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Letrozole side effects (DRY EYE, Fatigue)
I had no side effects for the first 6 months on Letrozole. I have now been on it for 16 months and feel terrible. My first side effect was joint pain. That is now better that I am taking Glucosamine Chondroiton and omega 3 fish oil. I had some symptoms of dry eye disease previously and have been using over the counter eye…
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Red spot
Debated which forum to ask about this. About 2 1/2 weeks after my exchange surgery I noticed a small red mark on my breast (about 1 to 1.5 cm in diameter). It is not near nipple (I had nipple sparing) or incision (inframammary fold). About 3 o’clock position. Went from completely clear skin to noticing this mark. No other…
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Latissimus dorsi flap reconstruction after surgery
Has anyone out there had the latissimus dorsi flap breast reconstruction that can help me understand what and why I’m still going through pain and discomfort after 7 months since my surgery? I truly wish I had never chosen this type of breast reconstruction and need others to tell me their stories if they are experiencing…
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Masectomy with positive lymph nodes
I am 42 years old and diagnosed with stage III breast cancer to right breast ER/PR + HER2- November 2022. I completed chemotherapy on May 2023. I had right breast mastectomy on July 18. Three out of four of sentinel lymph nodes were positve for cancer cells. I am left with decision of another surgery to remove all…
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Latissimus Dorsi Breast Reconstruction
Has anyone here had a breast reconstruction using the Latissimus Dorsi? If so can you please share your experience and suggestions? I am due to have a delayed reconstruction beginning of May. I'd appreciate all responses. Thank you.
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Is it ever not cancer!?
Hi lovelies! I had a cat scan on Monday due to weird chest pain that was diagnosed as an irritation, given meds, went away, all good. However, they noted bilateral enlarged internal mammary nodes and referred me to my oncologist. Saw her Tuesday morning, she orders Pet scan for today, but it was rescheduled for next…
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Question about Nuclear Whole Body Bone Scan
I had a nuclear whole body bone scan this week and I had taken a disk and report with me from my previous scan which was done at another hospital in 2018. I was told they loaded that information on their computer. When I got the report, it said "comparison: None." I am wondering if those scans are like Dexa Scans which…
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The dumbest things people have said to you/about you
Ok, I know, it might sound mean to make fun of people or call them "stupid" or "idiots". But I am sure that in your journey you had quite a bit of stupid/insensitive or plain dumb stuff told to you. And you wanted to just get those people by their collar and shake them real well (or maybe who knows, just give them a good…
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What’s recovery look like for double mastectomy?
I was just diagnosed and considering double mastectomy. I have my surgery scheduled for this month. Can someone tell me what the recovery looks like and what to expect? Pain, timeframe to be up and about?
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Bone Mets/PAIN
I apologize if there's already a thread on this topic, but I'm still having a difficult time navigating this new format. I've tried the search fields, but it's not directing me to a common thread. Anyway, I'm having a BAD pain day. Bone mets basically everywhere in my chest cavity. RIBS especially, sacrum, etc. I'm on…
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Feelings of...........selfishness
I'll keep this short (probably). I was going to write guilty, but selfish seems more fitting. My wife has been battling stage three breast cancer for just over a year. She was diagnosed on Valentine's Day 2022. Done with chemo, done with radiation, taking Anastrazole for 10 years, almost done with gabapentin. She tried…
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Pleomorphic Invasive Lobular Carcinoma
What a crazy and bizarre diagnosis. Am I the only Pleomorphic here?
