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Triple negative 4mm - No chemio?
please help I have a TNBC, 4mm. My doc said no chemio but I am so so afraid. Please, could smb share an Experience? Please help, I need help
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Breast implants
I just turned 43 and was diagnosed with invasive ductal carcinoma grade 3 & high grade ductal carcinoma in situ. Im planning on a bilateral masectomy. Im meeting with my surgeon on Tuesday. Im having a hard time deciding on if I want to get implants or not. My question is how did you decide on reconstructive surgery or…
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Exemestane (Aromasin)
My MO recommended I leave letrozole because of SE and start exemestane. Can you please share your experience with this medication? Tips? Good news: Exemestane, a synthetic steroid drug widely prescribed to fight breast cancers that thrive on estrogens, not only inhibits the production of the hormone, but also appears to…
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Tamoxifen vs. Ovarian Suppression & AI
Hello! I am new here, newly diagnosed and trying to navigate all this. I was diagnosed with ILC in June 2024 and opted for a bilateral mastectomy, right breast was healthy. Currently with tissue expanders, waiting for implants in a couple months. Stage 1A, tumor was 1.7cm (grade 2), high ER+/high PR+, HER2-, Ki67 15%.…
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Should I push for MRI?
Hi all, A few years ago I posted here. I have had one breast that has breast tissue which feels thicker/firmer. Basically if you look up descriptions of ILC it's exactly what it sounds like in my breast. The other breast is much softer. I've had three ultrasounds, one where it was a consultation with a breast surgeon. Lots…
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Just diagnosed
Hi my name is Stacey. I just got the results from my biopsy today. The doctor said it’s invasive ductal carcinoma grade 2 and as of right now it’s between stage 1 and low 2 with clear lymph nodes but that could change after surgery. I did talk to the patient coordinator and she is going to schedule me to see the oncology…
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Hypoechoic mass on initial ultrasound, not concerning on subsequent ultrasound
My Mammogram came back normal, I'm 43 years old with no cancer history in the family. This is the first year I've asked for an ultrasound as I have dense breast tissue. The results were as follows: "Ultrasound was performed by the technologist. Representative images of all 4 quadrants and subareolar breasts were obtained.…
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Cannabis Basics
I have been using cannabis for the past few years. My main goal in using this is pain relief, de-stressor and for sleep. I have read some stories of using cannabis to cure cancer, but there is simply not enough data for me topursue it's use for that purpose. Let me start by saying that I live in a legal state, both medical…
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8 years post BMX...am I missing anything?
Hello all…. I've asked this question of my primary care, gyno, and breast surgeon and have yet to get what I feel is an informed answer, which is why I'm coming here! I was diagnosed with encapsulated papillary carcinoma in 2017 (ER+ HER 2-) and after multiple opinions, opted for a BMX. Although I've needed follow-up…
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Pre-Menopause Oophorectomy Side Effects Worse With Letrozole?
I had a bilateral salpingo oophorectomy (BSO/ovary removal) on March 4th. I had not begun menopause (based on MO ordered hormone tests). The side effects I've had since that surgery are debilitating. I'm supposed to start taking Letrozole tomorrow. I'm trying to find out (no response from SO or MO) if the symptoms will…
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Are you dealing with infections or bandaging during palliative care??
Hi everyone. I'm starting this topic because I haven't found a similar one to help answer questions and offer me advice. I know I'm a rare case managing my own palliative care, in Asia, while under the care of a great doctor who's using both eastern and western medical traditions. I'm on hormone therapy (Tamoxifen then…
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Ki-67- ONCOTYPE? What was everyone’s experience?
I’m just sort of curious. For those who had a ki-67 number before your oncotyoe, what were your numbers? I’m wondering how often a high ki-67 results in a high oncotype, and vice versa. What’s your experience?
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Breast Cancer Risk Remains High for BRCA+ Women After Age 50
Breast Cancer Risk Remains High for Women With BRCA Mutations After Age 50 Mar 2, 2023 Women with BRCA mutations continue to have a higher risk of breast cancer after age 50. Read more...
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Side effect difference going from tam to an ai
There’s a chance I will switch from tamoxifen (2 1/2 years now) to an AI. I am premenopausal but contemplating hysterectomy then switching. I haven’t had much trouble with weight gain or hot flashes on tamoxifen, and I wanted to know if that for sure will change if I switch. Also, is it a dramatic change in side effects or…
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Are recurrence risks as high as they seem?
I was diagnosed with hr positive/ her 2 negative breast cancer in August at 38 and have been in a horrible mental place since. I thought a place like this would help me feel less alone, but instead I think it makes me more fearful. My doctors keep saying that I have the “easy” breast cancer, but after looking at posts, it…
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Should I switch to a different chemo provider, or is this normal?
