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Kisqali
hello everyone, I am new to this forum and wonder if anyone can help me. I have invasive lobular cancer which had spread to my lymph glands by the time I was diagnosed, a year on and I an I have had a mastectomy, completed radiotherapy and have started taking Letrozole.. My Oncologist yesterday has offered to start me on…
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NATALEE TRIAL
My dr. wants me to join the Natalee trial which is based on the success of the Monaleesa trial for women with Stage 4 breast cancer. the drug is Kisqali (ribociclib) tablets. It was administered in 6 mg tablets for the Monaleesa trial and will be given in 4 mg for the Natalee trial. The problem I am having with it is the…
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TNBC MBC Stage 4
Hello - I actually joined this group awhile ago and never posted anything. I’m hoping to connect with like minded women living with MBC. I was first diagnosed in 2019, stage iiib; had the standard protocol, chemo, surgery, radiation.Cancer free for 18 months, recurrence in 2021, living with it. On several treatments…
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Anyone have experience with SERDs or off-label use of weight loss drugs instead of AIs?
I've been on letrozole almost a month and, while I can pretty much deal with the hot flashes, as a primary caregiver I'm very concerned about the joint pain preventing me from assisting my mom. I've already experienced pain in my right elbow and shoulder (the C side) when helping her get to her feet; feels like the joint's…
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Early Stage Breast Cancer - anyone on Letrozole and Ribociclib?
Wondering if anyone has been diagnosed with Early Stage Breast Cancer and on AI/Ribociclib regimen? I’m going to start after radiation and wondering how your treatment is going and if there are any tips out there! Thanks in advance!
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💗 March 2026 Surgery Roll Call—Join here for support! 💗
If surgery is on your calendar this March—lumpectomy or mastectomy—this is your place. 💗 Consider this your official roll call. Whether you’re calm, overwhelmed, full of questions, or riding every emotion at once, we want you here. Post. Introduce yourself. Let us know you’re counting down the days. This thread is more…
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Anyone on Kisqali and Exemestane? SE?
Hi, all I switched to Exemestane from Letrazole due to unbearable rash with the Kisqali/Letrozole combo. But on Exemestane the skin on my palms and feet is scaling, peeling off. Any advice? Also my hair is thining. What SE do you have and how do you deal with them? Thanks
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Newly diagnosed stage 1 Invasive Ductal Carcinoma
Trying to decide between lumpectomy and radiation or bilateral mastectomy. Want to hear from some who have gone through each
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DCIS Grade 2 Diagnosis
Dear Brave Pals, I had lost my Mum to Metastatic Gallbladder Cancer at the age of 60 within 2 months of no symptoms to diagnosis to farewell. So cancer is the most dreaded word in my family. Unfortunately, last month I was diagnosed with DCIS Grade 2 (with expansive Camedo Necrosis, ER/PR+ as per my Biopsy report). They…
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Hormone blockers - looking for others like me
This discussion was created from comments split from: Connect with others by creating your profile! Here's how..
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Should I find a new oncologist
I finished treatment for breast cancer 9/25. I’m still waiting to get these @#$&$#& expanders out. Radiation did a number on my skin and were waiting another month to get as much healing as possible. My issue now is that I don’t like my oncologist. I’m okay with my surgeon. Love my plastic surgeon. Don’t care at all for my…
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64 yr. Old with clear nipple discharge and scaly red patch on areola
Diagnostic Mammo and US found nothing, but was referred for breast mri. I need an mri that can be done without lying on my stomach, that is causing confusion and delay in getting the mri. I had my yearly dermatology skin check today. She noticed the red scaly red area and wants to biopsy it if it does not go away soon. I…
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Birads 5 with calcification
I’ve been hesitant to post because I didn’t want reality to set it but here I am. I’m a 33 year mother of 3, youngest is 6. Just like most of the ppl in the group, It all started with me noticing a lump. I took action almost immediately. I made an appointment to see my primary doctor which took me 2 weeks to get in. I…
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Vinorelbine - the end of the line??
