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Just diagnosed - big drinker, hard job, feeling depressed
42 and diagnosed 11/7 via annual mammogram, right breast idc grade 2, ER+ 90% PR+ 80% HER 2 minus. Got an mri that showed some more things, MRI Biopsy on right for NME, all clear. Did left yesterday and awaiting results. But given Xmas cruise planned likely will not schedule surgery til new year (is that bad?). I’m hoping…
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Any horseback riders have experience to share on implant reconstruction?
Bilateral mastectomy in October 2024 (IDC Stage 2A – grade 2). No radiation/no chemo. I live in a rural underserved area so delayed reconstruction was the only option. Surgeon performed an aesthetic flat closure. I am waiting to meet with a PS who is 3 hours away. I am normally slight in stature, but a very strict…
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Making that Final Surgery Decision
Hi to everyone. I am new to the group. I was diagnosed early in the year with ER and PR - and HER2 + with lymph node involvement breast cancer. (stage 3A). I have completed my last treatment about 4 weeks ago and trying to mentally prepare for the surgery. I am at the point where I need to make a decision but having a bit…
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Newly diagnosed and scared
My biopsy came back positive on 10/31/25. I met with the surgeon and talked about a lumpectomy and radiation. Now, my MRI showed another mass in the other breast and a lung nodule. So now I need another ultrasound and maybe biopsy and a CT scan. I’m afraid that my easy diagnosis is about to be much harder. Does this mean…
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4 Letter Word Game
Hi Ladies, It is time to add a four letter word game. I received an email of a forwarded scrabble game. The game started with a four letter word and kept changing by one letter. I like playing here much better. Get your 4 letter words ready. First word: Word
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Looking for others with low risk, less than 2cm, IDC stage 1 grade 1HR+ HER2- on endocrine therapy
Are you like me? What endocrine therapy did you follow or are you following? Pre- or perimenopausal, stage 1, grade 1, low risk, node-negative, no genetic risk, screen detected ladies, let's hear from you! What were you prescribed and how have you changed it up over your therapy? What has worked for you? I've seen four…
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Here I go again
I was originally diagnosed back in 9/2023 on my left side, 13 MM stage 1, grade 1 DCIS/IDC. Had lumpectomy with 20 sessions of radiation. Tried Lupron, which gave me hell for almost a year. Cant deal with Tamoxifen. Finally did a lot of holistic stuff and trying to live life again. Thought I was doing good and getting some…
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Elevated CA 15-3, Stage 3, without metastases
Hello everyone, July 2024 – Diagnosis: breast cancer ER+ / HER2 negative, with lymph node involvement, no metastases, stage IIIA. I had a CT, MRI, and PET-CT before starting chemotherapy. August 2024 – I started chemotherapy, but before that I measured CA 15-3, which was elevated at 74 U/ml. It increased up to 92 halfway…
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Life does not end with a stage IV diagnosis (really!)
Our sister, kayrnic, started a thread celebrating being 2 years (hooray!) out from her stage IV dx. I was thinking along those same lines when I read her post. So often, those newly dx'ed stage IV, think they've been handed an immediate death sentence and panic or plunge into some very dark places. This is understandable,…
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New Protocols
I am a 10 year survivor of breast cancer (stage 1a, ER/PR+, HER2+). Now my 75 year old sister has been diagnosed with stage 1a, ER+,HER2- breast cancer. She Iives in a distant state, so I cannot go with her to all of her doctor's appointments. She saw her oncologist today for the first time and was told she is most likely…
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Need help deciphering what my QT results mean.
recently I had an MRI done and there was a mass observed on my right breast, They scored it at a BIRAD 4 and it was very concerning. Not wanting to get a mammogram, due to fear of causing trauma to the affected tissue, I elected to get a QT scan done, can anyone read this and tell me what they think this means,…
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Question about Sentinel biopsy results
Hi I had my lumpectomy with Sentinel node biopsy on Nov 14 and reviewed the pathology report with my doctor today. He said 5 nodes were removed during biopsy and 2 are confirmed to have cancer >2mm. Based on this, he advised chemo is required and ALND is on the table but he is going to review with the cancer board at the…
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Side effects from aromatase inhibitor other than joint pain.
I started on Anastozole (Arimidex) a little over a month ago. I know there are two others that are often given to post-menopausal HR+ women, Aromasin (exemestane) and Famara (letrozole). The joint pain and menopause like symptoms are what are mentioned most in articles. Although I've had some wrist pain, which I understand…
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Long term success stories of stage 1 triple positive with THP chemo regimen
I was diagnosed with stage 1B triple positive. Just had my BMX three weeks ago. Now about to start chemo. My MO recommended THP chemo regime because it has less side effects and she said it has similar efficacy as TCHP. I know that TCHP has been the gold standard for many years with proven long term record. Just looking…
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Tamoxifen side effects
Hi, I am a 69-year-old woman and and I was diagnosed with stage Ia invasive ductal carcinoma in April of this year. I had a wide surgical excision , 19 treatments of whole breast radiation, and now I have been taking Tamoxifen , 10 mg every other day for two months. I am in a Low Tam research study, that us why the dose us…
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Back after years - lymphedema surgical resources?
