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Wife is starting Xeloda soon
Hi all, My wife was diagnosed with mBC in 2023. She has been through 4-ish lines of treatment, the latest Enhertu. She has felt great with no side effects but it has stopped working after a year. This is next and I’m terrified of the side effects and what living with them will be like for us and our relationship. Can…
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Neuropathy getting worse years after treatment?
Hi, I am new here so I hope I am doing this correctly. I had cancer and treatment in 2013 and had taxol. I had bad neuropathy for a few years after, took gabapentin which helped reduce pain and went off the medication because I was ok. I have had the neuropathy- mostly pain-sometimes since then like once a month. The last…
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HHS Prioritization for MBC
Below are two emails sent by myself and my awesome wife to the HHS team. If you arent aware, HHS has introduced a new program called the Commissioner’s National Priority Voucher (CNPV) which includes a number of terminal illnesses but not MBC at this time. Please send them a message and urge everyone to make MBC a national…
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Wife starting Xeloda
Hi. Hope it’s okay to post as a family member/caregiver. We found out yesterday that there has been new tumor growth in my wife’s bones. Very lucky that mets are confined there. Have been reading about Xeloda side effects and now I’m scared. She’s been on Enhertu for a year and had no side effects so this feels like a…
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Hylecta/Herceptin effect on blood pressure/hemoglobin
6 months into treatment, and my blood pressure is careening up and down. It will be very high in the morning, sometimes go down to below 90/60 during mid-day, and then up again.My cardiologist keeps trying different combinations of meds. Has anyone had this side effect and got it under control? how? Also, at my last…
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Keto? Mediterranean? No sugar? No fat? No processed foods?
I have been reading studies about how diet affects breast cancer growth and have been bouncing between them in my head and daily life. Some studies, such as keto diet, seem to contradict each other, with fierce advocates on all sides.I thought it might be helpful for us to share the type of diet (not for weight loss, but…
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Should I take the drug?
At age 86, I was diagnosed with breast cancer. Stage 1. I had two surgeries to get it all out. After, I completed five days of radiation. The oncologist now wants me to start anastrozole every day for five years. I have moderate to severe osteopenia in my hips and am concerned that I may have severe bone loss and end up in…
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What part of your story are you most proud of right now?
A breast cancer diagnosis can come with many ups and downs throughout the experience and beyond. We'd like you to share with us your proudest accomplishment you've realized through your transition - what part of your story are you most proud of right now? Please select the most appropriate response for you below, and…
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What’s the hardest part about saying “no” when you need rest ?
Slowing down is tough for most of us! What’s the hardest part about saying “no” when you need rest — and how do you remind yourself it’s okay? Have you ever canceled plans and felt better for it? Share your insights !!!
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Invasive Ductal Carcinoma
I am newly diagnosed and really don't have a clue of which option to choose. I don't have a lump, but one choice is lumpectomy with radiation (I only have calcifications that where biopsied after an abnormal screening). Masectomy only or Masectomy with immediate reconstruction. I am having an MRI this week to see how…
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Ringing of the bell. A perspective from someone with MBC. Please share yours!
Thanks to Jaimee for sharing her perspective! Please share yours below! Does your treatment center do this? If so, how does it make you feel? Share your thoughts. https://youtu.be/OMcEQ_lBg58
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fibrocystic breast condition.
Hi everyone, I’m a 45-year-old woman dealing with fibrocystic breast condition. I sometimes experience pain and hormonal symptoms that make daily life tough. I'm here to connect with others, learn from your experiences, and hopefully feel a bit less alone on this path. If you've found anything that helped with pain relief,…
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Cancer recurrence worried....
Hey all. My mother had breast cancer 8 years ago it was spread under armpit 2.3inches. They did surgery chemoteraphy and radiation everthing went okay. Now after 8 yeras my mother got anemia they did bone narrow biopsy that shows cancer cells there . The doctor says its cancer recurrence but they dont know where it is she…
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TAMOXIFEN & CYMBALTA
I read that Tamoxifen should not be taken with Cymbalta as the Cymbalta can make the Tamoxifen ineffective as well as increase the side effects. Is this true and if so, can someone recommend a replacement for Cymbalta?
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Hair loss and Kisqali
I have been recently diagnosed with Stage IV metastatic breast cancer after a year being stage II. I started Kisqali last week and was told I would only have hair thinning. I am loosing chunks of hair. Would love to hear if anyone has experienced this? My oncologist told me none of her patients had to get wigs and only had…
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newly diagnosed idc
seeking medical second opinion for newly diagnosed invasive ductas carcinoma of the breast
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Does this sound like fibrocystic breast pain?
