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Am I being under-treated?
Newly diagnosed here. TNBC stage 1b grade 3. I met with my BS, MO, and RO for the fist time yesterday. Breast MRI shows a 1.5cm mass that hasn’t grown since mammo and US a month ago and no nodes involved. So the plan is: -Surgery first (I am leaning towards SMX no recon) -Chemo: 4 rounds of TC spread 3 weeks apart -No…
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Afinitor/Aromasin
I am waiting for my pills to arrive and fearful of starting a chemo after almost seven years of anti-hormones. I immediately started looking for info on this site, and the Afinitor topic was started in Jan. 8, 2012 with 35 pages of comments to go through. Do you think it is possible to start a new topic now that this med…
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Abnormal mammogram but normal ultrasound
Hi! I’m 40 and there’s a history of breast cancer in my family. Therefore I have to have a mammogram and ultrasound every year. I went last Tuesday.They had to do the mammogram several times because the first images were vague. Then I had the ultrasound. The doctor told me that there is a tissue in my left breast that…
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Have you experienced PTS or PTSD following a breast cancer diagnosis?
Please share below your experiences with PTS (post-traumatic stress) or PTSD (post-traumatic stress disorder). How has this affected your life, the way you feel, your relationships, activities? And how are you managing?
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Letrozole and Tendonitis?
Hello all! I am coming up on 6 years of AIs with Letrozole being the most recent one. I had been on Arimidex but developed trigger thumb and fatigue over time so I switched to Letrozole. I have been okay for the most part but I now have tenosynovitis in my left wrist which won't go away and a new tendon issue on the top of…
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Just Diagnosed? Start Here
If you have just been diagnosed here are a few places to start from the main Breastcancer.org site: * Understanding your pathology report * Before Treatment: Planning Ahead for Survivorship * Breaking Research News about Planning Your Breast Cancer Treatment Also, a great thread chock full of advice for those just…
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Weigh in: What do you look for in a mastectomy bathing suit?
Breastcancer.org is looking ahead to warmer weather. We want to know: What tips do you have for someone who’s looking for a bathing suit for the first time since having a mastectomy? What’s worked for you and what was a beach-day fail? Do you have a brand or style that you love … or hate? Feel free to share links! Whether…
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Anastrozole (Arimidex) vs. Fulvestrant (Faslodex)
Hi All - Does anyone know why an oncologist would treat with an AI like anastrozole rather than fulvestrant? I'm currently on anastrozole and ribociclib (Kisqali). For my initial diagnosis of Stage 1A IDC (HR+, HER2-), I had lumpectomy, radiation and started anastrozole. 6 years later (this past January), mets in my lung…
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Anyone starting chemo August 2016?
I don't have the details yet, just wondering who else is in my boat with me.
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Newly diagnosed IDC
Well, I got the call today. IDC in left breast, 10mm. Waiting to hear back about bio markers and will meet with oncology team next week. I’m alternating between panic and numbness. I would like to connect with others like me so I don’t feel quite so alone.
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Are you currently (or have you been) in a Clinical Trial?
I am about to start a clinical trial and am wondering about the experiences of others. I'm feeling a little rocky and at sea, because I've been in the care of a wonderful oncologist for the past three years, and I knew without a doubt that his prime objective was the same as mine - to keep me stable and maintain a good…
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CT and Lung Nodules
I cannot find my previous thread, but this is my newest CT scan. So far I have had them in November, January, April, and today. I had a PET in November that lit up on a couple of spots in my left lung and three level 2 cervical nodes. Currently on a watch and see. Anyone have some information on this newest scan? Not…
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Any ladies from WISCONSIN??
i would love to connect to some nice ladies from my state since support groups are not available out here in the sticks and boondocks... 1/21/15 Apparently the thread I started has gotten a life of its own...im glad it has become so enjoyed by so many.
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Middle Aged Memories
Let's see, so far we've reminisced about dittos, drive in theaters, lick-a-stick candy, five-and-dime stores, Donny Osmond, Dark Shadows, what have I missed?
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Has anyone stopped Prolia without taking another med?
I was set up to get Reclast, but I am without insurance for several months and I'm very disappointed that I cannot get a return call from my provider with an estimate of what this infusion will cost me. I tried for days, and nothing, so I cancelled the appointment. I went for the blood test that was ordered and that looks…
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Ribociclib/Kisqali with Letrozole - Any one on this combo?
