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How long have you been Stage IV?
We have a thread of what age you were diagnosed at Stage IV, so how about "How long have you lived with Stage IV". Also please state if you were Stage IV from the get go. I'm asking for this information in hoping to have MANY more years than the 2-3 I was given and to give hope to those newly diagnosed with Stage IV. 1…
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Stage IV pals - what thing(s) do you do to treat yourself?
I’m looking to do some special thing for myself, “just because”. Things on my list include: fresh flowers inside each week, and pedicures, I’m considering looking for someone to clean my house What does everyone do to treat and be kind to yourself? Looking for inspiration.
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Stage IV MBC Fitness
Hello! Welcome! We are done with Stage IV, moving on and planning to staying healthy for a long time. We're Stage V (Which is not dead. We're doing fine, ready to live with this beast.) This is the American Cancer Society/NCI consensus on exercise for cancer patients. * 150 minutes/week moderate-intense aerobic exercise or…
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Exercises For People Living With Bone Metastases
Studies show that exercise is safe for people with bone metastases. Research also shows that exercise can improve sexual health and offer many other benefits for women diagnosed with metastatic breast cancer. In this video, Sami Mansfield, a certified cancer trainer and founder of Cancer Wellness for Life, demonstrates a…
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DIEP flap
just finished double mastectomy 2.5 weeks ago. Stage 1a grade 1 no lymph involvement k-67 7% hr+, PR + HER2 Positiveplastic surgeon schedule DIEP for Oct 8. Just saw med oncologist and recommended endocrine therapy. Do I wait till after Oct 8 surgery to start medicine due to side effects on body?
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Potential Breast Implant Illness and Alternative Reconstruction Options
Hello all, I was originally diagnosed in my early 30s with DCIS in 2015, had multiple lumpectomies to obtain clear margins then and radiation. I had a recurrence (IDC) in 2018, had bilateral skin/nipple sparing pre-pec direct to implant reconstruction along with some post surgical complications that have since resolved.…
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Nausea and Migraines after Bilateral Mastectomy
I had Stage 0, Grade 3 DCIS in left breast. After two lumpectomies, margins were still not clear. I opted for bilateral mastectomy based on family history and genetic testing results. I am 16 days out from the third surgery within 7 weeks of each other. I am nauseous every day and have occasional migraines/headaches. I was…
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Travellers insurance advice
hi. I know I've seen some of you planning wonderful trips. I've searched but not found any specifics here about traveller's insurance for international travel. If all goes well (and I manage to renew my passport on time! Ugh, pandemic made me neglect so much) we hope to visit family this summer. I will be a few months out…
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Waiting on HER and Hormone Receptor Info
Recived my diagnosis yesterday. The info I have so far is High-grade invasive mammary carcinoma, no special type (ductal) with associated intermediate to high grade ductal carcinoma in situ with cribriform and micropapillary architecture. Foci suspicious for lymphovascular invasion. Microcalcifications present, associated…
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💛 June 2026 Chemo Check-In — Come On In, We Saved You a Seat 💛
Starting chemotherapy this June? We're glad you're here. Whether you're preparing for your first infusion, counting down to treatment day, or already a few appointments in, this thread is a place to connect with others who understand what you're going through. Chemo can bring a mix of emotions—questions, worries,…
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18 Yrs Later
Back in 2008, I was MamaShift on here. Oddly, I'm back here under very similar circumstances. In January, I moved back to the States -- after an adulthood abroad -- after my husband ended our 28 yr marriage. Things have not gone well since then. My health has been a major challenge, but my mental health as well. I spent 10…
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August 3
Hi I just had a mastectomy on August 3. I am now and doing pretty well coping with all of it. I appreciate the community any support and guidance.
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Diagnosed last week
newly diagnosed HR+ aggressive lobular stage 4 with hundreds of bone metastases. Showed up on cr scan head snd mri neck when I complained of bone pain. Was PET negative and normal cmp and cbc so oncologist suspects bone only. However I read it ifnt easily picked up on PET as lobular grows in sheets. Oncologist said don’t…
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Navigating Navelbine
I am starting this thread for the discussion of all things Navelbine. It's for those currently on it, those who have been on it, or will start it soon. I hope it will be a source of information, a guide to help with side effects, and a place to rant, vent, cry, scream, or cheer! I had my first treatment this morning. It…
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Zoom Meet-up for Those With MBC: Place to keep chatting
This is a space held for our Zoom Meetup members to gather in between meetings for updates and support. Join our Virtual Meet-ups! For those with a diagnosis of metastatic breast cancer (MBC; also called stage IV) Register: Mondays at 2:00 PM EST, Tuesdays at 1:00 PM EST, and Wednesdays at 4:00 PM EST Young (45 and under)…
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Invasive lobular carcinoma
I am new to the forum, felt I needed some support to go through this whole process of my diagnosis. I am 73 years old, biopsy report invasive carcinoma, 7mm, her2 negative, ESTROGEN/PROGESTERONE POSITIVE GREATER THAN 90%.. appointment with surgeon 1/6 hopefully have surgery date set up. Due to the nature of this disease I…
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Newly Diagnosed
Hello, I was diagnosed a little over 3 weeks ago with Invasive Ductal Carcinoma, Stage 1. Since then, I’ve been on an emotional roller coaster. My surgery is scheduled for August 19th. I’d appreciate any positive vibes!
