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Diagnosed With Breast Cancer While Pregnant
Aug 8, 2025 Rafaela Dreisin shares her journey through diagnosis, treatment, and giving birth. At the start of her second trimester, Rafaela Dreisin was diagnosed with breast cancer at the age of 36. Listen to the episode to hear Rafaela discuss: how she and her doctors decided on a treatment plan how she coped with…
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Health Insurance and Disability for People Living With Metastatic Breast Cancer
Jul 25, 2025 Triage Cancer CEO Joanna Doran answers questions on how people with metastatic disease can best navigate health insurance and disability issues. This podcast is the audio from a special Virtual Support Group meetup featuring guest moderator Joanna Doran. Listen to the podcast to hear Joanna and Community…
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Managing the Emotions of Metastatic Breast Cancer When You’re Young
Jul 11, 2025 Therapist Kelly Grosklags helps Melissa Jenkins moderate a special Virtual Community Meetup on managing the emotions you feel after being diagnosed with metastatic breast cancer at a young age. This podcast is the audio from a special Virtual Support Group featuring guest moderator Kelly Grosklags. Listen to…
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Breast Cancer Doesn’t Care Whom You Love
Jun 27, 2025 Jaci Field, a member of the LGBTQ+ community, shares her story. Four years after giving birth to her son, Jaci Field was diagnosed with breast cancer at age 39. Listen to the episode to hear Jaci discuss: her breast cancer experience and her advocacy work the discrimination she’s faced, both because of her…
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Radiation
I am sure this has been gone over, but I am really scared about radiation, I have heard horrible stories of 2 years later having a half a breast, has anyone else experienced this feeling or anyone can enlighten me and how do you get over it? My surgeon did a amazing job of filling in the holes of where both cancers sat. my…
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Calling all Massachusetts Sisters
I thought it might be nice to start a thread for those of us in Massachusetts. Sometimes having someone close to home to chat with would be nice and maybe eventually we could meet for coffee or do something fun to take our minds off of our hardships. A bit about me. I am 41 years old, my stats are below. I am almost 8…
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MRI Waiting
I’m 28, almost 29. I’ve had breast pain for about 5 months now. It’s spread to surrounding areas like my back, rib, shoulder, and arm. A lump showed up around 3 months ago, another one followed a couple weeks later. I had an ultrasound (they didn’t want to do a mammogram due to my age) and it showed dense breast tissue but…
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Subcentimeter focal asymmetry
Hi: Mammogram showed Subcentimeter focal asymmetry 6cm behind nipple. Had a nipple infection and showed dermatologist. She did not seem concerned. Yellow or white discharge. It cleared. I was sleeping in bra every night and it started to cause problems, so I stopped. I just noticed like a whitehead on my nipple. I was at…
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Tips for getting through chemotherapy
Tips/Products For Getting Through Chemo Antiemetics -I'm always shocked when I learn that not all oncology offices follow ASCO guidelines when it comes to antiemetics. AC and similar chemos are the most emetogenic (causing you know what!) out there and need big guns. According to the guidelines, everyone should be getting…
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Omental flap reconstruction/ other autologous reconstruction
Hi there, I see only 2 prior posts from 2022 and 2023 regarding Omental flap reconstruction with very limited responses. I am hoping someone here may have had this autologous reconstruction done and can share any feedback. My surgeon at Stanford is one of only a small handful doing this procedure in the US. She recommends…
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Nervous Nelly. Breast cancer spread to lymph nodes??
Hi! I was diagnosed with low grade, multifocal IDC and finished treatment about a year ago. I was lucky and didn't need chemo (oncotype # 18), so did lumpectomy and radiation and have been taking tamoxifen. I noticed a lymph node on my neck had been swollen for a few months, so I went back to my doctor and was sent for a…
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Fingerprint changes?
I'm wondering if anyone else out there has had problems with their fingerprints while on chemo. I have to use my fingerprint with two applications at work, and in the past 2 weeks or so have had trouble logging in. We tried re-enrolling different fingers and the scanner said my fingerprint is now "poor quality" and it…
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Sensation of movement of implant
I am almost 4 weeks post bilateral mastectomy and immediate reconstruction, skin sparing. In the last 2 weeks I can feel slight flickers when I move my right arm overhead, lean forward, lie side to side and now I feel the weird sensation of movement of the right implant, which is awkward and annoying. I notice it when I’m…
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Stressful event years before diagnosed?
Did you have a super stressful event sometime in the seven years or so before you got diagnosed? How many years before was it? I'm just wondering if there is some connection with this. A researcher told me he believes it starts from stress about seven years before.
