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Bone strengthening meds
what is the protocol on prescribing bone strengthening meds for women on aromatase inhibitors to prevent recurrence?
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Life After Treatment: Hair?
Hey all, First I am extremely grateful to be alive. Given the choice to go through chemo and preventative hysterectomy, I would happily do it again without any questions asked about my hair. But at the same time I thought to ask the question, and maybe some of you might have some resources for me that are safe and not…
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Pros/cons to continuing reconstruction surgery
Good day to all my fellow Warriors! I’m a 65 year old woman who had a bilateral mastectomy with breast tissue expanders for future reconstruction surgery, on 3 26/24. The JP drains were removed on 4/4/24 and my first saline injections to the expanders, was doe on 4/11/24. On 4/12/24, I developed a low grade fever and their…
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Starting Chemo July 2019
I think it’s time to start a July Chemo thread.. who’s on board? I having my port put in on July 23rd and chemo on July 24th. I will be having Taxotere, carboplatin AUC 6, Herceptin and Perjeta for 9 treatments every 3 weeks before surgery. Good luck to all
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Numb toes
I'm starting a new thread because I don't see anything recent in the discussions. I've been having a weird feeling in the bottom of my feet. I don't even know how to describe it. Now, I'm noticing numbness in the toes in my right foot—mostly the little toe. It doesn't hurt, and I don't think it's neuropathy like I had when…
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Question
I am thinking of stopping chemo. I’ve got through 3 cycles of TC but have had a shocker of a side effects ride. This chemo was oncotype score 41 driven as catching any left or mop up. my grade tumour was 3 but node negative. I’ve had two surgeries and will have radiotherapy next. Anyone else got to 3 of 4 chemo and…
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Discordant benign - excisional biopsy follow up
I had an MRI guided core needle biopsy and the results came back as discordant benign. The doctors recommended I follow up with a breast surgeon for an excisional biopsy which I have scheduled for next week. Has anyone been in this situation and if so what was the outcome? I have mixed emotions that it's benign but it…
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Wellbutrin and anastrozole
My MO prescribed Lexapro because he knows more about it, he said. I asked to try Wellbutrin instead because of the depression and fatigue I am feeling from the AI. I have been on ADs in the past, including Wellbutrin, and know it’s a commitment if you want to benefit from them. I started Lexapro but quit after a few days.…
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37 went for a Mamo,BiRad4 no subcategory non palpable nodule found. waiting for biopsy. Confused
I am 37 4 years ago I started getting very painful swollen cysts in my breasts. I had a Mamo and US done in 2020 no findings. Had my yearly with my GYN and he sent me to a surgeon to see about draining the cysts. The surgeon ordered another Mamo and US and the findings are as follows :Result: 4D 4 - DENSE Suspicious…
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When to stop anastrozole
I'm coming up on 5 years of anastrozole... After lumpectomy and radiation for stage 1 grade 1 idc. My oncologist knows Im always anxious, but he isn't really definitive on whether or not I should stop the AI. He said I should probably stop it but knowing how anxious I am maybe stay on it for another year or so... I'm a…
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Her2 recurrence treatments
hello everyone What kind of Chemotherapy regimens are you getting for a Her2 recurrence after treatment with TCHP first time around? Drugs, cycle and duration? For your recurrence, what was your time to recurrence?
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Gift ideas anyone? 5- year anniversary coming up
Hello everyone. This June 3 will mark 5 years since my wife was diagnosed with Stage 2A breast cancer (invasive ductal carcinoma, ER/PR positive Her 2 negative) and papillary thyroid cancer. I won't soon forget the terror we felt in early June 2019, what with test results pending and not knowing where it was all going. It…
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Options for reconstruction when you've had radiation previously
I have breast cancer for the third time but had lumpectomy and radiation with prior breast cancer. I am having consults with plastic surgeons for DIEP surgery. For the second time this week, my husband has asked me if there are any other options (don't think he realized how large a surgery this is). I previously told him…
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Weight loss question
Hi All I’ve been a member here for 20 years and 2 years ago I had my 4th BC DX. My recurrences have all been locally advanced, the latest grade 2, initially inoperative, though eventually after shrinking with Palbocyclib it was removed lat September, but path showed perineural invasion and prob lymphovascular invasion. (Nb…
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opinions needed
So I'm highly hormone positive, but failed ibrance after 5 years. Got a new triple negative. Did carbo/taxol. Mastectomy, then new hormone positive mets after 8 months of xeloda. Doctor wants to do enhertu because she is worried about hormone treatment resistance and possible triple negative cells still floating around.…
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BIA-ALCL Symptoms ??
