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Treatment options scare me more than DCIS
hello! I am 49 and in October I was diagnosed with DCIS in my left breast stage 0 grade 3. Also, I had an MRI on 11/21 which was inconclusive (unbeknownst to me and my doctors I had an infection at the site of the biopsy I had on 10/15!?) but showed that I may have a lesion and something else in my right breast so I am…
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Hello new here anyone good at reading pathology?
hi everyone I had a us guided needle biopsy on Friday. I had two areas but they only biopsies the larger one. Today the results say fibroepithelial lesion with increased stromal cellularity and myxoid change they are suggesting surgery to remove both areas to make sure it is a fibroadenoma and not a phyllodes tumor. Is the…
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stress test
has anyone had to have a stress test before surgery? When my port was put in they noticed slow blood flow to my heart. Now surgeon wants a stress test done before breast surgery
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ILC Long Term Survivors
Does anybody know people, or are you someone who has survived ILC long term, (more than 5 to 10 years) without a recurrence? Please post! I was diagnosed in 2004, and think I am fine, but, as I see from the boards, you can never be 100% sure. Thanks! Nancy
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Lump in nipple of nipple sparing mastectomy
Hi! I’m wondering whether there are others who have had a nipple sparing mastectomy that developed a lump in that nipple and it wasn’t something to be concerned about? I’m two years out from surgery and have a hard lump right in that nipple. There has been some gunky white stuff that has come out too but I think that is…
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Antidepressants
Are there any Stage 3ers on an antidepressant and if so which one.
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Breast skin and scar after surgery and reconstruction
Hi I had double mastectomy and immediate reconstruction with implants two months ago. I had nipple removed so my scars are across my breast. It’s been two months but my skins over that area are still super red and stiff/hard in texture. I don’t feel anything since I had no sensation over time area. I’m wondering if that is…
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Solitary Lung Nodule
Hi friends have a question . Did anyone have an experience of having one Solitary lung nodule 5 years after cancer. I am still waiting for a biopsy.
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Upper back pain, tingling and numbness in left arm and both feet
Good morning, I haven’t posted here in a while but, I do check in to read the posts from time to time to gain knowledge and peace. I’m very thankful for the ladies here, though I wish none of us were here. So, if I could get some of you to offer advice, prayers, or experiences I would appreciate it. So, in early October I…
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What do you want from your caregiver(s) after being diagnosed?
November is National Family Caregivers Month. We thought it might a good idea to share here what you might want from your caregiver(s) so they know how to best support you through your breast cancer experience. So, what are you looking for from your caregiver(s)? Information, emotional support, help with daily tasks,…
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Long term "high oncotype test" survivors
Is there any long term survivors who have had a high oncotype score. I know that this test is relatively new but I also know that it has been on the market at least 4 years. So I know that "long term" regarding this test isn't very long term. I had it done 3 years and 4 months ago. My oncotype score was 52. My onc told me…
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ELAINE 3 trial
just wanted to share with all those who have ESR1 mutation a comment from one participant. Looks like it’s working so there is hope for an approval. This is from a different site and a patient named Irit. Hi everyone, I promised an update on the clinical trial I participate in since March 2024, so here it is. The trial is…
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Ribociclib/Kisqali with Letrozole - Any one on this combo?
I am starting this new forum for all those who are on this newly approved drug combo. I started on Kisqali/Letrozole combo 6 weeks ago and so far it has been tolerable. Letrozole gives me joint pain and low back pain. My oncologist has asked me to take this on alternate days. Would love to hear from others about their…
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FES PET/CT scan insurance coverage
Has anyone with traditional Medicare had a FES PET/CT scan? I can’t get a definitive answer on payment for the procedure from either the hospital or CMS. Both say that an FDG PET/CT is covered so the answer is “probably.” Given the cost (more than FDG) I’m worried about having it done without knowing for sure. After two…
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First Time Taking Low Dose Tamoxifen - Side Effects
I started 5mg of Tamoxifen today and within a few hours had several side effects: dry mouth, headache, light headedness, nausea, bad tinnitus, and feeling cold. It seemed pretty quick. Has anyone else developed side effects so quickly? Thank you!
