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Zoom Meet-up for Those With MBC: Place to keep chatting
This is a space held for our Zoom Meetup members to gather in between meetings for updates and support. Join our Virtual Meet-ups! For those with a diagnosis of metastatic breast cancer (MBC; also called stage IV) Register: Mondays at 2:00 PM EST, Tuesdays at 1:00 PM EST, and Wednesdays at 4:00 PM EST Young (45 and under)…
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LVA surgery - bypass surgery - Have you done it?
I recently traveled to the University of Iowa to meet with Dr. Wei Chen a supermirosurgeon/plastic surgeon. I was referred to him by my PS. I had the Indocyanine Green Lymphography done and was amazed at what was seen both in my healthy arm and diseased arm. I was diagnosed under the Campisi Staging at Stage 2 as my LE is,…
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Liposuction for lymphedema/Vaser treatment
Any input anyone on these treatments. Grateful for any info Good wishes to all Anna
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Back after years - lymphedema surgical resources?
Hi everyone. I was diagnosed with lymphedema I think in early 2011, so it’s been a while. I used to be on this board a lot back then. I’ve stayed active and used compression and not had much trouble with flares of swelling. My swelling never goes away completely, but it’s still soft and it’s honestly quite subtle to the…
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Stage 2B with positive nodes
Husband here. If there's already a thread for Stage 2B with positive nodes, I apologize, as I missed it. I see a lot of discussion between ladies with Stage lll and between ladies with Stage l and a lot of dialogue for Stage lV only----but not much for Stage ll. I was interested in reaching out and finding what everyone's…
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Scares That Turned Out To Be Nothing
Husband here. My wife was diagnosed about 2 1/2 years ago. She is doing well. But that's not to say there haven't been more than a few moments of high anxiety thinking something's wrong or just waiting for test results to rule out a recurrence or mets. I hope it's ok with the great members here that I start a thread that's…
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Open Letter
I am a husband/ caregiver... I didn't know where this should be posted---and since my wife is going through treatment now, I just picked here. I have lurked since my wife's diagnosis and have been posting only for a few days. I can recognize a sisterhood when I see one. An army of kind souls. I am humbled by your humanity.…
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Zoom Meet-Up Bonded by Breast Cancer: Place to Keep Chatting
Hey Everyone, Here is a place to keep sharing between meetups. Warmly, The Mods
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Mastectomy on the other breast
Hi, I had a mastectomy on my left breast in January. No reconstruction. I recovered well and relatively quickly. My other breast is "busy," according to my oncologist . I am seriously thinking about getting a mastectomy on the other side as well. Not because it will eliminate cancer on that breast, but my surgeon says this…
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Radiation benefits & Risks for early stage cancer
Hello, I am preparing for lumpectomy and then radiation/AI expected. Despite bilateral the surgeons feel I am a good candidate. Any suggestions on where I can get risk/benefit analysis for radiation treatment? I am 58 bilateral IDC/DCIS Grade 1 T1b no nodes ER/PR+ Her2neg No BRCA genes and low Ki-67 I have spoken with…
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Questions about Radiation treatment? Join us on Zoom.
Our professionally facilitated In Treatment Zoom meetups are a great space to meet others going through surgery, chemotherapy, radiation, or reconstruction to talk face-to-face and get support while going through active treatment. You'll pick up great tips from others who've been there, gain immeasurable support, and learn…
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The Long Middle - Does the idea of “the long middle” reflect your experience?
Check out this article and let's discuss. I have stage four cancer – there will be no cure, but death isn’t necessarily imminent: this is how it feels to live in the long middle | Death and dying | The Guardian The author describes living with stage 4 cancer as being in “the long middle”, a space where there is not a cure,…
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"Roll Call" for those who've stopped Hormonal Therapy early - short post to share status?
If you quit or reduced hormone therapy and don't mind sharing future status at least once a year, could you share concisely current cancer status (no evidence of disease, metastisis, new breast cancer) or other health facts? This will give an easy to follow thread of results of quitting. It is such a gut wrenching decision…
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Blog Discussion: When It Feels Like Your Body Is Betraying You
Join us to discuss this blog post. Let us know your thoughts, feelings and experiences and if anything about this post resonates with you. We value your insight! https://www.breastcancer.org/community/blog/when-your-body-betrays-you Post your thoughts on this blog post below.
