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Anyone need a touch up after tattoo?
Hi there! After 6 years, I FINALLY got myself all the way down to Maryland from Massachusetts to see Vinnie Myers and complete my reconstruction. I was extremely happy with the results but he warned me that since I have some areola tissue, the ink might not take as well on that part, and sure I've seen some fading. It…
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Not diagnosed with progression but worried for my Sister
Hi everyone-Some of you may know me and remember that my younger sister also has breast cancer. Diagnosed at age 50 (age 60 now) w/ILC stage 3B, and once to MO she ordered a bone scan which led to a biopsy and was then diagnosed with bone mets. AIs worked well, Xgeva, and after a couple of progressions she has been on and…
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Waiting for MRI results
on Friday I had an MRI due to some ongoing armpit pain and swelling as well as breast pain. I was told 2-3 days for results. I was doing well on Friday, not as well yesterday, and now today I can barely keep it together. I’m petrified of what the test could show. On one hand I just want to know what’s going on, and the n…
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Anastrozole and Zometa
my onc wants me to do radiation plus Anastrozole and Zometa infusions every 6 months for 5 years. I am stage1A, no spread, no lymph nodes involved and my oNCO score was a 1. I have poor dental health and have to get clearance from dentist before I can start Zometa. I’m scared to death of the possibility of jaw issues due…
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Tamoxifen and long term joint pain
Hello BC Sister's, I am 5 years bc cancer free. I was stage 2 w/ no node involvement had bi-mastectomies w/ reconstruction. No chemo, but I took Tamoxifen for 3 years. I have been off Tamoxifen for 2 years, and had my ovaries removed as I was premenopausal. I was 32 when I was dx. That little ugly pill has ruined my life.…
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Icing Gear - Taxol treatment
I have a question - should we wear the ice booties and ice gloves for the entire infusion time (for one hour)? After 15 minutes, my ice gloves is no longer cold. Should I get two pair of ice gloves to keep my hand cold?
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Icing Gear - Tampa/St Pete - To ice during Taxol
Anyone starting Taxol and want to ice your hands and feet? PM me! I’ve got ice booties, ice gloves, and inserts to change out during infusions. This gear worked for me and I have no neuropathy in my hands and feet. Kept my nail beds from falling off as well;just had some minor discoloration. Located in the Tampa/St Pete…
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Ignore this, how do I delete
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MRI Anxiety
Not sure if I'm posting to the right place. I'm scheduled for an MRI on Monday and I'm concerned they will find additional things which may or may not be important. I have an appointment with a breast surgeon on Wed, so doubt the results will be ready by then. Also wondering if I will be able to work that day after or ride…
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Advice on Funding for Lupron
New girl here. Just got the bill for my first Lupron shot. Was shocked that I was a whopping $1200 after insurance. My mastectomy was $1100! Any advice on any programs that can assist with this? A one time 1k bill is one thing but to rack that up every month is not feasible. My husband said we will figure it out but I…
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Off on a road trip with altitude
Hi friends. I have mildish most of my body lymphedema with a little swelling but not too much. I'm leaving on a road trip and DH is very concerned (more than me) about high altitudes for short periods of time. We plan on Wyoming, Colorado, Utah etc etc, all places we've been before with our little travel trailer. A couple…
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Experience with choosing lumpectomy or mastectomy
I am scheduled for a lumpectomy with reduction/lift in a short two weeks, and I feel like l am losing my mind worrying that I've made the wrong decision. When I was first diagnosed in June, I was totally ready to have a bilateral mastectomy and just get it over with. But, I was prescribed neoadjuvant chemotherapy, and -…
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Vaginal pain/letrozole/ can I use estrogen cream?
