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Ki-67- ONCOTYPE? What was everyone’s experience?
I’m just sort of curious. For those who had a ki-67 number before your oncotyoe, what were your numbers? I’m wondering how often a high ki-67 results in a high oncotype, and vice versa. What’s your experience?
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Breast Cancer Risk Remains High for BRCA+ Women After Age 50
Breast Cancer Risk Remains High for Women With BRCA Mutations After Age 50 Mar 2, 2023 Women with BRCA mutations continue to have a higher risk of breast cancer after age 50. Read more...
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"Roll Call" for those who've stopped Hormonal Therapy early - short post to share status?
If you quit or reduced hormone therapy and don't mind sharing future status at least once a year, could you share concisely current cancer status (no evidence of disease, metastisis, new breast cancer) or other health facts? This will give an easy to follow thread of results of quitting. It is such a gut wrenching decision…
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Side effect difference going from tam to an ai
There’s a chance I will switch from tamoxifen (2 1/2 years now) to an AI. I am premenopausal but contemplating hysterectomy then switching. I haven’t had much trouble with weight gain or hot flashes on tamoxifen, and I wanted to know if that for sure will change if I switch. Also, is it a dramatic change in side effects or…
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Are recurrence risks as high as they seem?
I was diagnosed with hr positive/ her 2 negative breast cancer in August at 38 and have been in a horrible mental place since. I thought a place like this would help me feel less alone, but instead I think it makes me more fearful. My doctors keep saying that I have the “easy” breast cancer, but after looking at posts, it…
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Halaven - Day 1
So, I'm the first person on this newly approved chemo at my med center. Lots of people who told me side effects.... They had a fancy dinner put on by the drug company last night so they all would know about it... :) Funny, no one gave ME steak and shrimp. Anyway, got hooked up to some saline as usual (altho, my onc's nurse…
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Should I switch to a different chemo provider, or is this normal?
Hi everyone! I'm brand new here, just had my first Taxol treatment yesterday. Reading through these message boards it seems like there's a lot of information my chemo center left out, I'm honestly thinking of switching to a different provider but wanted to ask here if maybe I'm overreacting? Before my first treatment, I…
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Rejecting hormone therapy
I had a lumpectomy last month with clean margins, no lymph involvement and an Oncotype of 17. I start radiation next week and it has been suggested by my MO that I start a 5 yr course of Tamoxifen upon completion of my 21 radiation treatments. The Tamoxifen side effects I've read about seem real quality of life destroying,…
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Looking for advice re: hormone treatments
Hello - I am a 77 year old, post-menopausal woman and am new here. I was recently diagnosed with invasive lobular carcinoma of the breast. I've had multiple tests, including CT scans, MRI's, ultrasounds, biopsies, and an Oncotype DX Breast Recurrence test. I had a lumpectomy about a month ago. They removed a 23mm tumor…
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My Chemotherapy Journey
My infusion nurse suggested I make a journal so I will do it here hoping people can find information that may be helpful to them. Let's start: June 11 - port placement. It went well, I guess. But not sure if there was an injury with my surgeon. I saw him discussing something with the nurse like his finger got pricked or…
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My wife's period is back after 5 1/2 years of Tamoxifen
My wife was diagnosed with Stage 2A ER/PR positive, Her2 Negative back in June 2019. She went through 2 surgeries, chemotherapy, radiation and hormone therapy. She started taking Tamoxifen in late 2019 or early 2020. She has co-morbodities Thyroid Cancer, Type 2 diabetes, liver steatosis, diabetic nephropathy, and likely…
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Phesgo?
Has anyone taking Phesgo every come down with a really bad itchy rash?
