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LCIS - BC in family -- NIGHTLY HOT FLASHES & PALPITATIONS - Can't sleep - MISERABLE & CONFUSED
Hello, I am 61 and have been in menopause one decade. I lost my dear sister to BC at age 42. About 10 years ago I had a surgical biopsy that said LCIS. Since then normal mammos but dense breasts. I have waited for these symptoms to "pass" but now it's pretty clear they never will. My nightly routine is horrible…
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Cats, cats, cats
a thread for crazy cat ladies! I thought maybe just pics of your own cats, and if there's not enough then just any old cat you can find! I have 8. Technically only 5 are mine, the others think they live here. Mostly because I feed them with everybody else and they never seem to leave!
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Neuropathy
Hi, I am new here so I hope I am doing this correctly. I had cancer and treatment in 2013 and had taxol. I had bad neuropathy for a few years after, took gabapentin which helped reduce pain and went off the medication because I was ok. I have had the neuropathy- mostly pain-sometimes since then like once a month. The last…
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After first shoot of Lupron
Hi I am new to this forum. My oncologist recommended a course for Lupron shoot every 3 months for 5 years as I am premenopausal. Then add Tamoxifen for 5 years after my radiation, which is schedule to start next week. The Lupron shoot was done in the middle of my cycle so I had my period at the regular time. But instead of…
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opinions needed
So I'm highly hormone positive, but failed ibrance after 5 years. Got a new triple negative. Did carbo/taxol. Mastectomy, then new hormone positive mets after 8 months of xeloda. Doctor wants to do enhertu because she is worried about hormone treatment resistance and possible triple negative cells still floating around.…
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Diep flap surgery after 10 year old implant removal?
Has anyone had their implant removed and gotten the deip flap surgery?
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BIA-ALCL Symptoms ??
Yes, I am aware BIA-ALCL is not breast cancer. I’m having some vague symptoms and what to assuage my fears. Prophylactic mastectomies in 2012 for BRCA-1 mutation. Sientra high profile textured implants below the muscle in 2013. For the past few weeks I am exhausted all the time. Not “I worked or exercised” hard tired. It’s…
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Left breast cancer 15 years ago now cancerous axillary mass - treatment recommendations?
I was treated for left sided breast cancer 15 years ago (mastectomy and 4 courses of cytoxan and taxotere). Now have 2.3 cm axillary mass (cancer: ER+ PR+ HER2- grade 2 invasive ductal carcinoma and moderately high KI-67 score. I live in Chicago area. MD Anderson cannot see me for two months. I am waiting to hear back from…
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Drinking cold things feels weird after mastectomy
Every time I take a drink of ice cold water (or anything ice cold), it feels as though someone is pouring ice cold water down my chest on the outside! It takes my breath away! Is this normal?
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Life does not end with a stage IV diagnosis (really!)
Our sister, kayrnic, started a thread celebrating being 2 years (hooray!) out from her stage IV dx. I was thinking along those same lines when I read her post. So often, those newly dx'ed stage IV, think they've been handed an immediate death sentence and panic or plunge into some very dark places. This is understandable,…
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New Implants - Not Satisfied
Hi. I had my exchange from expanders to implants 1 week ago. I can honestly say that I was happier with the look of my expanders. There is little to no projection with my implants and I have my post-op appointment tomorrow. I've done what research I know to do, but is anyone else in the same boat? I know there was a huge…
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Switching from AI to Tamoxifen - Bone loss
Hi, I just met with a new oncologist after the retirement of my previous one. I have been on an Aromatase Inhibitor for six years with worsening bone loss. Taking Fosamax. The new oncologist suggests switching to Tamoxifen. Total treatment time would be 8 years vs. target of 7 if I stay on AI. Has anyone had or considered…
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BII
Hi, I haven’t been here for some time. I was diagnosed with ILC left side/ stage 1 at age 53. Intuition told me to have lumpectomy where I had a lump that randomly had sharp pain. , My surgeon wanted to aspirate, it was the tissue beneath the lump that was ILC. Dble mastectomy/ expanders/ Mentor smooth silicone implants. i…
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Bioidentical hormones..is anyone taking after breast cancer?
I have 4 tx left of my weekly taxol. Prior to that I did 4 DD AC. Now that I am getting close to the end of my treatments, I have started to research diet, supplements, etc to hopefully help avoid recurrence. I have been reading Suzanne Somers, the Anticancer book, and some others. Overall, its been somewhat depressing as…
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5 year survivors, post your screen name here!
Seeing this will inspire our newbies!
