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Bone Scan
today I had my first ever bone scan. Also a ct scan. During my bone scan after the full body they did a close up of my forearms, chest and then a side chest view. Does that mean there was something concerning or is that normal with breast cancer?
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Scared to LOOK at new Me
Hello All, Has anyone felt like me? I had a skin sparring bilateral mastectomy last week. I had one fill-into my TE since surgery. I still have drains in. So far, I am healing well and feeling good. Yet, I have NOT looked down at the new me. I am scared to see the change and results. I don't regret having the surgery. But…
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Antidepressants
Are there any Stage 3ers on an antidepressant and if so which one.
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Have you experienced cancer "ghosting"?
Have you experienced a withdrawal from any friends or family members since your cancer diagnosis? Please feel free to share your detailed experiences with others below.
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Would you get Covid vaccine?
My warrior sisters... If you have had bilateral suckers or more than stage 1 (hormone status is not relevant) and done w the usual treatments including optional hysterectomy or ovary removal, would you get the vaccine? Simple yes or no is appreciated. No additional info or explanation is requested. P.S. this survey is…
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High number of positive lymph nodes
Can lymph node survivors please chime in here. I had 11 positive nodes,some broken open with cancer and grade 3. After 3.5 years this still really worries me every day. Would love to hear stories of long term survival.
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Need guidance please chemo/ cold cap- was donated to me
Hi Breast can stage 2A her2Positive. I had one chemo treatment April 1 didn’t have cold cap- Next treatment April 22 - Some one just donated the cold cap to me. How do I go about using it. Does the hospital have the machine ? Do they charge just to use the machine it self? Any one know how this works. Do I call my chemo…
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stopping letrozole
I just came from the oncologist and after looking at my BCI and having been on letrozole for six years he told me to stop. I am terrified to do that. Has anyone stopped after 6 years? He said new research says 5 years is enough and now I'm just getting the side effects, not any real prevention of cancer from continuing to…
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Reporting forum feedback and technical issues
Hello Everyone, As with any new technology, it can take time to work through issues and adapt to the new site. We thank you for your patience and understanding, and are here to help support you. Our team is dedicated to giving you the best experience possible, with plans for adding features and enhancements over time. We…
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Very High Estradiol Levels
I am about a year and a half out from my breast cancer diagnosis and treatment. I have been taking tamoxifen since November of 2022. I had a hysterectomy in Sep. Of 2023 because of excessive bleeding caused by the tamoxifen. My surgeon left one ovary ( I only had one due to having the other one removed years prior ). I had…
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Single Mastectomy vs double Mastectomy
I am 37 years old and have been diagnosed with DCIS high grade in my right breast. I decided to do Mastectomy but not sure what to do with left breast as I want to keep it. I have a family history of breast cancer. any suggestions?
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AC-T Latest advice?
hi all, Am starting AC-T and wanted to know if there is any up to date advice or tips to consider? I have heard cold cap isn’t good with it but will use it anyway. Anyone used Paxman with AC-T? Welcome any tips to keep me sane!
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Stereotactic Breast Biopsy next week
It's been almost 7 years since my first discovery of BC (left side). I recently went in for my 14 th mammogram since then and calcification has been popping up on the right one for the last few 3D mammos. It went from 2 or 3 to about 20 tiny dots on the 03/2024 imaging. The report indication said: indeterminate cluster of…
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Reoccurrence after 26 years
Hello to the community. I was only 43 at first diagnosis, IDC, Stage 1, Lumpectomy and radiation. At that time I was not given any medication because my doctor felt it would put me into early menopause and risk of uterine cancer. I am 69 and Recently diagnosed with IDC Stage 1, 3 spots in same breast. I have only met with…
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Bone ALP values Help
ALP is getting high after chemo. It never go back to normal and My MO wasn’t concern. I went to Bone specialist and he found that it’s coming from Bone. I freak out. I am getting bone scan. I don’t have any symptoms. Any similar situations?
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DCIS newly diagnosed
Hi All, I was diagnosed last week with DCIS grade 3 ER- in my left breast. My breast surgeon and I agreed that a mastectomy was necessary because I have two areas of DCIS across my lower breast. I have to get genetic testing and an MRI next week to see if anything is missed in the right breast and would warrant a DMX. I…
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I WANT MY MOJO BACK!
