-
Brain Mets Sisters
Starting this for a friend. Edited to explain that the friend was imbell who was feeling overwhelmed by wbr. She helped us all by starting this. Shes in peace now. See you in the clouds, imbell.
-
Any New Brunswickers with stage IV?
Finding it difficult to find local ladies dealing with Stage IV. Would love to hear from you!
-
Advice needed - symptoms ongoing for over 18 months now
Hello everyone. I posted on here a few times many months ago, but considering I’m still suffering with no answers, I decided to come back for some advice. First, I no longer have a gynecologist that I feel comfortable with as the woman I was seeing left the group and since then I’ve been bounced around with no relationship…
-
For Arimidex (Anastrozole) users, new, past, and ongoing
I found a couple of older threads about Arimidex, but they covered a large time span with a gazillion posts, so I thought I would start a new thread for Arimidex/Anastrozole users. I am starting on Anastrozole today. Plan is to take it for 5 years, possibly longer. I already have osteopenia and osteoarthritis (limited to…
-
MRI after benign breast biopsy
I wanted to see if anyone else had this happen after their biopsy. My mammogram showed an asymmetry and distortion and the US showed an hypoechoic mass and another hypoechoic area with shadowing. I was thrilled when they said the biopsy showed benign fibrous changes. The radiologist wants me to have an MRI in 4 weeks to…
-
Ultra hypofractionated (accelerated RT) in large breast cup? Help - need to decide!
I have stage 1 node negative invasive lobular breast cancer. Oncotype score of 9. I met with my radiation oncologist who gave me the option of the 3 week whole breast radiation with 1 week targeted boost (standard of care) or the ultra hypofractioned 1 week whole breast with same 1 week boost. Studies show it is equal in…
-
Discontinuing Anastrozole
Hi All - In 2024 I had diagnosis of Stage 2A ductal carcinoma ER/HR+ HER2 -. BRCA 2 positive. 3cm tumor no metastasis to lymph nodes. I took an aggressive stance on surgeries, opting for a double mastectomy with nipple removal (January 2024) and then removed my ovaries and fallopian tubes in September 2024. I started AI…
-
January 2025 Surgery Support Thread
Please gather here to get and give support. Feel free to share your type of surgery, date, and let us know how you're preparing and how you're doing post-surgery. We're all here for you!
-
I say YES. YOU say NO....Numero Tre! Enjoy!
A little birdie told me to come back and save the day......
-
Going flat or breast reconstruction
Scheduled to have bilateral mastectomy next month. I am very much undecided if I want to have reconstructive surgery or not and go flat. If I go flat, I am afraid I might get depressed as my body will be very different. With plastic surgery, I’ve read of women having so much pain and needing to do more procedures…
-
What to expect from Kisqali (side effects)?
Hi, I'm a caregiver to my mom, who was diagnosed de novo with metastatic breast cancer just last month in August 2024. She has metastases to the bones, liver, and lungs, and she's scheduled for a brain MRI next week. She's started on Letrozole, which was paused while she's been undergoing palliative radiation therapy to…
-
TRIPLE POSITIVE GROUP
This is primarily for people who find themselves with THREE +'s by their diagnosis. If you are new to breast cancer, please click on the link below and read. It is "What I Wish I Knew At the Beginning of Treatment." http://community.breastcancer.org/forum/6/topic/797454
-
Drinking Alcohol!
Hello, I figured I better come here for some advice. I am a 8 year Breast Cancer Survivor. I have a history of Breast Cancer on my Mothers side of the family. However, I am a bit worried. I drink alcohol. I have about 4 drinks a week. If not more. I am a social drinker. I am to the point of getting worried that my Cancer…
-
Pain in Breast 7 years post Radiation
I am seven years post radiation therapy on my right breast. I am very active and work out regularly. I have had very few issues. All my mammograms have been normal except showing fibrosis of the right breast. I was discharged early from my cancer doctors because I was not able to tolerate Hormone Therapy. Over the several…
-
Bone Mets Thread
I've started this thread after suggestions that it would be useful. Mod Note: We have removed the original link as it is no longer viable. At one of our member's' recommendation we are offering this link as a resource for you. https://youtu.be/YpFfLrITfEI
-
Cats, cats, cats
a thread for crazy cat ladies! I thought maybe just pics of your own cats, and if there's not enough then just any old cat you can find! I have 8. Technically only 5 are mine, the others think they live here. Mostly because I feed them with everybody else and they never seem to leave!
