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Has anyone had success with DO IT YOURSELF Cold Capping to prevent hair loss
I’ve found that Cold Capping for an AC-T regimen (4 AC and 12 Taxol treatments) will cost $4,700.00 in Ontario. Was wondering if anyone had success with purchasing their own cooling caps and just using ice vs dry ice to cool caps. If so what caps did you purchase and how many? Thanks in Advance.
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Use of Signatera testing in stable disease
I just had my latest scans, and I am still stable with my current treatment plan- Lynparza, Lupron, Xgeva. In fact, the scan said "no evidence of metastatic disease in the abdomen"- I had tumors in the liver we were monitoring. I ask my MO if there was any way to monitor molecular progression- progression before it is…
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Low positive ER, HER2+ treatment
I'm wondering if anyone has had early stage cancer that is low positive ER and HER2+? My ER is only 5%, but my oncologist wants me to do the standard radiation/tamoxifen protocol. I've seen several studies that indicate a low positive ER should be treated as negative, and that hormone therapy doesn't help low positive ER…
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Thickened womb lining
Hi all. I don't even know where to start, can't quite believe iv found myself on this path again. I was diagnosed with BC back in Nov 2021 had chemo and mastectomy etc and was put on zoladex injections for 19months, finished them a year ago and have been on tamoxifen ever since. Iv not had periods since starting chemo as…
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Bi-Rads 4: Waiting for Biopsy
Hi, this week as been a mind F. I got the below MRI results and my biopsy in in 11days. I am very concerned. I researched the mri respults and all together I am very worried about a diagnosis. I am 42 with two young children. I dont know how i am going to be able to get through the next week and a half of not knowing what…
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Accuracy of markers in Bone Mets
Hi All Just wondering if anyone knew accuracy of CA153 and CEA in detecting bone mets I am very anxiously awaiting results Initial blood test showed ALP was above 200 however CA153 and CEA were well within normal ranges etc Were your markers elevated when bone mets discovered?? and any other symptoms?? Many thanks Love to…
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Got mammo results. awaiting my call back appointment, in a month.!
I’m 77 yr old and have had abnormal mammo. Family history my sister ( diagnosed age 49) who’s had bilateral mastectomies and a paternal aunt who had unilateral mmastectomy. I don’t have any pathology reports on their Cancers. my recent mammo report says: There is an irregular focal asymmetry with spiculated margin in left…
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Is exemestane a steroid?
Hi, everyone. After 2 years on anastrozole, my oncologist has switched me to exemestane, due to my complaints about how I feel. I am now reading about exemestane and many articles refer to it as a steroid. My oncologist had not mentioned this to me, so I just called her to discuss it. She told me that it is NOT a steroid,…
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Break from Letrozole for 2 1/2 months
I will be going back on letrazole after a break after 2 1/2 months due to sudden onset of constant palpitations and one short episode of a/fib. I had to get a cardiac work up and getting that done has taken time. Getting in to see a cardiologist, wearing a zio patch for two weeks, waiting for the results and then scheduled…
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How long after your diagnosis did you stop getting bloodwork to check tumor markers?
I am 5 years out from my stage 1 diagnosis, and I have been getting the bloodwork done every six months since then. They now want me to start getting it done once every year indefinitely. Is this normal? When did you stop?
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Honoring my Mother
My mother died of breast cancer 47 years ago, when I was 30. I was diagnosed 2 years ago and had 2 lumpectomies and radiation. I've written a book about her cancer and mine called "Given Time." The title comes from a poem about olives needing time to ripen on the tree to become edible and the cover is Van Gogh's painting…
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Surgery for DCIS
Tomorrow I will undergo a partial mastectomy not really nervous but I am wondering how long it will be before I make a good recovery? Not sure what to expect in the next few weeks.
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What do you find is best at helping you manage fatigue?
Choose the option that you find helpful to you, and maybe get some ideas, too! Share your thoughts in the discussion below.
