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Stage III and Verzenio
I may need to venture into the mets forum for SE coping strategies, but I’m wondering if there’s anyone else who’s been put on Verzenio (vs Ibrance or Kisquali) to prevent recurrence? My MSK oncs and Yale onc (I switched to Yale this past summer) all agreed that I should be put on a CDK 4/6 inhibitor. We waited until this…
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Concerns about microcalcification cluster ignored by doctors for over a year
Hi there, I'm roughly 18 months out from my original diagnosis of IDC Grade 1, Stage (Onco 9) and have some concerns. My initial biopsy was for a group of microcalcifications (turned out benign) and architechtural distortion (maligant). However, during this initial the biopsy, the radiologist found a second set of…
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Need for an oncologist
I need advise and dont know where to go. I had DCIS Hormone Receptor Positive over 2 years ago, stage 0. After radiation, a little more than 2 years ago I started on the endocrine therapy, but not only can I not tolerate it but the three different medications "woke up" multiple muscular and nerve issues (spine and legs)…
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You know youre a cancer patient when....
OK ladies. I know this may go over like a lead balloon but I have a weird sense of humor. And in the spirit of Jeff Foxworthy and his redneck jokes I thought we might have enough material to do some cancer jokes. You know you are a cancer patient when ... You read a book and you laugh when the subject has been diagnosed…
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The 'Journey' has begun!!!! aka Chrissyb's USA Adventure!!!
As the title says, I'm on my way!!! I will use this thread to update all of the goings on over the next six weeks until I return home. I will be posting pics also from time to time so everyone can travel with me. First instalement tomorrow from London as my laptop battery is about to die.......I knew I'd forget…
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MSM (Methylsulfonylmethane) -Sulfur supplement
Is anyone else taking MSM? I started this week because I read that it can help with joint pain, inflammation, hair loss, nail damage and diverticulosis a new issue that has come up for me. I'm taking it in powder form, dissolved in a large glass of water. So far it is vile! I can taste it in my mouth all day. I'm just…
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Hot Flash Forum!
The Hot Flash Forum is for anyone suffering from the dreaded hot flash. BC.org has great info here on hot flashes, but I wanted to start a thread devoted exclusively to this icky, sticky SE of hormone treatment. Would love to hear how you deal with your hot flashes. Maybe between us we can alleviate some heat! My…
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Top 75 things you can do to TAKE CONTROL during your bc txt
So you have breast cancer? Sucks to be you (and me). Welcome to the club. I’m sure it is one you really didn’t want to join. Guess what? Me neither. Yet here we are discussing sentinel lymph nodes and nipple tattoos. One of the things I hate most about going through breast cancer is the complete lack of control. Research…
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Rectal issues
Well if you've opened this thread you either have them too, have nothing better to do, or maybe you're just curious. Amidst all the sadness on here lately and the sisters with serious issues i am hesitant to post this comparatively trivial complaint. But being as I am in bed on my iPad with a painful hemmoroid I have…
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TORADOL (ketorolac) linked to Recurrence Prevention
My mantra for medical and nursing information for decades has been " Just when you think you know something look again" I thought I was done searching for an answer yesterday on something else, then I listened, "You don't know enough, look again, you don't know enough look again". That pesky little irritating voice that…
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PORT PLACEMENT - Detailed description of process
Hi everyone I just got my port placed yesterday and I had such a hard time finding a detailed description of the procedure, so I thought I would share this for anyone who is apprehensive or likes to know exactly what they are going to do to you: 1. I arrived at the hospital and registered. I was then taken back to the…
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Tips, Tricks and How to get through this Chit!
After talking with several members and asking questions, someone mentioned that it would be nice to have a tips thread. So here it is. Here's a few basic things for you to consider and please add any tips that worked for you. As BC sisters, all the help we can give each other will make the trip a little easier. - Always…
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2D Mammogram 7mm spiculated mass
i am a 43yo and just had my second annual mammogram last week. Last one was normal. A few days ago my results came back and I have heterogeneously dense breasts and “a 7mm spiculated mass that’s is 4cm from nipple. Possible associated calcifications”. No BIRAD score….just said right breast needed further imaging. Of course…
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Radiation AFTER mastectomy & direct implant
Hi can I please ask if anyone had radiation after a mastectomy and immediate implant reconstruction? I was initially told (before surgery) due to how small the area of DCIS was that I would avoid radiation but the pathology report says otherwise. I feel sick with worry regarding the effect radiation will have on my gel…
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Ischmetic stroke
Hi, I am on Palbociclib 125mg and Exemestane since last 5 years. I have mets in the bones which are under control. I also have X-Geva once in three months and have monthly shots of goserilin. I recently had Ischmetic stroke. All the cardiac diagnosis like echo, Holter test was ok. Also brain and neck angiography is also…
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Pain in Armpit 9 years after Mastectomy
Hi All, I have an appointment with my oncologist on Friday. My armpit has been aching for a few weeks now. I actually had what I thought was an impinged shoulder back in June from swimming, so I thought the armpit pain was associated with that. Shoulder is better but armpit pain is not going away. Also, I had a rash next…
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Any young BC patients/survivors who haven't had kids?
