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I say YES. YOU say NO....Numero Tre! Enjoy!
A little birdie told me to come back and save the day......
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Lumpectomy Lounge....let's talk!
WELCOME TO THE LUMPECTOMY LOUNGE! I've searched and searched BC.org and couldn't find a specific post just for those of us who have had lumpectomies (unless there was one and it got buried). So, I thought that it was about time that we had our own place that we can come to...where we can discuss, ask questions, tell…
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Starting Radiation? Get educated about Mepitel film!
Mepitel is the brand name for a thin film that you can apply over the skin before radiation starts. It is easy to order online and to apply yourself, and it is effective at reducing skin damage from the radiation. It feels like saran wrap (cling film). It stays on throughout radiation, but probably will need to be…
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DCIS, receptor positive and still on HRT. How risky is this?
Hi everyone. Never thought I would be spending my holiday break talking and researching cancer. Yet here we all are. I was recently diagnosed with DCIS and receptor positive for both ER and PR. I had a lumpectomy on 13 Dec 2024 and was advised I need a further one (scheduled 22 Jan) as they didn't get clear margins all…
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Pain
I am in so much pain (ribs, spine, jaw, hip) right now I don’t know what to do with myself. I’ve loaded up on morphine, ibuprofen, paracetamol, codeine, and nothing is even scratching it. How do we get through moments like this?
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Zoom Meet-up for Those With MBC: Place to keep chatting
This is a space held for our Zoom Meetup members to gather in between meetings for updates and support. Join our Virtual Meet-ups! For those with a diagnosis of metastatic breast cancer (MBC; also called stage IV) Register: Mondays at 2:00 PM EST, Tuesdays at 1:00 PM EST, and Wednesdays at 4:00 PM EST Young (45 and under)…
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How much did your breast change/shrink after rads?
It's been recommended to me to have a lumpectomy with rads however through research I've discovered that obviously the lumpectomy removes volume, but that radiation can significantly shrink or damage the breast. I'm already a B cup and asymmetrical and the mass is in my smaller breast. I'm VERY concerned that the outcome…
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Concern over weight loss while on piqray
Hello All, This is my first time here. Is anyone on piqray here and experiencing severe weight loss. My mother has been diagnosed with MBC and has been on Piqray for over a month (after PIK3CA mutation detected in the liver biopsy test, previously been on Ibrance). Fortunately her blood sugar levels are quite ok, around…
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Waiting for test results
I was dx with stage 2B breast cancer in December 2006. ER+, PR+, HER - . Three tumors, 4 positive lymph nodes. Mastectomy, dose dense Chemotherapy and Radiation. It was a long year and I had a high risk of Mets. I have celebrated 17 years NED, good health and a wonderful life. I left my job and went to nursing school (a…
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Complicated breast reconstruction due to necrosis
I had double mastectomy with immediate reconstruction/tissue expanders placed on November 4, 2024. A week later had post surgery follow up with both surgeons. I had a hemotoma on right side that was drained in office 250/300cc’s. Surgeon said compression necrosis at IMF incision site. My plastic surgeon proceeded to remove…
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ER-, PR-, Her2+ Stage IV
Anyone else out there
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Prophylactic Mastectomy
Looking for anyone with shared experience. From my 1st mammogram 15 years ago at 40, I have had issues. Multiple biopsies and lumpectomies, tons of scar tissue as a result. I have extremely dense breast tissue, complex cysts, breast disease, multiple bilateral papillomas and just recently diagnosed with LCIS. I do not have…
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Finished Verzenio but having problems
I finished act chemo, Masectomy, radiation then two years of Verzenio - September 2024. Still on Zoladex and Femara. Since stopping verzenio, the most concerning issue is slightly elevated alt and ast - 50 and 70 at this point but ultra sound and mri without contrast show no Mets. Also, It has taken about 5 months for my…
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Life altering perception
Since I was diagnosed I have absolutely had my perceptions change. I see life completely different. Things I let slide by are now things I want to get rid of. I've noticed I've cut a lot of people out of my life since this. I feel like I love the people close to me more and am more accepting of their perceived "flaws".…
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Anyone from South Carolina
Hi there I would love to chat with some of y'all going through the terrible c word. I'm here if anyone needs to vent or just a chat to make us feel better. I hope to hear from y'all soon.
