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When you're all done.........but still undone by cancer
I'm just wondering if anyone else feels like me. I was diagnosed in 2018, had the DMX, followed by chemo, and then monoclonal antibodies, finishing up in September, 2019. I'm still on letrozole and trying to get my feet on the ground after pretty much shutting my career down while I was in treatment. During 2019 I was…
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Lumpectomy Surgery with SCOUT
First time posting and have had months of waiting for diagnosis due to long wait times for scheduling mammograms, ultrasound and finally a biopsy on May 6th. I have DCIS grade 3 and found out today that genetic testing for 70 mutations was negative. I have lumpectomy planned for August 7 and will have SCOUT procedure…
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Non dairy.....why I feel let down by Jane plant
So...it transpires that one of the chief proponents of anti- dairy diet has had a recurrence. As someone who is following this diet i can't help but feel let down. This is primarily because of the way that the news has been buried deep within a website (you'd have to be a bit of a sleuth to find the news), which I find…
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HER2 Positive-anyone 10 years out?
Hi ladies, I was wondering if there are any women out there who are 10 years or longer with her2 positive breast cancer? When I was diagnosed in 2008, my prognosis said '80% chance of no recurrence in 10 years'. Wondered what they based this on, as I have yet to talk to anyone past 6-8 years and they seem to have had…
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Recurrence after mastectomy
Hi, I just found out there’s a tiny nodule with residual DCIS, 10 months post mastectomy. I’m freaking out about these new findings. Has anyone experienced a recurrence post mastectomy? My surgeon plans to perform a lumpectomy followed by radiation. I’m terrified it will have spread elsewhere since recurring so quickly.…
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Any long term survivor stories with ILC
Hi, Was hoping for some long term survivor stories. Found so much conflicting information on ILC. Not sure where the truth lies. I know each person is unique but overall hard to find good information on it.
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August 2024 Surgery Support thread
Please gather here to get and give support. Feel free to share your type of surgery, date, and let us know how you're preparing and how you're doing post-surgery. We're all here for you!
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So what to do with this information
Hello, my daughter had a mammogram and ultrasound, everything was ok. She is 44 years old. this is the first time she had breast cancer risk determined and it is 22%. Because i had a few years ago breast cancer. We are confused now. Should she every year have 3 tests done: mammo, ultrasound and MRI. It seems too many tests…
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Has anyone had a relapse after treatment with Verzenio?
Hi, I have to make a hard decision for me, whether to take Verzenio (Abemaciclib) with letrozole or no….im on stage 2 with 2 lymph nodes, 69 years old, not in very good fit, and im afraid of side effects…Has anyone had a relapse after treatment with Verzenio? I think it can help me to make a right choice for me. Thank you.
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What part of day-to-day life during your breast cancer experience has been most challenging for you?
Take our poll and share details in the thread below!
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Are medicinal mushrooms safe for ER/PR + survivors?
I’m a seven year stage III hormone positive survivor and will be completing 7 years of hormone therapy (currently on Exemestane, but been on Tamox and Letrozole also) in Nov 2024. My Onc recommends I stay on the max length of 10 years. But I’m struggling so much from the side effects and/or what seems like irreversible…
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Peritonial carcinomatosis - help
Hello everyone! Today I learned from the CT examination that peritoneal carcinomatosis appeared. I am desperate because things were going well! I am waiting for encouragement and opinions from those with this type of breast cancer metastasis: peritoneal carcinomatosis. Has anyone tried HIPEC therapy or PIPEC therapy? I…
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AIs - trading one problem for another
Please let me know if I am understanding this correctly. I am at low risk for recurrence. 7% risk of recurrence in 10 years with AIs, and 14% without. That means I have an 86% chance of NOT having a recurrence without AIs. If this means that out of 100 women, 86 will NOT have a recurrence without AIs, then 86 women will…
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Traveling with MBC - Inspire others with your vacation experiences and tips!
Hi everyone! We have a new content highlight on Traveling With Breast Cancer, and would love you to share your tips, experiences, memories, and advice for those with metastatic breast cancer who are considering traveling, but might not feel well enough, think they don't have the energy, are concerned about risks of travel,…
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What is the best DIM supplement?
I'm researching diindolylmethane (DIM), trying to find the best brand name, there are so many. Recommendations by your doctors would be highly appreciated. Thank you!
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Any stage IV surviving 5+ years ?
