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Not Diagnosed and Waiting for Test Results? Start Here
Often, the hardest part of screening and testing isn't undergoing the tests themselves, but WAITING for results to come back. If you're like most people, you will want your test results as soon as possible. Read here for steps you can take to feel more in control of the process: * Test Results and Medical Records,…
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Infection after Mastectomy with tissue expanders
Developed terrible infection in right breast seven days after double mastectomy with tissue expander placement. High fever, chills, skin necrosis, blistering and breast leaking from incisions. Expander removed, cultures taken, flushed area and closed back up. Proper oral antibiotic received once the bacteria were…
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Stage 1a to Stage 4 in 6 years. 39 yo. Mets to liver & bone. Chek2+
Hi everyone, my first dx was in 2018 (age 32) after self discovery. I had a Bi-lat mastectomy and had been on tamoxifen. Oncotype 11 so no chemo recommended. ER+/PR+. Chek2 positive. Feeling great with no symptoms, I did a Galleri test this October 2024, which came back with positive breast signal. CT scan w contrast…
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PIK3CA
recently diagnosed with this mutation. Does this mean I have active cancer in my body? My dr is trying to get me on Truqap. My dr keeps telling me I’m metastatic, but I don’t know what it is based on. Is it because of this mutation or because I’ve had 3 primary IDC in 23 years. Earliest was 2025. When I ask, she says it…
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Waiting: what helps?
I know everyone on here has had the experience of waiting for test results. I am currently waiting for biopsy results but the radiologist said given the spiculated margins of the mass I am probably looking at breast cancer. I’ve been in therapy the past couple of months for health anxiety so this is a big blow and my…
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Ibrance (Palbociclib)
A bottle of Ibrance came in the mail today. I will start taking it tonight with Femara. Hoping that others starting on this drug will join me here to talk about side effects and how to avoid or treat them. So far, I've been warned about low white counts. I run very low as it is, probably because of my extensive bone mets.…
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Dcis microinvasion
Waiting for results of slnb, had smx dcis was 80 x 83 x 80 so very large. What are the treatments usually given for the microinvasion ?
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How long have you been Stage IV?
We have a thread of what age you were diagnosed at Stage IV, so how about "How long have you lived with Stage IV". Also please state if you were Stage IV from the get go. I'm asking for this information in hoping to have MANY more years than the 2-3 I was given and to give hope to those newly diagnosed with Stage IV. 1…
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Halaven - Day 1
So, I'm the first person on this newly approved chemo at my med center. Lots of people who told me side effects.... They had a fancy dinner put on by the drug company last night so they all would know about it... :) Funny, no one gave ME steak and shrimp. Anyway, got hooked up to some saline as usual (altho, my onc's nurse…
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Immunotherapy
I had my cardio cat scan everything was good, so why is my LVEF low? I must get back to treatment I worry my cancer will come out of Remission!
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Debra trial deescalating radiation for invasive DCIS
I recently was diagnosed with invasive DCIS and my surgeon told me that there is trial called the Debra trial I may qualify for. I have invasive DCIS stage 1 grade 1 ER+ and HER2- and it is smaller than 2cm. This so far qualifies me and the next step is to see if my oncotype gene score is between 1-18 and also would need…
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CRP Protein High
Hello, After being on letrozole for a few years, my CRP levels are high. They think that there is inflammation, I do have lymphedema but my Crp has never been high, Has anyone experienced this?
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Pain under left arm for last couple of weeks and am getting concerned
Background - I had a double mastectomy for stage 2B lobular breast cancer in December of 2012 followed by chemo and anastrozole ,and a lumpectomy for DCIS and radiation five years prior in 2007. Due to severe complications with the double mastectomy I was hospitalized for a month and came home with a pretty big dog ear on…
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Life does not end with a stage IV diagnosis (really!)
Our sister, kayrnic, started a thread celebrating being 2 years (hooray!) out from her stage IV dx. I was thinking along those same lines when I read her post. So often, those newly dx'ed stage IV, think they've been handed an immediate death sentence and panic or plunge into some very dark places. This is understandable,…
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Awaiting results for stage 4 mets to liver and lung
Hello All. I was diagnosed with stage 3 BC 16 years ago and had mastectomy, chemo and radiation. Have been in survivorship program for 15 years. Persistent cough took me to Er last week - CT showed multiple lesions in my lung and liver - dr thinks it is metastatic spread to organs. Had a liver biopsy yesterday. Awaiting…
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BioZorb Recall
I want to let all of you know that have had a BioZorb implanted during your breast cancer surgery that the FDA has recently made a Class 1 Recall on the device. This is the most serious FDA Recall possible. Google BioZorb Recall, Hologic BioZorb recall, FDA BioZorb Recall and you will read a lot of information about the…
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Hematoma
So……. Had my follow up with my breast surgeon today 2 weeks post lumpectomy. I’ve been having increased pain and swelling and generally feeling like crap. I can feel quite a large lump that starts over the incision going all the way down to my stomach quite painful! My lump was near my cleavage at the 8 o’clock position…
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Enhertu
good morning wondering how many people lost there hair on enhertu ?
