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Calling all triple negative breast cancer patients in the UK
With so many forums and threads on this site to go through for information, I thought it would be a good idea for all of us in the UK to form a forum specifically for us, and to give our details and experiences in a compact manner. Anyone else in the world is welcome to join in. I was diagnosed with a very large tumour,…
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Calling all 20 year plus survivors
Good day! First diagnosed with 2.5 cm invasive ductal, ER PR positive in 2004 at the age of 53. Lumpectomy and brachytherapy. In 2006, I had very small recurrence which was excised followed by chemo, radiation. I took tamoxifen for 5 years and was "dismissed" by my oncologist in 2011. Late 2013, I had redness of nipple in…
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Does anyone take Letrozole (Femara) every other day?
Does anyone take Letrozole (Femara) every other day? I hope to reduce the dose to ease my side effects. But my oncologist doesn't recommend taking it every other day. I've seen one or two persons mentioning this approach in other topic. I would like to know if there are more doing this (i.e. taking Letrozole every other…
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Question on alternative treatments...
Hi Guys, Has ANYONE has any kind of success with this type of treatment maybe in conjunction with traditional treatments? (edited by mods to remove link) Other boards just refuse to discuss this. It's all voodoo medicine and backwoods treatments... but it appears to be completely legit… my wife claims there are lots of FB…
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Please read
I have little bandwidth available right now so I apologize in advance if some are offended but I want to be clear. Not a Christian, never will be a Christian. Please don’t wait for me to see the light or put another notch in your stairway to heaven belt as saving me is presumptive and arrogant. Christian prayers and Jesus…
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Worried about IBC, and risks related to pregnancy
Hi everyone, I am 38 and I had an IBC scare a few years ago (and a long history of health anxiety). Everyone here was so kind (and honest) about it, which I deeply appreciate still. It turned out to be a “chemical” mastitis on my left breast from popping a boil. I ended up getting an MRI that found nonmass enhancement in…
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Breast Cancer Index - Mixed Results
Hello all - Wondering if any of you can share any of your experiences regarding your BCI and what your oncologists have advised based on your results. I am nearing my 5 year mark next year for endocrine therapy and recently found out that my oncologist had run the Breast Cancer Index test on my original tumor. I am…
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How long on anastrozole?
My doc wants me to stop taking anastrozole after 5 years (1.5 on tamoxifen). I've had two fractures, last one a year and a half ago. I'm osteopenic. Side effects are manageable, I'm fortunate to live by myself 😄. I'm a bit scared to stop... anyone else out there afraid to quit?
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PABL2 gene after having a lumpectomy, Stage 1
I really don't want to do radiology. The risk is 15-20% without radiation the risk with radiation 5% reoccurance. According to my doctor. Since I will still have to do an MRI and mammogram every six months not sure this is necessary. Thoughts?
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Stereotactic biopsy
i have IDC and was suppose to have surgery on the 28th. The day before, my surgeon called to cancel. There are suspicious microcalcifications that we want to test first. On the 29th I had an MRI and was suppose to have a stereotactic biopsy on the 10th. Today the nurse called to say they want to do it sooner. She will call…
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High liver enzymes
Hi, This is my first post. In December 2024 i found out my original breast cancer from 2020 had returned, metastasised to my sternum & lungs. I started Kisqali in January 2025, halfway through cycle 2 I had to stop taking my tablet due to acute raised liver enzymes, I am currently 4 weeks off the tablet, my ALTs are…
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Aromotase Inhibitors and cartilage loss
I am 64 years old. I was on tamoxifen for 3 years and and anastrazole for 4 years. I have been off the Anastrazole since end of 2019. I have severe osteoarthritis in both knees. Bone on bone. Have heard that the estrogen loss accelerates cartilage loss. Wondering if others have had this experience
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is this site still active? What I just read was from 2021 and it's 2025?
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Need Advice: Rising CA 15-3 with Stable PET Scan – Confused and Anxious
Hello everyone, I’m writing to share my recent health update, and I truly hope someone who has gone through a similar experience can guide me, as I’m currently feeling confused, anxious, and struggling to make a decision. I have hormone receptor-positive, HER2-negative breast cancer. After three and a half years, the…
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Starting Radiation May 2025? Gather here for support!
Share experiences, ask questions, get encouragement, and support others who are going through radiation therapy along with you. Please share your diagnosis, any previous treatment you've had, and your scheduled start date along with your radiation schedule. We're all here for you!
