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🌟 March 2026 Radiation Roll Call - Support is here! 🌟
If radiation is part of your plan this March, this is your cue to step in and introduce yourself. ☀️ You’ve found your people. Whether you’re waiting on your start date, driving to daily sessions, or already ringing the bell, this thread is your check-in spot. A place for honesty. For “Is this normal?” questions. For…
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To take or not to take Tamoxifen
I had to suddenly stop taking HRT after 25 years. Then had a double mastectomy late in Sept 2025 followed by radiotherapy. Since stopping HRT and surgery I have very bad joint pain everywhere. I am 76 years old. I am concerned Tamoxifen will make the joint pain worse. My oncologist prescribed 20mg but I have not started…
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💗 February 2026 Surgery Roll Call—Let’s Do This Together 💗
If surgery is on your calendar this February—lumpectomy or mastectomy—you’ve found your people. This thread is your meetup spot: a place to show up exactly as you are, whether you’re feeling steady, scared, curious, or all of the above. We’re here to swap questions, share nerves, trade tips, and offer the kind of support…
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Hormone Therapy - this counts as hard!
Shared with gratitude to the original author, Kylie Dahl. Expressing what so many of us feel but aren’t always able to put into words. “No one warned me that this part could hurt like hell. I’m on Herceptin and a hormone blocker, and the joint pain is relentless. Hands, hips, knees, shoulders, back, feet stiff, aching,…
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Joint pain on Trastuzamab (Kanjinti)
Hi everyone, I completed 12 weeks of Taxol + Kanjinti at the end of January. Since then I have received 2 Kanjinti infusions, and will continue with these every 3 weeks until November. I am wondering if anyone has experienced joint pain in their elbows related to this treatment? Both of mine ache, especially after sleeping…
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💛 February 2026 Chemo Check-In—This Is Your Circle 💛
If chemo begins for you this February, you don’t have to walk into it alone. This space is here so you can land somewhere soft, honest, and understanding—surrounded by people who truly know what this chapter can feel like. Come as you are. Brave, anxious, exhausted, hopeful, unsure. All of it belongs here. We invite you to…
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Cats, cats, cats
a thread for crazy cat ladies! I thought maybe just pics of your own cats, and if there's not enough then just any old cat you can find! I have 8. Technically only 5 are mine, the others think they live here. Mostly because I feed them with everybody else and they never seem to leave!
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💗 March 2026 Surgery Roll Call—Join here for support! 💗
If surgery is on your calendar this March—lumpectomy or mastectomy—this is your place. 💗 Consider this your official roll call. Whether you’re calm, overwhelmed, full of questions, or riding every emotion at once, we want you here. Post. Introduce yourself. Let us know you’re counting down the days. This thread is more…
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Birads 5 with calcification
I’ve been hesitant to post because I didn’t want reality to set it but here I am. I’m a 33 year mother of 3, youngest is 6. Just like most of the ppl in the group, It all started with me noticing a lump. I took action almost immediately. I made an appointment to see my primary doctor which took me 2 weeks to get in. I…
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TNBC MBC Stage 4
Hello - I actually joined this group awhile ago and never posted anything. I’m hoping to connect with like minded women living with MBC. I was first diagnosed in 2019, stage iiib; had the standard protocol, chemo, surgery, radiation.Cancer free for 18 months, recurrence in 2021, living with it. On several treatments…
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Seeking Advice After Being Newly Diagnosed with DCIS
Greetings y'all, I learned on Thursday that the pathologist found DCIS in two biopsy samples taken from a clumped 3.6 cm lesion in my left breast (which was discovered via a MRI scan). The radiologist was unable to biopsy an additional 0.9 cm area of nonmass enhancement noted posterior along the pectoralis muscle 1.1 cm…
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Post radiation skin reaction
I’m 3 weeks post radiation treatment. Last week, my right breast (treated area) turned bright pink and itchy. I was given a topical steroid and have seen my radiation oncologist twice this week. He’s hoping the cream will start to do its job. Next step is an oral steroid. The need to want to itch is horrible. The more I…
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Occult Primary with Lymph Node Metastases
Does anyone else out there have experience with an Occult Primary Breast Cancer? I was diagnosed this week with Breast Cancer in a Left Axillary Lymph Node but they can't find any cancer in my breast - I've had whole breast US, breast MRI, and biopsy of two small lesions in my breast that they didn't think looked like…
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Anyone on Gemzar Alone of MBC?
I have seen many people getting Gemzar with Carboplatnin but not Gemzar alone. My Onc thinks there is not difference in OS (overall survival) just more toxicities. I saw that on one study they had the same OS but I get different information from reading other articles. How long were you on Gemzar and how successful was it?…
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HER2 Positive-anyone 10 years out?
