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Just Diagnosed- Get Prepared
My breast cancer was diagnosed in Jan 09. My husband was dx'd with lymphoma in April. The following are some things we learned on our journey. I hope they help. Rather than rewrite everything in sequence, because I missed putting the fax in the rewrite of the outline, I'll put it here. I strongly recommend you get a fax…
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Transitioning to a Different Normal After a Breast Cancer Diagnosis
Transitioning to a Different Normal After a Breast Cancer Diagnosis October 11, 2024 Grief counselor Kelly Grosklags helps Melissa Jenkins moderate a special Virtual Community Meetup on moving to a different normal after being diagnosed with breast cancer. A breast cancer diagnosis is a trauma, both physically and…
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Exercises to Relieve Side Effects
Nearly all breast cancer treatments cause side effects, including joint pain, fatigue, and anxiety. Exercise may seem like the last thing you want to do when you’re having serious side effects, but research shows that it can help ease all these side effects and more. It can also reduce the risk of recurrence, give you more…
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Breast Biopsy Marker Clip Allergy
Hello Everyone, I hope this day finds you well and I appreciate the existence of this board! It is such a nice resource for people to talk to one another. I am hoping maybe someone here might have some information on my weird health issue. It sounds outrageous, so please keep an open mind. I have a breast biopsy clip…
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Treatment options are stressful
Recently diagnosed with IDC. Early stages and lumpectomy with radiation is an option. Chemo is still up in the air. I have extremely fibrous, lumpy dense breasts and have, along with plastics and breat surgeon considered bilateral mastectomies to reduce the stress and testing every time a new lump forms. I'm here to weigh…
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MRI vs US give opposite results. which is more accurate?
39/f here. high lifetime risk @ 35.8%. Also my career is in radiology, so I understand the lingo, but just not such differing results. had breast MRI to supplement a negative annual screening mammo. results were 4mm focus of enhancement WITH washout kinetics. which is highly suggestive of malignancy. 2 weeks later i get…
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Waiting and waiting and waiting for biopsy
I apologize in advance. I'm just expressing my frustration over the delay in getting a biopsy and wondering if my experience is typical or not. This past August, I finally convinced my GP to order a screening breast MRI. I had it on September 14th. My background: I'm 67, have BI-RADS D breasts, annual screening mammograms…
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Lynparza/Olaparib Anyone?
I'm looking to share side effects or just any updates on Lynparza / Olaparib. I just started targeted therapy on Jan 12th. Aside from a little heartburn at first (helped with OTC pill), I've now started some daily Immodium, which the pharmacy sent WITH the Lynparza. Lol. I've started to just feel plain odd and very…
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CDK4/6 inhibitors
If you have taken Ibrance or Kisqali or another CDK 4/6 inhibitor, I would appreciate hearing about your experience. I recently had to stop Verzenio because of unmanageable side effects. Oncologist wants me to consider an alternative in that drug class.
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Diagnosed LCIS SECOND OPINION PATH FINDS ADH
Had a Radial Scar found on mammo then stereo biopsy in to center of radial scar was benign . Radiologist suggested excisional biopsy to remove Radial Scar. Came back with LCIS and surgeon immediately suggested prophylactic mastectomy. My gyn said that was too extreme. My radiologist ( who I work with) said just do the…
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Scared
I was diagnosed with breast cancer in July had my surgery now going in for my chemo treatments taxatere and cytoxan has anyone use these meds before it will be given every 21 days starting Oct 3rd
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Face breaking out on tamoxifen?
