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Irritability with Letrozole?
Is anyone else dealing with high irritability and low frustration tolerance while taking Letrozole? I'm usually an easy-going person. I ended up in a full-fledged tantrum this weekend over something really stupid. This is so outside my normal behavior, and it's starting to negatively impact my life. Has anyone else dealt…
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CA 27.29 elevated
I finished chemo for Stage 2 ER+ Her2- about 7 months ago, then 20 rounds of radiation, and been on anastrozole and Verzenio since then. CA 27.29 was 21 about a month after chemo but was tested this week (6 months later) and has risen to just out of normal range at 41. I know these tests are not reliable on their own but…
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insurance Diep
I had a mastectomy of the right Breast with a DIEP reconstruction at the same time. A year later, I had a follow-up operation to adjust the size and symmetry of the breast. The skin flap was removed as well. My insurance, Axa (with which I was insured fully for cancer cover), didn't want to cover the cost because they…
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Caregivers: What's the most difficult part for you?
We know caregiving brings both love and exhaustion, courage and worry. What part of the caregiving experience has been the hardest for you to navigate?
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Fearful of IV Bisphosphonates and ONJ - Q About Dental Implants
Hi all, I have taken a combo of Tamoxifen and Letrozole for 5 years. I started with Tamoxifen and switched over to Letrozole after a secondary endometrial cancer put me into surgical menopause. I am now having lots of dental problems which everyone attributes to chemo. Am now on my way to losing my 4th tooth and the oral…
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HERCEPTIN and/or PERJETA Threads
I am currently on Herceptin and Perjeta with Zometa every three weeks. Would love to hear from others who have been on this targeted therapy and how well the treatments have been working for you..
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Hair thinning on Kisqali
I have always had things hair but it has gotten bad, im getting ready to start my 3rd month and I feel I will be bald within a year if it doesn't stop. No actual bald spots, but you see my head plain as day
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Anyone on TRUQAP?
Hi all, it looks like I'm going to be starting TRUQAP soon as an alternative to Piqray. However, it looks like TRUQAP and Piqray both come with some pretty nasty side-effects. I was hoping T would be easier than P. From what I've read, it sounds like Imodium AD may become my newest friend. Yuck! I was hoping for an easier…
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HER2 Positive-anyone 10 years out?
Hi ladies, I was wondering if there are any women out there who are 10 years or longer with her2 positive breast cancer? When I was diagnosed in 2008, my prognosis said '80% chance of no recurrence in 10 years'. Wondered what they based this on, as I have yet to talk to anyone past 6-8 years and they seem to have had…
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Zoladex/Goserelin + Letrozole + Kisqali
hello! I was diagnosed with Stage 2 ER/PR+ HER2- lobular breast cancer late last year and have completed surgery and preventative chemo as there was no sign of spread post-surgery. I started hormone therapy consisting of monthly injections (Zoladex) and daily Letrozole in July and will add Kisqali this month. My hair is…
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Diagnosed with TNBC in April
I have not started treatment yet but have been told to do keynote 522, surgery and radiation. For multiple reasons I do not want to do chemo treatment at this time. The tumor has gone from 3 cm to 5 cm and there may or may not be lymph node involvement scans say no but doctors think may be. I would like to do surgery and…
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No information provided about late effects of radiation before treatment
I'm not sure where this goes with respect to topics, as I am no longer in treatment, so I am taking a stab at it. There was no mention of the possibility of radiation induced fibrosis when I met with the nurse or the radiation oncologist. The written resource they gave me was a booklet from the National Cancer Institute…
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Waiting for FISH results
it’s been 2 weeks since my biopsy. Stills waiting on FISH results. I was really hoping to have them by tomorrow when I see my oncologist. How long did your results take? Last time my FISH results came back very quickly.
