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What is one thing you wished you knew about DCIS or any breast cancer diagnosis??
I went into my post DCIS diagnosis under the false assumption that my lumpectomy on the right breast and reduction on both was a one and done deal. I was not prepared for the roller coaster of events that occurred post surgery. DCIS in the 3X biopsied benign left breast, a left mastectomy, tissue expander placement,…
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Any stage IV surviving 5+ years ?
When you look up stats for stage IV they’re dismal, yet I continue to see lots of longer term survivors on this site. Some were given a year or two. Would love to hear how many are there and how life’s is for you. I’m coming up on three years and just failed with letrozole. MO says plenty options sti
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Anyone starting brand drug, Enhertu?
I have had growth of tumors while on current treatment. My onc and I have decided to try new treatment, Enhertu (FDA approved 12/20/19)! Wondering if anyone else out there is trying or was in trial? Julie
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💗 June 2026 Surgery Roll Call — You’re Among Friends Here 💗
If you have surgery coming up in June —whether it's a lumpectomy, mastectomy, reconstruction, or another procedure—this thread is for you. This is a place to connect with others who understand what it feels like to count down the days, manage the unknowns, and prepare for surgery and recovery. Whether you're feeling calm,…
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On edge with Kisqali
Hi all, I am currently getting my lupron shot to stay in menopause. I am also taking letrazole and kisqali (on for 3 weeks and off for 1 week). I feel like an angry monster when I am on Kisqali. My doctor says it’s not kisqali but I promise you it is. I feel less angry on my off week. I find myself being easily irritable…
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need to find how to treat it
I am asking on behalf of my mother. My mother is a 79-year-old woman with metastatic breast cancer involving the bones. She was originally treated with Letrozole for approximately 4.5 years. When Letrozole was stopped, she subsequently developed significant disease progression with severe hypercalcaemia and further…
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Any ladies from WISCONSIN??
i would love to connect to some nice ladies from my state since support groups are not available out here in the sticks and boondocks... 1/21/15 Apparently the thread I started has gotten a life of its own...im glad it has become so enjoyed by so many.
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Diagnosed with Stage III Breast Cancer - Start Here
For more information on Stage III Breast Cancer check out these resources at our main site: Breast Cancer Stage III Treatment Options by Cancer Stage: Stage IIIA, Stage IIIB, Stage IIIC If you are interested in connecting with other members diagnosed with Stage III Breast Cancer check out this topic: A Place to Meet and…
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Wednesday Weigh In
Some of us on the Let's Post our Daily Exercise thread decided that it might help keep us honest if we had to post our weekly losses or gains. Not posting your weight - just your net loss or gain. So here goes!
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TNBC MBC Stage 4
Hello - I actually joined this group awhile ago and never posted anything. I’m hoping to connect with like minded women living with MBC. I was first diagnosed in 2019, stage iiib; had the standard protocol, chemo, surgery, radiation.Cancer free for 18 months, recurrence in 2021, living with it. On several treatments…
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ER-, PR-, Her2+ Roll call
Hello everyone My mom was dx in November 2010. She is in her Chemo courses and only 2 sessions left. She is so well now and is very hopefull.My little niece makes her so happy and she is planning for the ceremony of her first birthday. Since she was dx I've explored in this site in different cathegories but sisters with…
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Poll: What surprised you most after being diagnosed with breast cancer?
