-
Mammo and Ultrasound With Birads 4
I haven't been here for sometime as I am 13 years out. I go for my mammos each year and personally I hate the place and do not trust them. I should have switched, but felt once a year I could deal with it. The issue is they did a biopsy in 2011 where I was dxed. Then after treatment they were biopsy happy. I had two bad…
-
Genetic Testing + Excisional Biopsy
Hi! If any of you have had genetic testing done, how did you get your results? Was it on the phone or in person or maybe via letter or portal? Did the results influence how/where you were given the results? Thanks!
-
Starting Chemo in February 2024? Gather here for support!
Join and share here to get and give support if you're scheduled to begin chemotherapy this month. Please share your diagnosis, planned chemo regimen and start date, so we can all support you as you navigate treatment — we're all here for you!
-
Tamoxifen is making me feel awful AND I'm at the angry stage
It took me a while to get here, I was diagnosed on 2/11 - and BMX on 3/13. Low Onco Type, so taking Tamoxifen for 5 years. I am 30 days into Tamoxifen, and it's making me feel awful. Tired, moody, LOTS of nausea and brain fog. The Tomaxifen is harder than the mastectomy recovery. In the mornings I sometimes feel like I…
-
Medicare coverage of post-reconstruction MRI
I had bilateral mastectomy with silicone implant reconstruction when I was in my 50’s, and had private insurance. As recommended by my plastic surgeon, I’ve had surveillance MRIs every 3 years to evaluate the stability of the implants. This year I had my first with Medicare, and I received a notice of potential nonpayment…
-
Arimidex
Hi ladys i dont see many women on arimidex,I have a question for anyone out there on arimidex.I have been on arimidex for almost a year.19 months out from treatment still NED.I have joint pains and cant sleep tried every sleep aid nothing works.I switched my arimidex from taking it at night to taking it in the morning,now…
-
Free Mastectomy Bras!
FREE Mastectomy Bra! Just pay for shipping. My friend wants me to donate her mother’s mastectomy bras to a BC survivor. All of them are in excellent condition.I have 14 of them and will list the styles, size and brand below. If anyone wants one or more, just send me a PM (private message), and the first one who responds…
-
Bonded by Breast Cancer WEEKLY Virtual meetups!
Hope to see some of you here! We offer TWO moderated Bonded by Breast Cancer Virtual (Zoom) Meetups each week! Join with others you've created a connection with at Breastcancer.org, after active treatment is over. • Every Monday, 8 pm ET Register in advance! Monday Meetup Registration • Every Friday, 1 pm ET Register in…
-
PREDICT: Updated Breast Cancer "Survival Calculator" Tool
The PREDICT "survival calculator", based in the UK, has updated their algorithm as of Spring 2024 to include additional data inputs such as progesterone receptor status, smoker status, metastases status, plus an option for patients who accept or decline radiation. This tool may be helpful to those that're newly diagnosed…
-
Multiple Organ Mets and on Kisqali/Ribociclib (3+yrs)
I always hear amazing stories from those with dx’d with bone mets de novo on this drug. Curious to hear from those with multiple organ mets or were dx’d secondary who have done well long term on the Kisqali/Ribociclib combo. Where were your mets, and how long have you been on this treatment?
-
Thickening on breast/upper chest, nothing seen on mammo or u/s
I'm 42. 2.5 weeks ago I found a "lump" (not a lump, not a round one, a bump, something raised) that led to feeling thickening areas on my chest and in my right breast. Breast also is perkier that it used to be, where my left falls flat like a pancake 😅 the right now stays upright when I lay down. When I raise my arm my…
-
History of ADH; breast biopsies in April to May 2023
Hi All, Thank you very much for your kind support this past month. I really appreciate it. I had core needle biopsies and an excisional biopsy in 2009 when I was found to have fairly diffuse atypical ductal hyperplasia (ADH) on the right side. I have been on the 6 month screening alternating MRI with mammograms for about…
-
Verzenio
H was your experience taking Verzenio???
-
Ongoing breast issues. Possible Masectomy
I wrote here in 2020. If your interested in reading my anxiety induced post feel free to look at my history. I will try to make this short. In 2015 my left breast started to feel different. My left nipple would be erect while my right was normal. The shower, hugs, and tight bras would hurt. The moment I noticed this I got…
-
BIRADS 4a to 3 downgrade
Good morning, following a bilateral ultrasound I was diagnosed with: - Microcalcifications with segmental and slightly heterogeneous distribution in the left QSE with an extension of 7 x 4 cm. - BIRADS 4a - VABB biopsy for histological typing recommended and organized. Doing some research on the web I came across some less…
-
Hormone therapy or not if bad side effects
5 months now on Letrozole…post 20 radiation treatments after removal of 1 cm invasive ductal carcinoma, oncotype 17 and no nodes positive but high grade all markers. The severe hot flashes are back and with adrenaline rushes that keep me from falling quickly back to sleep. Been awake every 1-2 hrs for years now with hot…
-
Flipping Implant?
