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High Dose Vitamin C Cancer Treatment
Why are oncologists so resistant to high dose IV vitamin C? I have completed a lot of research into non-toxic cancer treatments that improve the bodies ability to heal from cancer and reduce it's impact on well being. I do not think any other "alternative" or "complimentary" treatment has as much promising evidence as high…
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Bilateral versus Unilateral Mastectomy!! Please help me decide
Please help! I am unable to decide between bilateral and unilateral Mastectomy. I am flip flopping between the decision everyday. It is an extremely hard decision and one that is completely irreversible. While i want peace of mind, i am also unsure if i want a numb chest for the rest of my life and not be able to feel…
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Onco always disregards side effects
My Onco causing me so much extra stress.She is always blaming anxiety or other things.I have triple positive bc.Had lumpectomy and currently on week 11 of taxol with a side of herceptin.I have started bringing hubby to all meeting with onco as a witness to what she tells me.I complained of severe joint pain after first…
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Halaven - Day 1
So, I'm the first person on this newly approved chemo at my med center. Lots of people who told me side effects.... They had a fancy dinner put on by the drug company last night so they all would know about it... :) Funny, no one gave ME steak and shrimp. Anyway, got hooked up to some saline as usual (altho, my onc's nurse…
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Radiation Side Effects?
Hi Ladies! I was recently diagnosed with a recurrence and am having a lumpectomy in less than 2 wks. The current plan is to have 6 wks of radiation treatments following surgery/recovery. I'm not overly concerned; however my tumor is on the left side, right next to my sternum. I can't help but to wonder, what if the…
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Paying for drugs while on medicare
I am retired, age 75, single and on Medicare part D for drug coverage. The copays for Ckd4/6 like Verzinio and Ibrance are between $5,000- $7500 monthly which no one can afford. How do people on Medicare part D for drugs get help with paying for these drugs? I am reading conflicting info as relates to people on Medicare.…
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IDC - Stage 1 - Will I need either chemo, hormones or both?
Hi, Just diagnosed with IDC Stage one on Friday. Waiting on my markers has induced a whole new level of panic. From what I've read, it sound like either I'll: 1. Need awful hormone blockers if I'm Estrogen/Progesterone postive (I take Prozac for OCD which would interfere with hormone blockers. Effexor isn't an option. Plus…
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Difference between recurrence and new primary cancer
How do they tell the difference between a new primary cancer and a recurrence of the old cancer. I had ILC in 2017, treated with lumpectomy and radiation. I stupidly refused antiestrogens because I thought I would be OK. They have now found another tumour in the other breast, but say it's ductal this time. Has anyone else…
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Concerned about obscured margins
Hi there - I just got called back for a diagnostic mammogram and US and am wondering if anyone here can help me to understand these results? (My doctor was surprisingly unhelpful). How worried should I be?? Especially about the obscured margins?? The waiting is awful. I have two little girls, ages 3 and 5, and I am so…
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IDC with lobular features
Hi, What does it mean to have IDC with lobular features? I was looking back at my pathology from a few years ago and saw that listed there. None of the doctors have mentioned with the lobular features part meant. Does it mean it was found in the ducts and lobules? Thanks in Advance
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Anyone else feel good, like they don't have cancer?
Don't get me wrong, I know I do, I felt the lump and saw the breast and bone biopsy results but I feel fine, always have. I've been very lucky to have completed my first year and treatments with minimal SE's but I often feel guilty that so many others of varying stages struggle, it isn't what I expected when diagnosed…
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Scheduling annual screening while going through 3D mammo?
Hello everyone, I am having a hard time finding my old post to copy/paste some info to give a background, so I will try to keep it short and try to explain my situation. My annual screening in Feb 2022 resulted in some abnormal findings on my right breast. So, I had couple of follow up and biopsy that revealed more…
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Response with new treatment?
I was diagnosed in December with TNBC - stage IIB in my right breast. I started ac+ Keytruda on 1/17 and finished my last dose on Tuesday 3/21. I begin taxol, carboplatin & Keytruda for 12 weeks beginning 4/11. The response was small on the original mass. They have now found two more lesions that are actively growing…
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Scheduling annual screening while following up with 3d mammo?
Hello everyone, I am having a hard time finding my old post to copy/paste some info to give a background, so I will try to keep it short and try to explain my situation. My annual screening in Feb 2022 resulted in some abnormal findings on my right breast. So, I had couple of follow up and biopsy that revealed more…
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United Healthcare Employee Health Insurance
The company I work for is in the process of most likely being purchased by another company that has United Healthcare for their health insurance coverage. With my current employer I am on Blue Cross Blue Shield Gold and have been happy with that coverage so far. I was wondering if anyone had any knowledge of any problems…
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Newly diagnosed with TNBC: PET scan????