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Reconstruction ‘PLANE CHANGE’ from under muscle to over muscle
In 2015 I was diagnosed and had double mastectomy with reconstruction. At that time they recommended subpectoral (under muscle) implants as. Over the years the animation deformity when I flex has been annoying and uncomfortable. I am an active person a feel it every day. One side has started to droop noticeably and I am…
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Stage III and Verzenio
I may need to venture into the mets forum for SE coping strategies, but I’m wondering if there’s anyone else who’s been put on Verzenio (vs Ibrance or Kisquali) to prevent recurrence? My MSK oncs and Yale onc (I switched to Yale this past summer) all agreed that I should be put on a CDK 4/6 inhibitor. We waited until this…
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Sharing towels with others, including a young kid, after more than a year of radiation therapy
Hello Everyone, I was just wondering if anyone shared towels with your husband and young children after more than a year of radiation therapy treatment. I did share with my kid sometimes, especially things like going to the beach or pools or accidentally using mine when he finished showering. So, is that fine? Thank You!
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Surgery for newly diagnosed stage 4 MBC?
Hey there. Newly diagnosed with stage 4 MBC ER+PR+HER-, multiple spots in lungs. When the lump was first discovered the expectation was that it was curable as there was no spread and the lymph nodes looked clean - that all changed with the PET scan. So…question: The only option offered now is hormone treatment, but the…
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Flap Reconstruction - Decisions
Hello all! I was diagnosed in 2012 and had a mastectomy with TE/implant reconstruction. In November, I had a biopsy (benign 🙏) on three tiny bumps on the reconstucted breast. Unforntunately, the wound became infected and the wouldn't heal so they removed the implant (which they then found was ruptured) and replaced it with…
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Wait times and alternative clinics
hi all, I was diagnosed with invasive lobular carcinoma last week. I’ve been feeling this spot for almost 2 years. I was told 18 months ago by the breast clinic in Halifax nova Scotia that it was just a part of my rib bone I was feeling. Anyway now it’s a month before I can get a consult and unknown waits beyond for…
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Focal Asymmetry?
I’m turning 60 this month and had my yearly mammogram this morning. It said “possible focal asymmetry” 8cm from left nipple upper quadrant. No other suspicious findings. No idea what this is. I don’t feel a lump. So I go for another mammogram on Thursday and US if needed. Obviously a little worried.
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Little rise in tumor markers, terrified
Hi everybody, I know markers for somebody work, for somebody not...i'm talking about CA 15.3 Mine were high before the cure, and low when cancer was stable (i started Capecitabine September '23). they were always about 20/23. Now they went up to 31.7 Normality is up to 31, but the 35% increase really scared me. I have a…
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Aromatase Hormone inhibitor “5 year pill” side effects?
Has anyone used these? what were your experiences as far as side effects? cardio-muscular-bone damage?
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Bone Scan and CT scan- Worried
hi! I’m not diagnosed with Stage 4, but will be having surgery Monday and treatment to follow. But recently I’ve had this upper back dull and deep pain. Went to chiropractor. Didn’t help. Now I’m worried. I’m having a bone scan and CT scan tomorrow. I hope it’s nothing. 😫 how did your spinal bone met feel? Or any…
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Are CT scans safe?
Hi, I have the BRCA2 mutation and will need a CT scan of both knees to have Bilateral Knee Replacements. . I am 69 and have not yet been diagnosed with Cancer . Is it safe to have the CT scan of each knee? The MAKO robotic surgery requires a CT scan preop. Otherwise , I could go somewhere else and undergo the ROSA robotic…
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cold caps from penguin
I have stage 2 invasive ductal carcinoma and will receive chemotherapy (taxotere and cyclophosphamide) starting on the 16th of April. I would like to use cold caps and was wondering what your experience is with the penguin ones. Is it tolerable? How difficult is it to put on and take off? How often do you change the pack?…
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Tamoxifen dosages - anyone with IDC do 5mg?
I recently got a hold of my doctor's notes for each follow-up I had with him since 2019. I reviewed everything, and saw how my dosing of Tamoxifen was all over the place. For intervals of a year or several months, I was taking 20 mg, 10 mg, or 10 mg every other day (effectively 5 mg). I did have some endometrial thickening…
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PET Scan results are on portal - have not heard from doctor
After being diagnosed with a new breast cancer (my third in the same breast but apparently not a recurrence based on pathology), I had a PET scan prior to my scheduled SMX. The results were in my portal a few hours after the test yesterday morning but now, a day and a half later, no one has called to discuss the results.…
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Changing time/symptoms, mets in lungs and spine
I am very new to having stage 4 metastatic breast cancer to my lungs and spine. I was initially treated as stage 2 in 2019, had surgery and radiation and was placed on Tamoxifen. In June 2023, I developed this persistent cough that wa making it hard to breathe. I had a PET and biopsy in August that confirmed my cancer…