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Medicaid Application/Renewal Survivorship Anxiety
I am a 39-year-old cancer survivor, and due to my BRCA mutation, extensive family history, and the fact that my cancer was triple negative, my oncologist has me under observation for the foreseeable future. I originally lived in Wisconsin, but moved to Texas in early 2019. I was transferred from the Wisconsin Well Woman…
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Invasive Ductal Micropapillary Carcinoma
I've recently been diagnosed with this rare form of IDC that is more aggressive. It is a mixed form containing ductal and micropapillary components. Although my tumour was (had BMX and reconstruction) only 1.4cm, it has been found in 3 of 7 lymph nodes sampled and is a Grade 3. I've yet to be staged as I need scans to…
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PALB2
I’m only 33 and I tested positive for 4 different mutations. One of them was PALB2. My mother and her mother both had and past away from breast cancer. I fell like my dr. Isn’t very concerned about it being positive, but I am. what are some steps other then annual mammograms that I can take to prevent the cancer from…
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Half and quarter doses of letrozole
I quit the letrozole because of the horrible sise effects. Exemestane was awful and lost 3/4 of my hair and had to use a walker to get around. I started the baby Tam (tamoxifen)and had to quit after 3 weeks the side effects were so bad. I then started the 1/4 tab of letrozole and the side effects were tolerable so I tried…
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Angiosarcoma
I have been diagnosed with angisarcoma. Caught very early and removed from breast. Actually double mastectomy. Stage 1. Now getting second opinion on treatment. It is very very rare. Anyone out there with it?
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Oncotype Score
I recently had a lumpectomy for Stage 2 ILC which was ER/PR+ HER2-. Tumor was 29mm. There was a micrometasticts found in 1 of 3 lymph nodes. I am 41 years old. I received my Oncotype report today and am hoping others may be able to comment or share their story with similar results and what treatment they moved forward…
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Breast Cancer and hysterectomy
Hi All, Hope all are doing good. I am diagnosed with breast cancer in left breast in Oct last year and Mastectomy was done Nov last year. In 2019 I was first diagnosed with breast cancer right side and mastectomy was done. Both time ER/PR + and Her2-. Onco Type score was very low so no chemo on both time. I was on…
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All the things that weren't breast cancer
I thought I would post for those people who are searching for stories similar to their own symptoms. It's terrifying having those things pop up on scans that might be cancer, your head goes to all the worst places. Anyway, here's me. I was diagnosed triple pos stage 2-3 BC in Dec 2020, one node was positive on scans and…
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Triple Positive IDC > No neoadjuvant chemotherapy offered??
Hi Everyone, I wanted to explain my situation and hoping anyone in the same situation could answer my questions.. SUPER stressed ! 🙄 I was diagnosed in September 2023 with Triple Positive IDC, ER+ 90%, PR+ 50%, and HER2+ (3+). So Anatomic stage 2B.. Now here is the deal… the biopsy and initial tests showed a mass of…
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Hair regrowth
My hair regrowth after chemo has been slow and the hair is very very thin and fragile. What have others found really helps increase their hair strength and growth? Are there over the counter products that work?
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Newly diagnosed - different pathology results post-surgery
Hello, this is my first cancer experience (51 YO still having regular periods) and am new to all of this. Initial biopsy diagnosis was DCIS grade 3, right side. Had a lumpectomy with flap reconstruction 8 days ago and am recovering as good as can be. Received the post-surgery pathology report and it indicates the DCIS is…
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I am so scared and don't know if I should wait
2 months ago I had my annual mammogram. I had a 3D mammogram, I have been doing 3D for more than 5 years because I have dense breasts. This year I received the note that everything was normal and “see you in a year.” I asked my doctor why if I have dense breasts they don't do an ultrasound and he told me that since I am…
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Post mastectomy pain after starting tx for mets
Hi, this is my first post. I was first diagnosed 6 years ago, had a mastectomy and took 5 tamoxifen for 5 years, finished last April. I was diagnosed with stage 4 in November, extensive mets to bones and liver. I've been taking femara and kisqali for a month now. It's been a hard adjustment. I have had significant…
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Going off of Arimidex due to side effects
So about my appt…Basically dr. doesn't want me to go off medication and wants me to try another drug. I told her I won't take the ones that have the same side effects as the one I'm on. Have reduced bone density, joint pain, don’t sleep well, hair is thinning, etc. The only other one is tamoxifen which can cause blood…
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Diagnosed with DCIS after first mammogram. 32 yrs old.
