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Any young BC patients/survivors who haven't had kids?
I decided to have kids a bit later because of my career and education, and I got diagnosed with breast cancer right before I was ready to have kids. Now I'm 32, and it's getting difficult to find people like me. I'd love to connect with any young breast cancer patients who are single, in relationship or married without…
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Ladies in their 30s
Hi sisters, Just wanted to find out how many of us are in our 30s. Do you have husbands and families? I found that aspect particularly hard while I was doing my chemo- keeping up with the needs of everybody else while I was doing my treatments. Now I'm in the radiation portion and school will be starting in about 10…
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Anyone have nerve damage to leg during surgery? Turned out to be minor stroke
Hello all, I’m wondering if anyone has had similar issues following surgery Brief summary: July 2022: had a heart attack and stent placed. Began 1 year treatment with Plavix to prevent clotting of cardiac stent. September 2022: diagnosed with DCIS. Surgery delayed due to recent heart attack and Plavix. Began treatment with…
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Any insight?
hello! I am new here. A week or two ago I noticed a little bit of redness by my nipple and didn’t think much of it. Since then and over the past few weeks it has now just grown in size. There is a tiny tiny dot that I scratched that appears to maybe started this whole thing, not sure. Anyway- since I had my breast aug 6…
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Multiple Fibroadenomas and Axillary Cysts
My 24 year old daughter noticed a lump in her armpit last year and I dragged her to get an ultrasound, given my BC history. During the ultrasound, they discovered a mass in her left breast as well as the cyst and decided to do biopsies of both. The axillary mass came back as "undefined" with evidence of foamy macrophages…
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Sudden left side numbness, negative for stroke
hi friends. I’m a three year cancer survivor trying to navigate life after my cancer and the death of my sister from ovarian cancer. Long story short I was driving my kids when I experienced left lip numbness, left thumb numbness then my entire left leg went numb. Like pins and needles. And it felt swollen but wasn’t.…
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Biopsy
Hey guys. Currently scared to death, had triple negative breast cancer in 2007 been clear all these years. Went for my mammogram on Monday and they found a 7mm nodule as she called it , biopsy coming on Monday radiologist said she is sure it is cancer, oh and same breast as last time
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High levels of estrogen
hi - I just had my estrogen tested and it’s 78. I’m on zoladex femara and Verzenio, also haven’t had a period since chemo. The test says results could be affected by Verzenio. Anyone ever encountered this before? Distresses but haven’t spoken with the onc yet .,.
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Diep flap survelliance
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My mom just got diagnosed with liver and bone met
Hello, l am from India, and my mother has recently been diagnosed with liver and bone metastasis. My family is considering moving her to the United States for further treatment. Could anyone please provide recommendations for the best hospitals in the U.S. for such conditions? Additionally, I would appreciate any…
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Kisqali
Anyone taking Kisqali for Advanced Stage Metastatic Cancer. If so how how long did it take for you to know if it was working for you? I have Mets to my liver and spine, likely in lungs too. I just want to feel better.
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MRI w/o contrast
Hi I am wondering if anyone have had an MRI without contrast. Is that better than a 3d mammogram for dense breasts or an ultrasound? Just wondering as reading up on the contrast used for MRIs and getting nervous on using it as it saying that gadolinium can stay in your body for a LONG time and even staying in the brain.…
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Recent diagnosis
TNBC stage 4 Ductal metastatic 6.9 cm tumor in right armpit breast tissue, 3 cm on right breast, clavicle, possibly groin left side. Palliative taxol chemo & immunotherapy since the large one in my armpit is protruding out & would grow outside of my skin. 6 mo-1.5 yrs is what they gave me. Diagnosed 6/2024. Just finished…
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How often do you think about recurrence?
Hi all, I'm just wondering how much you think or don't think about recurrence. We are all different, and we have different chances of recurrence, but I wonder if you think about it. I was diagnosed in February. DMX in March, currently on Tamoxifen for five years. Taking a daily pill is a great way to think about the…
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Double vision one eyes getting blurry
hi - I was stage 3c (1 node in neck lit up but was not biopsies so olio?) -er positive her2-. Very aggressive breast cancer. Had chemo, Masectomy and radiation, Currently on the last month of my two year Verzenio. I’ve had one instance of double vision in one eye 6 weeks ago on a plane. Then I noticed I’m having more…
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vaginal dryness
My DCIS is estrogen receptor + and i am wondering if the aloe vera gel in the good clean love i am using for my vagina dryness will increase the level of estrogen in the body as i read the aloe vera will mildly increase estrogen level in the body. Any advice. Thanks.
