-
Wednesday Weigh In
Some of us on the Let's Post our Daily Exercise thread decided that it might help keep us honest if we had to post our weekly losses or gains. Not posting your weight - just your net loss or gain. So here goes!
-
Bone Mets Thread
I've started this thread after suggestions that it would be useful. Mod Note: We have removed the original link as it is no longer viable. At one of our member's' recommendation we are offering this link as a resource for you. https://youtu.be/YpFfLrITfEI
-
Cats, cats, cats
a thread for crazy cat ladies! I thought maybe just pics of your own cats, and if there's not enough then just any old cat you can find! I have 8. Technically only 5 are mine, the others think they live here. Mostly because I feed them with everybody else and they never seem to leave!
-
Just found out today
I'm so glad there's a group like this! Just got results from the patient portal - TN IDC stage 2 in my left just like I had 13 years ago in my right. The MRI I had in May was totally clean. As you can imagine I'm feeling all the feels. None of my providers has actually called to speak with me yet (in fairness the results…
-
Newly diagnosed, sort of
Hi - I’m new here, 56 years old, terrified and frustrated with the long timeline for my diagnosis. Since my mammogram on Nov 22, 2024, I’ve been sinking deeply into paralyzing despair with each new waiting period followed by a new piece of bad news. (1) calcifications on right breast mammogram, (2) magnified mammogram…
-
This sucks - Osteonecrosis of the jaw
After 10 months of bisphosonates I have been been diagnosed with ONJ. 3 weeks of mega antibiotics, everything else except letrozole stopped until this is resolved. A bottle of liquid morphine to add to my collection. (Resisting because it feels too ‘cancery’, if you get my drift.) And more ‘activity’ detected in my bones…
-
Anyone on TRUQAP?
Hi all, it looks like I'm going to be starting TRUQAP soon as an alternative to Piqray. However, it looks like TRUQAP and Piqray both come with some pretty nasty side-effects. I was hoping T would be easier than P. From what I've read, it sounds like Imodium AD may become my newest friend. Yuck! I was hoping for an easier…
-
SSDI review with metastatic breast cancer - lose benefits?
I just got a packet of mail from my state disability determination services office, saying that they are reviewing my disability status. I was diagnosed with unnumberable bone-only mets in Feb 2020. I was on Kiquali/letrozole for about 4 years, and now I've sped through Orserdu, piqray, and now, Truqap just in this year.…
-
triple positive, node negative, and microinvasive--now what?
Hi. I posted before when I was not sure if I had microinvasion and now everything is confirmed. I wondered if anyone is +++ and miccroinvasive out there. I think that my MO will not recommend further treatment beyond the mastectomy but I wonder if anyone else has been through this. I feel like the recent articles I've read…
-
Lymphedema - breast twice the size of other one
My arm did not swell up but my breast did by a lot after my lymph nodes were removed. It has been over 4 months now and my effected breast is twice the size of my other breast. My oncologist said oh well it will just be like that forever but she never even looked at it. I am in Canada but I heard not all oncologists are…
-
Breast lymphadema (what does it feel like)?
I am newly diagnosed with breast and arm lymphadema. My symptoms are a tightness across my breast/chest and upper arm. Swelling and aches in both my arm and chest. My breast almost feels like when you put a wet washcloth on it. Sounds weird, but it’s the only way to describe it! Does anyone else experience this? I’m seeing…
-
Radial Scar - Observe or Take Out?
I'm recently diagnosed with a benign radial scar. First seen on a screening mammogram as an area of "focal distortion." Called back for diagnostic mammogram and ultrasound. It persisted on the diagnostic mammogram as architectural distortion and a 0.7cm irregular mass was found on the ultrasound. The radiologist came in…
-
Implants...does your "foobs" get itchy!!!
I've had my current set of implants....mentor silicone implants for 3 1/2 years now...and there are times I feel like I want to claw my chest off...this is mostly in the evening....I haven't been to the PS in 1 1/2 years (or is it 2 1/2 years) and have no plans to make an appt for him to just look at them and say yup, they…
-
Letrozole Side effects-- throaty
Have been taking letrozole for about 4 months after DCIS (w/clear margins), and preventative radiation treatment. Seem to be free of noticeable side effects except it appears to cause a cough and a 'drippy' feeling in the back of my throat. I confirmed this by going off it for 2 weeks, when these symptoms disappeared. Has…
-
Moving on from Ibrance to Orserdu
After 7.5 years on Ibrance & Letrozole I had slight progression. A blood biopsy was ordered and I remained on I/L. I had developed great pain in my shoulder and this was found to be cancer. Blood biopsy reported ERS1 & PIK3CA mutations. I completed 5 rounds of radiotherapy to the shoulder and 2 days later on 29th of March…
-
Has your faith, spiritual, or religious beliefs changed since cancer?
