-
Just Diagnosed- Get Prepared
My breast cancer was diagnosed in Jan 09. My husband was dx'd with lymphoma in April. The following are some things we learned on our journey. I hope they help. Rather than rewrite everything in sequence, because I missed putting the fax in the rewrite of the outline, I'll put it here. I strongly recommend you get a fax…
-
Truqap experience
stage 4 Mets to lung, liver, bones and lymph On the sixth week of truqap, handling it pretty well. Some diarrhea that is unpredictable so I always have Imodium on hand. Sometimes I get nauseous and my taste is off. My concern is for the blood sugar levels. Trying to keep my diet during the four days which is no sugars but…
-
Wednesday Weigh In
Some of us on the Let's Post our Daily Exercise thread decided that it might help keep us honest if we had to post our weekly losses or gains. Not posting your weight - just your net loss or gain. So here goes!
-
Bariactric surgery - post bilateral mastectomy
Im looking for opinions. Recently I have been reading studies about hormone production in women who have/had hormone receptive cancers. In my case I was Er/pr+ her2-. My BMI is 38. My insurance considers the reoccorance of cancer as a comorbidity and will likely cover the bariactric surgery. I would LOVE to connect with…
-
29, Newly Diagnosed, and Trying to Stay Encouraged
Hi everyone, I’m 29 years old and was recently diagnosed with breast cancer. I’m still very new to all of this, and honestly, it has been a lot to process. I’m preparing to start chemotherapy soon, and the past few weeks have felt like a whirlwind of appointments, scans, biopsies, phone calls, treatment decisions, and…
-
Just Diagnosed? Start Here
If you have just been diagnosed here are a few places to start from the main Breastcancer.org site: Understanding Your Pathology Report Stages of Breast Cancer and What They Mean HER2 Status and How it Affects Treatment Hormone Receptor Status and What It Means for Treatment Planning Your Treatment Why So Many Types of…
-
New Diagnosis - Recurrence less than 1 year
I had DCIS last year, had a lumpectomy with neg margins, no necrosis, 90% Er/PR positive. Tiny, so no additional testing. I did not do radiation, but i was on tamoxifen. Almost a year to the the day of my lumpectomy, I had a screening MRI. Two spots came up as “new” (I have extremely dense and “busy” breasts). Had to wait…
-
Wrongly diagnosed, had mastectomy and PAP flap operation
I'm in constant pain in my leg, I was diagnosed after a routine mammogram and after 3 biopsies told the best option for me was a mastectomy, I was told that having my own tissue was the superior way to go, the rolls royce of mastectomies. I was told i was a ticking time bomb and this was the best option. ie; preferred to…
-
Faslodex Girls Thread
Tips for taking Faslodex without pain: ABSOLUTE MUSTS: * Warm up the syringes. At least room temperature. Armpits work well, as does belly skin. * Take the weight off the leg on the side of the shot. Relax that cheek/leg as much as possible. * Inject SLOWLY! It should take at least 30 seconds to empty each syringe. General…
-
Abemaciclib Verzenio for Stage IV
Luckylegs and friends on Abemaciclib - I am bumping the Verzenio discussion in the hopes that more people have started abemaciclib. We need to get a community going. I have not started abemaciclib but it is on my short list. Like many I am very interested in how people do on this treatment do, both as a monotherapy and in…
-
Birads 4, concern or no concern
As I posted earlier, I am brand new to this site and new to the world of breast cancer or a scare of breast cancer, I don't know which just yet. I am 38 yoa and I have had a lump in my left breast since mid May, had a mammo, and ultrasound, only to tell me that it's a suspicious abnormality. I noticed another topic about…
-
On edge with Kisqali
Hi all, I am currently getting my lupron shot to stay in menopause. I am also taking letrazole and kisqali (on for 3 weeks and off for 1 week). I feel like an angry monster when I am on Kisqali. My doctor says it’s not kisqali but I promise you it is. I feel less angry on my off week. I find myself being easily irritable…
-
AFC (aesthetic flat closure)
I am one year out from my bilateral mastectomy. I decided that I wasn’t doing any kind of reconstruction and just wanted to get the surgery over with. I am now considering an AFC and wondering if anyone has done this months or year(s) after. What was the process like? Recovery? Any and all advice is welcome
-
Zoom Meet-up for Those With MBC: Place to keep chatting
This is a space held for our Zoom Meetup members to gather in between meetings for updates and support. Join our Virtual Meet-ups! For those with a diagnosis of metastatic breast cancer (MBC; also called stage IV) Register: Mondays at 2:00 PM EST, Tuesdays at 1:00 PM EST, and Wednesdays at 4:00 PM EST Young (45 and under)…
-
Did you go over 20 years NED and then got diagnosed again?
