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Is anyone from NYC here
Was wondering if anyone knows any really amazing oncologists here, I'm not thrilled with the doc I have, was hoping for a specialist that does only patients in Manhattan with stage iv. Any advice you can give would be of great help, as there are so many doctors when I start searching on google I have no idea who tto call…
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Newly diagnosed HR+ with 2 positive lymph nodes
See message below
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Ghost and Other Phenomena: What's your Story?
I have had many in my life, not sure when the earliest occurred. Perhaps, the inner voice that cautions is the strongest in me. It's totally different than the right left angels talking to each other on our shoulders. It's the voice that says something different. Mine have always been short seriously abrupt messages. "No',…
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Stage 4- Docetaxol (Taxotere) Treatment
Last week, I started a new-to-me IV Chemo after progression while on Doxil. I have searched the Stage 4 posts but not finding much so wanted to have a thread to post my “story” to allow a place to ask questions as well as posting experiences, hoping to help others if they move to Docetaxel, too.
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Traveling with MBC - Inspire others with your vacation experiences and tips!
Hi everyone! We have a new content highlight on Traveling With Breast Cancer, and would love you to share your tips, experiences, memories, and advice for those with metastatic breast cancer who are considering traveling, but might not feel well enough, think they don't have the energy, are concerned about risks of travel,…
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Borderline Phyllodes Tumor Diagnosis at 22
Hi everyone, I'm a 22-year-old dealing with a recent diagnosis of a borderline phyllodes tumor, and I could use some guidance and support. On 11/10, I noticed a tumor, leading to a biopsy on 11/14. The biopsy results were inconclusive, and a lumpectomy on 12/6 revealed a borderline phyllodes tumor with negative margins.…
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Low invasive duct alcarcinoma
I had a lumpectomy in October and node clearance december, then radiotherapy for 5 days My cancer was grade 2 low invasive ductal carcinoma I need to go on abemaciclib tablet for 2 years and wondered if anyone is on this tablet thank you
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Passing By to Say Hi!
Hello everyone, GN, here. I hope everyone is doing well. I am dropping by to say hello/hi to you all. Unfortunately, I have some scheduling conflicts, so I am able to attend the meetings. However, as soon as I can, I'll log in. New: I started the new treatment, not great on the body, but trying to hold on and manage.…
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Verzenio and implant complications
Hello, I am excited to join this virtual community. I was diagnosed with breast cancer in October of 23, stage 2 with one lymph node involvement. I did a double mastectomy, chemotherapy, radiation and I'm now taking anastrazole, lupron injections and had been on Verzenio for 7 months. About 3-4 months after taking…
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Looking for Advice on Managing Side Effects of Hormone Therapy
Hi everyone, I’m reaching out to hear from those who have experience with hormone therapy for breast cancer treatment. I was recently prescribed [insert specific medication, e.g., Tamoxifen, Letrozole] as part of my treatment plan, and while I understand its importance, I’m struggling with some of the side effects. So far,…
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Birads 4 after mammo
After a mammogram, I received the following results with two suspicious areas BI-RADS 4 1st Mass: • Shape: Irregular • Density: Isodense • Margins: Indistinct 2nd Mass: • Shape: Round • Density: Isodense • Margins: Shadowed Has anyone had a similar result? I was not given a subcategory. I have to wait until…
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Kadcyla for residual disease after neo adjuvant chemo
Hi All, Starting a new Kadcyla thread as there wasn't one before. I will be starting Kadcyla soon as there was residual disease from surgery pathology report. Kadcyla for 14 cycles is what is recommended. Any of you who have already been on Kadcyla please share how it is going for you.
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Calcification
I am a10 year survivor took a mammography and they say I have calcification on my healthy left breast and they want to do a biopsy it kind of sacres me because i am afraid it might be back. What is calcification?
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Chronic fatigue
hello all, I had a question about chronic fatigue and my triple negative breast cancer. I am waiting for my surgery date but the past few months I have been so fatigue. Could this feeling tired like being exhausted all day feeling be from the cancer? Has anyone else experienced this? Also is their any safe way to get some…
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Long-term side-effect of radiation-stromal fibrosis
I am wondering if there are articles or more information available about "stromal fibrosis" after radiation therapy. 2.5 years post lumpectomy and radiation for ILC, with recent biopsy-proven diagnosis of "stromal fibrosis". Any information would be helpful! Thank you.
