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Enhertu hair loss
I was told I’d keep my hair but it started dropping out fast. Looking back it may have helped keep more hair had I not brushed as aggressively, started modest iron supplements before iron & other numbers dropped requiring one transfusion. And switched hair products sooner. I think it would have prevented or slowed hair…
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Xeloda (Capecitabine)
Has anyone with Triple Negative Breast Cancer taken Xeloda that went through chemotherapy and then had a double mastectomy and lymph nodes removed? I am going to have radiation but, my oncologist wants me to take Xeloda but, I want to hear some feed back.
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Member Recommended Books and Readings for Living with MBC!
Metastatic Breast Cancer / Treatment The Complete Guide to Breast Cancer — Trisha Greenhalgh & Liz O’Riordan Not the Breast Year of My Life — Frankie Leigh Stand By Me: A Guide to Navigating Breast Cancer as a Couple — Claudia Gilmore Living With Illness / Mental Health Radical Acceptance — Tara Brach Full Catastrophe…
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Diep flap vs Hybrid
I’m trying to make my decision for my next surgery after having my BMX a couple of months ago. I need some advice! I’m trying to decide between Diep flap vs hybrid. I’ve spoken to 2 women that had the Diep done many years ago and are very unhappy with their results. Hoping to get some more feedback about Diep and the…
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IDC - Just diagnosed from Core Biopsy - Questions for Surgeon?
Hi from Canada! This is my first post! Just diagnosed with IDC, (Grade 2 features) ER Positive, PR Positive, Negative for HER 2 Protein Overexpression by IHC (Score 1+) To be honest not sure what this all means. I have appointment with surgeon Dec. 5th. Would love to have some suggestions for what Questions I should be…
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Hello
I’ve been reading for a while and decided to join earlier in the week. I live in New Orleans , Louisiana. I, fortunately, already had a breast doctor to whom I was referred by a NP friend of mine because I have fibrocystic and dense breast. I’ve been a patient of his for almost seven years. In the beginning, I would get a…
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AI twin, mega cognitive therapy, how to get enough sleep and hhoe to be happy.
I have had bc for 8 years and I’ve been fighting depression, I think it’s because my oncologist was not supportive. She sent me to psy and I tried a lot of treatments plus medication but I don’t feel good. I have been having stomach pain and am on the fodmaps diet. Today very little pain. I have depression mainly from the…
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Has Anyone Tried These Immunotherapy Options for Stage IV Breast Cancer?
Hi everyone, I’m Ralph , and I hope it’s okay that I jump in here. I’ve been reading the forum quietly for a while, but this is my first time actually posting. I was diagnosed with stage IV breast cancer last year it spread to a couple of bones, so things have been a bit up and down ever since. Right now I’m on hormonal…
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Planning surgery for November 2025? Join the waiting room for support.
Are you scheduled to have a lumpectomy or mastectomy in the month of November? Join us here where we support each other as we prepare for our surgeries, ask questions about what to expect, share reservations and fears, and support one another through preparation and recovery. And, we encourage others who've "been there" to…
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November had lumpectomy just had first chemo
I am a retired registered nurse. I have two younger sisters who have had breast cancer, I am just realizing my journey.
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Scalp during/after hair loss
I’m 17 days post first infusion. My scalp started being very tender about day 13. Hair started falling in earnest on day 14. I’m not bald yet, but it’s coming out in clumps. I’ve read many posts about hair loss, but I’m wondering more specifically about the scalp pain. Does the pain stop when the hair is all gone? If not,…
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What were your symptoms of IBC?
And please forgive me if this is the wrong forum :) I'm just curious as to what your story was. Thanks
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Up for donation: Freezer Packs - Hands and Feet
Hi, We went the cold cap route for our daughter when she was going through chemo for IBC. We purchased a number of freezer packs for her hands and feet. She was able to retain her hair and didn't suffer from neuropathy. So it does work! I would love to donate the freezer packs to someone who is in need. Please reach out. JW
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Madame X
I am starting Madame X next week and just wanted to reach out to the experts about dietary restrictions. It seems that there are a lot of foods that contain folate so I was wondering if anyone had recommendations of things to definitely avoid, my main concern is Hand and Foot Syndrome as I am an avid Pickleball player and…
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Anyone else have spinal compression fractures?
