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20 year survivors (or more) of triple negative breast cancer
Today is pretty exciting, I am officially a 20 year survivor of triple negative breast cancer.. pinch me!! Are there others out there who have reached this milestone? I wrote frequently on this forum in 2006. I am from Calgary AB Canada, was 42 when diagonsed in 2006 stage IIA, grade 3, 1 postive breast node. Was in a…
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Mammograms
hi all, I know that this is a silly question, but I still have to ask. Do mammograms, especially mammograms that use tomosynthesis (3D) look at the entire breast or one specific area? I had a questionable area, the radiographer place a marker on the top of it, and then took the images. I received a Birads 2 but it makes me…
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Recurrence after 10 years?
Hello, Dx'd with TN cancer 10/27/2015, and then with uterine cancer in 2020. This week, I was taking a shower and felt a lump in my right breast. It is painful to the touch, and it is as though the tissue around the marble-sized lump has disappeared. I know I don't know for sure, but I know —I am sure you all know what I…
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Scares That Turned Out To Be Nothing
Husband here. My wife was diagnosed about 2 1/2 years ago. She is doing well. But that's not to say there haven't been more than a few moments of high anxiety thinking something's wrong or just waiting for test results to rule out a recurrence or mets. I hope it's ok with the great members here that I start a thread that's…
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Long term survivor examples.
Just an idea came across my mind. Can we share stories and examples of long term triple negative survivors. They dont participate in such forums. So its only by word of mouth that we get to hear about them. But I also see few of them in this website, who themselves are long term survivors. I feel so happy to see how they…
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💗 March 2026 Surgery Roll Call—Join here for support! 💗
If surgery is on your calendar this March—lumpectomy or mastectomy—this is your place. 💗 Consider this your official roll call. Whether you’re calm, overwhelmed, full of questions, or riding every emotion at once, we want you here. Post. Introduce yourself. Let us know you’re counting down the days. This thread is more…
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HER2 Positive-anyone 10 years out?
Hi ladies, I was wondering if there are any women out there who are 10 years or longer with her2 positive breast cancer? When I was diagnosed in 2008, my prognosis said '80% chance of no recurrence in 10 years'. Wondered what they based this on, as I have yet to talk to anyone past 6-8 years and they seem to have had…
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Bottle o Tamoxifen
Dear All, (and Layne are you there?) Got my Tamox today and will start in a week. Where are my tamoxi pals? It says weight loss for one of the side effects. Now that's a good thing. Basha Edited by Mods to add content from the main Breastcancer.org site's section on Tamoxifen in Pill Form (Brand Name: Nolvadex): Benefits,…
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Worried about reoccurrence
I am 43 on Tchp. I just did 5 treatments of my 6 yesterday. Plan is to do a bilateral mastectomy next with expanders first because I will need radiation. According to my plastic surgeon, it is not recommended to radiate the fresh tissue with radiation. So after my radiation and put on my drugs depending on my pathology…
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💛 April 2026 Chemo Check-In — Step In, Share, Be Supported 💛
Starting chemo this April? This is your moment to step in and say hello. 💛 You don’t have to carry this quietly—and you don’t have to carry it alone. This space is here for the real experience of chemo. The anticipation. The fear. The courage it takes just to show up. The logistics, the unknowns, the late-night “how am I…
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Nervous about switch from Letrozole to Exemestane
Hi - I have been on Letrozole for 2 years (invasive ductal carcinoma, node positive, did chemo and radiation, double mastectomy and oophorectomy...was diagnosed right after my 46th bday). Recently I've had neuropathy for the first time (it moves around/switches which limbs it affects...strangest thing). Ruled out…
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Hives during chemo and other side effects
I experienced hives on 14th day of 3rd TC cycle. Doctor thinks cause is due to food or skin product. I just want to know if anyone has got similar rash during chemo. Also , is stammering or stuttering a chemo or anxiety side effect.
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STILL Anthology - Celebrating Flat Closure with Fashion Photography
Exciting news to share! The STILL Anthology has dropped. It's a fashion photography project created by the incredible Lisa Taft Sylvester to help raise awareness of and to normalize aesthetic flat closure. I was invited to take part in the second volume that has just been published. It's a beautiful volume, and the stories…
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Scared and alone. Please help.
Diagnostic mammogram and ultrasound today. The radiologist said it was for sure cancer. Large 3-5cm mass in breast with 1 enlarged lymph node. Both bi-rad5 for malignancy. I’m scared to death. Biopsy scheduled for tomorrow. I’m only 39. I have 4 young children. I just finished breastfeeding. I have no idea how I missed…
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Rolled the dice with a lumpectomy and lost the dice roll.
I’m 95% sure I’m going to go double mastectomy with reconstructive surgery using my more than ample abdominal fat. Looks like it’s very localized dcis and small. Lymph nodes look fine. Other side is fine but why fafo? I’ve had surgeries before for different things and think this will make my lifetime total 12. Couple weeks…
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Any FANCM Triple Negative Breast Cancer Gene sisters?
