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Has anyone else used black seed oil?
I am just curious if anyone else has been using black seed oil for breast cancer (nigella sativa) and the results they have experienced. I have been taking it for a few months and I am (so far anyways) stable. I am wondering if I stumbled across a hidden gem or am I the last to know about this stuff?!
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Bilateral mastectomy
I had a nipple sparing bilateral mastectomy on 4/1/24. Invasive carcinoma on the left and two spots of DCIS on the right. Lymph nodes were clear. I’m waiting for the Onco results. I am very anxious, and hoping that I won’t need chemo. Recovery has been tough, but I’m only 6 days post op. Pain management has been a…
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flax seed oil & cottage cheese
Yesterday I read flax seed oil & cottage cheese can cure cancer. Has anyone heard anything about it? There are a lot of testimonies of people whose cancers disappeared after using it. That with a few other remedies would be easier, affordable and I wouldn't have to have surgery. I need to speak with my naturpathic doctor…
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Anyone with Rotter’s Nodes Metastases??
My surgical consult thinks my recent recurrence involves the Rotter’s Nodes and surrounding pectoral muscles . They are trying to come up with a plan to treat it locally but everyone seems to be scratching their heads about how to approach it. I am now being sent to a thoracic surgeon for a consult. Not instilling a lot of…
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Have a lump with negative mammogram and Ultrasound but MRI shows Non Mass Enhancement
Good afternoon, After noticing a lump about 1.5 inches around in my left breast, I went for a mammogram and ultrasound which showed nothing. Because I have extremely dense breasts and there is a palpable lump, they sent me for an MRI with contrast. It came back with the following results: "Left breast: There is extensive…
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What counts as "active treatment"?
What counts as "active treatment"? I'm honestly asking, since I am in that weird liminal zone between "done with surgeries" (I hope), but "still taking meds."
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Embracing What Matters Most After a Metastatic Breast Cancer Diagnosis
Embracing What Matters Most After a Metastatic Breast Cancer Diagnosis Mar 1, 2024 Grief counselor Kelly Grosklags helps Melissa Jenkins moderate a special Virtual Community Meetup on embracing what matters after being diagnosed with metastatic breast cancer. Living with metastatic breast cancer can bring many changes,…
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Lobular Sucks!
Invasive Lobular Cancer (ILC) manifests very differently from the more common Invasive Ductal Cancer (IDC). It is considered an "old lady disease" and I should not be having to deal with it at my age, but here I am. It was difficult to scour the boards for patients like myself in order to learn from the experiences and…
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My Sister/BFF newly diagnosed with breast Cancer
Hello All my name is MsPhil long time member here. Praise God I took had breast cancer now a 30yr Surviver. My BFF/Sister diagnosed last month with DCIS stage 0 we saw oncologist Monday to see surgeon suggest Mastectomy as I took had. Please keep her in prayer as I have always kee All here in Prayer. Thanks
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5mg tamoxifen
Hi New here, just finished 2 surgeries and 15 radiation treatments dcis gr 1-2 Er/pr+ her2 neg. I am 65 Just going to start 5mg tamoxifen next Monday Apr 22. Hesitant when they did the pathology on my sample which was very small I had a slight break in one of the Ducts so that changed me to invasive but it was microscopic…
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Let Down Feeling...Not pregnant! HELP!
Hi. I'm 37 and have been having pain in my left breast as well as a very disturbing "let down feeling" in both breasts. I have nursed three children so I'm very familiar with the feeling. My youngest is 7. I had 2 fairly large cysts drained from my left breast in Oct 2016, and a fibroadenoma removed from the right in Nov…
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My BIRADS 4 experience, please have Faith
I had been having pain in my left breast for almost a year, until I decided to request a mammogram. I’m 39 years old, with no history of BC in my family. March 11th was my mammogram and they wanted to do a ultrasound right then in there too, before I left I was told “we found a mass and it needs to be biopsied” my world…
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Looking for hope
Hi, I am 45 and just recently had my first Mammo. I have very dense breasts which led me directly from mammo to ultrasound. The tech told me at least 5 or 6 times that my right breast was very “angry” and she understood why it was hurting. I have a biopsy scheduled for Thursday (one week after mammo/ut) and of course the…
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Anxiety about coming off Tamoxifen
Hello! I haven’t posted in a while, but I have been on Tamoxifen for almost 5 years (May of 2024 will be 5 years) and my oncologist has talked about me coming off in May, and all of the sudden, the anxiety is real….. I feel like this drug has been like a security blanket for the last five years. I also understand that…
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Bone strengthening meds
what is the protocol on prescribing bone strengthening meds for women on aromatase inhibitors to prevent recurrence?
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Life After Treatment: Hair?