Please take our poll, and share your thoughts and feelings below in the discussion.
-
ER & PR positive, HER2 negative - chemo or no chemo??
Evening all, new here and looking for some opinions xx In Nov 2024 i had surgery to remove cancer in my right breast after biopsy (Oct 2024) confirmed a 20mm core ER8, PR8 and HER 2+1. The surgery wasn’t completely successful and the final histology reported it to be 47mm stage 3 ER8, PR positive and HER 2 negative with…
-
Ibrance (Palbociclib)
A bottle of Ibrance came in the mail today. I will start taking it tonight with Femara. Hoping that others starting on this drug will join me here to talk about side effects and how to avoid or treat them. So far, I've been warned about low white counts. I run very low as it is, probably because of my extensive bone mets.…
-
Kisqali side effects and timing
I was diagnosed with stage four NBC earlier this year and just started a combination of anastrozole and Kisqali. I am three weeks on with one week off. I have experienced some persistent nausea, but most concerning is my serious fatigue. I’m wondering if this improves over the months as you continue with the Kisqali? I’m…
-
AC-T Latest advice?
hi all, Am starting AC-T and wanted to know if there is any up to date advice or tips to consider? I have heard cold cap isn’t good with it but will use it anyway. Anyone used Paxman with AC-T? Welcome any tips to keep me sane!
-
Ladies in their 40s
Hello All, I just wanted to start a new thread for ladies in their 40s. Although we are considered "middle aged," many of us are still dealing with issues concerning young women, such as fertility, pre-menopausal status and related treatment decisions, young children at home, being single etc. Both younger ladies (in their…
-
Zoom Meet-Up Bonded by Breast Cancer: Place to Keep Chatting
Hey Everyone, Here is a place to keep sharing between meetups. Warmly, The Mods
-
Scar Tissue
I wanted to share some vital info. I've been having chest tightness for over 2 years. I've been tested for PE's, acid reflux, etc., but everything would come back negative or not something they could fix. I do have acid reflux and take Prilosec twice a day to keep it under control. I kept asking all of my doctors if it…
-
RCB III - Terrified
Hello! Recently (12/12) I successfully underwent a double mastectomy. I'm healing pretty well and my pain seems to be getting better every day. Today, I had a post op appointment with my Medical Oncologist that has made me both sad and scared. We went over my post surgery pathology and there were more infected lymph nodes…
-
How about kidney stones!
I was getting ready to go to work (two days ago) when I was struck by the most incredible pain on my left side/flank. Something was very wrong. For about 30 seconds I thought I could drive myself to the ER but realized that an ambulance was needed (texted family who called 911 for me). I simply cannot describe the pain and…
-
Extreme tumor markers (CEA, CA 15-3)
Hi Everone, I'm Peter; this is my first post in this forum. However, I used to read it a lot. I'm here to understand my wife's situation; maybe some of you have experienced similar things to what we did a couple of days ago. Long story short, my wife was diagnosed with hormone-positive breast cancer in October 2020; she…
-
On Anastrozole. Should I start Zometa? Had one Bone met that's gone! Tamoxifen instead?
HISTORY I just started this MBC journey 7 months ago. I had one small bone met in upper sternum and some possible mets to soft tissue in mediastinum and lymph nodes in same area. Only the sternum was biopsied. ER+ (90%), PR+ (30%), HER2+. I started on HP protocal and anastrozole the end of July 2024. No chemo. End of…
-
23 Years of Stage 4!
Today is the first day of my 23rd year after being diagnosed with Stage 4 MBC de novo. The past few years have been very challenging since my body has been protesting against so much chemo, but I am doing my best to hang in here. Sending love to all of you! Denise
-
Finished radiation Dec. 23 - cancer free after lumpectomy
I have terrible blisters on my chest wall. Stopped using aquaphor using recommended calendula. Going to see about using silver sulfadiazine. Calling nurses tomorrow. Don’t want it all to get infected ugh. Go back to work Monday. I feel like they are open sores now - very uncomfortable. They said it would be the worst at…
-
DCIS, receptor positive and still on HRT. How risky is this?
Hi everyone. Never thought I would be spending my holiday break talking and researching cancer. Yet here we all are. I was recently diagnosed with DCIS and receptor positive for both ER and PR. I had a lumpectomy on 13 Dec 2024 and was advised I need a further one (scheduled 22 Jan) as they didn't get clear margins all…