Recent Discussions

Hi I had my lumpectomy with Sentinel node biopsy on Nov 14 and reviewed the pathology report with my doctor today. He said 5 nodes were removed during biopsy and 2 are confirmed to have cancer >2mm. Based on this, he advised chemo is required and ALND is on the table but he is going to review with the cancer board at the…

I was diagnosed with stage 1B triple positive. Just had my BMX three weeks ago. Now about to start chemo. My MO recommended THP chemo regime because it has less side effects and she said it has similar efficacy as TCHP. I know that TCHP has been the gold standard for many years with proven long term record. Just looking…

I had a single mastectomy in August. Since then I've had a couple of followup visits with my breast surgeon and have been seeing the plastic surgeon who will do reconstruction. The plastic surgeon is an independent one-doctor office. He has staff for appointments, etc. but he answers emails himself. And in a very timely…

Is your chemo treatment scheduled soon? Let's share experiences and lift one another up here. We encourage you to share your feelings about starting chemo, what the planned regimen is, how you're preparing, ask questions and learn what to expect from others, side effects you're experiencing and how to alleviate them, and…

I was told I’d keep my hair but it started dropping out fast. Looking back it may have helped keep more hair had I not brushed as aggressively, started modest iron supplements before iron & other numbers dropped requiring one transfusion. And switched hair products sooner. I think it would have prevented or slowed hair…

Has anyone with Triple Negative Breast Cancer taken Xeloda that went through chemotherapy and then had a double mastectomy and lymph nodes removed? I am going to have radiation but, my oncologist wants me to take Xeloda but, I want to hear some feed back.

Metastatic Breast Cancer / Treatment The Complete Guide to Breast Cancer — Trisha Greenhalgh & Liz O’Riordan Not the Breast Year of My Life — Frankie Leigh Stand By Me: A Guide to Navigating Breast Cancer as a Couple — Claudia Gilmore Living With Illness / Mental Health Radical Acceptance — Tara Brach Full Catastrophe…

I’m trying to make my decision for my next surgery after having my BMX a couple of months ago. I need some advice! I’m trying to decide between Diep flap vs hybrid. I’ve spoken to 2 women that had the Diep done many years ago and are very unhappy with their results. Hoping to get some more feedback about Diep and the…

Hi from Canada! This is my first post! Just diagnosed with IDC, (Grade 2 features) ER Positive, PR Positive, Negative for HER 2 Protein Overexpression by IHC (Score 1+) To be honest not sure what this all means. I have appointment with surgeon Dec. 5th. Would love to have some suggestions for what Questions I should be…

I’ve been reading for a while and decided to join earlier in the week. I live in New Orleans , Louisiana. I, fortunately, already had a breast doctor to whom I was referred by a NP friend of mine because I have fibrocystic and dense breast. I’ve been a patient of his for almost seven years. In the beginning, I would get a…

I have had bc for 8 years and I’ve been fighting depression, I think it’s because my oncologist was not supportive. She sent me to psy and I tried a lot of treatments plus medication but I don’t feel good. I have been having stomach pain and am on the fodmaps diet. Today very little pain. I have depression mainly from the…

Hi everyone, I’m Ralph , and I hope it’s okay that I jump in here. I’ve been reading the forum quietly for a while, but this is my first time actually posting. I was diagnosed with stage IV breast cancer last year it spread to a couple of bones, so things have been a bit up and down ever since. Right now I’m on hormonal…

Are you scheduled to have a lumpectomy or mastectomy in the month of November? Join us here where we support each other as we prepare for our surgeries, ask questions about what to expect, share reservations and fears, and support one another through preparation and recovery. And, we encourage others who've "been there" to…

I am a retired registered nurse. I have two younger sisters who have had breast cancer, I am just realizing my journey.

