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Micromets in sentinel lymph node
Hi, I was wondering if anyone has had similar situation. I am 49 and premenopausal with HR+ HER2 - IDC with micromet found in 1 sentinel lymph node removed . The MO refused to do Oncotype due to RX ponder study and is recommending chemo. Anyone with similar situation who decided to be treated per oncotype score and ovarian…
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Stage III TNBC. Looking for stories of hope
Hi. My 30 year old wife's been diagnosed with TNBC. Unfortunately our treatment right from the start has not gone as per the standard algorithm. In fact her 4cm lump was determined to be a fibroadenoma and excised by a general surgeon, and it turned out to be tnbc with LVI, ki-67 65-70%, necrosis present, closest margin…
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Help Interpreting Preliminary Pathology
Hello, I was diagnosed with breast cancer this week. I just saw my preliminary pathology reports uploaded to my health portal; is anyone able to help me understand what it means? Invasive carcinoma of no special type Preliminary Nottingham grade 3; tubular score = 3, nuclear score = 2, mitotic score = 3 Carcinoma involves…
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Metallic Taste - Ideas?
I’ve had just one chemo; taxotere and carboplatin. Thrush started around day 6. A horrible metal taste started soon after on day 8. I’m hoping that the metal taste will go away when the thrush does. Was anyone lucky enough for that to happen? I can’t imagine this taste for 18 weeks! Food tastes horrible. Any suggestions on…
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Newly diagnossed: Questions to ask surgeon
Hello all, my first time posting. I am meeting with a doctor tomorrow to discuss my newly diagnosed DCIS (Ductal Carcinoma In Situ). What questions should I not forget to ask? What had you wished you had asked in your first appt? I have a list of questions i am asing but I am sure there's stuff I don't even know what to…
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Timeline between diagnosis and surgery??
Hello — I was diagnosed with ILC in right breast on September 22nd of this year, it is ER/PR+, HER2-, no BRCA, primary lesion at 1.8. I'm curious about the recommended timeline between diagnosis and surgery. I had a follow up MRI which showed additional lesions and am now scheduled for an MRI Biopsy at the end of December.…
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Zoladex injection
I’m getting my first Zoladex injection today and my doctor is also keeping me on the Tamoxifen as well. Why both? Also, why Zoladex now after 3 months of tamoxifen?
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Taxol & Herceptin experiences to share?
Hi! I met with my oncologist yesterday to discuss my upcoming chemo regimen. I'm 52. I have (had) IDC stage 1a in my left breast- triple positive. I had a single MX on 2/9/23 with reconstruction (expander). In late March I'll begin 12 weeks of weekly Taxol and Herceptin. After the 12 weeks, I'll continue the Herceptin…
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Hormonal breast cancer and the benefit of chemotherapy
I was diagnosed with breast cancer ,oestrogen positive -stage 1 in September.I had an operation in December and now the doctors are telling me that they found a smal amount of cancer cells into one of the sentinel nodes and question is to have a chemotherapy or to continue only with radiotherapy and Letrozole.One of the…
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How much does surgical scar tissue change over the years?
I cannot find my previous posts, but I was here in 2018 when I had a Birads 5 mass. My physician and radiologists told me to prepare for a cancer diagnosis. I had two benign core biopsies which were discordant, a normal breast MRI and finally an exicisional biopsy / lumpectomy at the end of 2018. The diagnosis was…
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CDK 4 6 inhibitor for Stage 2 ILC
Hi Everyone, I was wondering if anyone with stage 2 ILC was prescribed CDK 4 6 inhibitor. My sister was diagnosed with stage 2 ILC. Her oncologist prescribed her only AI but another doctor that she got second opinion from recommended CDK 4 6 inhibitors + AI because her ILC is 100% estrogen positive . Did anyone with early…
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Triple Negative Diagnosis
My mother is a breast cancer survivor, but one of her sisters did not survive triple negative breast cancer. This diagnosis is frightening. I am 45, and it was discovered through my mammogram. I had a biopsy earlier this week, and the results were sent to my email after hours on a Friday. I won't be able to speak to anyone…
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Frustrated with non-answers.
I had a lump ectomy and radiation 10 years ago so the doctors tell me I can’t have it again. I must have a mastectomy. And I do want reconstruction but I really don’t want to have silicone or saline. Challenge is I keep getting a runaround from the doctors about how awful it is and all the complications and everything and…
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Access to oncology articles and MD only forums.
Hello, To the moderator, MD associated witht this site, or anyone else who has access to the below two articles: Synergistic Effect of Cell Kinetics-Directed Chemo-Endocrine Therapy on Experimental Mammary Tumors https://link.springer.com/chapter/10.1007/978-1-4613-2049-4_37 The web site "theMednet.org" is accessible to…
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Just diagnosed... what should be the order of my treatment protocol?
Hi there… I was just diagnosed with DCIS, left breast. I'm not sure what my 1st, 2nd, 3rd, etc steps are - or should be - from here. Here are the medical notes from my diagnosis: Left breast calcifications:- Grade 3 ductal carcinoma in situ, solid type with comedonecrosis. - Numerous microcalcifications are identified. -…
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Any possibility to bring my Mom from Poland to US for cancer care?
