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INSOMNIACS place to talk in the wee hours
Welcome. This is called the insomnia thread, but we post 24/7/365. We call ourselves Owlettes :) No nastiness, bullying, stalking or such allowed. I would like to keep the kind fabric of this thread intact. Discussion will flow where it will as all threads do. This will be a happy place. I hope with lots of laughing. Talk…
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Discussion on taxol and taxotere
hi All, My sister is undergoing for chemo for DCIS Er and Pr positive, nonow she is on taxol drug but she become so weak and few side effects are effecting her life style so now doctor suggested to take taxetre from next chemo cycle can some one suggest which is better and less side effects and she is 37 years old
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Mastitis after lumpectomies
lumpectomies Friday Mar 8. Post op mastitis March 14.
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Risk Assessment after removal of radial scar
Hi - My daughter had a radial scar removed at age 39. She is currently 43. We tried to do a risk assessment on her using Tyrer Cusick calculator, but radial scar isn't on the calculator. How do you determine risk if radial scar is not one of the questions on the calculator?. Are there risk assessment calculators that…
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A place to greet and meet newbies to stage III
I am be wrong, but I thought MAYBE we needed a place for newly dx stage III people to post their concerns, fears, questions or simple to say "Hi I am joining the group"! I know we have so many wise, caring, gracious stage III sisters and men that would be willing to welcome newbies as well as comfort, answer questions and…
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Realistic looking custom wigs
Bout to start treatment in the coming months. Hunting for a good, high quality, realistic looking wig. Found a couple promising ones (ie wigs by tiffani and high definition hair). Seems the one closest to what I am looking for is High Definition Hair (highdefinitionhair.com). They seem to be custom made wigs (custom…
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Curious about time to recurrence for Lobular (ILC)
Hi there fellow lobular thrivers, I was basically a De Novo Stage IV as I had progression shortly after I was diagnosed when I had just started neoadjuvant chemo. But I’m curious how long it was for others between their first diagnosis and recurrence to a distant (non-breast) metastasis. My theory is that the statistics…
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Experimental Inavolisib Seems Promising for Certain Metastatic Breast Cancers
Experimental Inavolisib Seems Promising for Certain Metastatic Breast Cancers Dec 7, 2023 If approved, the medicine may be an alternative to Piqray for treating certain cancers with a PIK3CA mutation. Read more…
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Canadians in British Columbia
I'm wondering how many West Coast Gals we currently have on here. It makes it a little easier to compare notes as our health-care is provincial. Would be nice to share tips and such to each other as we wade though the health-care Bureaucracy. I'm in Richmond BC (a part of the Vancouver Lower Mainland) and the majority of…
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You name the group/artitst
Hi All, This game is a bit of trivia, may take a little thinking on our part but hey, we are good. Here is how it goes. Songs category 50's-80's. You name the song then you the next person names the band, then you list a song the next person names the band etc . One entry per turn as usual . Thanks for playing have a great…
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Looking for your recommendations: Wigs, hats, turbans, and more
For any of you who chose to use wigs, hats, turbans, or any other head covering during chemo, we're looking for personal recommendations in your area! Was there a certain type of wig or hat you found that worked for you? A great brand of turbans? Did you try a full-service wig salon or hair loss center that offered fitting…
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Uterine discomfort with low dose Tamoxifen?
I've only been on a low dose of Tamoxifen (5mg) for about a month and I've noticed a 'heaviness' in the low pelvic area. I've never felt it before, so obviously it's from the medicine. I know that Tamox is estrogenic to the uterus, but I didn't think I would feel anything so fast with such a low dose. So, if anyone can…
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Stage 1A, released from treatment and concerned
Hi, I was diagnosed early 2020 with Stage 1A IDC with ITC’s in one node, HR+ IDC. I had a DMX, and 3 years of zoladex and letrozole. I was having really bad bone pain and tried different AI’s. They were worse. My MO felt it was ok to try tamoxifen. That was unbearable for me. I was happy to go back to the AI but my dr…
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Does DIM really work?
I have been prescribed Arimidex after having a mastectomy with no need for chemo or radiation. After doing some research, I realize that I really don't want to go down that road. I found references to DIM on this site and did a lot of research and would like to know if this really works? From what I read, it seems to be a…
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Wondering
Hi. I am new to this forum. I had thyroid cancer in 2018 and it was successfully removed. Also had to have a hysterectomy in 2016 due to fibroid tumors. I have been on levothyroxine since before 2016 for hypothyroidism. I have dense breast tissue and I know that this can be a concern when reading mammograms. I’ve recently…
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Triple Negative Breast Cancer
Anyone else in the UK had TNBC and gone on to have HRT or oestrogen creams ? There seems to be a lack of knowledge with GP's. Any info would be grateful. Just out of interest I'm also had surgery for hyperparathyroidism.
