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Abemaciclib Verzenio for Stage IV
Luckylegs and friends on Abemaciclib - I am bumping the Verzenio discussion in the hopes that more people have started abemaciclib. We need to get a community going. I have not started abemaciclib but it is on my short list. Like many I am very interested in how people do on this treatment do, both as a monotherapy and in…
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Letrozole and frequent UTIs
Hi. I had a mastectomy on my right breast in March 2023. I started Letrozole in May 2023. I have noticed that I am getting frequent UTIs since I have been on Letrozole in addition to Osteopenia and increased cholesterol numbers. Any advice on how to reduce the UTIs. I don’t want to keep taking antibiotics.
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Just diagnosed with invasive Lobular Cancer
Hi i Just got diagnosed with ILC and feeling really shook. I’m a young, active 57yo in “great” health. I have two tumours in my left breast and multiple complex and funky looking cysts. Right now I’m in the waiting game to get in to see my oncologist and get surgery. I was wondering if anyone out there was in the same boat…
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Latissimus myocutaneous flap
Hi I would like to know if anyone has had this procedure? I had breast cancer 15 years ago and then treated with radiation. Breast cancer returned this year and I had a double mastectomy. I decided to go flat. One side healed normally. The other side due to radiation damage with the skin and underlying muscle and tissue…
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Anyone on DATROWAY (Dato-DXd)?
Hello-I’ve just started DATROWAY and have finished my second cycle with adverse side effects. I’m wondering if anyone has had the same experience and asked their oncologist about dose reductions, etc. to mitigate these. Thanks so much!
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Anyone every tried mistletoe therapy
Hello. I am new to this forum — actually I am new to any forum. This is my first-ever post of this nature. I have had a lumpectomy and radiation and now I'm taking estrogen suppression medications for 5 years. I want to do whatever I can to ensure this cancer never returns. Has anyone added mistletoe therapy to their…
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Going flat or breast reconstruction
Scheduled to have bilateral mastectomy next month. I am very much undecided if I want to have reconstructive surgery or not and go flat. If I go flat, I am afraid I might get depressed as my body will be very different. With plastic surgery, I’ve read of women having so much pain and needing to do more procedures…
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Afinitor/Aromasin
I am waiting for my pills to arrive and fearful of starting a chemo after almost seven years of anti-hormones. I immediately started looking for info on this site, and the Afinitor topic was started in Jan. 8, 2012 with 35 pages of comments to go through. Do you think it is possible to start a new topic now that this med…
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Hormone blockers - do I or don’t I?
hi- I’m a newbie. I’m 72, Diagnosed Dec 2024 with IDC, ER+PR+HER2+, no lymph nodes, tumor 2.2, stage 1B, grade 3, caught early. finished 6 rounds chemo : Herceptin, perjeta, taxotere, carboplaton, had lumpectomy this week- only removed sentinel node ( which is standard) and at this point will do 5 radiation treatments. My…
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Immediate reconstruction vs. going flat now and possible reconstruction later
Can someone tell me the risks & benefits of having immediate autologous reconstruction in the same surgery as single mastectomy? And the risks & benefits of going flat after single mastectomy now, but considering having autologous reconstruction a couple of years later? The breast had radiation treatment 18 years ago for…
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BI-RADS 3
Good evening, everyone, Sorry for the long post, I just needed to vent. I am 38 years old now, it all started 2 years ago, when I went to my doctor as my right breast was feeling sore, and my armpit was very painful. They did mamogram which turned to be that I have very dense breast, and then ultrasound, and there I had a…
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Coming off of Arimidex
Hi all! Soon I will be coming off of Arimidex after 10 years! I'm nervous but hoping that maybe I will feel better. My eyes are getting worse and my hair has thinned soooooo much. I can see my scalp on top. I’m hoping I will also have more energy! I’m wanting to know if anyone can answer these questions for me? Will my…
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AST 107/ALT 203- talk me down please
Hi Everyone, Talk me down. I just moved across the country 2 weeks ago and saw my new oncologist yesterday. She wanted to get her own labs even though I had them done a month ago. My cancer diagnosis: 35 year old female Stage 1A 40% low intensity ER, 5%PR and HER2-. Finished 4 AC, 12 weekly tax/carbo 6/25/2024 (Full…
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Advanced Detection
I was reading about liquid biopsies and DNA bloodwork that would be better for detecting recurrence than tumor markers Has anyone tried this or do you know how to take advantage of this?
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How are people with liver mets doing?
