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List of what to do/get/pack to prep for Radiation Therapy
Hey all, We would like to put a complete-as-possible list together of your suggestions for getting through Radiation treatment in our next newsletter. Can you start sharing your ideas here? Thanks so much! The Mods **********HEY ALL, HERE IS THE LIST, AS OF MARCH, 2015. Please let us know if we missed things, and/or you…
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Anyone 5+ years with liver mets and ER+ Her2-?
I just have to ask. If you had liver mets at diagnosis of mbc, and you are ER positive and Her2 negative, and have reached five years already, please raise your hand. Most of the 5+ years women I see here on BCO are either Her2+ (the Her2 drugs are quite successful), or they started with, and may still have, only bone…
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Suspicious tumor
I have been getting a contrast enhancement mammogram (CEM) every year since my diagnosis in 2013. I had one today and the radiologist saw a suspicious tumor so she did an ultrasound. Then told me I need to get a biopsy. When I asked if the cancer is back, she just kept repeating the tumor is suspicious and I need to go for…
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Blood Count -Liver High
Hi All Have been all good last 5 years but recent blood count showed liver emsymes out . ALP 230 jumped from 60 6 mths ago and LDH also raised above 200. No elevation to Cancer Markers both low and well within range , however had pain in right shoulder for 2 mths. Wondering if anyone has had similar high liver levels and…
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My Update—6 years post diagnosis
Hi Friends: I thought I’d post a update on myself 6 1/2 years after my stage 1, grade 1 Invasive Ductal Carcinoma diagnosis. I chose to only have surgery. I did not go on hormone blocking drugs. I chose not to have radiation. I’m doing very well! What was my treatment plan post cancer? I try to eat as plant based as I can.…
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Oregonians With Breast Cancer
Hello Fellow Oregonians! I thought it would be helpful to have a thread where those of us can go to support our neighbors from the state of Oregon. Also this is a place where those of us from Oregon who are new to breast cancer can ask questions like: what drs did you use for surgery and treatment?did we like our dr? what…
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Anxious Liver Blood Count
Hi All Have been all good last 5 years but recent blood count showed liver out. ALP 230 and LDH also raised above 200. No elevation to Cancer Markers both low and well within range , however had pain in right shoulder for 2 mths. Wondering if anyone has had similar high liver levels and been something else. Attributed…
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Mom going in for chest CT today
I am sadly back here again after a few years away. My mom previously was diagnosed with breast cancer. They did radiation treatment, and then it was discovered to have spread to a nearby lymph node; she underwent surgery to remove it. Several months later, she was declared cancer-free. Over the last few years, she has had…
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Weighing my options
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Insurance and MRIs on Silicone Implants
I see that the FDA recommends MRIs on Silicone implants to monitor for leaks. My PS recommends that also. Has anyone had any trouble getting insurance to pay for this? Thank you
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How many breast surgeons and plastic surgeons can I see under Medicare?
Started Medicare in August and diagnosed this January. I would like to meet with several breast surgeons and plastic surgeons before making a decision on my team. From what I read, Medicare allows you to get a second opinion and if the second and first opinion don't match you can seek a third consult. I am scared to make…
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Additional ultrasound
So I live in a state that does not automatically do an additional ultrasound when you have dense breasts.. I've asked about getting an ultrasound in addition to my mammogram but they tell me they don't do it.. is there any way to approach my doctors so I can get a supplemental ultrasound?... I would actually even pay for…
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Off Topic - Sometimes Life’s Not Fair
My oldest brother’s oldest son (my oldest nephew), passed away today. In his 50s, he was diagnosed out of the blue with stage iv melanoma in October. He’d started chemotherapy/immunotherapy but it was too late. It’s devastating news to our extended family. It all happened so fast; it’s like getting hit with a wrecking ball…
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Questions about care and wearing of compression sleeve/gauntlet
What detergent do you use to wash the garments? How do you keep the gauntlet clean while working in the kitchen or cleaning at home as well as being out and about? Do you remove the gauntlet while preparing meals etc. of is there another item to wear over them? I tried a large rubber glove but to get a size to easily fit…
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NEED YOUR KIND HELP WITH PATHOLOGY REPORT >> SUSPICIOUS FOR MARGIN INVOLVEMENT ??