When you look up stats for stage IV they’re dismal, yet I continue to see lots of longer term survivors on this site. Some were given a year or two. Would love to hear how many are there and how life’s is for you. I’m coming up on three years and just failed with letrozole. MO says plenty options sti
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Axillary tale of Spence lump
hello everyone I’m new here after reading everything I could find I decided to finally join. my mom was diagnosed with metastatic breast cancer last year that has spread to her spine and brain, mom left this world a month after diagnosis. so that’s my family history, now here I am not yet diagnosed fingers crossed but I…
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Looking for information on surgery options..
IDC, ER+, PR+, HER2-, 1.8cm, wasn't in lymph nodes in the original biopsy. How did you decide on your surgery? I want this gone and don't want to constantly worry it's going to come back, but also want to keep sensation. Is it possible to do a masectomy with reconstruction during the same surgery while maintaining…
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Anyone Stage IV Doing Complementary Therapies or Holistic along with Medical Therapies?
Has anyone looked into any other therapies specifically Jane Mclelland or Thomas Seyfried or the metabolism of cancer? Would love to connect.
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6 Letter Word Game
This is the same as the 5 letter word game, but this one's 6 letters. Change just one letter from the previous word and make a new word: record
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Savi Scout and Fat Necrosis
I didn't have a good experience with my Savi Scout placement. Had I known what was involved, I would have gone to the facility that did both of my biopsies. It seemed the facility I was at was very new at doing these as some of the equipment - was still wrapped in plastic. Had it not been the Friday before my surgery I…
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Guardant 360 testing
I didn't see a top for the Guardant testing so I thought I'd start one. Does anyone know what it means when the first Guardant test showed a PIK3CA mutation, and then ten months later, it doesn't show that? I might need to change my treatment if I no longer have this mutation!
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Summer 2024 Breast Cancer Research Round Up
Summer 2024 Breast Cancer Research Round Up Aug 30, 2024 What does the latest breast cancer research mean for you? Dr. Holly Pederson explains. The U.S. Preventive Services Task Force updated its screening mammogram recommendations. Having a double mastectomy after being diagnosed with breast cancer in one breast doesn’t…
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Osteoporosis and Breast Cancer
Osteoporosis and Breast Cancer Aug 16, 2024 Osteoporosis can be a side effect of several breast cancer treatments. Rheumatologist Dr. Anupama Shahane outlines treatment options. Certain breast cancer treatments, including the aromatase inhibitors – medicines that stop the body from making estrogen – and certain…
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Podcasting From the Chemo Chair
Podcasting From the Chemo Chair Aug 9, 2024 “I started the podcast to show people that you can live through cancer,” Carly Fauth. Carly Fauth was diagnosed with breast cancer in January 2024. Scheduled to start chemotherapy in May, Carly decided to start a podcast called Chemo Coffee Talk, which she records from her chemo…
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Exercise May Lower Risk of Breast Cancer Coming Back in Some Women
Exercise May Lower Risk of Breast Cancer Coming Back in Some Women Sep 5, 2024 Just 90 minutes of moderate exercise a week seems to reduce the risk of hormone receptor-negative breast cancer coming back as metastatic disease in younger women. Read more…
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Age, Race Affect Accuracy of Mammogram Reading by AI
Age, Race Affect Accuracy of Mammogram Reading by AI Aug 28, 2024 The accuracy of AI programs to flag areas of concern on mammograms seems to depend on the diversity of the data used to create these programs. Read more…
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Two Types of Exercise May Decrease Neuropathy Caused by Chemo
Two Types of Exercise May Decrease Neuropathy Caused by Chemo Aug 22, 2024 People who received chemo and practiced balance exercises and exercises on a vibrating plate had lower rates of neuropathy than those who didn’t do these exercises. Read more…
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Breast Cancer Chemo May Make Everyday Activities Harder for Older Women
Breast Cancer Chemo May Make Everyday Activities Harder for Older Women Aug 13, 2024 Chemotherapy ups the risk that older women with breast cancer will have difficulty walking or climbing stairs. Read more…
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Extreme fatigue on Arimidex
Ive been in Arimidex for a year and 3 months. I started out only taking it every other day as I was afraid if side effects. Until 2 months ago when my MO said he "hoped" it would work. Sigh. So I am now taking 5 instead of 4 days a week. Probably no difference in effect. Since on Arimidex, I have had joint pain,…