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All About Doxil
As I haven't seen a specific page related to just Doxil treatment, I thought I'd start one because that is likely my next treatment progression and I've seen little discussion of it here. So, who has been on Doxil? What were the SEs? How did it affect you after the treatment, i.e. how long were you not feeling well or…
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Letrozole
Can Letrozole cause colitis in the sigmoid colon.
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Haven't been here in a while....
Just wanted those of you newly diagnosed to know that I just celebrated my 14th year in February 2023, after diagnose and treatment of triple negative breast cancer. I know the fear only too well as I literally lived for many years on this forum to quell my constant anxiety of this coming back. I have, thankfully, not had…
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How long is too long to wait??
I am newly diagnosed invasive DCIS high grade. Approx 7mm based on calcifications Central necrosis, Ki67 50-60%. My surgery is scheduled out 2 months from time of biopsy and 4months from initial abnormal mammogram. From what I have researched and speaking with breast cancer survivors that I know it seems too long to wait.…
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Anyone else w/infection after fat transfer?
I had a BMX with immediate implant reconstruction in October 2021, followed by chemo and then radiation of my left breast/chest area due to a rogue node. Radiation finished in June 2022, and my skin was in pretty good shape but the chest wall and surrounding tissue were quite tight. After discussion with my surgeon, I…
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Skin mets
Hi all! I posted this on the Her2 thread but haven't got any responses yet, so I'll try it here. I just got diagnosed with skin mets. Woohoo! I'm Finding out its pretty uncommon. Tumor markers a few months ago were fine, as was all other blood work. Talked with MO about getting very close to that 5 year, take a breath,…
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Suicidal ideation - oncologist called the police.
I had a bad pathology report 10 days ago and today met with the oncologist. She said only what I thought she would say - more waiting, to do scans to look for distant metastases, followed by chemotherapy (unless there are mets. already). Tumour is large (6.8cm) with one +ve node and invasion posteriorly into muscle. Stage…
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A Sweet and Precious Time
I just wanted you to know that your tender messages have lifted my heart! I never anticipated such an outpouring of love from people across the world. To realize that numerous lives have been touched by my work brings me inexpressible joy. Thank you so very much for taking the time to reach out, as each and every note is…
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Possible Recurrence
I was diagnosed with Stage 1 IDC and high grade DCIS in August of 2022. I had a lumpectomy to remove both spots in September and additional surgery to get clear margins on the DCIS in October. I had 4 weeks of radiation and I am taking Letrozole since the IDC was estrogen positive. I had my first mammogram this week and…
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Waiting for biopsy results
This discussion was created from comments split from: Waiting for Biopsy Results.
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Birads 5- my mom
I joined here several years ago after I had multiple lumps which ultimately revealed adh. I appreciated the level headed support I received while awaiting results during the height of covid chaos. I never dreamt I'd be back looking for support, this time for my dear mom. She went in on Friday for a mammo and us after…
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Anyone have a Recurrence in Mastectomy breast?
Has anyone had a recurrence of breast cancer after a mastectomy? Many of us are finding areas of concern, in the form of a lump, after having a mastectomy. I had two lumps in my left mastectomy breast with DIEP reconstruction, but after being tested twice with US, at 6 month interval, they were diagnosed as fat necrosis.…
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Invasive ductal carcinoma AND Brca-2 gene mutation
I was scheduled for a lumpectomy next Friday for my ER/PR + and HR- breast cancer but today the genetic counselor called me with some devastating news and that is I have the BRCA-2 gene mutation. I haven’t spoken to the surgeon yet but I’m assuming I will have to have a double mastectomy and I have been crying we unite a…
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After stopping tamoxifen, how long before night sweats stop?
My last dose of tamoxifen 5 mg was May 26, 2023. I am getting better sleep most nights, but still waking up with night sweats several times each night. How long does it take before it’s finally out of your system?
