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Lost my job...am I being selfish?
I started a new job and then was diagnosed with stage1 breast cancer. I had a lumpectomy and oncoplastic reduction, and weeks of radiation still to do. My employer let me go a week after the reduction because I wasn't sure when I could return to full capacity. It's a small company. I guess I'm looking for insight and…
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MBC to the bones
Hello 🙂 My mother today was diagnosed with MBC to her spine and hips. I read on the web that life expectancy is 19 to 25 months. Is that true? Sounds so little. I read some of your stories and I see that many of you have already live much longer. My mother soon will be 76. I love her so much, and she is so though and…
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Summer/Fall 2024 Radiation Support thread
Gather here to share experiences, ask questions, get encouragement, and support others who are going through radiation therapy along with you. Please share your diagnosis, any previous treatment you've had, and your scheduled start date along with your radiation schedule. We're all here for you!
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Scared, has this happened to anyone?
So here's my story. Back in July of 2024 I thought felt a lump in my breast. For about 2 years every month when I started my period I would feel a large lump but it would go away after my perky. When I went to the gynecologist he felt around but didn't feel anything, but he wanted to be sure so he sent me for a mammogram.…
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Newly diagnosed stage IV
I am newly diagnosed. I am also a year into a systemic sclerosis/scleroderma diagnosis. Looking to connect. I am angry and in denial after the past five years of fighting diseases to now be diagnosed with this.
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Starting Chemo September and October 2024 Support Thread
Join us here to support one another, share experiences, and ask questions. We're all here for you. What is the type of chemo and regimen you'll be doing? When do you start? Share your thoughts and get support!
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adriamycin heart damage
Hello, Just dx with heart damage due to adriamycin use in 2005. I was dx with Stage 1 bc, ER-PR- Her2+++. Had lumpectomy, chemo ACT then 10 months of Herceptin (had to stop twice due to low muga scores). Radiation. Had genetic testing Pos Braca 1 so had bilateral overies removed then bilateral mastectomy with silicone…
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Contemplative practices - Affirmations, white light visualizations, healing meditations
Do you have a contemplative practice? A spiritual lifestyle ? imagery or healing meditations you like? Let’s share the love of positive affirmations and meditations. I just finished Ian Gawler's book You Can Conquer Cancer , and I was reminded how much I love self healing practices. I do white light meditations every…
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Discovering Asexuality
After starting Tamoxifen and now Anastrozole, my sex drive dwindled to a flicker. Even before my mastectomy, we were having challenges with sex. After delivering my second child as a VBAC, sex was very painful except for a limited few positions. Turned out, my uterus was prolapsing, which put my cervix at a bad angle for…
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Stage III Cancer Survivors...15+ years and out
Let's just see what happens here...This is a "build it and they will come" experiment. It's time. If you are not a 15 year survivor but know the story of someone who is, please join in.
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carnivore diet
Hello I just wonder if anyone from you is or was on a carnivore diet before, during or after the breast cancer diagnosis. I would like to hear from you. Ata
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Family History. Doctors not taking me seriously
Hi I'm Dani and I'm new here. I've never posted on a forum before so I guess this really feels like a last resort for me. I've had obsessive thoughts about getting breast cancer ever since I learnt of my alarming family history 5 years ago. I am currently 25 and after being in and out of therapy over this I don't want it…
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Letrozole effectiveness long term
I just posted on another thread that, after 14 years since initial diagnosis, I now have a single suspicious supraclavicular lymph node diagnosed on annual ultrasound. I have been taking Letrozole daily since 2011 up until about a month or two ago. I just became lazy taking several meds. I am wondering if this new finding…
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Abnormal lymph node above collarbone
Hello all I initially was treated for stage 2 ILC in 2010 and have been attending followup scans and doctor visits once or more times each year since then. I have also been taking Letrozole faithfully up until a month or two ago when I started to become lazy about taking it. Today, I had my annual breast imaging and my…
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Anyone on TRUQAP?
