-
Music to help kick cancer's ass
I really believe in the positive power of music. Lots of kinds of music! Since my diagnosis, I have put together playlists for myself — classical music for calming (and techno when I needed to concentrate on work and not let my mind wander), but now that my lumpectomy went well, one to keep me on the positive track. I'm…
-
Liver damage with Tamoxifen?
Hey, peeps. Context: A little over a year ago, shortly before my BC diagnosis, I had skyrocketing ALT and AST levels and was sent for a liver biopsy. I was diagnosed with liver damage of unknown origin (they theorized I'd been exposed to something chemical somehow), NASH and NAFLD. I had mild scarring on my liver and lots…
-
Stage III Cancer Survivors .... 10+ Years and Out
This thread is for STAGE 3 cancer survivors who have made it to 10 years or more since diagnosis or however you count your anniversary. Let's post some hope for those just starting the journey as STAGE 3, Please keep this thread to its original purpose and move unrelated discussions to new or other threads. Thanks…
-
Stage III Cancer Survivors...15+ years and out
Let's just see what happens here...This is a "build it and they will come" experiment. It's time. If you are not a 15 year survivor but know the story of someone who is, please join in.
-
Long term survivor examples.
Just an idea came across my mind. Can we share stories and examples of long term triple negative survivors. They dont participate in such forums. So its only by word of mouth that we get to hear about them. But I also see few of them in this website, who themselves are long term survivors. I feel so happy to see how they…
-
When to be concerned about lesions
I have about 4 lesions on my lung and liver that showed up on scans before and after chemo. They range from 2-5 mm. My MO said they aren’t of concern right now and we will just keep an eye on them. This is constantly going to be on my mind that my breast cancer may have metastasized. How big do lesions have to get before…
-
Recurrence in mastectomy incision?
Hi! I'm wondering if anyone has had a recurrence in their mastectomy incision? Can you tell me what it looks like? I'm 11 mo post mastectomy and about 6 months post reconstruction. The scar looks fine except for on the very end I have a small swollen red spot that is mildly tender (kind of hard to tell because I'm numb but…
-
Question about Residual Disease
Hi. I finished Kadcyla this past April. My original diagnosis was October 2021, triple positive, Stage 2, pathogenic ATM gene variant. Started chemo (first Taxotere then Taxol (every week) plus Herceptin and Perjeta (every 3 weeks). Mastectomy in March 2022. There was residual disease so I had to start Kadcyla in June…
-
This does get better?????
I am feeling just awful. Three days post dose #3 of AC, and I feel pretty bad. Lots of nausea. I'm trying all the things I've done before - small meals, hydration, Compazine, lorazepam, and I still feel very nauseous and very down. Like this is never going to end. We've just moved house as well and I can't find anything.…
-
Interpreting Your Report
***Edited by Mods to add: Unfortunately DJMammo has stepped away from the Community for personal reasons. Please do not expect an answer from him directly. However, you can still post here in an effort to get help from our other amazing members!*** Mammogram and ultrasound reports contain (should contain) a fairly specific…
-
From Lumpectomy Reduction to Mastectomy
Oh cancer is twisty. I had my lumpectomy with reduction last week. It went perfectly and could not be happier. I’m recovering nicely at home. My plastic surgeon gave me lovely perky boobs that I’m just getting used to Then the surgeon called today with all the pathology reports and now I have to go back for a left…
-
Liver surgery
Hi everybody Did anybody with liver met did surgery? If yes, in what cases is suggested and when not? Please tell md about your case!
-
Panic attack, sadness and breathing exercise
Hi everybody I'm usually happy and try to have my normal life, but sometimes I just feel like I'm going deeper snd deeper in to sadness, or having a strong panic attack . Especially now that I fpund out my cancer is back in my liver, after only an year of Ribociclib. I tough it was supposed to last 5 or 6 year, but not for…
-
Stage 2 Sisters Club
Welcome to the newly formed Stage II Breast Cancer Club! And Thank You Mods for facilitating its creation.
-
Seattle -- looking for info./advice re: MBC treatment options/ locations ....
Hi all — my beau and I are likely to be moving to the Seattle area next spring (exact area not decided yet). I am looking for info. / advice regarding where to get MBC treatment and tips re: transportation and other practical advice. I am generally aware of Fred Hutch, but again am looking for practical tips about getting…
-
Progression after ribociclib (or cdk4/6) and letrozole
Hi I had her2 neg er+ breast cancer in 2018. In 2022 i had recurrence in my bones (all over with 3 collapsed vertebrae) and liver. I was on ribociclib and letrozole that worked really well, pet was negative and most metastasis disappear. In August I had liver recurrence. Blood test and markers are ok and i feel well so i…
-
Introduction—Has it been hard to tell people?
