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Pathology Results
I saw my surgeon this morning, two weeks post lumpectomy and SLNB. Here are the results: 24mm IDC and DCIS (larger than previously imaged on MRI and mammogram)Margins are clearLymph nodes are negative Grade 3I don’t know if I need chemo yet, that will depend on mammaprint and oncotype results I hate that I know all these…
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2023 ASCO abstracts
All abstracts…
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All about Xeloda
I will complete my first cycle of Xeloda today (2 weeks on; one week off). I have already noticed some signs of HFS on my feet. Sometimes they are red and feel hot. I've had some minor skin peeling, but not any blistering. The heels are the worst (the most sensitive) and it is uncomfortable to walk. I hope I get to see the…
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Long time stage 1 survivors
Hi, need to know long time stage 1 survivors. How many years since diagnosis and NED. ( No evident of disease and metastasis)
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TRIPLE NEGATIVE (Age 74) Lumpectomy (twice) ONE positive sentinel node - REFUSING TREATMENT
Good day, I'm writing on behalf of my 74 year old mother. She was diagnosed February 2023 with Invasive Ductal Carcinoma and Ductal Carcinoma In Situ (IDC & DCIS). Triple negative was our diagnosis. Ki67 is 20-25%, Grade 2, Apocrine features. First lumpectomy - (March 2023) clear margins, one out of six sentinel lymph…
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I'm thinking about discontinuing all doctor visits.
I'm three years out, had stage 1, grade 2, lymph node negative, Oncotype 7 IDC with DCIS. I had a mastectomy and proceeded to go through a year of hell on hormonal meds until I stopped those. The doctors told me that until I reach year 5, I need to see my breast surgeon ever 6 months, my oncologist every 6 months, and my…
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Ibrance (Palbociclib)
A bottle of Ibrance came in the mail today. I will start taking it tonight with Femara. Hoping that others starting on this drug will join me here to talk about side effects and how to avoid or treat them. So far, I've been warned about low white counts. I run very low as it is, probably because of my extensive bone mets.…
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Bone Mets/PAIN
I apologize if there's already a thread on this topic, but I'm still having a difficult time navigating this new format. I've tried the search fields, but it's not directing me to a common thread. Anyway, I'm having a BAD pain day. Bone mets basically everywhere in my chest cavity. RIBS especially, sacrum, etc. I'm on…
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“Last” chemo feelings
Hello everyone who has finished chemo! It’s my last chemo in a few weeks. I know I should be happy after five months of it but I’m having a hard time thinking/believing it’s the “end” of this particular treatment (my surgery is in July) - I feel I have a bullseye on my back, it’s going to get me again (various “bad”…
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Pathology report - better, worse or as expected?
Hi everyone, I have a date for my surgery in July (eep!) and I was wondering how final pathology went for you all compared to what you knew/believed about diagnosis at the point of surgery, ie was your report: ⬇️ Less favourable (more lymph nodes positive, larger tumour, more tumours, etc than you initially believed) ↔️…
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FEMARA
I STARTED TAKING FEMARA ABOUT 2 WKS AGO. WHEN DOES THE SIDE EFFECTS START TO KICK IN Edited by Mods to add content from the main Breastcancer.org site on Femara: Benefits, Side Effects and More
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ABC Game
Hi ladies it's easy and fun someone starts a topic and then we go down the alphabet the person who has Z then starts a new topic and we start all over again. Let's have some fun here girls! Ok here goes the Topic is Body Parts A is for Arm
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Kisqali side effects
Hello.. I am on week 3 of the first cycle of Kisqali. I have had the dosage lowered to 400 due to gastrointestinal side effects. The stomach cramps are terrible. I have tried dycyclamine, mylanta, gas x, pepto, and other over the counter and nothing helps. I also use a low setting heating pad which does help. I do have…
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Tamoxifen side effects; when do they start?
I have been on Tamoxifen for almost 8 weeks now and have yet to really have any side affects. My oncologist told me it takes about 4 weeks for them to start showing up. I've had some cramping but I had my IUD out the day before I started taking it. So that could be the culprit of the cramps. No hot flashes, maybe some…
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CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
I'm hoping there isn't another thread like this. I did a search and saw one for stage 4, but nothing for everyone else. My very special friend on BCO (Tomboy), and I have talked about a Crazy Town thread for awhile now. I know she will be happy I finally took the bull by the horns!! I wrote a little story about visiting…
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Breaking Research News from sources other than Breastcancer.org
I watch for research news on breast cancer, treatments, etc., and frequently see interesting articles. There is a topic on BCO called "Breaking Research News from Breastcancer.org." One of the moderators suggested that another topic might be appropriate for posting links and synopses of reports on research found elsewhere.…
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Looking for anyone stopping Tamoxifen after 5-10 years?
