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Birads 5- my mom
I joined here several years ago after I had multiple lumps which ultimately revealed adh. I appreciated the level headed support I received while awaiting results during the height of covid chaos. I never dreamt I'd be back looking for support, this time for my dear mom. She went in on Friday for a mammo and us after…
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Anyone have a Recurrence in Mastectomy breast?
Has anyone had a recurrence of breast cancer after a mastectomy? Many of us are finding areas of concern, in the form of a lump, after having a mastectomy. I had two lumps in my left mastectomy breast with DIEP reconstruction, but after being tested twice with US, at 6 month interval, they were diagnosed as fat necrosis.…
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Invasive ductal carcinoma AND Brca-2 gene mutation
I was scheduled for a lumpectomy next Friday for my ER/PR + and HR- breast cancer but today the genetic counselor called me with some devastating news and that is I have the BRCA-2 gene mutation. I haven’t spoken to the surgeon yet but I’m assuming I will have to have a double mastectomy and I have been crying we unite a…
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After stopping tamoxifen, how long before night sweats stop?
My last dose of tamoxifen 5 mg was May 26, 2023. I am getting better sleep most nights, but still waking up with night sweats several times each night. How long does it take before it’s finally out of your system?
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Please don’t call me “Sir”
I chose to go flat and had zero push back from my surgeon. Mine choices were limited – either a single or a double mastectomy. I am two years out, super healthy – best decision ever! I have always been tall and thin. I am 6'-0" and around the 160 lb mark. I was raised by a mother that didn't wear makeup – so it was never a…
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Pain almost a year after lymph node removal
I had a lumpectomy and three lymph nodes removed last August. I went to PT off and on for a seroma, cording and the onset of lymphedema. The cording is a lot better than it was. But I’m having more pain/tenderness in the back of my arm and underarm again. I stretch every day and try to drink a lot of water. Just wondering…
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Pregnant and scared of IBC
A week ago, I noticed an area of redness on my left breast. I've always been really scared of inflammatory breast cancer so I'm hyper aware of breast changes. I'm 18 weeks pregnant so I called my OB to get an appointment to have them look at my breast. They didn't have any openings so they just sent me for an ultrasound.…
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Mets to Liver
I have recently been diagnosed to mets to my liver. I am scared and have problems eating
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Unilateral vs Bilateral Mastectomy and Recovery
Hi, I was diagnosed in June of 2017 at age 42 with DCIS in my right breast. It was high grade and estrogen and progesterone negative. I do not have a history of breast cancer in my family or the BRCA genes. I had a lumpectomy and 7 weeks of radiation. I was just diagnosed last month with a local recurrence. I’ve met with…
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Tamoxifen and bleeding
I am 44 years old and premenopausal. I have been taking Tamoxifen for 8 months. I stopped getting my period in December right after starting the Tamoxifen and have not had a period for 8 months, not even spotting. This week I was at work and started what I thought was my period but after a couple hours turned into…
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Things I never knew about breast cancer
Hi everyone, In these days of substantial 'AWARENESS' of breast cancer I am now very aware of my lack of knowledge until I got BC myself. So I thought I'd start a list, please add anymore things you can think of. 1. mammograms do not pick up every cancer. 2. Ultra sounds don't either. 3. Breast cancer is not one single…
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Radiation--Reduce Effects with Mepitel Film
Hello: I am Invasive Lobular Carcinoma, IIIC, triple negative. I am finishing radiation, 6.5 weeks with 5 boosts with bolus. I have used Mepitel Film, a wound dressing made of non-stick silicone. It helps greatly reduce the effects of radiation burns, i.e. dermatitis and moist desquamation (skin that weeps and bleeds from…
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Please give me any advice - Paying for Lupron no insurance
Hello. I am writing this from abroad. I am 44 and stage 1 Luminal B (HER2-negative) breast cancer and was diagnosed so 2 years ago. I went through a surgery, chemo for 12 weeks, and radiation therapy for 30 times. Now I am undergoing treatment with Lupron depot - 3 month 11.25mg) and Tamoxifen (10mg). I am an American but…
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Breast cancer and prayer
I don't know what to say…I feel spiritually that my emotional and spiritual life are related to breast cancer. There are emotional things that I think may have effected my hormone levels. I also feel that I have been struggling with things spiritually and my God is saying something…part of the "bad" was caused by a…
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pain after port placement
Im starting chemo next week, and last wednesday "the port" was placed on the left side of my chest. Since it was placed, Ive been having some fairly bothersome left shoulder and neck pain (almost all the way from the port thru my upper back, and from the neck to the shuolder.) The placement site also hurts, mostly when I…
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recurrences
Has anybody with 1 positive lymph node for micrometatasis had a recurrence? With or without chemo? I am trying to decide whether chemo is worth it for me. My oncotype is 26
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Any one Triple Positive 10+ year out?
Any one Triple Positive 10+ year out?
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nipple sparing mastectomy
Hi I had a skin and nipple saving mastectomy 10 days ago. My surgeon placed an implant behind the muscle of the breast that had cancer and lifted the breast without cancer to match. I have incisions around the entire areola of each breast. While I was in the hospital, the nurses were concerned about the areola of the…
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More Than 8 Weeks Between Diagnosis & Surgery Affects Survival
More Than Eight Weeks Between Breast Cancer Diagnosis and Surgery Affects Survival Mar 2, 2023 If more than eight weeks passes between early-stage breast cancer diagnosis and surgery, survival is worse. Read more...
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Ear pressure on TCHP
Hi everyone! I’m a lurker on this group and am so thankful for all of the help I’ve gotten as I go through treatment. Did anyone have ear pressure issues on chemo? I’ve had what feels like clogged ears for the past month nonstop and it’s driving me nuts. 🤣😩 I can still hear fine, nothing sounds muffled, it’s just pressure…
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Concerned about Mets...
I have had breast cancer 2 times. First-time stage 2 (left) with lumpectomy/chemo/radiation. IDC. In 2011. Second-time stage 1 (right) IDC and lobular in situ. Lumpectomy/radiation. In 2019. I am concerned now about bone or liver mets. My labs are normal (CBC with Diff and Metabolic panel). I have pain in my left hip that…
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Is there anyone here on Margenza?
I have a friend who is about to start Margenza with the chemo Gemcitabine. She would like to know what she might expect with side effects and how this has worked for you. This is for mets to the liver. Thanks
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I'm terrified
My cancer started as small, Grade 1, HR+, HER-. Following surgery it went to - very large, invading muscle layer, so not totally resectable, high Ki67 and a positive lymph node. Now I have noticed night sweats and this morning I feel nauseous. Oncologist apt is not til next Monday. I'm not telling my husband about the…
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Podcast: Exercise As Breast Cancer Medicine
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Podcast: How Spirituality Can Help People With Breast Cancer
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Morphine, Bone Pain, and Bone Loss in Metastatic Breast Cancer
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CHEK2 Mutations Linked to Hormone Receptor-Positive Cancer Treatment Resistance in Younger Women
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Breast Ultrasound Screening Advice Missing Many Women Who Would Benefit
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NAMS Releases Statement on Non-Hormone Therapy for Hot Flashes, Night Sweats
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Peripheral Neuropathy More Severe With Taxol Versus Taxotere