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Enhertu questions and experiences
Hello, My original diagnosis in June 2022 was Stage IB (T2N1mi) ER-93% PR-70% HER2 - (2+ by IHC 1.0 by FISH ) Ki-67-80% I did lumpectomy and breast reduction, 4 rounds of TC, and anastrozole switched to fulvestrant due to side effects. In April of 2025, my CA27-29 spiked and imaging was ordered. Signaterra negative for…
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46 years old IDC 1a Lumpectomy on Monday
Hi all, looking to connect with women going through the same kind of BC that I am. Whether just diagnosed, just had surgery or just started treatment. I feel it’s easier to talk to “strangers” about it. I haven’t told many people yet. Please reach out 🙏❤️
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Her2 positive, ER negative ,PR negative
I am interested to hear from folks who have this specific sub type and compare notes. I was diagnosed 6/2021 with L. Breast Ca Stage 11B, 2 positive nodes. Ki-67 90%. Had neoadjuvant TCHP x 6 July’21, double mastectomy 11/21, (tissue expanders, exchange to implants hopefully November 22) followed by Phesgo every 3 wks…
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Chemo starting April 2018
I am very new to these boards so I am not too familiar with all the terms and abbreviations but I do find the posts very helpful. I've been lurking around but have never posted anything until now. I had a mastectomy on my left breast on March 5th and reconstructive surgery at the same time. Surgery wasnt too bad and…
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Preparing for a DIEP Flap Reconstruction
Hi everyone, I'm 2 months out from DIEP Flap Reconstruction. I'm doing a delayed reconstruction on the left (had a total left mastectomy 12/24) and also getting a right mastectomy and immediate reconstruction on the right. I'd love any tips on what to have or buy to support recovery from this surgery. I understand that…
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Newly diagnosed stage 1 Invasive Ductal Carcinoma
Trying to decide between lumpectomy and radiation or bilateral mastectomy. Want to hear from some who have gone through each
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MBC Virtual Support Groups: Register Here to Share Face-to-Face
Please join us for one of our Virtual Support Groups on Zoom -- register by clicking the links below: Do you have metastatic breast cancer (MBC; also called stage IV)? Register: Mondays at 2:00 PM EST, Tuesdays at 8:30 PM EST and Wednesdays at 4:00 PM EST Metastatic Lobular Breast Cancer Register: Third Thursday of every…
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Stopping Lupron
I have been taking Lupron and AI for nearly 5 years. I started at 49 and next month will be 55. My side effects have been really bad and I honestly can’t take it anymore. I have noticed that my symptoms depend on days of month in my Lupron cycle. I have a few good days before the shot and a few good days after, but then…
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STEAM ROOM FOR ANGER
This thread is meant to be for RANTS and RANTING. Then Rant again. We need a place to simply get rid of the anger. Write it here. Unleash it all. Get it out. This isn't meant for the Stupid comments(great thread). This is for the gut wrenching, tell them off anger. IMPORTANT: When done ranting don't necessarily stick…
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autologous fat transfer - poor result
last week I had liposuction and fat transferred to the breast area where I had a mastectomy. I also had a lift and reduction on the other side. I was a D on that side and now it's probably a small B. The fat transfer doesn't show any noticeable increase in the volume of the breast. I understand there are limits to what the…
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Newly diagnosed DCIS
I just received my DCIS diagnosis on 2/20. My physician has ordered me an MRI due to punctuate calcifications seen between the two DCIS positive sites in my breast (which are 7 cm apart). Has anyone else had this?
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introduction and looking for people to connect with
Hey everyone! I have been in this "journey" for quite a few months now and have been feeling increasingly isolated. I was diagnosed at 25 and am currently 26 years old. I was diagnosed with invasive ductal carcinoma in the fall after a long journey to be seen properly for the lump I found. Once I was officially diagnosed,…
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Hello out there!
Hi, I'm looking to connect with other women in their 40's. I'm 46, was diagnosed with ER/PR +, HER2- IDC in 2022. I've been looking through the threads but I can't find anything that is recent. Thanks so much!
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Recently diagnosed. 1/27/26 IDC grade2, Stage 1A ER+
Decided on double mastectomy, having mri with contrast today, then meet again with breast & plastic surgeons on 2/19 to schedule procedure. Anxious, scared, feeling like I'm forgetting something…..just crazy
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Stage III Cancer Survivors ...Five + Years and Out.
A place to post hope for those who are stage 3. Please posts your stories of HOPE for those just starting this journey.
