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Is It Normal for Skin Sensitivity to Appear Weeks After Radiation Ends?
Hello I finished my radiation therapy about three weeks ago & while my skin seemed to heal well initially; I am now experiencing delayed sensitivity almost like a sunburn that wasn’t there before. 😑 The area feels warm and slightly itchy & some mild redness has reappeared. I expected side effects to gradually improve, not…
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Phesgo - Clinical trial
Hi everyone! New here. I am enrolled in the ADEPT clinical trial for women that have breast cancer that is invasive ductal carcinoma stage 1 triple positive. I refuse to do chemo for a small tumor and stage 1 cancer, so my oncologist suggested that I enrolled in this trial. I started on April 1st 2025 with the PHESGO…
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Newly diagnosed, looking for advise on hospital/doctor selection
hi, I was just diganosed with invasive ductal carcinoma on June 9th. The past week has been a whirl, although I feel a little as if I am watching someone else’s life right now… I am not in denial, but still cannot believe this is happening. I have already had a consultation with a breast surgeon. I am meeting with a second…
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Breast cancer treatment and living alone
Hello, I was recently diagnosed with BC. I live alone and fear everything that's going to happen to me. The unknown is scary. Does anyone live alone and going through chemo and everything that has to do with BC.
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This piece is for anyone navigating loss.
I wrote this personal story about grief, healing, and the small things that helped me find my way back after losing my mum to breast cancer in 2023. If you're going through something similar, I hope it brings a bit of comfort. You’re not alone. ✨🤍 With love, Vanessa
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Lupron, Tamoxifen and Oncotype
Hello All, I had Stage 2A grade 3 DCIS & IDCIS Cancer. Im 42 and a Mas w/DEIP. My oncotype number was 19 with a 6% chance of recurrence however my oncologist used a tool call Exact Science RSClin tool that says given how big my tumors were (biggest tumor was 28mm) and high grade that my recurrence rate is 17% with only…
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Tamoxifen side effects and your experiences
Hello I am Vanessa. I am 47 no menopause. I was diagnosed with LCIS in December (11 mm) + atypical ductal & lobular hyperplasia. Had my surgery in January 2025. No quimio nor radio therapy was needed. Just tamoxifen (20 mg). It has been a roller coaster in several ways. I had to take of mirena, change medication like…
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Morning Anxiety 6 Years Post-Treatment
would seeing a therapist who specialized in cancer survivors help me get rid of anxiety. Meds don’t work. It’s 6 years. I feel terrible all the time, like I’m dying. I’m not dying now, will someday but want to stop it. i wake up with anxiety bd, then exercise it gets a little better by evening it is much better. it’s very…
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Have summer self-care tips that’s helped you feel your best?
Let's all share summer self-care tips here! Bring them on!
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Diagnosed 1 mnth+ ago, deciding on treatment
Hi ladies! Been lurking here since i got birad5 on my ultrasound, this's my 1st post. I had a single mastectomy on my right breast. Final pathology showed idc 2.2mm with dcis, grade1, ki67 5-7%. Er/pr+, her2- (fish and oncotype dx confirmed), no lymph node/vascular involvement 0/6. My oncotype score is 11, 3% recurrence in…
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The party’s over…
13 years was a good run but all good things must come to an end. Will be heading to see my mo in about an hour to review latest PET scan, which was not posted in the patient portal ☹️. Yes, I have been having pain/soreness in my back and the CT I had during my kidney stone episode showed a healing fractured rib as well as…
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Spinal cancer symptoms??
I would like to know if anyone has experienced severe rectal pain and burning and then diagnosed with spinal mets. I had ILC in the left breast and had a mastectomy in January 2023. I had radiation in May and June 2023. There was spread to one node. I was placed on Anastrozole, changed to Exemestane and then finally to…
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Asymmetry and distortion BIRADS 4
I am a 42 year old woman. I did my first ever screening beginning of this year. I went for a biopsy last week for asymmetry and distortion in 2 regions on same breast. Each region less than 1 cm. I will know the results next week, but anxious. Google says ppv for distortion malignancy is 75%. I had assumed the chances are…
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Anyone regret going flat?
I'm finishing up chemo next month and will have to make a final decision about whether or not to do reconstruction. I'm planning on having both breasts removed. I do not want implants, so I'm choosing between going flat or DIEP fat grafting. A few weeks ago, I was just fed up with the whole multiple surgery, lengthy…
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2020 Running Thread
Hello Pink Runners -- everyone is a runner no matter how far or how fast -- let's talk about our running and our running as it relates to being newly diagnosed, going through surgery, going through treatment, and beyond. If you would like to share your race schedule please do so -- you don't have to enter any races to be…
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Arthritics and Bone Mets
Has anyone developed arthritis after developing bone mets? I have a theory that the anti-hormone treatment has caused arthritics to develop earlier than it should. Arthritis and joint pain are affecting my quality of life much more than the cancer at the moment. It seems to be very hard to get on top of it, along with the…
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Not Diagnosed and Waiting for Test Results? Start Here
Often, the hardest part of screening and testing isn't undergoing the tests themselves, but WAITING for results to come back. If you're like most people, you will want your test results as soon as possible. Read here for steps you can take to feel more in control of the process: * Test Results and Medical Records,…
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Letrozole and Tendonitis?
