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BCO In Memoriam thread, Part 2
(The original BCO In Memoriam thread started by Milica has gotten too long and is difficult to load or make additions. We need to start Part 2 of this thread, starting 5/3, 2023 to make it easier to load in this new platform. The Original thread (Part 1) will remain and can be accessed for viewing but will not allow for…
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Stage 4- Docetaxol (Taxotere) Treatment
Last week, I started a new-to-me IV Chemo after progression while on Doxil. I have searched the Stage 4 posts but not finding much so wanted to have a thread to post my “story” to allow a place to ask questions as well as posting experiences, hoping to help others if they move to Docetaxel, too.
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Catholics
Hello, I am Catholic., and I have been walking with Jesus my whole life...and He has saved me from "me" many times...LOL.... One thing I do, is pray.. a lot. I think we all do as Christians. I headed this thread Catholic only because of what I am posting. All are welcome to pray this anytime.. but I did not want to offend…
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Traveling with MBC - Inspire others with your vacation experiences and tips!
Hi everyone! We have a new content highlight on Traveling With Breast Cancer, and would love you to share your tips, experiences, memories, and advice for those with metastatic breast cancer who are considering traveling, but might not feel well enough, think they don't have the energy, are concerned about risks of travel,…
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Borderline Phyllodes Tumor Diagnosis at 22
Hi everyone, I'm a 22-year-old dealing with a recent diagnosis of a borderline phyllodes tumor, and I could use some guidance and support. On 11/10, I noticed a tumor, leading to a biopsy on 11/14. The biopsy results were inconclusive, and a lumpectomy on 12/6 revealed a borderline phyllodes tumor with negative margins.…
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Low invasive duct alcarcinoma
I had a lumpectomy in October and node clearance december, then radiotherapy for 5 days My cancer was grade 2 low invasive ductal carcinoma I need to go on abemaciclib tablet for 2 years and wondered if anyone is on this tablet thank you
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Just diagnosed
Hi my name is Stacey. I just got the results from my biopsy today. The doctor said it’s invasive ductal carcinoma grade 2 and as of right now it’s between stage 1 and low 2 with clear lymph nodes but that could change after surgery. I did talk to the patient coordinator and she is going to schedule me to see the oncology…
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Refusing AI Treatment
I I have decided that I'm going to quit taking my AI medicines. I became suicidal, depressed, full of anxiety, feel like I'm going crazy, legs aching in pain. I am diagnosed with stage 1 ER positive invasive ductal carcinoma. I've had a lumpectomy and one month of radiation. I have dense breasts. I have decided that the…
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Passing By to Say Hi!
Hello everyone, GN, here. I hope everyone is doing well. I am dropping by to say hello/hi to you all. Unfortunately, I have some scheduling conflicts, so I am able to attend the meetings. However, as soon as I can, I'll log in. New: I started the new treatment, not great on the body, but trying to hold on and manage.…
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Verzenio and implant complications
Hello, I am excited to join this virtual community. I was diagnosed with breast cancer in October of 23, stage 2 with one lymph node involvement. I did a double mastectomy, chemotherapy, radiation and I'm now taking anastrazole, lupron injections and had been on Verzenio for 7 months. About 3-4 months after taking…
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Looking for Advice on Managing Side Effects of Hormone Therapy
Hi everyone, I’m reaching out to hear from those who have experience with hormone therapy for breast cancer treatment. I was recently prescribed [insert specific medication, e.g., Tamoxifen, Letrozole] as part of my treatment plan, and while I understand its importance, I’m struggling with some of the side effects. So far,…
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Advice on MRI over 5 years post treatment
Hello all. Just curious if everyone is still having MRIs? My oncologist and breast surgeon have different opinions on this and I'm leaning to just doing mammograms at this point. Concerned about all that contrast dye accumulating. I am a TNBC 12 year survivor and tested negative for the BRCA genes however my mom had breast…
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Birads 4 after mammo
After a mammogram, I received the following results with two suspicious areas BI-RADS 4 1st Mass: • Shape: Irregular • Density: Isodense • Margins: Indistinct 2nd Mass: • Shape: Round • Density: Isodense • Margins: Shadowed Has anyone had a similar result? I was not given a subcategory. I have to wait until…
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Kadcyla for residual disease after neo adjuvant chemo
Hi All, Starting a new Kadcyla thread as there wasn't one before. I will be starting Kadcyla soon as there was residual disease from surgery pathology report. Kadcyla for 14 cycles is what is recommended. Any of you who have already been on Kadcyla please share how it is going for you.
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Stage III Cancer Survivors...15+ years and out
Let's just see what happens here...This is a "build it and they will come" experiment. It's time. If you are not a 15 year survivor but know the story of someone who is, please join in.
