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I am between tests..
I was just diagnosed with breast cancer from a biopsy and waiting for full pathology report The ultrasound found the following 1.6cm longest side of tumor “No enlarged or suspicious appearing lymph nodes in the right axilla” if my tumor is less than 2cm and lymph nodes appear to be clear I would be Stage 1A…. I know more…
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Interpreting Your Report
***Edited by Mods to add: Unfortunately DJMammo has stepped away from the Community for personal reasons. Please do not expect an answer from him directly. However, you can still post here in an effort to get help from our other amazing members!*** Mammogram and ultrasound reports contain (should contain) a fairly specific…
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Anyone with Rotter’s Nodes Metastases??
My surgical consult thinks my recent recurrence involves the Rotter’s Nodes and surrounding pectoral muscles . They are trying to come up with a plan to treat it locally but everyone seems to be scratching their heads about how to approach it. I am now being sent to a thoracic surgeon for a consult. Not instilling a lot of…
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Have a lump with negative mammogram and Ultrasound but MRI shows Non Mass Enhancement
Good afternoon, After noticing a lump about 1.5 inches around in my left breast, I went for a mammogram and ultrasound which showed nothing. Because I have extremely dense breasts and there is a palpable lump, they sent me for an MRI with contrast. It came back with the following results: "Left breast: There is extensive…
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What counts as "active treatment"?
What counts as "active treatment"? I'm honestly asking, since I am in that weird liminal zone between "done with surgeries" (I hope), but "still taking meds."
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Are you currently (or have you been) in a Clinical Trial?
I am about to start a clinical trial and am wondering about the experiences of others. I'm feeling a little rocky and at sea, because I've been in the care of a wonderful oncologist for the past three years, and I knew without a doubt that his prime objective was the same as mine - to keep me stable and maintain a good…
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patty
Does anyone have info on Patty? Haven't seen her here for awhile.
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Embracing What Matters Most After a Metastatic Breast Cancer Diagnosis
Embracing What Matters Most After a Metastatic Breast Cancer Diagnosis Mar 1, 2024 Grief counselor Kelly Grosklags helps Melissa Jenkins moderate a special Virtual Community Meetup on embracing what matters after being diagnosed with metastatic breast cancer. Living with metastatic breast cancer can bring many changes,…
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Looking to connect with other young ladies with MBC
Hello I’m new here, I’m 33 Diagnosed in 2022 stage 3 DIC, 5/19 axillary lymph node involved, ER+, HER -. I did 5months chemo, double mastectomy, radiation. I’m now on verzenio and anastrozole. I fell well so far. On my recent routine blood work my ca 27-29 goes up from 26 to 44 Unfortunately Scans show multifocal bone…
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Lobular Sucks!
Invasive Lobular Cancer (ILC) manifests very differently from the more common Invasive Ductal Cancer (IDC). It is considered an "old lady disease" and I should not be having to deal with it at my age, but here I am. It was difficult to scour the boards for patients like myself in order to learn from the experiences and…
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My Sister/BFF newly diagnosed with breast Cancer
Hello All my name is MsPhil long time member here. Praise God I took had breast cancer now a 30yr Surviver. My BFF/Sister diagnosed last month with DCIS stage 0 we saw oncologist Monday to see surgeon suggest Mastectomy as I took had. Please keep her in prayer as I have always kee All here in Prayer. Thanks
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5mg tamoxifen
Hi New here, just finished 2 surgeries and 15 radiation treatments dcis gr 1-2 Er/pr+ her2 neg. I am 65 Just going to start 5mg tamoxifen next Monday Apr 22. Hesitant when they did the pathology on my sample which was very small I had a slight break in one of the Ducts so that changed me to invasive but it was microscopic…
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Let Down Feeling...Not pregnant! HELP!
Hi. I'm 37 and have been having pain in my left breast as well as a very disturbing "let down feeling" in both breasts. I have nursed three children so I'm very familiar with the feeling. My youngest is 7. I had 2 fairly large cysts drained from my left breast in Oct 2016, and a fibroadenoma removed from the right in Nov…
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My BIRADS 4 experience, please have Faith
I had been having pain in my left breast for almost a year, until I decided to request a mammogram. I’m 39 years old, with no history of BC in my family. March 11th was my mammogram and they wanted to do a ultrasound right then in there too, before I left I was told “we found a mass and it needs to be biopsied” my world…
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Looking for hope
Hi, I am 45 and just recently had my first Mammo. I have very dense breasts which led me directly from mammo to ultrasound. The tech told me at least 5 or 6 times that my right breast was very “angry” and she understood why it was hurting. I have a biopsy scheduled for Thursday (one week after mammo/ut) and of course the…
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Tissue Expanders- I hate them!!
