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Mucinous Carcinoma of the breast
On April 21st I had a core biopsy and today I was told that I have mucinous carcinoma of the breast. When I investigated on this website, the information given was that this is a rare type of cancer, about 2-3% of all breast cancers and usually occurs in post-menopausal women over the age of 60. I am neither. I am 51 years…
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Remember When!!
Friends and I recently started talking about things in the "good old days." I thought it might be fun to try here and see what people of all ages remember from different eras of their lives! Just add to the thread with a brief post and we'll all enjoy remembering when!!
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Having difficulty feeling 100% certain that I want a prophylactic bilateral mastectomy
Hello and thank you for the existence of this resource I'm a 40 year old, triple positive, stage 2. I am awaiting my last chemo round on the TCH regimen. I decided to first start with a lumpectomy, as I was hoping at the beginning of my cancer journey that I would not need chemo. I also chose surgery first because it was…
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Lymph Node Positive Survivors
Hey all, Just wondering how many lymph node positive survivors there are out there and how many years out? Also have many of you experienced recurrence during that time? Or if you haven't what have you changed in terms of lifestyle, diet, exercise etc..
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Verzenio
Hello - My cancer recurrence (since 2010-2011 lumpectomy/chemo/radiation/tamoxifen/arimidex 6 yrs) is now MBC+bone metastisis diagnosed the end of January 2025. I have been on 100 mg Verzenio pills since February 2025 (along with monthly Faslodex injections and 3-month Zometa infusions). I keep hearing from the oncologist…
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Oncotype vs mammaprint
I have: 2.2cm idc Er 40%, pr >90% (surgical pathology) single gene score of 9.5 er and 8.9 pr on the Oncotype DX (strong positive) Her 2 +2 ihc, fish negative, oncotype her 2 gene score 9.1 (negative) Grade 1 (mitotic rate 1) Ki67 5-7% Node negative, snlb took out 6 No lvi (mastectomy) Dcis present Oncotype 11 with 3%…
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I'm looking for advice re: my lumpectomy on Monday next week
I'll try to keep the background as short as possible—unfortunately, it is a bit of a twisted tale. I had a screening breast MRI in Sept. last year. It came back BI-RADS 5 (greater than 95% likely cancer). The targeted US showed a rather benign-looking nodule that was presumed to be the one seen on the MRI. An US-guided…
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Saline implants
Hi, Anyone here who has or had saline implants? I am having my surgery next week monday Aug 18,2025 and will be doing reconstruction after the bilateral mastectomy. Any info would be appreciated. my bra size is A
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August 2025 Surgery support thread
Add to the discussion below to share your scheduled surgery date, type of surgery, what you're doing to prepare, ask any questions you have about what to expect, share your experience after surgery, how you're recovering, tips to help others recover, products and other practical advice for those coming after you. We're all…
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Starting Chemo June 2025? Let's support each other here!
Join together to share experiences. Discuss your chemo regimen, how to prep, what to expect, how you're feeling, side effects you're having and tips to alleviate them. We're all here to support you - you've got this!
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Starting Radiation? Get educated about Mepitel film!
Mepitel is the brand name for a thin film that you can apply over the skin before radiation starts. It is easy to order online and to apply yourself, and it is effective at reducing skin damage from the radiation. It feels like saran wrap (cling film). It stays on throughout radiation, but probably will need to be…
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Is it my fault?
Hey I am very newly diagnosed with triple negative IDC I think it's called and I just keep thinking what have I don't wrong? Is it my fault? I don't live the most healthy of life styles but I hardly drink don't do drugs don't smoke drink way to much fizzy drinks and eat to much but could I have done more. I'm only 37 and I…
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I was just now dx with skin mets
Hi, I've not had good news since forever—since suspected recurrence in August 2023 anyway, looks like I won't be getting any either. I had some red raised places — not bumps, not nodules, that would get red, then go away, etc. that appeared Nov. 23, the same month I was dx with St. IV. PET scan didn't show this. CTs-four…
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Brooklyn, N.Y support groups
I live in Brooklyn, N.Y. and would like to know if there are any in person groups here.
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Starting Radiation in August 2025 support thread
Share experiences, ask questions, get encouragement, and support others who are going through radiation therapy along with you. Please share your diagnosis, any previous treatment you've had, and your scheduled start date along with your radiation schedule. We're all here for you!
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Tamoxifen side effects
Hello! My name is Betsy and I was diagnosed with BC last February. I had a lumpectomy in April and series of radiations during the month of May and June. My oncologist put me on Tamoxifen which I have been taking for about three weeks now. I have a headache which I can mostly tolerate, but the dizziness is on and off all…
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Oncotype test results.
