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Discussion List
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HER 2 Positive
Just got my results today and I'm in a tail spin! ER+++ (90%)Pr+(10%) HER 2 +++(90%), concerns with attachment to chest wall (2.9 cm). Met with the Nurse Navigator today and she is trying to get an MRI scheduled before we are to leave for a ten day trip on April 4 (app. with surgeon is supposed to be on the 20th and she is…
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Large lump found
Hi all. This morning I found a large lump in my right breast. I have just been to doctors and she checked my armpits (all fine) She said the lump was large but she could move it around and didn't seem sinister. She said a possibility is because of hormones. I am 44 and my period came yesterday although I am starting to get…
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4C BIRADS and really worried
Hi All- I am new in this forum and am just starting even learn about breast and it's diagnosis. I have always had normal mammograms and went in for diagnostic and got categorized as 4C yesterday—which I know is not good. I keep reading about metastatic cancer and I keep thinking about all the worst case scenarios that…
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How does a lump feel like?
Hello, i am 21 years old. Today i felt a lump about the size of marble on my right breast and then when i grabbed it and held it properly it felt much bigger - about the size of a tennis ball - . If i try and squeeze or push it, i can move the lump along to the left or right, or up or down. Its literally feels like theres…
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Triple positive invasive ductal and lobular breast cancer
:( I’m a 41 year old single mother to one. Living in Canada just diagnosed with triple positive invasive ductal and invasive lobular carcinoma. Preliminary grade 2/3. I’m looking for others with a similar diagnosis to chat with.
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Second primary breast cancer. Other breast...
Hi! I am quite a ways down the line from my Oct, 16, 2025 dx. of Second breast cancer in the other breast. But definitely wanted to make sure to get a discussion going ..As I saw few posts on Second primary breast cancer when I was diagnosed. Background: 1st Diagnosed at 49 years of age April 2014- Left Breast. stage 1…
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Period while on zoladex
My question is why i am on my period, if i had my injection on March 5? I was diagnosed on February 2023 and soon after i started zoladex. Since than it happened 2 times to have my period, only once it was my fault i forgot about one injection. Now it happened again but i had my injection. Next month its 6 months since i…
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Waiting for biopsy results, scary!
Found a lump just below my collarbone, referred for diag. mammogram and ultrasound. The mammogram didn't show anything as the lump is so high but the ultrasound was Birad 5 with irregular hypoechoic mass with irregular margins, echogenic rind, internal vavascularity and posterior shadowing, possible involvement of…
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Found a lump in Arm Pit - Oppostte Breast Cancer Side.
Hello, I have a history of breast cancer, and I found a new lump in my armpit on the opposite side from where I previously had breast cancer. I'm a bit freaked out! I don't have any lump in that breast or any signs of a recurrence. I've had a mamogram in November 10th with an all clear. I also had a bone scan in September.…
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Stopping Lupron
I have been taking Lupron and AI for nearly 5 years. I started at 49 and next month will be 55. My side effects have been really bad and I honestly can’t take it anymore. I have noticed that my symptoms depend on days of month in my Lupron cycle. I have a few good days before the shot and a few good days after, but then…
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Young her2+ BC Patients and Survivors. Hopeful stories
Hello, Ladies! I was diagnosed with stage 2 breast cancer (triple positive) at age 28. I’m looking for other young patients who’ve had breast cancer long time ago. Please share your stories about fighting HER2+ or +++. Stage? ERPR? Ki67? Treatment? If you are or your friends under age 40 when diagnosed, would you mind…
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Her2+ ER PR - KI-67 70-80% lymph node involved
This has been a road my nightmares were made up of. I’m 42 and I never imagined this for myself. Needless to say I’m sure none of us imagined this. I’m terrified to say the least and all roads lead to a fight we have to fight that unfortunately we have to pray for it to never come back. That’s the thing that gets me I…
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Electric pulse therapy users for MBC?
Has anyone seen this, or have any experience with this? I have MBC right now just breast and bone, (but have previously had cancer in my brain, liver, and leptomeningeal). I'm especially interested in the bone-benefit, since that is the most widespread. Not sure this youtube link will post, but the title on youtube is "New…
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Benign adenosis with discordant results
I have a 17mm lump in my left breast. The imaging (mammogram and ultrasound) looked highly suspicious (e.g., BIRADS 3), but the two separate biopsies only showed benign adenosis, therefore, the results are discordant. I am also experiencing nipple discharge (yellow colour). At this stage, I have declined to have a…
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Delayed Reconstruction..5 wks post up. What did he do??
Hi everyone. I am five weeks postop and due to see my surgeon this Wednesday.. I’m trying to prepare myself because what I asked for and what he did seem to be two different things. I had existing implants and decided on doing a simple explant with a lift on my good side.. on my cancer side he has done a tuck and roll with…
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Letrozole
Hi, I have been taking letrozole for 1.5 years and have decided to stop. I had stage 1 invasive ductal carcinoma. Treatment involved partial mastectomy, 20 treatments of radiation and letrozole 10 mg daily for 5 years. The hot flashes, insomnia and fatigue is really affecting my quality of life. I’m curious how many of you…
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Iron Infusion—have you had one?
Hello Friends: I had a phone appt with my MO today. We talked about my blood work. My iron deficiency panel is just not changing much. My ferritin hasn’t gone above 27. It’s 16 now. She said it should be around 100.My body isn't absorbing iron so she is ordering a iron infusion. Have any of you had iron infusions? Are…
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BRCA2 gene mutation of uncertain significance.
