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PT for Lymphedema?
Hi! Has anyone else been sent to PT to stave off lymphedema after having lymph nodes removed? My surgery was a month ago and I have no symptoms. I just don’t want to waste more time and money if I don’t need to. Thank you for any insight!
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Feeling confused and concerned
Hi there, I’m a recently turned 40 year old woman in Colorado, USA. I went in on April 10 for my screening mammogram and was called back due to a focal asymmetry in my left breast at 3 o’clock posterior depth, approximately 7cm from nipple. There was no mass noted in the screening mammogram. This morning I went in to…
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Seeking affordable certified medications
Hello everyone I'm in search of a trustworthy online pharmacy where I can purchase medications that are both affordable and certified. I've heard that some countries, like Mexico, offer prescription drugs at a lower price compared to the US. However, I'm hesitant to buy from there since I'm not sure about the quality and…
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Has someone received EVENITY injection for osteoporosis?
Good Envening ! Has someone received EVENITY injection for osteoporosis treatment? My wife has taken Fosamax for 5 years and received Reclast infusion for 2 years (one dose per year). Now, the Doctor suggested my wife to receive EVENITY injection for another year (one injection per month). Since EVENITY is relative new…
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Waiting is the worst….
This is my first post so I apologize If I’m doing this wrong. According to biopsy results I have both IDC and DCIS. Lucky me. 🙁 I met with surgeon, medical oncologist and radiation oncologist yesterday, but nothing can be decided until MRI is completed and HER2 results come back. I’m a mess and don’t know what to do with…
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Considerations: Lumpectomy w/Rads vs. UMX vs. BMX
Years ago I put together a list of considerations for someone who was making the surgical choice between a lumpectomy, mastectomy and bilateral mastectomy. Over time I continued to refine the list and add to it, thanks to great input from many others. Over the years I have posted this many times, and although I don't spend…
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Port Placement
Hi all, I was hoping to hear other peoples’ experiences on having their port put in. I recently had mine put in and it was not a great experience for me. I knew I’d be in a “twilight” state, but I was told I wouldn’t feel or remember anything. However, I felt quiet a bit and was feeling a little panicked during the…
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ASCITES
Hello all. I am actually writing on behalf of my best friend. She has metastatics breast cancer, Im sure hers is lobular. She has been living with it for 10 years. 5 years ago it spread to her peritoneal lining. Estrogen blockers & a chemo type pill kept it at bay, but it has become resistant to them. She has had one type…
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Tamoxifen after ALH diagnosis
Just joined the group. Recently diagnosed with ALH (Atypical Lobular Hyperplasia). Met with an oncologist and discussed about going on 5mg Tamoxifen for 5 years. I am 52 and perimenopausal…had some heavy bleeding issues in the last few years and did a endometrial biopsy which came back negative. I have to decide whether to…
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Had my first mammogram screening last week, now I have to go for a biopsy
Hi, I had my first mammogram screening (just turned 41 yrs) this past Wednesday and Thursday morning the hospital called me back adamant that I come in on Friday for additional screening. Apparently the 3D imaging found two masses and the ultrasound on Friday confirmed that they are solid masses, not cysts. Both masses are…
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Anyone here got 3/3 positive nodes ?
got my path report after double mastectomy 10 days ago. initial diagnosis was widespread DCIS. Now 3 out 3 sentinel nodes are positive. anyone out there with this twist? i was not expecting this. i just feel so sad and helpless. Still waiting on a call from the surgeon.
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Is there molecular subtyping for ductal carcinoma in situ (DCIS) in breast cancer?
GPT gave me a definite answer, but I can't find any related information on the web. Pretty puzzled…
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Fibromyalgia & DCIS
Last Friday, April 28, 2023, I was diagnosed with microinvasive ductal carcinoma as a result of high grade DCIS in my right breast. I have fibromyalgia and have been extremely fatigued on and off for several months. I don’t take meds for fibro as I manage it with acupuncture and myofascial massage therapy. I had a biopsy…
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Ultrasound results help?