Mine is apparently from osteoporosis, probably chemo / femara induced. My T scores are not awful (worst is -2.5 in hips; others in -2 range). I’ve been on Fosomax for a few years. But now that I’ve found out about this compression fracture, endocrinologist is recommending Evenity or Tymlos. Both have potential scary side…
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Capecitabine
Hello , My name is Jill and I will be starting Xeloda next week. I was on Ibrance/Letrozole for 16 months and it has stopped working. I am curious about the new meds and wanted to talk to you ladies about a few things. I have not met with the Onc Pharmacy yet to discuss the drug and ask various questions so I figured I…
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Mepitel Thoughts and Tips
I've learned so much on these boards that I wanted to give back a little and share some things I learned for anyone thinking about trying Mepitel fIlm for radiation. I only ended up using the film for half of my radiation treatment because I was allergic to it. But at my one month follow-up appointment, my RO was surprised…
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CA27-29 elevation
I am 11 year survivor and just has an elevation to 42 from 30 on the CA 27-29. I have to wait 4 weeks for new bloodwork. I am so nervous. Anyone have a similar experience.
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Has someone received EVENITY injection for osteoporosis?
Good Envening ! Has someone received EVENITY injection for osteoporosis treatment? My wife has taken Fosamax for 5 years and received Reclast infusion for 2 years (one dose per year). Now, the Doctor suggested my wife to receive EVENITY injection for another year (one injection per month). Since EVENITY is relative new…
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Reconstruction of a lumpectomy from late 2005 possible?
Hi. I was originally on this great platform as jcp back in like early 2006. I had to changey name bc it won't take my old user name of "jcp" but still recognized my old email so switched that out. Basically, my rt lumpectomy from late 2005 in past four years ( age) is so much smaller than my left breast that was always…
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DATROWAY advice
Hello all-I’m stage IV MBC since 2017. Was NEAD for nearly 7 years and now have been through five lines of treatment that have failed. Have been recommended to DATROWAY and am wondering if anyone has experience with this relatively new drug. The side effects are pretty terrifying and I can’t find any real world information…
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BRCA1+: what's in your surveillance/ survivorship plan?
Now that active treatment is over, I imagine my next few appointments we'll be working on the surveillance plan. It would be so helpful to hear what others are doing. I've had TNBC twice before age 50, treated successfully (I hope) both times, and am BRCA1+. Before the second diagnosis I was getting a mammogram +…
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Finishing AC and starting T
I just finished my last infusion of AC and in two weeks will start Taxol. My doctor originally told me 1 infusion of Taxol per week for 12 weeks but during our last appointment he recommended I do 8 weeks of Taxol with an infusion every 2 weeks so a more dose-dense treatment. He recommended that because I tolerated the AC…
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ILC recurrence grade 2 pls need advice
my mom had breast cancer and she done with her long treatment almost ten years ago. Her cancer was advanced stage 3B. Now she started to have pain under her shoulder and the doctor did biopsy and it’s confirmed she has recurrence. My mom is 73 years old and can someone guide me what kind of treatment they might do? Or if…
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who' s had lumpectomy plus bilateral breast reduction? let's talk!
Hi friends, I'm 72 ad live o my ow in Portland OR. I was diagnosed in August with what turned out to be stage 1 grade 1 tubular tumor E/P+ER- approx 1.4 mm at 5 o'clock position in my right breast. I was offered bilateral breast reduction (mammoplasty) as a form of reconstruction and jumped on that like a duck on a…
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What surprised you most about palliative care? What's your experience?
Palliative care is often misunderstood as “end-of-life care,” but in truth, it’s about living as well as possible during and after cancer treatment, for people experiencing all stages of breast cancer. We really want to hear your questions and experiences!
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Old implants, new cancer diagnosis. Want lumpectomy with implant removal at same time.
I just received a new cancer diagnosis and want to proceed with a lumpectomy. I have 30 yo implants I want to have removed at the same time. I'm afraid of looking disfigured afterward.
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Testosterone Pellets. Anyone on them? Desperate for some answers!
I am 14yrs post ER/PR stage one. My doc says I'm low on testosterone, and that is the reason for all my symptoms in menopause. He suggested the pellet and feels it is safe but I am so scared to try it! No Dr I've reached out to has said either way, just "no data to help us'. Hoping some people hear have had good guidance,…
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Biopsy not concordant with breast images
I an 37 years old, went to m GYN due to pain on the left breast. She sent me for a mammogram and u/s. Mammogram repeated for more images. Results BIRAD4 And radiologist said Highly suspicious for malignancy. Stereotactic biopsy was done results Benign fribosis and benign fibroadipose tissues. My GYN wasn’t comfortable and…
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Suffocating in the waiting...
For the last 6 months I have been experiencing a strange shooting pain sensation on my left side, right between my armpit and my breast and it would radiate through my breast. I ended up going to the ER because I thought that I was having a heart attack. I am almost 37 years old. The ER told me I had inflammation in my…