Hello everyone, I have been diagnosed with Stage 2 BC recently. Got my genetic report yesterday. I have got a finding of BRCA2 Variant of uncertain significance c.9307A>G and MSH6 VUS c.943T>A Anyone with similar mutation? I have a family history of breast cancer in mother and sister. Genetic testing not done in them.…
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Listing our BRCA mutations - maybe we can find matches
My idea is that we can use this topic to post our genetic mutation on the off chance that we can find someone else with the same mutation. I realize that this is a long shot because there are so many variations, but what the heck? I tried searching FORCE for mine with no luck. Here's my family's: BRCA2 - 2024del5
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Share your story of Genetic Testing
Dear Members, Would you be willing to share your story about genetic testing? (no pressure, only if you are inspired!) We are interested in the following questions: What led you to doing the testing? What were your results, and what choices have you made based on the findings? Was payment an issue? How have you discussed…
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Architecture distortion with benign biopsy but sent to MRI and surgeon
Hi everyone, I am new here and just went through a roller coaster with my breast exams over the past week. Hoping to get some help and support from this group. I am 38 and just finished breastfeeding my 1 yr old. I did my first mammogram last Friday and got callback for diagnostic mammogram followed by ultrasound. I was…
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Should Phytoestrogen foods be avoided in ER+?
Hello everyone, I have been recently diagnosed with Stage 2a BC Grade 3 IDC HR+ Her2 neg. Currently I am on Letrozole. Should I avoid foods with phytoestrogens like soy, berries, flaxseeds, walnuts, dates, prunes?
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Ribociclib benefit vs risk
Hello, anyone with T2N0-Hormone positive and Her2neu negative-Grade 3 IDC- Ki67 30 pc- LVI present, please connect. If you are someone with similar profile and post menopausal (50years+) and taking Letrozole+ Ribociclib, please let me know.
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NATALEE TRIAL
My dr. wants me to join the Natalee trial which is based on the success of the Monaleesa trial for women with Stage 4 breast cancer. the drug is Kisqali (ribociclib) tablets. It was administered in 6 mg tablets for the Monaleesa trial and will be given in 4 mg for the Natalee trial. The problem I am having with it is the…
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Anyone have experience with SERDs or off-label use of weight loss drugs instead of AIs?
I've been on letrozole almost a month and, while I can pretty much deal with the hot flashes, as a primary caregiver I'm very concerned about the joint pain preventing me from assisting my mom. I've already experienced pain in my right elbow and shoulder (the C side) when helping her get to her feet; feels like the joint's…
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Anyone on Kisqali and Exemestane? SE?
Hi, all I switched to Exemestane from Letrazole due to unbearable rash with the Kisqali/Letrozole combo. But on Exemestane the skin on my palms and feet is scaling, peeling off. Any advice? Also my hair is thining. What SE do you have and how do you deal with them? Thanks
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Should I find a new oncologist
I finished treatment for breast cancer 9/25. I’m still waiting to get these @#$&$#& expanders out. Radiation did a number on my skin and were waiting another month to get as much healing as possible. My issue now is that I don’t like my oncologist. I’m okay with my surgeon. Love my plastic surgeon. Don’t care at all for my…
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64 yr. Old with clear nipple discharge and scaly red patch on areola
Diagnostic Mammo and US found nothing, but was referred for breast mri. I need an mri that can be done without lying on my stomach, that is causing confusion and delay in getting the mri. I had my yearly dermatology skin check today. She noticed the red scaly red area and wants to biopsy it if it does not go away soon. I…
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changing from Medicare to Medicare Advantage
My medical group stopped accepting Advantage a couple of years ago. I wanted to keep my doctors so now I'm paying over $300 for a supplemental plan. I had a mastectomy several weeks ago. I'm not getting chemo or radiation so the only treatment I have left (hopefully) is possible reconstruction. I'm following up on my…
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Nipple Sparing Mastectomy with immediate reconstruction
I had a bilateral nipple sparing mastectomy with immediate reconstruction on December 15, 2009. In my research I did not find a lot of posts about this particular procedure. I wanted to start a forum for women who have had the same surgery, or who are considering this type of procedure. We could share helpful…
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- Research News 116
- Mastectomy 111
- Podcast 97
- Metastatic Breast Cancer (MBC or Stage IV) 95
- Invasive Ductal Carcinoma (IDC) 86
- Lumpectomy 78
- tamoxifen (Nolvadex; Apo-Tamox; Tamofen; Tamone; Soltamox) 69
- Anxiety 68
- Triple-Negative Breast Cancer 63
- Ductal Carcinoma In Situ (DCIS) 58
- Lumpectomy vs. mastectomy 57
- ER-positive 53
- Breast implants 49
- Femara (letrozole) 45
- Taxol (paclitaxel) 42
- AIs (Aromatase Inhibitors) 42
- AC: Adriamycin and Cytoxan 41
- Arimidex (anastrozole) 41
- Dense breasts 41
- AC+T (Taxol): Adriamycin and Cytoxan plus Taxol 40
- Abdominal Pain 36
- Recurrent Breast Cancer 36
- Kisqali (ribociclib) 36
- Hormone receptor-positive HER2-negative 36
- Verzenio (abemaciclib) 36