I am starting this new forum for all those who are on this newly approved drug combo. I started on Kisqali/Letrozole combo 6 weeks ago and so far it has been tolerable. Letrozole gives me joint pain and low back pain. My oncologist has asked me to take this on alternate days. Would love to hear from others about their…
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TN grade 3 newly diagnosed and needing hope
Hi all, I just got my bio markers and seeing triple negative hit me like a gut punch. I’ve been reading the resources on here including the long term survivor stories, been working with my therapist, and I’m meeting my care team in a few days…so doing all the things, I suppose. I know many in this community say the early…
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Intermittent dosing of aromatase inhibitors (AI) to improve tolerance in post-menopausal women
An interesting study. I'm hopeful! Abstract P1-12-15: Intermittent dosing of aromatase inhibitors (AI) to improve tolerance in post-menopausal women Clinical rationale: A significant proportion of post-menopausal, patients treated with AI reports side-effects, especially bone pain. In such patients, the difficulties to…
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Long term survivor examples.
Just an idea came across my mind. Can we share stories and examples of long term triple negative survivors. They dont participate in such forums. So its only by word of mouth that we get to hear about them. But I also see few of them in this website, who themselves are long term survivors. I feel so happy to see how they…
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Cyberknife Inflammatory muscle response
Anyone have side effects after cyberknife to the spine? I was fine for two weeks after thoracic rads and then bam - significant band like pain across my back in that area - stiffness, soreness, etc. It has subsided some, and has moved around, but still there two weeks later. I was put on a course of steroids so getting…
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Online Medical Consultations – Has Anyone Tried Them?
hello everyone I got tired of searching for a good doctor, so I decided to look online for medical consultations via video conferencing. I don’t fully trust the direction I’ve taken regarding changing my treatment from Kisqali to Afinitor, especially since it caused side effects that have now forced me to stop the…
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Bras 101: The Great Post-Exchange Debate
BRAS.......whether you love them or hate them, they are often part of our reconstruction journeys. Whippetmom and I decided to share some information that we discovered throughout our respective journeys through breast reconstruction. There are different practice styles and philosophies among plastic surgeons (PSs), and…
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Post unilateral mastectomy - recovery
I’ve read through a lot of the recovery posts, but am wondering how long (roughly) does it take before lifting heavy and doing things like vacuuming are ok after a mastectomy without reconstruction. I realise our healing is individual but would just like others timelines.
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Dream about bc
Just diagnosed 12/26/25. Woke up this morning with a gasp. Dreamt I felt the lump in my breast and it was more pronounced, much easier to feel. I’ve been waiting for my surgery date and this is giving me anxiety.
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Screening after Bilateral Mastectomy with Reconstruction
Hi all. For all of you that have had bilateral mastectomy with reconstruction (implants) what has been your screening process after? Do you have MRI's? How do you detect if cancer has come back behind implants or somewhere else? I have been told that some people don't have any scans after but just do self exams. That…
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Returning to work after completing Taxol treatment
I completed my last Taxol & Trastuzamab (Kanjinti) infusion 2 weeks ago. I had my first solo Kanjinti infusion last week, and I'll continue these every 3 weeks until November. My question is, how will I have the energy needed to return to work full-time? That's my plan. I work in a hospital, and walk all over the place…
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Waiting for biopsy, but pretty sure lobular cancer is back
From my report: "In the left axillary tail and low axilla there is an ill-defined hypoechoic hypervascular mass with shadowing measuring 1.5 x 0.8 x 2.8 cm. No enlarged abnormal-appearing lymph nodes seen." Maaaaabe not, but I always had a suspicion it would come back. Previous history: DCIS - 2007 ILC, stage 2, grade 2 -…
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Thinking About Skipping Radiation – Anyone Else?
Hi everyone, I’m not sure if this is the right place to ask, but I’m curious if anyone here has ever skipped radiation. I had chemo and got a complete response—no cancer—and I ended up having both breasts amputated. My right breast was healthy, and my left had a fast-growing 7 cm tumor. I was Stage III. I went with a…
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Cold Capping
Hello, has anyone tried cold capping? I will be getting chemo and will be receiving ddAC-T. The side effect is hair loss from two of the drugs. I was offered cold capping. I am estimated to save possibly 49% of my hair with cold capping. Has anyone done cold capping?
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Contemplative practices - Affirmations, white light visualizations, healing meditations
Do you have a contemplative practice? A spiritual lifestyle ? imagery or healing meditations you like? Let’s share the love of positive affirmations and meditations. I just finished Ian Gawler's book You Can Conquer Cancer , and I was reminded how much I love self healing practices. I do white light meditations every…