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Kadcyla side effects
Hi, Like to know how tolerable Kadcyla is and it’s side effects. Appreciate any comments.?
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My Results: Anyone knows what this means
Results Abnormal Impression 1. Negative left 2. 6 mm asymmetry central right MLO posterior third. Recommend right ML, spot right MLO, rolled right CC, right ultrasound 3. Prominent right axillary lymph nodes. Recommend right axillary ultrasound 4. Ultrasound may be cancelled if finding does not persist. BI-RADS CATEGORY 0:…
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Lobular Stage IV Imaging Issues - I Know I’m Not Alone
Hi, everyone. I was thinking about starting a Facebook group for those of us who have so many issues with imaging. I got some feedback from others that they did not want me to start a separate group, so I am starting a group here. Below is my post on Facebook so that you can get a sense of the imaging issues I've had.…
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What to ask at first appt?
I need help understanding what to ask and how to advocate for myself at my appointment tomorrow. First, my condition: My right breast has hurt for five weeks, it’s really sore, but not hormonal sore. Totally different feeling. Sometimes it’s a low key burning sensation, sometimes a shooting pain, sometimes throbbing, but…
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BIRADS 5 Awaiting Biopsy Results & Very Anxious
I very well understand that I should not dwell on all the possible diagnoses that might come back from my biopsy. However, quite honestly, this is consuming all my thoughts and energy. I am so scared of the unknown and of what a cancer diagnosis could do to my family and my life. Only my husband, my sisters, and one friend…
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Do I need to find a breast surgeon?
I've been waiting a few weeks to have a biopsy done for a .7mm spiculated mass. It is scheduled for Thurs but giiven the likelihood of a future week(s) long wait for the results, I'm wondering if I should try to get an appointment with a breast surgeon, or if I am jumping the gun. I'm concerned about the delays, especially…
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My mom was just diagnosed
Greetings everyone. After months of not knowing, my mom has just been diagnosed with "metastatic adenocarcinoma and [results] are most consistent with origin from breast primary." The results are from colonoscopy and pathology is showing ER/PR+ and HER2-. For some background, she was diagnosed in 2013 with IDC on the right…
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Focal Non Mass Enhancement with Washout Kinetic Enhancement
Hello- I'm back again…I have dense breast tissue (48y/o) and finally advocated my way to an MRI approval. In January I had my annual mammogram which was clear (I've had 4 biopsies over the last 8 years, so it's rare that it's completely clear). However, I'm in peri-menopause and have had left side arm-pit pain (right where…
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Breast Reconstruction with Latissimus Dorsi Flap
My name is Sherry and i'm 58 yrs old. This is my 2nd bout with breast cancer. I had it in 2002 and I had a lumpectomy, chemo and radiation. It came back in December 2021 in the same breast. This time my surgeon said that I would need a mastectomy. I have also seen my plastic surgery. On February 16, 2022, they will be…
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Waiting on biopsy
Hi! Never thought I'd be here, but I guess that's the same for everyone. Long story short, I found a lump while in the shower a few weeks ago. Went to see PCP, referred for mammogram and ultrasound. Got back the report with a bi rads score of 5. Findings: Heterogeneously dense breasts. Upper Inner quadrant, 1 o'clock,…
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Abemaciclib Verzenio for All Stages
I've noticed there is a Verzenio discussion in the Stage IV only section, and another in the Stage III forum. I'm starting this thread because I think there could be a benefit from sharing between all the stages - especially when, and if, Verzenio becomes a more common standard of treatment. I started Verzenio 14 months…
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Waiting on Biopsy
I just had a mammogram and ultrasound done and the radiologist put Birad 4 and told me I needed to get a biopsy. Looking at the details, it seems that I have two areas of "fine pleomorphic" one with grouped distribution and one with linear. I have a biopsy scheduled next week. I am very very upset with this news and am…
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Birad 4 -suspicious abnormality
Hello all of you wonderful brave women, This is my 2nd time coming back to this site and reading through posts of encouragement from others. At 41, I had a suspicious finding and a stereotypic biopsy. Results were benign. Now I am here again 5 years later and playing the wait game. My annual mammogram was April 18th and on…
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Rib pain after Double Mastectomy
I had a double mastectomy three weeks ago. I’m now having pain in my left side which may? Be a rib out. I’ve never had a rib out before. Is this common after a double mastectomy to have rib pain or possibly a rib out of place? I don’t feel ready to go to the chiro but boy does it bother me 😫
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Tips for fighting the dark clouds
I've started this thread at the urging of fellow Stage IV sisters. I've been fortunate enough to get a lot of really good advice from friends, healers, therapists, etc., on how to fight the dark clouds that come with Stage IV. Not everything will work for everyone and not everything will work all the time. But hopefully…
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Important Links About ILC
For helpful information, check out Breastcancer.org's ILC section. Podcast: Imaging Tests for Lobular Breast Cancer Lobular Breast Cancer Alliance Brochure - Information for Patients There is also advice and personal experiences from other community members here on the discussion boards, including: ILC Long Term Survivors…
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Pain in back over rib cage
Hi y'all. I just was getting into the car yesterday and my back hurt really bad when it brushed past my rib cage. There is a raised and tender area right there on the side/back of those ribs. Have others experienced this? Cancer survivor brain is real thing I guess. Everything that comes up becomes cancer returning.