I've been on letrozole for 2.5 years out of the 5 that I am supposed to do. I have been going along pretty ok until the past year. I have had 3 UTI's, and the lack of estrogen has made my vaginal area very sore. It hurts to walk or bend over. I have tried at least 5 different OTC creams/suppositories, coconut oil every…
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Biopsy tomorrow
this is my first post here. Feeling completely overwhelmed. I had a mammo and u/s in January. A cyst and hypoechoic mass was seen. Went back for follow up u/s in July. Everything was stable. Advised to come back in 6 months. Birads 3. A nurse called that day and said my lifetime risk is a 28% and a second opinion is an…
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Breast cell line
Hi, I keep reading studies online that refere to "brest cell lines", for example: MDA-MB-231, MDA-MB-468, MCF-7, and T-47D I can't understand what that really mean...if they actually matter, how do i know what cell line i have, if it is even important to know for the therapy choice. Do anybody know what I'm talking about…
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Resources for Donating your Bras and Prostheses
Dear Members, A number of you have asked for information about organizations to donate old bras and breast prostheses. We have created a list of some viable agencies that accept such donations. Please feel free to offer additional resources as you discover them and we will add them. Organizations that accept donated bras…
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Propoli for mouth sores
I just wanted to say here I'm doing propolis mouth rinse for moth sores. I recently read they were good for chemo induced mouth sores, so I tryed it out. It seem to actually work. I diluted in some water the propolis extract and rinse 2 time daily. Before having any new supplements I always read if they don't promote…
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Mammogram if metastatic
Do you gals with metastatic disease still have annual mammograms? I can't understand why they would be necessary with ct scans every 3 to 6 months. Is the Dr just drumming up business for the hospital? What does your MO say? I haven't had one since 2017 when I thought I was all clear and 2 months later found cancer in my…
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Osteoporosis
This is my first post here. I was diagnosed on 7/22 with left side IDC, E+P-HER2- and I'm having a lumpectomy next Wednesday 8/28. No genetic markers for cancer. I've had an MRI, the Savi Scout placed yesterday, the sentinel node injection next Tuesday. This morning I had a Dexascan and my surgeon called this afternoon and…
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Recurrence with Grade 1
Wondering if anyone has had a recurrence with early stage grade 1 cancer? I usually see folks on here with recurrence after being diagnosed with grade 2 or 3. Just curious because I don't see it much in the literature for grade 1
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Young with MBC
This is a thread for those 45 and under who have been diagnosed with metastatic breast cancer, and facing the unique challenges associated with receiving this diagnosis at a young age. Please feel free to discuss here, share your story, and support each other! --Your Mods
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deleted
Resolved and no longer an issue :)
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Double Mastectomy 10 Years Later
Hello Ladies! When I was diagnosed in 2014, my son was a toddler and I could not afford the recovery time. I so wanted to get both breast done. I actually wanted to go smaller. I have always had big dense breasts. Now I've put on a ton of weight from menopause and my breast are out of control as well as each shaped…
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Discordant finding - sent to tumor board
So frustrated and stuck in limbo. Just turned 41 and long story short, I’ve been having a rollercoaster of mammos, dx mammos, US, biopsies, MRI, and more biopsies since April. Side note: also found out then that I’m highly allergic to MRI contrast. Last pre-biopsy meeting, I find out that one area of architectural…
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What brings you joy in your summer? Weigh in and share your experiences in the topic below.
Going through treatment can make you feel like cancer is crowding out the joys you once enjoyed. It’s hard to motivate yourself to do much more when treatment takes over your life, but staying connected with people and keeping up some level of activity can offer calm and mental balance. Sometimes, finding a beautiful spot…
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ARV-471?
I have been suggested for a clinical trial using ARV-471 to treat early stage HR+, Her2- breast cancer. I was wondering if anyone has any experience with this drug. It's typically used for metastasis but I want to respect their boards and not post there. Thanks to anytime who has any feedback!
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Late developed change
Hi there, I had a double mastecomy & diepflap reconstruction in April 2021. I didn't have clean margins in my right breast. I did however have chemo and radiation afterwards. I had IDC stage 3 in both breasts, left side 6/13 and right side 5/11 positive lymphnodes at the age of 38. I have this roundish slightly darker than…
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Post Lumpectomy Pain
Hi, Please be gentle 😉this is my first post. I had a lumpectomy on 7/31/2024 (almost three weeks ago). I didn't have much pain immediately after the surgery, but I have gotten what I've been told is nerve-ending pain. I've been to the surgeon and I get it; it's gonna take time for the nerves to heal. I take gabapentin for…
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Stage III and Verzenio
I may need to venture into the mets forum for SE coping strategies, but I’m wondering if there’s anyone else who’s been put on Verzenio (vs Ibrance or Kisquali) to prevent recurrence? My MSK oncs and Yale onc (I switched to Yale this past summer) all agreed that I should be put on a CDK 4/6 inhibitor. We waited until this…
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Concerns about microcalcification cluster ignored by doctors for over a year
Hi there, I'm roughly 18 months out from my original diagnosis of IDC Grade 1, Stage (Onco 9) and have some concerns. My initial biopsy was for a group of microcalcifications (turned out benign) and architechtural distortion (maligant). However, during this initial the biopsy, the radiologist found a second set of…