I continue to be very scared once I found my liver mets progressed after having to go off doxil. I am hoping to find some support in alleviating my deep seated fears by hearing other stories of people living and dealing with liver mets. My onc says I have such a petite frame (105) that an enlarged liver will definitely…
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My ILC friends
I’m curious. I will have had chemo, DMX , and radiation and Tamoxifen when all is said and done. I was stage 3 because of the larger size and a few suspicious lymph nodes. But they were never tested before chemo and after surgery they were negative. I also got an over 2cm or more margin all around. I know this is a dr…
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2017 Diagnosed-- A Place To Share "Whats Next"
thought I would start this thread to give those who were diagnosed in 2017 or underwent treatments in 2017 a common place to share our lives and adventures Welcome to all. Together we can learn from each other, lean on each other, and celebrate the good moments in life
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Bone and joint pain after tamoxifen
I concluded my 5 year regimen of Tamoxifen in August 2024. While taking Tamoxifen, I had terrible bone and joint pain in my lower extremities that was only alleviated by strong pain killers. I was delighted to reach my 5 year mark, stop taking the pain killers, and remain cancer free! However this bone and joint pain…
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Just dignosed
Hi my name is Deanna and I am 48 I recently went to the ER for a lump that is really hurting. So I got an biopsy and a CT scan done , and went a couple of weeks ago to the surgical oncologist for the results. He went over the results with me and my family explaining different tests like the Hormone receptors and said that…
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For the 10-year anniversary of my ICD dx I got... a dx of DCIS!
I had Stage 2 triple positive IDC 10 years ago at age 39. I was treated with 6 rounds of neoadjuvant TCHP, a lumpectomy, radiation, and about 7.5 years of Tamoxifen. I was recently diagnosed with a small section of intermediate grade DCIS with microinvasions in the other breast. On one hand I'm glad it is DCIS and I'm not…
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Honoring Beckie Child
We are deeply saddened to share that Beckie Child has passed away. Although her breast cancer remained in full remission, her metastatic colon cancer progressed. Beckie was an extraordinary member of our community—always offering thoughtful support, sharing her knowledge generously, and uplifting others through every stage…
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Studies that prove early detection of stage IV recurrence extending survival time?
Can you please point me to any studies that show that early detection of metastatic stage IV breast cancer results in longer survival ? If this matters, I'm talking about ER+. HER2-. I know that it's a common opinion that early detection of such recurrence does not result in longer life, but are there any studies that…
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Adding Cannabis to Standard Medicines Offers Better Nausea Control for People With Cancer
Adding Cannabis to Standard Medicines Offers Better Nausea Control for People With Cancer Sep 9, 2024 But there’s a tradeoff: People taking cannabis reported feeling more anxious and dizzy than people who didn’t take cannabis. Read more…
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Important Links on Complementary & Holistic Medicine
Varying opinions on treatment and health are expected in the discussion boards, but please refrain from offering specific medical advice to members. We encourage you to please take the time to read the medically vetted and edited information that we provide on our main BCO website, and always consult your medical team…
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Anyone who on ibrance & xgeva had infected wisdom teeth extraction?
I appreciate all your inputs on this. I currently have infection in my wisdom teeth & the oral surgeon recommended to remove to avoid further complications even though my pain is not that bad. The pain is on & off, but it not bad at all even without any pain med, so I rather not having extraction, but afraid further…
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Stage IV MBC Fitness
Hello! Welcome! We are done with Stage IV, moving on and planning to staying healthy for a long time. We're Stage V (Which is not dead. We're doing fine, ready to live with this beast.) This is the American Cancer Society/NCI consensus on exercise for cancer patients. * 150 minutes/week moderate-intense aerobic exercise or…
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Has anyone had a LOW oncotype with the ER + 100%, Pr- 0% and Her2-??
Oncotype results…. I am 38, pre menapausal, BRCA negative, no family history of breast cancer.
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Anyone starting chemo August 2016?
I don't have the details yet, just wondering who else is in my boat with me.
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For those on Ibrance, PFIZER Oncology Together can provide help
Pfizer Oncology Together is a first-of-its-kind program for patients taking Pfizer Oncology medicines that offers dedicated social workers called 'Care Champions' to help navigate the complexities that accompany treatment, such as identifying resources to help find emotional support, and workplace transition,…
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Liver mets and running out of options
Anyone in trials for liver mets with multiple mutations? Looking for guidance and hope. Almost 2 yrs in, nothing has worked or had the efficacy it is supposed to for me.