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Estradiol cream and focal asymmetry
I just had my annual screening mammogram and need to go back for more imaging. Focal asymmetry BiRads 0. The best I can tell, the radiologist saw a new area of density in the left breast compared to three previous films. A few months ago, I changed from Premarin vaginal cream to Estradiol cream. The dose on the estradiol…
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Kisqali side effects and timing
I was diagnosed with stage four NBC earlier this year and just started a combination of anastrozole and Kisqali. I am three weeks on with one week off. I have experienced some persistent nausea, but most concerning is my serious fatigue. I’m wondering if this improves over the months as you continue with the Kisqali? I’m…
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Abemaciclib Verzenio for Stage IV
Luckylegs and friends on Abemaciclib - I am bumping the Verzenio discussion in the hopes that more people have started abemaciclib. We need to get a community going. I have not started abemaciclib but it is on my short list. Like many I am very interested in how people do on this treatment do, both as a monotherapy and in…
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Feeling nervous about starting the Baby Tam
Hi everyone. So, I was diagnosed with ADH recently , I had a lumpectomy with clean margins about a month ago. My Breast Surgeon/Oncologist recommended that i start taking 5mg Tamoxifen daily for 3 years. She said that i have a 41% chance of getting breast cancer in my life but if I do the baby tam protocol it would reduce…
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Stereotactic biopsy
i have IDC and was suppose to have surgery on the 28th. The day before, my surgeon called to cancel. There are suspicious microcalcifications that we want to test first. On the 29th I had an MRI and was suppose to have a stereotactic biopsy on the 10th. Today the nurse called to say they want to do it sooner. She will call…
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Scared and Confused
Hi! I'm sorry to keep posting, I'm just so confused and scared about my diagnosis. I spend most of my time googling which is making things worse and it's because my surgeon and RO seem to be on the same page but my oncologist says something different so I don't understand what is going on. I was diagnosed with ER positive…
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The husband's and partner's corner
A gathering space for the partners of loved ones with breast cancer to discuss your unique experiences.
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Phesgo - post pCR
Would love to connect with folks who are doing stand alone Phesgo after pCR. I have a hard time finding info on SE's and the journey post chemo and surgery that's not connected to receiving chemo at the same time. For instance, hair regrowth. Does Phesgo slow the process? Anyone experiencing swelling? ETC. My hair is…
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BREAST IMPLANT SIZING 101
DISCLAIMER! I am not a physician or medical professional. The information provided is my own personal opinion. You must discuss every aspect of your reconstruction with your plastic surgeon. PLEASE NOTE: New information!! Allergan now has a very easy chart to follow to help you see how sizing works in relationship between…
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Regaining Muscle Strength and atrophy
I am early in this journey. I had my first consultation with the plastic surgeon yesterday. I'm 66 and opting for a bilateral mastectomy with reconstruction. The oncologist will take one lymph node on the right side. I am concerned about the recovery time and loss of strength in my arms as I am a ceramic/ clay artist and…
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High liver enzymes
Hi, This is my first post. In December 2024 i found out my original breast cancer from 2020 had returned, metastasised to my sternum & lungs. I started Kisqali in January 2025, halfway through cycle 2 I had to stop taking my tablet due to acute raised liver enzymes, I am currently 4 weeks off the tablet, my ALTs are…
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Mucinous Carcinoma of the breast
On April 21st I had a core biopsy and today I was told that I have mucinous carcinoma of the breast. When I investigated on this website, the information given was that this is a rare type of cancer, about 2-3% of all breast cancers and usually occurs in post-menopausal women over the age of 60. I am neither. I am 51 years…
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Important new info for HR+ patients.
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Does anyone have experience with Dr. David Otterburn in NYC?
I am strongly considering a revision surgery to go from sub-pectoral to pre-pectoral implants. While I have a good (sub-pectoral) cosmetic result if I stand up very straight and don't move, I have felt inhibited by animation deformity and ptosis for so many years (I am single). I have talked to several surgeons, and they…
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Lymph-bypass in forearm after unsuccessful axilla surgery
Hello, I was supposed to have LYMPHA (bypass) during my double mastectomy/ALND in 2023. The surgeon at that time could not find any good vessels to make the connection in the axilla. So, I wear a sleeve 8 hours every day and do regular manual lymph drainage to manage mild lymphedema and keep it from progressing. I've also…
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Has anyone had success with DO IT YOURSELF Cold Capping to prevent hair loss
I’ve found that Cold Capping for an AC-T regimen (4 AC and 12 Taxol treatments) will cost $4,700.00 in Ontario. Was wondering if anyone had success with purchasing their own cooling caps and just using ice vs dry ice to cool caps. If so what caps did you purchase and how many? Thanks in Advance.
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Finishing verzenio
I have just finished two years of abemaciclib, following on from surgery, chemo and radiotherapy. I was lucky that just as I finished radiotherapy, Verzinio was approved in the UK for stage 3 BC patients with high risk of recurrence. Given the pretty awful side effects as well as the timing, it means that there aren't many…
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Use of Signatera testing in stable disease
I just had my latest scans, and I am still stable with my current treatment plan- Lynparza, Lupron, Xgeva. In fact, the scan said "no evidence of metastatic disease in the abdomen"- I had tumors in the liver we were monitoring. I ask my MO if there was any way to monitor molecular progression- progression before it is…