hello, I had an ultrasound today for a lump on my clavicle. It is a lymph node that is swollen. The results state this: a solid hypoechoic lesion with central increased echogenicity is present at the palpable abnormality in the left upper chest wall. It measures 17 x 6 x 11 mm. Could anyone tell me what this means? Nobody…
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New to The Group/Help
Hello everyone. I'm not sure if I posted here on this profile as I was locked out for while. After over 11 years of NED, I now have met to the bones, and ?????? Not sure where else yet. The pain began several months ago in a rib on my right side. X rayed, nothing. Pain went away. About a week after that pain subsided, I…
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Sentinal node biopsy question
Hello, Had my lumpectomy yesterday with Sentinal Node Biopsy. Post op my surgeon said she removed three nodes. When I asked, "Why three" She replied, "Because three lit up." Then she was gone before I could ask a follow up, unto the next surgery. Is lighting up a bad thing? Or do they usually remove three? Nothing like a…
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Just diagnosed
Hey ladies, never thought I would be part of this group but here I am. Readingcomments has been very helpful. I was diagnosed last week with IDC, possible other area in the same breast. Not sure of the stage yet, hope to find out tomorrow during my appointment with the "team". It has not spread to my lymph nodes so that's…
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Wife diagnosed Stage IV de novo:
This thread was started as a response to member KBL's question in another forum about those diagnosed with stage iv ILC de novo. But that forum is for stage iv patients only so I could not post there. I am contributing on behalf of my wife who isn't really keen yet in participating in support groups. As her caregiver I…
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International Invasive Lobular Breast Cancer Symposium September 28-30 Pittsburgh, PA
September 28-30, 2023 Put this on your calendars! World Experts on Lobular Breast Cancer. Advocates welcome.
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Who has finished HT and do side effects go away?
I am new to this group. I had Stage II breast cancer in 2019. No chemo, just started out on Anastrozole but had terrible insomnia, joint pain and arthritis so I went on Letrozole after 2 years. I was walking 6-9 miles a day for a month just as I started Letrozole, my weight went up and my cholesterol went sky high.…
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Best doctors for breast cancer in Los Angeles area
I will appreciate if someone can recommend doctors with experience in Triple Negative breast cancer in Los Angeles area.
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Not sure how I feel
I found a lump a week ago (Feb 16th) in the upper/outer section of the breast. My gut said it is cancer. I told my adultdaughter and husband on Saturday Feb 18th). Saw my PCP on Tuesday (Feb 21st). I went in today (Feb 23rd) for a diagnostic mammogram and then ultrasound. The radiologist said we need to biopsy the lump…
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Tips and tricks on how to get through chemotherapy
Hi all, i would love to hear all about your tips and tricks on how to get through chemo in terms of hair loss, nutrition, and other side effects. I start next week. TC , 6 cycles. Any help/input will be appreciated. Thank you
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Pelvic ultrasound question
Hey I just wanted to get someone else’s opinion. I just had a pelvic ultrasound done for some irregular bleeding,pelvic pressure and pain. I am 4 years on tamoxifen. It was done in my GYN’s office and was told the doctor would read it. I asked if it would be sent to a radiologist and they said no. It worries me with my…
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Scared and just diagnosed
Hi everyone, I was just diagnosed on May 1st....my birthday 🙄 I have Invasive Ductal carcinoma grade 3. What happens at the next appointment? I don't know what stage I am. What happens next? I am trying not to panic as I don't want to freak out my kids....but I'm scared.
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How to find palliative care in a small town
Q: I’m in a small town in Texas, and there just doesn’t seem to be much out there when I inquire about ongoing palliative care. Is it a big medical facility offering? Is it not well-funded so no one is interested? I’m not talking hospice, I’m talking palliative. So many of us could benefit from the added care for our…
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Confused about mammogram
Hello, I'm 40 years old and was told I needed a biopsy on my right breast. I did have a breast lift a year and a half ago. My mammogram came back as bi-rads 4b with fine pleomorphic microcalcifications. How often does this come back as cancer?
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radiation-induced atypical vascular lesions (AVLs)
I've had radiation treatment twice for breast cancer in 2009 and 2019. In 2021, I developed four atypical vascular lesions on my mastectomy scar. They are a rare complication of radiation treatment and had to be removed. The surgeon removed them because in some cases these can lead to angiosarcoma, which is a death…
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Research News: Guidelines for Individualized Palliative Care for People Diagnosed W/ MBC
Guidelines Help Oncologists Provide Individualized Palliative Care for People Diagnosed With Metastatic Breast Cancer Aug. 2, 2021 General oncologists have received new specific, practical recommendations on how to offer individualized palliative care to people diagnosed with metastatic breast cancer. Read more…
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Research News:Starting Palliative Care Earlier Benefits Caregivers & People W/Advanced-Stage Disease
Starting Palliative Care Earlier Rather Than Later Benefits Caregivers and People With Advanced-Stage Disease May 25, 2015 Two studies have found that starting palliative care earlier rather than later in people with advanced-stage cancer offered benefits to both patients and their caregivers. Read more…