Hello all-I have just been recommended to move to Vinorelbine as my 9th line. My oncologist pulled me off DATROWAY due to severe SEs and told me this is one of the last drugs on the shelf for me. Not only is this a scary piece of information, but I also can’t find much online about this drug in terms of user experience.…
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Zoom Meet-up for Those With MBC: Place to keep chatting
This is a space held for our Zoom Meetup members to gather in between meetings for updates and support. Join our Virtual Meet-ups! For those with a diagnosis of metastatic breast cancer (MBC; also called stage IV) Register: Mondays at 2:00 PM EST, Tuesdays at 1:00 PM EST, and Wednesdays at 4:00 PM EST Young (45 and under)…
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Post Mastectomy Pain Syndrome (PMPS)
The purpose for this forum is to discuss the concerns of women experiencing pain several months following their mastectomy. A portion of an abstract from Pain Management Nursing, 2009, describes it this way: Chronic neuropathic pain affects between 20% and 50% of women after their breast cancer treatment. Breast cancer…
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changing from Medicare to Medicare Advantage
My medical group stopped accepting Advantage a couple of years ago. I wanted to keep my doctors so now I'm paying over $300 for a supplemental plan. I had a mastectomy several weeks ago. I'm not getting chemo or radiation so the only treatment I have left (hopefully) is possible reconstruction. I'm following up on my…
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What topics/experts would you like to see on The Breastcancer.org Podcast?
Hello, I'm Jamie, senior editor at Breastcancer.org and host of The Breastcancer.org Podcast. I'd like to make sure the podcast is answering questions that Community members have. Are there topics you'd like to see covered? Experts you think I should talk to? Do you want to share your story? Questions you want answered?…
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Nipple Sparing Mastectomy with immediate reconstruction
I had a bilateral nipple sparing mastectomy with immediate reconstruction on December 15, 2009. In my research I did not find a lot of posts about this particular procedure. I wanted to start a forum for women who have had the same surgery, or who are considering this type of procedure. We could share helpful…
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Anyone on low dose Enhertu?
Hi all, I’ve completed 12 infusions of Enhertu + Perjeta for stage IV HER2-positive breast cancer. My last scan, and Signatera were negative and my tumor markers are in the normal range so I’m currently considered NEAD (no evidence of active disease). Due to side effects like ongoing weight loss and loss of appetite, I’m…
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Mammography Post-Tramatic-Stress
During my pre-surgery mammographies, all of the caregivers were gentle, thoughtful, careful, and informative in explaining what each procedure was for, including chip marker injections. I had not experienced much pain other than the expected discomfort with all mammos. September 2024 I scheduled and went for my first full…
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Radiation benefits & Risks for early stage cancer
Hello, I am preparing for lumpectomy and then radiation/AI expected. Despite bilateral the surgeons feel I am a good candidate. Any suggestions on where I can get risk/benefit analysis for radiation treatment? I am 58 bilateral IDC/DCIS Grade 1 T1b no nodes ER/PR+ Her2neg No BRCA genes and low Ki-67 I have spoken with…
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How long have you been Stage IV?
We have a thread of what age you were diagnosed at Stage IV, so how about "How long have you lived with Stage IV". Also please state if you were Stage IV from the get go. I'm asking for this information in hoping to have MANY more years than the 2-3 I was given and to give hope to those newly diagnosed with Stage IV. 1…
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Differentiating side affects of "normal" life vs cancer treatment
How do you distinguish if the heartburn (or other symptoms) you are experiencing is from stress or diet related instead of treatment medication related? I am taking the lower dose of kisqali. Started with 400mg (1 cycle), and finished the second cycle last week taking 200mg. On my second day of the off week I started…
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Use of Signatera testing in stable disease
I just had my latest scans, and I am still stable with my current treatment plan- Lynparza, Lupron, Xgeva. In fact, the scan said "no evidence of metastatic disease in the abdomen"- I had tumors in the liver we were monitoring. I ask my MO if there was any way to monitor molecular progression- progression before it is…
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ulcerating tumour
mother 94 , advanced Alzheimer probably stage 6 , her breast tumor has started ulcerating , 2 weeks ago first liquid now blood, she is living in a memory care center , wondering how this will evolve , prognosis etc. Does it mean metastasis? Evidently no medical intervention is wanted to prolong her life , except palliative…
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Has your relationship with patience and balance changed since your diagnosis?
As the seasons start to shift, March feels like a good time to talk about balance. Not the polished version — the lived one. Treatment and living, appointments and dinners, showing up for others when your energy is already gone. The quiet, ongoing negotiation between being a patient and being a person. Balance isn’t a…
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Caregivers: What's the most difficult part for you?
We know caregiving brings both love and exhaustion, courage and worry. What part of the caregiving experience has been the hardest for you to navigate?
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Architectural Distortion
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If Ibrance failed for you, what was next in line?
Hi everyone. Looks like I'll be moving on from Ibrance. A PET scan on 3/18 will confirm this but it looks to be the case. My question is that if Ibrance failed for you, what drug or drugs were next and where was your progression? Thanks.