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Tumor Marker
hi all – new here. I am HR positive her2- with one met to my bone. I had chemo, double mastectomy, radiation to my bone and chest/ breast and my ovaries removed. I am on letrozole and have done 1.5 cycles of kisqali. On a break bc of numbers. I started getting g my markers checked in January 1x a month and they are below.…
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Upgraded post-lumpectomy to IDC
I am new to this forum and want to share my experience so far at this very early stage. I went in for surgery in mid-April for a lumpectomy / excisional biopsy) of what was previously diagnosed per biopsy as ADH (atypical ductal hyperplasia) which is a benign condition. Pathology of removed tumor upgraded me to IDC ( ER+/…
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What Do You Wish You’d Known Earlier in Your Breast Cancer Journey?
We’ve all had those “I wish someone had told me…” moments — whether it was about treatment, emotional health, relationships, body image, or navigating the healthcare system. What’s something you learned along the way that you wish you’d known earlier?
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Anastrozole
Any advice on best time of day to Anastrozole. Also wondering how much Herceptin infusions play into general tiredness & anxiety or is it lingering side effects from chemo & radiation. Could it also be all-of-the-above?!!
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I worried because I got a ct iv iodine dye for clots and suspect breast cancer and red flag and the
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Stage 3A
Diagnosed with big 7.5 tumor, lymph nodes involved. ER+PR+HER2- just finished AC chemo, did one taxol 11 weeks to go. I know I have a long road ahead, and I’m very frightened!! Any positive stories out there
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Stage III Cancer Survivors ...Five + Years and Out.
A place to post hope for those who are stage 3. Please posts your stories of HOPE for those just starting this journey.
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Has anyone with Her2+++ achieved pCR before surgery using only paclitaxel and Phesgo?
Hello from Tokyo. I am currently undergoing treatment for Her2+++(ER+1%) The preoperative regimen is 12 doses of weekly paclitaxel and 4 doses of Phesgo every 3 weeks, and if the tumor does not disappear, EC will be added. I searched on X and found that there was one woman in Osaka,Japan who underwent a clinical trial of…
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Aesthetic Flat Closure
I had surgery 1/14/26. I think my posture has changed or something because my ribs kind of flare out. I’m not sure if this happens to everyone- I think it is pretty common? Another change is I’ve had pretty radical mood swings and my period has been erratic since my surgery. Anyone else live through feeling crazy after…
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No reconstruction
I chose to go "flat" and have both breasts removed, but I blead to much and my cancer obliterated my left breast. She took four hours on just my left breast. Of course I was asleep but my family was very worried because it was taking so long. The surgery was my greatest fear besides death in this whole thing. I worries…
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Newly Dx: IDC 7mm, Grade I, ER/PR + (100% 3+ intensity for both), HER2 negative, Ki-67: 16%
Right Breast, 9:00, posterior depth 8cmfn. Hate that I'm here, but so thankful for a place to go. So far, prognosis seems good based on what we know right now (still need MRI, awaiting genetic testing, don't know staging, etc.). I met with 2 different surgeons in DFW are this week. Both said similar things and both seem to…
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Stage III Cancer Survivors...15+ years and out
Let's just see what happens here...This is a "build it and they will come" experiment. It's time. If you are not a 15 year survivor but know the story of someone who is, please join in.
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Breast cancer
I'm 32 years old and this is my second biopsy within about 2 months. First biopsy I had was on both breast. Now I had surgery on May 8th, 2026. I had a Left central lumpectomy. I'm worried I could have cancer. Also I won't know results for about two weeks. I now hate the way my left breast looks, it scares me and has my…
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Newly diagnosed stage 1 Invasive Ductal Carcinoma
Trying to decide between lumpectomy and radiation or bilateral mastectomy. Want to hear from some who have gone through each
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Triple-Negative Breast Cancer Treatment: Where Are We?
Triple-Negative Breast Cancer Treatment: Where Are We? Dr. Lisa Carey explains the latest research on TNBC treatments. Mar 7, 2025 About 10% to 15% of breast cancers are triple-negative. This means they don’t have receptors for the hormones estrogen or progesterone, and don’t have too many HER2 proteins. So, hormonal…
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Poll: What part of your breast cancer experience feels hardest to explain to others?
Some things take time to feel. Others take time to say. They show up later. In a post sent at 2 a.m. In a reply that starts with, "I didn't know anyone else felt this way." Scanxiety that sticks around even after good news. A body that feels different, whether treatment is behind you or still ongoing. Conversations with…
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BECOMING ILL DURING CHEMOTHERAPY
Hello everyone My sister has had surgery for Stage 2b HER2+++ breast cancer and has received her second course of TCHP (Total Chemotherapy).Meanwhile, she went to the doctor because she had a slight hoarseness and cough. She is on antibiotics. She feels better and has no fever, and she doesn't feel weak except for the…
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prepectoral breast implant revision - does it end the discomfort?
