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How long have you been Stage IV?
We have a thread of what age you were diagnosed at Stage IV, so how about "How long have you lived with Stage IV". Also please state if you were Stage IV from the get go. I'm asking for this information in hoping to have MANY more years than the 2-3 I was given and to give hope to those newly diagnosed with Stage IV. 1…
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Her2+ MULTIFOCAL
Hi. Anyone here Multifocal with her2+ only ? Er/pr- ? I was diagnosed with 2 tumors they are about 3 cm each and several satellite lesions around them. Nodes were negative. Started my treatment of TCHP. BUT I’ve heard with my tumors being multifocal and large, I have a higher chance of reoccurrence? Is that correct ? Any…
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Having surgery in October 2025? Let's support one another here!
Are you scheduled to have a lumpectomy or mastectomy in the month of October? Join us here where we support each other as we prepare for our surgeries, ask questions about what to expect, share reservations and fears, and support one another through preparation and recovery. And, we encourage others who've "been there" to…
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Just Diagnosed? Start Here
If you have just been diagnosed here are a few places to start from the main Breastcancer.org site: * Understanding your pathology report * Before Treatment: Planning Ahead for Survivorship * Breaking Research News about Planning Your Breast Cancer Treatment Also, a great thread chock full of advice for those just…
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HERCEPTIN and/or PERJETA Threads
I am currently on Herceptin and Perjeta with Zometa every three weeks. Would love to hear from others who have been on this targeted therapy and how well the treatments have been working for you..
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Concerned
I had my yearly mammo monday. I am 49 with family history of paternal grandmother having breast cancer. Mammo showed small mass 9 cm away from my areola. She had me do ultrasound after and then a cone biopsy for 3 samples. I was given Bi Rads 4 but with no subcategory. Ultrasound biopsy read Oval hypoechoic 0.6 x 0.3 cm…
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Song Game
I play this quite often on a soap opera discussion board I am a member of. It is a cool game imo. I will start with the name of a song. The next poster has to use at least 1 word out of my song name to post theirs and so on and so on. I can see clearly now
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Abemaciclib Verzenio for Stage IV
Luckylegs and friends on Abemaciclib - I am bumping the Verzenio discussion in the hopes that more people have started abemaciclib. We need to get a community going. I have not started abemaciclib but it is on my short list. Like many I am very interested in how people do on this treatment do, both as a monotherapy and in…
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Letrozole and frequent UTIs
Hi. I had a mastectomy on my right breast in March 2023. I started Letrozole in May 2023. I have noticed that I am getting frequent UTIs since I have been on Letrozole in addition to Osteopenia and increased cholesterol numbers. Any advice on how to reduce the UTIs. I don’t want to keep taking antibiotics.
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Anyone starting brand drug, Enhertu?
I have had growth of tumors while on current treatment. My onc and I have decided to try new treatment, Enhertu (FDA approved 12/20/19)! Wondering if anyone else out there is trying or was in trial? Julie
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insurance Diep
I had a mastectomy of the right Breast with a DIEP reconstruction at the same time. A year later, I had a follow-up operation to adjust the size and symmetry of the breast. The skin flap was removed as well. My insurance, Axa (with which I was insured fully for cancer cover), didn't want to cover the cost because they…
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Wednesday Weigh In
Some of us on the Let's Post our Daily Exercise thread decided that it might help keep us honest if we had to post our weekly losses or gains. Not posting your weight - just your net loss or gain. So here goes!
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Just diagnosed with invasive Lobular Cancer
Hi i Just got diagnosed with ILC and feeling really shook. I’m a young, active 57yo in “great” health. I have two tumours in my left breast and multiple complex and funky looking cysts. Right now I’m in the waiting game to get in to see my oncologist and get surgery. I was wondering if anyone out there was in the same boat…
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Diagnosed with TNBC in April
I have not started treatment yet but have been told to do keynote 522, surgery and radiation. For multiple reasons I do not want to do chemo treatment at this time. The tumor has gone from 3 cm to 5 cm and there may or may not be lymph node involvement scans say no but doctors think may be. I would like to do surgery and…
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Zoladex/Goserelin + Letrozole + Kisqali
hello! I was diagnosed with Stage 2 ER/PR+ HER2- lobular breast cancer late last year and have completed surgery and preventative chemo as there was no sign of spread post-surgery. I started hormone therapy consisting of monthly injections (Zoladex) and daily Letrozole in July and will add Kisqali this month. My hair is…
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Suffocating in the waiting...
