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introduction and looking for people to connect with
Hey everyone! I have been in this "journey" for quite a few months now and have been feeling increasingly isolated. I was diagnosed at 25 and am currently 26 years old. I was diagnosed with invasive ductal carcinoma in the fall after a long journey to be seen properly for the lump I found. Once I was officially diagnosed,…
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Stage III Cancer Survivors........20+ years and out
I was waiting for someone else to start this…..but I guess it will be me:))))). Oh how I wish there was this thread when I was diagnosed. I had a huge tumor…8cm… with at least 17 nodes positive….some with cancer just bursting out of them….and a bit in my skin. My prognosis was poor and as I traveled from oncologist to…
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💛March 2026 Chemo Check-In: You don't have to do this alone!💛
If chemo starts for you this March, let this be your sign to step in and say hello. 💛 You do not have to face this chapter quietly—or alone. This space is here to hold the real stuff. The anticipation. The fear. The courage. The logistics. The “how is this going to work?” thoughts at midnight. However you’re…
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Help with Helping Mom
Hi all, My mom was diagnosed with breast cancer ER+90%, PR_70% HER-2 2+ on IHC and FISH negative in 2011. Remission in 2012; mets in her hip in 2020. She was on Ibrance for five years, and then they found fluid in her lung a few months ago. They found it after a fall where she broke her hand and bruised her leg, so they…
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Intense itching on side of reconstructed breast
I am curious if anyone else has had sudden intense itching around the reconstructed breast area. I am three years out from a LD flap reconstruction and I may have had a little tiny itching here and there, but suddenly tonight is so intense! I have no feeling on the skin in that area so scratching certainly doesn’t help.…
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Tiredness and dose reduction kisqali
hey everyone. my first post. I am 18 months into treatment with stage 4 in bones. Ive had a couple late starts on treatment due to neutropenia and a gross gastric event shall we call it. anyone else really tired sometimes on this stuff?? I’m lucky fortunate to have stability on this stuff and very grateful for that but it…
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Breast reduction
Hello. I had breast cancer treatment (lumpectomy, Chemo and radiotherapy) 20 years ago. For 19 years I have been very unhappy. I have one breast that is significantly larger than the other one. It is very depressing! I have brought special bras, padding, fillets etc but nothing works. Does anyone know if the NHS would…
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Radiation benefits & Risks for early stage cancer
Hello, I am preparing for lumpectomy and then radiation/AI expected. Despite bilateral the surgeons feel I am a good candidate. Any suggestions on where I can get risk/benefit analysis for radiation treatment? I am 58 bilateral IDC/DCIS Grade 1 T1b no nodes ER/PR+ Her2neg No BRCA genes and low Ki-67 I have spoken with…
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Advice on single or elected double mastectomy
Hi everyone, I’m 49, a mum of two young kids, and have been diagnosed with ER-positive, HER2-negative breast cancer in my right breast. It’s quite extensive, so I’m scheduled for a full mastectomy soon. My surgeon has recommended a single mastectomy, but has said they would support a bilateral mastectomy if that’s what I…
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12 Years of multiple callbacks
Twelve years ago I had spontaneous nipple discharge from my right breast. Following a mammogram, ultrasound, and biopsy, I ended up having a lumpectomy to remove an intraductal papilloma. All was good until 6 month after the surgery and the spontaneous discharge started again and continues still now, 12 years later. No…
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Hormone blockers - looking for others like me
This discussion was created from comments split from: Connect with others by creating your profile! Here's how..
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Premenopausal and Starting Tamoxifen -- Looking for an Ongoing Chat
I took my first dose of tamoxifen last night and am feeling so much dread around it. I put it off due to avoidance and confusion around the small impact that taking it has on my future recurrence rate (4% vs 8%). Looking to find peace in this journey and am wondering how others have figuratively 'swallowed the pill' of…
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Hormone Therapy - this counts as hard!
