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Revision Surgery (swapping UTM to OTM)
Hi All! I would love to hear from those that have swapped UTM (subpectoral) implants for OTM. I had my mastectomy in 2015 and UTM was recommended. I have since developed capsular contracture, as well as animation deformity which has had a noticeable impact on my chest strength/yoga practice. I also have an overall tight…
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Ribociclib/Kisqali with Letrozole - Any one on this combo?
I am starting this new forum for all those who are on this newly approved drug combo. I started on Kisqali/Letrozole combo 6 weeks ago and so far it has been tolerable. Letrozole gives me joint pain and low back pain. My oncologist has asked me to take this on alternate days. Would love to hear from others about their…
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Trying to stay positive is hard.....
…when the news just keeps getting worse. I found out today that my cancer is Stage IV. I have metastasis to the bone. One rib. I've had pain in that rib for a month now and just isn't going away. It has improved. I thought I had just pulled a muscle because it hurt fiercely for about two weeks but then subsided to just…
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Swollen lymph nodes below collarbone
Doing the waiting game again. 3 yrs ago I found 3 masses, all came back benign but one area did have microcalcifications. And they wanted to watch it in 6 more months. At 6 months, I went to a breast clinic, and right from the start they made it clear that I was "too young, and wasn't at risk". I was 34 with a history of…
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Breast cancer and possible lung issues?
Hello. I just finished chemo, surgery and radiation for triple pos breast cancer that was also in a lymph node. I had a complete response to the chemo and was cleared in mid October, sentinel node negative. I recently had a ct scan of my back after a hard fall down some stairs resulting in a broken tailbone. The scan also…
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MSK will no longer be covered by Anthem Insurance
We just received a letter that my cancer center, Memorial Sloan Kettering, will most likely no longer be covered by our insurance Anthem (Blue Cross Blue Shield) starting January 2025. Is anyone else in the same boat? Has anyone gone through the same experience with their insurance cutting off coverage for their medical…
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Vent about Permanent Neuropathy
I'm interested in hearing from those with long term this isn't going to get better neuropathy. Too often when I bring this up I'm told...It will get better...it is temporary...mine got better....take glutamine it works.....have you tried gabapentin....lyrica.... I know there are many here going through worse, including a…
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Middle Aged Memories
Let's see, so far we've reminisced about dittos, drive in theaters, lick-a-stick candy, five-and-dime stores, Donny Osmond, Dark Shadows, what have I missed?
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Need a little encouragement, advice, feeling a little sorry for myself and frustrated...
So, I had a mammogram in June (first if 4 years, I know, not the best but I hate doctors). Came back that I needed to follow up now with another mammogram and ultrasound. Had that done in July with a reading of benign breasts with moderate fibrocystic changes. BIRADS 2 - BENIGN. I read every "cyst's" dimensions and they…
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Fulvestrant and ribociclib with Turkey Tail Extract - can anyone help?
Hi to all, I am writing on behalf of my mother who is currently undergoing treatment for her metastatic breast cancer. The tumour travelled to her spine and to liver. She had to undergo extensive spinal surgery a few weeks ago which she is currently recovering from. She has now began her treatment with fulvestrant and has…
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STEAM ROOM FOR ANGER
This thread is meant to be for RANTS and RANTING. Then Rant again. We need a place to simply get rid of the anger. Write it here. Unleash it all. Get it out. This isn't meant for the Stupid comments(great thread). This is for the gut wrenching, tell them off anger. IMPORTANT: When done ranting don't necessarily stick…
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My boobs keep trying to kill me
Hello Sisters! It’s been awhile since I’ve last checked in, but am in need of advice/recommendations/encouragement. Background – Diagnosed with de novo ILC (ER/PR+, HER2 - ) with innumerable sclerotic bone mets in 2018 at age 50. This was found on a routine mammogram – I was totally asymptomatic. Had a R mastectomy and…
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Mastitis lingering or IBC?
Hello there I’ve recently had a second baby and am breastfeeding. Experienced mastitis twice in first two weeks of baby being born, familiar with it as had it with first. After the last bout of mastitis I noticed a red patch on the side of boob and 6 weeks later it still hasn’t disappeared. It has a very slight orange peel…
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Adding MRI to 3D Mammograms May Save Lives of Women With Extremely Dense Breasts
Adding MRI to 3D Mammograms May Save Lives of Women With Extremely Dense Breasts Sep 25, 2024 While the benefits of supplemental screening are clear, the additional screenings may also lead to more false alarms, which can take a financial and emotional toll on people. Read more…
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Starting chemo July 2014
Guess I'll go first. I start July 1. Your turn! Here's our list: 11PattiS – June 25 Magdalene51 – July 1 Too young momof2 – July 2 Blownaway – July 3 Mumford – July 4 Ladytdf – July 7 VerukaNY – July 8 Hemmie – July 9 ChaosRains – July 9 MomtoIrishQuads – July 9 CoyoteNV – July 10 RainDew – July 11 Z-Kitty – July 11…
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Newly diagnosed IDC Stage 2 Er+(25%), PR-,Her2-
I am newly diagnosed and fall within a grey area with only being 25%ER+. My oncologist at the Cleveland Clinic is still finalizing treatment plan and taking me to tumor board to get more opinions. Currently going to treat me as both tnbc and hr positive with surgery first. Are there any in the group that have had a similar…
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When you're all done.........but still undone by cancer
I'm just wondering if anyone else feels like me. I was diagnosed in 2018, had the DMX, followed by chemo, and then monoclonal antibodies, finishing up in September, 2019. I'm still on letrozole and trying to get my feet on the ground after pretty much shutting my career down while I was in treatment. During 2019 I was…
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Seattle -- looking for info./advice re: MBC treatment options/ locations ....
