Recent Discussions

I am seeking experiences and suggestions regarding next-line treatment options for my wife with HR-positive, HER2-low metastatic breast cancer. She has recently progressed on ibrance with exemestane then Capivasertib (Truqap) plus Fulvestrant, with PET imaging showing progression mainly in the liver and lymph nodes.…

Hey all, I am starting this thread to give us a place to meet up and check in. We all know this "ain't Facebook" and since some of us have left the boards recently let's have a roll call and start fresh here. Some of the "IBC ladies" and other threads have gone a bit untended so let's see who we are: I'll go first: dx June…

Maybe this has been covered before, but I couldn't find quite what I'm looking for, so I'm hoping some of you can share your experiences! I was diagnosed with Stage 0 DCIS about two weeks ago. I have a strong family history of breast cancer, and I've always known what decision I would make if my number ever came up. So, in…

This thread is meant to be for RANTS and RANTING. Then Rant again. We need a place to simply get rid of the anger. Write it here. Unleash it all. Get it out. This isn't meant for the Stupid comments(great thread). This is for the gut wrenching, tell them off anger. IMPORTANT: When done ranting don't necessarily stick…

I found a couple of older threads about Arimidex, but they covered a large time span with a gazillion posts, so I thought I would start a new thread for Arimidex/Anastrozole users. I am starting on Anastrozole today. Plan is to take it for 5 years, possibly longer. I already have osteopenia and osteoarthritis (limited to…

is anybody in a trial with cdk2 inhibitors ?

Hi- New to this group and to the diagnosis of ILC. I’ve been told I’m Er+, PR -, HERS2- , grade 1, stage 1A, 17mm cancer area -of course all subject to change after post- surgical biopsies in October. My question (concern?) is with ILC such a sneaky cancer and my inability to do a contrast MRI due to a severe allergy to…

hi all, DMX 9 years ago for DCIS. (2017) Been followed since then for ultrasounds every 6 months as precaution. recently felt a small, firm pea sized lump in non cancerous side. Both ultrasound and mammogram came back as Fat Necrosis. Had the breast surgeon and two radiologists look at the imaging. My question.. why NINE…

Hi. Previously my oncologist said we could consider vaginal estrogen after 2 years with no recurrence. I am at about 2 years 4 months now and asked if I could get vaginal estrogen prescribed, and they said no without providing a reason why. No answer. None of their suggested remedies helped. I tried ALL OF THEM. I also…

Hello, All. Does anyone have any experience with or knowledge of having a combined DIEP and implant hybrid/"stacked" reconstruction? My name is Erinn. I was diagnosed with DCIS grade 2 ER+ in my right breast on 6/22/26. For various reasons, including that I have pretty small breasts and a 3+ cm area of "excursions" that…

Hello I am here to see what u guys think is better for me or what do you think about a double mastectomy or a lumpectomy. I have triple negative breast cancer and my mom had the same thing and she had it removed in a lumpectomy and in 6 months it came back and it was a stage 4 and she lost her fight in April of 2021 due to…

After my 3rd TX of Enhertu and a week into it I am experiencing very painful knee and leg muscle pain. Anyone have this, and what worked to stop it? Wondering if Mg would help? It kept me awake last night. I drink 90+ oz of water a day and walk. Thanks for advice.

I am so blessed to learn today I fall into a category literally called exceptional responders. Any others out there? How do you cope? Got any tricks for not being both elated and frustrated at the same time? I was 37 when I was diagnosed and I promise, every bit thankful for every healthy day since as I am here 16 years…

Hello, I had my lumpectomy on September 15th and received my pathology report day. I did feed my report into ChatGPT and the doctor also called me. The results were worse than I was hoping (although i know in certain respects I'm fortunate). The tumor size was 1.4CM with a mix of ductal and lobular. Is that common to have…

I have been on anastrazole for three years, and have done very well on it. Until now. I have developed vaginal atrophy. My symptoms are agonizing: extreme dryness, pain, discomfort, irritation, burning. It’s truly awful. I have tried all sorts of creams but nothing seems to work. The simple solution is vaginal estrogen.…

