The dr will not allow me to have it without…
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Tiffany`s Twenty Terrific Tips for TC
I just wanted to share with everyone my tips for getting through TC chemo, which I think helped me a lot. My only symptoms were a touch of nausea on days 3-4, a bit of diarrhea, constipation, dry mouth, and fatigue. I never got sick. 1. During chemo and for several days afterwards, drink a LOT of water. I drank 3 liters a…
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LCIS - BC in family -- NIGHTLY HOT FLASHES & PALPITATIONS - Can't sleep - MISERABLE & CONFUSED
Hello, I am 61 and have been in menopause one decade. I lost my dear sister to BC at age 42. About 10 years ago I had a surgical biopsy that said LCIS. Since then normal mammos but dense breasts. I have waited for these symptoms to "pass" but now it's pretty clear they never will. My nightly routine is horrible…
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82 years old
And yes, Metastic Breast cancer, removed 1 breast, now cancer free. No chemo, no radiation. All in 1 month time. Odd that health insurance says, " no more Mammograms after 80 yrs. of age. " Insisted my Dr. order one, he did, it did not find the lump last yr. But this year there was 2 lumps, I found. Quickly assessed, and…
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Post Radiation Side Effects
While my radiologist shared all of the pros and cons, he didn't share the "by the way" side effects. On a positive note, I discovered, thru trial and error, that calendula GEL is very helpful in healing the deep pitting and leathery issues post radiation. On the not so positive side, about a year after the radiation, I…