Hello everyone, I am new here and completely devastated. Just got diagnosed with TNBC (HER2 is indeterminate at 2+ and sent for FISH).y MO appointment is on Wednesday, followed by a SO appointment. Stats so far: tumor is 2.8 cm, one biopsies LN in the axilla is negative. They are scheduling a breast MRI. My question is the…
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Neck cracking and grinding?
Hi ladies, I am wondering if anyone has experienced neck cracking and grinding when on hormonal therapy. I have been on Exemestane for more than 5 yeas now and just noticed neck cracking on one side of my neck. No pain and numbness of other parts of my body. Hopefully it's not something serious.
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ILC Stage IIIa but history of heart attack and stroke
Hello, all. I hope this is the right area to post. I had ADH removed in 2013 and am doing well. My mother is 81, had a heart attack in 2006 (two stints), and a stroke last year that left her with moderate receptiove and expressive aphasia. She has a MUGA (nuclear heart scan) next week so the oncologist can determine if her…
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Sub pectoral tissue expanders
HI all i finally opted for bilateral mastectomy which was done on 3/20. The flap perfusion was not great in the affected breast so plastic surgeon decided to place TE's below the muscle. It day 4 and i in so much pain still from the surgery have to take pain meds round the clock. Anyone have a similar experience? does the…
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Does Reiki help?
I was diagnosed in July with stage 1b, grade 2 IDC. I did chemo and radiation. while doing radiation I took my Reiki level I & II. I did self reiki every night at bed time. When I did radiation, they took x-rays and one day he said that is the best x-ray I've ever seen. I told him, he probably says that to everyone. He…
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February 2023 Radiation
I just had my pre-radiation therapy mapping session today. I have "pretty" red and blue marks on my skin, and they made a back cast made today to aid in getting me set up in the same position for daily treatment. They told me it might be a week or so before I am scheduled to start and to be careful not wash off. Is anyone…
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Starting chemo September 2022?
Hi I just started chemo this past Friday and was looking for a group to talk through things with. This is unfortunately my second go around but I’m doing a different chemo regimen and it’s kicking my butt so far. Just thought we could all rant, vent and encourage each other.
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Neck Cracking and Grinding?
Hi ladies, I am wondering if anyone has experienced neck cracking and grinding when on hormonal therapy. I have been on Exemestane for more than 5 yeas now and just noticed neck cracking on one side of my neck. No pain and numbness of other parts of my body. Hopefully it's not something serious.
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What’s your follow up care plan with implant reconstruction?
I had a follow up visit with my PS PA today and will have my last post surgery visit in three weeks. I asked if I needed any follow up care with the PS after that last appointment. She said yes, they would want to see me yearly. Is that what others do? I was surprised I need to be seen by the PS yearly, since I will have…
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Pathology did not include hormone receptor status
I had an excisional biopsy on Thursday, March 16th. I just got the results today - DCIS, grade 3. There is other information on the report, but nothing that relates to the hormone receptor status. When the nurse called me to go over the information, she said that she didn't see it either and would ask the pathologist. She…
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Focal Asymmetry
Hello, I recently received my first mammogram at 41 years old. I was called back because they found an area of focal asymmetry in my left central posterior breast. I am very concerned, as my maternal grandmother had breast cancer in her 30’s. Any words of wisdom or advice is great appreciated. Thank you.
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Started Radiation March 2023?
Hi, I'm Melissa and this is my second go around with breast cancer. Diagnosed in 9/2015 with stage 2 IDC. I had double mastectomy followed by chemo. I took Tamoxifen for 1 year, followed by 5 years of AI. Fast forward to Aug 2022 and I was diagnosed with a recurrence. Since I didn't have radiation last time, was wanting to…
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Where to get financial and disability / work advice?
I am a veteran with PTSD who had a bilateral mastectomy in 2020. I have not had health insurance or care for about 3 years, since the VA is not trustworthy, and it lost my community care case referral (out to a community facility, since the VA itself lacks breast cancer resources where I was). I am also now bankrupted.…
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Hello! Really worried about IBC, have recurrent abscesses.
hello, I’m 33 with 8 kids! Anyway I’m just gonna get into it, starting in 2021 I was exclusively pumping for my baby and started getting what I would call skin abscesses on my breasts. Talked to my doctor about it, he called it a skin infection and sent me on my way. I have been getting these off and on since then, I have…
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High Risk for Breast Cancer? Start Here
Helpful information for those who are at high risk for breast cancer: Some suggestions from the main Breastcancer.org site: * The expansive Know Your Risk section is extremely helpful if you have questions about what risk factors are, what you can or can't do about them, and more! * The Genetic Testing section is key for…