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Scanxiety... help
I have just had the results of a CT scan and have been told im being referred for a Bone scan 😬😬 Apparently i have a slight thickening on one of my ribs help! I've been told its been on my scans since diagnosis in October last year, and althought mention on my previous 3 scans, and unchanged... the most recent radiologist…
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Some discomfort
4 months ago, yearly mammo showed another dcis, behind my lumpectomy scar where my old dcis was —3 1/2 years ago. Surgeon wanted to watch it, and have me take a "baby" amt of tamox. Which I haven't. The dcis was very small. (I'm due for my 6 mos mammo follow up in two months.) But, I've noticed some pain in the breast, or…
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Strange feelings
I've had strange feelings in my left breast, armpit and upper back. It's not like pain, more like numbness. The ultrasound discovered a very small lump BIRADS 4 in my left breast 3mm. I'm going to get a biopsy done, but I kept wondering what caused the uncomfortableness. I do have LCIS in the left breast and the lump was…
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Women Treated for Breast Cancer Seem To Age Faster
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The Ups and Downs of the Transition Phase
Someone wrote recently that she wished she still had breast cancer because her life now is more difficult than it was when she was going through chemo. Her job is more demanding and now she lacks the support she had while in active treatment. I want NOTHING to do with my reconstructed breasts or anything breast related,…
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Wait and worry
hi everyone, I was diagnosed on July 24, I got the call on my first day of vacation in Maine, I have IDC triple negative grade 2 size 1.2 x .09 x 1 Drew blood for genetic testing Surgery is scheduled for August 15 so I have time to go to Dana-Farber for a second opinion, my appointment is Tuesday, August 8 I’m finding it…
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Need a surgeon in DC or NOVA
My daughter was being followed for a breast mass that was biopsied three years ago and found to be benign. It was suggested she get an MRI as a baseline after having ultrasounds every year and a family history of breast cancer (me). For the record, I had genetic testing and did not test positive for any breast cancer gene.…
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How accurate / relevant is Oncotype DX for ILC?
Hi all - new here and caring for a loved one with ILC. Forgive me if this is a dumb q: but is Oncotype DX as relevant for ILC vs ductal? Thank you.
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Best imaging for screening?
I know MRI is not standard of care (right?), but what do you get for lobular screening? Mammo? Mammo+US? Digital tomosynthesis? MRI? How frequently? Love to all in here.
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Program in Washington DC for high risk young adults
My young adult daughter has asked that I help her find a program in Washington DC or close to Washington DC that will offer careful screening for possible breast cancer. While she is not diagnosed at this time, due to my history and the history of my sister, she is considered at high risk. She has been using a program in…
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Recovery Time for Expander Placement
I am scheduled to have tissue expanders placed on July 18th. I had my double mastectomy with immediate reconstruction back on Jan. 4th, but the expanders had to be removed due to non-healing mastectomy wounds. My question - if you have ONLY had the expanders placed at a later date - what kind of recovery time did you have?…
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Mastectomy pillow
I am scheduled for my double mastectomy this month. What actually helped do I am not buying unnecessary things. pillow? bra? Shirt with pocket for pump?
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Chemoport questions
Hi all, Tomorrow I have port placement. I'm pretty anxious, and I have some specific questions if anyone can help? First - how soon after the surgery can you shower/wash hair? I assume you aren't allowed to get the incisions wet for some time. Not that that really matters I soon wont have any hair. But I'm keeping it as…
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Second opinion?
Hello everyone, I'm new here. I recently had two breast biopsies on the same right breast. Both turned out to be benign but they suggested a surgery consult. It says I have a sclerosing papillary lesion. My breast surgeon is suggesting surgery, but my primary care and brother who is a doctor is saying it's not necessary…
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Oregon Clinic Drops Breast Cancer Patient Over “Gender Critical” Views
Although not an American myself, this is a very concerning situation and needs to be seen as even women with breast cancer will be punished for WRONG-THINK when it comes to questioning gender ideology. There’s a growing number of women UN-PERSONED for merely observing biological reality. Article posted below, also REDUXX…
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Wigs and Warm Weather: Five Tips for Staying Cool and Comfortable
Share your thoughts and tips below!
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Breast Cancer Screening Guidelines for Transgender People
Breast cancer screening guidelines for trans people are confusing and based on thin data. Here's how we got here — and what challenges remain.
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Is this silly?
My 77 yo mom asked the surgeon today, "is it silly to consider reconstruction at my age?". We went for the appointment after mom got the results back from her metastatic workup. Multi focal idc in her right breast...it looks like a lot of large, overlapping tumors the surgeon said. We went for a consult since no sign of…