I’ve had my implants now for about 1 1/2 years and have recently noticed that 1 has started to flip-especially if I’m laying on my side or sleeping on my side. I only realize it because it’s physically obvious and I get a strange feeling (I don’t have any feeling in my chest since my BMX). It does flip back, but since this…
-
Avoid a recurrence of celluitis
I'm just getting over a third bout of cellulitis over the past 4 years. I've had LE since 2006 and had not experienced cellulitis until these past few years. I'm not sure why. Maybe because my "mature" skin is thinning - who knows. I'm wondering what advice any of you may have about how to keep infection at bay. Skin care,…
-
Cellulitis from tight bra?
Hi, All — I'm 11 years out from diagnosis and Lx/Mx. I have had issues with LE off and on since, but not much in the last 4 years or so. I wore a more substantial bra on Sunday. I usually only wear it for a few hours and then take it off, but I wore it all day. When I took it off on Sunday night, my cancer-side…
-
Navigating medications used for hormone positive breast cancer
I am struggling with taking these medications. Femara was the first one I tried and it was a no go. I was excessively tired all the time. After 3 months I switched to aromasin, which was a little better. But after over a year in this, I have bothersome side effects like tiredness, weakness, joint and back pain,…
-
Help regarding kisqali medication
I have an aunt suffering from breast cancer, which discovered recently , the doctor prescribed her a medicine called kisqali, the problem is the price of this medicine is very high, about 3000 dollars here in Morocco , and the financial situation of the family is very difficult, my question is Are there associations that…
-
Newly diagnosed, shall I finish my second dose of Shingles vaccine (ShingRx) before surgery?
I was diagnosed with stage 1 IDC (ER+PR+HER2-) last week. I had already taken the first Shingles vaccine a few months back. So, I have three months window to take the second shot. I’ve met with my breast surgeon but not the oncologist yet. My surgery will likely happen in four weeks. My surgeon said I probably don’t need…
-
In search of support after my mom's recent MBC diagnosis.
Hello everyone, Part of this is going to be me venting but also I have some questions if anyone is able to answer them. My mom was diagnosed with breast cancer for a 3rd time at the end of May, this time triple negative metastatic at the age of 57. She experienced a large pleural effusion in one of her lungs and the fluid…
-
High Risk Without Gene Mutations
Hi Everyone. New here and looking for some support. I have an incredibly strong history of breast cancer in my maternal line - Great grandmothers at least 3 generations back as well as some of their sisters, Grandmother died age 35, Great Aunt DX in her 60s, Mom in 60s, Aunt in 50s, and now my sister has been diagnosed age…
-
I am sure I have cancer and my doctors won’t listen
Hello everyone, looking for some insight and some advice for my situation. I started with nipple sensitivity in 2015 as well as breast fullness and heaviness. I went to the dr got an ultrasound and they said it’s hormonal. There are times where only my left breast hurts and aches and my nipple is erect. My husband can’t…
-
FAST Foward radiation treatment schedule option
Hi, this is my first post. I’m also not sure if my dx signature/details automatically attaches to my post. But I’ll add those details if I need to. I’m in Canada. The radiation oncologist gave me the option of the Fast Forward dosing schedule of treatment. It’s not first in line protocol here yet because it hasn’t been…
-
Biopsy done - no results yet
Hello - I had a biopsy left breast on Thursday 4 July - my 65th birthday!! It was just one area on the inner, underside of my left breast. My previous mammo was 2019 with no concerns, then I had a thermograph two years ago and no sign of anything then. I can't even feel anything myself although the radiologist said she…
-
Introduction, new here.
Hello everyone I am new to all this and I am scared and been going thru this whole thing with noone
-
Stopped Letrozole for One Month
I am curious if anyone has taken a break from hormone inhibitors for a month. I had surgery in January 2023 for invasive lobular cancer of the left breast and had a mastectomy. My oncotype was 13% and I had radiation therapy for 5 weeks. One lymph node was positive. I have been on and off hormone inhibitors since last…
-
To the newly diagnosed: 6 Years With TNBC, Still Going Strong
Good morning, everyone. I’m stopping in after a long hiatus to offer some help to those newly diagnosed with TNBC. Almost 6 years ago I was diagnosed with stage 3C triple negative breast cancer. I was in total shock, grief, and had to stop working due to anxiety and depression. I have had two recurrences since then. I am…