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Augtyro
I was recently prescribed Augtyro (repotrectinib) because of NTRK gene fusion. When I was on Verzenio and Fulvestrant/Faslodex, tons of people had experiences and could talk through side effects. Now that I'm on a rare drug, I don't have that group. Is anyone on or been on this medication?
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🌟 April 2026 Radiation Roll Call — Step In, Check In, You’re Not Alone 🌟
If radiation is part of your plan this April, this is your invitation to step in and introduce yourself. ☀️ You’ve found a space where people truly get it—and we’re ready to meet you. Whether you’re waiting for your first session, in the rhythm of daily treatments, or already ringing the bell, this is your place to check…
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DCIS: choosing surgery only, followed by monitoring
Hi all, Would love to start a thread for those with DCIS who chose surgery only, no RT or HR meds. I've done a lot of research and am comfortable with my decision based on my pathology and low Oncotype score. I will have monitoring twice a year, once w GYN & mammogram and once w BS & ultrasound, so should anything change…
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Early Stage Breast
Hello, I am really scared of receiving my recent biopsy of early stage breast cancer today and came across this site and about to turn 54 and not what I really wanted to hear. I'm just reaching out for a community who are traveling with cancer. They are not sure where it has spread or if it is contained with the 15m size…
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Long-term survival of DCIS patients without radiation or hormone therapy
I'm interested in hearing from people who did not have radiation or hormone therapy after a lumpectomy for DCIS
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Cats, cats, cats
a thread for crazy cat ladies! I thought maybe just pics of your own cats, and if there's not enough then just any old cat you can find! I have 8. Technically only 5 are mine, the others think they live here. Mostly because I feed them with everybody else and they never seem to leave!
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Intraductal Papilloma questions
Hi there! I've read some posts on here and gleaned a lot. I'm a 27 yr old, and found out recently that I have a 10mm intraductal papilloma in my right breast. (For what it's worth, over the last year this breast has doubled in size, and a few years ago I had another round of biopsies done on breast so there's a lot going…
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TNBC MBC Stage 4
Hello - I actually joined this group awhile ago and never posted anything. I’m hoping to connect with like minded women living with MBC. I was first diagnosed in 2019, stage iiib; had the standard protocol, chemo, surgery, radiation.Cancer free for 18 months, recurrence in 2021, living with it. On several treatments…
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Scar sore and armpit sensation
Had a smx and slnb for dcis back in January, alll went well and treatment has finished , jve noticed over last week or so the scar feels tight and I have awful itchy feelings , like pickles under the armpit, no swelling or signs of infection, is this normal ?
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Mind is spiraling….
Ok friends. For some reason, I’m spiraling. Background story: I have a history of DCIS, left breast. I had a DMX as my breast oncologist surgeon was in agreement with the surgery. This all happened in 2017. Direct implants at the same time. A year later in 2018, had fat grafting in both breasts. All has been well; have had…
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CALLING ALL ARTISTS- Lets make an art gallery!
We would like to create a slide show gallery of our YOUR art! Paintings, sketches, ceramics, sculpture, crafts, gardens, quilts, photography, jewelry, stained glass, mosaics, poetry .... you name it! We may show this slide show at our annual Rock the Ribbon event on October 22nd. Please post photos here, even if you have…
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Breast and truncal lymphedema
I’ve move from PT for nerve impingement to lymphedema OT for breast and truncal lymphedema. My OT says she considers me Stage 0 lymphedema in my arm due to symptoms I have however I don’t have enough swelling yet in my arm. Yet. I’m in compression bras 23/7, have multiple pads to wear in bras for additional compression, do…
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Ribociclib/Kisqali with Letrozole - Any one on this combo?
I am starting this new forum for all those who are on this newly approved drug combo. I started on Kisqali/Letrozole combo 6 weeks ago and so far it has been tolerable. Letrozole gives me joint pain and low back pain. My oncologist has asked me to take this on alternate days. Would love to hear from others about their…
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What topics/experts would you like to see on The Breastcancer.org Podcast?
Hello, I'm Jamie, senior editor at Breastcancer.org and host of The Breastcancer.org Podcast. I'd like to make sure the podcast is answering questions that Community members have. Are there topics you'd like to see covered? Experts you think I should talk to? Do you want to share your story? Questions you want answered?…
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For ALL Not Diagnosed Newbies: Imaging & Common Symptoms FAQs
Our very helpful member djmammo has taken the time to research and put together some extremely helpful information for all newbies who find themselves here, worried about a symptom, a test result, or interpreting image results. Please take a moment to read through the thread links applicable to your situation below. Many…
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Is It Normal for Skin Sensitivity to Appear Weeks After Radiation Ends?
