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Hair loss and Kisqali
I have been recently diagnosed with Stage IV metastatic breast cancer after a year being stage II. I started Kisqali last week and was told I would only have hair thinning. I am loosing chunks of hair. Would love to hear if anyone has experienced this? My oncologist told me none of her patients had to get wigs and only had…
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Low-Dose Tamox Reduces Recur & Invasive Risk After Non-Invasive
Low-Dose Tamoxifen May Be an Option to Reduce Risk of Recurrence, Invasive Disease After Non-Invasive Breast Cancer December 18, 2018 A low dose of tamoxifen after surgery reduced the risk of recurrence, as well as the risk of new invasive disease, in women diagnosed with hormone-receptor-positive breast intraepithelial…
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Are you currently (or have you been) in a Clinical Trial?
I am about to start a clinical trial and am wondering about the experiences of others. I'm feeling a little rocky and at sea, because I've been in the care of a wonderful oncologist for the past three years, and I knew without a doubt that his prime objective was the same as mine - to keep me stable and maintain a good…
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Summer/Fall 2024 Radiation Support thread
Gather here to share experiences, ask questions, get encouragement, and support others who are going through radiation therapy along with you. Please share your diagnosis, any previous treatment you've had, and your scheduled start date along with your radiation schedule. We're all here for you!
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Worried About Inflammatory Breast Cancer? Start here
Hi! We know you're here and worrying about a symptom or change to your breast or breasts. You may have found yourself Googling your symptoms, which led you to finding information on inflammatory breast cancer (IBC). Before coming to any conclusion, we hope you can take a deep breath, and read below from the main…
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Contemplative practices - Affirmations, white light visualizations, healing meditations
Do you have a contemplative practice? A spiritual lifestyle ? imagery or healing meditations you like? Let’s share the love of positive affirmations and meditations. I just finished Ian Gawler's book You Can Conquer Cancer , and I was reminded how much I love self healing practices. I do white light meditations every…
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My Chemotherapy Journey
My infusion nurse suggested I make a journal so I will do it here hoping people can find information that may be helpful to them. Let's start: June 11 - port placement. It went well, I guess. But not sure if there was an injury with my surgeon. I saw him discussing something with the nurse like his finger got pricked or…
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Worries about local recurrence
Hi Everyone, it's been awhile. I just passed my 3 year cancerversary, and it's been a tough ride. In a nutshell, I feel like I've aged about 20 years due to stress and having all the estrogen sucked out of my body. I've also struggled with AI side effects and had several legit health scares (all turned out ok or at least…
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PTEN Gene mutation recommended mastectomy
I was recently diagnosed with PHTS after a gene test. This along with heredity and atypical ductal hyperplasia my doctor has recommended a double mastectomy. I'm 50, and I've decided that I'm going flat. I'm concerned that I'll have regret from a (will I still feel like me perspective) but I think it's the more logical…
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Stomach pain post Diep flap
I’m nearly three years out from DIEP flap surgery. Since the very beginning I’ve had issues with extreme muscle cramping in one spot of my left lower abdomen. I even get hard charley horses there! Any ab workouts or heavy lifting triggers this. Has anyone else experienced this, and did you find any treatments or solutions?
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Risk of diagnosis or recurrence after COVID booster(s)
Just a thought… I was watching today a youtube medical channel (Dr. John Campbell) and saw scientists interviewed coming up with evidence that the Covid boosters were extremely dangerous and the statistics of cancers are off the charts because of the spike protein vac. I myself was diagnosed triple negative 5 months after…
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Brain Mets Sisters
Starting this for a friend. Edited to explain that the friend was imbell who was feeling overwhelmed by wbr. She helped us all by starting this. Shes in peace now. See you in the clouds, imbell.
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Did you consider bilateral mastectomy for DCIS?
I am really struggling to make a decision about the best path forward, so I've come to learn from all of you. I am still waiting on genetic testing results to come through, but have no reason to believe that there will be anything of significance. If there is, I will pivot accordingly. I had a 1.2cm, grade 3 DCIS with…
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ADH Club
Can we start a thread on ADH (known as atypical ductal hyperplasia)? There may be one already existing, but without a lot of hunting around, it's not easy to locate and may not be recent. I'm 51 and have (had) no risk for BC other than being a female - non smoker, no immediate BC in my family, I'm fit, I exercise, eat…
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What are your “Mantras” to get you through a test, treatment, a bad day?
We all need tools to get us through our most difficult moments. If you have a mantra, or strategy, please share here!
