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Inflammatory BC - Triple neg - chemo, rad then surgery
Breast minimal response to chemo 4 rounds AC then 4 rounds T. I started radiation on 1/25/21 MO will add 1x wily chemo cisplatin on 2/8/21. I will have a total of 33 rad treatments 6,5 weeks. Just finished 2 weeks rads using miaderm 4x daily.. Breast size hasn't changed much - skin surface thick, red , swollen and I still…
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Wednesday Weigh In
Some of us on the Let's Post our Daily Exercise thread decided that it might help keep us honest if we had to post our weekly losses or gains. Not posting your weight - just your net loss or gain. So here goes!
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Unexplained rib upper abdomen pain IDC
Hi…My second post in 4 years. I am a “so-far” survivor of IDC left breast, lumpectomy and 2 lymph nodes removed. I have been having some unexplained and undiagnosed pain on my left side near and under my rib cage. Radiates to my back. Painful at times to lay on my side, bend to pick something up, rarely radiates to my…
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Looking for others with low risk, less than 2cm, IDC stage 1 grade 1HR+ HER2- on endocrine therapy
Are you like me? What endocrine therapy did you follow or are you following? Pre- or perimenopausal, stage 1, grade 1, low risk, node-negative, no genetic risk, screen detected ladies, let's hear from you! What were you prescribed and how have you changed it up over your therapy? What has worked for you? I've seen four…
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5 days postop
just wanted to give an update for those of you starting this journey. Had a mastectomy with direct to implant . And sentinel node bx last Thursday. This was for DCIS grade 3. Stage 0. This is my second go round with this. Had the other side done 6 years ago for same . Pleased with the direct to implant. Thankful I didn’t…
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Trigger Thumb?
A couple of weeks ago I woke up and my thumbs didn't want to work. They wouldn't bend and if they did they stuck in that position. The left side (BC side) is worse than the right. I don't know if it is related to the Anastrozole or just age but I decided to just go ahead and make an appt with an orthopedist. Saw him this…
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Looking for a little support and connection 💗
Hello, I’m hoping to seek some support from anyone who may have found themselves in a situation similar to mine, especially around the decision between re-excision and mastectomy/bilateral mastectomy. I’d really love to hear about your experiences and what helped you make your decision (if comfortable doing so, of-course).…
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Hello everyone - I am new here
Hello, I'm so glad to have found this site and all of you. This is my first post, so hope I've done it right. I'm here to learn, share and be a comfort to someone else. I've been going thru my journey since late June. I have just finished wk 4 of recovery from my lumpectomy surgery. I have not started treatment yet - - I…
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Cats, cats, cats
a thread for crazy cat ladies! I thought maybe just pics of your own cats, and if there's not enough then just any old cat you can find! I have 8. Technically only 5 are mine, the others think they live here. Mostly because I feed them with everybody else and they never seem to leave!
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Pain years after Lumpectomy w/ Biozorb marker & Radiation
I had surgery and radiation in the 1st half of 2024. Anyone else having pain in the breast and from bottom of rib cage all around the side and down the arm on the surgery side? I have seen the recall on the Biozorb marker and I’m not sure if my pain is from that or just general pain from the surgery and radiation.…
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Parathyroid disease and breast cancer
I keep on seeing posts that people have had these dual diagnoses; sometimes the parathyroid disease pre-dated the bc and sometimes the other way round. I am becoming convinced that the two are causally related, so am interested to see just how many of you have been affected. Many of us are getting osteoporotic and blaming…
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Faslodex Girls Thread
Tips for taking Faslodex without pain: ABSOLUTE MUSTS: * Warm up the syringes. At least room temperature. Armpits work well, as does belly skin. * Take the weight off the leg on the side of the shot. Relax that cheek/leg as much as possible. * Inject SLOWLY! It should take at least 30 seconds to empty each syringe. General…
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Ghost and Other Phenomena: What's your Story?
I have had many in my life, not sure when the earliest occurred. Perhaps, the inner voice that cautions is the strongest in me. It's totally different than the right left angels talking to each other on our shoulders. It's the voice that says something different. Mine have always been short seriously abrupt messages. "No',…
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STEAM ROOM FOR ANGER
This thread is meant to be for RANTS and RANTING. Then Rant again. We need a place to simply get rid of the anger. Write it here. Unleash it all. Get it out. This isn't meant for the Stupid comments(great thread). This is for the gut wrenching, tell them off anger. IMPORTANT: When done ranting don't necessarily stick…
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In Treatment Zoom Meet-Ups: Place to keep chatting
This is a space held for our In Treatment Zoom Meetup members to gather in between meetings for updates and support. Join our Virtual Meet-ups! Tuesdays at 1pm ET, register here: https://us02web.zoom.us/meeting/register/tZEvc-uurzgvHNyvhpw-l0KPkwjlKN_KbOeC#/registration Thursdays at 6pm ET, register here:…
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Ribociclib/Kisqali with Letrozole - Any one on this combo?
