-
Progression after ribociclib (or cdk4/6) and letrozole
Hi I had her2 neg er+ breast cancer in 2018. In 2022 i had recurrence in my bones (all over with 3 collapsed vertebrae) and liver. I was on ribociclib and letrozole that worked really well, pet was negative and most metastasis disappear. In August I had liver recurrence. Blood test and markers are ok and i feel well so i…
-
Introduction—Has it been hard to tell people?
Hi, I am newly diagnosed with IDC grade one. My doctors so far are optimistic about treatment and prognosis. My lumpectomy is scheduled for next week. I am nervous about the pathology report. I actually met with my surgeon on my 68th birthday. Happy birthday to me! Aside from my family, I’ve only told one other friend, so…
-
Anyone else with just liver mets
is there anyone else on the board with stage IV only in liver? It seems everyone else has liver and….bone,brain,etc. I’m not complaining but at age 77 keep wondering what’s next or if we are missing something. I feel so sad for the young women and feel I’ve had a full life and I know where I’m going when I die. Not in a…
-
NBN Genetic Mutation...anyone else?
Hello, I was diagnosed with breast cancer at age 29. Genetic testing was brought up shortly after my diagnosis. I decided against it, at the time, for several reasons...the cancer institute in the city I live does not have a genetic counselor so I would have had to travel 5+ hours for this, no family history of breast…
-
Period after chemopause
I went through AC-T chemo 7 years ago at 40 which put me into chemopause. I have been taking aromatase inhibitors since then. I am now 47 and am having my first period. Did anyone else have this happen? I have a call into my oncologist and ob-gyn. Just wondering if it has happened to anyone else.
-
Compression Sleeve for Long Flights?
Background: I do not have lymphedema post lumpectomy and sentinel lymph node removal (May 2023). However I did end up with painful cording a few weeks after surgery which subsided with physio and massage. The lymphedema specialist (who I proactively consulted) said the arm sleeve might be beneficial and wouldn’t hurt…
-
Lumpectomy after bloody discharge
hi all. im looking for anyone to shed light on my risk with the following. im 41. two years ago i had a lumpectomy for what turned out to be a fibroadenoma. just had another surgery to remove a duct that was seen to be dilated with a lesion on ultrasound. i had bloody nipple discharge with this. my pathology reports showed…
-
MRI Biopsy
Hi, I was diagnosed with ADH in June of this year after my mammogram, ultrasound and biopsy. I decided to get a second opinion for several reasons. The second Oncologist practice contacted me in July indicating after reviewing my images that I actually have DCIS stage 0. They recommended that I have an MRI and also…
-
Talking to Children About Metastatic Breast Cancer
Talking to Children About Metastatic Breast Cancer Sep 8, 2023 Kelly Grosklags, a licensed clinical social worker and grief counselor, helps Community Director Melissa Jenkins moderate a special Virtual Community Meetup on talking to children about metastatic breast cancer. Finding the words to talk to children about…
-
Breastcancer.org Podcasts: Experts discuss research & issues
Our podcasts feature experts discussing a wide variety of breast cancer issues and the latest research on breast cancer. Check out all of Breastcancer.org's Podcasts here. In the premiere podcast, we're excited to bring you a summary of the research highlights from first day of the San Antonio Breast Cancer Symposium 2013!…
-
Breast Cancer Screening for Women in Their 40s Improves Survival
Breast Cancer Screening for Women in Their 40s Improves Survival Sep 6, 2023 Breast cancer screening for women in their 40s led to better survival for those who were diagnosed with the disease. Read more…
-
People Receiving Cancer Treatment Benefit From Extra COVID-19 Boosters
People Receiving Cancer Treatment Benefit From Extra COVID-19 Boosters Sep 6, 2023 If you’re in treatment for breast cancer, you’re likely to benefit from extra COVID-19 boosters. How often you get them depends on the medicines you’re receiving. Read more…
-
Healthcare Red Tape Means People May Skip or Delay Cancer Treatment
Healthcare Red Tape Means People May Skip or Delay Cancer Treatment Sep 5, 2023 People diagnosed with cancer who have to do paperwork associated with paying for their care are more likely to skip or delay treatment. Read more…
-
Mindfulness Practices Recommended for Anxiety, Depression in People With Cancer
Mindfulness Practices Recommended for Anxiety, Depression in People With Cancer Sept 5, 2023 Two professional cancer organizations have formally recommended mindfulness practices to ease anxiety and depression in people diagnosed with cancer. Read more…
-
Breaking Research News from Breastcancer.org
Breastcancer.org strives to bring you updates on the latest breast cancer research through its Research News program. Medical experts at Breastcancer.org provide easy-to-understand summaries of what the research means for YOU. Favorite this thread to get notifications on all the breaking news about current breast cancer…
-
Uni mastectomy 2021, want other side out now
