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Hypersensitivity and tenderness
I am new to this site and wonder if what I'm experiencing is normal. I had DMX with immediate reconstruction with tissue expanders on December 20th. My PS filled the expanders with air during the surgery, then on January 2 I had air exchange and saline fill of 250cc. I am 4'11 and going for a full B size. Anyway, I'm…
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Cancer Tratment for 5 years on Stradexa
Thank you for sharing this page. I find it most interesting and informative. I am 76 years old. I do have Charcot Marie Tooth Muscular Distrophy. Had Mastectomy. Very active and healthy in every other way. I am trying to maintain that. But the side effects, and the little devels are creeping in. The predicted and expected…
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DCIS removed but... gene mutations... now what and family thinks I should be happy
Diagnosed with DCIS (ER+/PR+) in Sept. Had it removed in Oct. Doc talked abt possible radiation and/or hormones even though I'm one of the "lucky" ones- HA! Now I'm positive for CHEK2 and RAD51C w a family history of ovarian and colon cancer (1 + 1). Waiting to hear back from gyn to screen for ovarian cx and sons need to…
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Starting Chemo September 2019
Hi All, I haven't seen a September 2019 chemo thread so I thought I'd start one. I am scheduled for my first treatment on Wednesday 9/4/19. I will be having Cytoxan and Taxotere every 3 weeks for 4 cycles. Tracy ------------------------------------ 8/28/19 - Snaffle53 - AC+T 9/4/19 - tmh0921 - TC 9/4/19 - Ryanrose - AC+T…
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Triple negative breast cancer
hi I have had triple negative breast cancer I finished my 6 month of chemotherapy but my pathology response wasn’t good I have axillary detection because of my lymph nodes wasn’t clear. I have been offered by my oncology team trial call MK-2870 (sacituzumab tirumorecan) for 6 month anyone have same experience or anyone…
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Starting chemo with no support. Advice?
Hello, I start chemo next Wednesday 8th of Jan. I live alone and my family are not in this country. I also just moved to the South Bay so I don’t have friends here either. any advice on how to go through this grueling period completely on my own ? Also, I am considering cold capping ( using penguin) but I’d need someone to…
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Just diagnosed
Hi my name is Stacey. I just got the results from my biopsy today. The doctor said it’s invasive ductal carcinoma grade 2 and as of right now it’s between stage 1 and low 2 with clear lymph nodes but that could change after surgery. I did talk to the patient coordinator and she is going to schedule me to see the oncology…
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Phesgo loading dose for 18 cycles
Hello, has anyone been told they need to be on the loading dose of Phesgo 1200-600 every 3 weeks for 18 injections? I read that the first dose is 1200-600 and the remaining should be 600-600 as a maintenance.
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Difference between recurrence and new primary cancer
How do they tell the difference between a new primary cancer and a recurrence of the old cancer. I had ILC in 2017, treated with lumpectomy and radiation. I stupidly refused antiestrogens because I thought I would be OK. They have now found another tumour in the other breast, but say it's ductal this time. Has anyone else…
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Our treatment histories
Hello, So far, I've been a silent member only, so this is my first post. I have been following many discussions regularly, and found this forum an incredibly helpful and encouraging place. I was wondering if we could have a thread to collect our treatment histories? Which drugs we've been on, how long we've been on each,…
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Mucinous Carcinoma of the breast
On April 21st I had a core biopsy and today I was told that I have mucinous carcinoma of the breast. When I investigated on this website, the information given was that this is a rare type of cancer, about 2-3% of all breast cancers and usually occurs in post-menopausal women over the age of 60. I am neither. I am 51 years…
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CHEK2 Mutation
I was at my gastroenterologist last week. He passed on the following news adding that this is the first time (praticing over 30 years) that he has ever seen a risk being removed from guidelines. In August of this year, the National Comprehensive Cancer Network (NCCN) guidelines removed the warning that a CHEK2 mutation…
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Postmenopausal bleeding after stopping tamoxifen
I was diagnosed at age 47 and was on tamoxifen for just over 3 years, which I recently stopped. Was perimenopausal upon starting it and stayed that way for over a year. I'm 51 now and have not had a period for 25 months. Well, 3 days ago, I started what looks and is acting like a period. Was heavy for 2 days and is now…
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HERCEPTIN and/or PERJETA Threads
I am currently on Herceptin and Perjeta with Zometa every three weeks. Would love to hear from others who have been on this targeted therapy and how well the treatments have been working for you..
