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Recovery and Exercise Stamina Issues
Wow, I still am having a hard time maneuvering around the forums since the .org blew them up. I have no idea if I'm posting in the right place, but here goes.. I'm seventeen months past my treatment plan, and doing pretty well. But I don't seem to be able to build up exercise stamina. As in, I'm now doing a lot of…
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Hylecta
Is anyone receiving Hylecta only? I was dx October 2011 with MBC. Was on Herceptin and Perjeta until August 2015. Then Herceptin only until 2019 when we switched to Hylecta. Hylecta was easy breezy. Until 2022 when we found some pesky small lung mets. Wondering if Hylecta was not a wise choice for someone with MBC. Thank…
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Scalp pain from Arimidex?
Are there any others who have scalp pain after starting Arimidex? I've been on this stuff since late Feb (8 months) and have scalp pain on the top of my head since then. It is NOT constant, but there most times. Just feels like before my hair fell out and hurts. Like someone is pulling my hair backwards, or against the…
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Concerned about conflicting advice -
Hi everyone. Thank you for taking the time to read this. I was really happy to receive a BIRADS 2 diagnosis for microcalcifications that my doctor was keeping an eye on. My radiologist told me I was all set and to come back when I’m 40 (I was 36). I’m now 37 and pregnant with my first. Going over my records, I see dr…
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DCIS + mastectomy now swollen clavicle node & other symptoms
I'm worried, though statistically this "shouldn't" be happening, I had DCIS on my left side but got a double mastectomy due to my young age (35) and the fact my mom had her breast cancer return just 2yrs later on her opposite side. But now I'm having some issues with my right (prophylactic) side. I forget what happened…
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Anyone repeat BRCA2 gene mutation test
I learned through genetic testing after getting diagnosed with IDC that I had the BRCA2 mutation. The genetics counselor said it had to have been passed down from my father or mother and they would have had it passed to them through their parents. My dad died at 47 of a heart attack but my mom died in her 80’s of a…
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Not Sure
I am recently diagnosed with IDC still waiting on what stage. I know it is about 2cm with only one lymph node possibly affected. It is 90% hormone responsive. HER2 negative. Not sure what all that means. I am scared. My doctor is trying to get as much information before we discuss a plan of action.
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how many flat women (NOT DOG EARS) have needed a REVISION?
My surgery was over 4 years ago, I go to an educational hospital and one side was clearly done by an inexperienced surgeon. Letting them operate on me is one of the biggest regrets of my life. They left behind a row of tissue/fat below my scar, it is like a row of fat that clashes when I move my body. I also had a seroma…
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Freaking out over recent breast mri
Hi all! I was diagnosed 9 years ago and have had breast MRIs yearly since then - all negative. After diagnosis I had a modified radical mastectomy on the left side and an implant removed from might right side. This breast never developed due to birth defects I just received the results of my recent breast mri and it said;…
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Exercise recommendations day 1+ after Sentinel node lumpectomy x2 surgeries
Not quite 24 hour post surgery including 2 lumpectomies and sentinel node. (All left breast) Unfortunately it is Memorial Day Weekend, so hard to get a hold of my surgeon. I am looking for information some of you were told about what kind of exercise, movement, range of motion etc. are allowed/recommended starting Day 1…
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Swelling post lumpectomy surgery
Has anyone had swelling in the area of their lumpectomy? It’s not where the SLNB was (it’s not under my arm) but above where the lumpectomy scar is. It’s like I can hear water in there. I know some swelling is to be expected but should the area be elevated and filled with liquid? Also, any suggestions on what I can do to…
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Help understanding biopsy results
I have no history of breast cancer but went to the doctor for a rash on my breast. I received antibiotics for 10 days but that made no difference. I then received anti fungal with a steroid and that's still not making a difference. Since I just turned 40 the doctor had me have a mammogram as well. That came back abnormal…
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Research News: Cannabis Helps Relieve Cancer Pain, Improve Sleep, May Ease Chemo Brain
Cannabis Helps Relieve Cancer Pain, Improve Sleep, May Ease Chemo Brain May 9, 2023 Cannabis seems to ease a number of cancer-related side effects, including pain, insomnia, and chemo brain. Read more…
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Male breast cancer
Hi I am a 64 year old living in Scotland I was first diagnosed with Breast cancer in Febuary 2010 and had a mastectomy followed by Radiation treatment. In 2015 I was diagnosed witth a small cell lung cancer on the same ,right,side Just 5 weeks ago after a routine mammogram they found a new primary Breast Cancer on my left…
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Research News: New ACR Guidelines Say All Women Should Have Breast Cancer Risk Assessment by Age 25
New ACR Guidelines Say All Women Should Have Breast Cancer Risk Assessment by Age 25 May 9, 2023 New ACR guidelines say all women — particularly women considered high risk — need a breast cancer risk assessment by age 25. Read more…
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Research News: Combo of Aerobic and Resistance Exercise Seem Best for Cancer-Related Fatigue
Combo of Aerobic and Resistance Exercise Seem Best for Cancer-Related Fatigue May 6, 2023 Which exercise is best for cancer-related fatigue? A combination of aerobic and resistance exercise seems to help the most. Read more…
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Research News: Incorrect AI Advice May Affect Accuracy of Mammogram Readings
Incorrect AI Advice May Affect Accuracy of Mammogram Readings May 6, 2023 If an AI support system offers incorrect advice, it may affect how accurately radiologists read mammograms, no matter how experienced they are. Read more…
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Is anyone taking TUKYSA ?
