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Worried and stressed-lump on collarbone and armpit
hello, I am 28 years old. I have family history of breast cancer. Am diabetic and have had 2 beautiful children. About 10 days ago I noticed a lump sitting on/above the left collarbone area. I made an appointment with my doctor and she felt around and said there is also a lump in my left arm pit. I did mention that I had…
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Issues years later
I wanted to ask and see if anyone else might have had this issue. I am status post surgery with reconstruction a little over 3 1/2 years. I had a double mastectomy with reconstruction using implants (silicone). The tumor was in my chest wall, so my plastic surgeon took rib muscle from both sides and made a platform on my…
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Acupuncture treatment for lymphedema
Hi everyone, I had a dmx and ended up with lymphodema under my breast and to the side area. I went for manual massages, but it didn't help. Recently I had to have ablat flap and the lymphodema area is quite painful. I'm wondering if anyone is going through this and what has helped. Also, has anyone tried acupuncture for…
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Cyst
Not sure if this the correct forum for me to ask a question. I'm 43yrs old, today I went in for a mammogram. Got same day results and I have to go back for a ultrasound due to "increase in size of several presumable cyst in lower inner right breast". I had no idea I had cyst on that side. Since this is My question is what…
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What's new at Breastcancer.org
Our community forums have relaunched with new ways for members to find emotional support, share their experiences, and learn from the wisdom of others who are also facing breast cancer. New ways to connect, share, and learn The relaunch of the Breastcancer.org community forums is the start of a new day for our members who…
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ESR1 mutation treatment options and new SERD/SERM research
Hello everyone, I was asked to start a thread about the ESR1 mutation that many ER+ survivors find in their genomic testing. I have the specific mutation of ESR1-Y537S. Which can make me not respond as well to AIs and even Faslodex shots according to my reading. This resistance to estrogen blocking therapies is something I…
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Worried About IBC, But Not Diagnosed
If you are concerned that you may be exhibiting symptoms of Inflammatory Breast Cancer, please post your questions or concerns in our Not Diagnosed But Worried forum. The IBC forum is dedicated to our members who have been diagnosed with, are in treatment for, or have completed treatment for IBC. If you're unsure what IBC…
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Beyond anxious…
Hello. I just need a bit of support. I’m feeling super overwhelmed by this diagnosis. Tomorrow is my mri and next week I meet with the surgeon. The HER2 results should be in by then. At this point I feel like every ache and twitch is further disease and the thought of death is consuming me. I just retired, and can’t…
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Increase in CA 27-29
Hi there, I am a little bit more of a year out of treatment but in the last check up the level increased from 19 to 26 which really scared me. I got the results after the Dr visit, I messaged him but did not hear back. Your thoughts? Have somebody experienced something like that before? Thank you!
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CBD and Estrogen
Does anyone have knowledge of the relationship of CBD with Estrogen? I recently heard an expert in a lecture say that canabinoids provide estrogen. That contradicts other information available. Does anyone have anything current?
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Practical Advice About Home Hospice/Home Care
Started this thread because I found that the transition to hospice at home was more complex than I expected and there are many others here who had helpful tips. Many tips were not from those in hospice but from friends who figured out how to do things despite limited mobility. Looking at the past posts, the following was…
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Exercise to prepare for surgery
I would like to start a thread, if anyone is interested, to record our efforts to exercise in order to prepare for surgery. I was inspired by a report online of a young woman who exercised a lot to prepare for her surgery. "I wasn’t thinking about the surgery or worrying about the surgery—I was focused on getting my body…
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What to expect after Mastectomy/reconstruction
I'm scheduled for Mastectomy/reconstruction Monday, May 15th. I'm getting more and more nervous as the day gets closer. I have been told TRex arms for the first few weeks and not to lift anything heavier than a gallon of milk. MY PS has a whole list of do's and dont's along with a list of medicines and when and how to take…
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LYMPHA (Lymphovenous Bypass) Procedure With Mastectomy?
Hello all. Today I had a meeting with my surgical oncologist to discuss my upcoming single mastectomy. I was kind of bummed to hear that that many nodes will be removed, and mentioned that I have a fear of lymphedema. The SO said that a plastic surgeon will be called in to do the mastectomy close, and he also does a…
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Lumpectomy vs DMX post?
I saw a reply to a post yesterday that went through every pro and con for each of lumpectomy, SMX and DMX. It was incredibly thorough and gave excellent points for all options. Of course, now I can’t find it. I wanted to review it again before my visit with the surgeon tomorrow if anyone could point me in the right…
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Keystone 522 protocol -anyone experiencing side effects to immunotherapy?