Hey girls, You know, this loss of libido thing is just unnacceptable. I was in the chat room earlier today and mentioned it and man, you should've heard how many of us are experiencing this problem. I promised the ladies I'd post my rant, so here it comes (or....doesn't ). If bc were a man's disease, not only would there…
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Confused
Im a 2 time ILC breast cancer survivor. I’ve been watching a spot on my non- cancerous breast for the past 6 months. At times I think yes, there is definitely something there then the next day it is all but gone only to reappear again. I’m afraid if I make an appointment to have it checked it may have disappeared again.…
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Husband Not Interested in Sex After Mastectomy
Just wondering if there is a thread or a community of women out there with this issue? When I google it, it's usually the woman not interested in sex. It's been 4 years since my bi-lateral mastectomy and the same amount of time since my husband has touched me. Seriously, the last time we had sex was in the hotel room next…
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Late Effects Post Mx Rads
Hi. I had pmrt back in 2006 and have had a lot of issues over the years and wondering if anyone else does. To start, not even a year after my rads I needed an inhaler for a bad cold where I was up all night coughing. Now, I’m not sure what is going on. I had bronchitis about a month ago and I developed a non-stop cough.…
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Stressing out about Elevated ALT levels (things other than liver mets?)
Wow, I have been gone from this site for so long I had a hard time figuring out where things were! This place was a godsend, and every time I start to worry about something, the ladies here have always helped, and I tried to do the same. History - I was diagnosed with Stage IIB back in 2009, had bmx, ACT chemo, radiation,…
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Daniel Field Products with Cold Cap
hi all, Interested to hear if anyone has used Daniel Field’s chemo products to work with cold caps and their success rates. Such as the silicon pad and the cooling booster? And what chemo were you on? I am starting AC-T and I will be using the Paxman cooling caps. Thank you!
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Birads 4B - a glimpse of hope
Hello all..I hope this will give hope to people who seeks “answers” to alleviate their anxiety. Each individual conditions may vary and may not give us the answer we seek but knowing that you are not alone on this trying times will help a lot in geting you by while waiting for that final verdict. 40 yr old, mother of 3,…
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Results
I wanted to thank all the women who responded to my concerns. It turns out that the irregular nodule was actually a cluster of small cysts. There is no cancer evident. I will see the breast cancer surgeon in six months for another mammogram and ultrasound. After a month of waiting, I have my answer. The good news is that I…
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Lynparza High Liver Enzymes & Blood Glucose
This will be week 5 on Lynparza. I’ve noticed since I’ve started my ALT, AST & blood glucose are in the high range. Curious if anyone else has had anything similar. Diabetes runs in my family, would like to get ahead of it. My last A1C was normal but at that time I wasn’t on Lynparza. I’m going to vent; if I bring it up…
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Lumpectomy with radiation vs bilateral mastectomy with reconstruction
Have any of had to make this decision? I have stage 1 invasive ductal carcinoma in my left breast…right is fine. I’ve only to been to one surgeon and she said the decision is mine…either decision will result in the same survival rate. Deciding on getting a second opinion? I don’t know which procedure has the longer term…
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getting an implant after radiation and subsequent mastectomy
I'm looking for input from people who have had an implant on a formerly radiated breast that also had a lumpectomy. I have recurrent breast cancer in the same spot so after doing chemo I now must have a mastectomy. I'm considering an implant but I know the chances of it being unsuccessful are higher when the tissues had…
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Likely bone metastases after 14 years, how much does a bone biopsy hurt?
My question; How much does a hip bone biopsy hurt after the fact and for roughly how many days? Background: BC #1 in 2007 5.5cm DCIS (I was refused mammogram as too young and told it was just normal lumpy breast for 4 years) BC#2 other side IDC 1cm and 4 smaller DCIS's found by mammogram. ER/pR pos Her2 neg, oncotype dx 2…
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Moved: Changing time/symptoms
This discussion has been moved.
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Lymph nodes not in ultrasound
Hi all, Today I had a diagnostic mammogram that included an ultrasound that felt really lackluster until I pressured the technician to look harder, and which ended with an appointment for a biopsy and a referral to a breast specialist for other tests as well as recommendation for a breast MRI. The supervising doctor found…