Hello, I am wondering if anyone has experience with fibrocystic pain? I have very lumpy very dense breasts and always had pain before my period. My cycles are not regular the last year or so as I am in perimenopause (46 years old). The pain has gotten worse on one side mostly (right). Last mammogram and u/s I had a lot of…
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Pik3ca E110del mutation? it's rare
anyone have a PIK3CA E110del mutation? I do. it's rare, like 1 in 4000 Pik3ca mutation is E110del. it kept me out of a clinical trial because I didn't have one of the top 10 mutations. arghghgh. we're going to try Piqray anyways. arghagrhgargharghghhgh. Same thing happened with my ESR1 mutation as well. I guess I'm…
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Experiences with Fosamax
Hello I recently had a Dexa scan because my oncologist wants to change my Tamoxifen to Anastrozole after my hysterectomy . I am 46 years old. Come to find out I have osteoporosis in my spine my T-score was -2.8. Also Osteopenia in my pelvic/hip area. I am in really good health and eat very healthy, take calcium and Vitamin…
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After first shot of Lupron
Hi I am new to this forum. My oncologist recommended a course for Lupron shoot every 3 months for 5 years as I am premenopausal. Then add Tamoxifen for 5 years after my radiation, which is schedule to start next week. The Lupron shoot was done in the middle of my cycle so I had my period at the regular time. But instead of…
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Medicaid Is Under Threat: Why That Matters for Breast Cancer Care
Check out our latest reporting: https://www.breastcancer.org/news/medicaid-cuts
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Are you having surgery in June 2025? Let's gather here to support one another!
Add to the discussion below to share your scheduled surgery date, type of surgery, what you're doing to prepare, ask any questions you have about what to expect, share your experience after surgery, how you're recovering, tips to help others recover, products and other practical advice for those coming after you. We're all…
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Has anyone had the BCI (Breast Cancer Index ) test?
I am 5 and 1/2 years out from my diagnosis of ER+PR+HER- IDC, post BMX, chemo and almost 5 years of endocrine therapy. (I've tried them all and currently on Letrozole). Hate them all pretty much the same. Got my results of BCI ( not from doctor yet-I requested from the company and will discuss at my next visit which is…
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Oncotype test and results
I just had a double mastectomy. The point was to have a lower risk of not having the cancer come back. They done a Oncotype Dx test and my score was 51. Now they are wanting me to do chemo. I am very scared and questioning rather I want to do that or not. I am 54 years old. I dont know what to do!
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Debra Trails...
Anyone have any thoughts, information, etc. on the Debra trails. I have googled it and am continuing to search for as much detail as I can find. I have IDC Grade 1, HR+, Her- and my tumor was less than 5mm. This is a very personal decision, but trying to gather as much information as I can prior to making my decision.
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I m afraid.....
Hi everyone I was diagnosed in April 2022 with a non-invasive DCIS, not IBC. I had a lumpectomy with clear margins, and they also performed a symmetrization and breast reduction on the other side. Then I had radiation therapy on the affected breast. On pathology, it was already classified as ACR 4C (BI-RADS 4C – high…
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Just diagnosed
hi my name is Kim and I was just diagnosed with invasive ductal carcinoma. I’m a grade 1 but haven’t been told my stage. My coordinator said it comes later. My tumor is 1.1 cm. I have an MRI next week then meet with the surgeon on the 13. I’m terrified and find myself not able to eat or sleep and cry. I watched my mom die…
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Poem Time Pink Warriors! 💪💗
“Damn Cancer” Chemo rolled in like a wrecking ball, Took my taste buds, took my gall. Food’s just texture—what’s that smell? Oh wait, it’s me… I can’t quite tell. Brain fog’s thick as a bowl of stew, Walked in a room—what’d I come to do? Forgot my pants, but found my hat, At least I remembered where the cat’s at. No wine,…
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Stage 1, grade 1 and pre-menopausal
hi sisters, It has struck me that most grade 1, stage 1 sisters seem to be post-menopausal (aka low estrogen) and younger women seem to be more often stage 2/grade 2. I am 42, recently diagnosed ER positive, still full of estrogen and becoming a little paranoid that there is something different about me or my cancer! I am…
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Verzenio & Letrozole
Second bout with breast cancer: I am a 61 Year Old woman diagnosed February 2025 Her 2 Positive 8 cm x 6 cm (large) breast tumor with metastatic skin cancer on ribs (considered stage 4) being treated with Letrozole and Vernizio I was first diagnosed in 2021 with a similar tumor but no metastases at that time. I received…