Recent Discussions
Discussion List
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We need your inspirational words! Partnership with Uncommon Goods
What inspires you, gives you hope, and keeps you going during tough times? We have a special project in the works with our partners at Uncommon Goods. A subtle QR code, like the one shown here, will unlock daily reflections, words of wisdom, and self-care themes on a mug specially designed for people facing breast cancer.…
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Perimenopausal Anhedonia and Anxiety
As cancer fighters, we have a lot of reasons to experience anxiety and depression simply because of our situation. Chemo and radiation sap our energies, leaving us feeling drained and less-than. Aromatase inhibitors are well known to dampen our libido, which can also add to our frustrations and strain relationships. Well,…
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Any Stage 4s on Semaglutides (GLP-1s)?
I have lately thought about possibly going on a semiglutide to help lose weight. I have been dealing with breast cancer since 2010 (since 2019 at Stage 4). My weight has continued to creep up and I have struggled trying to the lose weight and I have lymphedema from cancer treatment. My MO told me about a year ago that he…
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💗 September 2026 Surgery Support Thread — You’re Not Alone!💗
Having surgery in September—whether it’s a lumpectomy, mastectomy, reconstruction, lymph node surgery, or another procedure? This thread is for you. This is your place to connect, ask questions, share updates, celebrate milestones, and support others who understand what it’s like to count down to surgery and navigate…
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Stopped Letrozole
I have Invasive Ductal Carcinoma. I am scheduled for a bilateral mastectomy with reconstruction on October 13. My oncologist put me on letrozole before my surgery because my surgery was so far out. She did not say anything about sexual side effects. She only talked about joint pain, hot flashes, osteoporosis, etc.. I have…
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2 Word Phrase Game
This game has the poster making a new 2 word phrase starting with the second word of the last post. Only Two Words! Now let's begin the game~ Age Old
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Invasive Ductal Micropapillary Carcinoma
I've recently been diagnosed with this rare form of IDC that is more aggressive. It is a mixed form containing ductal and micropapillary components. Although my tumour was (had BMX and reconstruction) only 1.4cm, it has been found in 3 of 7 lymph nodes sampled and is a Grade 3. I've yet to be staged as I need scans to…
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FDA Approves Imlunestrant (Inluriyo) for Certain Hormone Receptor-Positive Breast Cancers
Imlunestrant is a hormonal therapy medicine used to treat advanced-stage hormone receptor-positive breast cancer that grew during treatment with other hormonal therapy medicines. Read our breaking news article.
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🌟 September 2026 Radiation Support — Gather Here!🌟
Having radiation therapy this September? Whether you’re preparing for your first session, settling into the routine, halfway through treatment, or counting down to your final appointment, this thread is for you. This is your place to connect, ask questions, share updates, celebrate milestones, and support others who…
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Fat Transfer Experiences
My PS has indicated he may want to do fat transfer after I have recovered from a permanent implant and natural breast reduction/lift that happened August 31. I do not want any more surgery. My original choice was a double mastectomy in May, but I was convinced to try this path. I regret agreeing to it. There is only one…
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Thin Slices of Joy
I finished active treatment less than a month ago, and wow, you just don't bounce right back up. Before all this started I have had sciatica for a couple of years, and it worsened during treatment. In trying to recover from both, I've been feeling frustrated. Now, I'm tired of the pain, fatigue, and frustration. Oh, and…
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HERCEPTIN and/or PERJETA Threads
I am currently on Herceptin and Perjeta with Zometa every three weeks. Would love to hear from others who have been on this targeted therapy and how well the treatments have been working for you..
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Adding Ibrance Stops Growth of Metastatic Triple-Positive Disease for More Than a Year
Adding Ibrance Stops Growth of Metastatic Triple-Positive Disease for More Than a Year Dec 18, 2024 Progression-free survival was 15 months longer when Ibrance was added to standard treatment. Read more…
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Keytruda for High TMB in ER+ Metastatic Breast Cancer — Anyone With Experience?
My wife has ER-positive, HER2-low (IHC 1+) metastatic breast cancer and has been living with metastatic disease for about 10 years. Unfortunately, her latest PET scan has shown progression after approximately three months on Xeloda. Her oncologist is now considering Keytruda (pembrolizumab) because of high tumor mutational…
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Zoom Meet-Up Bonded by Breast Cancer: Place to Keep Chatting
Hey Everyone, Here is a place to keep sharing between meetups. Warmly, The Mods
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After complete hysterectomy …..
Just wondering, if you’ve had a complete hysterectomy 20 years ago and are starting tamoxifen, lower dosage ? Less side effects? Any other things to consider?
