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20 year survivors (or more) of triple negative breast cancer
Today is pretty exciting, I am officially a 20 year survivor of triple negative breast cancer.. pinch me!! Are there others out there who have reached this milestone? I wrote frequently on this forum in 2006. I am from Calgary AB Canada, was 42 when diagonsed in 2006 stage IIA, grade 3, 1 postive breast node. Was in a…
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Halaven - Day 1
So, I'm the first person on this newly approved chemo at my med center. Lots of people who told me side effects.... They had a fancy dinner put on by the drug company last night so they all would know about it... :) Funny, no one gave ME steak and shrimp. Anyway, got hooked up to some saline as usual (altho, my onc's nurse…
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Recently Diagnoised
Just found out my diagnosis 2 weeks ago. Have felt like I have been in an emotional fog until a few days ago. It was just too big for me to wrap my head around. Too many questions and variables to think about. Guess I needed to process through it. I am happy to have found this place. The information has been invaluable. I…
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autologous fat transfer - poor result
last week I had liposuction and fat transferred to the breast area where I had a mastectomy. I also had a lift and reduction on the other side. I was a D on that side and now it's probably a small B. The fat transfer doesn't show any noticeable increase in the volume of the breast. I understand there are limits to what the…
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peritoneal carcinomatosis
I am looking for others who have peritoneal carcinomatosis who would like to share their stories and treatments.
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Trying to find similarly aged people for a friend to talk to
Hi everyone, I have a friend who was recently diagnosed with breastcancer and is now undergoing treatment. She has expressed to me that one of the things that she is struggling with is not having any similarly aged people to talk to at the local support groups. I believe she has stage two breast cancer and she is in her…
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AI Chart Notes From My Doctors
Hello! Recently I noticed my doctors have started using AI to write up their chart notes. Everywhere I had said “I have concern about….”, the AI Monster wrote “I have anxiety about….” which to me is NOT the same at all. This last chart note was so humiliating (even my usually placid husband was shocked because he was there…
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Have you experienced PTS or PTSD following a breast cancer diagnosis?
Please share below your experiences with PTS (post-traumatic stress) or PTSD (post-traumatic stress disorder). How has this affected your life, the way you feel, your relationships, activities? And how are you managing?
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Community Recommendations for EXTERNAL RESOURCES (Non-Book)
ALL EXTERNAL RESOURCES (Non-Book)Below is the consolidated list, and we invite you to please add in the discussion!! 🧠 Mental Health, Coping, Wellness Calm Meditation App — https://www.calm.com/ua-homepage Project Life (Virtual Wellness House) — https://www.projectlifembc.com/ Moving with Milly (YouTube)…
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19 years later - reccurence in supraclavicular lymph
19 years ago (43YO) - DCIS, Uni Mastectomy, no further treatments Now - Postmenopausal (3 years), swollen supraclavicular lymph node (same side as initial mast), PET scan also found 2 other lymph nodes - intramammary at 2nd rib, and mediastinal node (near spine and heart). ER+, PR+, HER2- Dr says it is a unique situation…
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Waiting for biopsy
51 yr old high risk from family and had a mri. Found something. Was sent in for ultrasound. Now they have 2 spots in my right breast that waiting for biopsy appointment. Very scared. Dense tissue in both wonder if they should have done a ultrasound on the left too?
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Lymph Nodes on Ultrasound
Many of you have experienced pain under the arms or felt "swollen" lymph nodes and have had reports that were just short of complete in describing them in my opinion. The overall size of a lymph node is more often less important than their internal architecture in breast cancer. The key is the thickness of the cortex and…
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My 20th year is finally here!
April 28, 2006…the day my life changed forever. As most of you know, it's hard to imagine life beyond those three words "you have cancer" (or in my case it was "we have a problem.") Soon after my diagnosis, my husband & I were on the sidewalk in Cannon Beach discussing my condition with a friend. We were approached by a…
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Trodelvy vs Eribulin SDX 7320
Hi, I'm Vita.My mom is Stage 4 Triple Negative breast cancer, now metastasis to liver. We have to choose this week which chemo... does anyone have any experience with these 2 listed above? Any info will be appreciated...
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Request for Opinion on Adjuvant Chemotherapy Strategy
I am reaching out to seek your opinion regarding the adjuvant treatment plan proposed by two different oncologists. By way of background, my mother is 68 years old and has already undergone breast-conserving surgery for a left breast lesion. The primary mass was removed successfully. During surgery, additional suspicious…
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Any newly diagnosed women from Vancouver BC?