Hi, I am newly diagnosed with IDC grade one. My doctors so far are optimistic about treatment and prognosis. My lumpectomy is scheduled for next week. I am nervous about the pathology report. I actually met with my surgeon on my 68th birthday. Happy birthday to me! Aside from my family, I’ve only told one other friend, so…
-
Anyone else with just liver mets
is there anyone else on the board with stage IV only in liver? It seems everyone else has liver and….bone,brain,etc. I’m not complaining but at age 77 keep wondering what’s next or if we are missing something. I feel so sad for the young women and feel I’ve had a full life and I know where I’m going when I die. Not in a…
-
NBN Genetic Mutation...anyone else?
Hello, I was diagnosed with breast cancer at age 29. Genetic testing was brought up shortly after my diagnosis. I decided against it, at the time, for several reasons...the cancer institute in the city I live does not have a genetic counselor so I would have had to travel 5+ hours for this, no family history of breast…
-
Period after chemopause
I went through AC-T chemo 7 years ago at 40 which put me into chemopause. I have been taking aromatase inhibitors since then. I am now 47 and am having my first period. Did anyone else have this happen? I have a call into my oncologist and ob-gyn. Just wondering if it has happened to anyone else.
-
Compression Sleeve for Long Flights?
Background: I do not have lymphedema post lumpectomy and sentinel lymph node removal (May 2023). However I did end up with painful cording a few weeks after surgery which subsided with physio and massage. The lymphedema specialist (who I proactively consulted) said the arm sleeve might be beneficial and wouldn’t hurt…
-
Lumpectomy after bloody discharge
hi all. im looking for anyone to shed light on my risk with the following. im 41. two years ago i had a lumpectomy for what turned out to be a fibroadenoma. just had another surgery to remove a duct that was seen to be dilated with a lesion on ultrasound. i had bloody nipple discharge with this. my pathology reports showed…
-
MRI Biopsy
Hi, I was diagnosed with ADH in June of this year after my mammogram, ultrasound and biopsy. I decided to get a second opinion for several reasons. The second Oncologist practice contacted me in July indicating after reviewing my images that I actually have DCIS stage 0. They recommended that I have an MRI and also…
-
Talking to Children About Metastatic Breast Cancer
Talking to Children About Metastatic Breast Cancer Sep 8, 2023 Kelly Grosklags, a licensed clinical social worker and grief counselor, helps Community Director Melissa Jenkins moderate a special Virtual Community Meetup on talking to children about metastatic breast cancer. Finding the words to talk to children about…
-
Breastcancer.org Podcasts: Experts discuss research & issues
Our podcasts feature experts discussing a wide variety of breast cancer issues and the latest research on breast cancer. Check out all of Breastcancer.org's Podcasts here. In the premiere podcast, we're excited to bring you a summary of the research highlights from first day of the San Antonio Breast Cancer Symposium 2013!…
-
Breast Cancer Screening for Women in Their 40s Improves Survival
Breast Cancer Screening for Women in Their 40s Improves Survival Sep 6, 2023 Breast cancer screening for women in their 40s led to better survival for those who were diagnosed with the disease. Read more…
-
People Receiving Cancer Treatment Benefit From Extra COVID-19 Boosters
People Receiving Cancer Treatment Benefit From Extra COVID-19 Boosters Sep 6, 2023 If you’re in treatment for breast cancer, you’re likely to benefit from extra COVID-19 boosters. How often you get them depends on the medicines you’re receiving. Read more…
-
Healthcare Red Tape Means People May Skip or Delay Cancer Treatment
Healthcare Red Tape Means People May Skip or Delay Cancer Treatment Sep 5, 2023 People diagnosed with cancer who have to do paperwork associated with paying for their care are more likely to skip or delay treatment. Read more…
-
Mindfulness Practices Recommended for Anxiety, Depression in People With Cancer
Mindfulness Practices Recommended for Anxiety, Depression in People With Cancer Sept 5, 2023 Two professional cancer organizations have formally recommended mindfulness practices to ease anxiety and depression in people diagnosed with cancer. Read more…
-
Uni mastectomy 2021, want other side out now
I had IDC in 2021 and had a uni mastectomy with rads and chemo, currently on AI and ovarian suppression. I find I'm having more anxiety about recurrence and I'm not sure why. Perhaps it partly has to do with recently finding out that a family member is now dealing with her new diagnosis of IDC. I'm also seeing that the…