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Just diagnosed w/a new breast cancer for the 3rd time
I had ER/PR+ Her2- in the left in 2020 and then ER/PR+ Her2- in the right in 2022. Now I've been diagnosed, 2026, with ER/PR- Her2 3+ Ki-67 20% in the left. Can anyone help me understand this new diagnosis or share their experiences?
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Poll: What's the one piece of advice you'd give to someone newly diagnosed with breast cancer?
Getting diagnosed with breast cancer can be scary. If you had a chance to share with a newbie one piece of advice to get them through, what would it be? Choose from the options below or add your own in the discussion to give new folks a sense of calm and understanding.
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HERCEPTIN and/or PERJETA Threads
I am currently on Herceptin and Perjeta with Zometa every three weeks. Would love to hear from others who have been on this targeted therapy and how well the treatments have been working for you..
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Very heavy periods post-Tamoxifen
I stopped taking Tamoxifen last year after being on it for 10 years. I am in my early 50s and my periods while on Tamoxifen in the last couple of years were every few months and fairly light. Since going off, my periods are every 25-30 days and are very heavy for 3 days (with lighter bleeding lasting another week). My…
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Birads 5 with calcification
I’ve been hesitant to post because I didn’t want reality to set it but here I am. I’m a 33 year mother of 3, youngest is 6. Just like most of the ppl in the group, It all started with me noticing a lump. I took action almost immediately. I made an appointment to see my primary doctor which took me 2 weeks to get in. I…
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31 yo, sclerosing adenosis, family history, more symptoms in 6 months time, becoming concerned
In October 2025 I was diagnosed with sclerosing adenosis. I do understand this is a benign condition, but according to the NIH, and Mayo Clinic studies, the damage the disease causes creates a “breeding ground” for certain cancers - carrying a 1-2 fold increased risk of developing these cancers in 15 years time. It’s…
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I am new here
Hi just got diagnosed on may 11th have breast cancer on left breast very tiny will have to do surgery in July really nervous about it any info would be great thx Dianna
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Biopsy on red/bruised breast that previously had cancer
hi all, I write worried about my mom, and I was wondering if anyone had a similar experience. 3-4 years ago she had a very early stage cancer in her right breast, it was removed and she had radiation, she says about 3 weeks worth. She has been good since. Tuesday she woke up with that breast bruised at the top toward the…
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Angiosarcoma
I have been diagnosed with angisarcoma. Caught very early and removed from breast. Actually double mastectomy. Stage 1. Now getting second opinion on treatment. It is very very rare. Anyone out there with it?
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Angiosarcoma of breast
Hi everyone - I was diagnosed with a very rare cancer called Angiosarcoma - it appeared in my left breast and due to its aggressive natural I had a mastectomy and radiation I am feeling blue and feeling awful about my body although I am in remission and I feel guilty as I should be grateful instead of feeling the way I do…
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Dense breast and hidden cancer
Greetings all! The most alarming thing for me was the discovery that dense breast make it difficult for radiologist to discover abnormal cells and signs of breast cancer. I have never missed a mammogram since I was 50. I am now 74. My last mammogram was in October. All results were great… see you next year. Then I found a…
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Anyone on DATROWAY (Dato-DXd)?
Hello-I’ve just started DATROWAY and have finished my second cycle with adverse side effects. I’m wondering if anyone has had the same experience and asked their oncologist about dose reductions, etc. to mitigate these. Thanks so much!
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Just Diagnosed- Get Prepared
My breast cancer was diagnosed in Jan 09. My husband was dx'd with lymphoma in April. The following are some things we learned on our journey. I hope they help. Rather than rewrite everything in sequence, because I missed putting the fax in the rewrite of the outline, I'll put it here. I strongly recommend you get a fax…
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Just Diagnosed? Start Here
If you have just been diagnosed here are a few places to start from the main Breastcancer.org site: Understanding Your Pathology Report Stages of Breast Cancer and What They Mean HER2 Status and How it Affects Treatment Hormone Receptor Status and What It Means for Treatment Planning Your Treatment Why So Many Types of…
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Failed reconstructions
Hi all, I was diagnosed with DCIS in 2010 and had a partial mastectomy and radiation on my left breast. In 2014 I was again diagnosed with High grade DCIS in left breast. I had a double mastectomy including nipples and a Tramflap operation using the skin, fat and muscle from my stomach to create breasts. I absolutely hated…
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Success Stories!
Every now and then I read a post on this forum that talks about somebody who has lived a long time with disease. I know there have even been threads with many node positive success stories and stage IV survival stories. These have been the most uplifting influences for me on my journey. In a world of breast cancer where…