Hi everyone. I was diagnosed with lymphedema I think in early 2011, so it’s been a while. I used to be on this board a lot back then. I’ve stayed active and used compression and not had much trouble with flares of swelling. My swelling never goes away completely, but it’s still soft and it’s honestly quite subtle to the…
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How has normal, day-to-day life changed for you after diagnosis? Share your “different normal.”
We're using the phrase "different normal" instead of "new normal" here. A person's transition out of active treatment into this "different normal" varies. All people and situations are unique. There are no right or wrong answers or timeframes. Share your experiences here!
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Faslodex Girls Thread
Tips for taking Faslodex without pain: ABSOLUTE MUSTS: * Warm up the syringes. At least room temperature. Armpits work well, as does belly skin. * Take the weight off the leg on the side of the shot. Relax that cheek/leg as much as possible. * Inject SLOWLY! It should take at least 30 seconds to empty each syringe. General…
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Community Recommendations for EXTERNAL RESOURCES (Non-Book)
ALL EXTERNAL RESOURCES (Non-Book)Below is the consolidated list, and we invite you to please add in the discussion!! 🧠 Mental Health, Coping, Wellness Calm Meditation App — https://www.calm.com/ua-homepage Project Life (Virtual Wellness House) — https://www.projectlifembc.com/ Moving with Milly (YouTube)…
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Member Recommended Books and Readings for Living with MBC!
Metastatic Breast Cancer / Treatment The Complete Guide to Breast Cancer — Trisha Greenhalgh & Liz O’Riordan Not the Breast Year of My Life — Frankie Leigh Stand By Me: A Guide to Navigating Breast Cancer as a Couple — Claudia Gilmore Living With Illness / Mental Health Radical Acceptance — Tara Brach Full Catastrophe…
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Has anyone with Her2+++ achieved pCR before surgery using only paclitaxel and Phesgo?
Hello from Tokyo. I am currently undergoing treatment for Her2+++(ER+1%) The preoperative regimen is 12 doses of weekly paclitaxel and 4 doses of Phesgo every 3 weeks, and if the tumor does not disappear, EC will be added. I searched on X and found that there was one woman in Osaka,Japan who underwent a clinical trial of…
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gatekeeper nurse
I had a single mastectomy in August. Since then I've had a couple of followup visits with my breast surgeon and have been seeing the plastic surgeon who will do reconstruction. The plastic surgeon is an independent one-doctor office. He has staff for appointments, etc. but he answers emails himself. And in a very timely…
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November 2025 Chemo thread - let's support one another!
Is your chemo treatment scheduled soon? Let's share experiences and lift one another up here. We encourage you to share your feelings about starting chemo, what the planned regimen is, how you're preparing, ask questions and learn what to expect from others, side effects you're experiencing and how to alleviate them, and…
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Advice for caregiver
Hi all My partner is scheduled for single mastectomy and implant next week. Looking for advice-tips on what type of things I can expect, what can I do to prepare for after surgery and what I can do to help her though the recovery period?
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CT and Lung Nodules
I cannot find my previous thread, but this is my newest CT scan. So far I have had them in November, January, April, and today. I had a PET in November that lit up on a couple of spots in my left lung and three level 2 cervical nodes. Currently on a watch and see. Anyone have some information on this newest scan? Not…
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Vaginal estrogen for intercourse, testosterone supplementation for muscle mass
Hi. Previously my oncologist said we could consider vaginal estrogen after 2 years with no recurrence. I am at about 2 years 4 months now and asked if I could get vaginal estrogen prescribed, and they said no without providing a reason why. No answer. None of their suggested remedies helped. I tried ALL OF THEM. I also…
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Enhertu hair loss
I was told I’d keep my hair but it started dropping out fast. Looking back it may have helped keep more hair had I not brushed as aggressively, started modest iron supplements before iron & other numbers dropped requiring one transfusion. And switched hair products sooner. I think it would have prevented or slowed hair…
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Xeloda (Capecitabine)
Has anyone with Triple Negative Breast Cancer taken Xeloda that went through chemotherapy and then had a double mastectomy and lymph nodes removed? I am going to have radiation but, my oncologist wants me to take Xeloda but, I want to hear some feed back.
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cording (axillary web syndrome)
Good morning! I’m 4 weeks post op from lumpectomy with SLNB. About a week ago I noticed worsening range of motion in my arm and a “cord” in my armpit on the surgery side. The lymphedema RN confirmed its Axillary Web Syndrome (cording). Man is this painful and frustrating! I can feel the tightness thru my forearm. I have a…
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ER-, PR-, Her2+ Roll call
Hello everyone My mom was dx in November 2010. She is in her Chemo courses and only 2 sessions left. She is so well now and is very hopefull.My little niece makes her so happy and she is planning for the ceremony of her first birthday. Since she was dx I've explored in this site in different cathegories but sisters with…