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Resources for Caregivers
We hope you find the following links helpful! Learn: Caring for Someone With Breast Cancer Podcast: Support Services for Caregivers Podcast: Caring for Men Who Are Cancer Caregivers Podcast: Supporting a Partner With Breast Cancer Podcast: How Therapy Can Help People Affected By Breast Cancer Personal Stories: Caregivers…
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Newly Diagnosed liver/bones LOOKING FOR LONG TERM SURVIVORS/HOPE!
Hello there, After 10 years of stage 2 breast cancer, 3 months ago I discovered it has returned stage4 to my bones/liver. I thought it was all behind me… I am finding it so hard to cope & terrified of my future, especially being a mother of a young child. I am hormone positive, Her2- I would love to hear from others with…
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…7 Years later
question: it’s been seven years since my mastectomy; is it normal, to have feelings of “aching” or soreness on the cancer side every now & then? It’s not a debilitating feeling but, just uncomfortable and, if I may, kind of “scary…”
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Need help in making decision on starting AI and ovarian suppression vs Tamoxifen alone
Im ER+, PR+, HER-, Stage 1 ,grade 2, 1 lymph node, post double mastectomy with oncotype of 12. The oncologist said my risk of recurrence is 13% and will go down by 2.3% if I do Chemo or take Anastrazole with ovarian suppression. As an alternative I can take Tamoxifen. I declined Chemo as 2.3% seems not significant to go…
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Seeking input-pathologist sent sample out for second opinion
New to this. I‘ve conditioned myself to be ready for a dx at some point in my life due to family history, but hoping it’s not this year. Any input appreciated… I have extremely dense breasts and previous biopsies dx’d as fibroadenomas and benign cysts. Last biopsy was a radial scar that they did a lumpectomy for last week…
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HER2 negative but actually a low positive and neratinib
I'm making a list of questions for my oncologist appointment coming up and in looking at posts relative to metformin I came across neratinib. I realize the metformin trial ended up demonstrating that it was not beneficial in lessening recurrence rates. But apparently neratinib trials were because it was approved by the FDA…
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Any one triple neg with weakly positive HER2 (FISH)
Hi, I have very weakly positive HER2, so MO says I have both triple neg and HER2 positive ( weak)clones. I’m finishing neoadjuvent with TC and Herceptin tomorrow. Any one has similar path report and like to know how you are treated. Thanks
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Creepy feelings on my numb chest
It's time for my 6th month check up, again. It's been 3 yrs since my BMX. The chest wall used to be very numb. Didn't feel much when touched. 3 yrs past, and some sensory is coming back. I have some feelings now, creepy feelings when touched by someone else. My last check up in January was traumatizing. I left my check up…
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Tyrer--Cuzick Risk calculator
Hello - on the Tyrer-cuzick risk calculator, does a 10 year risk of 7.3% for breast cancer. And a lifetime risk of 11.2% mean a high risk? Thank you
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Really Scared--Bilateral Pleural Effusions
I am coming on year 3 since my diagnosis, and I have been feeling pressure and discomfort (primarily at night) on the ribs under my breast--yes, cancer side. It has been a few weeks. I had an X-Ray done and it showed bilateral pleural effusions. Of course, I googled it and now I am freaked out. Is this a clear sign that…
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Emotionally and mentally accepting mastectomy
Hi. Looking for some support and suggestions on accepting getting a mastectomy. I was recently diagnosed with DCIS after a biopsy. The plan at that point was lumpectomy and radiation. I had an MRI and received the results today. The MRI indicated a much larger area of DCIS (mammogram indicated 5cm; MRI indicated 14.5 x 4.1…
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Arimidex and permanent damage
HI, all. Looking for some guidance as I am struggling with the decision to take it or not. I am 58 post-menopausal I do not have the BRCA gene mutations. My risk of recurrence with AI is 4% and 8% without. All in all, I've got it pretty good. My lumpectomy was easy. Radiation not too bad. I don't have to do chemo. I feel…
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Surgery after “horse is out of the barn
This may be addressed somewhere else but I can't find it. Original bc 2013 with lumpectomy in left followed by 30 radiation. 8 years later shocked to learn MBC in liver. Been treated 19 months and lesions have shrunk and now CT shows some increased activity in that breast and I have been referred now to a breast surgeon…
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Neoadjuvant vs adjuvant treatment for local recurrence triple positive
Hi, everyone — I've just been diagnosed with a local recurrence of my original breast cancer — in 3 axillary lymph nodes. Petscan indicates no other cancer. ER+ PR+ HER2+ My original breast cancer was diagnosed in November of 2014. I am the kind of person who wants it out now and that's what I did originally - with…
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Paget's Disease and Punch/Wedge Biopsy
As attempting to do some research online, there are not too many resources that discuss paget's. Thus, if anyone is willing to share, I was wondering about experiences regarding it, and particularly how the punch/wedge biopsy is. I am kind of scared of doing the biopsy and I was just wondering how it works, since I…
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Cognition issues
Hello First post, from UK. Stage IV with bone mets, diagnosed 2022, after first multifocal diagnosis in 2018, mastectomy and DIEP. Stable so far with abemaciclib, denosumab and letrozole. Just started on Serena6 trial. I've been so impressed by the ballsiness of this forum and the amount of knowledge and critical thinking.…
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Time From TE Surgery to First Fill?