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carnivore diet
Hello I just wonder if anyone from you is or was on a carnivore diet before, during or after the breast cancer diagnosis. I would like to hear from you. Ata
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DCIS Grade 2 Diagnosis
Hi all, this is my first time posting here and am so grateful that this forum exists. My wife has had an incredibly stressful few months to say the least. In September she went in for her yearly mammogram and a suspicious area was identified in her right breast. She subsequently had an ultrasound, biopsies and MRI and was…
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Tamoxifen withdrawal symptoms
I`m 38 years old and I have been on Tamoxifen for 5 years.Now has been a week without it and I`m not feeling too good.Does anyone know about withdrawal symptoms?
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Taxol liver toxicity
Hi , my name is Gaudys . Recently Dx with inflammatory breast Cancer , ER 100% +, PR -, Her2 -, grade 3. Currently on my chemo , liver enzymes are high and my Dr decreased taxol by 20% , made me worried about treatment efficiency on shrinking my tumor . Anyone on the same boat? I also have moderate neuropathy as a side…
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Anyone else currently in chemo?
Hi everyone, Me again Got through my second round of AC, just wondered if anyone else is currently going through it, just wanted some advice on how it’s mentally taking a toll and any advice on that? Thank you for any advice xx
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Any Metastases to the Internal Mammary Nodes Survivors?
I want to connect with anyone who has gone through what I have. I am almost a year out from ACT chemo and 8 wks of radiation. Having my first PET scan since all of that and facing the dreaded Fear coming up once again...
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Stage III Cancer Survivors .... 10+ Years and Out
This thread is for STAGE 3 cancer survivors who have made it to 10 years or more since diagnosis or however you count your anniversary. Let's post some hope for those just starting the journey as STAGE 3, Please keep this thread to its original purpose and move unrelated discussions to new or other threads. Thanks…
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Follow up imaging recommendations post bilateral mastectomy
what is the follow up imaging post mastectomy? MRI ? There is still residual breast tissue post mastectomy! My oncologist is very casual about it and tells me there’s nothing to worry about. My high grade DCIS was grade 3 comedeonecrosis ! No need for tamoxifen (my score was 3+estrogen positive! ) worried about the lack of…
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Single Hormone Receptor Positive -> ER+/PR-/HER2-
Anyone else in this same boat? Would love input or sharing your experience. Feeling a little alone in this boat!
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First Time Taking Low Dose Tamoxifen - Side Effects
I started 5mg of Tamoxifen today and within a few hours had several side effects: dry mouth, headache, light headedness, nausea, bad tinnitus, and feeling cold. It seemed pretty quick. Has anyone else developed side effects so quickly? Thank you!
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Catholics
Hello, I am Catholic., and I have been walking with Jesus my whole life...and He has saved me from "me" many times...LOL.... One thing I do, is pray.. a lot. I think we all do as Christians. I headed this thread Catholic only because of what I am posting. All are welcome to pray this anytime.. but I did not want to offend…
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Spring/Summer 2024 Radiation thread
Gather here to share experiences, ask questions, get encouragement, and support others who are going through radiation therapy along with you. Please share your diagnosis, any previous treatment you've had, and your scheduled start date along with your radiation schedule. We're all here for you!
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Traveling with MBC - Inspire others with your vacation experiences and tips!
Hi everyone! We have a new content highlight on Traveling With Breast Cancer, and would love you to share your tips, experiences, memories, and advice for those with metastatic breast cancer who are considering traveling, but might not feel well enough, think they don't have the energy, are concerned about risks of travel,…
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tubular carcinoma
Anyone out there also diagnosed with tubular carcinoma? I know it is a rare kind, rarely spreads, is highly estrogen positive and has a good prognosis. If you have tubular carcinoma, I am wondering about your treatment. I had lumpectomy, radiation, and tamoxifen. I am curious to know if all of this treatment is necessary…
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Poll: How are you feeling as we start the New Year?
How are you feeling as we approach the end of 2024 and the beginning of 2025? Take our poll on what you most feel this year, and share more below in the conversation.