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Pain almost a year after lymph node removal
I had a lumpectomy and three lymph nodes removed last August. I went to PT off and on for a seroma, cording and the onset of lymphedema. The cording is a lot better than it was. But I’m having more pain/tenderness in the back of my arm and underarm again. I stretch every day and try to drink a lot of water. Just wondering…
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Getting more Information
I now have a little more information and it helps with decisions. I am stage 2a with er+90% pr neg her2 neg and Ki67 up to 90% ( not sure what that means) My oncologist is sending the biopsy off to get the Ocotype. I do not want to do chemo because of the major side effects. My surgery is being pushed back because of…
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IDC diagnosis this morning
Hello, have just learned my biopsy was positive for IDC. First meeting with breast surgeon May 10th. I don’t have my biopsy report yet. I know from my mammo it is 0.5x0.6x0.5. The nurse said pathology shows er+ but pr-. HER status not yet known. This all started from a 6 month diagnostic. Pretty scared.
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This word reminds me of....
It is basically a word association game. I will post the first word, the next person posts what that word reminds them of and so on. First word 'Snow'
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Not Diagnosed and Waiting for Test Results? Start Here
Often, the hardest part of screening and testing isn't undergoing the tests themselves, but WAITING for results to come back. If you're like most people, you will want your test results as soon as possible. Read here for steps you can take to feel more in control of the process: * Test Results and Medical Records,…
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Enhertu side effects
Hello, I am diagnosed with metastatic breast cancer. zi was on Kadcyla, Nerlynx, and Capecitabine and was doing good. However, nasty cancer has come back. I had 3 seizures. I am on Enhertu now. It is my 9th treatment and the side effects are bad. I slept for a few days. I can't get up to do general things. my brain feels…
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Bilateral IDC
hi, I have been diagnosed with bilateral IDC. My scans came up as non-mass, although the physical lumps are very large. I have been told it is grade 2. going for a CT tomorrow and oncologist Monday. anyone else with bilateral IDC?
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Husband dealing with Tamoxifen needing to vent
Hello everyone! My wife was diagnosed with Stage 2A in June 2019, so we are coming up to 4 years. She has had a lumpectomy and follow up surgery, chemotherapy, radiation and now hormone therapy (taking Tamoxifen). My wife also has co-morbidities including thyroid cancer and Type 2 diabetes with complications (nephropathy),…
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Podcast: 2023 ASCO Takeaways
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Breastcancer.org Podcasts: Experts discuss research & issues
Breastcancer.org announces our NEW podcast program! Our podcasts feature experts discussing a wide variety of breast cancer issues and the latest research on breast cancer. Check out all of Breastcancer.org's Podcasts here. In the premiere podcast, we're excited to bring you a summary of the research highlights from first…
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2 years out from chemo - neuropathy worse?
I am 2 years out from chemo and have had mild neuropathy in my hands and feet since day one. Always there, but not bad enough to want to do anything aout it. The last few months my feet and hands have been hurting a lot more. Constantly. Sometimes they feel as if they're on fire. I've been taking tylenol which sometimes…
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VIrtual Menopause Talk on managing the sexual, physical and emotional effects of BC
Hi All, Let's Talk Menopause, a national nonprofit organization, is hosting this free virtual event this Friday 6/9 at 12:00pm EST. There will be a Q and A period as well as information on how to treat the sexual side effects (vaginal dryness, painful sex, etc.). Please join if you can and spread to your networks! Thanks,…
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Virtual Free Menopause Talk this Friday 6/9 at 12:00EST
Let's Talk Menopause, a national nonprofit organization, is hosting this event with Dr. Laila Agrawal and Dr. Deepa Halaharvi. Registration is free. Please share! Thanks, Donna
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Clavicle lymph nodes and axilla after DCIS 9 years ago
Back in October I felt a lump above my clavicle, after a biopsy and MRI I was told DCIS from 9 years ago has spread to Supraclavicular and axilla and pec region. There was a 1 % of this happening after the lumpectomy and 30 rounds of radiation 9 years ago. I just finished 4 rounds of Adriamycin and 4 rounds of Taxol. The…
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January 2023 Surgery Buddies?
