-
How many breast surgeons and plastic surgeons can I see under Medicare?
Started Medicare in August and diagnosed this January. I would like to meet with several breast surgeons and plastic surgeons before making a decision on my team. From what I read, Medicare allows you to get a second opinion and if the second and first opinion don't match you can seek a third consult. I am scared to make…
-
Additional ultrasound
So I live in a state that does not automatically do an additional ultrasound when you have dense breasts.. I've asked about getting an ultrasound in addition to my mammogram but they tell me they don't do it.. is there any way to approach my doctors so I can get a supplemental ultrasound?... I would actually even pay for…
-
Off Topic - Sometimes Life’s Not Fair
My oldest brother’s oldest son (my oldest nephew), passed away today. In his 50s, he was diagnosed out of the blue with stage iv melanoma in October. He’d started chemotherapy/immunotherapy but it was too late. It’s devastating news to our extended family. It all happened so fast; it’s like getting hit with a wrecking ball…
-
Questions about care and wearing of compression sleeve/gauntlet
What detergent do you use to wash the garments? How do you keep the gauntlet clean while working in the kitchen or cleaning at home as well as being out and about? Do you remove the gauntlet while preparing meals etc. of is there another item to wear over them? I tried a large rubber glove but to get a size to easily fit…
-
NEED YOUR KIND HELP WITH PATHOLOGY REPORT >> SUSPICIOUS FOR MARGIN INVOLVEMENT ??
Hello Everyone, I was reading my pathology report (after lumpectomy) once again, and I am starting to wonder if I should ask my BS to perform a re-excision. The margins from the IDC component look pretty good. However, a suspicious margin involvement from the DCIS part of it is having me worried. My BS kind of dismissed my…
-
New mom and super worried about my recent results
Hi everyone, just found this support forum and been reading a lot. Super grateful to find y'all , I'm in my head a lot right now and still waiting for the biopsy scheduling phone call and looking for some support. My 2nd spot mamogram has referred me to biopsy, here are my results ---- In the left upper outer quadrant are…
-
1 year Scan after almost year on letrozole
There may have been a better place to post this. I have my 1 year Dx mammogram scan next Monday. I had Dx scan of the R breast at 6 months and this one will be both breasts. I am feeling anxious on and off since I noticed this appointment is coming up. I have been taking my letrozole daily except when they didn't let me…
-
Quit AI drugs - how long to wait before osteo arthritis interventions like PRP?
I was on AI drugs 15 months (Letrozole 11 months, transition 1 month, Anastrozole 3 months). I was unable to tolerate the joint pain and now take Tamoxifen 20 mg (1 month). My knee osteo arthritis advanced during last year. Symptoms were lack of range of motion, pain when moving, and loss of strength to stand (likely…
-
Zometa and knee replacement surgery?
I am scheduled for my first Zometa infusion next week and I have a partial knee replacement ia month later (and my pre-op med review is two weeks before the surgery). Does anyone know anything about having bone surgery within a month of Zometa? Want to get this surgery behind me so I can get back outside!
-
December 2023 Surgery? Gather here.
Join and share here to get and give support if you're planning surgery for this month. Please share your diagnosis, planned surgery and date, so we can all support you as you navigate treatment — we're all here for you!
-
Delaying Xeloda
Happy new year to everyone. Ufortunately I didn't celebrate yesterday evening as my husband and kid were sick. I'm ok but I still have alittle vold. So the oncologist gibe me antibiotics and want to delay Xeloda for 10 days! I don't feel that bad enough to take antibiotics and delay capecitabina... I'm so afraid of…
-
Pengiun Cold Capped and have lost 50% of my hair 20 days post first TC
Does it keep coming out? With each chemo session (my 2nd one is tomorrow) will I just lose the other 50%? It's so disheartening. I was prepared to lose some hair…. but I wasn't expecting to lose so much it early on. Right now the bald spots are at the nape of my neck so it is covered by the rest of my hair. But if I keep…
-
Breast lump found
I found a pea sized mobile lump in my breast earlier this week and have a mammogram with ultrasound scheduled for the 19th. I’m high risk due to having NF1 so started mammos at 35. My first mammo at 35 they found a small lump in the same breast opposite side diagnosed as a BIRADS CAT 3 fibroadenoma with monitoring at that…
-
Sister just diagnosed with TNBC
Good morning, everyone, My sister was just diagnosed with TNBC, in fact she hasn't been staged yet but the Onc feels she's probably at IIIB given the size and at least one Node involvement. She will be getting her scans this coming week then starting Chemo. She lives in Georgia and I'm in PA so I can be at her dr appts to…
-
Trials or other treatment options
Hello everyone, I was diagnosed with stage 3 ILC in Feb 2023. Since then I've done chemo (AC-T), radiation, endocrine therapy and just recently started Verzenio. I want to do everything I possibly can to reduce the risk of recurrence. Is there anything I should be considering as well as the above? Thanks!!