Hi all — my beau and I are likely to be moving to the Seattle area next spring (exact area not decided yet). I am looking for info. / advice regarding where to get MBC treatment and tips re: transportation and other practical advice. I am generally aware of Fred Hutch, but again am looking for practical tips about getting…
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Port removed vein still prominent
Hi Ladies! I’m wondering if anyone has experienced this or knows what it could possibly be. I had a port placed in Nov 2020 and just had it finally removed the end of April 2022. For at least one year that I had the port and quite possibly longer, I noticed that the vein that had the catheter in it would stick out in a…
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Active Monitoring May Be as Good as Surgery for Low-Risk DCIS
Active Monitoring May Be as Good as Surgery for Low-Risk DCIS Dec 20, 2024 Two-year rates of invasive cancer were similar for women whether they had surgery or frequent mammograms, but more research is needed. Read more…
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Breaking Research News from Breastcancer.org
Breastcancer.org strives to bring you updates on the latest breast cancer research through its Research News program. Medical experts at Breastcancer.org provide easy-to-understand summaries of what the research means for YOU. Favorite this thread to get notifications on all the breaking news about current breast cancer…
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Piqray users, what is your experience?
I just started on Piqray and Faslodex after Ibrance and Arimidex stopped being effective. I am weakly ER positive and PR negative, so I can't say it was a complete surprise that at some point that would occcur. I would be interested in hearing from others how you are doing on this very new medication. So far, the only side…
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Advocates’ Thoughts on SABCS 2024
Advocates’ Thoughts on SABCS 2024 Dec 13, 2024 What are patient advocates excited about at SABCS 2024? Five tell us. Five patient advocates share what they like and what they’re excited about at the 2024 San Antonio Breast Cancer Symposium. The advocates are: Antoinette Greer, of My Sister My Friend Breast Cancer Support…
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Breastcancer.org Podcasts: Experts discuss research & issues
Our podcasts feature experts discussing a wide variety of breast cancer issues and the latest research on breast cancer. Check out all of Breastcancer.org's Podcasts here. In the premiere podcast, we're excited to bring you a summary of the research highlights from first day of the San Antonio Breast Cancer Symposium 2013!…
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Top Research at SABCS 2024
Top Research at SABCS 2024 Dec 13, 2024 What were the hot topics at the 2024 SABCS? Dr. Marisa Weiss details the highlights. The 2024 San Antonio Breast Cancer Symposium featured five days of research presentations, educational sessions, and advocacy meetings. Dr. Marisa Weiss, founder and chief medical officer of…
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Enhertu for HER2-Low and -Ultralow Metastatic Breast Cancer
Enhertu for HER2-Low and -Ultralow Metastatic Breast Cancer Dec 12, 2024 Dr. Aditya Bardia discusses Enhertu for metastatic hormone receptor-positive, HER2-low and -ultralow breast cancer and explains those terms. At the 2024 San Antonio Breast Cancer Symposium, Dr. Aditya Bardia, director of the Breast Oncology Program…
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Breast Cancer in Young Women: What We Know and Reducing Risk
Breast Cancer in Young Women: What We Know and Reducing Risk Dec 11, 2024 Dr. Matteo Lambertini discusses current research on breast cancer in women 40 and younger. Cases of breast cancer in young women have been increasing dramatically in the last eight years. Dr. Matteo Lambertini, whose research focuses on breast cancer…
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Alamo Breast Cancer Foundation Scholarships
Alamo Breast Cancer Foundation Scholarships Dec 11, 2024 What does it take to be an Alamo Breast Cancer Scholar? Andrea Hans explains. Andrea Hans was diagnosed with stage II triple-negative breast cancer when she was 28. With expertise in public health and health policy, she began working as an advocate to empower young…
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Sexual Health After Breast Cancer
Sexual Health After Breast Cancer Dec 10, 2024 Noted sexpert Dr. Don Dizon explains why sexual health after cancer treatment should be more than an afterthought. At the 2024 San Antonio Breast Cancer Symposium Dr. Don Dizon, professor of medicine and professor of surgery at the Brown University Cancer Institute, was part…
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Can Hormonal Therapy Help Treat Triple-Negative Breast Cancer?
Can Hormonal Therapy Help Treat Triple-Negative Breast Cancer? Dec 6, 2024 Dr. Donald McDonnell discusses his research on estrogen, eosinophils, and triple-negative breast cancer. New research suggests that estrogen plays a role in allowing hormone receptor-negative breast cancer to grow. This is because estrogen limits…