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Faslodex Girls Thread
Tips for taking Faslodex without pain: ABSOLUTE MUSTS: * Warm up the syringes. At least room temperature. Armpits work well, as does belly skin. * Take the weight off the leg on the side of the shot. Relax that cheek/leg as much as possible. * Inject SLOWLY! It should take at least 30 seconds to empty each syringe. General…
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Abemaciclib Verzenio for Stage IV
Luckylegs and friends on Abemaciclib - I am bumping the Verzenio discussion in the hopes that more people have started abemaciclib. We need to get a community going. I have not started abemaciclib but it is on my short list. Like many I am very interested in how people do on this treatment do, both as a monotherapy and in…
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Stage IV MBC Fitness
Hello! Welcome! We are done with Stage IV, moving on and planning to staying healthy for a long time. We're Stage V (Which is not dead. We're doing fine, ready to live with this beast.) This is the American Cancer Society/NCI consensus on exercise for cancer patients. * 150 minutes/week moderate-intense aerobic exercise or…
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Electric pulse therapy users for MBC?
Has anyone seen this, or have any experience with this? I have MBC right now just breast and bone, (but have previously had cancer in my brain, liver, and leptomeningeal). I'm especially interested in the bone-benefit, since that is the most widespread. Not sure this youtube link will post, but the title on youtube is "New…
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Lumpectomy vs mastectomy decision
Diagnosed Feb 2026. IDC, Grade 1, HR+, HER 2 negative, Ki67 22percent I think I am still in disbelief. No family history. Also did genetic testing, BRCA testing shows no mutations at all. In addition, in 2019, was diagnosed with low grade, non muscle invasive bladder cancer. I get monitored every 3 months for that, it has…
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🌟 March 2026 Radiation Roll Call - Support is here! 🌟
If radiation is part of your plan this March, this is your cue to step in and introduce yourself. ☀️ You’ve found your people. Whether you’re waiting on your start date, driving to daily sessions, or already ringing the bell, this thread is your check-in spot. A place for honesty. For “Is this normal?” questions. For…
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Fat necrosis, Bi-Rad 2
hi all, DMX 9 years ago for DCIS. (2017) Been followed since then for ultrasounds every 6 months as precaution. recently felt a small, firm pea sized lump in non cancerous side. Both ultrasound and mammogram came back as Fat Necrosis. Had the breast surgeon and two radiologists look at the imaging. My question.. why NINE…
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Benign adenosis with discordant results
I have a 17mm lump in my left breast. The imaging (mammogram and ultrasound) looked highly suspicious (e.g., BIRADS 3), but the two separate biopsies only showed benign adenosis, therefore, the results are discordant. I am also experiencing nipple discharge (yellow colour). At this stage, I have declined to have a…
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Gardening, anyone?
I'm still under a ton of snow, and it's only 9 degrees today, but I just signed up for our county's Master Gardening program. Now I can't wait to dig in the dirt. I have little knowledge and hope these classes help. I love flowers and plants but do not have a clue what to do with them. I'd love to hear from others who…
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Delayed Reconstruction..5 wks post up. What did he do??
Hi everyone. I am five weeks postop and due to see my surgeon this Wednesday.. I’m trying to prepare myself because what I asked for and what he did seem to be two different things. I had existing implants and decided on doing a simple explant with a lift on my good side.. on my cancer side he has done a tuck and roll with…
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Letrozole
Hi, I have been taking letrozole for 1.5 years and have decided to stop. I had stage 1 invasive ductal carcinoma. Treatment involved partial mastectomy, 20 treatments of radiation and letrozole 10 mg daily for 5 years. The hot flashes, insomnia and fatigue is really affecting my quality of life. I’m curious how many of you…
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Iron Infusion—have you had one?
Hello Friends: I had a phone appt with my MO today. We talked about my blood work. My iron deficiency panel is just not changing much. My ferritin hasn’t gone above 27. It’s 16 now. She said it should be around 100.My body isn't absorbing iron so she is ordering a iron infusion. Have any of you had iron infusions? Are…
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Contemplative practices - Affirmations, white light visualizations, healing meditations
Do you have a contemplative practice? A spiritual lifestyle ? imagery or healing meditations you like? Let’s share the love of positive affirmations and meditations. I just finished Ian Gawler's book You Can Conquer Cancer , and I was reminded how much I love self healing practices. I do white light meditations every…
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Recently diagnosed. 1/27/26 IDC grade2, Stage 1A ER+
Decided on double mastectomy, having mri with contrast today, then meet again with breast & plastic surgeons on 2/19 to schedule procedure. Anxious, scared, feeling like I'm forgetting something…..just crazy
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BRCA2 gene mutation of uncertain significance.