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Catholics
Hello, I am Catholic., and I have been walking with Jesus my whole life...and He has saved me from "me" many times...LOL.... One thing I do, is pray.. a lot. I think we all do as Christians. I headed this thread Catholic only because of what I am posting. All are welcome to pray this anytime.. but I did not want to offend…
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Starting Chemo January/February 2025
Let's all join together here for support 😍
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Perjeta and itching
I think this has been discussed a while back, but I was wondering if anyone has anything new to report. I’ve been on Herceptin and Perjeta for about 7 years so far. Weird itching on both my arms (without a rash) started about 6 years ago… got progressively worse, and I’ve been on and off various medications to try to…
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Anastrozole, joint pain and carpal tunnel symptoms
I was diagnosed with stage 2 invasive ductal cell carcinoma in June 2022. I received 4 cycles of chemo, last cycle was in December 2022. I have been on Anastrozole for about a year and have recently started to experience fairly severe joint pain, primarily in my knees. I have also been experiencing carpal tunnel symptoms.…
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Reconnecting intimacy after breast surgery.
It has been over 30 years since my wife's surgery and I failed to give her the love and emotional support she needed then. Now I am desperate to correct my past behavior and regain the intimacy we enjoyed before breast cancer. We have been physically close through the years but it was hands off her reconstructed breast.…
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It feels like my whole life is crashing down
All my life I have tried to leave healthy , avoid junk food , exercise even if I do not enjoy it, do everything to support my immune system and all that shebang. I watched my mom die from breast cancer at the age of 40 and now here I am. Late October , I felt a dull ache in my right best that woke me up in the middle of…
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Differing diagnosis
I was diagnosis with DCIS grade 1 stage 0. I was given the treatment options. I decided to get a second opinion. My second opinion clinic requested the slides from my biopsy and that pathologist determined, I didn’t have DCIS. Has anyone ever experienced this?
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Now what?
I had a double mastectomy almost 2 months ago. I feel like my cancer was some kind of "dream". I am starting tamoxifin this week and other than that I feel so very strange. My whole life perception has changed in less than 6 months and it is such a weird feeling. I don't really know what to do. Does anyone else feel like…
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Question on er negative pr positive ihc report
My mom have liver met recently she was initially luminal b er4 pr 3 her 2 2+ considered negative in fish . But now her new metasis in liver ( only) is er 0/8 negative, pr 4/8 25 percent and her 2 negative 1+ . Can anybody guide me on is this tnbc now or her 2 low or is it still liminal b . Also her ki67 is 20 to 25 percent…
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Free Mastectomy Bras!
FREE Mastectomy Bra! Just pay for shipping. My friend wants me to donate her mother’s mastectomy bras to a BC survivor. All of them are in excellent condition.I have 14 of them and will list the styles, size and brand below. If anyone wants one or more, just send me a PM (private message), and the first one who responds…
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Taxol chemotherapy
I just finished the AC treatment, and will start the Taxol chemotherapy next week. Any thoughts about this????. My experience with the AC was a bit difficult, nauseas, vomit, constipation, upset stomach, weakness, loss of hair; and just for 3 days mainly. The upset stomach last the most like for 5 days and the loss of…
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Bras 101: The Great Post-Exchange Debate
BRAS.......whether you love them or hate them, they are often part of our reconstruction journeys. Whippetmom and I decided to share some information that we discovered throughout our respective journeys through breast reconstruction. There are different practice styles and philosophies among plastic surgeons (PSs), and…
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Kadcyla side effects
Hi, Like to know how tolerable Kadcyla is and it’s side effects. Appreciate any comments.?
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High Risk BC and the Menopause
HI, Im new here, I am 55 and really struggling with the menopause. I undergo a yearly mammogram due to BC in the family. My biological mother died of BC at the age of 46, my sister had BC at 50, but is in remission. I have been advised that both cases were not the genetic BC. My Gynecologist in Germany suggested I take a…
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Breast surgeon recommendation
Can anyone recommend some top surgical oncologists for breast cancer in the NYC area? I appreciate it in advance.
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Aromatase Inhibitors and GERD?
Hello friends, Has anyone dealt with reflux or GERD while taking AI’s? If so, have you used medication to deal with it and what was the result? (I’m on my second AI, so that’s 2 1/2 years with severe reflux. Working with a gastroenterologist now to manage the reflux and try to stay on Exemestane for a few more years.)…
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Newly diagnosed, sort of
Hi - I’m new here, 56 years old, terrified and frustrated with the long timeline for my diagnosis. Since my mammogram on Nov 22, 2024, I’ve been sinking deeply into paralyzing despair with each new waiting period followed by a new piece of bad news. (1) calcifications on right breast mammogram, (2) magnified mammogram…