I had my TE's placed again on Tuesday, 7/18. I go back on 7/25 for a post-op and the plastic surgeon mentioned wanting to start filling that day, so only one week post surgery. He was unable to add any saline when he implanted the TE's as this is the second time we've attempted reconstruction. My question is, does this…
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Ohio
anyone on here from NE Ohio. I would love to find a live support group tho I do appreciate the zoom groups.
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Need help finding compression bra/no reconstruction
Hi, My mother (83 yrs old) just recently had her second breast removed and I would like some recommendations for compression bras used just after surgery. She is not planning reconstruction nor does she want to use prostheses, so I have been trying to find a simple, soft, light compression "bra" that is flat (no cup size),…
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Stage changed to stage 2 A
Now after meeting with radiation oncology (they couldn't do anything but talk to me due to I still need to meet with Hematology oncology and discuss chemotherapy options first) I was reading over my notes from the doctor and noticed that my stage is now Stage 2a, grade 2 ER & PR positive, HER2 negative, oncotype 23. Not…
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Just diagnosed, 45 years old, had lumpectomy Stage 1b grade 2 oncotype score of 23
I received my results from my lumpectomy and received the score of 23. The surgeon is talking chemotherapy. I haven't met with radiation oncology or hematology oncology yet have those appointments coming up. I am just wondering is there any one out there who has the same score and what they had to go through?
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12 years new recurrence/ILC
I was diagnosed and treated for ILC Stage 2b 12 years ago. Had BMX and took Tamox and AI for about 6 years. I was told 1-2% chance of recurrence in chest wall, etc. Low and behold, a lump under my arm on original BC side. Biopsy confirmed not a lymph node but ILC tumor. Surgeon planning to remove tumor and potentially do…
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Lymphangitic Carcinomatosis - Can anyone relate?
I was just diagnosed on Friday (7/7/23) with suspected lymphangitic spread (lymphangitic carcinomatosis?) to the lungs after being stable with bone only mets for 3.5 years. I'm a little devastated after meeting with my MO. I'm just wondering if there is anyone else out there living with this? At this point I have more…
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Need some comforting...
Hi all, I've been experiencing a slow but steady increase in Staging since April 19. Started out as small, easily treated etc., but since then tests, surgery, waiting and more tests, each coming back with worse and worse news (many of you are probably familiar with this story). Tomorrow is the end of the road and I go for…
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Age and DCIS Studies
Why do the DCIS monitoring vs. treatment studies all have an age cut off of 40 or 45 to qualify?
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Lump in mastectomy scar
Hi! I had a lumpectomy, at the age of 40, for Lcis in the right breast in 2017. In the same year, I had a bilateral mastectomy with reconstruction because I could not control my anxiety. In 2019, I did lipofilling, after which oily cysts formed in both breasts. Few days ago I had an ultrasound scan because a lump appeared…
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Scientists make promising discovery in fight against breast cancer
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Round 2
Going tomorrow July 17 for the 2nd of 4 rounds of TC. Hoping for better results than the first. Had horrible mouth sores and burns throughout my mouth. Will be lowering the dosage and adding Neulasta. Had to shave my head and that was more painful mentally than anything so far. I feel like a big neon sign over me saying I…
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Biopsy showed PASH
Hi Ladies, Had a core biopsy last week and my radiologist had called and said it was b9 and see you in 6 months. My GYN sent me a note and he full results and said there was a finding of PASH and I should follow up with a breast surgeon and possible excision. I've been reading like crazy since of course and will call…
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Older Woman HRT
I am looking to connect with similar patients. I was on HRT for 30 years. Oh God bless Estrogen. Stopped when diagnosed. I suffered, Three weeks radiation and on Tamoxifen for 2 months. Ive been miserable more and more depressed and sick feeling. just quit. I'll be searching this forum for older posts. One of my questions:…