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Any one with Bone only Mets with ER/PR discordance?
strongly hormone positive originally 10 years( 46 years age) back IDC grade 2, stage 3A 5 years tamoxifen , 5 years Letrozole with Zolenic acid Multiple bone mets 1 year after stopping letrozole Bone biopsy came triple negative . Very concerned :(
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Recurrence after Mastectomy, then positive margins
Hello, I am hoping to connect with people who might have a similar situation to mine, although I think (?) my situation might be on the rare side. Six years ago I was diagnosed with Stage 1B IDC. I am BRCA2. I did a double mastectomy with reconstruction (implants) and was told chemo/radiation not needed since my tumor was…
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New and Confused
45yo Newly diagnosed with ILC Stage 1A and LCIS. Us found 1 tumor at 6mm. MRI biopsy found a 2nd tumor at 7mm with Lcis. Will be getting double mastectomy with reconstruction. All the waiting in between has caused so much anxiety and stress. Genetic were negative and no family x of bc. ++, her- Do you feel a sense of…
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I am not grateful to my oncologist and care team
I am facing my last treatment for triple positive breast cancer next Thursday. I had heard that ending treatment can be difficult and I have been trying to prepare myself by building other support outside my care team. However, I find that the biggest problem is the reckoning with what has happened to me. There have been 5…
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Double Mastectomy without reconstruction
Hi, I was diagnosed in July 2025 with TNBC. Stage 2a. I have gone through my 12 cycles of taxol/ carbo/ keytruda. My AC/ keytruda was stopped it landed me in hospital during Thanksgiving. I am scheduled to have a double mastectomy without reconstruction on 12/30/2025, I am a little nervous and trying not to be depressed.…
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HRT with ADH
I was diagnosed with ADH 11 years ago. Recently I have been going through perimenopause and have been having hot flashes along with other symptoms. Has anyone been put on HRT and had issues with it causing any issues with your breast health?
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Just Diagnosed? Start Here
If you have just been diagnosed here are a few places to start from the main Breastcancer.org site: * Understanding your pathology report * Before Treatment: Planning Ahead for Survivorship * Breaking Research News about Planning Your Breast Cancer Treatment Also, a great thread chock full of advice for those just…
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Nervous about switch from Letrozole to Exemestane
Hi - I have been on Letrozole for 2 years (invasive ductal carcinoma, node positive, did chemo and radiation, double mastectomy and oophorectomy...was diagnosed right after my 46th bday). Recently I've had neuropathy for the first time (it moves around/switches which limbs it affects...strangest thing). Ruled out…
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Side effects from aromatase inhibitor other than joint pain.
I started on Anastozole (Arimidex) a little over a month ago. I know there are two others that are often given to post-menopausal HR+ women, Aromasin (exemestane) and Famara (letrozole). The joint pain and menopause like symptoms are what are mentioned most in articles. Although I've had some wrist pain, which I understand…
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Anyone starting brand drug, Enhertu?
I have had growth of tumors while on current treatment. My onc and I have decided to try new treatment, Enhertu (FDA approved 12/20/19)! Wondering if anyone else out there is trying or was in trial? Julie
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tamoxifen side effects--25 years post menopausal
hi there! diagnosed in august with idc, lumpectomy and mammaoplasty (bilateral breast reduction), finished 5 fraction whole breast radiaiton on Dec 5, just started tamoxifen yesterday, 20 mg . didn't really expect side effects this soon, but… felt just generally weird both yesterday and today; sneezed a lot this morning…
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Cold Caps Users Past and Present, to Save Hair
Hi all, I wanted to start a forum for all us that are using the cold caps to try to save our hair. I am on FEC100 X3 followed by Taxotere X3. My dosage unfortunately is not a guaranteed success. I am 40 days out from my first treatment and will have my third June 17. So far I have thinned but have not required a wig. I…
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Métastases cérébrales (brain metastasis)
Bonjour, J’ai eu Phesgo pendant 8 mois pour une métastase au foie. Réponse complète métabolique. J’ai fait une crise d’épilepsie début janvier 2026 et on a découvert des petites métastases cérébrales. À venir Stéréotaxie et Enhertu … je recherche des témoignages, j’étais en pleine forme , prise de sang ok …. J’ai besoin de…
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Now Enrolling: Cognitive Outcomes & Partner Engagement in Metastatic Breast Cancer Study
Enrollment for Cognitive Outcomes & Partner Engagement in Metastatic Breast Cancer Study at the University of Texas at Austin has started. Through this remote study, we hope to understand how individuals living with metastatic breast cancer, along with their partners, deal with cognitive symptoms during their everyday…
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Faslodex Girls Thread
Tips for taking Faslodex without pain: ABSOLUTE MUSTS: * Warm up the syringes. At least room temperature. Armpits work well, as does belly skin. * Take the weight off the leg on the side of the shot. Relax that cheek/leg as much as possible. * Inject SLOWLY! It should take at least 30 seconds to empty each syringe. General…
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Just had my lumpectomy today
I think it went well. Some initial pain that is manageable with Tylenol and advil. Looking forward to recovery and next steps!