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Waiting …
I went for my yearly mammogram three weeks ago. I’m 54 years old with no family history of Breast cancer. I was called to go back for additional mammogram views and an ultrasound of left breast. A week went by and I received an early morning call requesting me to go back in for a 90 degree mammogram view. I asked if I…
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Birad 4
Hello Ladies, I had an abnormal screening mammogram and then I had a diagnostic mammo and U/S. The U/S showed a suspicious spot, so they want to biopsy it. I decided to switch breast care centers because I didn't like the radiologist. I felt like it was now processing number 20. I went to get the films from one place to…
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Invasive lobular carcinoma
Hi there . I was diagnosed with ilc, had lumpectomy of right breast stated barely stage 1. Treatment: tested one of 2, it’s at 25 which means radiation yet sending back other sample to get tested because over 25 would be to do chemo , then radiation . Stated stats : with chemo 1% of returning , without 12% of returning I…
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Implant reconstruction after radiation
I have a recurrence of DCIS in my right breast. In 2017 I had a lumpectomy and radiation. I now need to have a mastectomy and I’m hoping to have an implant reconstruction, rather than the DIEP flap. Most of the conversations I’ve found on the success of an implant reconstruction years after having radiation are pretty old.…
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AWAITING SECOND OPINION
Is there a cancer hiding somewhere in this moderate to highly dense Fibroglandular breast tissue of mine? From Sydney, Australia HISTORY: Age: 36yo Menstruating since 11yo Endometriosis - surgery in 2022. 2 children - 10yo and 5yo Recurrent mastitis infections since the birth of first child. Spontaneous and recurrent…
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TN stage one lobular with no spread to lymph nodes; Chemo?
Oncologist is recommending CMF. My androgen receptor test was positive and I am trying to make a decision about chemo. Anyone able to share side effects experience?
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Not responding to Verzenio after some months: anyone switch to Kisquali? Help please
Hi all My tumor markers dropped for the first few months on Verzenio/Fulvestrant, and now are climbing again. Scans didn't show progress last month but I'm terrified. Did anyone have better response switching to Kisquali and if so, what was it and how were the side effects compared to Verzenio? Verzenio and I are getting…
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Pain and sensations months after lumpectomy
I had a lumpectomy of my 1 cm lump and 5 lymph nodes. There’s been some new pain and all kinds of sensations recently. It’s disconcerting. Could it be nerve endings healing? Anyone else had this
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Tubular/Cribriform IDC - any insights?
Hi all. I was diagnosed with tubular IDC earlier this year following a core biopsy (grade 1, ER/PR+). This hadn't shown up on my routine mammogram due to dense breasts but in self examination and then at ultrasound. They measured it at 17mm x 6mm at ultrasound. I then had an MRI to further confirm diagnosis and this…
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Coping with emotions
Background: I'm 52 with MBC. In 2022 diagnosed with estrogen positive cancer w/high BRCA indicator. Had a double mastectomy and chemo. In February 2024 noticed a lump in the scar tissue from the mastectomy. My doctor and I thought it was just necrotic tissue, but she ordered a PET scan. Not only was it not necrotic tissue,…
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Breast MRI
I’ve posted a few times over the past two years about my symptoms and the tests I’ve had that have all been fine. As my symptoms are ongoing I’ve finally gotten an order for a breast MRI. I’m petrified of any and all medical procedures so I was hoping someone could tell me what to expect. I’ve had a really horrible few…
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Living far from daughter with stage IV
my daughter was diagnosed stage IV de novo over 5 years ago and has been doing well and living an almost normal life I’ve been going to almost all of her appointments and scans We live about an hour from one another at the moment and she hardly comes to see me but she’s see her about twice a month I’d like to move to…
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Has Anyone Had TEMPUS Blood Testing Done?
I’ve been stable on Xeloda since 2020. Recent ct/bone scans show a couple enlarged paratracheal (neck area) lymph nodes (everything else appears stable). Today I had a PET scan ordered by my onc to further investigate what might be going on. When I was at the onc last week, I also had blood drawn for TEMPUS xF testing. Has…
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Unfortunately it appears I am back.
Made it almost five years. I was concerned about slowly rising TM so had a CT last summer. I did see something on some of the vertebrae when they showed me the scan but was told it was just some arthritis. Returned this month and on what was to be my last routine CT scan, before they sent me off into the “every two year…