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A new odour
My mother was diagnosed with metastatic breast cancer 3 years ago. She takes letrazole, palbociclib (3 weeks on/2 off) and has Denosumab injections. After being away for a couple of weeks ( we share the same house), I have returned to notice that she has an odour particularly later in the day. It is not incontinence…
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breast cancer and bronchiestatsis
I was recently (this week) diagnosed with stage 1 invasive DCIS. I also have bronchiestatsis (chronic lung condition causing frequent infections) and am currently being treated for aspegillious. I would love to get some feedback, advice, etc. from anyone who has been diagnosed and has a similar story.
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Liver Nodules
Hello :) I was diagnosed on 4/10 and had a double mastectomy on 5/18. I have a DIEP reconstruction scheduled for 9/2. I had to have a CT Abdomen to map out my veins and make sure everything looked fine for surgical planning. They found a 4 mm liver nodule. I have been taking Tamoxifen and over the last 6 weeks have lost…
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More tests scheduled
Hi everyone Well I'm back again, I know it's not where we want to be but if we have to be somewhere for support this has always been the best place to come for it. I have been here before in the past years with worries of cysts and complex cysts in both breasts where I have gone through Ultrasounds, Mammograms and MRI's. I…
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Bottle o Tamoxifen
Dear All, (and Layne are you there?) Got my Tamox today and will start in a week. Where are my tamoxi pals? It says weight loss for one of the side effects. Now that's a good thing. Basha Edited by Mods to add content from the main Breastcancer.org site's section on Tamoxifen in Pill Form (Brand Name: Nolvadex): Benefits,…
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Ibrance (Palbociclib)
A bottle of Ibrance came in the mail today. I will start taking it tonight with Femara. Hoping that others starting on this drug will join me here to talk about side effects and how to avoid or treat them. So far, I've been warned about low white counts. I run very low as it is, probably because of my extensive bone mets.…
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🌟 August 2026 Radiation Roll Call — You're Not Alone. Come Share, Ask, Update & Support One Another
If radiation therapy is part of your treatment plan this August, we'd love for you to join us here. ☀️ Whether you're getting ready for your first session, settling into the daily routine, halfway through treatment, or counting down to your final appointment, this thread is for you. This monthly Radiation Roll Call is more…
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Radiation benefits & Risks for early stage cancer
Hello, I am preparing for lumpectomy and then radiation/AI expected. Despite bilateral the surgeons feel I am a good candidate. Any suggestions on where I can get risk/benefit analysis for radiation treatment? I am 58 bilateral IDC/DCIS Grade 1 T1b no nodes ER/PR+ Her2neg No BRCA genes and low Ki-67 I have spoken with…
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new diagnosis
I was recently diagnosed with her2 negative metastatic breast cancer stage 4 that is not in breast but now in bronchial, bone , abdomen , pelvis. I have been coughing a full year. Had breast cancer stage 1b in 2020. So recurrence. Wonderful Pulmonologist was one that finally found what was wrong through lung biopsy ! Went…
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Hormonal breast cancer and enhertu treatment
Hello all brave women out there, I am a mom of three boys and 44 years old. 5 years ago I was diagnosed with hormonal breast cancer that had spread to my bones ( bone marrow). Initially I started with chemo to repair the damages on my bones and then proceeded with hormonal treatments. Tha last one was with orserdu along…
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Left breast Cancer
Modified radical msatectomy with axillary dissection, left breast got 2×1.2 centimeter tumor, now doctor said need to do Fish/dish test if positive need give induction, per induction $2000+ USD need give 17 induction,it is difficult for me to pay, 😢
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Navelbine chemo
Just started oral Navelbine for lung mets (Was on Xeloda for a year some lung progression in October 23) Not much recent info here on this therapy but seems to be working for me 120 mg once per week for 8 weeks reduced CA15 from 84 to 40 Now on 140 mg No major side effects Ct scan and Bone scan in 3 weeks Bright in Hope
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I wrote so I wouldn’t break (TNBC)
Writing became my way of dealing, rather than surviving, one of the hardest chapters of my life. The Whispering Shadow is my story, born from the pain and fear I experienced during my unwanted battle with triple-negative breast cancer. When you’re carrying a story that feels too heavy to hold, try writing it... not for…