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I am grateful
I am grateful for each day God gives me. I am grateful for friends. What are you grateful for?
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Reconstruction after radiation?
Hi everyone, Back in 2022 I was diagnosed with high-grade DCIS in my right breast. I had two wide excisions but still ended up with positive margins. At that point, I could have had a third surgery or a mastectomy, but I decided instead to go with radiation and close monitoring. Since then, I’ve been having mammograms,…
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Diep flap vs Hybrid
I’m trying to make my decision for my next surgery after having my BMX a couple of months ago. I need some advice! I’m trying to decide between Diep flap vs hybrid. I’ve spoken to 2 women that had the Diep done many years ago and are very unhappy with their results. Hoping to get some more feedback about Diep and the…
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IDC - Just diagnosed from Core Biopsy - Questions for Surgeon?
Hi from Canada! This is my first post! Just diagnosed with IDC, (Grade 2 features) ER Positive, PR Positive, Negative for HER 2 Protein Overexpression by IHC (Score 1+) To be honest not sure what this all means. I have appointment with surgeon Dec. 5th. Would love to have some suggestions for what Questions I should be…
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Hello
I’ve been reading for a while and decided to join earlier in the week. I live in New Orleans , Louisiana. I, fortunately, already had a breast doctor to whom I was referred by a NP friend of mine because I have fibrocystic and dense breast. I’ve been a patient of his for almost seven years. In the beginning, I would get a…
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Revision/Corrective Reconstruction Surgery - What's Your Experience?
Please share in this thread your experiences with revision or corrective reconstruction surgery. As a reminder, we'll be hosting a webinar called Corrective Breast Reconstruction: Getting the Results You Want on July 9 at 6pm ET. You can register here:…
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Starting radiation in December 2025? Gather here for support!
Are you scheduled to start radiation soon? Let's make a space where we can encourage each other who are traveling radiation road together — share experiences, get tips, ask questions and get answers from those who've "been there." We encourage you to share your diagnosis, any previous treatment you've had, and your…
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DCIS Stage 0 High Grade HR+
Hello to all you brave women!! I just joined this site and am making my first post. I am hoping for guidance and advice and what anyone else has done as I am feeling anxiety and some stress about what to do. I am 55 years old and was diagnosed in June at 54 years. (I just had a birthday in Oct) As in my title I was…
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Post unilateral mastectomy - recovery
I’ve read through a lot of the recovery posts, but am wondering how long (roughly) does it take before lifting heavy and doing things like vacuuming are ok after a mastectomy without reconstruction. I realise our healing is individual but would just like others timelines.
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AI twin, mega cognitive therapy, how to get enough sleep and hhoe to be happy.
I have had bc for 8 years and I’ve been fighting depression, I think it’s because my oncologist was not supportive. She sent me to psy and I tried a lot of treatments plus medication but I don’t feel good. I have been having stomach pain and am on the fodmaps diet. Today very little pain. I have depression mainly from the…
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Just diagnosed IDC Bilateral - upcoming oncoplastic lumpectomy
IDC bilateral ER+/PR+, HER2-. Caught very early on and very small. Each side is less than 0.7 and 0.4 cm on the other. Diagnosed on 11/2/25. Surgery date 12/11/25. Oncoplasty- lumpectomy bilateral with reduction and lift. I’m a size 36 C/D currently. Concerned about lymph nodes. Ultrasound didn’t show any lymph node flags.…
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Brain Mets Sisters
Starting this for a friend. Edited to explain that the friend was imbell who was feeling overwhelmed by wbr. She helped us all by starting this. Shes in peace now. See you in the clouds, imbell.
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Phesgo - Clinical trial
Hi everyone! New here. I am enrolled in the ADEPT clinical trial for women that have breast cancer that is invasive ductal carcinoma stage 1 triple positive. I refuse to do chemo for a small tumor and stage 1 cancer, so my oncologist suggested that I enrolled in this trial. I started on April 1st 2025 with the PHESGO…
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Has Anyone Tried These Immunotherapy Options for Stage IV Breast Cancer?
Hi everyone, I’m Ralph , and I hope it’s okay that I jump in here. I’ve been reading the forum quietly for a while, but this is my first time actually posting. I was diagnosed with stage IV breast cancer last year it spread to a couple of bones, so things have been a bit up and down ever since. Right now I’m on hormonal…
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Elacestrant (ORSERDU)
Starting this topic to share info about the new medication elacestrant. Elacestrant (ORSERDU) was recently FDA approved for ER+/HER2- MBC for patients with the ESR1 mutation. Just before it was FDA approved, I was able to obtain the drug through an expanded access program (thanks to WeninWI for the info!). The expanded…
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Planning surgery for November 2025? Join the waiting room for support.