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Starting Chemo May 2025? Gather here for support!
Join together to share experiences. Discuss your chemo regimen, how to prep, what to expect, how you're feeling, side effects you're having and tips to alleviate them. We're all here to support you - you've got this!
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Eye Issues on Herceptin or Kadcyla?
Hello All, I was originally on Herceptin/Perjeta for HER2 positive cancer, but switched to Kadcyla after lumpectomy revealed some residual disease left. I now have Retinal pigment epithelial detachment (PED) which is a common manifestation in macular degeneration. While I am 61, I've never had any issues with my eyes and…
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Arabic speakers with Breast Cancer
Good morning, Anyone here who is native Arabic speaker? Would love to connect.
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Do you think your care has been handled differently because of who you are?
The third week of April marks National Minority Cancer Awareness Week, a special time for us to come together and reflect on the unique challenges and disparities faced by the marginalized and underserved members of our breast cancer community. While genetic factors and country of origin can influence breast cancer rates…
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Side Effects After Stopping Tamoxifen (Weight Gain?)
Hi all, for some reason, I started thinking about what happens when I get off the Tamoxifen. I still have 2 years to go but of course, they are recommending the 10. Hey, 50-60% reduction of recurrence is great for 5 years, but 3-4% for the next 5, no thanks. I have the brain fuzziness, memory problems. I've had the joint…
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Tamoxifen and migraine meds
Does anyone on tamoxifen take prescription medication for migraines? I was recently given a sample of ubrelvy by a neurologist for headaches but just read online tamoxifen can increase med levels because it’s metabolized by a cyp3a pathway. Any experience with this drug or another migraine treatment that doesn’t interfere?
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CA27-29 results
+I have had breast cancer three times in the past 22 years. I have had both my breasts removed -and see my MO and BS twice a year at alternating times so I see one or the other every three months. I will see my BS next week. In Aug of 2024 my CA score was 40. I wasn't concerned and assumed it was my normal. In February it…
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Bi rads 5 on a holiday weekend sigh
Went in Friday for my call back diagnostic mammogram and ultrasound. 1 hour of mammogram pictures including magnified images. Then half hour ultrasound by technician followed by doctor coming in and doing scan as well. You know things aren’t great when they keep looking at you like you should be freaking out. Results…bi…
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Any diabetics demand steroid alternative due to glucose impact?
I had my first chemotherapy on Thursday. That evening my glucose shot over 200. Today it's yo-yoing. When I asked about steroids raising glucose, all the oncologist basically said was just that I would have to manage my glucose closely. To me, that means no more steroids. I'd rather have the nausea, thanks. Definitely…
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new here
Frankly I am shocked. Like this was NOT my plan ever. Wtf. tomorrow i meet with the surgeon. One is HER-2 and other is DCIS. And maybe they’ll be more news. Who knows. I feel like i am just shutting down and where is the fight i have heard about? Shouldn’t i be ready to fight. I want to die.And quit. and just go away. if i…
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MRI Guided Biopsies
I've had 3 BIRADS 4 on ultrasound over time in the past 3 years and each time resulted in a biopsies. All came back benign (thank God). I'm considered as high risk with LCIS and family history so I have to do MRI once in a year. I did MRI for the first time and it showed multiple BIRADS 4 areas(4 in total) in my both…
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Replacing implants after 15 years
Has anyone had implants replaced? I would appreciate sharing about the experience.
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BIRADS 4, biopsy next week
Hi all, I'm a 35 yr old F with family history of BC on my mothers side; a aunt and a cousin (not mother/daughter). I have been having pain in my L breast off/on, no palpable lump, but had mammo/ultrasound to be safe, which showed; 8mmx7mmx3mm solid mass with lobular margins, parallel, no enhanced through transmission or…
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BRCA2 positive
Hi everyone, I'm currently in remission, stage IV bone mets, BRCA2 positive patient. I should be doing bilateral salpingo-oophorectomy in the next few months and I want to check if there's anyone here who did it? If yes, how did it go? How did you feel afterwards? Thanks!
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Deep Sigh, Here Again
I had Stage 1A IDC ER/PR+ HER2- dx in Oct 22, lumpectomy, radiation, oncotype 14, been on Tamo since Feb 2023. 14mm sized mass. My new surgeon put me on a different imaging cadence so I get mammo/US in the fall and now MRIs in the spring. I had my first MRI yesterday hoping to sail through without alarm…until the…