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help! vagifem no longer working :(
Forced medical menopause at age 31 (first with Lupron, then ovary removal due to cancer/BRCA1). In the beginning, using vagifem 2x/week worked amazingly. No pain or dryness. Over time, I had to go to 3x/week (highest safe frequency), and add all kinds of things the other nights: coconut oil, vit e, Replens, Revaree, KY…
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Birads 5 with calcification
I’ve been hesitant to post because I didn’t want reality to set it but here I am. I’m a 33 year mother of 3, youngest is 6. Just like most of the ppl in the group, It all started with me noticing a lump. I took action almost immediately. I made an appointment to see my primary doctor which took me 2 weeks to get in. I…
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BioZorb Recall
I want to let all of you know that have had a BioZorb implanted during your breast cancer surgery that the FDA has recently made a Class 1 Recall on the device. This is the most serious FDA Recall possible. Google BioZorb Recall, Hologic BioZorb recall, FDA BioZorb Recall and you will read a lot of information about the…
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Shopping/packing/to-do list for surgery + recovery....
OK, I admit it, I am a compulsive planner. I have had some great suggestions and tips not only regarding what to bring to the hospital, but also on how to prepare the house to make the recovery as easy as possible. I am travelling for surgery so, for me, "packing" includes the first 10 days of post-op care. I thought I…
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GOLDILOCKS MASTECTOMY (aka SWIM reconstruction)
anyone has experience with Goldlocks mastectomy? Please share your experience Thanks
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How can they tell the difference between osteonecrosis of the jaw & osteoradionecrosis?
I am in the early stages with a periodontist about puss in my gums. I have not had any dental issues before and get my teeth cleaned twice a year. The periodontist thinks I have osteonecrosis of the jaw from using XGEVA and have caught it early. I saw him in December and will go back in a few days for my second…
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How are people with liver mets doing?
I continue to be very scared once I found my liver mets progressed after having to go off doxil. I am hoping to find some support in alleviating my deep seated fears by hearing other stories of people living and dealing with liver mets. My onc says I have such a petite frame (105) that an enlarged liver will definitely…
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De Novo Stage IV
I'm wondering if there is a topic just for de novo Stage IV. I'd like to know how people found out. Did you have symptoms that led you to the doctor for an answer? Was it found out of the blue when you had another issue and how was it found? Are there others like me who have never shown it in your breast but only where it…
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Er+ Pr- her2- survivors?
hi. I’m really reaching out to see if there are any long term survivors of this type of bc. Online Google searches have me pretty scared. I’m 42. My oncotyoe was 21. Node negstive with stage 2A.
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Annual MRI Results - Extramammary findings?
Hello Everyone, I just turned 40 and alternate MRI and Mammogram/Ultrasound every 6 months due to family history. So far, they have been benign. This one says benign, but mentions "tiny bilateral pleural effusion". When I asked Dr. Google (I know…) about it, I saw both that this can be an indicator of really bad things,…
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Life does not end with a stage IV diagnosis (really!)
Our sister, kayrnic, started a thread celebrating being 2 years (hooray!) out from her stage IV dx. I was thinking along those same lines when I read her post. So often, those newly dx'ed stage IV, think they've been handed an immediate death sentence and panic or plunge into some very dark places. This is understandable,…
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fatigue
how do you deal with the fatigue and no appetite
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DCIS Stage 0 High Grade HR+
Hello to all you brave women!! I just joined this site and am making my first post. I am hoping for guidance and advice and what anyone else has done as I am feeling anxiety and some stress about what to do. I am 55 years old and was diagnosed in June at 54 years. (I just had a birthday in Oct) As in my title I was…
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Who's starting Radiation in November 2025? Let's gather here to share!
Are you scheduled to start radiation soon? Let's make a space where we can encourage each other who are traveling radiation road together — share experiences, get tips, ask questions and get answers from those who've "been there." We encourage you to share your diagnosis, any previous treatment you've had, and your…