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After first shot of Lupron
Hi I am new to this forum. My oncologist recommended a course for Lupron shoot every 3 months for 5 years as I am premenopausal. Then add Tamoxifen for 5 years after my radiation, which is schedule to start next week. The Lupron shoot was done in the middle of my cycle so I had my period at the regular time. But instead of…
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Delayed allergic reaction to Taxotere
Has anyone had a delayed allergic reaction to Taxotere? I had a severe reaction 9 days after my 3rd treatment of Taxotere. I thought I was having a heart attack, it turned out to be a severe reaction. It started with hives all over my head then moved to my arms. I was taken to the hospital by ambulance and they gave me…
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Trodelvy - Looking for positive feedback
Good morning everyone! I have been fighting this battle since 2004 when diagnosed with Stage 2 B breast cancer with metastasis to one node out of 15. After a partial mastectomy and taking Arimidex for 8 years, was in remission until 2019 until it came back with a vengeance to a Stage 4 with mets to my bones and a lesion in…
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The dumbest things people have said to you/about you
Ok, I know, it might sound mean to make fun of people or call them "stupid" or "idiots". But I am sure that in your journey you had quite a bit of stupid/insensitive or plain dumb stuff told to you. And you wanted to just get those people by their collar and shake them real well (or maybe who knows, just give them a good…
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Anyone with enlarged mediastinal lymph node?
I was diagnosed with IDC 11/14/21. Surgery has not ben completed but biopsy showed HR+, HER2-, grade 1. Recent PET/CT showed enlarged (2.5cm) superior mediastinal lymph node. There was no metabolic activity shown on PET or, FDG uptake was low enough to classify it as non-malignant. The Radiologist made no recommendation…
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Has anyone here declined aromatase inhibitors?
I am 70 and recently had a lumpectomy for stage 1 invasive ductal carcinoma, 7mm. No lymph nodes involved. My oncologist prescribed anastrozole but I refuse to take it. I've done my homework and it's a quality of life issue for me. I already have mild arthritis, osteoporosis and thinning hair. I don't need more of that and…
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Chemotherapy, Benefits vs. Risks
I am new here and seeking feedback on my treatment plan, specifically regarding chemotherapy. I have been informed that, given my tumor size of 5 mm, chemotherapy is an option but is often not recommended. The doctor explained that there is limited research on the benefits of chemotherapy for such a small stage I tumor,…
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SLNB pain
Hi and happy holidays (or at least coping holidays—whatever we can muster at this point, I think), I just wondered if anyone had any thoughts or remedies or experiences to help me think through my SLNB. I had a delayed SLNB, so I got it after the mastectomy. Well, it hurts so much more than I had ever imagined. I know that…
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Verzenio and hair loss.
I’m going to be starting verzenio in a few days and I read that 30% of people who take this medication experience hair loss. I asked the pharmacist about this and he made it sound like I could go completely bald again like I was from chemo. It sounded like he was reading from a script and I’m not sure if he really knew…
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Upper back pain, tingling and numbness in left arm and both feet
Good morning, I haven’t posted here in a while but, I do check in to read the posts from time to time to gain knowledge and peace. I’m very thankful for the ladies here, though I wish none of us were here. So, if I could get some of you to offer advice, prayers, or experiences I would appreciate it. So, in early October I…
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Breast MRI call back
I had an mri a month ago. I finally called my Dr to get the results. I was told over the phone no cancer but I could schedule an appointment to discuss. I put it off because of hearing no cancer but yesterday I got a call to find out why I haven’t booked an appointment. (??). So now I’m going in on Monday and I’m not even…
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Celebrex/Celecoxib
I'm just curious as to who else is taking Celecoxib. I have arthritis but am really taking it as an anti-inflammatory that I hope will delay progression. I've been taking it daily since last June but today a Physician's Assistant refused to renew my prescription. Her reasoning was that my kidney numbers on the GFR test are…
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Considering TH regimen for HER2+ microinvasive (very early stage) BC
Anyone have feedback who has done Taxol plus Herceptin? I just met with a medical oncologist to discuss possible chemo as I was thought to have DCIS but in fact, at mastectomy, was found to have about 8 foci of microinvasion (defined as < 1mm each). I was wondering what your experience has been with the TH regimen. The…
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Small asymmetry in tissue and scared
hi! I’m f22 and felt something asymmetrical in my left breast a few months ago. I do acknowledge I have a lot of health anxiety, so things like this are blown out of proportion. I have no family history or risk factors. A couple months ago in my left breast, right above where the top of my areola ends, when I press in I…
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Spinal cancer symptoms??
