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Just diagnosed with ILC mets
Hi, all I had ILC back in 2008. Had radical mastectomy on the right breast and prophylactic on the left. Chemo AC→T, radiation and 7 years of Arimidex. 16 years later I am back in the game. Still in discovery phase. Had FDG Pet Scan that shows liver uptake, had endoscopy that shows little spot in the stomach consistent…
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Starting Chemo in March/April 2025?
Gather here to support one another!
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Newly Diagnosed Post Biopsy 50 years old
Hello everyone! I found this page on my own after I was given my biopsy results today. A nurse called and asked if I wanted results over the phone or come in. I opted for over the phone - but it seemed she could only share partial information: that the biopsy showed cancer in the fluid that was aspirated as well as the…
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How do you manage seasonal shifts?
How do you adjust your routines or mindset as the seasonal shifts throughout the year like end of summer, or shorter days and colder weather? Seasonal changes can compound fatigue, mood changes, and side effects, and the more health challenges someone is facing, the more impactful those seasonal shifts can become. Share…
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Just been diagnosed I'm only 37 waiting on Cat scan scared it's spread
Hello everyone never in a million years did I think I would be writing somewhere like this at 37 years old but here I am in what seems to be a club nobody actually wants to be in. All this started less than three weeks ago.out of nowhere I found a large lump under my armpit I went straight to the GP and was referred and…
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BIRAD5
just curious what the odds will be that this is benign. I had my first screening on 3/26 and came back they wanted more testing done. The women that did my mammogram said that they would do that and not to be worried. They called every day, texted and sent me a certified letter. Between work and the radiology office hours…
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ILC LFET SIDE 46 MM , RIGHT SIDE 5MM IDC
I have diagnosed with ER/PR + HER2 negative on April 21st 2025. Bilateral mastectomy done with reconstruction ,tissue expanders in place . I will start radiation soon my left side . DXoncotype 16 Worried for the side effects of radiation .On Letrozole and lupron since May 2025
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Metaplastic
Hi One month ago i was diagnosed with a rare type of breast cancer Metaplastic with mixed differentiation. I have a positive lymph node and my surgeon recommend surgery first followed by chemo radiotherapy. The doctor told me that my prognosis is not so good and i might have one or two years with good quality of life due…
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Lumpectomy Planning: intraoperative margin techniques and need for a sentinel lymph node biopsy
I'm trying to help my spouse plan out a lumpectomy for her early stage breast cancer. Two things have come up in research: "no ink on tumor" margins are difficult to ensure and there is a risk for reexcision. It looks like there are techniques like Frozen Section Pathology or Fluorescence Guided Imaging that helps lower…
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Not sure what all of this means
I was just diagnosed with Invasive Ductal carcinoma. The diagnosis reads as follows: Left breast, core biopsy: -Invasive ductal carcinoma, modified Bloom-Richardson grade 2 of 3 (score 7 of 9). -Invasive carcinoma measures at least 6 mm in maximum dimension. -Focal associated ductal carcinoma in situ (DCIS), high nuclear…
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Radiation & tamoxifen - necessary...?
Hi everyone, I’d really appreciate hearing from others in a similar situation. I’m in my early 40s, no kids, not close to menopause, and recently had a lumpectomy for a 12 mm, grade 1, ER+/PR+ HER2- IDC (plus a small area of DCIS). Margins were clear, and there was no lymph node involvement. My Ki-67 is low (10%), and I’ve…
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PBMX for ALH or ADH?
Just wondering how many ladies out there decided to have prophylactic masectomies when your diagnosis was ALH or ADH? I know I can't be the only one.... Hugs to all, Valerie
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Biozorb Marker Removal
Can you point me to a specific plastic surgeon that was willing to remove a recalled biozorb marker? My mom is anxious about hers remaining in her body but has struck out with local plastic surgeons being willing to remove it. I would love to compile a list of clinicians I can bring to her to connect with! Thank you so…
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Checking on a website to order from
I hope it is okay that I am asking about a website. I am thinking of ordering something from survivorroom.com, but don't know anything about them except what I see on their website. I can't find any reviews about them outside of their website. They look legit and I will probably give it a try, but I am doing my due…
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Anyone with ONLY lung mets, E+, her2+?