I'm an oldie here. I was 1st diagnosed in September 2003 at age 36 with IDC. I had a right breast lumpectomy because of my age and according to my oncologist surgeon back in NJ; it was followed by 4 chemos and 33 rads. From 2004 to 2024, I went thru several biopsies, including a 2010 left breast lumpectomy for atypical…
-
Early Stage Breast Cancer - anyone on Letrozole and Ribociclib?
Wondering if anyone has been diagnosed with Early Stage Breast Cancer and on AI/Ribociclib regimen? I’m going to start after radiation and wondering how your treatment is going and if there are any tips out there! Thanks in advance!
-
More tests scheduled
Hi everyone Well I'm back again, I know it's not where we want to be but if we have to be somewhere for support this has always been the best place to come for it. I have been here before in the past years with worries of cysts and complex cysts in both breasts where I have gone through Ultrasounds, Mammograms and MRI's. I…
-
Small pimple on top of right Breast
Greetings I was diagnosed with ER+ level 2 Grade 3 breast with positive sentinel lymph nodes (12/2021) Lumpectomy performed Lymph nodes removed Red devil for chemo Radiation for 30 rounds with a bolus pad to increase the power I am on AROMATASE INHIBITOR daily for a ten year course Today I felt something the size of a…
-
💗 July 2026 Surgery Roll Call — Come Share Your Experience and Get Support 💗
If you have surgery coming up in July—whether it's a lumpectomy, mastectomy, reconstruction, or another procedure—this thread is for you. This is a place to connect with people who truly understand what it's like to count down the days, prepare for surgery, recover afterward, and navigate all the emotions in between.…
-
Origins of Genetic Mutation
If you are a known carrier of BRCA 1/2 pathogenetic mutation, have you tried to research the origin of your mutation? I have IVS5-11T>G / c.213-11T>G Any advice welcome.
-
Birads 5 with calcification
I’ve been hesitant to post because I didn’t want reality to set it but here I am. I’m a 33 year mother of 3, youngest is 6. Just like most of the ppl in the group, It all started with me noticing a lump. I took action almost immediately. I made an appointment to see my primary doctor which took me 2 weeks to get in. I…
-
TNBC MBC Stage 4
Hello - I actually joined this group awhile ago and never posted anything. I’m hoping to connect with like minded women living with MBC. I was first diagnosed in 2019, stage iiib; had the standard protocol, chemo, surgery, radiation.Cancer free for 18 months, recurrence in 2021, living with it. On several treatments…
-
Are you currently (or have you been) in a Clinical Trial?
I am about to start a clinical trial and am wondering about the experiences of others. I'm feeling a little rocky and at sea, because I've been in the care of a wonderful oncologist for the past three years, and I knew without a doubt that his prime objective was the same as mine - to keep me stable and maintain a good…
-
🌟 June 2026 Radiation Roll Call — You’re Among Friends Here 🌟
If radiation therapy is part of your treatment plan this June, we'd love for you to join us here. ☀️ Whether you're preparing for your first session, settling into the daily routine, or counting down your final treatments, this thread is a place to connect with others who understand the experience. Radiation can bring…
-
Honoring Going2BeatThis, Fay
It is with heavy hearts that we share that our dear group member, Fay, known to many of you by her screen name here in the forums, @going2beatthis, died last Wednesday, July 1. Fay had been part of our community for many, many years. So many of you knew Fay from our virtual support groups, where she showed up week after…
-
Just diagnosed TNBC
This discussion was created from comments split from: Next Steps??.
-
De Novo Stage IV
I'm wondering if there is a topic just for de novo Stage IV. I'd like to know how people found out. Did you have symptoms that led you to the doctor for an answer? Was it found out of the blue when you had another issue and how was it found? Are there others like me who have never shown it in your breast but only where it…
-
Considering no more Anastrozole
I am 56 years old. Healthy. Work out 3-5 days a week (walking, weight bearing exercise etc. ) I was diagnosed with invasive ductal, hormone positive HER2- , T1 in December 2025. Lumpectomy removed 9 mm tumor with clear margins. Radiation completed successfully. MO advised that after surgery and radiation I have prevented…
-
Questions re: SNB
I'm scheduled for an ultrasound of lymph nodes, with needle biopsy if indicated. I fear that I could have long-term side-effects even from just one node biopsied. Is my fear justified? Also, from posts I've read in various forums, it seems like even if a node is biopsied pre-surgery and negative, it's quite common for…
-
Unilateral or Bilateral Mastectomy - Pros & Cons for ILC
Hi, I learned on April 12th that both biopsies taken from my left breast on March 26th have ILC. The MRI showed at least three more (Stage 1a). They are all very small, but given there are now at least five, the surgeon's recommendation is unilateral mastectomy. I am about 95% certain I'd like to just go for the bilateral,…