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Word Ladder - Part Two
Since the original word ladder has some technical difficulties, Sharon50 has asked that I start it up again. (Could it be a ploy to get around a six-letter word from scarabs? ) Here's a new old game, ladies I will try to guide you if it gets off track 1. Start with a 3 letter word. 2. The next person adds a letter to make…
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Diep and abdominal swelling
My abdomen is still swollen after my Diep surgery back on March 3rd. A cat scan shows no hernia, but "deformity of abdominal wall muscle" per my family doctor. I'm waiting to speak to my PS about my the noticeable bulge on my right side - and in the meantime, found this very recent article (May 2008) about complications…
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Ibrance (Palbociclib)
A bottle of Ibrance came in the mail today. I will start taking it tonight with Femara. Hoping that others starting on this drug will join me here to talk about side effects and how to avoid or treat them. So far, I've been warned about low white counts. I run very low as it is, probably because of my extensive bone mets.…
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Long term benefits vs awful short term sacrifices
Hello all Lumpectomy Oct 21, post op meeting with surgeon, she said"pathology looks good, got the tumor, nothing in the lymph nodes, treatment remains radiation A week later, met with the MO who blindsided me with my high oncotype score(31), and recommended chemo. The idea of going through LBC/risk of infection, hair loss,…
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Help so overwhelmed
I have just been diagnosed with invasive lobular carcinoma in my left breast. I have had my consultation with my surgeon and he suggests I get a lumpectomy and then radiation. I have a second opinion visit set up but after speaking with my children they were set on me getting a double mastectomy. I emailed him and he met…
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Lumpectomy with Breast Reduction and Lift
Hi! I am new to this site. I am trying to get feedback to see if anyone has had a lumpectomy and then had the breast lifts and reduction to go with it. I am trying to see if I just want a lumpectomy or if I want a lumpectomy with the oncoplasty. If anyone wants to share their story of just having a lumpectomy and how that…
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A place for progressive atheists.
After some back-and-forth on “Is anyone with BC an atheist besides me?” about whether or not political comments should be allowed, I decided to start a new thread. To make way of thinking, the current political situation is inextricably linked with religion, since the Republican Party actively pushes for mandated religious…
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Is anyone else an atheist with BC besides me?
Hi I am newly diagnosed and I know alot of people rely on their faith for support and find great peace with that, however I am a atheist and was wondering if anyone else here was also. thanks
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Switching from Letrozole to Tamoxifen
Hi All, My sister was diagnosed with ILC stage 2 in October 2023. She had double mastectomy and she been on anastrozole and letrozole since then. She is post-menopausal. Recently side effects of AIs been hard. Her oncologist recommended switching to Tamoxifen. From what I have read Tamoxifen isn`t very effective for…
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Signatera test -pros cons
I have seen discussion on here about this test, But my oncologist has never mentioned it. Looking for information you have received from your doctors on pros & cons of test. Thanks.
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MBC Patient-Centered Dosing Initiative | Take a Survey
The Right Dose for Every Patient The Patient-Centered Dosing Initiative (PCDI) is gathering insights from people living with metastatic breast cancer to advocate for dosing strategies that balance effectiveness and quality of life. If you are living with MBC in the U.S., take the PCDI survey by…
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Truqap experience
stage 4 Mets to lung, liver, bones and lymph On the sixth week of truqap, handling it pretty well. Some diarrhea that is unpredictable so I always have Imodium on hand. Sometimes I get nauseous and my taste is off. My concern is for the blood sugar levels. Trying to keep my diet during the four days which is no sugars but…
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Starting chemo in October 2025? Let's support each other here!
Is your chemo treatment scheduled soon? Let's share experiences and lift one another up here. We encourage you to share your feelings about starting chemo, what the planned regimen is, how you're preparing, ask questions and learn what to expect from others, side effects you're experiencing and how to alleviate them, and…
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Her2+ MULTIFOCAL
Hi. Anyone here Multifocal with her2+ only ? Er/pr- ? I was diagnosed with 2 tumors they are about 3 cm each and several satellite lesions around them. Nodes were negative. Started my treatment of TCHP. BUT I’ve heard with my tumors being multifocal and large, I have a higher chance of reoccurrence? Is that correct ? Any…
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Having surgery in October 2025? Let's support one another here!
Are you scheduled to have a lumpectomy or mastectomy in the month of October? Join us here where we support each other as we prepare for our surgeries, ask questions about what to expect, share reservations and fears, and support one another through preparation and recovery. And, we encourage others who've "been there" to…
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Concerned
I had my yearly mammo monday. I am 49 with family history of paternal grandmother having breast cancer. Mammo showed small mass 9 cm away from my areola. She had me do ultrasound after and then a cone biopsy for 3 samples. I was given Bi Rads 4 but with no subcategory. Ultrasound biopsy read Oval hypoechoic 0.6 x 0.3 cm…
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Song Game
I play this quite often on a soap opera discussion board I am a member of. It is a cool game imo. I will start with the name of a song. The next poster has to use at least 1 word out of my song name to post theirs and so on and so on. I can see clearly now