Hello Everyone, I was reading my pathology report (after lumpectomy) once again, and I am starting to wonder if I should ask my BS to perform a re-excision. The margins from the IDC component look pretty good. However, a suspicious margin involvement from the DCIS part of it is having me worried. My BS kind of dismissed my…
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New mom and super worried about my recent results
Hi everyone, just found this support forum and been reading a lot. Super grateful to find y'all , I'm in my head a lot right now and still waiting for the biopsy scheduling phone call and looking for some support. My 2nd spot mamogram has referred me to biopsy, here are my results ---- In the left upper outer quadrant are…
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1 year Scan after almost year on letrozole
There may have been a better place to post this. I have my 1 year Dx mammogram scan next Monday. I had Dx scan of the R breast at 6 months and this one will be both breasts. I am feeling anxious on and off since I noticed this appointment is coming up. I have been taking my letrozole daily except when they didn't let me…
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Quit AI drugs - how long to wait before osteo arthritis interventions like PRP?
I was on AI drugs 15 months (Letrozole 11 months, transition 1 month, Anastrozole 3 months). I was unable to tolerate the joint pain and now take Tamoxifen 20 mg (1 month). My knee osteo arthritis advanced during last year. Symptoms were lack of range of motion, pain when moving, and loss of strength to stand (likely…
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Zometa and knee replacement surgery?
I am scheduled for my first Zometa infusion next week and I have a partial knee replacement ia month later (and my pre-op med review is two weeks before the surgery). Does anyone know anything about having bone surgery within a month of Zometa? Want to get this surgery behind me so I can get back outside!
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December 2023 Surgery? Gather here.
Join and share here to get and give support if you're planning surgery for this month. Please share your diagnosis, planned surgery and date, so we can all support you as you navigate treatment — we're all here for you!
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Delaying Xeloda
Happy new year to everyone. Ufortunately I didn't celebrate yesterday evening as my husband and kid were sick. I'm ok but I still have alittle vold. So the oncologist gibe me antibiotics and want to delay Xeloda for 10 days! I don't feel that bad enough to take antibiotics and delay capecitabina... I'm so afraid of…
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Pengiun Cold Capped and have lost 50% of my hair 20 days post first TC
Does it keep coming out? With each chemo session (my 2nd one is tomorrow) will I just lose the other 50%? It's so disheartening. I was prepared to lose some hair…. but I wasn't expecting to lose so much it early on. Right now the bald spots are at the nape of my neck so it is covered by the rest of my hair. But if I keep…
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Breast lump found
I found a pea sized mobile lump in my breast earlier this week and have a mammogram with ultrasound scheduled for the 19th. I’m high risk due to having NF1 so started mammos at 35. My first mammo at 35 they found a small lump in the same breast opposite side diagnosed as a BIRADS CAT 3 fibroadenoma with monitoring at that…
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Sister just diagnosed with TNBC
Good morning, everyone, My sister was just diagnosed with TNBC, in fact she hasn't been staged yet but the Onc feels she's probably at IIIB given the size and at least one Node involvement. She will be getting her scans this coming week then starting Chemo. She lives in Georgia and I'm in PA so I can be at her dr appts to…
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Trials or other treatment options
Hello everyone, I was diagnosed with stage 3 ILC in Feb 2023. Since then I've done chemo (AC-T), radiation, endocrine therapy and just recently started Verzenio. I want to do everything I possibly can to reduce the risk of recurrence. Is there anything I should be considering as well as the above? Thanks!!
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Single, living alone, no family or friends nearby. What's a girl to do?
Stage 1/Grade 1 IDC. I had decided DMX (no family history but why take the risk) but with all the info I've been reading, I'm wondering if lumpectomy is a better decision or should I just say goodbye to the girls, get reconstruction and go from there? My BFF is coming to town for the surgery next month and will stay for a…
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Architectural Distortion
I just received results from a screening mammogram. An archtiectural distortion was noted in the left breast with no mass observed. I am being asked to go back for a diagnostic mammogram and an ultra sound. I have to wait 2 weeks for these tests which is very anxiety producing. It was noted that the architectural…
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Has anyone had hair lost on Letrozole grow back after Letrozole was stopped?
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Radiated Skin, Wound Not Healing
Hello Ladies, I wonder if anyone can help? I have 2 wounds the size of a quarter that will not heal. It has been over a month now. I had some reconstruction to fix bad job from 15 years ago. The radiated skin would not allow the implant to work. So the implant was removed and left me with open wounds. What can be done…
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Treatment/biopsy question - liver mets
Have the answer I need - thank you!