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Letrozole for life
Wondering if there are any very high-risk others here that have agreed to Letrozole for life so to (almost) completely minimize their chances for recurrence? TYIA
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Seeking Advice After Being Newly Diagnosed with DCIS
Greetings y'all, I learned on Thursday that the pathologist found DCIS in two biopsy samples taken from a clumped 3.6 cm lesion in my left breast (which was discovered via a MRI scan). The radiologist was unable to biopsy an additional 0.9 cm area of nonmass enhancement noted posterior along the pectoralis muscle 1.1 cm…
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All about Xeloda
I will complete my first cycle of Xeloda today (2 weeks on; one week off). I have already noticed some signs of HFS on my feet. Sometimes they are red and feel hot. I've had some minor skin peeling, but not any blistering. The heels are the worst (the most sensitive) and it is uncomfortable to walk. I hope I get to see the…
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LVI positive survivors
I’m having a hard time with the fact that my grade 3 tumor had LVI. My oncologist doesn’t think it’s a big deal since my nodes or negative, but I’ve read a lot of mixed info online about it and it keeps me up at night. Hoping that someone who has been through it can help me understand what this means as far as my…
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DCIS Alternatives for treatment
I have a recent diagnosis with DCIS moderate to high grade. Has anyone else received this diagnosis and chosen to do nothing but monitor the situation? I went from biopsy and ultrasound results with a likely lumpectomy to the MRI results with a 4cm + area and recommendation for a masectomy to remove the 'cancer'. Any…
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New Lumpectomy pain 8 months in
Am trying not to panic but am having some serious pain in the area of my lumpectomy. It has been 8 months since surgery and all has been well. Lumpectomy site is basically at one o'clock when looking at me and is quite deep. I unfortunately had a sarcoma after the surgery which has meshed my tissue to the chest wall. This…
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For Arimidex (Anastrozole) users, new, past, and ongoing
I found a couple of older threads about Arimidex, but they covered a large time span with a gazillion posts, so I thought I would start a new thread for Arimidex/Anastrozole users. I am starting on Anastrozole today. Plan is to take it for 5 years, possibly longer. I already have osteopenia and osteoarthritis (limited to…
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Honoring KBL, Kris B.
07/02/1961 - 08/16/2025 Kristine Mary Blake, age 64 of Murphy, NC passed away Saturday, August 16, 2025. She was born in Suffern, New York to the late Charles and Betty Bryant Brown. Kristine worked as a court reporter. She enjoyed spending time with her grandson, Colton and family. In addition to her parents she was…
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Starting Chemo August 2025 support thread
Join together to share experiences. Discuss your chemo regimen, how to prep, what to expect, how you're feeling, side effects you're having and tips to alleviate them. We're all here to support you - you've got this!
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Potential Breast Implant Illness and Alternative Reconstruction Options
Hello all, I was originally diagnosed in my early 30s with DCIS in 2015, had multiple lumpectomies to obtain clear margins then and radiation. I had a recurrence (IDC) in 2018, had bilateral skin/nipple sparing pre-pec direct to implant reconstruction along with some post surgical complications that have since resolved.…
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Large Lumpectomy vs Unilateral Mastectomy
Hello everyone, I am a 50-year-old woman recently diagnosed with stage 1A, grade 1, HER2-negative, hormone-positive breast cancer in my left breast. I had invasive ductal carcinoma confirmed in two locations. My genetic testing was negative for all cancer syndromes, and a sentinel lymph node biopsy showed no cancer.…
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Is it common to have male radiation techs?
For all of my mammograms, ultrasounds, etc. the techs were female. I was surprised when I got to my first radiation treatment and went to lay down on the table, a guy I had never seen before came up and told me to take my arm out of the gown. Maybe it's common, but it really caught me off guard when I was already feeling…
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Disappearing Focal Asymmetry
I had a new focal asymmetry on screening mammogram back in March. I got called back and the asymmetry was still visible on mammogram, although it was smaller because of being compressed. It was not present on ultrasound. They said to go back in 6 months. So, I went back today and got a normal result. (Yay, so relieved!)…
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Starting Chemo in September 2025? Let's support each other!
Is your chemo treatment scheduled soon? Let's share experiences and lift one another up here. We encourage you to share your feelings about starting chemo, what the planned regimen is, how you're preparing, ask questions and learn what to expect from others, side effects you're experiencing and how to alleviate them, and…
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Start Chemo (doxorubicin) Thursday
Anyone have any experience with doxorubicin? When do symptoms start to come on? Were you able to work while in treatment? How sick did you get? Just looking for any info available. I have been diagnosed since 5/19. Had a lumpectomy and anixilarry dissection. Start Chemo this Thursday, 7/25. Scared and nervous.