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Looking for a little support and connection 💗
Hello, I’m hoping to seek some support from anyone who may have found themselves in a situation similar to mine, especially around the decision between re-excision and mastectomy/bilateral mastectomy. I’d really love to hear about your experiences and what helped you make your decision (if comfortable doing so, of-course).…
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RE: zero compression bra rec
Hi I had a unilateral mastectomy, lymph node biopsy and tissue expander placement sept 25. My reconstruction surgeon said no compression but I am desperate for something to wear. My other breast is large with droop and I have zero dressings only dermabond. I was only post up with dressing that has since been removed. I…
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Replacing aging implants
I had a BMX about 14 years ago with expanders leading to implants about six months later. I’ve had absolutely no issues with my implants and based on MRIs, my implants are intact. However, my breast surgeon wants me to start thinking about replacing the implants because they typically last about as long as I’ve had them. I…
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Middle Aged Memories
Let's see, so far we've reminisced about dittos, drive in theaters, lick-a-stick candy, five-and-dime stores, Donny Osmond, Dark Shadows, what have I missed?
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BREAST IMPLANT SIZING 101
DISCLAIMER! I am not a physician or medical professional. The information provided is my own personal opinion. You must discuss every aspect of your reconstruction with your plastic surgeon. PLEASE NOTE: New information!! Allergan now has a very easy chart to follow to help you see how sizing works in relationship between…
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Stage III Cancer Survivors........20+ years and out
I was waiting for someone else to start this…..but I guess it will be me:))))). Oh how I wish there was this thread when I was diagnosed. I had a huge tumor…8cm… with at least 17 nodes positive….some with cancer just bursting out of them….and a bit in my skin. My prognosis was poor and as I traveled from oncologist to…
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Zoom Meet-up for Those With MBC: Place to keep chatting
This is a space held for our Zoom Meetup members to gather in between meetings for updates and support. Join our Virtual Meet-ups! For those with a diagnosis of metastatic breast cancer (MBC; also called stage IV) Register: Mondays at 2:00 PM EST, Tuesdays at 1:00 PM EST, and Wednesdays at 4:00 PM EST Young (45 and under)…
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Plant-Based & Vegan - support & recipes
This is going to be a thread for people interested in plant-based diets* or becoming vegan*. Whether it's just a meal or an entire lifestyle, whether you're already there or are just curious and considering how to increase plants in your diets, you're welcome here. If you have a nutritional requirement that you would like…
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Blog Discussion: What Breast Cancer Taught Me
Join us to discuss this blog post. Let us know your thoughts, feelings and experiences and if anything about this post resonates with you. We value your insight! https://www.breastcancer.org/community/blog/lessons Post your thoughts on this blog post below.
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Progression after ribociclib (or cdk4/6) and letrozole
Hi I had her2 neg er+ breast cancer in 2018. In 2022 i had recurrence in my bones (all over with 3 collapsed vertebrae) and liver. I was on ribociclib and letrozole that worked really well, pet was negative and most metastasis disappear. In August I had liver recurrence. Blood test and markers are ok and i feel well so i…
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Starting Letrozole
Hello everyone. I was here in 2018 and reasonably active for two or three years. I gradually drifted away due to confusing changes in the site, plus other members I'd gotten to know either dropping out or dying. But now I'm back because I've been diagnosed with bone mets. Apparently there are a lot of them, but they are…
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Newly Diagnosed with ILC (Lobular) • Seeking Advice While Waiting for Oncologist
Hi everyone, I am new to the group and recently received my biopsy results. I have been diagnosed with invasive lobular carcinoma (ILC). My markers came back ER+, PR+, and HER2-. I don’t know my stage yet, as I am currently waiting for the call to schedule my initial consultations with a medical oncologist and a breast…
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Hormone Therapy - this counts as hard!
Shared with gratitude to the original author, Kylie Dahl. Expressing what so many of us feel but aren’t always able to put into words. “No one warned me that this part could hurt like hell. I’m on Herceptin and a hormone blocker, and the joint pain is relentless. Hands, hips, knees, shoulders, back, feet stiff, aching,…
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🌸 September 2026 Chemo Support — Join Together Here!🌸
Starting chemotherapy this September? Whether you’re preparing for your first infusion, in the middle of treatment, or nearing the finish line, this thread is for you. This is your place to connect, ask questions, share updates, celebrate milestones, and support others who understand the ups and downs of chemotherapy.…
Categories
Popular Tags
- Research News 116
- Mastectomy 111
- Podcast 97
- Metastatic Breast Cancer (MBC or Stage IV) 95
- Invasive Ductal Carcinoma (IDC) 86
- Lumpectomy 78
- tamoxifen (Nolvadex; Apo-Tamox; Tamofen; Tamone; Soltamox) 69
- Anxiety 68
- Triple-Negative Breast Cancer 63
- Ductal Carcinoma In Situ (DCIS) 58
- Lumpectomy vs. mastectomy 57
- ER-positive 53
- Breast implants 49
- Femara (letrozole) 45
- Taxol (paclitaxel) 42
- AIs (Aromatase Inhibitors) 42
- AC: Adriamycin and Cytoxan 41
- Arimidex (anastrozole) 41
- Dense breasts 41
- AC+T (Taxol): Adriamycin and Cytoxan plus Taxol 40
- Abdominal Pain 36
- Recurrent Breast Cancer 36
- Kisqali (ribociclib) 36
- Hormone receptor-positive HER2-negative 36
- Verzenio (abemaciclib) 36