Shared with gratitude to the original author, Kylie Dahl. Expressing what so many of us feel but aren’t always able to put into words. “No one warned me that this part could hurt like hell. I’m on Herceptin and a hormone blocker, and the joint pain is relentless. Hands, hips, knees, shoulders, back, feet stiff, aching,…
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Use of Signatera testing in stable disease
I just had my latest scans, and I am still stable with my current treatment plan- Lynparza, Lupron, Xgeva. In fact, the scan said "no evidence of metastatic disease in the abdomen"- I had tumors in the liver we were monitoring. I ask my MO if there was any way to monitor molecular progression- progression before it is…
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Breast cancer and work
I was diag 3/17 tripple positive IDC with aggression my treatments are aggressive chemo. Then surgery then radiation....had 2st round chemo 4 days ago and I work as a nurse in LTC. Is this doable? Anyone experience? Im already so exhausted and afraid to work make it worse
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Considering no more Anastrozole
I am 56 years old. Healthy. Work out 3-5 days a week (walking, weight bearing exercise etc. ) I was diagnosed with invasive ductal, hormone positive HER2- , T1 in December 2025. Lumpectomy removed 9 mm tumor with clear margins. Radiation completed successfully. MO advised that after surgery and radiation I have prevented…
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Realistic looking custom wigs
Bout to start treatment in the coming months. Hunting for a good, high quality, realistic looking wig. Found a couple promising ones (ie wigs by tiffani and high definition hair). Seems the one closest to what I am looking for is High Definition Hair (highdefinitionhair.com). They seem to be custom made wigs (custom…
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Tumor Marker
hi all – new here. I am HR positive her2- with one met to my bone. I had chemo, double mastectomy, radiation to my bone and chest/ breast and my ovaries removed. I am on letrozole and have done 1.5 cycles of kisqali. On a break bc of numbers. I started getting g my markers checked in January 1x a month and they are below.…
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Ca 27-29 Tumor Markers increasing
I am freaking out! My oncologist does tumors markers as part of my regular bloodwork every 6 months or so. I have always been in a range of 12.5 to 17.5 on my CA 27-29 for the last 6 years. But my numbers have been increasing over the last 4 times (about a year and a half) from 13.6 to 20.6 on September 14. It jumped from…
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Faslodex Girls Thread
Tips for taking Faslodex without pain: ABSOLUTE MUSTS: * Warm up the syringes. At least room temperature. Armpits work well, as does belly skin. * Take the weight off the leg on the side of the shot. Relax that cheek/leg as much as possible. * Inject SLOWLY! It should take at least 30 seconds to empty each syringe. General…
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Potassium level
Just got a call that test results showed my potassium levels are high. Has anyone else had an issue with that happening? I don't think it is related to the Anastrozole or radiation treatments but it is so hard to tell what causes what, is it the cancer or something else? Hard to know how to try and fix something when you…
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Tamoxifen
taken Tamoxifen my left side neck and shoulder pain and stiff and painful. Any one else have the problem
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Zoom Meet-up for Those With MBC: Place to keep chatting
This is a space held for our Zoom Meetup members to gather in between meetings for updates and support. Join our Virtual Meet-ups! For those with a diagnosis of metastatic breast cancer (MBC; also called stage IV) Register: Mondays at 2:00 PM EST, Tuesdays at 1:00 PM EST, and Wednesdays at 4:00 PM EST Young (45 and under)…
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Waiting for more testing and sad and scared
I have been reading these boards and getting a lot of great information. I am 57 years old and I joined a while back when my mother had been diagnosed with breast cancer, invasive lobular stage 4 which eventually spread to her bones and brain. I was lucky enough to spend so much time with her and be by her side when she…
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eye (ocular) metastasis - a rare location for metastatic breast cancer
Three weeks ago I thought I might have a retinal tear when I woke up one morning with bright flashes in my eye. But my optometrist saw something different. Long story short he referred me to an ocular oncologist and she diagnosed me with breast cancer eye metastasis after almost 9 years NED. It's a rare location (only…
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Stage 2 Breast Cancer.
Hi everyone, My sister was recently diagnosed with stage 2 breast cancer and will be starting treatment next week at Inova Health System in Northern Virginia. Her treatment plan includes 12 weeks of weekly Taxol, followed by Adriamycin every 2 weeks for 8 cycles, and then surgery. I’m hoping to connect with others who have…
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🌟 February 2026 Radiation Roll Call—You’re Not Walking This Alone 🌟
If radiation is part of your plan this February, you’ve found a place to land. This thread is for everyone on the radiation road—whether you’re still waiting on your start date, in the middle of daily sessions, or already looking back on the experience. This is a space for connection, honesty, encouragement, and the kind…
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A new odour
My mother was diagnosed with metastatic breast cancer 3 years ago. She takes letrazole, palbociclib (3 weeks on/2 off) and has Denosumab injections. After being away for a couple of weeks ( we share the same house), I have returned to notice that she has an odour particularly later in the day. It is not incontinence…
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Radiotherapy Delay due to wound dehiscence
Hi I had a lumpectomy on Feb 13 2026 with sentinel node biopsy. All clear. Clean margins etc. I was happy to understand that I need 2 weeks of radiotherapy. I'm hormone positive and her 2 neg. For the past four weeks I have a small wound. Pico helped but I still have a slightly open surface wound on inframmary fold. Not he…
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Anyone else with a grade 3 cancer with ENE?
Hi everyone! I am currently in active treatment. I am so worried about having extranodal extension on my one lymph node. My cancer was 2.5cm and multifocal in my right breast. I had one lymph node positive packed with 1.7cm of cancer and ENE. I am ER+ (95%)/PR+ (80%) and HER2- (2+/FISH negative - Group 4). My cancer is…