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Breast reconstruction with implants
Hello, i just had my exchange surgery after expanders post DMX. I had expanders filled to 550 cc. I learned today that they only were able to put in 415 cc implants due to the fact they could not get the pocket to close when a larger implant was put in. Did anyone have this experience? Not sure if this leaves me options…
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SBRT vs. Histrotripsy for Liver Mets
Hello, I am weighing the options of treating my liver mets with either histotripsy or SBRT. I am in communication with 2 different physicians, one who treats with histotripsy and the other with SBRT. The physician that uses histotripsy is still in the process of reviewing my images, and is expected to contact me soon as to…
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Occult Primary with Lymph Node Metastases
Does anyone else out there have experience with an Occult Primary Breast Cancer? I was diagnosed this week with Breast Cancer in a Left Axillary Lymph Node but they can't find any cancer in my breast - I've had whole breast US, breast MRI, and biopsy of two small lesions in my breast that they didn't think looked like…
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Any stage IV's stop Enhertu after going into remission?
Has anyone who reached NED while on Enhertu but had to stop due to side effects, gone on to achieve lasting remission (1+ years) or did your cancer return soon after?
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I am grateful
I am grateful for each day God gives me. I am grateful for friends. What are you grateful for?
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Newly Diagnosed Member
Hi, I was diagnosed last month and have my surgery consult tomorrow. Over the past few days, I've doing a podcast deep dive and am greatly appreciative for the podcasts that I listed to from this website. What a great wealth of information! I'm happy to join your community here! (Well, not happy to have cancer but happy to…
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Cool Capping
I got fitted for my cool cap today. I start my first taxane treatment next Wednesday. I have thick hair but I did cut it to make more manageable to my chin. Looking to hear some experiences. I and so scared im not going to be able to handle it or I do it all for nothing.
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Recently got diagnosed with DCIS at 24 years old
Hi everyone, I’m really glad I came across this space. I’m 24 years old and was recently diagnosed with low-grade ductal carcinoma in situ (DCIS), estrogen-positive. It started when I noticed a lump in my left breast, which I honestly didn’t think much of at first. I think I was influenced by people around me—some of my…
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Podcast: What Is Palliative Care and When Do You Use It?
Palliative care focuses on pain and symptom relief. Dr. Joe Straton explains why it’s appropriate for anyone with breast cancer. Palliative care is often confused with hospice care, but the two are very different. This podcast is the audio from a special Virtual Community Meetup featuring guest moderator Dr. Joe Straton.…
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Unilateral or Bilateral Mastectomy - Pros & Cons for ILC
Hi, I learned on April 12th that both biopsies taken from my left breast on March 26th have ILC. The MRI showed at least three more (Stage 1a). They are all very small, but given there are now at least five, the surgeon's recommendation is unilateral mastectomy. I am about 95% certain I'd like to just go for the bilateral,…
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Upper back burning after all this time of managing lymph
Hi everyone. Haven't been here in a while. I've had lymphedema in many areas of my old body now for years and years (I won't say how many :) - I wear a lot of different compression garments depending on the severity on the day, sleeves, vests etc. My question is: does anyone else have quite severe burning pain in the upper…
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Augtyro
I was recently prescribed Augtyro (repotrectinib) because of NTRK gene fusion. When I was on Verzenio and Fulvestrant/Faslodex, tons of people had experiences and could talk through side effects. Now that I'm on a rare drug, I don't have that group. Is anyone on or been on this medication?
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🌟 April 2026 Radiation Roll Call — Step In, Check In, You’re Not Alone 🌟
If radiation is part of your plan this April, this is your invitation to step in and introduce yourself. ☀️ You’ve found a space where people truly get it—and we’re ready to meet you. Whether you’re waiting for your first session, in the rhythm of daily treatments, or already ringing the bell, this is your place to check…
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DCIS: choosing surgery only, followed by monitoring
Hi all, Would love to start a thread for those with DCIS who chose surgery only, no RT or HR meds. I've done a lot of research and am comfortable with my decision based on my pathology and low Oncotype score. I will have monitoring twice a year, once w GYN & mammogram and once w BS & ultrasound, so should anything change…
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Early Stage Breast
Hello, I am really scared of receiving my recent biopsy of early stage breast cancer today and came across this site and about to turn 54 and not what I really wanted to hear. I'm just reaching out for a community who are traveling with cancer. They are not sure where it has spread or if it is contained with the 15m size…
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Long-term survival of DCIS patients without radiation or hormone therapy
I'm interested in hearing from people who did not have radiation or hormone therapy after a lumpectomy for DCIS
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Cats, cats, cats
a thread for crazy cat ladies! I thought maybe just pics of your own cats, and if there's not enough then just any old cat you can find! I have 8. Technically only 5 are mine, the others think they live here. Mostly because I feed them with everybody else and they never seem to leave!