I am finally finished with Tamoxifen after 9 years. I wanted to reach out to others to see how they are doing weaning off the drug. The hot flashes, which was my main side effect seemed to have slowed down so I don''t have them as often. Wondering how anyone else was doing. It's been a long haul. Anyone who is still on…
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9 Years Out - Stage 3
Hi guys! On November 18, 2010 I was diagnosed with Stage 3 breast cancer - 5 cm tumor, loads of lymph node involvement, IDC & ILC and triple positive. I did ACT, double MX, Herceptin, and have been on Tamoxifen ever since. Still cancer-free today! I'm posting this because I know that there is someone who was just diagnosed…
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Anyone living or recurrence free after 10 years?
I received Neoadjuvant chemo then bx mastectomy. I just got my pathology report and am pretty devastated by the amount of residual cancer left and comparing the stats on the Rcb calculator. Anyone able to provide any hope?
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Post Radiotherapy treatment
Hi everyone just a quick question. I finished Radiotherapy 2 weeks ago and I have a patch of skinon my armpit that is red roar and today has started weeping. Cannot get hold of Oncology team now til Tuesday. Any ideas for short term help Thanks everyone
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Anyone ER+ 1-10% weakly positive, PR- , HER2+?
Hello, Anyone is ER+ 1-10% weakly positive, PR-, HER2+ ? Do you take anti-hormone pills for ER+ 1-10% weakly positive ? thank you Applejj
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My oncologist and disability opinion
I was originally diagnosed with 2B (++-) in 01/2014, 8 dose dense chemo, and 45 rads treatments. In 11/2021, I was diagnosed with MBC to pleura. They started my on Faslodex in 11/2021 and added Ibrance 9/2022. I’ve had a treatment failure and now have started Xeloda. The oncologist ran a Guardant 360 and the results…
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Unclear about Oncologist’s treatment plan
I am so happy to have found this forum. I have read so many conflicting accounts of how to treat ILC that I don’t trust my oncologist’s plan. I have ILC - classic with Pleomorphic features, Onco DX score 16, tumor 7.7 (but really two masses measuring ~5 cm total and cancer cells in between them), no nodes. I had a…
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Lymphedema self massage
Hi ladies! I wanted to share a link to a self lymphodema massage treatment that has helped me and my neighbor who also had breast cancer. Please ok it with your doctors before trying it, because our situations are all unique. I had a lumpectomy with node removal Mar 2021. I was able to see a lymphodema therapist soon after…
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Just diagnosed and started treatment for ILC (pleomorphic)
Hi. I have recently joined this forum as I was dx with grade 2, Stage IlB ILC (including LCIS and DCIS) in my left breast. I'm aged 49 years and apart from being a femaie, I don't bear the obvious risk factors for BC. So this has come as a shock to me! My surgery was a week ago. The histopathology showed that the margins…
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Flying after surgery
Hello friends, I am flying to MD Anderson in Houston in a few days for a double mastectomy (without reconstruction) and I had a few questions about post operative recovery. * How long do you think I will need before I am able to to handle a 3 hour flight? Our surgeon said the next day, but that seems way too soon for me. I…
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Elevated CA 15-3
I am so sick of worrying about every little thing! Has anyone experienced this or have any knowledge of this? Had my blood work done and my CA 15-3 came back at 35, last time it was 27. I am told 25 is normal. All my other numbers were in the normal range. My onc wanted me to get a PET scan, but then her nurse said to me…
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Podcast: Treatments for Implant-Associated Anaplastic Large-Cell Lymphoma
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Under 45 with MBC Zoom Meetup: Place to keep chatting
This is a space held for our Zoom Meetup members to gather in between meetings for updates and support. Please remember to favorite/bookmark this thread for notifications of new posts If you haven't joined the group yet and just found this thread, feel free to join our virtual meet-up! Young (45 and under) with metastatic…
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Podcast: Cancer Ghosting: What It Is and How to Respond