Hi! My double mastectomy is scheduled for January 4th, 2023. Anyone else have a surgery scheduled in January? Maybe we can support each other! Christina
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BCO In Memoriam thread, Part 2
(The original BCO In Memoriam thread started by Milica has gotten too long and is difficult to load or make additions. We need to start Part 2 of this thread, starting 5/3, 2023 to make it easier to load in this new platform. The Original thread (Part 1) will remain and can be accessed for viewing but will not allow for…
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Any stage IV surviving 5+ years ?
When you look up stats for stage IV they’re dismal, yet I continue to see lots of longer term survivors on this site. Some were given a year or two. Would love to hear how many are there and how life’s is for you. I’m coming up on three years and just failed with letrozole. MO says plenty options sti
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CT and Lung Nodules
I cannot find my previous thread, but this is my newest CT scan. So far I have had them in November, January, April, and today. I had a PET in November that lit up on a couple of spots in my left lung and three level 2 cervical nodes. Currently on a watch and see. Anyone have some information on this newest scan? Not…
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Anyone on just Taxotere and Cytoxan?
I just started a regimen of taxotere and cytoxan for four rounds. I really need to talk to someone who has been on just this regimen. My first session did not go well. It dropped my sodium levels too low and I had a couple of seizures. They kept me in the hospital for two nights. I have been achey and weak since. Does it…
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mets to lung
hello. i got scan rusults yesterday. looks like abraxane is not working, since cancer is spreading. i am going on navelbine now. any words of encouragement? thanks. i am new to the boards, happy to find you all barb
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Talk me off the ledge
I'm just about 1 year out from my Stage 1 diagnosis. Had a double mastectomy last July with reconstruction. Tissue expanders were exchanged for implants in November. Had to have a bit of fat grafting/scar revision this past April. Just after this last surgery, I felt a small lump just above my implant. At the time, I…
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Has anyone quit or reduced dosage of the hormonal therapy?
I am considering to quit, after taking Tamoxifen for a year, Letrozole for three months, then Exemestane for a month. Side effects, especially joint pains and fatigue, get worse and worse and have come to the point to make me think if I should quit. Or, would there be any option of reducing dosage, like taking every other…
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Starting Radiation October 2019
Is anyone else starting radiation in October? I was supposed to start today but it took them so long to do the x-rays and more markings that they mercifully postponed the treatment until tomorrow--which is October. I will be having 30 treatments over six weeks.
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Invasive ductal carcinoma AND Brca-2 gene mutation
I was scheduled for a lumpectomy next Friday for my ER/PR + and HR- breast cancer but today the genetic counselor called me with some devastating news and that is I have the BRCA-2 gene mutation. I haven’t spoken to the surgeon yet but I’m assuming I will have to have a double mastectomy and I have been crying we unite a…
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ILC - Old Lady Cancer?
When I was diagnosed almost a year ago, my oncologist told me that my daughters and nieces did not have to worry about increased risk of breast cancer, as ILC was "old lady" cancer and not hereditary. Now, I'm not that old (57) but I am post menopause. That being said, I am hearing more and more young women (pre-menopause)…
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Zoom Meet-up for those MBC: Place to keep chatting
This is a space held for our Zoom Meetup members to gather in between meetings for updates and support. Join our Virtual Meet-ups! For those with a diagnosis of metastatic breast cancer (MBC; also called stage IV) Register: Mondays at 2:00 PM EST, Tuesdays at 8:30 PM EST, and Wednesdays at 4:00 PM EST Young (45 and under)…
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Cats, cats, cats
a thread for crazy cat ladies! I thought maybe just pics of your own cats, and if there's not enough then just any old cat you can find! I have 8. Technically only 5 are mine, the others think they live here. Mostly because I feed them with everybody else and they never seem to leave!
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Large lump found
Hi all. This morning I found a large lump in my right breast. I have just been to doctors and she checked my armpits (all fine) She said the lump was large but she could move it around and didn't seem sinister. She said a possibility is because of hormones. I am 44 and my period came yesterday although I am starting to get…
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Recurrence fears
Hi It's been a while since I've been on this forum and it's all changed! I hope I'm posting in the right place, Dx'd Feb 2012. Some people may remember me. I am experiencing burning sensations in the reconstructed breast with some pain too. Obviously worried about metastatic disease. Has anyone else had similar?
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How long to take a break from HT?
Hi all, I'm finally experiencing, I think, some dramatic side effects from taking exemestane for 11 years. I want to take a break to see if the side effects are related to this long-term use of AI. Joint pain in hips, cracking in neck and back, urgency and incontinence, and now some belly fat. I wondered if 2 weeks would…