Hi everyone! I'm brand new here, just had my first Taxol treatment yesterday. Reading through these message boards it seems like there's a lot of information my chemo center left out, I'm honestly thinking of switching to a different provider but wanted to ask here if maybe I'm overreacting? Before my first treatment, I…
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Rejecting hormone therapy
I had a lumpectomy last month with clean margins, no lymph involvement and an Oncotype of 17. I start radiation next week and it has been suggested by my MO that I start a 5 yr course of Tamoxifen upon completion of my 21 radiation treatments. The Tamoxifen side effects I've read about seem real quality of life destroying,…
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Looking for advice re: hormone treatments
Hello - I am a 77 year old, post-menopausal woman and am new here. I was recently diagnosed with invasive lobular carcinoma of the breast. I've had multiple tests, including CT scans, MRI's, ultrasounds, biopsies, and an Oncotype DX Breast Recurrence test. I had a lumpectomy about a month ago. They removed a 23mm tumor…
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My Chemotherapy Journey
My infusion nurse suggested I make a journal so I will do it here hoping people can find information that may be helpful to them. Let's start: June 11 - port placement. It went well, I guess. But not sure if there was an injury with my surgeon. I saw him discussing something with the nurse like his finger got pricked or…
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My wife's period is back after 5 1/2 years of Tamoxifen
My wife was diagnosed with Stage 2A ER/PR positive, Her2 Negative back in June 2019. She went through 2 surgeries, chemotherapy, radiation and hormone therapy. She started taking Tamoxifen in late 2019 or early 2020. She has co-morbodities Thyroid Cancer, Type 2 diabetes, liver steatosis, diabetic nephropathy, and likely…
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Phesgo?
Has anyone taking Phesgo every come down with a really bad itchy rash?
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Estradiol cream and focal asymmetry
I just had my annual screening mammogram and need to go back for more imaging. Focal asymmetry BiRads 0. The best I can tell, the radiologist saw a new area of density in the left breast compared to three previous films. A few months ago, I changed from Premarin vaginal cream to Estradiol cream. The dose on the estradiol…
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Feeling nervous about starting the Baby Tam
Hi everyone. So, I was diagnosed with ADH recently , I had a lumpectomy with clean margins about a month ago. My Breast Surgeon/Oncologist recommended that i start taking 5mg Tamoxifen daily for 3 years. She said that i have a 41% chance of getting breast cancer in my life but if I do the baby tam protocol it would reduce…
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Scared and Confused
Hi! I'm sorry to keep posting, I'm just so confused and scared about my diagnosis. I spend most of my time googling which is making things worse and it's because my surgeon and RO seem to be on the same page but my oncologist says something different so I don't understand what is going on. I was diagnosed with ER positive…
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The husband's and partner's corner
A gathering space for the partners of loved ones with breast cancer to discuss your unique experiences.
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BREAST IMPLANT SIZING 101
DISCLAIMER! I am not a physician or medical professional. The information provided is my own personal opinion. You must discuss every aspect of your reconstruction with your plastic surgeon. PLEASE NOTE: New information!! Allergan now has a very easy chart to follow to help you see how sizing works in relationship between…
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Regaining Muscle Strength and atrophy
I am early in this journey. I had my first consultation with the plastic surgeon yesterday. I'm 66 and opting for a bilateral mastectomy with reconstruction. The oncologist will take one lymph node on the right side. I am concerned about the recovery time and loss of strength in my arms as I am a ceramic/ clay artist and…
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Important new info for HR+ patients.
https://ascopost.com/news/march-2025/delays-in-breast-cancer-surgery-could-raise-mortality-risk-for-certain-subtypes/?fbclid=IwZXh0bgNhZW0CMTEAAR3HTugfy_qAU3fIwIraBwt0eHdjWvLprCmCy_w9M6Jx-gUbRLAhiCzz6xg_aem_o7SeeQmiqi9pSuMrxvfT4Q
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Does anyone have experience with Dr. David Otterburn in NYC?
I am strongly considering a revision surgery to go from sub-pectoral to pre-pectoral implants. While I have a good (sub-pectoral) cosmetic result if I stand up very straight and don't move, I have felt inhibited by animation deformity and ptosis for so many years (I am single). I have talked to several surgeons, and they…
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Lymph-bypass in forearm after unsuccessful axilla surgery
Hello, I was supposed to have LYMPHA (bypass) during my double mastectomy/ALND in 2023. The surgeon at that time could not find any good vessels to make the connection in the axilla. So, I wear a sleeve 8 hours every day and do regular manual lymph drainage to manage mild lymphedema and keep it from progressing. I've also…