I've been on tamoxifen for a year now and I have all kinds of side effects from it. Weight gain 20 pounds, I'm always tired and I have no desire to do anything, hair loss/hair thinning to name some, oh yeah and those lovely hot flashes too. But also my face is breaking out with acne. I talked to my Onco and he said it is…
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CTC liquid Biopsy
Hi everyone, I was wondering if anyone knows whether CTC liquid biopsy is being used for early stage breast cancer? My sister was diagnosed with ILC , stage 2A with one positive lymph node. Doctor didn`t want to do PET scan to check and see if there are mets anywhere else in the body. Is it common to use CTC test instead…
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Difficulty breathing
I was recently diagnosed with metastatic breast cancer in my bones- de novo at 41 years old. I have been having difficulty breathing on and off for the past few months. It feels like air hunger - every day, like I just can’t get enough air. They’ve checked me for a blood clot twice now, so that’s not it. It does get worse…
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Newly Diagnosed... Scared and Sad
Hello all newly diagnosed. Ductal Carcinoma 2 cm Pos Hrz, 4 cm Neg Hrz. Cancer cells in one lymph node. I am awaiting my Onocology appt. this Thursday. I have such a hard time sleeping, not lots of support since I am a single woman and family…no. So it is very treatable which is good but the thought of getting a masectomy…
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Incision didn't heal after lumpectomy and reconstruction surgery
Hello, September 12, 2024 I had a lumpectomy with reconstruction on my right breast. Cancer was removed. Unfortunately I have to have a second surgery to close up the wound, the incision did not heal and has opened up where wound care, wound vac was not going to heal the incision. My care team assures me there is no…
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Kisqali Price disparity
I am 62 years old lady newly diagnosed with mets to bone beast cancer, I lost my insurance coverage for the remaining of this year because I reached the limit, and I will have to buy the medication out of my own pocket which is very expensive. but I was wondering, if i can buy the medication from other places since the…
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Feelings and insights about Breast Cancer Awareness Month as people with MBC
October is Breast Cancer Awareness month, which can be an overwhelming time for many women and men affected by breast cancer, especially for those with a metastatic breast cancer diagnosis. We'd really like to have everyone discuss here what you think and feel approaching this month. Thank you ❤️
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October 2024 Surgery Support thread
Please gather here to get and give support. Feel free to share your type of surgery, date, and let us know how you're preparing and how you're doing post-surgery. We're all here for you!
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Cold Capping treatment
How do I get this Cold Capping treatment at my hospital? I've done research on it & I've found that DigniCap & Paxman have the automated machines, but my hospital isn't one of them. (the closest place is over an hour away). What do I do? I'm on Medicare & it does only cover the automated ones. My 1st treatment is next…
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Tips for Getting Through AC Chemo - (Adriamycin & Cytoxan)
Adriamycin & Cytoxan, known as "AC chemo", also known as "Red Devil", is a commonly prescribed chemo regimen. Below is a primer for patients who're undergoing this treatment. Tips for Managing Side Effects on AC Chemo: - Nausea is a commonly reported side-effect with this regimen. Avoid nausea by taking anti-nausea meds…
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18 plus years now
I like to post here occasionally, this forum helped me a lot early in my dx. I am living well with stage v for over 18 years. I am triple positive and on herceptin and Aromasin. For the last nine years I have had no signs of cancer. The last time the cancer was active it was in my bones and lungs. I know stories like this…
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2 surgeries later...
Was diagnosed with DCIS in September 2023. Was told it was high chance of spreading but was DCIS so not to worry as caught it early enough just to whip it out. Thats where it all started to go downhill. Went in a week before surgery to have a magseed placed to mark the target, the radiographer seemed to be having some…
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How do you cope with the fear?
I'm just wondering how everyone copes with this diagnosis and the uncertainty of it? I am 39 years old with a 2 year old daughter and was diagnosed with stage 2 IDC 7 months ago, and I just can't seem to cope with the fear of not being around for my daughter. My oncotype score says I have a 25 percent chance of distant…
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Odd feeling rib area
Over the past week experiencing odd sensation in under right ribs/abdomen. Sporadic sensations, not really pain, lasting less than a minute or two. Ranges from upper right, below bra line to under right ribs to lower center abdomen. Sometimes feels like pulled muscle, other times like winded, or just weird feeling. Feels…
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ultrasound centers
Are there any breast imaging centers in US, which use ultrasound as primary breast cancer screen tool instead of mammogram? Thanks.
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Sports bra recommendations
Hi there, Does anyone have suggestions for a sports bra they love? I had a lumpectomy, some lymph nodes removed, and radiation last year. Overall, I'm doing really well but the surgery area is still sensitive. I bought the only "sports bra" that our local bc garment store had to offer. It's perfect for day to day (comfy…
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What do you want people to know about Breast Cancer Awareness Month?
As we enter October and Breast Cancer Awareness Month, you'll hear a lot of words used to talk about breast cancer and people who have it. Some of these words might make you feel strong and supported, while others might make you feel worried or left out. Words like "fight" and "battle" can inspire some people — they can…
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Looking to connect with other young ladies with MBC
Hello I’m new here, I’m 33 Diagnosed in 2022 stage 3 DIC, 5/19 axillary lymph node involved, ER+, HER -. I did 5months chemo, double mastectomy, radiation. I’m now on verzenio and anastrozole. I fell well so far. On my recent routine blood work my ca 27-29 goes up from 26 to 44 Unfortunately Scans show multifocal bone…
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Ixempra
After failing Kisqali/aromasin, abraxane and halaven, I’ve now begun my journey with Ixempra. I get treatments once every 3 weeks. Tuesday was my first tx - in between meltdowns (due to report of progression), I slept a lot. Until that night. I was up all night long. I’m sure it was the steroids in the premeds. Wednesday…