I am starting this new forum for all those who are on this newly approved drug combo. I started on Kisqali/Letrozole combo 6 weeks ago and so far it has been tolerable. Letrozole gives me joint pain and low back pain. My oncologist has asked me to take this on alternate days. Would love to hear from others about their…

Is there any long term survivors who have had a high oncotype score. I know that this test is relatively new but I also know that it has been on the market at least 4 years. So I know that "long term" regarding this test isn't very long term. I had it done 3 years and 4 months ago. My oncotype score was 52. My onc told me…

I continue to have stiffness and numbness in both knees and occasional pain in hands and numbness in fingers I have tried to increase my activity and I take level and sometimes Claritin or Zyrtec But recently I started applying epsom salt lotion to my knees with some relief . Just started taking collagen last week and I do…

SOS Triple Negative Metastatic P.s Long Post I would like to ask for opinions regarding my mother’s case. She was first diagnosed with breast cancer in Albania in November 2018. The tumor was ER-negative, PR-negative, HER2-low (0)PD-L1 negative, and BRCA1/BRCA2 genetic testing was negative.She has also no possibility for…

I have Invasive Ductal Carcinoma. I am scheduled for a bilateral mastectomy with reconstruction on October 13. My oncologist put me on letrozole before my surgery because my surgery was so far out. She did not say anything about sexual side effects. She only talked about joint pain, hot flashes, osteoporosis, etc.. I have…

hello I was wondering if any one has discovered the magic potion that helps with the arm and shoulder itching caused by phesgo and if people have found the itch is worse after been in sun? to put into context, I started the injections in January but I only started itching late March snd was just occasionally and on my…

After starting Tamoxifen and now Anastrozole, my sex drive dwindled to a flicker. Even before my mastectomy, we were having challenges with sex. After delivering my second child as a VBAC, sex was very painful except for a limited few positions. Turned out, my uterus was prolapsing, which put my cervix at a bad angle for…

Hello everyone. I was wondering if anyone(s) could share any experiences they have had using sacituzumab govitecan (Trodelvy) either in a clinical trial or as recently approved by the FDA. We are trying to determine if it's the best plan of action for my wife at this time. There are 2 key things we are trying to determine.…

Please share your experiences with survivorship. What has been the most surprising/difficult/inspiring aspect of your life since finishing your breast cancer treatment? What do you wish you had known or been prepared for before transitioning into this next phase of your life after cancer?

has anyone here refused to take either their Tamoxifen or AI?

Hi! I had a lumpectomy on my right breast 19 years ago. For about 10 years, the asymmetry wasn't that significant. Then, about 8 or 9 years ago, I noticed the left breast growing. Not sure if the right breast also got smaller. The extra tissue finally showed up on a mammogram, they did a biopsy and it was benign. But now…

Hello Ladies! When I was diagnosed in 2014, my son was a toddler and I could not afford the recovery time. I so wanted to get both breast done. I actually wanted to go smaller. I have always had big dense breasts. Now I've put on a ton of weight from menopause and my breast are out of control as well as each shaped…

I know this place isn't what it used to be. I don't know why I'm posting here other than I'm so scared, and dealing with this completely alone. 2018 - age 39 - diagnosed Stage 3C, Grade 3, IDC, ki67 > 95%, ER+30%, PR-, Her2-, spread to Internal Mammary Node. Did 8 rounds of AC/T (Pcr supposedly), lumpectomy despite my…

Hello everyone, I am seeking guidance and experiences regarding my wife’s breast cancer diagnosis during pregnancy. She is currently around 32 weeks pregnant and is being treated at an Army hospital in India. Her breast biopsy/histopathology has confirmed breast cancer. The tumor is reported as: - ER positive - PR positive…

I cannot find my previous thread, but this is my newest CT scan. So far I have had them in November, January, April, and today. I had a PET in November that lit up on a couple of spots in my left lung and three level 2 cervical nodes. Currently on a watch and see. Anyone have some information on this newest scan? Not…