I’m 17 days post first infusion. My scalp started being very tender about day 13. Hair started falling in earnest on day 14. I’m not bald yet, but it’s coming out in clumps. I’ve read many posts about hair loss, but I’m wondering more specifically about the scalp pain. Does the pain stop when the hair is all gone? If not,…

And please forgive me if this is the wrong forum :) I'm just curious as to what your story was. Thanks

Hi, We went the cold cap route for our daughter when she was going through chemo for IBC. We purchased a number of freezer packs for her hands and feet. She was able to retain her hair and didn't suffer from neuropathy. So it does work! I would love to donate the freezer packs to someone who is in need. Please reach out. JW

I am starting Madame X next week and just wanted to reach out to the experts about dietary restrictions. It seems that there are a lot of foods that contain folate so I was wondering if anyone had recommendations of things to definitely avoid, my main concern is Hand and Foot Syndrome as I am an avid Pickleball player and…

Mine is apparently from osteoporosis, probably chemo / femara induced. My T scores are not awful (worst is -2.5 in hips; others in -2 range). I’ve been on Fosomax for a few years. But now that I’ve found out about this compression fracture, endocrinologist is recommending Evenity or Tymlos. Both have potential scary side…

Hello , My name is Jill and I will be starting Xeloda next week. I was on Ibrance/Letrozole for 16 months and it has stopped working. I am curious about the new meds and wanted to talk to you ladies about a few things. I have not met with the Onc Pharmacy yet to discuss the drug and ask various questions so I figured I…

I've learned so much on these boards that I wanted to give back a little and share some things I learned for anyone thinking about trying Mepitel fIlm for radiation. I only ended up using the film for half of my radiation treatment because I was allergic to it. But at my one month follow-up appointment, my RO was surprised…

I am 11 year survivor and just has an elevation to 42 from 30 on the CA 27-29. I have to wait 4 weeks for new bloodwork. I am so nervous. Anyone have a similar experience.

Good Envening ! Has someone received EVENITY injection for osteoporosis treatment? My wife has taken Fosamax for 5 years and received Reclast infusion for 2 years (one dose per year). Now, the Doctor suggested my wife to receive EVENITY injection for another year (one injection per month). Since EVENITY is relative new…

Hi. I was originally on this great platform as jcp back in like early 2006. I had to changey name bc it won't take my old user name of "jcp" but still recognized my old email so switched that out. Basically, my rt lumpectomy from late 2005 in past four years ( age) is so much smaller than my left breast that was always…

Hello all-I’m stage IV MBC since 2017. Was NEAD for nearly 7 years and now have been through five lines of treatment that have failed. Have been recommended to DATROWAY and am wondering if anyone has experience with this relatively new drug. The side effects are pretty terrifying and I can’t find any real world information…

Now that active treatment is over, I imagine my next few appointments we'll be working on the surveillance plan. It would be so helpful to hear what others are doing. I've had TNBC twice before age 50, treated successfully (I hope) both times, and am BRCA1+. Before the second diagnosis I was getting a mammogram +…

I just finished my last infusion of AC and in two weeks will start Taxol. My doctor originally told me 1 infusion of Taxol per week for 12 weeks but during our last appointment he recommended I do 8 weeks of Taxol with an infusion every 2 weeks so a more dose-dense treatment. He recommended that because I tolerated the AC…

my mom had breast cancer and she done with her long treatment almost ten years ago. Her cancer was advanced stage 3B. Now she started to have pain under her shoulder and the doctor did biopsy and it’s confirmed she has recurrence. My mom is 73 years old and can someone guide me what kind of treatment they might do? Or if…

Hi friends, I'm 72 ad live o my ow in Portland OR. I was diagnosed in August with what turned out to be stage 1 grade 1 tubular tumor E/P+ER- approx 1.4 mm at 5 o'clock position in my right breast. I was offered bilateral breast reduction (mammoplasty) as a form of reconstruction and jumped on that like a duck on a…

Palliative care is often misunderstood as “end-of-life care,” but in truth, it’s about living as well as possible during and after cancer treatment, for people experiencing all stages of breast cancer. We really want to hear your questions and experiences!