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Brain MRI every 6-12 months?
Have any of you been told to get a Brain MRI every 6-12 months "just in case" by your MO? Before starting treatment 2 years ago, I asked my local MO if I should have a Brain MRI and she stated, "Only if you are having symptoms." At that time I also had an MO at a distant teaching hospital. She insisted I have a Brain MRI…
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Newly diagnosed - need advice
Hello community, I am sorry we are all here for similar reasons. I wish you all a full recovery and a long, amazing life. I have recently been diagnosed with breast cancer. I have an appointment with the oncologist early next week, I don’t have any details (type of cancer, stage, etc.) In preparation for this appointment,…
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Any Stage 4s on Semiglutides?
I have lately thought about possibly going on a semiglutide to help lose weight. I have been dealing with breast cancer since 2010 (since 2019 at Stage 4). My weight has continued to creep up and I have struggled trying to the lose weight and I have lymphedema from cancer treatment. My MO told me about a year ago that he…
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Asking for Tips - Starting Chemo Next Week
My port goes in Friday and I start 4 cycles of TC chemo that are three weeks apart on June 30. I decided to not mess around won’t cold capping but embrace the opportunity to get purple hair that I’ve wanted for 40 years. With that, what are people doing while they just sit there and wait for hours for the infusion? What…
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Partners support, aloofness and anger
I don’t know how to cope with being two weeks post op mastectomy with diep flap reconstruction and my partners anger and avoidance. My husband is arguing with me every day now we’re at home from the hospital. Thankfully his mom is here helping and he doesn’t act out in front of multiple people. I have teens 50% of the time…
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Brain Mets Sisters
Starting this for a friend. Edited to explain that the friend was imbell who was feeling overwhelmed by wbr. She helped us all by starting this. Shes in peace now. See you in the clouds, imbell.
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The Next Person Game
In this game you make a statement about the next person. The next person answers true or false to that statement. They then make a statement for the next person, and so on. Example: If the person before me stated - The next person owns a dog. I would answer - True - and add my statement - The next person has curly hair.…
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Doing Well on Aromatase Inhibitors (AIs)
I read a suggestion that someone should start a topic for women who are NOT experiencing severe SEs while taking Arimidex, Femara, or Aromasin. I'm about to start taking Arimidex and when I read about the potential SEs I get discouraged. Maybe others would also like to hear about positive experiences. We would love to hear…
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ILC Long Term Survivors
Does anybody know people, or are you someone who has survived ILC long term, (more than 5 to 10 years) without a recurrence? Please post! I was diagnosed in 2004, and think I am fine, but, as I see from the boards, you can never be 100% sure. Thanks! Nancy
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Breaking Research News from sources other than Breastcancer.org
I watch for research news on breast cancer, treatments, etc., and frequently see interesting articles. There is a topic on BCO called "Breaking Research News from Breastcancer.org." One of the moderators suggested that another topic might be appropriate for posting links and synopses of reports on research found elsewhere.…
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Her2+++ ER- PR- novo stage IV
I’m her2+++ ER-PR- novo stage IV, had multiple tumors in both lungs. I started in 08/2022 with Taxol Herceptin Perjeta. Stopped Taxol after 18 rounds and still continue every 3 weeks with Herceptin Perjeta. December 2022 after I completed Taxol all my tumors were gone so for the moment 2 years NED. Anybody longer than 5…
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What topics/experts would you like to see on The Breastcancer.org Podcast?
Hello, I'm Jamie, senior editor at Breastcancer.org and host of The Breastcancer.org Podcast. I'd like to make sure the podcast is answering questions that Community members have. Are there topics you'd like to see covered? Experts you think I should talk to? Do you want to share your story? Questions you want answered?…
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Bottle o Tamoxifen
Dear All, (and Layne are you there?) Got my Tamox today and will start in a week. Where are my tamoxi pals? It says weight loss for one of the side effects. Now that's a good thing. Basha Edited by Mods to add content from the main Breastcancer.org site's section on Tamoxifen in Pill Form (Brand Name: Nolvadex): Benefits,…
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Mother recently diagnosed with stage 4
My mother was recently diagnosed with metastatic cancer with “innumerable” mets throughout her bones. I’m still in so much shock from the diagnosis but really thinking about how to reorganize my life to be closer to her during this time. I currently live in another country with my partner and know that we need to make some…
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What is one thing you wished you knew about DCIS or any breast cancer diagnosis??