I’m a breast cancer survivor. I came to this site 9 years ago and read posts and articles daily, posted frequently. I am lucky that I live in the US, have health insurance and my cancer was caught early. My Mom lives in Poland and two days ago she was diagnosed and told me about it. She noticed a lump right after…
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Medicaid Application/Renewal Survivorship Anxiety
I am a 39-year-old cancer survivor, and due to my BRCA mutation, extensive family history, and the fact that my cancer was triple negative, my oncologist has me under observation for the foreseeable future. I originally lived in Wisconsin, but moved to Texas in early 2019. I was transferred from the Wisconsin Well Woman…
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Invasive Ductal Micropapillary Carcinoma
I've recently been diagnosed with this rare form of IDC that is more aggressive. It is a mixed form containing ductal and micropapillary components. Although my tumour was (had BMX and reconstruction) only 1.4cm, it has been found in 3 of 7 lymph nodes sampled and is a Grade 3. I've yet to be staged as I need scans to…
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PALB2
I’m only 33 and I tested positive for 4 different mutations. One of them was PALB2. My mother and her mother both had and past away from breast cancer. I fell like my dr. Isn’t very concerned about it being positive, but I am. what are some steps other then annual mammograms that I can take to prevent the cancer from…
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Half and quarter doses of letrozole
I quit the letrozole because of the horrible sise effects. Exemestane was awful and lost 3/4 of my hair and had to use a walker to get around. I started the baby Tam (tamoxifen)and had to quit after 3 weeks the side effects were so bad. I then started the 1/4 tab of letrozole and the side effects were tolerable so I tried…
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Oncotype Score
I recently had a lumpectomy for Stage 2 ILC which was ER/PR+ HER2-. Tumor was 29mm. There was a micrometasticts found in 1 of 3 lymph nodes. I am 41 years old. I received my Oncotype report today and am hoping others may be able to comment or share their story with similar results and what treatment they moved forward…
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Breast Cancer and hysterectomy
Hi All, Hope all are doing good. I am diagnosed with breast cancer in left breast in Oct last year and Mastectomy was done Nov last year. In 2019 I was first diagnosed with breast cancer right side and mastectomy was done. Both time ER/PR + and Her2-. Onco Type score was very low so no chemo on both time. I was on…
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All the things that weren't breast cancer
I thought I would post for those people who are searching for stories similar to their own symptoms. It's terrifying having those things pop up on scans that might be cancer, your head goes to all the worst places. Anyway, here's me. I was diagnosed triple pos stage 2-3 BC in Dec 2020, one node was positive on scans and…
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Triple Positive IDC > No neoadjuvant chemotherapy offered??
Hi Everyone, I wanted to explain my situation and hoping anyone in the same situation could answer my questions.. SUPER stressed ! 🙄 I was diagnosed in September 2023 with Triple Positive IDC, ER+ 90%, PR+ 50%, and HER2+ (3+). So Anatomic stage 2B.. Now here is the deal… the biopsy and initial tests showed a mass of…
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Hair regrowth
My hair regrowth after chemo has been slow and the hair is very very thin and fragile. What have others found really helps increase their hair strength and growth? Are there over the counter products that work?
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Newly diagnosed - different pathology results post-surgery
Hello, this is my first cancer experience (51 YO still having regular periods) and am new to all of this. Initial biopsy diagnosis was DCIS grade 3, right side. Had a lumpectomy with flap reconstruction 8 days ago and am recovering as good as can be. Received the post-surgery pathology report and it indicates the DCIS is…
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I am so scared and don't know if I should wait
2 months ago I had my annual mammogram. I had a 3D mammogram, I have been doing 3D for more than 5 years because I have dense breasts. This year I received the note that everything was normal and “see you in a year.” I asked my doctor why if I have dense breasts they don't do an ultrasound and he told me that since I am…
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Post mastectomy pain after starting tx for mets
Hi, this is my first post. I was first diagnosed 6 years ago, had a mastectomy and took 5 tamoxifen for 5 years, finished last April. I was diagnosed with stage 4 in November, extensive mets to bones and liver. I've been taking femara and kisqali for a month now. It's been a hard adjustment. I have had significant…
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Going off of Arimidex due to side effects
So about my appt…Basically dr. doesn't want me to go off medication and wants me to try another drug. I told her I won't take the ones that have the same side effects as the one I'm on. Have reduced bone density, joint pain, don’t sleep well, hair is thinning, etc. The only other one is tamoxifen which can cause blood…
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Diagnosed with DCIS after first mammogram. 32 yrs old.
Hi all. Sorry for the long post but just want to share my story. I previously joined this forum when my mother was diagnosed with breast cancer (age 70) last October. Now…. I have my own diagnosis :( After my mother's diagnosis her hospital offered me a genetic test and I tested positive for a double chek2 mutation. I had…