Hi Everyone, I was diagnosed with TNBC stage 2 in Feb and have undergone neoadjuvent (chemo + immunotherapy) with 11 rounds taxol weekly and 3 rounds of cisplatin and keytruda. But since week 7 I’ve developed side effects to the immunotherapy. My heart rate elevated, I got breathe less, low grade fever of up to 100.5 daily…
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Jewish Warrior Sisters
Even though I love hearing about all the flavors of G-d, I'd like a place where Jewish women can share their stregnth, fears, and hope. Can it be here? If you know what kugel is, know what it means to 'not roll on Shabbos', or even are just gastronomically Jewish (you like the food), let's share here!
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No one cares about this
I've become increasingly aware of the myths surrounding breast cancer, perpetuated by the media, and fed to the media usually by women that are only about 6-12 months out of treatment, declaring that they are 'cancer free'. We know that breast cancer is not this simple and easy - you can never know if you are cancer free -…
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After mastectomy problem.
Hi My mother has triple negative breast cancer,stage 1,tumor grade 2, no lympnode are affected . After the doctor said it was cancer, the operation was done. The type of operation was mastectomy. It has been 44 days since the operation but the seroma is still not closing. Now what can be done in this situation? What could…
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Is Oncotype test always ordered? Are there are genetic tests I could request in addition?
Had a lumpectomy 10 days ago and SBN. Stage 1, grade 1, no lymph no involvement 90/98 EST/PR. My surgeon has made no mention of the Oncotype score and when I called the lab for my biopsy results, they said I would need to ask my surgeon to submit for genetic tests. Is this normally how it's done? Also, are there any…
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Vitamin C IV PharmaLife Laboratories dosage
Can someone guide me with the dosage for Mega Dose Vitamin C IV from PharmaLife Laboratories? The ampoule has a concentration of 10,000 mg in 100 ml of liquid If there is someone who has already used...
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Looking for Her2 Positive survivor stories
Hello, I was dx in February with Her2+ BC. I went through the chemo, the mastectomy and now in the midst of radiation. I will finish that in December and will be on the Herceptin through March. I, like so many BC survivors, have a constant fear of metastisis. I can't shake it. I think what I need is to read stories of…
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After mastectomy problem.
Hi My mother has triple negative breast cancer,stage 1,tumor grade 2, no lympnode are affected . After the doctor said it was cancer, the operation was done. The type of operation was mastectomy. It has been 44 days since the operation but the seroma is still not closing. Now what can be done in this situation? What could…
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Surgery December 29th - exchange with fat transfer
Hi everyone, I have received a date for my exchange surgery with a fat transfer over implants on December 29th, 2021. I didn't see a thread for December surgeries. I am wondering what to expect as far as recovery (I had no radiation)? I am SO excited to get these horrible TE's out and have seen people say that they get a…
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Local Recurrence Scare Post Mastectomy - 13 Years Out
Hi all! I was here back in 2010 and it was so helpful. Since then, I've been through a left mastectomy with reconstruction, chemo, 5 years of Tamoxifen followed by 5 years of Femara. I have been doing well. BUT … A couple weeks ago I was outside in the sun for an extended time (covered, not bare). I felt a stinging…
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inverted nipple and abnormal mammogram
Last Thursday I had my first mammogram. I am 42 years old and had my first mammogram scheduled the month after the initial covid lockdown in 2020. I put it off for 2 years because I don't want to go into a hospital if not nexeasary due to covid. I received notice Thursday evening that they found abnormalities in mu…
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More Tips (and a Shopping List) for Getting Through Chemo
These lists may be read in conjunction with the conversation created by www.breastcancer.org member Melissaga ("Tips for Getting Through Chemotherapy") on December 6th, 2006. Melissa's tips are great. (Posts by member "otter" are invaluable, and reliable). (The initial list & tips were compiled by my wonderful friend Miki,…
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Update…
A bit of history: routine mammogram, two more mammograms plus an ultrasound, biopsy, clip placement, diagnosed with both DCIS and IDC on April 21. Saw all three doctors, needed to do MRI to see extent of disease and also wait for HER2 results (we know ER and PR are positive). I saw my surgeon yesterday, and the MRI…
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Mastectomy recovery
Hi All, I had a unilateral mastectomy with no reconstruction 6 days ago. The incision itself doesn’t have much pain but I feel a great amount of discomfort and small amounts of pain where the drain is under my skin- particularly under my armpit where there is some extra skin for a delayed reconstruction. Has anyone else…
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Full Body Cramping and Muscle Spasms
I finished treatment a little over a year ago and recently I've been having terrible muscle cramping. The cramps are all over my body... jaw, chest, back, thighs, etc. If I yawn I get a horrible cramp in my neck and jaw and it's making me nuts. I've tried all the usual remedies but this is miserable. I had muscle cramps…