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De Novo Stage IV
I'm wondering if there is a topic just for de novo Stage IV. I'd like to know how people found out. Did you have symptoms that led you to the doctor for an answer? Was it found out of the blue when you had another issue and how was it found? Are there others like me who have never shown it in your breast but only where it…
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Architectural Distortion
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Aromatase Inhibitors and GERD?
Hello friends, Has anyone dealt with reflux or GERD while taking AI’s? If so, have you used medication to deal with it and what was the result? (I’m on my second AI, so that’s 2 1/2 years with severe reflux. Working with a gastroenterologist now to manage the reflux and try to stay on Exemestane for a few more years.)…
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Cancer Free!
I found 2 lumps in my breast in Jan. 2026, ( Mamo of last yr. did not pick them up) My Dr. worked fast, got me into a surgeon in Lewiston, Id. I have Metastic Breast Disease, surgery on Feb. 5th. Removing 1 Breast, yesterday follow up, to find I am " cancer free." The Surgeon removed 6 lymph nodes, 3 under my arm, 3 from…
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Fearful of Gadolinium Breast MRI
Hello, My dr. wants me to get a breast MRI which uses gadolinium. I am very afraid of this as my dad had a cardiac arrest during contrast and also in addition to BC in my family there's a lot of Parkinsons. I also have autoimmune issues! Basically…I don't need any more problems. The dr will not allow me to have it without…
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Tiffany`s Twenty Terrific Tips for TC
I just wanted to share with everyone my tips for getting through TC chemo, which I think helped me a lot. My only symptoms were a touch of nausea on days 3-4, a bit of diarrhea, constipation, dry mouth, and fatigue. I never got sick. 1. During chemo and for several days afterwards, drink a LOT of water. I drank 3 liters a…
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LCIS - BC in family -- NIGHTLY HOT FLASHES & PALPITATIONS - Can't sleep - MISERABLE & CONFUSED
Hello, I am 61 and have been in menopause one decade. I lost my dear sister to BC at age 42. About 10 years ago I had a surgical biopsy that said LCIS. Since then normal mammos but dense breasts. I have waited for these symptoms to "pass" but now it's pretty clear they never will. My nightly routine is horrible…
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Drinking cold things feels weird after mastectomy
Every time I take a drink of ice cold water (or anything ice cold), it feels as though someone is pouring ice cold water down my chest on the outside! It takes my breath away! Is this normal?
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82 years old
And yes, Metastic Breast cancer, removed 1 breast, now cancer free. No chemo, no radiation. All in 1 month time. Odd that health insurance says, " no more Mammograms after 80 yrs. of age. " Insisted my Dr. order one, he did, it did not find the lump last yr. But this year there was 2 lumps, I found. Quickly assessed, and…
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Stage 3A
Diagnosed with big 7.5 tumor, lymph nodes involved. ER+PR+HER2- just finished AC chemo, did one taxol 11 weeks to go. I know I have a long road ahead, and I’m very frightened!! Any positive stories out there
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Post Radiation Side Effects
While my radiologist shared all of the pros and cons, he didn't share the "by the way" side effects. On a positive note, I discovered, thru trial and error, that calendula GEL is very helpful in healing the deep pitting and leathery issues post radiation. On the not so positive side, about a year after the radiation, I…
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New diagnosis IDC stage IV + lymph node
I just got diagnosed with IDC stage 4 right breast and right armpit lymph node. They haven't biopsed the left breast yet but they want to asap! My question is isn't more important to see if the cancer has spread anywhere else in my body before the slightly suspicious left breast?? Its been really hard getting STRAIGHT…
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Post surgery, pain
is it normal to not be able to sleep on the side that had surgery and radiation about a year ago? Feels like a big bruise that has been getting worse over the past year after treatment. Just being paranoid,
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Angiosarcoma of breast
Hi everyone - I was diagnosed with a very rare cancer called Angiosarcoma - it appeared in my left breast and due to its aggressive natural I had a mastectomy and radiation I am feeling blue and feeling awful about my body although I am in remission and I feel guilty as I should be grateful instead of feeling the way I do…
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Word Ladder - Part Two
Since the original word ladder has some technical difficulties, Sharon50 has asked that I start it up again. (Could it be a ploy to get around a six-letter word from scarabs? ) Here's a new old game, ladies I will try to guide you if it gets off track 1. Start with a 3 letter word. 2. The next person adds a letter to make…