Hi everyone - it's been 10 years since I've been active in this community, so if you all have seen this question and answered it, sorry for the repeat! I'm having my implants replaced on June 25 and have chosen to have the new ones placed above the chest muscle instead of below it, which is what was done the first time.…
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Enhertu questions and experiences
Hello, My original diagnosis in June 2022 was Stage IB (T2N1mi) ER-93% PR-70% HER2 - (2+ by IHC 1.0 by FISH ) Ki-67-80% I did lumpectomy and breast reduction, 4 rounds of TC, and anastrozole switched to fulvestrant due to side effects. In April of 2025, my CA27-29 spiked and imaging was ordered. Signaterra negative for…
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Anylink between tumor markers and covid vaccine?
Assuming that your tumor markers (Ca27.29, Ca15-3) have always been correlated with imaging, after covid vaccine, does anyone experience rise in tumor markers WITHOUT correlation with increase in size of tumor from imaging? Thanks. Nguyen
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COVID and Flu May Activate Breast Cancer Cells in Lungs
COVID and Flu May Activate Breast Cancer Cells in Lungs Aug 20, 2025 People with a history of breast cancer may want to consider COVID and flu vaccinations, according to the researchers. Read more…
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What do you wish you had known when you (or your loved one) were first diagnosed?
Share words of wisdom, unique tips, self-care, and coping advice for our newbies here! It will make a difference for all those joining us this year. Thank you!
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DCIS Grade 2 Diagnosis
Dear Brave Pals, I had lost my Mum to Metastatic Gallbladder Cancer at the age of 60 within 2 months of no symptoms to diagnosis to farewell. So cancer is the most dreaded word in my family. Unfortunately, last month I was diagnosed with DCIS Grade 2 (with expansive Camedo Necrosis, ER/PR+ as per my Biopsy report). They…
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Key Truda + Paclitaxel+Carboplatin & Cyclophosphamide Side Effects of Mucositis & no taste
One of my close friend was diagnosed with Grade 3 TNBC and was given the following: Keytruda 200mg once in 3 weeks + Paclitaxel + Carboplatin X 12 +Adriamycin and Cyclophosphamide X 4. She has lost taste of food after the chemo treatment and though in remission for over 6 months, hasn't got her taste buds back, and can't…
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💗 May 2026 Surgery Roll Call — Come On In, We’ve Been Saving You a Spot 💗
If you’ve got surgery scheduled this May—lumpectomy, mastectomy, or something in between—this thread is for you. Not just to read. To be part of. 💗 This is where names turn into familiar faces, where “I’m nervous” gets met with “me too,” and where no one has to carry the weight of this alone. However you’re feeling right…
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Breast Cancer Index - Mixed Results
Hello all - Wondering if any of you can share any of your experiences regarding your BCI and what your oncologists have advised based on your results. I am nearing my 5 year mark next year for endocrine therapy and recently found out that my oncologist had run the Breast Cancer Index test on my original tumor. I am…
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Ibrance (Palbociclib)
A bottle of Ibrance came in the mail today. I will start taking it tonight with Femara. Hoping that others starting on this drug will join me here to talk about side effects and how to avoid or treat them. So far, I've been warned about low white counts. I run very low as it is, probably because of my extensive bone mets.…
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New to the Group: Navigating TNAC and Neoadjuvant Chemo
Hi, I’m new here and honestly not thrilled to be in this group…this is a plot twist indeed for my life. I went in for a routine mammogram in early December. The imaging, pathology, etc., is complete. I'm currently navigating a diagnosis of triple-negative apocrine-type invasive carcinoma (TNAC), Stage 2, Grade 2. The tumor…
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Bodily feelings (side effects?) that are difficult to put into words
I was diagnosed with stage 2 breast cancer with a high oncogene score. I finished chemo and surgery and am now on letrozole and Kisquali (been about 6 weeks). I wonder how many others feel like "their body is dealing with something" but don't know how to put it into words. I do have some digestive issues, some joint pain,…
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Breast Biopsy results
says Invasive carcinoma, Ductal with mucinous features, Low grade, 1 of 3, Mitotic rate: low, Lymph-vascular invasion: not identified, DCIS absent, Additional findings: not identified. Pending still; ER/PR, HER2, Ki-67. My PCP will get the results on Monday 5/11/26 (it’s Saturday). PCP is Multicare in Olympia WA. As of…