Are you scheduled to have a lumpectomy or mastectomy in the month of November? Join us here where we support each other as we prepare for our surgeries, ask questions about what to expect, share reservations and fears, and support one another through preparation and recovery. And, we encourage others who've "been there" to…
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November had lumpectomy just had first chemo
I am a retired registered nurse. I have two younger sisters who have had breast cancer, I am just realizing my journey.
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Scalp during/after hair loss
I’m 17 days post first infusion. My scalp started being very tender about day 13. Hair started falling in earnest on day 14. I’m not bald yet, but it’s coming out in clumps. I’ve read many posts about hair loss, but I’m wondering more specifically about the scalp pain. Does the pain stop when the hair is all gone? If not,…
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What were your symptoms of IBC?
And please forgive me if this is the wrong forum :) I'm just curious as to what your story was. Thanks
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Up for donation: Freezer Packs - Hands and Feet
Hi, We went the cold cap route for our daughter when she was going through chemo for IBC. We purchased a number of freezer packs for her hands and feet. She was able to retain her hair and didn't suffer from neuropathy. So it does work! I would love to donate the freezer packs to someone who is in need. Please reach out. JW
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Madame X
I am starting Madame X next week and just wanted to reach out to the experts about dietary restrictions. It seems that there are a lot of foods that contain folate so I was wondering if anyone had recommendations of things to definitely avoid, my main concern is Hand and Foot Syndrome as I am an avid Pickleball player and…
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Contemplative practices - Affirmations, white light visualizations, healing meditations
Do you have a contemplative practice? A spiritual lifestyle ? imagery or healing meditations you like? Let’s share the love of positive affirmations and meditations. I just finished Ian Gawler's book You Can Conquer Cancer , and I was reminded how much I love self healing practices. I do white light meditations every…
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STEAM ROOM FOR ANGER
This thread is meant to be for RANTS and RANTING. Then Rant again. We need a place to simply get rid of the anger. Write it here. Unleash it all. Get it out. This isn't meant for the Stupid comments(great thread). This is for the gut wrenching, tell them off anger. IMPORTANT: When done ranting don't necessarily stick…
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Anyone starting brand drug, Enhertu?
I have had growth of tumors while on current treatment. My onc and I have decided to try new treatment, Enhertu (FDA approved 12/20/19)! Wondering if anyone else out there is trying or was in trial? Julie
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Finishing verzenio
I have just finished two years of abemaciclib, following on from surgery, chemo and radiotherapy. I was lucky that just as I finished radiotherapy, Verzinio was approved in the UK for stage 3 BC patients with high risk of recurrence. Given the pretty awful side effects as well as the timing, it means that there aren't many…
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Anyone else have spinal compression fractures?
Mine is apparently from osteoporosis, probably chemo / femara induced. My T scores are not awful (worst is -2.5 in hips; others in -2 range). I’ve been on Fosomax for a few years. But now that I’ve found out about this compression fracture, endocrinologist is recommending Evenity or Tymlos. Both have potential scary side…
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Capecitabine
Hello , My name is Jill and I will be starting Xeloda next week. I was on Ibrance/Letrozole for 16 months and it has stopped working. I am curious about the new meds and wanted to talk to you ladies about a few things. I have not met with the Onc Pharmacy yet to discuss the drug and ask various questions so I figured I…
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Vinorelbine - the end of the line??
Hello all-I have just been recommended to move to Vinorelbine as my 9th line. My oncologist pulled me off DATROWAY due to severe SEs and told me this is one of the last drugs on the shelf for me. Not only is this a scary piece of information, but I also can’t find much online about this drug in terms of user experience.…
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Mepitel Thoughts and Tips
I've learned so much on these boards that I wanted to give back a little and share some things I learned for anyone thinking about trying Mepitel fIlm for radiation. I only ended up using the film for half of my radiation treatment because I was allergic to it. But at my one month follow-up appointment, my RO was surprised…
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CA27-29 elevation
I am 11 year survivor and just has an elevation to 42 from 30 on the CA 27-29. I have to wait 4 weeks for new bloodwork. I am so nervous. Anyone have a similar experience.