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This sucks - Osteonecrosis of the jaw
After 10 months of bisphosonates I have been been diagnosed with ONJ. 3 weeks of mega antibiotics, everything else except letrozole stopped until this is resolved. A bottle of liquid morphine to add to my collection. (Resisting because it feels too ‘cancery’, if you get my drift.) And more ‘activity’ detected in my bones…
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Dealing with the IBC rash
Hello! I am new here, and I am glad I found this place… I am in the middle of the diagnosis process, it has already been clarified that I have BC but there is not a diagnosis yet for IBC. But there are still PET and a biopsy etc. to do… Meanwhile, I have a huge rash (covering the whole right breast and stretching from…
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Why would people not return for their 6 month follow-up mammogram?
Hi, I just went through a 3-D mammogram, then a call-back mammogram and US and then a 6-month follow-up mammogram. The 6-month follow-up was normal—BI-RADS 1 negative. So, I was very, very relieved. But I was extemely anxious before the normal findings on the 6-monht follow-up. The tech mentioned in passing that many…
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Feelings about breast cancer awareness month
October is Breast Cancer Awareness month, which can be an overwhelming time for many women and men affected by breast cancer, but could also be seen as a month of hope and progress against the disease. We want to hear from you about what you think and feel approaching this month.
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Vent about Permanent Neuropathy
I'm interested in hearing from those with long term this isn't going to get better neuropathy. Too often when I bring this up I'm told...It will get better...it is temporary...mine got better....take glutamine it works.....have you tried gabapentin....lyrica.... I know there are many here going through worse, including a…
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Refusing AI Treatment
I I have decided that I'm going to quit taking my AI medicines. I became suicidal, depressed, full of anxiety, feel like I'm going crazy, legs aching in pain. I am diagnosed with stage 1 ER positive invasive ductal carcinoma. I've had a lumpectomy and one month of radiation. I have dense breasts. I have decided that the…
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Post bilateral mastectomy hypersensitivity nerve pain in chest and axilla
Hi, I am new here. Recent dx of R sided ER+, PR+, HER2 - breast cancer at 40 years old. Chose B mastectomy and immediate reconstruction. Just had drains removed at nearly 4 weeks post (sx was 8/12/25). I have been dealing with a lot of hypersensitivity to my chest/axilla region. I am a physical therapist by trade and plan…
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Getting needle biopsy on Oct 7 2025 in Phoenix/Mesa AZ, would like oncology and surgeon recommen...
My maternal grandmother survived breast cancer back in the 1970s. (She died at 106 yrs about 15 yrs ago) . My sister is a breast cancer survivor (over 10 years now). It didn't happen to my mom. My father's half sister never got it. Mammogram found two somethings suspicious in my left breast, follow up ultrasound confirmed…
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Is titanium marker safe after biopsy?
I keep reading that the markers 'can stay in the body indefinitely'. Does anyone reallly know if there are safety issues involved? Can they migrate further into the tissue after a period of time? Can they cause infections down the road? After all it's a foreign object in the body I would think it would cause a reaction…
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Starting Radiation October 2019
Is anyone else starting radiation in October? I was supposed to start today but it took them so long to do the x-rays and more markings that they mercifully postponed the treatment until tomorrow--which is October. I will be having 30 treatments over six weeks.
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I WANT MY MOJO BACK!
Hey girls, You know, this loss of libido thing is just unnacceptable. I was in the chat room earlier today and mentioned it and man, you should've heard how many of us are experiencing this problem. I promised the ladies I'd post my rant, so here it comes (or....doesn't ). If bc were a man's disease, not only would there…
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Tumor Markers Rising
I'm back after a long respite. I was initially diagnosed nearly 14 years ago with ILC Stage IIIC. I did 10 years of Letrazole. I've moved around a bit and am currently living in a place where I get tumor marker testing. My CA 15.3 went from the top of the range ~29 in February to 89 currently. I've been having pain in my…
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God’s grace
a year ago I was diagnosed with Stage IV Breast cancer that metastasized to my bones. It was all over in my bones. I had just the removal of tumor in breast and they removed 6 lymph nodes (3 were cancerous and 3 weren’t). During the last year I broke my elbow which was like an eggshell and I am still doing physical therapy…
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Anyone 5+ years with liver mets and ER+ Her2-?
I just have to ask. If you had liver mets at diagnosis of mbc, and you are ER positive and Her2 negative, and have reached five years already, please raise your hand. Most of the 5+ years women I see here on BCO are either Her2+ (the Her2 drugs are quite successful), or they started with, and may still have, only bone…