Hello everyone, I have been diagnosed with Stage 2 BC recently. Got my genetic report yesterday. I have got a finding of BRCA2 Variant of uncertain significance c.9307A>G and MSH6 VUS c.943T>A Anyone with similar mutation? I have a family history of breast cancer in mother and sister. Genetic testing not done in them.…
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Listing our BRCA mutations - maybe we can find matches
My idea is that we can use this topic to post our genetic mutation on the off chance that we can find someone else with the same mutation. I realize that this is a long shot because there are so many variations, but what the heck? I tried searching FORCE for mine with no luck. Here's my family's: BRCA2 - 2024del5
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Share your story of Genetic Testing
Dear Members, Would you be willing to share your story about genetic testing? (no pressure, only if you are inspired!) We are interested in the following questions: What led you to doing the testing? What were your results, and what choices have you made based on the findings? Was payment an issue? How have you discussed…
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💛March 2026 Chemo Check-In: You don't have to do this alone!💛
If chemo starts for you this March, let this be your sign to step in and say hello. 💛 You do not have to face this chapter quietly—or alone. This space is here to hold the real stuff. The anticipation. The fear. The courage. The logistics. The “how is this going to work?” thoughts at midnight. However you’re…
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Architecture distortion with benign biopsy but sent to MRI and surgeon
Hi everyone, I am new here and just went through a roller coaster with my breast exams over the past week. Hoping to get some help and support from this group. I am 38 and just finished breastfeeding my 1 yr old. I did my first mammogram last Friday and got callback for diagnostic mammogram followed by ultrasound. I was…
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I say YES. YOU say NO....Numero Tre! Enjoy!
A little birdie told me to come back and save the day......
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Long term "high oncotype test" survivors
Is there any long term survivors who have had a high oncotype score. I know that this test is relatively new but I also know that it has been on the market at least 4 years. So I know that "long term" regarding this test isn't very long term. I had it done 3 years and 4 months ago. My oncotype score was 52. My onc told me…
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Should Phytoestrogen foods be avoided in ER+?
Hello everyone, I have been recently diagnosed with Stage 2a BC Grade 3 IDC HR+ Her2 neg. Currently I am on Letrozole. Should I avoid foods with phytoestrogens like soy, berries, flaxseeds, walnuts, dates, prunes?
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Recurrence after 10 years?
Hello, Dx'd with TN cancer 10/27/2015, and then with uterine cancer in 2020. This week, I was taking a shower and felt a lump in my right breast. It is painful to the touch, and it is as though the tissue around the marble-sized lump has disappeared. I know I don't know for sure, but I know —I am sure you all know what I…
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Ribociclib/Kisqali with Letrozole - Any one on this combo?
I am starting this new forum for all those who are on this newly approved drug combo. I started on Kisqali/Letrozole combo 6 weeks ago and so far it has been tolerable. Letrozole gives me joint pain and low back pain. My oncologist has asked me to take this on alternate days. Would love to hear from others about their…
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Bone Mets Thread
I've started this thread after suggestions that it would be useful. Mod Note: We have removed the original link as it is no longer viable. At one of our member's' recommendation we are offering this link as a resource for you. https://youtu.be/YpFfLrITfEI
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Ribociclib benefit vs risk
Hello, anyone with T2N0-Hormone positive and Her2neu negative-Grade 3 IDC- Ki67 30 pc- LVI present, please connect. If you are someone with similar profile and post menopausal (50years+) and taking Letrozole+ Ribociclib, please let me know.
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All about Xeloda
I will complete my first cycle of Xeloda today (2 weeks on; one week off). I have already noticed some signs of HFS on my feet. Sometimes they are red and feel hot. I've had some minor skin peeling, but not any blistering. The heels are the worst (the most sensitive) and it is uncomfortable to walk. I hope I get to see the…
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Kisqali
hello everyone, I am new to this forum and wonder if anyone can help me. I have invasive lobular cancer which had spread to my lymph glands by the time I was diagnosed, a year on and I an I have had a mastectomy, completed radiotherapy and have started taking Letrozole.. My Oncologist yesterday has offered to start me on…
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NATALEE TRIAL
My dr. wants me to join the Natalee trial which is based on the success of the Monaleesa trial for women with Stage 4 breast cancer. the drug is Kisqali (ribociclib) tablets. It was administered in 6 mg tablets for the Monaleesa trial and will be given in 4 mg for the Natalee trial. The problem I am having with it is the…
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TNBC MBC Stage 4
Hello - I actually joined this group awhile ago and never posted anything. I’m hoping to connect with like minded women living with MBC. I was first diagnosed in 2019, stage iiib; had the standard protocol, chemo, surgery, radiation.Cancer free for 18 months, recurrence in 2021, living with it. On several treatments…