I decided to have kids a bit later because of my career and education, and I got diagnosed with breast cancer right before I was ready to have kids. Now I'm 32, and it's getting difficult to find people like me. I'd love to connect with any young breast cancer patients who are single, in relationship or married without…
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Ladies in their 30s
Hi sisters, Just wanted to find out how many of us are in our 30s. Do you have husbands and families? I found that aspect particularly hard while I was doing my chemo- keeping up with the needs of everybody else while I was doing my treatments. Now I'm in the radiation portion and school will be starting in about 10…
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Anyone have nerve damage to leg during surgery? Turned out to be minor stroke
Hello all, I’m wondering if anyone has had similar issues following surgery Brief summary: July 2022: had a heart attack and stent placed. Began 1 year treatment with Plavix to prevent clotting of cardiac stent. September 2022: diagnosed with DCIS. Surgery delayed due to recent heart attack and Plavix. Began treatment with…
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Any insight?
hello! I am new here. A week or two ago I noticed a little bit of redness by my nipple and didn’t think much of it. Since then and over the past few weeks it has now just grown in size. There is a tiny tiny dot that I scratched that appears to maybe started this whole thing, not sure. Anyway- since I had my breast aug 6…
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Multiple Fibroadenomas and Axillary Cysts
My 24 year old daughter noticed a lump in her armpit last year and I dragged her to get an ultrasound, given my BC history. During the ultrasound, they discovered a mass in her left breast as well as the cyst and decided to do biopsies of both. The axillary mass came back as "undefined" with evidence of foamy macrophages…
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Sudden left side numbness, negative for stroke
hi friends. I’m a three year cancer survivor trying to navigate life after my cancer and the death of my sister from ovarian cancer. Long story short I was driving my kids when I experienced left lip numbness, left thumb numbness then my entire left leg went numb. Like pins and needles. And it felt swollen but wasn’t.…
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Biopsy
Hey guys. Currently scared to death, had triple negative breast cancer in 2007 been clear all these years. Went for my mammogram on Monday and they found a 7mm nodule as she called it , biopsy coming on Monday radiologist said she is sure it is cancer, oh and same breast as last time
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High levels of estrogen
hi - I just had my estrogen tested and it’s 78. I’m on zoladex femara and Verzenio, also haven’t had a period since chemo. The test says results could be affected by Verzenio. Anyone ever encountered this before? Distresses but haven’t spoken with the onc yet .,.
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Diep flap survelliance
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My mom just got diagnosed with liver and bone met
Hello, l am from India, and my mother has recently been diagnosed with liver and bone metastasis. My family is considering moving her to the United States for further treatment. Could anyone please provide recommendations for the best hospitals in the U.S. for such conditions? Additionally, I would appreciate any…
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Kisqali
Anyone taking Kisqali for Advanced Stage Metastatic Cancer. If so how how long did it take for you to know if it was working for you? I have Mets to my liver and spine, likely in lungs too. I just want to feel better.
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MRI w/o contrast
Hi I am wondering if anyone have had an MRI without contrast. Is that better than a 3d mammogram for dense breasts or an ultrasound? Just wondering as reading up on the contrast used for MRIs and getting nervous on using it as it saying that gadolinium can stay in your body for a LONG time and even staying in the brain.…
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Recent diagnosis
TNBC stage 4 Ductal metastatic 6.9 cm tumor in right armpit breast tissue, 3 cm on right breast, clavicle, possibly groin left side. Palliative taxol chemo & immunotherapy since the large one in my armpit is protruding out & would grow outside of my skin. 6 mo-1.5 yrs is what they gave me. Diagnosed 6/2024. Just finished…
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How often do you think about recurrence?
Hi all, I'm just wondering how much you think or don't think about recurrence. We are all different, and we have different chances of recurrence, but I wonder if you think about it. I was diagnosed in February. DMX in March, currently on Tamoxifen for five years. Taking a daily pill is a great way to think about the…