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Tamoxifen dosages - anyone with IDC do 5mg?
I recently got a hold of my doctor's notes for each follow-up I had with him since 2019. I reviewed everything, and saw how my dosing of Tamoxifen was all over the place. For intervals of a year or several months, I was taking 20 mg, 10 mg, or 10 mg every other day (effectively 5 mg). I did have some endometrial thickening…
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Abemaciclib Verzenio for Stage IV
Luckylegs and friends on Abemaciclib - I am bumping the Verzenio discussion in the hopes that more people have started abemaciclib. We need to get a community going. I have not started abemaciclib but it is on my short list. Like many I am very interested in how people do on this treatment do, both as a monotherapy and in…
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Calling all triple negative breast cancer patients in the UK
With so many forums and threads on this site to go through for information, I thought it would be a good idea for all of us in the UK to form a forum specifically for us, and to give our details and experiences in a compact manner. Anyone else in the world is welcome to join in. I was diagnosed with a very large tumour,…
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PET Scan results are on portal - have not heard from doctor
After being diagnosed with a new breast cancer (my third in the same breast but apparently not a recurrence based on pathology), I had a PET scan prior to my scheduled SMX. The results were in my portal a few hours after the test yesterday morning but now, a day and a half later, no one has called to discuss the results.…
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Changing time/symptoms, mets in lungs and spine
I am very new to having stage 4 metastatic breast cancer to my lungs and spine. I was initially treated as stage 2 in 2019, had surgery and radiation and was placed on Tamoxifen. In June 2023, I developed this persistent cough that wa making it hard to breathe. I had a PET and biopsy in August that confirmed my cancer…
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Keytruda Adverse Event and Rechallenge
Hello fellow TNBCers, I am reaching out for help regarding a situation I am in. I was recently diagnosed with TNBC back in January 2024. Invasive Ductal Carcinoma, Stage 2B (maybe A, 4x lymph nodes lit up on my petscan, but the axillary node which was biopsied 2x, one as FNA and a repeat with a core needle, both came back…
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Given my dx, should I adopt a dog?
Okay, bear with. Last year was the sh*ttiest year of my life, bar none. My DH was dx with prostate cancer (now in active tx), I had my own crappy dx (in active tx), and probably the worst hurt was that we had to say goodbye to our own fur girl, Preshy, who had been in our family for 13 years. She was my soul. Got me…
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Worried
I noticed a patch on my breast couple of weeks ago. I feel no lumps and it doesn’t hurt. Any one can help with what this might be ? I’ve scheduled a dr appt but can’t stay off the internet googling (Edited by Mods to remove photo. Posting pictures of symptoms is prohibited per our Community Rules)
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Did you get a 2nd Opinion regarding Oncology Report?
Hello, My onctype report should be back this week, and I am scheduled to meet with an Oncologist. I am just wondering if people get second opinions on oncology and the steps taken after mastectomy or lumpectomy.
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Is this Lung mets? Petrified with every day...
that goes by with this cough. So I'd like to start this with the fact that most of my adult life (now 63) when I get a cough, it hangs on for weeks, Most of the time we are talking 4-5 weeks. I started having a very very slight cough, I want to say last winter. It was so slight, I would cough once or twice in the morning,…
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This word reminds me of....
It is basically a word association game. I will post the first word, the next person posts what that word reminds them of and so on. First word 'Snow'
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Warm & fuzzy owls, goats, kitties, dogs, birds ETC. PICS &LINKS
With W&F's take time to transfer your goodie connections---visual, youtube, short stories etc., or even go and find things to post here. It's a place our sisters and brothers can come to when they are recovering from sx's , chemo's, rads.......or as time passes for those that this damnable disease causes them to be to weak…
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How has your BC experience changed you
We want to hear about how your experience of BC has changed you and how/in what ways is your life different now. Have you made lifestyle, relationship, work changes?
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Exemestane and halting treatment to get pregnant
My daughter has just started 5 years of exemestane and an ovary suppressant. She wants to have a baby but has been advised not to halt treatment in a few years to try and get pregnant. But she would go back on the drug after a period off it. Has any young ladies here been in this situation?