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HERCEPTIN and/or PERJETA Threads
I am currently on Herceptin and Perjeta with Zometa every three weeks. Would love to hear from others who have been on this targeted therapy and how well the treatments have been working for you..
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Complex ADH with greater chance of surgical upgrade ANYONE?!?!
So my story has been long and drawn out and I just dont know what to think or do. 2 years ago, found a lump. Dx mammo/us determine "mildly irregular anechoic cyst". Lump never leaves. No follow up other than annual well womens visit. 7 months ago, nipple discharge near lump. Go see OBGYN and he blows it off as hormonal and…
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Enhertu
good morning wondering how many people lost there hair on enhertu ?
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Anyone in Panama City, Fl area
Hello. I am 53 and newly diagnosed with Invasive Lobular Carcinoma. Have first appointment with surgeon this coming week. Would like to talk to someone local that had bilateral mastectomy and reconstruction. Hugs to all! 💕
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Risk of discontinuing tamoxifen
I have read several reports from others that noted that their medical oncologist gave them a percentage benefit from tamoxifen (or AI’s). When I asked my MO she would not provide me with this type of information. Can anyone tell me where this type of information would come from? I want to be prepared for my next…
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New Here. What to Expect w/ Paclitaxel + Trastuzumab?
Hello, all. I just joined this forum and am looking for some support. I'm a post-menopausal woman who was diagnosed with ES+/PR+/HER2 + invasive ductal carcinoma this summer. I had a lumpectomy on October 31. Clearly I got the trick not the treat… bah! Anyway, I am fortunate to have had very good outcomes from the surgery:…
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Arabic speakers with Breast Cancer
Good morning, Anyone here who is native Arabic speaker? Would love to connect.
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How about women over 70
when do you call it quits? When does quality trump quantity
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I’ve been down this road before…trying not to panic
A brief backstory, I found this forum a long time ago in the mid 2000s back when my mom was diagnosed. I lurked all the time and am pretty sure I had an account but it’s been over a decade and I don’t remember any credentials so new account it is. 😊 I must say I am grateful this great forum still exists after all this…
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Wish you still had cancer?
Is it common to have the thought that i wouldn't care too much if i had a recurrence? That i want to stop my meds? Does anyone ever think this? Is it weird to bring up? I've been looking at my life since diagnosis, treatment, remission, and daily preventive maintenance. Maybe treatment and losing my hair was much easier…
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Will 30% of Early Stage (1-IIIA) go on to metastasize??
So I started this question in another thread but was hoping for additional feedback. With MBC awareness day last weekend, a stat is going around that caught my attention. Basically says that 30% of early stage BC patients will eventually have their bc metastasize AFTER adjuvant treatment. Susan G. Komen even states it here…
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Zoom Meet-Up Bonded by Breast Cancer: Place to Keep Chatting
Hey Everyone, Here is a place to keep sharing between meetups. Warmly, The Mods
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decisions to be made--DCIS suspicious for microinvasion
Hi everyone, This is my first time posting. I have a DCIS (grade 3 ER+ PR+) diagnosis and am kind of stuck between having a mastectomy or trying cryoablation first. In order to make that decision, I am trying to figure out how to make sense of my likelihood of being upstaged at surgery. One sticking point is microinvasion.…
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Just received my Pet Scan results
Hi everyone, I have unfortunately been on this site for 9 years now. Diagnosed with early stage in 2015. Then had a recurrence in 2022. Yesterday I had a follow up Pet scan and the indication says "New hypermetabolic abdominal, pelvic, and thoracic lymphadenopathy, presumably reflecting metastatic disease." I briefly spoke…
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Bilateral mastectomy and they missed the biopsy clip
Hello, I had a bilateral mastectomy with reconstruction implants for triple negative breast cancer on Ictober 21,2024. Pathology revealed no cancer in the limp nodes 😀but they did not find the biopsy clip( or the small tumor most likely). Have to go back for another surgery like a lumpectomy and possibly exchange of that…