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Occult Primary with Lymph Node Metastases
Does anyone else out there have experience with an Occult Primary Breast Cancer? I was diagnosed this week with Breast Cancer in a Left Axillary Lymph Node but they can't find any cancer in my breast - I've had whole breast US, breast MRI, and biopsy of two small lesions in my breast that they didn't think looked like…
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Newly Dx: IDC 7mm, Grade I, ER/PR + (100% 3+ intensity for both), HER2 negative, Ki-67: 16%
Right Breast, 9:00, posterior depth 8cmfn. Hate that I'm here, but so thankful for a place to go. So far, prognosis seems good based on what we know right now (still need MRI, awaiting genetic testing, don't know staging, etc.). I met with 2 different surgeons in DFW are this week. Both said similar things and both seem to…
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Any stage IV's stop Enhertu after going into remission?
Has anyone who reached NED while on Enhertu but had to stop due to side effects, gone on to achieve lasting remission (1+ years) or did your cancer return soon after?
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I am grateful
I am grateful for each day God gives me. I am grateful for friends. What are you grateful for?
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STEAM ROOM FOR ANGER
This thread is meant to be for RANTS and RANTING. Then Rant again. We need a place to simply get rid of the anger. Write it here. Unleash it all. Get it out. This isn't meant for the Stupid comments(great thread). This is for the gut wrenching, tell them off anger. IMPORTANT: When done ranting don't necessarily stick…
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Anyone starting brand drug, Enhertu?
I have had growth of tumors while on current treatment. My onc and I have decided to try new treatment, Enhertu (FDA approved 12/20/19)! Wondering if anyone else out there is trying or was in trial? Julie
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Newly Diagnosed Member
Hi, I was diagnosed last month and have my surgery consult tomorrow. Over the past few days, I've doing a podcast deep dive and am greatly appreciative for the podcasts that I listed to from this website. What a great wealth of information! I'm happy to join your community here! (Well, not happy to have cancer but happy to…
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Invasive lobular carcinoma
I am new to the forum, felt I needed some support to go through this whole process of my diagnosis. I am 73 years old, biopsy report invasive carcinoma, 7mm, her2 negative, ESTROGEN/PROGESTERONE POSITIVE GREATER THAN 90%.. appointment with surgeon 1/6 hopefully have surgery date set up. Due to the nature of this disease I…
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Stage III Cancer Survivors...15+ years and out
Let's just see what happens here...This is a "build it and they will come" experiment. It's time. If you are not a 15 year survivor but know the story of someone who is, please join in.
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Cool Capping
I got fitted for my cool cap today. I start my first taxane treatment next Wednesday. I have thick hair but I did cut it to make more manageable to my chin. Looking to hear some experiences. I and so scared im not going to be able to handle it or I do it all for nothing.
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Recently got diagnosed with DCIS at 24 years old
Hi everyone, I’m really glad I came across this space. I’m 24 years old and was recently diagnosed with low-grade ductal carcinoma in situ (DCIS), estrogen-positive. It started when I noticed a lump in my left breast, which I honestly didn’t think much of at first. I think I was influenced by people around me—some of my…
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Podcast: What Is Palliative Care and When Do You Use It?
Palliative care focuses on pain and symptom relief. Dr. Joe Straton explains why it’s appropriate for anyone with breast cancer. Palliative care is often confused with hospice care, but the two are very different. This podcast is the audio from a special Virtual Community Meetup featuring guest moderator Dr. Joe Straton.…
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Poll: What part of your breast cancer experience feels hardest to explain to others?
Some things take time to feel. Others take time to say. They show up later. In a post sent at 2 a.m. In a reply that starts with, "I didn't know anyone else felt this way." Scanxiety that sticks around even after good news. A body that feels different, whether treatment is behind you or still ongoing. Conversations with…
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Unilateral or Bilateral Mastectomy - Pros & Cons for ILC
Hi, I learned on April 12th that both biopsies taken from my left breast on March 26th have ILC. The MRI showed at least three more (Stage 1a). They are all very small, but given there are now at least five, the surgeon's recommendation is unilateral mastectomy. I am about 95% certain I'd like to just go for the bilateral,…
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Dense breast and hidden cancer
Greetings all! The most alarming thing for me was the discovery that dense breast make it difficult for radiologist to discover abnormal cells and signs of breast cancer. I have never missed a mammogram since I was 50. I am now 74. My last mammogram was in October. All results were great… see you next year. Then I found a…
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Upper back burning after all this time of managing lymph
Hi everyone. Haven't been here in a while. I've had lymphedema in many areas of my old body now for years and years (I won't say how many :) - I wear a lot of different compression garments depending on the severity on the day, sleeves, vests etc. My question is: does anyone else have quite severe burning pain in the upper…
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Augtyro
I was recently prescribed Augtyro (repotrectinib) because of NTRK gene fusion. When I was on Verzenio and Fulvestrant/Faslodex, tons of people had experiences and could talk through side effects. Now that I'm on a rare drug, I don't have that group. Is anyone on or been on this medication?