Hi all. Sorry for the long post but just want to share my story. I previously joined this forum when my mother was diagnosed with breast cancer (age 70) last October. Now…. I have my own diagnosis :( After my mother's diagnosis her hospital offered me a genetic test and I tested positive for a double chek2 mutation. I had…
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Uterine Thickening after D&C
Good Evening, I have been on tamoxifen for almost three years. I have had one D&C for thick uterine lining now a year later, I am here again waiting on biopsy results from endometrial biopsy. Have any tamoxifen users been through this? What was the outcome?? Thanks
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Tamoxifen
Has anyone stopped taking Tamoxifen after 5 years? My breast cancer results came back with a score which indicated I should stop taking the 20 mg daily pill. I would like to know what effects - good or bad you had stopping this medication. thanks
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Jumping out of my skin/Drowning
I apologize in advance for being crazy. However, I am looking for some hope/positive thoughts... I was diagnosed in 2013. Last week I went in for my annual mammogram. I get a Contrast Enhanced Mammogram. They found an enhanced mass in the vicinity of where my original cancer was. An ultrasound showed a correlated oval…
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Lymph Nodes on Ultrasound
Many of you have experienced pain under the arms or felt "swollen" lymph nodes and have had reports that were just short of complete in describing them in my opinion. The overall size of a lymph node is more often less important than their internal architecture in breast cancer. The key is the thickness of the cortex and…
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Post Mastectomy Peau d'orange - IBC Concern and Questions...
I had a mastectomy in October 2023 following a DCIS diagnosis. It is now Feb 2024 and my swelling has not subsided. Despite asking why my swelling had not gone down and being told by my plastic surgeon that there was no cause for concern, my gut told me to cancel my final reconstruction surgery and demand a look at my…
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Prolia side effects
Hi can anybody who takes prolia tell me about side effects? My Mo wants me to start in September. I'm pretty scared and don't know if I want to go through it
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Anyone else with thyroid cancer too?
When I met my oncologist for the first time I joked to his receptionist that I must have reached my expiration date. Well, I just found out that I have thyroid cancer too. I was so upset that I left his office without a copy of the biopsy report so I don't even know what type it is but I do know that he said it is not an…
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Osteopenia on Bone Density
I just started taking Femara (Letrozole) about 10 days ago and I just got the results from my DEXA bone scan. It came back as osteopenia. The radiology report recommended screening in 1 year if risk factors are present or medical treatments that cause bone loss. I am 53 and the scores weren't too low all over. - 1.2 in my…
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Xeloda response time?
I have been on Xeloda now for about 5 months. Recent PET scan shows a "partial" response to a liver lesion, but still not great. I see my onc next week. Very worried about what he will say. How long does it take for this drug to achieve maximum effect?
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Unilateral breast discharge post IDC
I was dx with right breast IDC and DCIS in January 2021. Had lumpectomy, radiation and on Letrozole. For the past two weeks I have noticed dots of orange fluid in my bra and on nightgowns from the left breast. I have never had this before. My question is would it be ok to wait until my scheduled diagnostic mammogram in 5…
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Odd Nipple Sensation
So for as long as I can remember, it seems like one breast or the other is more "noticeable" in terms of discomfort, etc. I've learned to deal with it and not let it cause too much stress, but for the past month or so, I've had an odd sensation in my left nipple- it's a cold sensation, and sometimes it almost feels wet,…
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DIEP and seroma
I had my DIEP four weeks ago and noticed last night when I pressed on the left side of my abdomen incision I got the rolling waves hallmark of a seroma. Contacted my BS today and they confirmed that's probably what it was and told me I could come to the office and attempt to drain it. I have my next appointment 02/28/23…
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Starting Chemo September 2023?
A place for the September sisters to gather and support each other! For inspiration and what to expect, see August 2023's thread.
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What does this letter mean?
Hi all, While breastfeeding my kid, I've had some weird lumps, and an indent appear. It spurred a docs visit which led to 2 ultrasounds over a year, and both showed nothing. I'm a worrier, so my doc sent me to a surgeon. The surgeon sent me for an MRI and mammogram. I did the MRI first and it came back clear. A month later…
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Orilissa?
Hi Found this drug on another thread under this topic. Wondering if anyone is currently on this drug instead of Lupron or Zoladex to reduce the amount of estrogen being produced? If you are on it, what side effects you are experiencing? Are you also taking tamoxifen as well? Thanks