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Mammogram results
My mom had breast cancer in her 40s. Had genetic testing which was neg. I had my first mammogram 2.5 years ago (before age 40) bc of that. No evidence of cancer. But extremely dense tissue noted. Followup at age 40. Fast forward to this past week. I am now 40. So had my second one. This report, my density was changed to…
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Finding and Treating Inactive Breast Cancer Cells
Finding and Treating Inactive Breast Cancer Cells Feb 2, 2024 Dr. Angela DeMichele explains her research on treating inactive breast cancer cells to prevent recurrence. At the European Society for Medical Oncology 2023 Congress, Dr. DeMichele presented results from the CLEVER study, which looked at ways to treat inactive…
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SUV 3.7 in breast on PET for ovary mass
ok so my story is I had BC in 2013 ER+ PR- lumpectomy left breast and rads and 5 years on hormone blockers. Next up was non Hodgkin primary bone in 2015 (very aggressive). Had RCHOP. And more rads. Genetic testing came up with CHEK2. I have a cyst on ovary that has been growing so after lots of other imaging and tumor…
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Exemestane suspend to get pregnant
Are there any younger women, premenepausal that are taking exemestane with an ovary suppressant, that have halted treatment to try for a baby, then returned to the drug after?
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Bone Scan
today I had my first ever bone scan. Also a ct scan. During my bone scan after the full body they did a close up of my forearms, chest and then a side chest view. Does that mean there was something concerning or is that normal with breast cancer?
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Scared to LOOK at new Me
Hello All, Has anyone felt like me? I had a skin sparring bilateral mastectomy last week. I had one fill-into my TE since surgery. I still have drains in. So far, I am healing well and feeling good. Yet, I have NOT looked down at the new me. I am scared to see the change and results. I don't regret having the surgery. But…
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Antidepressants
Are there any Stage 3ers on an antidepressant and if so which one.
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Have you experienced cancer "ghosting"?
Have you experienced a withdrawal from any friends or family members since your cancer diagnosis? Please feel free to share your detailed experiences with others below.
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Would you get Covid vaccine?
My warrior sisters... If you have had bilateral suckers or more than stage 1 (hormone status is not relevant) and done w the usual treatments including optional hysterectomy or ovary removal, would you get the vaccine? Simple yes or no is appreciated. No additional info or explanation is requested. P.S. this survey is…
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High number of positive lymph nodes
Can lymph node survivors please chime in here. I had 11 positive nodes,some broken open with cancer and grade 3. After 3.5 years this still really worries me every day. Would love to hear stories of long term survival.
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Cold Caps Users Past and Present, to Save Hair
Hi all, I wanted to start a forum for all us that are using the cold caps to try to save our hair. I am on FEC100 X3 followed by Taxotere X3. My dosage unfortunately is not a guaranteed success. I am 40 days out from my first treatment and will have my third June 17. So far I have thinned but have not required a wig. I…
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Need guidance please chemo/ cold cap- was donated to me
Hi Breast can stage 2A her2Positive. I had one chemo treatment April 1 didn’t have cold cap- Next treatment April 22 - Some one just donated the cold cap to me. How do I go about using it. Does the hospital have the machine ? Do they charge just to use the machine it self? Any one know how this works. Do I call my chemo…
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stopping letrozole
I just came from the oncologist and after looking at my BCI and having been on letrozole for six years he told me to stop. I am terrified to do that. Has anyone stopped after 6 years? He said new research says 5 years is enough and now I'm just getting the side effects, not any real prevention of cancer from continuing to…
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Anyone Lumpy after DIEP?
I had my DIEP on 2/20. My radiated side has been difficult - the skin necrotized, so on 3/18 I had some skin grafting on that side. However, during that procedure it came to light that some of my left flap had died, so they removed that portion (about half the flap). I have my first post-op later this week. In the…
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Any regrets surgery brca positive
if you removed your ovaries and uterus because of genetic testing do you have any regrets or are you happy? What was your experience. My daughter is having a very difficult time making this decision. She has decided on extra screening for breast cancer but all doctors are urging her to remove ovaries now. Thank you for…
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Reporting forum feedback and technical issues
Hello Everyone, As with any new technology, it can take time to work through issues and adapt to the new site. We thank you for your patience and understanding, and are here to help support you. Our team is dedicated to giving you the best experience possible, with plans for adding features and enhancements over time. We…