After a breast cancer diagnosis and the whirlwind of treatment calms to a breeze, there can be pressure to move forward. To feel grateful. To seem okay again. But many people in our community describe something more complicated: learning how to carry a diagnosis while still trying to stay connected. To themselves, to the…
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Worried about continuing with Letrozole
Hi, I was diagnosed with metastatic breast cancer 41/2 years ago. Because of the advanced metastasis I was put on Letrozole, Palbociclib and Venetoclax. The drugs have kept me alive and continue to do so, but the Letrozole is really taking its toll on me. I'm 54 and feel like 80. I am barely able to walk and that is with a…
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Progression After Truqap (Capivasertib) + Fulvestrant – Seeking Experiences and Next-Step Options
I am seeking experiences and suggestions regarding next-line treatment options for my wife with HR-positive, HER2-low metastatic breast cancer. She has recently progressed on ibrance with exemestane then Capivasertib (Truqap) plus Fulvestrant, with PET imaging showing progression mainly in the liver and lymph nodes.…
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lymph node removal
I am 79 years old and have lobullar ILC breast cancer, stage 1 in both breasts. They are doing a lympectomy in a couple of weeks and also removing lymph nodes that are not cancerous, just for safety sake. Also have to do radiation for 3-6 weeks. How is the recovery for this type of surgeries? And the likely hood it will…
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Occult bc ER low (5%) HER2 neg treated as TNBC
I was diagnosed May 26, 2026 with breast cancer after a lymph node was biopsied after routine MRI(I have had LCIS since 2011.) further test and biomarkers show no further metastatic cancer and the breast is the source. No tumor found, so they are calling it TNBC. My Ki67 is low, 11-15%. I feel like I’m the only one dealing…
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9 years on Faslodex
I had a radical mastectomy in 2000 w/chemo, radiation the whole 9 yards. It was in my chest wall. I did not have reconstruction. I had 2.5 years on arimodex and 2.5 on another aromatase inhibitor. In 2017 I was diagnosed with Mets to my left lung. I’ve been on Faslodex for 9 years. I’ve been lucky, tumors have shrunk and…
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Post surgery medication need
I've just had a lumpectomy that was diagnosed 5 years ago. I was afraid of surgery because I didn't want radiation which I was lead to believe would have been necessary so I relied on estrogen blocking Letrozole and Kisqali. The y finally stopped working so I had a lumpectomy and 18 lymphnodes removed. The surgery was a…
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fungating tumor
how to treat a fungating breast cancer tumor
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🌟 June 2026 Radiation Roll Call — You’re Among Friends Here 🌟
If radiation therapy is part of your treatment plan this June, we'd love for you to join us here. ☀️ Whether you're preparing for your first session, settling into the daily routine, or counting down your final treatments, this thread is a place to connect with others who understand the experience. Radiation can bring…
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Haiku for Fun
Hi everyone. I've seen some poetry and Haiku on individual threads, but thought we could use a separate thread. I am in no way an expert, and this is simply for fun, so we won't go nuts if you don't have a "cut" or nature theme or other rule. The only rule on this thread is a measured syllable poem. Most common is 5-7-5.…
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Is there just a general drop in breast cancer open forum that is current ?
Is there a breast cancer drop in text discussion group that is current ?
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Losing weight
Hello Came here for some tips on losing weight. I started a diet almost a month ago and I'm struggling because I see almost nothing. It's my first attempt to diet since the diagnosis and I'm sad to see and feel how different my body is now. I don't recognise myself. I don't want to quit but i really need to see something…
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Lumpectomy Lounge....let's talk!
WELCOME TO THE LUMPECTOMY LOUNGE! I've searched and searched BC.org and couldn't find a specific post just for those of us who have had lumpectomies (unless there was one and it got buried). So, I thought that it was about time that we had our own place that we can come to...where we can discuss, ask questions, tell…
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Enhertu treatment
I just had my first Enhertu treatment last Thursday. Has anyone experienced blurry vision? If yes, did it resolve or get better before your next treatment? I'm due to have this once every three weeks.
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How to choose whether to do chemo or not
My oncologist has essentially told me that the decision about chemotherapy is mine. The research suggests that my type of cancer may not benefit much from chemo and that ovarian suppression may provide a similar benefit. I enrolled in the OFSET trial and was randomized to the arm that does not require chemotherapy, but my…
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Calling all TNs
I think that we tn's need to have a sign up list like some of the other threads have...maybe put your age, and also what treatment you have had or are now having. What to do you think? I can start: age 50, diagnosed at age 49 1/2, lumpectomy, 4 AC Dose dense (every two weeks) and 4 Taxol, Dose Dense every 2 weeks. 35 rads…
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Do You Feel Pressure to Seem Okay for the People Around You?
Do you ever feel as though you need to diminish your own needs for support or care in order to put on a brave face for people in your life? Has it been difficult to allow yourself to be vulnerable with friends and family, out of fear or concern that you might be a "burden" or that the reality of what you are facing would…
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Liposuction/Flying Squirrel
Hi. I have BCR lymphedema. It has been a long and difficult journey for me. I live in Tampa and have had limited success with treatment options and providers in this area. After being told by Moffitt there were no treatment options for me I went to Cleveland Clinic and met with Dr. Chen who recommended liposuction and…
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Invasive Lobular Cancer
Hi I'm Chris 73 years old diagnosed with Lobular invasive Breast Cancer grade 2 my first surgery was on the 6th May 2026 followed up with my report on the 4thJune 2026 meeting with my Surgeon. The tumour removed was 14mm and she also removed two smaller 3.5mm and 6mm ones in my left breast. I also had two Lymph Nodes…