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Chemotherapy, Benefits vs. Risks
I am new here and seeking feedback on my treatment plan, specifically regarding chemotherapy. I have been informed that, given my tumor size of 5 mm, chemotherapy is an option but is often not recommended. The doctor explained that there is limited research on the benefits of chemotherapy for such a small stage I tumor,…
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Partial response to TH.
Has anyone gone through chemo and didn’t get complete response and have to start Kadcycla?
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~* The Waiting Room *~
I have noticed there is always someone on the board who is waiting for results of a various scan or test. We all know how difficult the waiting for reslults can be! There is a lot of anxiety that comes along with this.I like to be able to follow up with people, but sometimes it is very hard to keep track of everyone…
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Surgery to prevent lymphodema and Leuprolide injection
First diagnosed in 2020 stage one grade 2 ( very small tumour). Had mastectomy on left breast. Tried tamoxifen but was unable to continue after 2 years due to severe chronic nausea( was down to 100 pounds and on gravol and ondasetron for months). In mid November 2024, my armpit was itchy and that is where I felt a lump.…
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Implants...does your "foobs" get itchy!!!
I've had my current set of implants....mentor silicone implants for 3 1/2 years now...and there are times I feel like I want to claw my chest off...this is mostly in the evening....I haven't been to the PS in 1 1/2 years (or is it 2 1/2 years) and have no plans to make an appt for him to just look at them and say yup, they…
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I cant stop thinking the worse
I cant stop thinking the worse. So in December I noticed I had some swelling and firmer breast tissue in the tail of spence area almost looked like axillary breast tissue. I had a baby a year ago so my boobs are not what they once were. Ever since becoming a Mom I have huge anxiety with my health and so booked in for an…
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What should be my next step?
My biopsy confirms that I have Invasive Mammary Carcinoma in my right breast, which is hormone receptor-positive (HR+), HER2-negative, and a high Ki-67 proliferation rate of over 80%. Can someone tell me more about that Ki-67 number? Is it normal? Also the doctor initially said it was only one centimeter but the report…
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3D tattoo vs. nipple reconstruction or both
I see that someone posted a similar question on a different forum without a lot of responses. I thought I'd post here too. I've had my bilateral mastectomy and implant reconstruction and am now at the point where I have to decide between nipple reconstruction, 3D tattoo or both.( I have decided to do something, not just…
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Capecitabine not working
what’s next after capecitabine (xeloda) failure? I am ER+ and HER2- . Took ibrance and letrozole for 5 years NED. Then tried Fulvestrant with no luck and now capecitabine first scan shows progression. What’s next for me? I’m scared.
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Enhertu Dose Reduction Results
Hi! I've had 8 infusions of Enhertu at the full dose level and have experienced side effects of fatigue and general crappiness, not in keeping with my quality of life wishes. Because of this, I'm seriously considering going to a lower dose of 4.4 mg. I can't find any data on how effective the drug is at this lower level,…
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Tuesday night MBC group
A place to stay in touch during the week. :)
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On Anastrozole. Should I start Zometa? Had one Bone met that's gone! Tamoxifen instead?
HISTORY I just started this MBC journey 7 months ago. I had one small bone met in upper sternum and some possible mets to soft tissue in mediastinum and lymph nodes in same area. Only the sternum was biopsied. ER+ (90%), PR+ (30%), HER2+. I started on HP protocal and anastrozole the end of July 2024. No chemo. End of…
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Recent MRI has me concerned
This week I had an MRI and the results have me concerned. The impression stated "irregular 1.2 cm mass in the left lower outer posterior depth demonstrating rapid wash in and persistent kinetics" - BiRads 4 I have been recommended for an MRI guided biopsy. My mother and my grandmother as well as two of my grandmother's…
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What are your “Mantras” to get you through a test, treatment, a bad day?
We all need tools to get us through our most difficult moments. If you have a mantra, or strategy, please share here!
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DCIS - second opinion regarding a masectomy
Has anyone gotten a second opinion on your treatment for DCIS? My area if 4+ cm and the surgeon is recommending the complete masectomy of that breast. Thank you.