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14 YEAR STAGE 3 ILC SURVIVOR
I’m hoping someone can provide me some guidance. I am a 14 year Stage 3A ILC survivor. I did all the right things including chemo rads double mastectomy and 13+ years of Arimidex. Believing that you get long term benefit of protection from long term use of Arimidex, I made the decision to stop taking it because I was…
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Genetic Testing Saved My Life
Genetic Testing Saved My Life May 31, 2024 Dr. Brooklyn Olumba explains how discovering she had a BRCA2 mutation led to earlier breast cancer screening and detection. At the 2024 American Society of Clinical Oncology (ASCO) Annual Meeting, Dr. Brooklyn Olumba was part of ASCO Voices, a program that gives people in the…
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Share a photo to create a bright moment in someones day!
Hi All! #GivingTuesdayNow, a new initiative in response to COVID-19, is on May 5 and we're using it as an opportunity to talk about how Breastcancer.org community members give support to each other. The goal is to spread positivity through photos. What can you share or suggest to create a bright moment in someone's day?…
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ILC stage 3 and 10 year survival
I am wondering anyone with ILC stage 3 diagnosis and made it to 10 year without any recurrence.
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Have you experienced PTS or PTSD following a breast cancer diagnosis?
Please share below your experiences with PTS (post-traumatic stress) or PTSD (post-traumatic stress disorder). How has this affected your life, the way you feel, your relationships, activities? And how are you managing?
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How many reconstructive surgeries are too many?
I've had a setback with my reconstruction and I'm not sure what I want to do. I had a mastectomy on the right side in November 2022 and had a tissue expander placed, which was swapped for an implant in October 2023 after I healed from radiation. I had mild discomfort from the implant even after recovery and wasn't super…
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Taxotere Linked to Less Neuropathy in Black Women
Taxotere Linked to Less Neuropathy in Black Women Jun 17, 2024 In Black women with early-stage breast cancer, Taxotere every three weeks caused less peripheral neuropathy than Taxol every week. Read more…
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Enhertu Beats Chemotherapy for HER2-Low and -Ultralow Metastatic Breast Cancer
Enhertu Beats Chemotherapy for HER2-Low and -Ultralow Metastatic Breast Cancer Jun 17, 2024 Enhertu offers better survival than chemotherapy for pre-treated, metastatic, HER2-low or -ultralow breast cancer. Read more…
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Fertility Treatments Safe for Survivors With BRCA Mutations
Fertility Treatments Safe for Survivors With BRCA Mutations Jun 11, 2024 Assisted reproductive technology doesn't increase the risk of breast cancer coming back in young women with BRCA mutations and a history of breast cancer. Read more…
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Hi I am New here. Finished my treatment, lost a husband, would like to share!
I had a lumpectomy, chemo, and then a masectomy complete and a hysterectomy after they found the BRACA gene. I have remained flat and happy with that, my husband left me and my children (not his) after my first chemo as he couldn't and didn't want to take on the extra duties that it might entail. I live in France and had…
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Pain in one breast, no lumps, not due to my period. How worried should I be?
I’m a 45 year old woman and my mom had a rare form of cancer (phyllodes tumor), which is more of a sarcoma than breast cancer. It did unfortunately, take her life. Due to family history, I’ve been getting mammograms since 40. That said, I’ve had random pains that I would describe as shooting pains in my left breast. Very…
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I am so scared :(
Good morning everyone! I'm writing because I needed to vent to someone about this subject... I'm 38 years old. 3 months ago I discovered a large lump in my left breast. I don't know how I hadn't realized it before, but the truth is that when I found it, I decided to go to the gynecologist. She scheduled me for an…
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Second mass found...reconsidering treatment plan
Hi! I was diagnosed about 6 weeks ago with IDC (ER/PR+, HER-). I had to pause starting any treatment to travel to the UK to be with my mom, who was diagnosed with stage 4 colon cancer. Sadly she passed away last week. I have just got back and now picking up my treatment journey. Just before I left for the UK, an MRI showed…
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Rash
I started with a rash on right breast now it has spread and deeper in colour. I have a dr appt this afternoon . Can anyone think what it could be . Upper pic yesterday Lower pic today (EDITED BY MODS to remove photos)
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Delayed direct to Implant re-construction
Hi Everyone, My sister had double mastectomy in Jan. Her surgeon didn't recommend immediate re-construction. She is now thinking about direct to Implant re-construction. Please share your experience about direct to Implant re-construction. Thanks 😊
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What causes AI or SERM failure?
