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Recently diagnosed with metastatic recurrence seeking insight
Well, after ten years, I was diagnosed with bone mets in March. I had unbelievable pain in my hip and was incorrectly diagnosed with bursitis. Fast forward six months and with some persistence in requesting scans, they discovered that my femur was fractured and I had been walking on it for at least six months then they…
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Feels unmotivated and tired all the time
I have stage IV triple negative breast cancer and is now on the third type of chemo drug, Paclitaxel. My life-long dream after 35 years is finally coming true, but I don't feel like doing anything. I am not motivated and always feel tired and depressed. I try to take a walk and bath to make a change in such emotional…
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Looking for recommendations for plastic surgeons in Massachusetts
Hello. I am looking for recommendations for plastic surgeons in Massachusetts. I had my last reconstruction 8 years ago and have since lost a lot of weight (99 lbs!). My implant has become so uncomfortable, I think it’s time to address this issue. My prior PS has moved out of state so any help is appreciated. I had a…
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Triple Negative Treatment Plan
I’m finishing up NAC chemo 4 rounds of a/c, 6 rounds of Tchp, to be followed by a double mastectomy and rads. Did any of you have chemo after your surgery/rads? I know it depends on the results of the surgery pathology report but just trying to get a handle on what is to come. Could you share your experiences?
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TNBC for my Birthday! Scared and Confused.
I've been searching everywhere to find a peer to peer group, to maybe find someone who has been diagnosed with my same form of breast cancer as I figure out what treatment path to take. I was diagnosed with TNBC on September 18th. I have since been on a whirlwind ride of getting doctors to respond etc. Here are my details:…
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How long on a CDK 4/6 inhibitor (Ibrance/verzenio/Kisqali)?
I’m sure this info is buried deep in the various stage iv threads, but I’m hoping people will post their experiences and success stories here. I think the median from the initial studies was about 2 years, but obviously there is more real world experience as time passes. Thank you!
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Maryland Support Group
I am for a support group in Maryland. I am in my 40s. Thanks.
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Anyone had to pause Keytruda (pembrolizumab) due to severe side effects?
Hi Everyone, I was diagnosed with TNBC stage 2 in Feb and have undergone neoadjuvent (chemo + immunotherapy) with 11 rounds taxol weekly and 3 rounds of cisplatin and keytruda. But since week 7 I’ve developed side effects to the immunotherapy. My heart rate elevated, I got breathe less, low grade fever of up to 100.5 daily…
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Free: 2 beanie caps, human hair bangs (dark gray), seat belt pad
I finished chemo last year and I'm ready to clear things out that I don't need. Items: 1 cardini headwear from headcovers, eggplant purple, never worn 1 dark blue with light gray accent headcover from Etsy. Worn once 1 Human hair bangs from headcovers, never worn. Dark gray color 1 padded headband from headcovers 1 padded…
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Occipital neuralgia (maybe)?
I was just recently diagnosed with IDC (grade 3 breast mass, also found in lymph node biopsy grade 2). I see a surgeon in two days. Over the past 3 weeks or so, I've had an on-and-off sharp, stabbing pain up the back right side of my head. It started while I was getting over a head cold, which was a slow process… lymph…
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A Third Time?!?
It’s looking very likely that after 10 years total and 4 years after the first recurrence I have a second recurrence. My annual breast MRI found a suspicious spot in my lumpectomy scar tissue. I’ve followed up with a diagnostic mammo and US and its BI-RADS 4 with scattering of calcifications and .6cm mass. There’s a slim…
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Jan 2024 Group?
Is there a group started for Jan 2024 surgeries?
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Recurrence after mastectomy
I had breast cancer three times. Each time I was told it was unlikely I would ever get breast cancer again. I had two lumpectomies, chemo and radiation on left breast in 2003 (IDC) In December 2018 I was diagnosed with ILC in same breast. Treated with mastectomy. I stayed on AI for 6 months then quit for multiple reasons.…
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Endoscopy today
Aside from the delay (1 hour late, stewing in my anxiety), the procedure went well. I was shocked they took 4 biopsies. I'm going to the ugly place. First concern is mets from lobular to throat or stomach…or would it be worse if it were a new primary gastric cancer. UGH.