Hello all! I am coming up on 6 years of AIs with Letrozole being the most recent one. I had been on Arimidex but developed trigger thumb and fatigue over time so I switched to Letrozole. I have been okay for the most part but I now have tenosynovitis in my left wrist which won't go away and a new tendon issue on the top of…
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Oncotype test
So I was diagnosed 6 years ago.. it was stage 1 grade 1 IDC no lymph node involvement.. my doctors did not give me an oncotype test.. I had a lumpectomy radiation and an aromatase inhibitor for 5 years.. is there any reason that they don't give that test?.. I wouldn't mind knowing what my recurrence risk is I don't…
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IBC lounge: roll call, support and just a good place to hang out
Hey all, I am starting this thread to give us a place to meet up and check in. We all know this "ain't Facebook" and since some of us have left the boards recently let's have a roll call and start fresh here. Some of the "IBC ladies" and other threads have gone a bit untended so let's see who we are: I'll go first: dx June…
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Over it already!
At just 33 years old, this feels like a nightmare that won’t end. It’s been over a month since I first discovered the lump, and I’m completely drained, mentally and emotionally. The endless waiting, appointments, needle sticks. it’s all just so overwhelming. I shared more details in another post, but to sum it up: there’s…
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Keeping up health and immune system
I’m so frustrated… my onc defers to the onc pharmacist, who reviewed my list of supplements that I’d like to take. Most were discouraged because of interference with the meds (anastrazole and Verzenio). I’ve been continuing to try and research - mostly finding conflicting info. Since verzenio can cause your white blood…
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STEAM ROOM FOR ANGER
This thread is meant to be for RANTS and RANTING. Then Rant again. We need a place to simply get rid of the anger. Write it here. Unleash it all. Get it out. This isn't meant for the Stupid comments(great thread). This is for the gut wrenching, tell them off anger. IMPORTANT: When done ranting don't necessarily stick…
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Looking for others with low risk, less than 2cm, IDC stage 1 grade 1HR+ HER2- on endocrine therapy
Are you like me? What endocrine therapy did you follow or are you following? Pre- or perimenopausal, stage 1, grade 1, low risk, node-negative, no genetic risk, screen detected ladies, let's hear from you! What were you prescribed and how have you changed it up over your therapy? What has worked for you? I've seen four…
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Elacestrant (ORSERDU)
Starting this topic to share info about the new medication elacestrant. Elacestrant (ORSERDU) was recently FDA approved for ER+/HER2- MBC for patients with the ESR1 mutation. Just before it was FDA approved, I was able to obtain the drug through an expanded access program (thanks to WeninWI for the info!). The expanded…
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Post biopsy hematoma delaying surgery
I am newly diagnosed in May 2025 with preliminary stage 1 IDC. I developed a large hematoma post biopsy and it’s been 6 weeks and the hematoma is still large 3 to 4 cm with bruising still evolving. My surgeon advised to wait another month for the hematoma to resolve more to have the lumpectomy and SNLB. It will then be 9…
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Small breasts and lumpectomy
I have recently been diagnosed with Invasive Ductal Carcinoma. I have a 2.7 cm mass at 12:30 on my right breast. When discussing lumpectomy vs mastectomy with my surgeon she said I may not be able to get by with a lumpectomy because my breasts are too small (I'm probably a large A to small B). Has any one had a lumpectomy…
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TN- Surgery first or chemo first and Lumpectomy or Mastectomy?
Hi all, I was diagnosed last week with clinical stage 1 grade 3 ki 67 90% er-, pr-, and waiting on FISH results to find out if I'm also HER2-. Tumor size is 14mm. My care team is recommending a lumpectomy first since my tumor is small even though it is very aggressive followed by 4-6 months of chemo then choosing either…
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AST 107/ALT 203- talk me down please
Hi Everyone, Talk me down. I just moved across the country 2 weeks ago and saw my new oncologist yesterday. She wanted to get her own labs even though I had them done a month ago. My cancer diagnosis: 35 year old female Stage 1A 40% low intensity ER, 5%PR and HER2-. Finished 4 AC, 12 weekly tax/carbo 6/25/2024 (Full…
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To Give: 2 Wedges, 2 Body Pillows & Drain Props to Help With Surgery Recovery (NYC Area)
Hello everyone, I am thankfully six weeks past a delayed TRAM flap surgery, and would be honored to give away these wonderful wedges and body pillows that helped me have a more comfortable recovery. I also have some drain management props that were great. I'm in the NYC area, so the only caveat is you'd need to come pick…