I have been taking this drug for about 4 months now. I was started at 600 mg but had to drop to 300 mg daily due to serious diarrhea.It is supposed to be able to cross the blood/brain barrier and stop MBC from getting into your brain. I had 4 brain Mets removed in 9/2020 with radiation. Does anyone else take this and what…
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Breast Implants & ITCHING
UPDATE: After speaking with Nancy's, turns out they add blue agave in the yogurt which was not on the list of ingredients. After a quick search, it appears many people are allergic to it and have the same hives and itching I experienced. Bottom line, it again felt just like what I felt with my textured implants. SO weird!!…
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VIRTUAL MEETUPS for people in treatment for breast cancer!
VIRTUAL MEETUPS for people in treatment for breast cancer! Register here and you'll receive a zoom confirmation with all the information! Tuesdays at 1:00 PM EST and Thursdays at 6:00 PM EST
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Nipple changes during radiation
I’d like to know if anyone has had a similar experience to what I’m experiencing right now. I am 2 1/2 weeks into radiation therapy, and my nipple is very VERY sensitive which I’m told is normal. It has also turned very dark. I have been putting biafine on the entire area after radiation, the past few days I’ve been using…
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Looking for advice on Throat issues during radiation
I had surgery for Stage III invasive lobular cancer of the left breast. There was also a Stage 1 small cancer in the right breast which was only detectable by mri. Mastectomy and reconstruction of the left breast via LD flap and lumpectomy of the right breast was performed. Oncotype very low so only radiation was…
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Bruising & hard lump 4 months after lumpectomy
I had a lumpectomy on Jan 26 on my left breast for a small 1.1cm tumor (IDC). Margins were clear, 0/2 SLN. I had IORT and just completed 4 rounds of TC. Unfortunately, my left breast is *still* bruised and the area where the lumpectomy was is hard in that upper inner quandrant. I had a hematoma develop about 4 weeks after…
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Surgery done…
This is my first post in this group as I know I have IDC. I had my lumpectomy and SLNB yesterday. I was at hospital early as they put a wire in, they injected the lymph nodes with nuclear something, had a gamma scan, had an MRI and ultrasound. I was supposed to have the IDC and another suspicious area removed (that was…
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Tomorrows the Day
Tomorrow I find out how bad this is. I already know it's bad by the level of pain I'm having and how quickly it's moving. I know for sure there's a LOT of bone mets. It started in one rib, now the other side, my hip joint, multiple other areas. I am SO angry. I'm waiting for the damn to burst, because mostly I've been numb…
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advice and help
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Can I reverse my post-Arimidex osteopenia and slight osteoporosis?
My last DEXA scan was a long time ago after I finished my treatment with Arimidex. It showed osteopenia on my left hip and the start of osteoporosis on the right hip. The DEXA prior to Arimidex showed normal bone density. It’s been 10 years since my last DEXA scan, as whenever asked I put it off. Now I’m eating an…
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Best and Worst Books on Breast Cancer
I looked to see if there is a book review thread already and there hasn't been for several years. This is the latest one I could find easily, and it doesn't really have reviews, just some recommendations. https://community.breastcancer.org/forum/26/topics... I'm interested in hearing about books you love and books you…
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Dogs, dogs, dogs!
When I saw the post cats, cats, cats, I simply had to create this one. I've had two dogs. My first was a miniature pinscher named Bucky. He'd been thrown out of a car (!) and ended up on a corner where I got off the bus. He was one year old, and eventually became my psychiatric service dog. The difference between that and…
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New treatment
My questions are based on the information below: 2007 IDC 1.6cm, er/pr-, Her2 very positive. Lumpectomy followed by AC/THP and radiation. 2021 reoccurrence, diagnosis identical to 1st time (except this time 1cm), same breast, almost same location. Dmx, THP. Questions:1) Are there any other treatments I should have had, or…