-
Zoom Meet-up for Those With MBC: Place to keep chatting
This is a space held for our Zoom Meetup members to gather in between meetings for updates and support. Join our Virtual Meet-ups! For those with a diagnosis of metastatic breast cancer (MBC; also called stage IV) Register: Mondays at 2:00 PM EST, Tuesdays at 1:00 PM EST, and Wednesdays at 4:00 PM EST Young (45 and under)…
-
Radiation benefits & Risks for early stage cancer
Hello, I am preparing for lumpectomy and then radiation/AI expected. Despite bilateral the surgeons feel I am a good candidate. Any suggestions on where I can get risk/benefit analysis for radiation treatment? I am 58 bilateral IDC/DCIS Grade 1 T1b no nodes ER/PR+ Her2neg No BRCA genes and low Ki-67 I have spoken with…
-
Kisqali side effects and timing
I was diagnosed with stage four NBC earlier this year and just started a combination of anastrozole and Kisqali. I am three weeks on with one week off. I have experienced some persistent nausea, but most concerning is my serious fatigue. I’m wondering if this improves over the months as you continue with the Kisqali? I’m…
-
Bad Reconstruction
When I had my double mastectomy, I was not give any choice in what plastic surgeon I had. So, my doctor was young and I'm not sure had a lot of experience. I had expanders for however long, then got the implants installed. This was five years ago last month. They are just terrible! They are completely round so they look…
-
Breast reduction
Hello. I had breast cancer treatment (lumpectomy, Chemo and radiotherapy) 20 years ago. For 19 years I have been very unhappy. I have one breast that is significantly larger than the other one. It is very depressing! I have brought special bras, padding, fillets etc but nothing works. Does anyone know if the NHS would…
-
Stage 2 Breast Cancer.
Hi everyone, My sister was recently diagnosed with stage 2 breast cancer and will be starting treatment next week at Inova Health System in Northern Virginia. Her treatment plan includes 12 weeks of weekly Taxol, followed by Adriamycin every 2 weeks for 8 cycles, and then surgery. I’m hoping to connect with others who have…
-
Am I being under-treated?
Newly diagnosed here. TNBC stage 1b grade 3. I met with my BS, MO, and RO for the fist time yesterday. Breast MRI shows a 1.5cm mass that hasn’t grown since mammo and US a month ago and no nodes involved. So the plan is: -Surgery first (I am leaning towards SMX no recon) -Chemo: 4 rounds of TC spread 3 weeks apart -No…
-
Bodily feelings (side effects?) that are difficult to put into words
I was diagnosed with stage 2 breast cancer with a high oncogene score. I finished chemo and surgery and am now on letrozole and Kisquali (been about 6 weeks). I wonder how many others feel like "their body is dealing with something" but don't know how to put it into words. I do have some digestive issues, some joint pain,…
-
silicone implant
Hi, I want to get my silicone implant of 16 years removed due to contractures and pain. I recently had a MRI due to finding a lump, but it turns out it is the implant that I can feel. It is uncomfortable all the time and cold. I am considering going flat afterwards and have mixed feelings about appearance. No real good…
-
Early Stage Breast Cancer - anyone on Letrozole and Ribociclib?
Wondering if anyone has been diagnosed with Early Stage Breast Cancer and on AI/Ribociclib regimen? I’m going to start after radiation and wondering how your treatment is going and if there are any tips out there! Thanks in advance!
-
Kisqali (ribociclib) and ILC
I am having results with Kisqali, anastrozole, and Zometa undergirded with lots of prayer. I have had debilitating bone pain in my back for over 2-years. Finally diagnosed with Advanced ILC 27 Sep 2022. I started anastrozole in Oct, Kisqali in November, and had a Zometa injection in December. Two days ago, I became aware…
-
How do I accept that I have to slow down and work less?
I finished active treatment at the end of 2024, but 14 months of exemestane has basically disabled me. I can hardly use my hands and I have debilitating insomnia. I'm taking Seroquel for the insomnia and it usually works, but we just moved and the stress of that and work was too much for me. My insomnia has come back and I…
-
Anyone else with a grade 3 cancer with ENE?