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Chemo or no Chemo? 😬
Hi Everyone, I am 30 years old and was recently diagnosed with stage 1A breast cancer and had a double mastectomy about 3 weeks ago. I just got my results back for the oncotype and the dr recommends chemo. The score came back 19 out of 100, which means there's a 6% chance of it coming back, but that percentage doubles…
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Mothers with school aged children
I know this diagnosis stinks, no matter age or what phase of life you are in. I was hoping we could start a thread for mothers of school aged children. Edited to say: and younger...forgot to include my 3 yr old!
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Metastatic Triple Negative
Hello I am new here, diagnosed Jan 2023, chemo, surgery radiation. CT Scan October 2023, 3 months after completion of chemo showing a liver met (confirmed with liver biopsy) getting PET scan tomorrow. Looking to connect with other mTNB.
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Between the Devil ( the red one) and the deep blue sea
I honestly did not know what forum to post under since I am all over the place and on so many threads and wanted all of you to know what is going on with me now. I am Stage lV, but unlike some do not consider that anything special or feel intruded upon when someone who is not Stage lV, posts on a Stage lV forum. The way I…
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How about festivity sweets?
Hi everybody I wanted to ask an opinion... I try to avoid sugar as much as possible, as well as fructose, juses, too much fruit...etc... Now I may go to a dinner, and being near Christmas, I imagine there is going to be panettone, or other festivity sweets... Should I eat some? Should I avoid them completely not to feel…
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6th biopsy since 2021
I had abnormal mammograms starting in 2020 but at first was just checked every 6 months with ultrasound and mammograms. I first had an ultrasound biopsy and then a stereotactic one for a lump in my right breast. They found a radial sclerosing lesion that required an excisional biopsy. For complicated reasons I had to…
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Introducing myself from Nairobi, Kenya
See first comment below for Rosebessie's story and welcome her to the community! This discussion was created from comments split from another thread.
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Please read and hand hold or advice…
Hi all, I’m in a terrible mess. My story is, I am 31, I was throwing a ball for my dog and thought I’d pulled my right shoulder or chest muscle, as had pain in the area. This was the end of November. The pain in my shoulder was like a achy burning pain. I’ve tried to rest it however with two young kids etc it’s pretty…
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What do you hope for, however big or small, in 2024?
As 2023 comes to a close, most are looking for something to be hopeful for in the new year. Maybe you want to enjoy more of life’s little pleasures. Do you hope to travel again or learn to do something new? Are you hoping to better accept your current situation and needs during treatment? Perhaps you are focused on taking…
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Tiny recurrence after mastectomy and radiation -- whats next?
Hi all. I had a left mastectomy 3 years ago followed by radiation due to close margins (<1mm) on the front, outer side, and back. I had very small breasts with three small IDC tumors in the left side and a scattering of DCIS, so I think close margins were unavoidable. I've been on tamoxifen for 2.5 years, starting as soon…
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Newly Diagnosed
I had a mammogram, ultrasound and biopsy and was diagnosed with invasive ductal carcinoma with SITU left month. They said it looked to be stage 2a but today I had an MRI and the report said I have multiple swollen axillary nodes and it said metastatic disease is suspected. I'm terrified for what's next and should be…
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Summer/Fall 2023 Radiation Thread
Going through or starting radiation soon? Gather here to get answers, insight, and support from others navigating radiation treatment and its side effects right along with you.
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Changing chemo drug
Hello, my mom is currently going thru chemo. She had her first chemo few weeks ago “TC”. And she ended up going to ER, admitted in the hospital because of colitis. per the oncologist, chemo caused the colitis. Now she is giving us two options either stick to taxotere but less dose (every 3 week) or change to taxol (weekly)…
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Anastrozole
I was diagnosed with stage 2 invasive ductal cell carcinoma in June 2022. I received 4 cycles of chemo, last cycle was in December 2022. I have been on Anastrozole for about a year and have recently started to experience fairly severe joint pain, primarily in my knees. I have also been experiencing carpal tunnel symptoms.…
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In Favor of Feminism: Share Your Views
I'm starting this thread for those of us who support feminism and its beliefs, so we can exchange thoughts, ideas, inspiration, frustrations, personal stories, news stories, famous people stories, memes, book & video recommendations and other matters pertaining to women's equality. Here's a general definition of feminism:…
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Not dx with stage IV but feel it's coming
In short, I had a CT scan in August that showed a partially blocked ureter, a slight swollen kidney, bladder wall thickening, slight ascites, and my ovaries were hidden because of bowels but looked suspicious. The CT was to rule out a bump I felt in my upper adoment that my MO thought was nothing. It was nothing. But like…