Just diagnosed with IDC with lobular features. ER and PR + and HER2 - I’m scheduled for surgery June 11th - a lumpectomy with a Sentinel node biopsy. My “non affected” breast hasn’t been checked/had an ultrasound … I believe this should have been done, or should be done prior to surgery. if this cancer is estrogen fed…
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Tiredness and dose reduction kisqali
hey everyone. my first post. I am 18 months into treatment with stage 4 in bones. Ive had a couple late starts on treatment due to neutropenia and a gross gastric event shall we call it. anyone else really tired sometimes on this stuff?? I’m lucky fortunate to have stability on this stuff and very grateful for that but it…
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What do Percentages really mean?
I went for my first mammogram after treatment today. They didn't really tell me anything but I just checked the portal and my report was out there and it doesn't appear as if they found anything in either breast. For a brief second I felt ok but then I saw this "Breast MRI screening in six months (This patient has a…
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Pelvic ultrasound question
Hey I just wanted to get someone else’s opinion. I just had a pelvic ultrasound done for some irregular bleeding,pelvic pressure and pain. I am 4 years on tamoxifen. It was done in my GYN’s office and was told the doctor would read it. I asked if it would be sent to a radiologist and they said no. It worries me with my…
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STEAM ROOM FOR ANGER
This thread is meant to be for RANTS and RANTING. Then Rant again. We need a place to simply get rid of the anger. Write it here. Unleash it all. Get it out. This isn't meant for the Stupid comments(great thread). This is for the gut wrenching, tell them off anger. IMPORTANT: When done ranting don't necessarily stick…
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Letrozole vs Exemestane
has anyone switched from exemestane and noticed relief from some of the side effects of letrozole?
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🌟 May 2026 Radiation Roll Call — Come As You Are, We’re Right Here With You 🌟
If radiation is part of your plan this May, we’d love for you to join in here. ☀️ This isn’t just a check-in—it’s a place to connect with others who understand the routine, the build-up, the questions, and the quiet strength it takes to show up day after day. Whether you’re counting down to your first session, in the…
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Asking For Help on Information about what I'm going through thank you Lynn
asking I went for a follow up 3D mamagram and very hurtful sonagram and afterwards was told they found a small spot in My left breast and to come back in six months I didn't like hearing that at all to wait to see if it grows I'd like it out immediately the doctor I went to afterwards didn't seem to think waiting was just…
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Just diagnosed, what can I expect?
I'm 48 and got the results back a few days ago…2.2 cm tumor left side ER+ PR+ HER- ki67 20.6% with atleast one confirmed positive node. I’m seeing the surgeon in a few days to discuss treatment. There is so much information and i don’t even know what questions to ask. My first grandbaby is due in a few weeks, I love my job…
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Hematoma and infection from mri core biopsy
I had a mri core biopsy 3.5 weeks ago, they took 12 core samples from a 2.6 cm linear nonmass enhancement found on mri. The biospy numbing was very painful because of the retroareolar area being the target. I had lots of bleeding and had to wear a compression wrap home, instead of a bra. I developed a large hematoma but…
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New primary diagnosis
I was unsure about where to post this, since I have a few questions that probably overlap with other groups—probably an atypical scenario. Was just diagnosed with invasive lobular cancer at the scar site of a previous lumpectomy (8 years ago) for tubular cancer—a rare and non-aggressive subtype. Pathology report also…
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Just scared
Hello all. I haven't posted in quite a while. In October 2025 I celebrated my 5 year cancerversary. On May 1,, 2026 I was in the ER for a completely different reason, and had a CT scan with contrast of my thorax. The results from the radiologist took longer than the ER docs expected. When they came back in to talk…
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Triple positive grade 3, stage 3A
I just recently finished surgery and pathology. Imaging showed a complete response. But then path comes back as RCB 3! I had 2 nodes with extranodal extention and now have to go back for alnd. What the heck 😭 I need encouragement and maybe long term survivor stories. I’m 43 w 3 small daughters.
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TRIPLE POSITIVE GROUP
This is primarily for people who find themselves with THREE +'s by their diagnosis. If you are new to breast cancer, please click on the link below and read. It is "What I Wish I Knew At the Beginning of Treatment." http://community.breastcancer.org/forum/6/topic/797454
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eye (ocular) metastasis - a rare location for metastatic breast cancer
Three weeks ago I thought I might have a retinal tear when I woke up one morning with bright flashes in my eye. But my optometrist saw something different. Long story short he referred me to an ocular oncologist and she diagnosed me with breast cancer eye metastasis after almost 9 years NED. It's a rare location (only…