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Self pay Oncologist Fort Worth
I am in the early stage of diagnosis. Biopsies to be done this Friday. I have 5 different concerns in one breast that have been flagged as highly suggestive for inflammatory breast cancer. I need recommendations for an oncologist in Fort Worth, Texas that will work with a self pay, broke patient. I'm not sure where to…
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mets to lung
hello. i got scan rusults yesterday. looks like abraxane is not working, since cancer is spreading. i am going on navelbine now. any words of encouragement? thanks. i am new to the boards, happy to find you all barb
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Nutrition during treatment
Hi everyone I was curious to know what everyone is doing with respect to nutrition during treatment…. Is anyone doing juicing? Green smoothies? Any tips on the proper diet to stay well and have some energy? Thank you Cindy
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Old Mastectomy Scar Itching
I'm wondering if anyone else has had to deal with intense itching of an old mastectomy scar. I had my first mastectomy (right) in March 2010 (the prophylactic second one in December of the same year). The past couple of days, the end of the scar under my right armpit has really started itching like CRAZY. Can anyone…
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Found hard lump directly on rib
Hello, I has been 13 years since I had mastectomy without reconstruction on one side for dcis grade 3. I had failure to get margins a couple times so made decision for the mastectomy. I have zero regrets for my choices and have barely thought about this in the last 13 years. So, yesterday I was doing exercises in front of…
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Mucinous Carcinoma of the breast
On April 21st I had a core biopsy and today I was told that I have mucinous carcinoma of the breast. When I investigated on this website, the information given was that this is a rare type of cancer, about 2-3% of all breast cancers and usually occurs in post-menopausal women over the age of 60. I am neither. I am 51 years…
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Shoulder dysfunction after treatment
Hello all, I finished my last radiation treatment on April 27 and promptly dislocated my right shoulder (the side where I had my mastectomy and radiation) in the hospital parking lot when a car backed up and tapped my hip (seriously didn't hit hard enough to justify the word hit). At first I seemed to be recovering well,…
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Verzenio to KISQALI
After my original diagnosis and chemotherapy surgery radiation I did a clinical trial for verzenio for people who were not stage 4 I was on verzenio from December 2021 to October 2023 March 2025 I went to metastatic breast cancer I saw my doctor yesterday and she’s thinking that cancer may have come back when I was on…
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Non Mass Enhancement
Who here has had a Non-Mass Enhancement show up on MRI but not correspond on Mammo or Ultrasound? Did you still have it biopsied? What did it end up being? I'm waiting on an MRI biopsy which my breast surgeon is recommending for the peace of mind vs. waiting and repeating the MRI in 6 months, and now I can't get in for…
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Anastrozole ???
My experience was??? My mental state went to apathetic. I had NO emotional feelng. One night I felt like I was dead with no brain activity. SCARY. I stopped it early as I was low recurrence risk. I feel even at high risk, it's not worth it.
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BCO In Memoriam thread, Part 2
(The original BCO In Memoriam thread started by Milica has gotten too long and is difficult to load or make additions. We need to start Part 2 of this thread, starting 5/3, 2023 to make it easier to load in this new platform. The Original thread (Part 1) will remain and can be accessed for viewing but will not allow for…
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US Biopsy Complete, Made to Delay Skin Biopsy
I’m 37, had a mammogram & ultrasound earlier this month due to changes in my right breast not responding to dermatological treatment (persistent itching, raised bump/rash, discharge). The 2 findings were Birads 4 (no letter): a small mass in the upper outer quadrant (10:00, U.S. biopsy), and the other a skin-related lump…
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Anastrozole (Arimidex) vs. Fulvestrant (Faslodex)
Hi All - Does anyone know why an oncologist would treat with an AI like anastrozole rather than fulvestrant? I'm currently on anastrozole and ribociclib (Kisqali). For my initial diagnosis of Stage 1A IDC (HR+, HER2-), I had lumpectomy, radiation and started anastrozole. 6 years later (this past January), mets in my lung…
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Refusing AI Treatment
I I have decided that I'm going to quit taking my AI medicines. I became suicidal, depressed, full of anxiety, feel like I'm going crazy, legs aching in pain. I am diagnosed with stage 1 ER positive invasive ductal carcinoma. I've had a lumpectomy and one month of radiation. I have dense breasts. I have decided that the…
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BIRAD5
just curious what the odds will be that this is benign. I had my first screening on 3/26 and came back they wanted more testing done. The women that did my mammogram said that they would do that and not to be worried. They called every day, texted and sent me a certified letter. Between work and the radiology office hours…
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Nipple Reconstruction or 3D Tattoo only?