I would like to know if anyone has experienced severe rectal pain and burning and then diagnosed with spinal mets. I had ILC in the left breast and had a mastectomy in January 2023. I had radiation in May and June 2023. There was spread to one node. I was placed on Anastrozole, changed to Exemestane and then finally to…
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Chest tightness - post Bilateral Mastectomy
I've done a search, and have come up empty handed.....so I'm asking those of you who have had bilateral mastectomies (without reconstruction)......what about chest tightness???? I am now 11 days past my BMX. Two (of four) drains were removed three days ago, and the tightness wasn't so bad then (otherwise, I would have…
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It's OK - No Surgery, No Chemo
Hi Community I haven't found this topic yet, so here's a start (if it's too long, I apologise in advance): I'm in Stg IV with the HER2 cancer growing from the right breast, and first discovered a grape-size lump in Aug 2018. I couldn't get a biopsy until June 2019 (SSA had cut SSI funds), directly before which my PCN said…
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It feels like my whole life is crashing down
All my life I have tried to leave healthy , avoid junk food , exercise even if I do not enjoy it, do everything to support my immune system and all that shebang. I watched my mom die from breast cancer at the age of 40 and now here I am. Late October , I felt a dull ache in my right best that woke me up in the middle of…
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Anastrazole
hello! I’m supposed to start anastrazole but I suffered a fall and broke my tailbone. I’m wondering if anastrazole will slow the healing time for the fracture? Has anyone experienced that or heard of that? Also, I just got hot flashes and night sweats and chemo induced foot neuropathy under some control and I’m honestly so…
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LD Flap yes or no and why
I am new to this group. Due to a few failed previous surgeries. My plastic surgeon is recommending the LD flap. I’ve heard that you can lose a lot of strength. I’ve also heard there’s a lot of pain. Does anyone here have any experience good or bad? I would love to have your feedback!
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Seriously? First IDC, then DCIS, now possible DCIS again.
Has anyone had multiple new DCIS primaries rather than recurrences? I had IDC in my left breast (treated with lumpectomy and radiation ) in 2011, DCIS in left breast (treated with left-side mastectomy) in 2021, and today my radiologist found new calcifications in my right breast. I'm having a biopsy on Wednesday. She…
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Heart Transplant after Chemo induced Heart Failure
Hello, I don't know where to post my story, so please let me know if I should move it. Here goes! I was 49 years old, in great shape and without a family history of any cancer. 11/2020 found lump in right breast 12/2020 diagnosed with triple positive, multi focal IDC and at least two nodes 1/2021 began chemo - AC THP…
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Breast reconstruction revision
Hi! I am new to the forum. I was diagnosed in 2013 and after a double mastectomy I had reconstruction using expanders. I am interested in getting my implants removed and possibly replacing them with new implants. The problem is I was living in Florida when I had my reconstruction. I now live in Hickory, NC and have no idea…
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Perjeta and itching
I think this has been discussed a while back, but I was wondering if anyone has anything new to report. I’ve been on Herceptin and Perjeta for about 7 years so far. Weird itching on both my arms (without a rash) started about 6 years ago… got progressively worse, and I’ve been on and off various medications to try to…
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Coming off tamoxifen early to have a baby
Hi everyone I'm a little lonely over here in the UK and was hoping to find some kindred spirits. I'm now almost two years on from my diagnosis. I was diagnosed with Her 2+, weakly ER+ breast cancer in April 09 at the age of 37 about three months before we were due to be married and a few weeks after completion of our first…
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Medicare Brokers
Charlene, I spoke with my girlfriend and she IS licensed in Pennsylvania (it's where she is originally from). She'd love to help you out. Let me know if you're interested. I can give you her info. Jodi
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Break from Letrozole for 2 1/2 months
I will be going back on letrazole after a break after 2 1/2 months due to sudden onset of constant palpitations and one short episode of a/fib. I had to get a cardiac work up and getting that done has taken time. Getting in to see a cardiologist, wearing a zio patch for two weeks, waiting for the results and then scheduled…
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Stage III Cancer Survivors...15+ years and out
Let's just see what happens here...This is a "build it and they will come" experiment. It's time. If you are not a 15 year survivor but know the story of someone who is, please join in.
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Long-term survival of DCIS patients without radiation or hormone therapy
I'm interested in hearing from people who did not have radiation or hormone therapy after a lumpectomy for DCIS