I went into my post DCIS diagnosis under the false assumption that my lumpectomy on the right breast and reduction on both was a one and done deal. I was not prepared for the roller coaster of events that occurred post surgery. DCIS in the 3X biopsied benign left breast, a left mastectomy, tissue expander placement,…
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Any stage IV surviving 5+ years ?
When you look up stats for stage IV they’re dismal, yet I continue to see lots of longer term survivors on this site. Some were given a year or two. Would love to hear how many are there and how life’s is for you. I’m coming up on three years and just failed with letrozole. MO says plenty options sti
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need to find how to treat it
I am asking on behalf of my mother. My mother is a 79-year-old woman with metastatic breast cancer involving the bones. She was originally treated with Letrozole for approximately 4.5 years. When Letrozole was stopped, she subsequently developed significant disease progression with severe hypercalcaemia and further…
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Diagnosed with Stage III Breast Cancer - Start Here
For more information on Stage III Breast Cancer check out these resources at our main site: Breast Cancer Stage III Treatment Options by Cancer Stage: Stage IIIA, Stage IIIB, Stage IIIC If you are interested in connecting with other members diagnosed with Stage III Breast Cancer check out this topic: A Place to Meet and…
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Poll: What surprised you most after being diagnosed with breast cancer?
After a breast cancer diagnosis and the whirlwind of treatment calms to a breeze, there can be pressure to move forward. To feel grateful. To seem okay again. But many people in our community describe something more complicated: learning how to carry a diagnosis while still trying to stay connected. To themselves, to the…
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Progression After Truqap (Capivasertib) + Fulvestrant – Seeking Experiences and Next-Step Options
I am seeking experiences and suggestions regarding next-line treatment options for my wife with HR-positive, HER2-low metastatic breast cancer. She has recently progressed on ibrance with exemestane then Capivasertib (Truqap) plus Fulvestrant, with PET imaging showing progression mainly in the liver and lymph nodes.…
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Occult bc ER low (5%) HER2 neg treated as TNBC
I was diagnosed May 26, 2026 with breast cancer after a lymph node was biopsied after routine MRI(I have had LCIS since 2011.) further test and biomarkers show no further metastatic cancer and the breast is the source. No tumor found, so they are calling it TNBC. My Ki67 is low, 11-15%. I feel like I’m the only one dealing…
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fungating tumor
how to treat a fungating breast cancer tumor
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Haiku for Fun
Hi everyone. I've seen some poetry and Haiku on individual threads, but thought we could use a separate thread. I am in no way an expert, and this is simply for fun, so we won't go nuts if you don't have a "cut" or nature theme or other rule. The only rule on this thread is a measured syllable poem. Most common is 5-7-5.…
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Is there just a general drop in breast cancer open forum that is current ?
Is there a breast cancer drop in text discussion group that is current ?
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Losing weight
Hello Came here for some tips on losing weight. I started a diet almost a month ago and I'm struggling because I see almost nothing. It's my first attempt to diet since the diagnosis and I'm sad to see and feel how different my body is now. I don't recognise myself. I don't want to quit but i really need to see something…
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Lumpectomy Lounge....let's talk!
WELCOME TO THE LUMPECTOMY LOUNGE! I've searched and searched BC.org and couldn't find a specific post just for those of us who have had lumpectomies (unless there was one and it got buried). So, I thought that it was about time that we had our own place that we can come to...where we can discuss, ask questions, tell…
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Enhertu treatment
I just had my first Enhertu treatment last Thursday. Has anyone experienced blurry vision? If yes, did it resolve or get better before your next treatment? I'm due to have this once every three weeks.
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How to choose whether to do chemo or not
My oncologist has essentially told me that the decision about chemotherapy is mine. The research suggests that my type of cancer may not benefit much from chemo and that ovarian suppression may provide a similar benefit. I enrolled in the OFSET trial and was randomized to the arm that does not require chemotherapy, but my…
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Calling all TNs
I think that we tn's need to have a sign up list like some of the other threads have...maybe put your age, and also what treatment you have had or are now having. What to do you think? I can start: age 50, diagnosed at age 49 1/2, lumpectomy, 4 AC Dose dense (every two weeks) and 4 Taxol, Dose Dense every 2 weeks. 35 rads…
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Do You Feel Pressure to Seem Okay for the People Around You?
Do you ever feel as though you need to diminish your own needs for support or care in order to put on a brave face for people in your life? Has it been difficult to allow yourself to be vulnerable with friends and family, out of fear or concern that you might be a "burden" or that the reality of what you are facing would…