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Best Gentle Face Wash for Sensitive and Dry Skin in 2025 | Expert Review
I researched about the best gentle face wash for sensitive and dry skin, especially because my skin has become much more delicate lately during/after breast cancer treatment. I want something that truly cleans without irritation or making dryness worse. Over the past few days, I’ve been reading reviews on the New York…
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GLP-1 meds after TNBC – safe?
Hi everyone, I finished chemo for triple-negative breast cancer in May 2025. I’m struggling with extra weight (about 25 kg / 55 lbs) and considering GLP-1 medications (like Ozempic or Saxenda) for weight loss. I’ve read mixed things about cancer risk and would love to hear if any TNBC survivors here have been prescribed a…
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Scared about this diagnosis
Scared about this diagnosis and I have surgery August 1. How to remain positive about. All of this
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Verzenio
H was your experience taking Verzenio???
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Lung nodules and scarring
I am 6 years out from treatment and have been NED. my RO gets a chest ct yearly (I understand this is not standard of care). He goes over the scan with me every year but it goes to our radiology group for the official read. Year 5 he notices what he says is scarring in my right lower lung, in comparison to the previous…
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Has anyone here developed Pre-Diabetes during Hormone Therapy
I see BCO has an article about this https://www.breastcancer.org/research-news/link-between-hormonal-tx-and-diabetes My story so far - after always having fasting blood sugar in the 80s or even the 70s, my last two readings at the oncologists office, three weeks apart, were over 100. The first time, I had a smoothie not…
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Were you diagnosed young (under 45) with breast cancer? We'd love to hear from you!
Were you diagnosed with breast cancer at age 45 or younger? Or are you caring for someone who was? Navigating this experience can be lonely — it can sometimes feel like no one gets it. What do you wish others knew about having breast cancer at a young age? What do you wish you had known? Your answers may help others. Click…
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hysterectomy and oophorectomy
I am Having a hysterectomy and oophorectomy next week via robot but my fibroids have made it too big to come out my vagina. I have to do this because the Lupron was not working to suppress my ovaries. (I think they are just bitter I've never used them) What kinds of healing expectations should I have? I'm a little unclear…
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Wigs and Warm Weather: Five Tips for Staying Cool and Comfortable
Share your thoughts and tips below!
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How has a nurse helped you through breast cancer?
At Breastcancer.org, we often hear how much nurses mean to people going through breast cancer. It’s the nurse who often explains the diagnosis and treatments to you in simple language, helps manage your side effects, offers you reassurance, and connects you with the care you need. Nurses are also a source of emotional…
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Do I need a 2nd opinion?
I am very newly diagnosed with IDC, 6mm, Er/Pr very low @2% HER2 has been sent for FISH, grade 2 I've seen an oncologist who I really like and listened to my anxieties about the fact I was two year over due for my mammogram and my biggest concern was how long this has been growing in my body. She was very reassuring that…
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Treatment for Triple negative breast cancer but not technically Triple Negative
My daughter was diagnosed with breast cancer in 2023. Had double mastectomy and 4 rounds of chemo. Now, 2 years later had cancerous node removed in lymph nodes. A PET scan was done and they found a 3.5cm oblong tumor in chest wall. She does not meet all the criteria for triple negative but Oncologist want to treat it like…
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Afinitor - anyone have input?
Hello out there, I am switching from Verzenio after bone mets have spread to possibly multiple organs. Still waiting for PET and results. Tumor markers climbing along with liver enzymes. One of the meds I am being told is next for me is Afinitor (everolimus). Info I have been given is not sounding like it’s going to be…
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Alisertib clinical trial at Mayo
I am starting a clinical trial next week for Alisertib (plus Fluvestrant) and I would love to hear people's experience with Alisertib. I was diagnosed Stage 4 in May and this will be my second line of treatment (Kisqali didn't work for me.) I have mets in my liver, lungs, bones and lymph nodes.…
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Double Mastectomy
First post. I am scheduled for a double mastectomy I have choose not to have reconstuction . I am going though such a deep depression. The thought of loosing my breasts is so devestating to me . I would like to talk to others that have gone though this and help me to know what to expect and how you managed to get though…
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My Pet Scan and 48th cycle of Palbociclib +Fulverstant
I want to mention that my Pet Scan today shows NEAD and am on my 48th Cycle of Pablo+Fulvestrant.. also my 21st year of initial diagnosis and 4th year if mets. So my message is hang in there, medical science has brought a lot of hope .