Hi, I’m 5 weeks post diep flap surgery for lobular BC and waiting for oncotype test result, which I have just found out will be over the phone. Has anyone had Oncotype result over the phone which resulted in chemo? I’m stressing out about difference between in person and phone consultations and if there is any difference…
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Reconstruction opt-implants prior to diagnosis,2019 lumpectomy and radiation, new second cancer
I haven't been able to find a case like mine so hoping I find someone here. In 2018 I had breast augmentation. Then in 2019 I had HER2 positive cancer, chemo, lumpectomy and radiation. Had pretty bad capsular contracture so underwent 3 revision surgeries over 3 years and was pretty happy with the results. Fast forward to…
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Side effect worries
I was diagnosed with stage 3 estrogen positive breast cancer in 2021. Had chemo, then mastectomy, then radiotherapy. Now 3 and half years of taking Anastrozole Hormone therapy and I am beginning to struggle with stiff aching back and hip pain. I was told to take Calci-d and admittedly have not really took it as again side…
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DDX41 gene mutation
anyone else have a DDX41 gene mutation and considering chemotherapy? I was just told I have this mutation and it can increase my risk of developing leukemia. I am concerned about starting chemo as this may increase risk of leukemia later on. This seems to be a “newer” discovery with genetic testing so wondering if anyone…
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For those w/ multiple lumpectomies
Hello, I was wondering how many of us have had multiple lumpectomies & re-excisions and what the outcomes were for each of us. Here's my story: *6/20/25: 1st lumpectomy for stage 2A, hormone +, HER2- IDC on left breast. Margins came back + for IDC & DCIS. *7/7/25: 2nd lumpectomy w/ re-excision. Margins + for DCIS, *9/8:…
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Really scared
hello I have to start AC chemo in a few weeks. I’m so scared by the reputation it has. I’m terrified of nausea as I’m emetephobic. I’m just finishing my taxol , carboplatinum 12 weeks. I’m hoping there are some positive stories .
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Back to BC.org after a Recurrence and now Stage IV
Hello ladies and gentlemen. I'll keep it brief for now however, i'm hoping I can navigate this site as well as I did first go round. The website has changed A LOT and I don't know what I'm doing quite yet. I'm going to see if they archived my old stuff. It was a LOT. I was here in 2009 or 10 as Stage IIIc. Was NED until…
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Anyone stop chemo due to ongoing and progressing side effects?
Hi, I finished 8 out of 12 Taxol and the first 4 A/C. At first the treatments were not awful, I have to say. Actually, I felt A/C was easier than the Taxol. But things have been getting progressively worse. GI, severe bone/muscle/joint pain, neuropathy in hands and feet, my legs felt like I could hardly stand sometimes and…
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Illinois ladies facing bc
I'm very curious about all the Illinois ladies who are making this breast cancer journey or who have finished it. Where are you located? What's your diagnosis? Where are you in your treatment plan? How's it going for you? I thought we might be surprised to find somebody right in our own back yard that could use some…
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How Many are doing 10 years on Aromatase Inhibitors
When I started on Femara, I was told I would need to take it for 5 years. Now that I have finally reached the 5 years (and having experienced many side affects from the drug along the way), many oncologists are now saying that it is best to extend treatment up to 10 years. How many out there, are being told to continue…
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Zoladex vs Ovary Removal
Hi, I am a 45 year old breast cancer survivor. I completed treatment for stage 3, Estrogen and Progesterone positive HER2 Negative last year. Since then, I have been on Zoladex (Gosserelin) and Letrozole and I ACHE. I've been told if I have my ovaries out, I can go off Zoladex and have options other than Letrozole; has…
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What’s one thing your body is teaching you this summer?
As summer settles in and the days grow longer (at least here in the Northern Hemisphere), July offers a gentle reminder: it’s okay to slow down. For many living with breast cancer, this season can bring moments of lightness — and moments that ask for extra care. So, weigh in below with what your body might be telling you…
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Can't Decide Between Lumpectomy or BM(x)
Age: 51 IDC stage 1 (possible2) right breast Estrogen Positive Tomorrow, I see my breast surgeon again, and I am supposed to share with him if I want to go for a Lumpectomy or mastectomy. If I did a mastectomy, I would do a double mastectomy. I have been thinking and thinking. In one way, it would be easier to do a…
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Positive LVI and Benefit vs Toxicity of Adjunct Treatment
Hi, I am new to this forum. I was Dx with DCIS 8 cm in March 2023 but elected to "wait and watch". I felt a painful tumor in February 2025 and after testing and resultant unilateral mastectomy in May 2025, Dx with Extensive Invasion of LVI in two or more blocks. My stats are Grade 3, ER+/PR-/HER2+ and Ki-67 = 60. The…