For the last 6 months I have been experiencing a strange shooting pain sensation on my left side, right between my armpit and my breast and it would radiate through my breast. I ended up going to the ER because I thought that I was having a heart attack. I am almost 37 years old. The ER told me I had inflammation in my…
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Latissimus myocutaneous flap
Hi I would like to know if anyone has had this procedure? I had breast cancer 15 years ago and then treated with radiation. Breast cancer returned this year and I had a double mastectomy. I decided to go flat. One side healed normally. The other side due to radiation damage with the skin and underlying muscle and tissue…
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Anyone on DATROWAY (Dato-DXd)?
Hello-I’ve just started DATROWAY and have finished my second cycle with adverse side effects. I’m wondering if anyone has had the same experience and asked their oncologist about dose reductions, etc. to mitigate these. Thanks so much!
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Anyone every tried mistletoe therapy
Hello. I am new to this forum — actually I am new to any forum. This is my first-ever post of this nature. I have had a lumpectomy and radiation and now I'm taking estrogen suppression medications for 5 years. I want to do whatever I can to ensure this cancer never returns. Has anyone added mistletoe therapy to their…
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Going flat or breast reconstruction
Scheduled to have bilateral mastectomy next month. I am very much undecided if I want to have reconstructive surgery or not and go flat. If I go flat, I am afraid I might get depressed as my body will be very different. With plastic surgery, I’ve read of women having so much pain and needing to do more procedures…
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Afinitor/Aromasin
I am waiting for my pills to arrive and fearful of starting a chemo after almost seven years of anti-hormones. I immediately started looking for info on this site, and the Afinitor topic was started in Jan. 8, 2012 with 35 pages of comments to go through. Do you think it is possible to start a new topic now that this med…
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STEAM ROOM FOR ANGER
This thread is meant to be for RANTS and RANTING. Then Rant again. We need a place to simply get rid of the anger. Write it here. Unleash it all. Get it out. This isn't meant for the Stupid comments(great thread). This is for the gut wrenching, tell them off anger. IMPORTANT: When done ranting don't necessarily stick…
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Low WBC
Dear worriers, I hope you all are doing well. I need your collective wisdom. My wife finished chemotherapy 2 months ago and radiotherapy 3 weeks ago, but her WBC count doesn’t seem to be recovering that fast. I was wondering, how long after your last chemo, did your levels achieve baseline again? Thank you all for the…
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ER-, PR-, Her2+ Roll call
Hello everyone My mom was dx in November 2010. She is in her Chemo courses and only 2 sessions left. She is so well now and is very hopefull.My little niece makes her so happy and she is planning for the ceremony of her first birthday. Since she was dx I've explored in this site in different cathegories but sisters with…
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Hormone blockers - do I or don’t I?
hi- I’m a newbie. I’m 72, Diagnosed Dec 2024 with IDC, ER+PR+HER2+, no lymph nodes, tumor 2.2, stage 1B, grade 3, caught early. finished 6 rounds chemo : Herceptin, perjeta, taxotere, carboplaton, had lumpectomy this week- only removed sentinel node ( which is standard) and at this point will do 5 radiation treatments. My…
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Immediate reconstruction vs. going flat now and possible reconstruction later
Can someone tell me the risks & benefits of having immediate autologous reconstruction in the same surgery as single mastectomy? And the risks & benefits of going flat after single mastectomy now, but considering having autologous reconstruction a couple of years later? The breast had radiation treatment 18 years ago for…
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BI-RADS 3
Good evening, everyone, Sorry for the long post, I just needed to vent. I am 38 years old now, it all started 2 years ago, when I went to my doctor as my right breast was feeling sore, and my armpit was very painful. They did mamogram which turned to be that I have very dense breast, and then ultrasound, and there I had a…
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DCIS Stage 0 High Grade HR+
Hello to all you brave women!! I just joined this site and am making my first post. I am hoping for guidance and advice and what anyone else has done as I am feeling anxiety and some stress about what to do. I am 55 years old and was diagnosed in June at 54 years. (I just had a birthday in Oct) As in my title I was…
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Coming off of Arimidex
Hi all! Soon I will be coming off of Arimidex after 10 years! I'm nervous but hoping that maybe I will feel better. My eyes are getting worse and my hair has thinned soooooo much. I can see my scalp on top. I’m hoping I will also have more energy! I’m wanting to know if anyone can answer these questions for me? Will my…
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AST 107/ALT 203- talk me down please
Hi Everyone, Talk me down. I just moved across the country 2 weeks ago and saw my new oncologist yesterday. She wanted to get her own labs even though I had them done a month ago. My cancer diagnosis: 35 year old female Stage 1A 40% low intensity ER, 5%PR and HER2-. Finished 4 AC, 12 weekly tax/carbo 6/25/2024 (Full…