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Anyone w/ osteopenia NOT taking preventive medication?
My first baseline DEXA scan was normal for my age. My first DEXA one year after taking Femara, then switching to Arimidex, showed -12% change in bone density in two areas (now osteopenia) and -16% change in one femoral neck (T-score 2.4, just one tenth away from osteporosis). I go to a very prestigious hospital and have a…
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Exercises For People Living With Bone Metastases
Studies show that exercise is safe for people with bone metastases. Research also shows that exercise can improve sexual health and offer many other benefits for women diagnosed with metastatic breast cancer. In this video, Sami Mansfield, a certified cancer trainer and founder of Cancer Wellness for Life, demonstrates a…
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My choice--refusing treatment
Hi everyone, My post won't be too popular but I'm entitled to feel the way I do--to fight cancer or not. Im 50 and recently dx with IDC. Clinical staging is in the works but regardless of the results, I just don't care to treat it. I have my reasons, and would like to talk with others who feel similar feelings. Thanks so…
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Starting Radiation October 2019
Is anyone else starting radiation in October? I was supposed to start today but it took them so long to do the x-rays and more markings that they mercifully postponed the treatment until tomorrow--which is October. I will be having 30 treatments over six weeks.
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ADH LCIS Lumpectomy #2 Now What?
When I was first diagnosed with ADH 2 years ago my surgeon mentioned prophylactic mastectomies and I thought he was very extreme for bringing it up. Now I just finished my second surgical excision for ADH (pathology showed LCIS). I'm starting to wonder what happens next- I can't be having surgery every 2 years! I think my…
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FES PET/CT scan insurance coverage
Has anyone with traditional Medicare had a FES PET/CT scan? I can’t get a definitive answer on payment for the procedure from either the hospital or CMS. Both say that an FDG PET/CT is covered so the answer is “probably.” Given the cost (more than FDG) I’m worried about having it done without knowing for sure. After two…
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Golden Milk Latte
Hi Carolyn - First, sending over my care and support. : ). I hope this message finds you well! Is there a specific brand of the Golden Milk Latte that you like? I am checking them out and there are so many. Thank you!
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Diagnosed last thursday, now in the waiting game for appointments
Well I got the alert last Thursday that I had a new result in my MyChart and I looked and got the news there at my job. Looks like I have grade 3 IDC, triple negitive hormone test. The NP at my OB/GYN office called and asked where I wanted my referral sent. I gave them a few places and now I wait. Not having much…
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Just Diagnosed- Get Prepared
My breast cancer was diagnosed in Jan 09. My husband was dx'd with lymphoma in April. The following are some things we learned on our journey. I hope they help. Rather than rewrite everything in sequence, because I missed putting the fax in the rewrite of the outline, I'll put it here. I strongly recommend you get a fax…
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Transitioning to a Different Normal After a Breast Cancer Diagnosis
Transitioning to a Different Normal After a Breast Cancer Diagnosis October 11, 2024 Grief counselor Kelly Grosklags helps Melissa Jenkins moderate a special Virtual Community Meetup on moving to a different normal after being diagnosed with breast cancer. A breast cancer diagnosis is a trauma, both physically and…
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Breastcancer.org Podcasts: Experts discuss research & issues
Our podcasts feature experts discussing a wide variety of breast cancer issues and the latest research on breast cancer. Check out all of Breastcancer.org's Podcasts here. In the premiere podcast, we're excited to bring you a summary of the research highlights from first day of the San Antonio Breast Cancer Symposium 2013!…
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Exercises to Relieve Side Effects
Nearly all breast cancer treatments cause side effects, including joint pain, fatigue, and anxiety. Exercise may seem like the last thing you want to do when you’re having serious side effects, but research shows that it can help ease all these side effects and more. It can also reduce the risk of recurrence, give you more…
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Breast Biopsy Marker Clip Allergy
Hello Everyone, I hope this day finds you well and I appreciate the existence of this board! It is such a nice resource for people to talk to one another. I am hoping maybe someone here might have some information on my weird health issue. It sounds outrageous, so please keep an open mind. I have a breast biopsy clip…
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Treatment options are stressful
Recently diagnosed with IDC. Early stages and lumpectomy with radiation is an option. Chemo is still up in the air. I have extremely fibrous, lumpy dense breasts and have, along with plastics and breat surgeon considered bilateral mastectomies to reduce the stress and testing every time a new lump forms. I'm here to weigh…
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MRI vs US give opposite results. which is more accurate?