Hi everyone! I am currently in active treatment. I am so worried about having extranodal extension on my one lymph node. My cancer was 2.5cm and multifocal in my right breast. I had one lymph node positive packed with 1.7cm of cancer and ENE. I am ER+ (95%)/PR+ (80%) and HER2- (2+/FISH negative - Group 4). My cancer is…
-
Aesthetic Flat Closure
I had surgery 1/14/26. I think my posture has changed or something because my ribs kind of flare out. I’m not sure if this happens to everyone- I think it is pretty common? Another change is I’ve had pretty radical mood swings and my period has been erratic since my surgery. Anyone else live through feeling crazy after…
-
Over 60, Birads 3 and a Story you Can’t Believe
I’m looking for input and advice. No prior history for myself. Mom diagnosed at age 90 with + - - grade 3 aggressive cancer. Died of unrelated causes before diagnostic work up completed. For me - Screening mammo at the end of October…Birads 0, new bilateral focal asymmetries both upper outer quadrant. Diagnostic spot…
-
Enhertu
would love to hear from other Enhertu users about managing side effects. Does it get better over time? I just finished third round and am very weak, even 10 days after infusions. Tried one dose of modanifil which gave me some energy (more like nervous energy) for a handful of hours but I don’t think that’s going to be good…
-
Brca2
I was diagnosed with Breast cancer in early July. With in two weeks i was at the COH and a week thereafter I had a genetic test. BRCA2!! Crazy. I notified my family with the letter of my test results and 2 of the four did the test too. They both have BRCA2. I am not sure if one brother got tested, but i hope so. My other…
-
The Long Middle - Does the idea of “the long middle” reflect your experience?
Check out this article and let's discuss. I have stage four cancer – there will be no cure, but death isn’t necessarily imminent: this is how it feels to live in the long middle | Death and dying | The Guardian The author describes living with stage 4 cancer as being in “the long middle”, a space where there is not a cure,…
-
Birads 5 with calcification
I’ve been hesitant to post because I didn’t want reality to set it but here I am. I’m a 33 year mother of 3, youngest is 6. Just like most of the ppl in the group, It all started with me noticing a lump. I took action almost immediately. I made an appointment to see my primary doctor which took me 2 weeks to get in. I…
-
Premenopausal and Starting Tamoxifen -- Looking for an Ongoing Chat
I took my first dose of tamoxifen last night and am feeling so much dread around it. I put it off due to avoidance and confusion around the small impact that taking it has on my future recurrence rate (4% vs 8%). Looking to find peace in this journey and am wondering how others have figuratively 'swallowed the pill' of…
-
💛March 2026 Chemo Check-In: You don't have to do this alone!💛
If chemo starts for you this March, let this be your sign to step in and say hello. 💛 You do not have to face this chapter quietly—or alone. This space is here to hold the real stuff. The anticipation. The fear. The courage. The logistics. The “how is this going to work?” thoughts at midnight. However you’re…
-
Arimidex side effects?
Side effects?? Need advice!
-
Anxious waiting for Biopsy
I am nearing my 5 year anniversary of Stage 1, Grade 3, BC in my left breast and today the mammogram and sonogram picked up somethin in my right breast. (I just had a clear MRI on this breast 8 months ago!) The radiologist said it could be a hematoma as there is no vascularity and it is very small (5mm) but I am spiraling…
-
Laughing at and with myself
As much as I like this forum/site, I was feeling incredibly ignorant and behind every time I connected. Everyone that posts lists all the letters, numbers, definers of their diagnosis. I kept thinking how do they have this memorized? Do they have a post it note on their laptop, or copy and paste? I am still just trying to…
-
CT and Lung Nodules
I cannot find my previous thread, but this is my newest CT scan. So far I have had them in November, January, April, and today. I had a PET in November that lit up on a couple of spots in my left lung and three level 2 cervical nodes. Currently on a watch and see. Anyone have some information on this newest scan? Not…
-
HERCEPTIN and/or PERJETA Threads
I am currently on Herceptin and Perjeta with Zometa every three weeks. Would love to hear from others who have been on this targeted therapy and how well the treatments have been working for you..
-
Ca 27-29 Tumor Markers increasing
I am freaking out! My oncologist does tumors markers as part of my regular bloodwork every 6 months or so. I have always been in a range of 12.5 to 17.5 on my CA 27-29 for the last 6 years. But my numbers have been increasing over the last 4 times (about a year and a half) from 13.6 to 20.6 on September 14. It jumped from…
-
Anastrozole and sinus issues
Hi- It's been awhile since I've been on here. I was diagnosed in May 2014 with ILC. I had surgery, followed with radiation, and then a prescription for Anastrozole. I've had the usual side effects of insomnia and aches and pains, but have just been watching the calendar knowing that my 5 years will be coming up next year…
-
12 Years of multiple callbacks
Twelve years ago I had spontaneous nipple discharge from my right breast. Following a mammogram, ultrasound, and biopsy, I ended up having a lumpectomy to remove an intraductal papilloma. All was good until 6 month after the surgery and the spontaneous discharge started again and continues still now, 12 years later. No…
-
Are you currently (or have you been) in a Clinical Trial?
I am about to start a clinical trial and am wondering about the experiences of others. I'm feeling a little rocky and at sea, because I've been in the care of a wonderful oncologist for the past three years, and I knew without a doubt that his prime objective was the same as mine - to keep me stable and maintain a good…