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Bottle o Tamoxifen
Dear All, (and Layne are you there?) Got my Tamox today and will start in a week. Where are my tamoxi pals? It says weight loss for one of the side effects. Now that's a good thing. Basha Edited by Mods to add content from the main Breastcancer.org site's section on Tamoxifen in Pill Form (Brand Name: Nolvadex): Benefits,…
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Tamoxifen question
Good morning! I have a question about experience with Tamoxifen. I started on 5mg daily just about a month ago. I understand that is not the recommended dosage but I agreed with my MO to start there. I’ve noticed some mood changes and things like that. The one that is bugging me quite a bit is that I feel like I have…
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fatigue on ovarian suppression and AI?
It's been a long time since I've posted here. I was so scared when I was initially diagnosed but have gotten through a lot - surgery, chemo, and several years of endocrine therapy - no small feat! I'm finding endocrine therapy mostly quite tolerable but have pretty consistent fatigue. Does anyone else experience this on…
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Stage IV - mets to liver and bones need advice
Hi all, Does anyone have experience with ascites/fluid build up caused by liver mets? To give a bit of context, my mum had breast cancer around two years ago and underwent chemo, lumpectomy, and radiotherapy and given the all clear. Over the past couple of weeks her abdomen has been swelling up and it was noticed she was…
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Newly diagnosed - just feeling very lost
Hi everyone, I was newly diagnosed with breast cancer, about two weeks ago. I am just feeling very lost, and for now, just looking for some words of encouragement as I figure out next steps. I was referred to a breast surgeon by my GP, and while the doctor was very nice and kind, she dropped this bombshell very casually…
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DIEP FLAP SURGERY AND RECOVERY SUGGESTIONS
I will be having DIEP flap surgery in February. I am 13 years out from ILC/ bilateral masectomy w/ silicone implants. I have struggled with BII for 4-5 years. Exhausting many specialists, knowing it was silicone toxicity I was struggling with the last 2 years, I finally had Explant surgery last October.i was scheduled for…
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Breast pain
I had IDC at the end of 2019 with lumpectomy and reduction surgery. This past week and a half, I've had uncomfortable pain in the same surgical spot that comes and goes. It's like a burning feeling. I'm FREAKED OUT! I have an appointment with my oncologist next week and am due for my yearly mammogram. Has anyone had…
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Was fat grafting worth it?
Hello, seeking feedback from those who had fat grafting with their exchange from TEs to implants. All input appreciated, with particular interest in results on those carrying a moderate/lower amount of fat. Was the resultant appearance of your breasts worth the extra procedure and recovery? How did the sites from which the…
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How to Ease Stress
How to Ease Stress Apr 12, 2024 Dr. Pamela Ginsberg offers tools and tips on how to ease stress and anxiety after a breast cancer diagnosis. That being diagnosed with breast cancer is stressful is an understatement. It may be difficult to accept the diagnosis. You may feel overwhelmed by making so many decisions at once:…
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Combat dry skin on face
This is not a huge problem, but I thought I’d throw it out to the community. As one of the side effects from the faslodex and/or Kisqali is dry skin, I’m curious to see if anyone has anything that has worked well for them? My face, in particular, is extremely dry and if you look up close (which I hope no one does), it…
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Kisqali/ribociclib, Faslodex/fluvestrant & Xgeva combo - Anyone?
I've been on this combo since Nov 2019. Since all treatment combos seem to offer their own side effects and challenges, I'd like to hear from others taking these drugs. Especially your experiences, duration of success and how you deal with the fatigue, itchiness, etc that goes along with this treatment.
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Primary endocrine resistance
hello. I was dx with stage IV de novo in July 2023. ER/PR+, Her2 - small Mets to pelvis Treatment was Letrozole with Ribociclib. First scan after 4 months showed reduction. Second scan 3 months later showed bone mets reduced but small spots on liver. Told I was primary endocrine resistant. Moved on to capacetabine. On…
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Questions List for 1st Onc Appt
Please jump in and help me craft a list of questions for my first oncology appointment tomorrow? Here is what I’ve got so far: Can you explain my pathology report findings in detail, including the grade, stage, and subtype of my breast cancer? Based on my cancer characteristics (IDC, HER2+, ER-, PR-, grade 3 / Bloomberg 9,…