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Any New Brunswickers with stage IV?
Finding it difficult to find local ladies dealing with Stage IV. Would love to hear from you!
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Advice needed - symptoms ongoing for over 18 months now
Hello everyone. I posted on here a few times many months ago, but considering I’m still suffering with no answers, I decided to come back for some advice. First, I no longer have a gynecologist that I feel comfortable with as the woman I was seeing left the group and since then I’ve been bounced around with no relationship…
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For Arimidex (Anastrozole) users, new, past, and ongoing
I found a couple of older threads about Arimidex, but they covered a large time span with a gazillion posts, so I thought I would start a new thread for Arimidex/Anastrozole users. I am starting on Anastrozole today. Plan is to take it for 5 years, possibly longer. I already have osteopenia and osteoarthritis (limited to…
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MRI after benign breast biopsy
I wanted to see if anyone else had this happen after their biopsy. My mammogram showed an asymmetry and distortion and the US showed an hypoechoic mass and another hypoechoic area with shadowing. I was thrilled when they said the biopsy showed benign fibrous changes. The radiologist wants me to have an MRI in 4 weeks to…
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Ultra hypofractionated (accelerated RT) in large breast cup? Help - need to decide!
I have stage 1 node negative invasive lobular breast cancer. Oncotype score of 9. I met with my radiation oncologist who gave me the option of the 3 week whole breast radiation with 1 week targeted boost (standard of care) or the ultra hypofractioned 1 week whole breast with same 1 week boost. Studies show it is equal in…
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Discontinuing Anastrozole
Hi All - In 2024 I had diagnosis of Stage 2A ductal carcinoma ER/HR+ HER2 -. BRCA 2 positive. 3cm tumor no metastasis to lymph nodes. I took an aggressive stance on surgeries, opting for a double mastectomy with nipple removal (January 2024) and then removed my ovaries and fallopian tubes in September 2024. I started AI…
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January 2025 Surgery Support Thread
Please gather here to get and give support. Feel free to share your type of surgery, date, and let us know how you're preparing and how you're doing post-surgery. We're all here for you!
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I say YES. YOU say NO....Numero Tre! Enjoy!
A little birdie told me to come back and save the day......
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Architecture distortion with benign biopsy but sent to MRI and surgeon
Hi everyone, I am new here and just went through a roller coaster with my breast exams over the past week. Hoping to get some help and support from this group. I am 38 and just finished breastfeeding my 1 yr old. I did my first mammogram last Friday and got callback for diagnostic mammogram followed by ultrasound. I was…
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Going flat or breast reconstruction
Scheduled to have bilateral mastectomy next month. I am very much undecided if I want to have reconstructive surgery or not and go flat. If I go flat, I am afraid I might get depressed as my body will be very different. With plastic surgery, I’ve read of women having so much pain and needing to do more procedures…
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What to expect from Kisqali (side effects)?
Hi, I'm a caregiver to my mom, who was diagnosed de novo with metastatic breast cancer just last month in August 2024. She has metastases to the bones, liver, and lungs, and she's scheduled for a brain MRI next week. She's started on Letrozole, which was paused while she's been undergoing palliative radiation therapy to…
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Has anyone had a preventative DMX years after Lumpectomy?
When I was going through breast cancer in 2021, my breast surgeon, my radiation oncologist, and my oncologist counseled me to get a lumpectomy and radiation. They told me that getting a SMX or DMX for what was thought to be a 5mm tumor (it turned out to be 3mm) was like trying to kill an ant with a sledgehammer. The…
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TRIPLE POSITIVE GROUP
This is primarily for people who find themselves with THREE +'s by their diagnosis. If you are new to breast cancer, please click on the link below and read. It is "What I Wish I Knew At the Beginning of Treatment." http://community.breastcancer.org/forum/6/topic/797454
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Drinking Alcohol!
Hello, I figured I better come here for some advice. I am a 8 year Breast Cancer Survivor. I have a history of Breast Cancer on my Mothers side of the family. However, I am a bit worried. I drink alcohol. I have about 4 drinks a week. If not more. I am a social drinker. I am to the point of getting worried that my Cancer…
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Pain in Breast 7 years post Radiation
I am seven years post radiation therapy on my right breast. I am very active and work out regularly. I have had very few issues. All my mammograms have been normal except showing fibrosis of the right breast. I was discharged early from my cancer doctors because I was not able to tolerate Hormone Therapy. Over the several…