39/f here. high lifetime risk @ 35.8%. Also my career is in radiology, so I understand the lingo, but just not such differing results. had breast MRI to supplement a negative annual screening mammo. results were 4mm focus of enhancement WITH washout kinetics. which is highly suggestive of malignancy. 2 weeks later i get…
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Waiting and waiting and waiting for biopsy
I apologize in advance. I'm just expressing my frustration over the delay in getting a biopsy and wondering if my experience is typical or not. This past August, I finally convinced my GP to order a screening breast MRI. I had it on September 14th. My background: I'm 67, have BI-RADS D breasts, annual screening mammograms…
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Lynparza/Olaparib Anyone?
I'm looking to share side effects or just any updates on Lynparza / Olaparib. I just started targeted therapy on Jan 12th. Aside from a little heartburn at first (helped with OTC pill), I've now started some daily Immodium, which the pharmacy sent WITH the Lynparza. Lol. I've started to just feel plain odd and very…
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MSK will no longer be covered by Anthem Insurance
We just received a letter that my cancer center, Memorial Sloan Kettering, will most likely no longer be covered by our insurance Anthem (Blue Cross Blue Shield) starting January 2025. Is anyone else in the same boat? Has anyone gone through the same experience with their insurance cutting off coverage for their medical…
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Long term "high oncotype test" survivors
Is there any long term survivors who have had a high oncotype score. I know that this test is relatively new but I also know that it has been on the market at least 4 years. So I know that "long term" regarding this test isn't very long term. I had it done 3 years and 4 months ago. My oncotype score was 52. My onc told me…
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CDK4/6 inhibitors
If you have taken Ibrance or Kisqali or another CDK 4/6 inhibitor, I would appreciate hearing about your experience. I recently had to stop Verzenio because of unmanageable side effects. Oncologist wants me to consider an alternative in that drug class.
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Tamoxifen Side Effects
How long were you on Tamoxifen before you started to notice any side effects? Also, what was your age when you started Tamoxifen
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Diagnosed LCIS SECOND OPINION PATH FINDS ADH
Had a Radial Scar found on mammo then stereo biopsy in to center of radial scar was benign . Radiologist suggested excisional biopsy to remove Radial Scar. Came back with LCIS and surgeon immediately suggested prophylactic mastectomy. My gyn said that was too extreme. My radiologist ( who I work with) said just do the…
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Scared
I was diagnosed with breast cancer in July had my surgery now going in for my chemo treatments taxatere and cytoxan has anyone use these meds before it will be given every 21 days starting Oct 3rd
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Face breaking out on tamoxifen?
I've been on tamoxifen for a year now and I have all kinds of side effects from it. Weight gain 20 pounds, I'm always tired and I have no desire to do anything, hair loss/hair thinning to name some, oh yeah and those lovely hot flashes too. But also my face is breaking out with acne. I talked to my Onco and he said it is…
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CTC liquid Biopsy
Hi everyone, I was wondering if anyone knows whether CTC liquid biopsy is being used for early stage breast cancer? My sister was diagnosed with ILC , stage 2A with one positive lymph node. Doctor didn`t want to do PET scan to check and see if there are mets anywhere else in the body. Is it common to use CTC test instead…
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Traveling with MBC - Inspire others with your vacation experiences and tips!
Hi everyone! We have a new content highlight on Traveling With Breast Cancer, and would love you to share your tips, experiences, memories, and advice for those with metastatic breast cancer who are considering traveling, but might not feel well enough, think they don't have the energy, are concerned about risks of travel,…
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Difficulty breathing
I was recently diagnosed with metastatic breast cancer in my bones- de novo at 41 years old. I have been having difficulty breathing on and off for the past few months. It feels like air hunger - every day, like I just can’t get enough air. They’ve checked me for a blood clot twice now, so that’s not it. It does get worse…
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Stomach pain post Diep flap
I’m nearly three years out from DIEP flap surgery. Since the very beginning I’ve had issues with extreme muscle cramping in one spot of my left lower abdomen. I even get hard charley horses there! Any ab workouts or heavy lifting triggers this. Has anyone else experienced this, and did you find any treatments or solutions?
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Scared and Confused
Hi! I'm sorry to keep posting, I'm just so confused and scared about my diagnosis. I spend most of my time googling which is making things worse and it's because my surgeon and RO seem to be on the same page but my oncologist says something different so I don't understand what is going on. I was diagnosed with ER positive…
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Phesgo
Diagnosed July 2024, started treatment Aug 24 with 7 cycles of chemotherapy with EC x3 Docetaxol x4 , completed December 24 Surgery in the form of therapeutic mammoplasty with removal of tumour bed Managed 16 out of 18 cycles of phesgo for HER2 positive BC ( last injection 18.8.24) Radiotherapy x10 with boost for the last…