-
Just found out today
I'm so glad there's a group like this! Just got results from the patient portal - TN IDC stage 2 in my left just like I had 13 years ago in my right. The MRI I had in May was totally clean. As you can imagine I'm feeling all the feels. None of my providers has actually called to speak with me yet (in fairness the results…
-
SSDI review with metastatic breast cancer - lose benefits?
I just got a packet of mail from my state disability determination services office, saying that they are reviewing my disability status. I was diagnosed with unnumberable bone-only mets in Feb 2020. I was on Kiquali/letrozole for about 4 years, and now I've sped through Orserdu, piqray, and now, Truqap just in this year.…
-
Breast lymphadema (what does it feel like)?
I am newly diagnosed with breast and arm lymphadema. My symptoms are a tightness across my breast/chest and upper arm. Swelling and aches in both my arm and chest. My breast almost feels like when you put a wet washcloth on it. Sounds weird, but it’s the only way to describe it! Does anyone else experience this? I’m seeing…
-
Radial Scar - Observe or Take Out?
I'm recently diagnosed with a benign radial scar. First seen on a screening mammogram as an area of "focal distortion." Called back for diagnostic mammogram and ultrasound. It persisted on the diagnostic mammogram as architectural distortion and a 0.7cm irregular mass was found on the ultrasound. The radiologist came in…
-
Implants...does your "foobs" get itchy!!!
I've had my current set of implants....mentor silicone implants for 3 1/2 years now...and there are times I feel like I want to claw my chest off...this is mostly in the evening....I haven't been to the PS in 1 1/2 years (or is it 2 1/2 years) and have no plans to make an appt for him to just look at them and say yup, they…
-
Letrozole Side effects-- throaty
Have been taking letrozole for about 4 months after DCIS (w/clear margins), and preventative radiation treatment. Seem to be free of noticeable side effects except it appears to cause a cough and a 'drippy' feeling in the back of my throat. I confirmed this by going off it for 2 weeks, when these symptoms disappeared. Has…
-
Moving on from Ibrance to Orserdu
After 7.5 years on Ibrance & Letrozole I had slight progression. A blood biopsy was ordered and I remained on I/L. I had developed great pain in my shoulder and this was found to be cancer. Blood biopsy reported ERS1 & PIK3CA mutations. I completed 5 rounds of radiotherapy to the shoulder and 2 days later on 29th of March…
-
ER & PR positive, HER2 negative - chemo or no chemo??
Evening all, new here and looking for some opinions xx In Nov 2024 i had surgery to remove cancer in my right breast after biopsy (Oct 2024) confirmed a 20mm core ER8, PR8 and HER 2+1. The surgery wasn’t completely successful and the final histology reported it to be 47mm stage 3 ER8, PR positive and HER 2 negative with…
-
Ibrance (Palbociclib)
A bottle of Ibrance came in the mail today. I will start taking it tonight with Femara. Hoping that others starting on this drug will join me here to talk about side effects and how to avoid or treat them. So far, I've been warned about low white counts. I run very low as it is, probably because of my extensive bone mets.…
-
Kisqali side effects and timing
I was diagnosed with stage four NBC earlier this year and just started a combination of anastrozole and Kisqali. I am three weeks on with one week off. I have experienced some persistent nausea, but most concerning is my serious fatigue. I’m wondering if this improves over the months as you continue with the Kisqali? I’m…
-
AC-T Latest advice?
hi all, Am starting AC-T and wanted to know if there is any up to date advice or tips to consider? I have heard cold cap isn’t good with it but will use it anyway. Anyone used Paxman with AC-T? Welcome any tips to keep me sane!
-
Ladies in their 40s
Hello All, I just wanted to start a new thread for ladies in their 40s. Although we are considered "middle aged," many of us are still dealing with issues concerning young women, such as fertility, pre-menopausal status and related treatment decisions, young children at home, being single etc. Both younger ladies (in their…
-
Zoom Meet-Up Bonded by Breast Cancer: Place to Keep Chatting
Hey Everyone, Here is a place to keep sharing between meetups. Warmly, The Mods
-
Scar Tissue
I wanted to share some vital info. I've been having chest tightness for over 2 years. I've been tested for PE's, acid reflux, etc., but everything would come back negative or not something they could fix. I do have acid reflux and take Prilosec twice a day to keep it under control. I kept asking all of my doctors if it…