I had surgery on Monday and they put in tissue expanders and down the road plan to do the DEIP flap. I’m really starting to regret my decision on the TE’s. Do they ever get more comfortable? The one on the right feels like it’s over too far and affecting my right arm mobility. And have constant aches and pains associated…
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Anxiety about coming off Tamoxifen
Hello! I haven’t posted in a while, but I have been on Tamoxifen for almost 5 years (May of 2024 will be 5 years) and my oncologist has talked about me coming off in May, and all of the sudden, the anxiety is real….. I feel like this drug has been like a security blanket for the last five years. I also understand that…
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Waiting for Surgery- what’s next? Ugh!
I was recently diagnosed with early stage grade 2 or 3 (there were two looks) IDC with DCIS characteristics (whatever that means) HR positive, HER2 negative, ki-67 40% high. back in 2021 they saw a spot, did a second mammogram to conclude it was benign breast tissue. 2022 same spot noted but disregarded because previous…
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How Many Stage 4 Girls are getting SS disability..
Seems like a lot of stage 4 US citizens are getting Social Security Disability Insurance payments. So lets see how many there are! If you were denied, please comment if it was for medical issues. My understanding is denials are more "not paid in enough" issues than medical. PLEASE TAKE POLL ONCE ONLY!
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AI or targeted therapy failure?
Hi there, Just wondering how one knows which medication failed if you are taking a targeted therapy and an AI? My sister is on Ibrance and Letrazole and MRI was clear on spine in November and now a 19 mm spot on T2. Her tumour markers have also been slowly rising. Her cancer is lobular, estrogen positive, progesterone…
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Bone strengthening meds
what is the protocol on prescribing bone strengthening meds for women on aromatase inhibitors to prevent recurrence?
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Life After Treatment: Hair?
Hey all, First I am extremely grateful to be alive. Given the choice to go through chemo and preventative hysterectomy, I would happily do it again without any questions asked about my hair. But at the same time I thought to ask the question, and maybe some of you might have some resources for me that are safe and not…
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Anyone on TRUQAP?
Hi all, it looks like I'm going to be starting TRUQAP soon as an alternative to Piqray. However, it looks like TRUQAP and Piqray both come with some pretty nasty side-effects. I was hoping T would be easier than P. From what I've read, it sounds like Imodium AD may become my newest friend. Yuck! I was hoping for an easier…
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Stage IV MBC Fitness
Hello! Welcome! We are done with Stage IV, moving on and planning to staying healthy for a long time. We're Stage V (Which is not dead. We're doing fine, ready to live with this beast.) This is the American Cancer Society/NCI consensus on exercise for cancer patients. * 150 minutes/week moderate-intense aerobic exercise or…
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Pros/cons to continuing reconstruction surgery
Good day to all my fellow Warriors! I’m a 65 year old woman who had a bilateral mastectomy with breast tissue expanders for future reconstruction surgery, on 3 26/24. The JP drains were removed on 4/4/24 and my first saline injections to the expanders, was doe on 4/11/24. On 4/12/24, I developed a low grade fever and their…
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leptomeningeal metastasis
so I have been diagnosed with them (lesions in posterior cerebral fossa on cranial nerves and in spine). chemo changed for Enhertu trying to stave off a disease while the preparations for intratecal chemo via Omaya reservoir going. Looking back in the hindsight there were symptoms of it in August, just not visible on…
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Starting Chemo July 2019
I think it’s time to start a July Chemo thread.. who’s on board? I having my port put in on July 23rd and chemo on July 24th. I will be having Taxotere, carboplatin AUC 6, Herceptin and Perjeta for 9 treatments every 3 weeks before surgery. Good luck to all
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Numb toes
I'm starting a new thread because I don't see anything recent in the discussions. I've been having a weird feeling in the bottom of my feet. I don't even know how to describe it. Now, I'm noticing numbness in the toes in my right foot—mostly the little toe. It doesn't hurt, and I don't think it's neuropathy like I had when…
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Question
I am thinking of stopping chemo. I’ve got through 3 cycles of TC but have had a shocker of a side effects ride. This chemo was oncotype score 41 driven as catching any left or mop up. my grade tumour was 3 but node negative. I’ve had two surgeries and will have radiotherapy next. Anyone else got to 3 of 4 chemo and…
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Primary lung cancer after treatment with chemo
Just read this article - https://www.epicresearch.org/articles/women-with-breast-cancer-especially-those-who-received-chemotherapy-at-increased-risk-for-subsequent-lung-cancer Apparently new information has come out showing a higher rate for primary lung cancer after breast cancer treatment with chemo. Something like a 57%…