Hi all, it looks like I'm going to be starting TRUQAP soon as an alternative to Piqray. However, it looks like TRUQAP and Piqray both come with some pretty nasty side-effects. I was hoping T would be easier than P. From what I've read, it sounds like Imodium AD may become my newest friend. Yuck! I was hoping for an easier…
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Elacestrant (ORSERDU)
Starting this topic to share info about the new medication elacestrant. Elacestrant (ORSERDU) was recently FDA approved for ER+/HER2- MBC for patients with the ESR1 mutation. Just before it was FDA approved, I was able to obtain the drug through an expanded access program (thanks to WeninWI for the info!). The expanded…
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Pulsatile tinnitus
Hello! Anyone experienced issues with hearing your heartbeat in your ears or pulsatile tinnitus? I’m 4 years post chemo & radiation & on tamoxifen. Curious if any connection to past treatments or tamoxifen.
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Camizestrant CAMBRIA 1 Clinical trial
Hello, Has anyone gotten any information on this trial or are participating in it? I have been reading up on it and have just found out through my oncology center that I can participate. Here's some information on it: CAMBRIA-1: A Phase III, Open-Label, Randomised Study to Assess the Efficacy and Safety of Extended Therapy…
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Moved: DCIS removed but... gene mutations... now what and family thinks I should be happy
This discussion has been moved.
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DCIS removed but... gene mutations... now what and family thinks I should be happy
Diagnosed with DCIS (ER+/PR+) in Sept. Had it removed in Oct. Doc talked abt possible radiation and/or hormones even though I'm one of the "lucky" ones- HA! Now I'm positive for CHEK2 and RAD51C w a family history of ovarian and colon cancer (1 + 1). Waiting to hear back from gyn to screen for ovarian cx and sons need to…
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Wish you still had cancer?
Is it common to have the thought that i wouldn't care too much if i had a recurrence? That i want to stop my meds? Does anyone ever think this? Is it weird to bring up? I've been looking at my life since diagnosis, treatment, remission, and daily preventive maintenance. Maybe treatment and losing my hair was much easier…
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Information on GATA 3+ Cancer
Hello Friends, Thank you for accepting me in the group. I am ER+, HER2+ and GATA3 +. I was recently diagnosed (December 12, 2022) with Stage 4 Breast cancer with metastasis to Bones, lymph nodes and spleen. My chemotherapy regimen includes Trastuzumab(once every 3 weeks), Paclitaxel (every week) and Zoledronic acid (every…
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Ovarian Suppression and AI
Hi! How much more effective is ovarian suppression plus anastrazole compared to just tamoxifen alone in preventing recurrences in premenopausal women?
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Single Hormone Receptor Positive -> ER+/PR-/HER2-
Anyone else in this same boat? Would love input or sharing your experience. Feeling a little alone in this boat!
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Moved: Stage 1a to Stage 4 in 6 years. 39 yo. Mets to liver & bone. Chek2+
This discussion has been moved.
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Hormone therapy resistant
Hi! I was diagnosed with bc at 62, had a lumpectomy and radiation and am now 63. Currently I'm having a hard time moving forward with hormone therapy. My MO is prescribing Anastrozole for five years but I am worried about the many side effects, especially weak bones I had a bone density test six months ago and I have some…
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Zoom Meet-up for Those With MBC: Place to keep chatting
This is a space held for our Zoom Meetup members to gather in between meetings for updates and support. Join our Virtual Meet-ups! For those with a diagnosis of metastatic breast cancer (MBC; also called stage IV) Register: Mondays at 2:00 PM EST, Tuesdays at 1:00 PM EST, and Wednesdays at 4:00 PM EST Young (45 and under)…
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Will 30% of Early Stage (1-IIIA) go on to metastasize??
So I started this question in another thread but was hoping for additional feedback. With MBC awareness day last weekend, a stat is going around that caught my attention. Basically says that 30% of early stage BC patients will eventually have their bc metastasize AFTER adjuvant treatment. Susan G. Komen even states it here…
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Risk of discontinuing tamoxifen
I have read several reports from others that noted that their medical oncologist gave them a percentage benefit from tamoxifen (or AI’s). When I asked my MO she would not provide me with this type of information. Can anyone tell me where this type of information would come from? I want to be prepared for my next…
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changing treatment
I was originally hoping for mastectomy of right breast for stage 2 invasive ductal carcinoma, but dince I am HER2 positive, I now have to have chemo before surgery. Anyone else been down this road? How long was chemo?