I am starting this new forum for all those who are on this newly approved drug combo. I started on Kisqali/Letrozole combo 6 weeks ago and so far it has been tolerable. Letrozole gives me joint pain and low back pain. My oncologist has asked me to take this on alternate days. Would love to hear from others about their…
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I am grateful
I am grateful for each day God gives me. I am grateful for friends. What are you grateful for?
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Anyone have acceleration radiation?
Hi, I'm new here. My biopsy result was DCIS stage 0. A lumpectomy was performed, my surgeon said no further surgery is needed. Radiation is next but the thought of five days a week for six weeks depresses me. Has anyone did the acceleration radiation? I could handle that to shorten treatment. Can we firmly request it or…
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ELAINE 3 trial
just wanted to share with all those who have ESR1 mutation a comment from one participant. Looks like it’s working so there is hope for an approval. This is from a different site and a patient named Irit. Hi everyone, I promised an update on the clinical trial I participate in since March 2024, so here it is. The trial is…
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Lost in system
Hello. My name is Valerie, I'm 54. On Monday I had a mamogram which found a "new 1.7x1.2 spiculated mass in the anterior of my areolar. Due to positioning they could not provide a bi rads score. It states that an ultrasound is required. Its been 4 days and I have not been called. The "unknown" is eating me up. My Dr is on…
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First abnormal mammo with US - BIRADS-5! Help with report...
Hey there, I'm mid-40s female, two kids (both BF), history of recurrent mastitis in the area of the breast where this report is focused. I went for my last diagnostic mammogram that was watching calcifications (BIRADS-3) I've had since my very first mammogram. This time was different—tissue changes, so they sent me off for…
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Desperate at 33: Bedridden from AI joint pain
Hi everyone, I am 33 years old and feeling completely trapped. I really need to hear from other women who have navigated this nightmare. My tumor was 95% ER+, with a BRCA 1/2 VUS (treated as negative) and an Oncotype DX of 22 (intermediate zone). So far, I have completed 24 months of ovarian suppression shots plus an…
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Grouped calcifications on mammogram, worried
Hello! I just got my first ever abnormal screening 3D mammogram, and I'm pretty anxious about it. I also just need to get something off my chest because I think I might have messed up my mammogram. I'm 52 with no family history of breast cancer. I've had at least 5 years of normal mammograms. On my last mammogram, my right…
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💛March 2026 Chemo Check-In: You don't have to do this alone!💛
If chemo starts for you this March, let this be your sign to step in and say hello. 💛 You do not have to face this chapter quietly—or alone. This space is here to hold the real stuff. The anticipation. The fear. The courage. The logistics. The “how is this going to work?” thoughts at midnight. However you’re…
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Approaching surgery date
Hi ladies can anyone tell me what to expect with the latismus doris procedure, pain after surgery and life after surgery
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LIFE AFTER SURGERY
I AM HAVING SURGURY AND JUST NEEDED TO CNECT WITH THOSE THAT HAVE ALREADY GONE THRU. LOOKING FOR WHAT TO EXPECT AFTER GOING HOME
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Tamoxifen
I was diagnosed in 2025 with grade 2, ER-positive, PR-positive, with associated high-grade DCIS and extensive lymphovascular invasion. Node negative I had a partial mastectomy and radiation. I been Tamoxifen since December. The side effects are such joint pain has subsided it's the low mood no motivation and exhaustion…
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Reconstruction with reduction. Help pls!
Maybe this has been covered before, but I couldn't find quite what I'm looking for, so I'm hoping some of you can share your experiences! I was diagnosed with Stage 0 DCIS about two weeks ago. I have a strong family history of breast cancer, and I've always known what decision I would make if my number ever came up. So, in…
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🌟 September 2026 Radiation Support — Gather Here!🌟
Having radiation therapy this September? Whether you’re preparing for your first session, settling into the routine, halfway through treatment, or counting down to your final appointment, this thread is for you. This is your place to connect, ask questions, share updates, celebrate milestones, and support others who…
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Abemaciclib Verzenio for Stage IV
Luckylegs and friends on Abemaciclib - I am bumping the Verzenio discussion in the hopes that more people have started abemaciclib. We need to get a community going. I have not started abemaciclib but it is on my short list. Like many I am very interested in how people do on this treatment do, both as a monotherapy and in…