I had IDC in 2021 and had a uni mastectomy with rads and chemo, currently on AI and ovarian suppression. I find I'm having more anxiety about recurrence and I'm not sure why. Perhaps it partly has to do with recently finding out that a family member is now dealing with her new diagnosis of IDC. I'm also seeing that the…
-
Ultrasound detected irregular hypoechoic VERY NERVOUS
In January of this year I felt a lump in my breast went the next day and my gynecologist referred me for ultrasound. This came up as a cyst. Then, I noticed how big and tense it feel and my skin is puckering. Now they ordered a biopsy category 4. I’m scared to death! Based on my results can anyone tell if have similar…
-
Breaking Research News from sources other than Breastcancer.org
I watch for research news on breast cancer, treatments, etc., and frequently see interesting articles. There is a topic on BCO called "Breaking Research News from Breastcancer.org." One of the moderators suggested that another topic might be appropriate for posting links and synopses of reports on research found elsewhere.…
-
MRI Results
I have LCIS in my left breast and the lesion was removed. I am now under the regular screening program. The latest MRI was done last week. The doctor called back saying she saw a few areas in my right breast and one in my left breast that have a different color showing in the MRI images. Now she wanted me to go back for an…
-
Just Diagnosed? Start Here
If you have just been diagnosed here are a few places to start from the main Breastcancer.org site: * Understanding your pathology report * Before Treatment: Planning Ahead for Survivorship * Breaking Research News about Planning Your Breast Cancer Treatment Also, a great thread chock full of advice for those just…
-
Update —- Lumpectomy with Breast Reduction - Larger Ladies - Questions!
Hi! I am just stepping into this world. I'm recently diagnosed and I don't have all my mass typing info back. What I do know is that I am meeting with a surgeon on the 22nd, unless something changes. I am a 36DDD. I feel like there is a ton of tissue and if I do the lumpectomy with reduction/lift, I could get some really…
-
Seroma
Hi I’m wondering if anyone can help me out with 2 issues actually The most important is that I had a total L mastectomy July 20th The Dr removed the drains 1 week later,which both myself &my home care nurse thought was way too soon bc of the amount of fluid still coming out Of course 1 wk later I had this massive Seroma…
-
Quit AI drugs - how long to wait before osteo arthritis interventions like PRP?
I was on AI drugs 15 months (Letrozole 11 months, transition 1 month, Anastrozole 3 months). I was unable to tolerate the joint pain and now take Tamoxifen 20 mg (1 month). My knee osteo arthritis advanced during last year. Symptoms were lack of range of motion, pain when moving, and loss of strength to stand (likely…
-
Not diagnosed, waiting for results
I have never posted in anything like this before. I was given a BI RADS 5 rating with an axillary lymph node with 7mm cortical thickening. There’s zero family history, I’m 45 years old, I’ve never had an unusual test result before and other than a few extra pounds I am very healthy. This time I felt a lump but it came out…
-
Sacituzumab Govitecan (Trodelvy)
Hello everyone. I was wondering if anyone(s) could share any experiences they have had using sacituzumab govitecan (Trodelvy) either in a clinical trial or as recently approved by the FDA. We are trying to determine if it's the best plan of action for my wife at this time. There are 2 key things we are trying to determine.…
-
Itchy chest wall 2 yrs after reconstruction
I had double mastectomy with immediate reconstruction after previous DCIS lumpectomy and recurrent cancer in both breasts. I wanted my original C cup, but ended up with D cups (go big or go home surgical approach?). The extra weight is not fun, and the chest wall itching started after year one. What helps me the most is…
-
calling all t1A (> 1 mm but < 6 mm) sisters who are HER2+
I decided to start this thread to help others who may end up in this "grey" area and are struggling to make a decision about chemo/Herceptin or not. Current national guidelines do not recommend treatment for our stage. Treatment is only considered for 6 mm and up HER2+ sisters. HOWEVER, some docs do still treat t1A…
-
CONSTIPATION--problem with so many of our drugs
This thread will talk about constipation. The nemesis of cancer patients. If you post helpful information make sure to identify that all recommendations should be cleared with your doctor. Preferably, your Gastroenterologist (GI doc) or Primary Care Physcisin PCP). Cancer docs, I would say that this isn't there strong…
-
Ghost and Other Phenomena: What's your Story?
I have had many in my life, not sure when the earliest occurred. Perhaps, the inner voice that cautions is the strongest in me. It's totally different than the right left angels talking to each other on our shoulders. It's the voice that says something different. Mine have always been short seriously abrupt messages. "No',…
-
Anxious about mixed scan results
Hi all, ER+ HER2- with mets to lung, liver and bones for 6 years. Been on xeloda for about 4-5 months now and had my first scan, which showed significant improvement in all areas except for two stupid little bone mets. It worked in my lungs, liver, every other bone, aside from these 2 (one spot on hip and one in femur)…