Recent Discussions

Side effects?? Need advice!

I am nearing my 5 year anniversary of Stage 1, Grade 3, BC in my left breast and today the mammogram and sonogram picked up somethin in my right breast. (I just had a clear MRI on this breast 8 months ago!) The radiologist said it could be a hematoma as there is no vascularity and it is very small (5mm) but I am spiraling…

As much as I like this forum/site, I was feeling incredibly ignorant and behind every time I connected. Everyone that posts lists all the letters, numbers, definers of their diagnosis. I kept thinking how do they have this memorized? Do they have a post it note on their laptop, or copy and paste? I am still just trying to…

Hi- It's been awhile since I've been on here. I was diagnosed in May 2014 with ILC. I had surgery, followed with radiation, and then a prescription for Anastrozole. I've had the usual side effects of insomnia and aches and pains, but have just been watching the calendar knowing that my 5 years will be coming up next year…

With spring here, some days feel a bit lighter, and some are really hard. There's the version of you that you share at the spring barbecue, the family dinner, the "how are you doing" in the parking lot. And then there's the real one. The side effects no one warned you about. The urgent bathroom runs that mean canceling…

So, I am newly diagnosed with IDC found with a lump by my collarbone. A real wakeup call. The last 3 weeks I have made drastic life changes, mostly diet. Gave up red meat, hubbies cooking (he always tries but sabotages, good cook and I was eating huge portions) and started eating small meals of good food, cut all bad carbs…

I have been on Verzenio and Letrozole since my Stage 4 diagnosis 14 months ago. My Mets are in my left lung pleural lining and a node in my right axillary. I found out this week that my most recent PET/CT scan showed mild progression so my oncologist wants to keep me on the Verzenio but change me from Letrozole…

Has anyone had an SGAP Flap done? I’m considering it and looking for any information I can get. I’m not a candidate for implants or DIEP flap. Had a DMX end of Sept with tissue expanders. Infection on the right side and had to remove that TE. I still have the TE on the left side and was just going to have them do an…

Retrospective study shows little difference in cardiac damage w left side rads with newer radiation techniques https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2847228

Hello all, I’m interested in hearing from others who’ve been on both Phesgo and H&P. Specifically, I’d like to know if you experienced more fatigue and worse side effects with Phesgo. I was dx’d in 2018 Stage IV de novo and did 6 rounds of Taxotere and H&P. I’ve been on maintenance treatment since then and have completed…

Hello everyone. It has been a while since I was on here. But I have questions and need your help and I know this entire community is amazing. I was here everyday during chemo and all my treatments. I had to have an implant removed last year due to infection. Fast forward to now and I had another tissue expander exchange on…

This is new for me. I can't sleep so I thought I would try to connect. I had a mamo, then a mamo with ultra sound, then a mamo with biopsy, and then an mri. I was supposed to schedule surgery but just found out I have to have a MRI with biopsy [my surgeon was sensitive enough to post it in my chart and schedule though we…

I will be 42 l have a routine exam schedule mid May. I had a biopsy and clip placed 2 years ago after my first exam showed a spot everything ended up being fine .these were the findings from that biopsy 2 years ago (benign adipose tissue and blood with focal fibrosis, columnar cell change, and apocrine metaplasia.) I have…

It all started back in December 2025 with a routine mammogram. Then a diagnostic ultra sound and mammogram of the right breast, next a biopsy . It has been an emotional roller coaster since I was diagnosed back in January 2026. It all happened so fast. Diagnosed after a biopsy with invasive ductal carcinoma stage 1.…

Diagnosed Feb 2026. IDC, Grade 1, HR+, HER 2 negative, Ki67 22percent I think I am still in disbelief. No family history. Also did genetic testing, BRCA testing shows no mutations at all. In addition, in 2019, was diagnosed with low grade, non muscle invasive bladder cancer. I get monitored every 3 months for that, it has…

hi all, I know that this is a silly question, but I still have to ask. Do mammograms, especially mammograms that use tomosynthesis (3D) look at the entire breast or one specific area? I had a questionable area, the radiographer place a marker on the top of it, and then took the images. I received a Birads 2 but it makes me…