Are the causes of hormone therapy failure due to mutations in the tumor dna or bypass mechanisms? Like if you’ve been on some therapy for a while but then develop a new primary, how is this possible when those receptors are suppressed (assuming the patient is compliant with dosing). Also, has anyone had the Breast Cancer…
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Tamoxifen 5mg side effects
Hi I tried this drug by the 6th day I could not function I ended up in the doctors because of the pain in my head and my vision I can't even describe the way my brain felt the depression the muscle cramps The Hot Flashes this isn't worth it to me I will not take any of this poison they say helps because it does so much…
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Pain in lumpectomy site years later
Hi all, I was dx in May of 2010. I had a lumpectomy was stage 2, grade 3 er/pr+, 7+nodes and brca2+. I did chemo, rads and had a mastectomy a year ago with diep reconstruction. Off and on I get pain in the scar area from the lumpectomy. They took muscle from the area -- lump was on the right at 5 o'clock -- very unusual…
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Faslodex
Just wondering if anyone has experienced this. I have been on faslodex (and Ibrance) for 3 and a half years. I am so fortunate that his combo is still working and don't want to change it. I have always had a couple of side effect days after shots but bearable. Though recently my side effects seem worse. Anyone experience…
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Scared and alone. Please help.
Diagnostic mammogram and ultrasound today. The radiologist said it was for sure cancer. Large 3-5cm mass in breast with 1 enlarged lymph node. Both bi-rad5 for malignancy. I’m scared to death. Biopsy scheduled for tomorrow. I’m only 39. I have 4 young children. I just finished breastfeeding. I have no idea how I missed…
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Ki-67- ONCOTYPE? What was everyone’s experience?
I’m just sort of curious. For those who had a ki-67 number before your oncotyoe, what were your numbers? I’m wondering how often a high ki-67 results in a high oncotype, and vice versa. What’s your experience?
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Could There Be Some Real Hope on the Horizon for ER/PR+?
I just came across this article and thought I'd share. Wasn't quite sure just where to post, but since hormone therapy is an ER/PR+ thing, I thought I would put it here. This new study looks amazing - maybe too good to be true? They've got some ways to go yet of course; as it hasn't even been tested yet in humans, but I…
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Triple Positive- Stage 2- Herceptin/Pertuz side effects
Hello- I am triple positive stage 2- status post lumpectomy, taxol with herceptin/pertuz, 30 day radiation. I am currently getting herceptin/pertuz every three weeks along with IV dexamethasone- 9 more to go. I have not yet started Tamoxifen. I am finding that I am still getting a fair amount of side effects- GI upset,…
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Side effect difference going from tam to an ai
There’s a chance I will switch from tamoxifen (2 1/2 years now) to an AI. I am premenopausal but contemplating hysterectomy then switching. I haven’t had much trouble with weight gain or hot flashes on tamoxifen, and I wanted to know if that for sure will change if I switch. Also, is it a dramatic change in side effects or…
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Great article in newsletter
Kate!!!! Your story was amazing in the newsletter. Thank you for putting your story into words. 💗
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Torso sensitivity
I posted about this 5 years ago, and never received a response from anyone who could relate. I hoped I'd "outgrow" this sensation, but that's not the case. So I'm circling back now, after discussing this at my annual check-up. Has anyone experienced hyper-sensitivity after a double mastectomy? Specifically, along the bra…
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Not diagnosed with metastasis but mixed tumor marker results
Hello again, It’s been a long time since I’ve posted on these forums. I’m almost 10 years out. I had 3 different tumor markers ordered by my GP in Bulgaria and done at an accredited lab. CA-15 (13.1 U/ml) and CEA (1.72 ng/l) were normal but a new marker I’m not familiar with was elevated. It’s called CYFRA 21-1 and seems…
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Wife given AC/T + HP for --+ (her2 3+)
Hi, after doing significant research, I've realized that TCHP is the international standard chemotherapy for neoadjuvant Her2 positive breast cancer. However, my wife's oncologist says he prefers AC. She just had her 1st infusion of AC. I also discovered that the AC is down dosed by 25%. Normally in the AC leg the standard…
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VERY overwhelmed!
I have recently been diagnosed with IDC Stage 2 Grade 3, it is negative in my lymph nodes. Everything is so overwhelming, I had a EKG and EX-Rays yesterday and go into get my port tomorrow morning. I attend chemo class on Monday and start chemo on Tuesday. I am just very overwhelmed, I have friends that suggest that I go…
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Aromatase Inhibitors and GERD?
Hello friends, Has anyone dealt with reflux or GERD while taking AI’s? If so, have you used medication to deal with it and what was the result? (I’m on my second AI, so that’s 2 1/2 years with severe reflux. Working with a gastroenterologist now to manage the reflux and try to stay on Exemestane for a few more years.)…