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Experience with Keytruda for early stage Triple Negative Breast Cancer
Hi Since the standard of care for early TNBC has changed and now includes Keytruda (Pembrolizumab) with chemotherapy in the neoadjuvant setting, followed by Keytruda alone for 9 cycles in the adjuvant setting, I was wondering if everyone on the current regimen could share their experiences? How has it affected you? Have…
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Coughing and Arimidex
I have had a dry cough since chemo and starting Arimidex in 2015. I have been to many kinds of doctors for the cough and no reason has been found. Sometimes the cough is really bad. Has anyone else had coughing?
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Mammogram findings
Can all oddities in breasts be explained? I was told I had something that didn’t look good, but the doctor didn’t think it was cancer. It was a 12 mm nodule with irregularities. He said it could be an infection or scar tissue. Shouldn’t I find out? Thanks
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Scar tissue near Lumpectomy area
Hi! Just had an ultrasound and scarred that the areas in question might be recurrance. Now they want me to have a MRI. Can you please share your experience with ultrasound reports, mri's that show up as suspicious near your original tumor/lumpectomy site. I'm 8.4 years out and had 36 rounds of radiation, chemo, lumpectomy…
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New Cancer - second time
hi, my last breast cancer was in my left breast diagnosed in January 2015. I was diagnosed at my annual check as having a 1cm cancer in my right breast. I get the pathology results tomorrow. I had a partial mastectomy and lymph clearance last time. As well as chemo and radio. They are talking about a lumpectomy. But I want…
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Unknown mass- pretty scared
I'm in my early 30s and have a family history of breast cancer. I started having pain recently, went in for an exam and they found a lump. It's pretty large- 10cm and mobile in the upper outer quadrant. Hard to believe I noticed the pain before the lump but I've gained some weight and it's not visible. The doctor didn't…
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Prognostic without treatment
Hi community, Very hard to find information on patient refusing treatment. Mother 92 , has Recurrence IDC (first cancer 2011) she had lobectomy , axilliary node removed , she refused radiation , chemo and stopped hormone therapy after a few months… Now she is diagnosed with IDC stage 3a , grade 3 , at least one lymp node…
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Panicking Before Surgery
I am having so much anxiety and panic right now. Surgery is early next week for my double mastectomy. I have a lot to be grateful for. It was found early, in Stages 1-2, and is smallish still. But I am panicking over fear, and I get that. Also, the reality is setting in that I have to deal with this. Before, it was just…
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Dcis -mastectomy or Lumpectomy/rad
I am 42 yrs old and was diagnosed with dcis grade 2 in my right breast in April. I had a follow up breast mri which showed other suspicious areas that should biopsied with mri. I have the mri biopsy scheduled but I feel like skipping it and just having a mastectomy instead. My MD adviced of the research regarding outcomes…
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Advice on AESTHETIC FLAT CLOSURE
Hi there! Heading in for a double MX with AFC in 2 weeks. I have the option of going somewhere else with a plastic surgeon there or staying at my hospital and just having my breast surgeon close. She is confident she can do a smooth closure with minimal incision size. I am on the smaller side. Just wondering if anyone out…
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Argh, close to panic again
Getting some super strong scanxiety. Insurance denied PET (I guess because the first one didn't reveal any bone involvement, according to the denial) so they won't allow a PET. My MO wants a CT and a bone scan. The bone scan looks for c in bones, and the CT-well, you know what it does. I went from 1 scan scheduled for…
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Starting new medication (Xeloda ) today I live alone and worry what to expect.
Hi everyone I am starting on Xeloda today 7 days test run. I live alone and pretty nervous on what to expect. Can you share plese what I really need to pay attention to and what would be the signs if any to rush seek medical attention. Thank you .
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MBC and lowered immunity
My white blood cell count is down, neutrophils are down… not that I am sure what that even means, but I do know that my immune system isn't doing so great. Three head colds since December, and they linger and get harder to shake. I now mask up everywhere I go where I'm going to be in crowds. I take public transit to get…
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Segmental Calcifications (BI-RADS 4) & Biopsy Questions
Hello! I (40F, no family history, no children, no symptoms) got my first mammogram in December and was called back to do another one two weeks ago. I was recommended a stereotactic biopsy because they found calcifications in my left breast. Like a lot of people, I googled my findings and started to have a lot of worries…