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Liver Lesion
Hello, All. I am coming up on seven years cancer free this summer after being dx with stage III breast cancer . Double Masectomy, removed ovaries and fallopian tubes. Several scares of reoccurrence over the years, but so far none. Enter Jan 2025! DExA scan shows osteoporosis so had blood work before starting Zometa to…
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Beautiful home hospice care story
Hi everyone. I just read this beautiful story written by a daughter whose parent decided to have hospice care at his home. It seems that sharing it would be a positive contribution to those like myself who are nearing the end of their experience with cancer, and thinking about hospice care at home. Here's the link :…
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"distortion" on mammogram
Hello, I was just wondering if anyone knows if there is a difference between "distortion" and "architectual distortion" on a mammogram. My finding just said "Right Distortion". They are recommending a follow up, of course. Thanks!
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Medication for ER positive breast cancer
I was on Arimidex (name brand anastrozole) for 8 years after my last breast cancer diagnosis. Even though I was taking the drug, I still got a new breast cancer - one that is ER+ (last cancer was triple positive). The cancer was tiny (5 mm) and was actually totally removed with the biopsy. I had a mastectomy and the cancer…
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Implant got infected
I have not been here in a while. Three years ago I was diagnosed with Lobular stage 3b no nodes. Had chemo and rads and a DMX with reconstructive surgery. Fast forward to today. I had revision surgery 1 month ago. Everything went well until I got a sudden infection on the side that was radiated three years ago. So my PS…
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Advice needed - symptoms ongoing for over 18 months now
Hello everyone. I posted on here a few times many months ago, but considering I’m still suffering with no answers, I decided to come back for some advice. First, I no longer have a gynecologist that I feel comfortable with as the woman I was seeing left the group and since then I’ve been bounced around with no relationship…
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February 2025 Surgery Support Thread
Please gather here to get and give support. Feel free to share your type of surgery, date, and let us know how you're preparing and how you're doing post-surgery. We're all here for you!
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Spring surgeries
wondering if there are any other April or May surgeries? Just recovering from my late April mastectomy.
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Medicare Cranial Prosthesis Process / Coverage
Wondering if anyone has experience getting a wig aka "cranial prosthesis" through Medicare. My doctor tells me it has been submitted but something is keeping it from getting to Medicare. Any ideas? I keep pestering the doc admin and they keep trying, but not having any luck (since July 22). Odd because they said they can…
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Meningioma or metastases?
I was diagnosed 16 years ago, and had kind of put the fear of recurrence behind me. I recently had a bad sinus infection and started having intermittent episodes of double vision. After rounds of antibiotics and steroids, they have gotten better (fewer and not lasting as long) but my PCP had me go for an MRI to rule out…
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Hormone receptor status changed
My biopsy showed I was ER+ (90%), PR+ (30%) and HER2+ (3). I just had a lumpectomy and now my markers show I am ER low+ (5%), PR- (0%) and HER2+ (3). How is that possible and what does it mean if I'm ER low positive, PR -? Does that mean I won't have targeted hormone therapy? Is it better or worse than the triple positive…
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Single Hormone Status- IDC (ER+ PR- and Her2-) Newly Diagnosed
Hi! I am new here :) I was diagnosed 12/31/2024. So far I have had mammogram/US→ biopsies → diagnosed → MRI → results → Met with a Sugerical Oncologist → Currently waiting on oncotype results (from biopsy sample.) and I have a follow up with OS/Plastics this coming Monday. I have a large span of DCIS and 1.4cm IDC - both…
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How Does Alcohol Affect Breast Cancer Risk?
How Does Alcohol Affect Breast Cancer Risk?Feb 21, 2025 About half the country doesn’t know that alcohol increases cancer risk. In January 2025, the U.S. Surgeon General put out an advisory on alcohol and cancer risk, calling for cancer risk-warning labels on alcoholic beverages. The advisory said alcohol contributes to…
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Fall 2024 Breast Cancer Research Round Up
Fall 2024 Breast Cancer Research Round UpFeb 7, 2025 What does the latest breast cancer research mean for you? Dr. Kathy Miller explains. Hormonal birth control increases breast cancer risk in women with a BRCA1 mutation, but not women with a BRCA2 mutation. Levonorgestrel IUDs increase risk, but how much? The long-term…
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Biomarker Testing Laws: How Are They Helping?
Biomarker Testing Laws: How Are They Helping? Float RightMediumAccessibilityDelete Jan 24, 2025 Joanna Doran explains new laws aimed at providing more comprehensive insurance coverage for biomarker testing. In cancer, biomarkers are features of the tumor, such as a genetic mutation or the presence of a certain protein.…