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Please don’t call me “Sir”
I chose to go flat and had zero push back from my surgeon. Mine choices were limited – either a single or a double mastectomy. I am two years out, super healthy – best decision ever! I have always been tall and thin. I am 6'-0" and around the 160 lb mark. I was raised by a mother that didn't wear makeup – so it was never a…
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Pain almost a year after lymph node removal
I had a lumpectomy and three lymph nodes removed last August. I went to PT off and on for a seroma, cording and the onset of lymphedema. The cording is a lot better than it was. But I’m having more pain/tenderness in the back of my arm and underarm again. I stretch every day and try to drink a lot of water. Just wondering…
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Pregnant and scared of IBC
A week ago, I noticed an area of redness on my left breast. I've always been really scared of inflammatory breast cancer so I'm hyper aware of breast changes. I'm 18 weeks pregnant so I called my OB to get an appointment to have them look at my breast. They didn't have any openings so they just sent me for an ultrasound.…
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Mets to Liver
I have recently been diagnosed to mets to my liver. I am scared and have problems eating
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Unilateral vs Bilateral Mastectomy and Recovery
Hi, I was diagnosed in June of 2017 at age 42 with DCIS in my right breast. It was high grade and estrogen and progesterone negative. I do not have a history of breast cancer in my family or the BRCA genes. I had a lumpectomy and 7 weeks of radiation. I was just diagnosed last month with a local recurrence. I’ve met with…
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Tamoxifen and bleeding
I am 44 years old and premenopausal. I have been taking Tamoxifen for 8 months. I stopped getting my period in December right after starting the Tamoxifen and have not had a period for 8 months, not even spotting. This week I was at work and started what I thought was my period but after a couple hours turned into…
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Things I never knew about breast cancer
Hi everyone, In these days of substantial 'AWARENESS' of breast cancer I am now very aware of my lack of knowledge until I got BC myself. So I thought I'd start a list, please add anymore things you can think of. 1. mammograms do not pick up every cancer. 2. Ultra sounds don't either. 3. Breast cancer is not one single…
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Radiation--Reduce Effects with Mepitel Film
Hello: I am Invasive Lobular Carcinoma, IIIC, triple negative. I am finishing radiation, 6.5 weeks with 5 boosts with bolus. I have used Mepitel Film, a wound dressing made of non-stick silicone. It helps greatly reduce the effects of radiation burns, i.e. dermatitis and moist desquamation (skin that weeps and bleeds from…
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Please give me any advice - Paying for Lupron no insurance
Hello. I am writing this from abroad. I am 44 and stage 1 Luminal B (HER2-negative) breast cancer and was diagnosed so 2 years ago. I went through a surgery, chemo for 12 weeks, and radiation therapy for 30 times. Now I am undergoing treatment with Lupron depot - 3 month 11.25mg) and Tamoxifen (10mg). I am an American but…
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Breast cancer and prayer
I don't know what to say…I feel spiritually that my emotional and spiritual life are related to breast cancer. There are emotional things that I think may have effected my hormone levels. I also feel that I have been struggling with things spiritually and my God is saying something…part of the "bad" was caused by a…
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pain after port placement
Im starting chemo next week, and last wednesday "the port" was placed on the left side of my chest. Since it was placed, Ive been having some fairly bothersome left shoulder and neck pain (almost all the way from the port thru my upper back, and from the neck to the shuolder.) The placement site also hurts, mostly when I…
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recurrences
Has anybody with 1 positive lymph node for micrometatasis had a recurrence? With or without chemo? I am trying to decide whether chemo is worth it for me. My oncotype is 26
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Any one Triple Positive 10+ year out?
Any one Triple Positive 10+ year out?
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nipple sparing mastectomy
Hi I had a skin and nipple saving mastectomy 10 days ago. My surgeon placed an implant behind the muscle of the breast that had cancer and lifted the breast without cancer to match. I have incisions around the entire areola of each breast. While I was in the hospital, the nurses were concerned about the areola of the…
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More Than 8 Weeks Between Diagnosis & Surgery Affects Survival
More Than Eight Weeks Between Breast Cancer Diagnosis and Surgery Affects Survival Mar 2, 2023 If more than eight weeks passes between early-stage breast cancer diagnosis and surgery, survival is worse. Read more...
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Ear pressure on TCHP
Hi everyone! I’m a lurker on this group and am so thankful for all of the help I’ve gotten as I go through treatment. Did anyone have ear pressure issues on chemo? I’ve had what feels like clogged ears for the past month nonstop and it’s driving me nuts. 🤣😩 I can still hear fine, nothing sounds muffled, it’s just pressure…