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Calcification
I am a10 year survivor took a mammography and they say I have calcification on my healthy left breast and they want to do a biopsy it kind of sacres me because i am afraid it might be back. What is calcification?
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Chronic fatigue
hello all, I had a question about chronic fatigue and my triple negative breast cancer. I am waiting for my surgery date but the past few months I have been so fatigue. Could this feeling tired like being exhausted all day feeling be from the cancer? Has anyone else experienced this? Also is their any safe way to get some…
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Long-term side-effect of radiation-stromal fibrosis
I am wondering if there are articles or more information available about "stromal fibrosis" after radiation therapy. 2.5 years post lumpectomy and radiation for ILC, with recent biopsy-proven diagnosis of "stromal fibrosis". Any information would be helpful! Thank you.
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Liver Lesion
Hello, All. I am coming up on seven years cancer free this summer after being dx with stage III breast cancer . Double Masectomy, removed ovaries and fallopian tubes. Several scares of reoccurrence over the years, but so far none. Enter Jan 2025! DExA scan shows osteoporosis so had blood work before starting Zometa to…
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Beautiful home hospice care story
Hi everyone. I just read this beautiful story written by a daughter whose parent decided to have hospice care at his home. It seems that sharing it would be a positive contribution to those like myself who are nearing the end of their experience with cancer, and thinking about hospice care at home. Here's the link :…
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"distortion" on mammogram
Hello, I was just wondering if anyone knows if there is a difference between "distortion" and "architectual distortion" on a mammogram. My finding just said "Right Distortion". They are recommending a follow up, of course. Thanks!
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Implant got infected
I have not been here in a while. Three years ago I was diagnosed with Lobular stage 3b no nodes. Had chemo and rads and a DMX with reconstructive surgery. Fast forward to today. I had revision surgery 1 month ago. Everything went well until I got a sudden infection on the side that was radiated three years ago. So my PS…
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Medication for ER positive breast cancer
I was on Arimidex (name brand anastrozole) for 8 years after my last breast cancer diagnosis. Even though I was taking the drug, I still got a new breast cancer - one that is ER+ (last cancer was triple positive). The cancer was tiny (5 mm) and was actually totally removed with the biopsy. I had a mastectomy and the cancer…
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This article may explain why we don't have blood tests to check our estrogen and many other things.
I've asked AI to do a summary in educated layman's terms of the article and have included the link. It's an old article, but from what I understand, it's explaining basic facts that I didn't know. Detailed Summary of the Article: "Tissue-Bound Estrogen in Aging" by Ray Peat The article challenges the mainstream belief that…
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Important Stage IV Topics and Links for Stage IV Newbies
Here are some helpful resources if you've just been diagnosed with stage IV breast cancer, also known as metastatic or MBC. Join our free Virtual Support Groups for MBC! Do you have metastatic breast cancer (MBC; also called stage IV)? Register: Mondays at 2:00 PM EST, Tuesdays at 8:30 PM EST and Wednesdays at 4:00 PM EST…
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Advice needed - symptoms ongoing for over 18 months now
Hello everyone. I posted on here a few times many months ago, but considering I’m still suffering with no answers, I decided to come back for some advice. First, I no longer have a gynecologist that I feel comfortable with as the woman I was seeing left the group and since then I’ve been bounced around with no relationship…
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Lymphedema - breast twice the size of other one
My arm did not swell up but my breast did by a lot after my lymph nodes were removed. It has been over 4 months now and my effected breast is twice the size of my other breast. My oncologist said oh well it will just be like that forever but she never even looked at it. I am in Canada but I heard not all oncologists are…
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Fall 2024 Breast Cancer Research Round Up
Fall 2024 Breast Cancer Research Round UpFeb 7, 2025 What does the latest breast cancer research mean for you? Dr. Kathy Miller explains. Hormonal birth control increases breast cancer risk in women with a BRCA1 mutation, but not women with a BRCA2 mutation. Levonorgestrel IUDs increase risk, but how much? The long-term…
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How Does Alcohol Affect Breast Cancer Risk?
How Does Alcohol Affect Breast Cancer Risk?Feb 21, 2025 About half the country doesn’t know that alcohol increases cancer risk. In January 2025, the U.S. Surgeon General put out an advisory on alcohol and cancer risk, calling for cancer risk-warning labels on alcoholic beverages. The advisory said alcohol contributes to…
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Biomarker Testing Laws: How Are They Helping?
Biomarker Testing Laws: How Are They Helping? Float RightMediumAccessibilityDelete Jan 24, 2025 Joanna Doran explains new laws aimed at providing more comprehensive insurance coverage for biomarker testing. In cancer, biomarkers are features of the tumor, such as a genetic mutation or the presence of a certain protein.…