Good afternoon! I and my daughter both carry the FANCM TNBC gene. I’m a breast cancer survivor who was diagnosed in 2011 at age 43. I had a 1 cm DCIS, Stage 0, Solid/Grade 3 tumor and a subsequent bilateral mastectomy. In 2011, the only recognized breast cancer genes tested were BRCA1 and 2, and TP53 which were obviously…
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New to the Group: Navigating TNAC and Neoadjuvant Chemo
Hi, I’m new here and honestly not thrilled to be in this group…this is a plot twist indeed for my life. I went in for a routine mammogram in early December. The imaging, pathology, etc., is complete. I'm currently navigating a diagnosis of triple-negative apocrine-type invasive carcinoma (TNAC), Stage 2, Grade 2. The tumor…
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Triple positive, just found out!
ER 3+/PR 1+/HER 3 +! Still trying to get over the shock! Met with the Nurse Navigator today and got the results.. Am scheduled with the surgeon for April 20 and the nurse is trying to schedule an MRI for next week and see about moving the surgical appointment up. Sounds like Chemo before surgery (the tumor is sitting on…
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Growing mass
Hi I was diagnosed with ADH 13 years ago when I was in my 30's. Had a few biopsies since then but everything came back normal. I went recently for my mammogram/ultrasound and was called back for a diagnostic ultrasound. The impression states: Left breast mass at 11:00 1 cm from the nipple which demonstrates interval…
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When do supraclavicular node require surgical removal?
I am diagnosed with invasive lobular cancer with -/-/+ (her2 strong positive). It has invaded many lymph node, including my left collar bone nodes (supraclavicular nodes). I am stage 3c. I am in the middle of chemo targeted therapy(TCHP) cycles. I was told that at the end of TCHP, if there is still high SUV value for that…
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TSA Advice? Bilateral Mastectomy
I am looking for advice about getting through TSA screening without extra embarrassment. I had a bilateral mastectomy, no reconstruction, all healed now. I am comfortable with this new body in everyday situations and also at my community swimming pool where I work out without prostheses. But I am terrified of TSA. During…
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Drinking cold things feels weird after mastectomy
Every time I take a drink of ice cold water (or anything ice cold), it feels as though someone is pouring ice cold water down my chest on the outside! It takes my breath away! Is this normal?
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Grade 3 long term survivors
Hi diagnosed last year with a primary breast cancer aggressive Grade 3 in two nodes. I wondered if anyone had long-term survivor stories. I'm terrified of secondary and have read lots of posts of survival but they tend to be stage 3 but grade 1 or maybe 2. Is there anyone with a Grade 3 in nodes with a positive story.…
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HER 2 Positive
Just got my results today and I'm in a tail spin! ER+++ (90%)Pr+(10%) HER 2 +++(90%), concerns with attachment to chest wall (2.9 cm). Met with the Nurse Navigator today and she is trying to get an MRI scheduled before we are to leave for a ten day trip on April 4 (app. with surgeon is supposed to be on the 20th and she is…
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Large lump found
Hi all. This morning I found a large lump in my right breast. I have just been to doctors and she checked my armpits (all fine) She said the lump was large but she could move it around and didn't seem sinister. She said a possibility is because of hormones. I am 44 and my period came yesterday although I am starting to get…
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Enhertu questions and experiences
Hello, My original diagnosis in June 2022 was Stage IB (T2N1mi) ER-93% PR-70% HER2 - (2+ by IHC 1.0 by FISH ) Ki-67-80% I did lumpectomy and breast reduction, 4 rounds of TC, and anastrozole switched to fulvestrant due to side effects. In April of 2025, my CA27-29 spiked and imaging was ordered. Signaterra negative for…
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4C BIRADS and really worried
Hi All- I am new in this forum and am just starting even learn about breast and it's diagnosis. I have always had normal mammograms and went in for diagnostic and got categorized as 4C yesterday—which I know is not good. I keep reading about metastatic cancer and I keep thinking about all the worst case scenarios that…
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How does a lump feel like?
Hello, i am 21 years old. Today i felt a lump about the size of marble on my right breast and then when i grabbed it and held it properly it felt much bigger - about the size of a tennis ball - . If i try and squeeze or push it, i can move the lump along to the left or right, or up or down. Its literally feels like theres…
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Breast reconstruction with implants
Hello, i just had my exchange surgery after expanders post DMX. I had expanders filled to 550 cc. I learned today that they only were able to put in 415 cc implants due to the fact they could not get the pocket to close when a larger implant was put in. Did anyone have this experience? Not sure if this leaves me options…
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Triple positive invasive ductal and lobular breast cancer
:( I’m a 41 year old single mother to one. Living in Canada just diagnosed with triple positive invasive ductal and invasive lobular carcinoma. Preliminary grade 2/3. I’m looking for others with a similar diagnosis to chat with.