Hello I finished my radiation therapy about three weeks ago & while my skin seemed to heal well initially; I am now experiencing delayed sensitivity almost like a sunburn that wasn’t there before. 😑 The area feels warm and slightly itchy & some mild redness has reappeared. I expected side effects to gradually improve, not…
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🌟 March 2026 Radiation Roll Call - Support is here! 🌟
If radiation is part of your plan this March, this is your cue to step in and introduce yourself. ☀️ You’ve found your people. Whether you’re waiting on your start date, driving to daily sessions, or already ringing the bell, this thread is your check-in spot. A place for honesty. For “Is this normal?” questions. For…
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My 20th year is finally here!
April 28, 2006…the day my life changed forever. As most of you know, it's hard to imagine life beyond those three words "you have cancer" (or in my case it was "we have a problem.") Soon after my diagnosis, my husband & I were on the sidewalk in Cannon Beach discussing my condition with a friend. We were approached by a…
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Blog Discussion: Naming the Grief
Join us to discuss this blog post. Let us know your thoughts, feelings and experiences and if anything about this post resonates with you. We value your insight! https://www.breastcancer.org/community/blog/naming-the-grief Post your thoughts on this blog post below!
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Blog Discussion: Navigating Celebrations When Breast Cancer Is Part of Your Life
Join us to discuss this blog post. Let us know your thoughts, feelings and experiences and if anything about this post resonates with you. We value your insight! https://www.breastcancer.org/community/blog/celebrations Post your thoughts on this blog post below.
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No reconstruction
I chose to go "flat" and have both breasts removed, but I blead to much and my cancer obliterated my left breast. She took four hours on just my left breast. Of course I was asleep but my family was very worried because it was taking so long. The surgery was my greatest fear besides death in this whole thing. I worries…
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Mammogram report
Hi i had mammogram done yesterday and this is the report Circumscribed equal density 8 mm anterior posterior left breast mass. No additional finding of either breast. ASSESSMENT: BI-RADS CATEGORY 0: Incomplete, need additional imaging evaluation. IMPRESSION: Left inner posterior breast mass, question cyst Recommendation:…
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All about Palliative Care (for all stages)
You might think of palliative care as end-of-life care — the two are often mistakenly linked. As a result, many people don’t think it’s an option for them, and they miss out on receiving care and support that can help them feel better. Simply put, palliative care, which is also sometimes called supportive care, helps…
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Birads 5 with calcification
I’ve been hesitant to post because I didn’t want reality to set it but here I am. I’m a 33 year mother of 3, youngest is 6. Just like most of the ppl in the group, It all started with me noticing a lump. I took action almost immediately. I made an appointment to see my primary doctor which took me 2 weeks to get in. I…
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Invasive Breast Carcinoma ER/PR+ HER2-
I recently found out my diagnosis early this month and has been taking it hard on myself for the past few weeks. My scheduled appointment with my Surgeon/Oncologist is on May 2nd. I'm 39yo, married with 3 kids (11, 8, 5). Been taking Tamoxifen 20mg every night at 8pm since April 11th and with just a few days in i got a…
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19 years later - reccurence in supraclavicular lymph
19 years ago (43YO) - DCIS, Uni Mastectomy, no further treatments Now - Postmenopausal (3 years), swollen supraclavicular lymph node (same side as initial mast), PET scan also found 2 other lymph nodes - intramammary at 2nd rib, and mediastinal node (near spine and heart). ER+, PR+, HER2- Dr says it is a unique situation…
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Histotripsy for Liver Mets. Experiences, Thoughts, Knowledge, Suggestions?
I am in the process of learning about histotripsy for possible liver mets treatment. My oncologist has told me something about the process, and I've read quite a bit also. It is not yet offered at all cancer centers (mine included), so it's sometimes necessary to go to a different clinic for the procedure. Has anybody here…
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Surprises continue
I was diagnosed with invasive lobular cancer, Stage 2, on March 6,2026. A mammogram in late July was read as normal. I had an MRI, which I pleaded for as my mother, and sister both had breast cancer. Done on March 5,2026. The after noon of the MRI, I got a call, to come in the next day for an ultrasound and possible…
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Recently diagnosed. 1/27/26 IDC grade2, Stage 1A ER+
Decided on double mastectomy, having mri with contrast today, then meet again with breast & plastic surgeons on 2/19 to schedule procedure. Anxious, scared, feeling like I'm forgetting something…..just crazy
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New
I went in for my regular mammogram. It was diagnosed with papillary breast cancer. I’m having a double mastectomy April 15. And I just don’t know what to expect. They said I don’t need chemo but they’re not 100% sure until after the surgery. Or radiation. What worries me is hormone blockers as I already live in chronic…