Hi ladies, I was wondering if there are any women out there who are 10 years or longer with her2 positive breast cancer? When I was diagnosed in 2008, my prognosis said '80% chance of no recurrence in 10 years'. Wondered what they based this on, as I have yet to talk to anyone past 6-8 years and they seem to have had…
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Very ill newbie asks about long term use of perjeta
Hi, first I'm very sorry that these things might have been adressed already, but I am very ill with ME and after had perjeta/herceptin treatment for more than 9 years now, my body and brain feels like it is breaking down and I have a hard time thinking, searching for info etc. I'm bed bound from ME, and have been so prior…
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Dentist appointment while on Herceptin?
Hi - has anyone had a dentist appointment, while on Herceptin, Perjeta, or Phesgo? My chemo ended in April, but I'm on Phesgo until Feb. Phesgo is just injectible Herceptin plus Perjeta. I have a dentist appointment on Tuesday (checkup with cleaning). Just wondering whether anyone had any problems. Thanks!
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How are people with liver mets doing?
I continue to be very scared once I found my liver mets progressed after having to go off doxil. I am hoping to find some support in alleviating my deep seated fears by hearing other stories of people living and dealing with liver mets. My onc says I have such a petite frame (105) that an enlarged liver will definitely…
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Bone Mets Thread
I've started this thread after suggestions that it would be useful. Mod Note: We have removed the original link as it is no longer viable. At one of our member's' recommendation we are offering this link as a resource for you. https://youtu.be/YpFfLrITfEI
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Faslodex Girls Thread
Tips for taking Faslodex without pain: ABSOLUTE MUSTS: * Warm up the syringes. At least room temperature. Armpits work well, as does belly skin. * Take the weight off the leg on the side of the shot. Relax that cheek/leg as much as possible. * Inject SLOWLY! It should take at least 30 seconds to empty each syringe. General…
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Should I find a new oncologist
I finished treatment for breast cancer 9/25. I’m still waiting to get these @#$&$#& expanders out. Radiation did a number on my skin and were waiting another month to get as much healing as possible. My issue now is that I don’t like my oncologist. I’m okay with my surgeon. Love my plastic surgeon. Don’t care at all for my…
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Losing weight
Hello Came here for some tips on losing weight. I started a diet almost a month ago and I'm struggling because I see almost nothing. It's my first attempt to diet since the diagnosis and I'm sad to see and feel how different my body is now. I don't recognise myself. I don't want to quit but i really need to see something…
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Abemaciclib Verzenio for Stage IV
Luckylegs and friends on Abemaciclib - I am bumping the Verzenio discussion in the hopes that more people have started abemaciclib. We need to get a community going. I have not started abemaciclib but it is on my short list. Like many I am very interested in how people do on this treatment do, both as a monotherapy and in…
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48, DCIS, IDC, ER-,PR-,HER2+
Hello, newly diagnosed 2/16 with 2 sites of DCIS in left breast, IDC of 3mm per biopsy, HER2+ and waiting for my surgical oncologist appointment 3/2. The waiting is definitely hard.
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How long does bone pain last from Neulasta injection?
I had my first TCH on Friday 12/16 and then Neulasta on Sunday 12/28. I haven't had too many side effects except pain in my hips and lower back that is not relieved by Ibuprofen and Tylenol. I have chronic pain in those 2 areas anyway and usuallytake 1/2 dose NyQuil to sleep. This pain is much worse and just throbs…
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Before
will see Radiation Oncology in a couple weeks. Ny dr did say it would be the next step in my evaluation for treatment if necessary
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Just diagnosed with ILC
I was just diagnosed, and I'm meeting with my surgeon today. what questions should I be asking and what else should I be thinking about. Thats probably a very big question, it all feels very overwhelming. I just found this site yesterday, any other sites I should visit? thank you for your help.
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Hormone blockers - looking for others like me
This discussion was created from comments split from: Connect with others by creating your profile! Here's how..
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Nervous about switch from Letrozole to Exemestane
Hi - I have been on Letrozole for 2 years (invasive ductal carcinoma, node positive, did chemo and radiation, double mastectomy and oophorectomy...was diagnosed right after my 46th bday). Recently I've had neuropathy for the first time (it moves around/switches which limbs it affects...strangest thing). Ruled out…
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Starting my 24th year of MBC de novo!
Yay! Today is the start of my 24th year after my dx of Stage 4 MBC de novo. Still hanging in here! Here's my history.....Dx’d in December, 2002. ER+, Pr-, Her2+++ Metaplastic BC. Had A/C & Taxotere. Left side was DCIS and Her2+++, but right side was tubular and Her2-.In 2004 my liver was filled with tumors. I had a liver…