Hey all, First I am extremely grateful to be alive. Given the choice to go through chemo and preventative hysterectomy, I would happily do it again without any questions asked about my hair. But at the same time I thought to ask the question, and maybe some of you might have some resources for me that are safe and not…
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Pros/cons to continuing reconstruction surgery
Good day to all my fellow Warriors! I’m a 65 year old woman who had a bilateral mastectomy with breast tissue expanders for future reconstruction surgery, on 3 26/24. The JP drains were removed on 4/4/24 and my first saline injections to the expanders, was doe on 4/11/24. On 4/12/24, I developed a low grade fever and their…
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Starting Chemo July 2019
I think it’s time to start a July Chemo thread.. who’s on board? I having my port put in on July 23rd and chemo on July 24th. I will be having Taxotere, carboplatin AUC 6, Herceptin and Perjeta for 9 treatments every 3 weeks before surgery. Good luck to all
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Numb toes
I'm starting a new thread because I don't see anything recent in the discussions. I've been having a weird feeling in the bottom of my feet. I don't even know how to describe it. Now, I'm noticing numbness in the toes in my right foot—mostly the little toe. It doesn't hurt, and I don't think it's neuropathy like I had when…
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Question
I am thinking of stopping chemo. I’ve got through 3 cycles of TC but have had a shocker of a side effects ride. This chemo was oncotype score 41 driven as catching any left or mop up. my grade tumour was 3 but node negative. I’ve had two surgeries and will have radiotherapy next. Anyone else got to 3 of 4 chemo and…
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Discordant benign - excisional biopsy follow up
I had an MRI guided core needle biopsy and the results came back as discordant benign. The doctors recommended I follow up with a breast surgeon for an excisional biopsy which I have scheduled for next week. Has anyone been in this situation and if so what was the outcome? I have mixed emotions that it's benign but it…
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Wellbutrin and anastrozole
My MO prescribed Lexapro because he knows more about it, he said. I asked to try Wellbutrin instead because of the depression and fatigue I am feeling from the AI. I have been on ADs in the past, including Wellbutrin, and know it’s a commitment if you want to benefit from them. I started Lexapro but quit after a few days.…
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CALLING ALL ARTISTS- Lets make an art gallery!
We would like to create a slide show gallery of our YOUR art! Paintings, sketches, ceramics, sculpture, crafts, gardens, quilts, photography, jewelry, stained glass, mosaics, poetry .... you name it! We may show this slide show at our annual Rock the Ribbon event on October 22nd. Please post photos here, even if you have…
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IBC Worry
Good evening! Long story short, I started having a severe pain in my breast 3 weeks ago. I ended up at my high risk breast specialist where they did an ultrasound. Turns out I had an abscess. They drained it with a needle and put me on antibiotics. The antibiotics I started with didn’t work and my abscess filled up again,…
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37 went for a Mamo,BiRad4 no subcategory non palpable nodule found. waiting for biopsy. Confused
I am 37 4 years ago I started getting very painful swollen cysts in my breasts. I had a Mamo and US done in 2020 no findings. Had my yearly with my GYN and he sent me to a surgeon to see about draining the cysts. The surgeon ordered another Mamo and US and the findings are as follows :Result: 4D 4 - DENSE Suspicious…
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When to stop anastrozole
I'm coming up on 5 years of anastrozole... After lumpectomy and radiation for stage 1 grade 1 idc. My oncologist knows Im always anxious, but he isn't really definitive on whether or not I should stop the AI. He said I should probably stop it but knowing how anxious I am maybe stay on it for another year or so... I'm a…
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Her2 recurrence treatments
hello everyone What kind of Chemotherapy regimens are you getting for a Her2 recurrence after treatment with TCHP first time around? Drugs, cycle and duration? For your recurrence, what was your time to recurrence?
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Gift ideas anyone? 5- year anniversary coming up
Hello everyone. This June 3 will mark 5 years since my wife was diagnosed with Stage 2A breast cancer (invasive ductal carcinoma, ER/PR positive Her 2 negative) and papillary thyroid cancer. I won't soon forget the terror we felt in early June 2019, what with test results pending and not knowing where it was all going. It…
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Options for reconstruction when you've had radiation previously
I have breast cancer for the third time but had lumpectomy and radiation with prior breast cancer. I am having consults with plastic surgeons for DIEP surgery. For the second time this week, my husband has asked me if there are any other options (don't think he realized how large a surgery this is). I previously told him…
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Enhertu Dose Reduction Results
Hi! I've had 8 infusions of Enhertu at the full dose level and have experienced side effects of fatigue and general crappiness, not in keeping with my quality of life wishes. Because of this, I'm seriously considering going to a lower dose of 4.4 mg. I can't find any data on how effective the drug is at this lower level,…