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Intraductal Papilloma questions
Hi there! I've read some posts on here and gleaned a lot. I'm a 27 yr old, and found out recently that I have a 10mm intraductal papilloma in my right breast. (For what it's worth, over the last year this breast has doubled in size, and a few years ago I had another round of biopsies done on breast so there's a lot going…
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Scar sore and armpit sensation
Had a smx and slnb for dcis back in January, alll went well and treatment has finished , jve noticed over last week or so the scar feels tight and I have awful itchy feelings , like pickles under the armpit, no swelling or signs of infection, is this normal ?
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Mind is spiraling….
Ok friends. For some reason, I’m spiraling. Background story: I have a history of DCIS, left breast. I had a DMX as my breast oncologist surgeon was in agreement with the surgery. This all happened in 2017. Direct implants at the same time. A year later in 2018, had fat grafting in both breasts. All has been well; have had…
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CALLING ALL ARTISTS- Lets make an art gallery!
We would like to create a slide show gallery of our YOUR art! Paintings, sketches, ceramics, sculpture, crafts, gardens, quilts, photography, jewelry, stained glass, mosaics, poetry .... you name it! We may show this slide show at our annual Rock the Ribbon event on October 22nd. Please post photos here, even if you have…
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Breast and truncal lymphedema
I’ve move from PT for nerve impingement to lymphedema OT for breast and truncal lymphedema. My OT says she considers me Stage 0 lymphedema in my arm due to symptoms I have however I don’t have enough swelling yet in my arm. Yet. I’m in compression bras 23/7, have multiple pads to wear in bras for additional compression, do…
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Ribociclib/Kisqali with Letrozole - Any one on this combo?
I am starting this new forum for all those who are on this newly approved drug combo. I started on Kisqali/Letrozole combo 6 weeks ago and so far it has been tolerable. Letrozole gives me joint pain and low back pain. My oncologist has asked me to take this on alternate days. Would love to hear from others about their…
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For ALL Not Diagnosed Newbies: Imaging & Common Symptoms FAQs
Our very helpful member djmammo has taken the time to research and put together some extremely helpful information for all newbies who find themselves here, worried about a symptom, a test result, or interpreting image results. Please take a moment to read through the thread links applicable to your situation below. Many…
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Is It Normal for Skin Sensitivity to Appear Weeks After Radiation Ends?
Hello I finished my radiation therapy about three weeks ago & while my skin seemed to heal well initially; I am now experiencing delayed sensitivity almost like a sunburn that wasn’t there before. 😑 The area feels warm and slightly itchy & some mild redness has reappeared. I expected side effects to gradually improve, not…
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🌟 March 2026 Radiation Roll Call - Support is here! 🌟
If radiation is part of your plan this March, this is your cue to step in and introduce yourself. ☀️ You’ve found your people. Whether you’re waiting on your start date, driving to daily sessions, or already ringing the bell, this thread is your check-in spot. A place for honesty. For “Is this normal?” questions. For…
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Blog Discussion: Naming the Grief
Join us to discuss this blog post. Let us know your thoughts, feelings and experiences and if anything about this post resonates with you. We value your insight! https://www.breastcancer.org/community/blog/naming-the-grief Post your thoughts on this blog post below!
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Blog Discussion: Navigating Celebrations When Breast Cancer Is Part of Your Life
Join us to discuss this blog post. Let us know your thoughts, feelings and experiences and if anything about this post resonates with you. We value your insight! https://www.breastcancer.org/community/blog/celebrations Post your thoughts on this blog post below.
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Mammogram report
Hi i had mammogram done yesterday and this is the report Circumscribed equal density 8 mm anterior posterior left breast mass. No additional finding of either breast. ASSESSMENT: BI-RADS CATEGORY 0: Incomplete, need additional imaging evaluation. IMPRESSION: Left inner posterior breast mass, question cyst Recommendation:…
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All about Palliative Care (for all stages)
You might think of palliative care as end-of-life care — the two are often mistakenly linked. As a result, many people don’t think it’s an option for them, and they miss out on receiving care and support that can help them feel better. Simply put, palliative care, which is also sometimes called supportive care, helps…