-
Single, living alone, no family or friends nearby. What's a girl to do?
Stage 1/Grade 1 IDC. I had decided DMX (no family history but why take the risk) but with all the info I've been reading, I'm wondering if lumpectomy is a better decision or should I just say goodbye to the girls, get reconstruction and go from there? My BFF is coming to town for the surgery next month and will stay for a…
-
Architectural Distortion
I just received results from a screening mammogram. An archtiectural distortion was noted in the left breast with no mass observed. I am being asked to go back for a diagnostic mammogram and an ultra sound. I have to wait 2 weeks for these tests which is very anxiety producing. It was noted that the architectural…
-
Has anyone had hair lost on Letrozole grow back after Letrozole was stopped?
-
Radiated Skin, Wound Not Healing
Hello Ladies, I wonder if anyone can help? I have 2 wounds the size of a quarter that will not heal. It has been over a month now. I had some reconstruction to fix bad job from 15 years ago. The radiated skin would not allow the implant to work. So the implant was removed and left me with open wounds. What can be done…
-
Treatment/biopsy question - liver mets
Have the answer I need - thank you!
-
Recently diagnosed with metastatic recurrence seeking insight
Well, after ten years, I was diagnosed with bone mets in March. I had unbelievable pain in my hip and was incorrectly diagnosed with bursitis. Fast forward six months and with some persistence in requesting scans, they discovered that my femur was fractured and I had been walking on it for at least six months then they…
-
Feels unmotivated and tired all the time
I have stage IV triple negative breast cancer and is now on the third type of chemo drug, Paclitaxel. My life-long dream after 35 years is finally coming true, but I don't feel like doing anything. I am not motivated and always feel tired and depressed. I try to take a walk and bath to make a change in such emotional…
-
Looking for recommendations for plastic surgeons in Massachusetts
Hello. I am looking for recommendations for plastic surgeons in Massachusetts. I had my last reconstruction 8 years ago and have since lost a lot of weight (99 lbs!). My implant has become so uncomfortable, I think it’s time to address this issue. My prior PS has moved out of state so any help is appreciated. I had a…
-
Triple Negative Treatment Plan
I’m finishing up NAC chemo 4 rounds of a/c, 6 rounds of Tchp, to be followed by a double mastectomy and rads. Did any of you have chemo after your surgery/rads? I know it depends on the results of the surgery pathology report but just trying to get a handle on what is to come. Could you share your experiences?
-
TNBC for my Birthday! Scared and Confused.
I've been searching everywhere to find a peer to peer group, to maybe find someone who has been diagnosed with my same form of breast cancer as I figure out what treatment path to take. I was diagnosed with TNBC on September 18th. I have since been on a whirlwind ride of getting doctors to respond etc. Here are my details:…
-
How long on a CDK 4/6 inhibitor (Ibrance/verzenio/Kisqali)?
I’m sure this info is buried deep in the various stage iv threads, but I’m hoping people will post their experiences and success stories here. I think the median from the initial studies was about 2 years, but obviously there is more real world experience as time passes. Thank you!
-
Maryland Support Group
I am for a support group in Maryland. I am in my 40s. Thanks.
-
Anyone had to pause Keytruda (pembrolizumab) due to severe side effects?
Hi Everyone, I was diagnosed with TNBC stage 2 in Feb and have undergone neoadjuvent (chemo + immunotherapy) with 11 rounds taxol weekly and 3 rounds of cisplatin and keytruda. But since week 7 I’ve developed side effects to the immunotherapy. My heart rate elevated, I got breathe less, low grade fever of up to 100.5 daily…
-
Free: 2 beanie caps, human hair bangs (dark gray), seat belt pad
I finished chemo last year and I'm ready to clear things out that I don't need. Items: 1 cardini headwear from headcovers, eggplant purple, never worn 1 dark blue with light gray accent headcover from Etsy. Worn once 1 Human hair bangs from headcovers, never worn. Dark gray color 1 padded headband from headcovers 1 padded…
-
Occipital neuralgia (maybe)?
I was just recently diagnosed with IDC (grade 3 breast mass, also found in lymph node biopsy grade 2). I see a surgeon in two days. Over the past 3 weeks or so, I've had an on-and-off sharp, stabbing pain up the back right side of my head. It started while I was getting over a head cold, which was a slow process… lymph…