Going through a lengthy incidentally found pulmonary nodule diagnostic journey (8 mm, low avidity on PET, nothing else lit up). It was found on a cardiac CT for high LDL (perfect score, no statin 🤪). Followup CT to prep for biopsy says nodule most likely benign but a few additional micronodules were found, scattered in my…
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Radiation is much harder than I anticipated!
Just finished 5 days…and have 5 more weeks to look forward to. After day 2, I met with my radiologist and she told me to start using the Miaderm because I'm already getting redness and swelling. After day 5 I feel like my breast is on fire and my sternum hurts when I touch it. Any favorite go-tos for relief?
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Poll: What does “wellness” mean to you right now?
Living with breast cancer can change how we define wellness — physically, emotionally, and mentally. Cast your vote and see how others in the community are feeling, too.
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How has your definition of wellness changed?
Whether you’re in treatment, recovering, or living with metastatic breast cancer, how has your idea of wellness shifted since your diagnosis? What does it look like now?
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Update - Diagnosed with Triple Negative Breast Cancer
My cancer 20 years ago was HER2+. I'm looking at stage IV and I'm devasted.
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Looooooong term lingering symptoms...?
Hello I was diagnosed in 2019 with Stage 2, Her2+ breast cancer in my right breast. Mastectomy, chemo and herceptin treatment followed and was successful. The planned herceptin treatment was interrupted just over half way through thanks to the pandemic, but no recurrence - so far, so good. Thanks to the pandemic, I never…
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Full mastectomy and lymphectomy coming up advice needed!
Hi all I'm new to the group. ER+ breast cancer stage 3 at 41 years old. I'll be having the last of my 7 rounds of chemo tomorrow and then hopefully will be able to have surgery. I'm scared of the surgery - never have been an inpatient in hospital before let alone gone under the knife. Any advice welcome on what I can do to…
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DIM
What is DIM and where do I get it? How does it work- thanx in advance for your help! I am trying tamoxifen but not liking it. Tami
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Results coming this morning
I already know it’s a recurrence and in my sternum, probably elsewhere. Trying to figure out how not to have a panic attack when the doctor is telling me. I’m terrified.
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Wrongly diagnosed, had mastectomy and PAP flap operation
I'm in constant pain in my leg, I was diagnosed after a routine mammogram and after 3 biopsies told the best option for me was a mastectomy, I was told that having my own tissue was the superior way to go, the rolls royce of mastectomies. I was told i was a ticking time bomb and this was the best option. ie; preferred to…
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Single-Breasted Photo Shoot
My DH took some amazing pictures of me and my AFC. I'm striving to help normalize women going flat. It's an option that too many are shamed away from.
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BRCA2 but no family history of breast cancer
So my Mum had peritoneal cancer and found out she had the BRCA2 alteration. That's how I have just found out that I have inherited it through genetic testing. We have no history of breast cancer in the family as far as we know, however the Dr's told my mum that they could see that her cancer had developed from her ovaries…
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Its a long fight against breast cancer
Hi everyone, I'm new to this community and happy to be part of this wonderful resource. I am 36 when i was diagnosed with grade II invasive carcinoma (ER+/PR+/Her2-) of my right breast in August 2024. Back then i really wonder why life is so unfair and kept throwing lemons at me. I was always healthy with no underlying…
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IBC concerns
I’m 37 with a mom and grandma BRCA1 positive. Grandmother had IBC twice so I have some concerns. Here are my symptoms: 7/10- rolled over in middle of the night with breast pain in right breast Lightning shock pain started and inflamed right breast (continuous since 7/14) Breast felt like mastitis 7/16 Seen in office, pain…
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Recurrence Fears
I am currently 7 years out and have just recently stopped living in constant fear of recurrence. Update to that progress tonight….Recently I have been noticing that if I rest my arm/elbow on some thing, armrest, table, etc. I get pins and needles in my hands. I started checking with Dr Google and down the rabbit hole I…
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Local reoccurrence tnbc
33, currently just discovered a local reoccurrence 10 months after dmx and 6 months after finishing chemo. First presented as fat necrosis/oil cyst but grew. Looking for treatment plans and stories of people who have gone through this successfully with no further occurrence. Looking for hope so scared. Waiting on mri and…