Looking for advice following a successful bilateral mx implant. Very happy with results. Next I have to decide if I want to get a nipple reconstruction or should I just go with a 3D tattoo instead. My surgeon said that a reconstruction means that the nipple is always erect and while it will flatten over time I should…
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Joint pain
Has anyone on Anastrozole had knee joint pain in the middle of the night? I have severe knee pain but only between 2-4am every night. Very odd since I have no joint pain any other time of the day.
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Her2+ MULTIFOCAL
Hi. Anyone here Multifocal with her2+ only ? Er/pr- ? I was diagnosed with 2 tumors they are about 3 cm each and several satellite lesions around them. Nodes were negative. Started my treatment of TCHP. BUT I’ve heard with my tumors being multifocal and large, I have a higher chance of reoccurrence? Is that correct ? Any…
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Tips and tricks on addressing Side Effects
Hi, All As I am going through my treatment of mBC ILC I, like many others, have Side Effects that I’m trying to overcome to be on the treatment and lead my life as normal as possible. So I decided to post some tips that worked for me. When my recurrence was discovered during endoscopy I had small lesion in my stomach…
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Breast Implant issues
Hello. I’m 55 and on January 31st of this year I was diagnosed with Grade 1/Stage 1 invasive ductal carcinoma. I had a bilateral mastectomy on March 12th with expanders put in. Thankfully, my lymph nodes were clear and my ONCO test came back at a low risk for recurrence so I don’t have to do chemo or radiation. I had to…
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Bone and joint pain after tamoxifen
I concluded my 5 year regimen of Tamoxifen in August 2024. While taking Tamoxifen, I had terrible bone and joint pain in my lower extremities that was only alleviated by strong pain killers. I was delighted to reach my 5 year mark, stop taking the pain killers, and remain cancer free! However this bone and joint pain…
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Elacestrant (ORSERDU)
Starting this topic to share info about the new medication elacestrant. Elacestrant (ORSERDU) was recently FDA approved for ER+/HER2- MBC for patients with the ESR1 mutation. Just before it was FDA approved, I was able to obtain the drug through an expanded access program (thanks to WeninWI for the info!). The expanded…
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Debating continuing Letrozole after 2 years
Hello everyone. I had a mastectomy for Stage IIA breast cancer in 2022. No nodes or metastases. Started on Letrozole in 2022. I was very fit and well till then. The side effects, pain, fatigue, loss of appetite, feeling low are really getting to me. My lipid profile is altered and there is osteopenia. I have been…
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Gastrointestinal symptoms after finishing 10 years of Tamoxifen
After 10 years of Tamoxifen it was time to stop taking it. Just a couple of weeks after I stopped I got gastrointestinal issues. I am wondering if it is because I stopped the Tamoxifen. I have bloating, constipation/diarrohea, feeling a need to do but not doing, going often to the toilet. I had several tests and am waiting…
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SSDI review with metastatic breast cancer - lose benefits?
I just got a packet of mail from my state disability determination services office, saying that they are reviewing my disability status. I was diagnosed with unnumberable bone-only mets in Feb 2020. I was on Kiquali/letrozole for about 4 years, and now I've sped through Orserdu, piqray, and now, Truqap just in this year.…
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Doxil
stage 4 triple neg breast cancer Starting doxil soon. Telll me everything !💕 Thank you
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Preparing for reconstruction - weighing options re: fat grafting
Hello community~ I had a bilateral mastectomy in October 2024 and am preparing for the second phase surgery, removal of the awful tissue expanders and placement of the final implants. The plastic surgeon usually recommends fat grafting, and did initially until we discussed how painful and difficult the mastectomy was for…
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Signatera test -pros cons
I have seen discussion on here about this test, But my oncologist has never mentioned it. Looking for information you have received from your doctors on pros & cons of test. Thanks.
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Guardant 360 testing
I didn't see a top for the Guardant testing so I thought I'd start one. Does anyone know what it means when the first Guardant test showed a PIK3CA mutation, and then ten months later, it doesn't show that? I might need to change my treatment if I no longer have this mutation!
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HERCEPTIN and/or PERJETA Threads
I am currently on Herceptin and Perjeta with Zometa every three weeks. Would love to hear from others who have been on this targeted therapy and how well the treatments have been working for you..