Yes, I am aware BIA-ALCL is not breast cancer. I’m having some vague symptoms and what to assuage my fears. Prophylactic mastectomies in 2012 for BRCA-1 mutation. Sientra high profile textured implants below the muscle in 2013. For the past few weeks I am exhausted all the time. Not “I worked or exercised” hard tired. It’s…
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Drinking cold things feels weird after mastectomy
Every time I take a drink of ice cold water (or anything ice cold), it feels as though someone is pouring ice cold water down my chest on the outside! It takes my breath away! Is this normal?
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New Implants - Not Satisfied
Hi. I had my exchange from expanders to implants 1 week ago. I can honestly say that I was happier with the look of my expanders. There is little to no projection with my implants and I have my post-op appointment tomorrow. I've done what research I know to do, but is anyone else in the same boat? I know there was a huge…
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5 year survivors, post your screen name here!
Seeing this will inspire our newbies!
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Reconstruction ‘PLANE CHANGE’ from under muscle to over muscle
In 2015 I was diagnosed and had double mastectomy with reconstruction. At that time they recommended subpectoral (under muscle) implants as. Over the years the animation deformity when I flex has been annoying and uncomfortable. I am an active person a feel it every day. One side has started to droop noticeably and I am…
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Sharing towels with others, including a young kid, after more than a year of radiation therapy
Hello Everyone, I was just wondering if anyone shared towels with your husband and young children after more than a year of radiation therapy treatment. I did share with my kid sometimes, especially things like going to the beach or pools or accidentally using mine when he finished showering. So, is that fine? Thank You!
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Surgery for newly diagnosed stage 4 MBC?
Hey there. Newly diagnosed with stage 4 MBC ER+PR+HER-, multiple spots in lungs. When the lump was first discovered the expectation was that it was curable as there was no spread and the lymph nodes looked clean - that all changed with the PET scan. So…question: The only option offered now is hormone treatment, but the…
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Flap Reconstruction - Decisions
Hello all! I was diagnosed in 2012 and had a mastectomy with TE/implant reconstruction. In November, I had a biopsy (benign 🙏) on three tiny bumps on the reconstucted breast. Unforntunately, the wound became infected and the wouldn't heal so they removed the implant (which they then found was ruptured) and replaced it with…
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Focal Asymmetry?
I’m turning 60 this month and had my yearly mammogram this morning. It said “possible focal asymmetry” 8cm from left nipple upper quadrant. No other suspicious findings. No idea what this is. I don’t feel a lump. So I go for another mammogram on Thursday and US if needed. Obviously a little worried.
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Little rise in tumor markers, terrified
Hi everybody, I know markers for somebody work, for somebody not...i'm talking about CA 15.3 Mine were high before the cure, and low when cancer was stable (i started Capecitabine September '23). they were always about 20/23. Now they went up to 31.7 Normality is up to 31, but the 35% increase really scared me. I have a…
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Aromatase Hormone inhibitor “5 year pill” side effects?
Has anyone used these? what were your experiences as far as side effects? cardio-muscular-bone damage?
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Bone Scan and CT scan- Worried
hi! I’m not diagnosed with Stage 4, but will be having surgery Monday and treatment to follow. But recently I’ve had this upper back dull and deep pain. Went to chiropractor. Didn’t help. Now I’m worried. I’m having a bone scan and CT scan tomorrow. I hope it’s nothing. 😫 how did your spinal bone met feel? Or any…
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Are CT scans safe?
Hi, I have the BRCA2 mutation and will need a CT scan of both knees to have Bilateral Knee Replacements. . I am 69 and have not yet been diagnosed with Cancer . Is it safe to have the CT scan of each knee? The MAKO robotic surgery requires a CT scan preop. Otherwise , I could go somewhere else and undergo the ROSA robotic…
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cold caps from penguin
I have stage 2 invasive ductal carcinoma and will receive chemotherapy (taxotere and cyclophosphamide) starting on the 16th of April. I would like to use cold caps and was wondering what your experience is with the penguin ones. Is it tolerable? How difficult is it to put on and take off? How often do you change the pack?…
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Tamoxifen dosages - anyone with IDC do 5mg?
I recently got a hold of my doctor's notes for each follow-up I had with him since 2019. I reviewed everything, and saw how my dosing of Tamoxifen was all over the place. For intervals of a year or several months, I was taking 20 mg, 10 mg, or 10 mg every other day (effectively 5 mg). I did have some endometrial thickening…