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ANGIOSARCOMA RECURRENCE AFTER 20 MONTHS...
2017- Original diagnosis lump right breast, lumpectomy, radiation. 2021 - husband diagnosed with Alzheimer's due to Agent Orange. Dec 2023 - Angiosarcoma diagnosis due to radiation. 2024 - Chemo, no radiation, double radical mastectomy with flap on right side. First recommendation mastectomy on right breast only. Got 2nd…
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Early Stage Breast Cancer - anyone on Letrozole and Ribociclib?
Wondering if anyone has been diagnosed with Early Stage Breast Cancer and on AI/Ribociclib regimen? I’m going to start after radiation and wondering how your treatment is going and if there are any tips out there! Thanks in advance!
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Trodelvy - Looking for positive feedback
Good morning everyone! I have been fighting this battle since 2004 when diagnosed with Stage 2 B breast cancer with metastasis to one node out of 15. After a partial mastectomy and taking Arimidex for 8 years, was in remission until 2019 until it came back with a vengeance to a Stage 4 with mets to my bones and a lesion in…
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Leaving Stage 3 for Stage 4
I was hoping to make the 5 year mark this summer, and add my name to the list of those who did make it, but I found out yesterday afternoon in the ER, that the cancer has now spread to the bones in my chest and spine. Not sure about next steps, as need to get in touch with oncologist for "new plan", but not looking good…
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Fun Game -- 5 Letters Become a Sentence
Leave five letters and the next person will make a sentence out of it. Like ILRWS becomes I love running with scissors. Or Ill Llamas rarely welcome snacks. Next up is WCLFE
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Multiple skeletal Mets Strongly ER positive BC originally now showing as TNBC
originally diagnosed IDC grade 2 , stage 3A HR+ with Allred score 8/8 and HER2- at the age of 46, 10 years back . Surgery, chemo and radiation therapy done as part of treatment followed by 5 years of tamoxifen followed by 5 years of letrozole and Zolenic acid. Now got bone pain few months back. When done pet scan and MRI…
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Surgery scheduled for December 2025? Join the surgery waiting room for support!
Are you scheduled to have a lumpectomy or mastectomy in the month of December? Join us here where we support each other as we prepare for our surgeries, ask questions about what to expect, share reservations and fears, and support one another through preparation and recovery. And, we encourage others who've "been there" to…
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I just got diagnosed at 68, is this bad? Stage III (ER+, PR -, HER2 -)
I'd like to connect with people who have a similar diagnosis. • Primary tumor in the breast:
Invasive lobular carcinoma ILC
ER 95% positive
PR negative
HER2 negative
Ki 67 >10 • Cancer found in the axillary lymph nodes:
Invasive ductal carcinoma metastasis
ER 95% positive
PR negative
HER2 negative
Ki 67 >30
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Hormone blockers
I am supposed to start an aromatase inhibitor. I am 72 yo and am concerned about the joint pain and damage to bone density. I have been reading about the supplements DIM and CDG as an alternative and I wondered if anyone is using either or both of these and what is your experience?
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(Seek Help) Long Term Luminal A BC transformed into TNBC (Surgery done and under chemo)
Hi everyone who sees this post. I am posting this for my mom's circumstance. She has been diagnosed with breast cancer since 2007, which was luminal A category. She had reoccurance in 2016 and has been living as a metastasis patient since then with hormone therapy. Recently she has been newly diagnosed with a TNBC cancer…
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I say YES. YOU say NO....Numero Tre! Enjoy!
A little birdie told me to come back and save the day......
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Staying flat after nipple-sparing double mastectomy?
I'm curious if anyone has made this decision, and if they had subsequent surgeries to tighten up loose skin or fill in any concavity? I had my nipple-sparing DMX in Sept 2025, with the initial plan of reconstruction. However now that I am wrapping up chemotherapy, I am considering remaining flat. I'm not sure what to do…