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🌟 April 2026 Radiation Roll Call — Step In, Check In, You’re Not Alone 🌟
If radiation is part of your plan this April, this is your invitation to step in and introduce yourself. ☀️ You’ve found a space where people truly get it—and we’re ready to meet you. Whether you’re waiting for your first session, in the rhythm of daily treatments, or already ringing the bell, this is your place to check…
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DCIS: choosing surgery only, followed by monitoring
Hi all, Would love to start a thread for those with DCIS who chose surgery only, no RT or HR meds. I've done a lot of research and am comfortable with my decision based on my pathology and low Oncotype score. I will have monitoring twice a year, once w GYN & mammogram and once w BS & ultrasound, so should anything change…
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Early Stage Breast
Hello, I am really scared of receiving my recent biopsy of early stage breast cancer today and came across this site and about to turn 54 and not what I really wanted to hear. I'm just reaching out for a community who are traveling with cancer. They are not sure where it has spread or if it is contained with the 15m size…
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Long-term survival of DCIS patients without radiation or hormone therapy
I'm interested in hearing from people who did not have radiation or hormone therapy after a lumpectomy for DCIS
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Cats, cats, cats
a thread for crazy cat ladies! I thought maybe just pics of your own cats, and if there's not enough then just any old cat you can find! I have 8. Technically only 5 are mine, the others think they live here. Mostly because I feed them with everybody else and they never seem to leave!
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Intraductal Papilloma questions
Hi there! I've read some posts on here and gleaned a lot. I'm a 27 yr old, and found out recently that I have a 10mm intraductal papilloma in my right breast. (For what it's worth, over the last year this breast has doubled in size, and a few years ago I had another round of biopsies done on breast so there's a lot going…
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TNBC MBC Stage 4
Hello - I actually joined this group awhile ago and never posted anything. I’m hoping to connect with like minded women living with MBC. I was first diagnosed in 2019, stage iiib; had the standard protocol, chemo, surgery, radiation.Cancer free for 18 months, recurrence in 2021, living with it. On several treatments…
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Scar sore and armpit sensation
Had a smx and slnb for dcis back in January, alll went well and treatment has finished , jve noticed over last week or so the scar feels tight and I have awful itchy feelings , like pickles under the armpit, no swelling or signs of infection, is this normal ?
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Mind is spiraling….
Ok friends. For some reason, I’m spiraling. Background story: I have a history of DCIS, left breast. I had a DMX as my breast oncologist surgeon was in agreement with the surgery. This all happened in 2017. Direct implants at the same time. A year later in 2018, had fat grafting in both breasts. All has been well; have had…
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CALLING ALL ARTISTS- Lets make an art gallery!
We would like to create a slide show gallery of our YOUR art! Paintings, sketches, ceramics, sculpture, crafts, gardens, quilts, photography, jewelry, stained glass, mosaics, poetry .... you name it! We may show this slide show at our annual Rock the Ribbon event on October 22nd. Please post photos here, even if you have…
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Breast and truncal lymphedema
I’ve move from PT for nerve impingement to lymphedema OT for breast and truncal lymphedema. My OT says she considers me Stage 0 lymphedema in my arm due to symptoms I have however I don’t have enough swelling yet in my arm. Yet. I’m in compression bras 23/7, have multiple pads to wear in bras for additional compression, do…
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"Roll Call" for those who've stopped Hormonal Therapy early - short post to share status?
If you quit or reduced hormone therapy and don't mind sharing future status at least once a year, could you share concisely current cancer status (no evidence of disease, metastisis, new breast cancer) or other health facts? This will give an easy to follow thread of results of quitting. It is such a gut wrenching decision…
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Ribociclib/Kisqali with Letrozole - Any one on this combo?
I am starting this new forum for all those who are on this newly approved drug combo. I started on Kisqali/Letrozole combo 6 weeks ago and so far it has been tolerable. Letrozole gives me joint pain and low back pain. My oncologist has asked me to take this on alternate days. Would love to hear from others about their…