Hello, Dx'd with TN cancer 10/27/2015, and then with uterine cancer in 2020. This week, I was taking a shower and felt a lump in my right breast. It is painful to the touch, and it is as though the tissue around the marble-sized lump has disappeared. I know I don't know for sure, but I know —I am sure you all know what I…

Just an idea came across my mind. Can we share stories and examples of long term triple negative survivors. They dont participate in such forums. So its only by word of mouth that we get to hear about them. But I also see few of them in this website, who themselves are long term survivors. I feel so happy to see how they…

If surgery is on your calendar this March—lumpectomy or mastectomy—this is your place. 💗 Consider this your official roll call. Whether you’re calm, overwhelmed, full of questions, or riding every emotion at once, we want you here. Post. Introduce yourself. Let us know you’re counting down the days. This thread is more…

I am 43 on Tchp. I just did 5 treatments of my 6 yesterday. Plan is to do a bilateral mastectomy next with expanders first because I will need radiation. According to my plastic surgeon, it is not recommended to radiate the fresh tissue with radiation. So after my radiation and put on my drugs depending on my pathology…

I experienced hives on 14th day of 3rd TC cycle. Doctor thinks cause is due to food or skin product. I just want to know if anyone has got similar rash during chemo. Also , is stammering or stuttering a chemo or anxiety side effect.

Exciting news to share! The STILL Anthology has dropped. It's a fashion photography project created by the incredible Lisa Taft Sylvester to help raise awareness of and to normalize aesthetic flat closure. I was invited to take part in the second volume that has just been published. It's a beautiful volume, and the stories…

Diagnostic mammogram and ultrasound today. The radiologist said it was for sure cancer. Large 3-5cm mass in breast with 1 enlarged lymph node. Both bi-rad5 for malignancy. I’m scared to death. Biopsy scheduled for tomorrow. I’m only 39. I have 4 young children. I just finished breastfeeding. I have no idea how I missed…

I’m 95% sure I’m going to go double mastectomy with reconstructive surgery using my more than ample abdominal fat. Looks like it’s very localized dcis and small. Lymph nodes look fine. Other side is fine but why fafo? I’ve had surgeries before for different things and think this will make my lifetime total 12. Couple weeks…

ER 3+/PR 1+/HER 3 +! Still trying to get over the shock! Met with the Nurse Navigator today and got the results.. Am scheduled with the surgeon for April 20 and the nurse is trying to schedule an MRI for next week and see about moving the surgical appointment up. Sounds like Chemo before surgery (the tumor is sitting on…

Hi I was diagnosed with ADH 13 years ago when I was in my 30's. Had a few biopsies since then but everything came back normal. I went recently for my mammogram/ultrasound and was called back for a diagnostic ultrasound. The impression states: Left breast mass at 11:00 1 cm from the nipple which demonstrates interval…

I am diagnosed with invasive lobular cancer with -/-/+ (her2 strong positive). It has invaded many lymph node, including my left collar bone nodes (supraclavicular nodes). I am stage 3c. I am in the middle of chemo targeted therapy(TCHP) cycles. I was told that at the end of TCHP, if there is still high SUV value for that…

I am looking for advice about getting through TSA screening without extra embarrassment. I had a bilateral mastectomy, no reconstruction, all healed now. I am comfortable with this new body in everyday situations and also at my community swimming pool where I work out without prostheses. But I am terrified of TSA. During…

Every time I take a drink of ice cold water (or anything ice cold), it feels as though someone is pouring ice cold water down my chest on the outside! It takes my breath away! Is this normal? 

Hi diagnosed last year with a primary breast cancer aggressive Grade 3 in two nodes. I wondered if anyone had long-term survivor stories. I'm terrified of secondary and have read lots of posts of survival but they tend to be stage 3 but grade 1 or maybe 2. Is there anyone with a Grade 3 in nodes with a positive story.…