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High number of positive lymph nodes
Can lymph node survivors please chime in here. I had 11 positive nodes,some broken open with cancer and grade 3. After 3.5 years this still really worries me every day. Would love to hear stories of long term survival.
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New Want To Play A Word Game
It looks like posts started by Naughtybynature are being edited by an anomynous unregistered person and the web masters are deleting them. So, let's start a new one. You make 5 letter words from the previous 5 letter word by changing just one letter. The most recent word was: Steak I am responding with: Peaks Lets play!
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Cancer (and other medical conditions) research halted
I signed on today to see if this had already been posted by the BCO Mods. Nope, not a word about all cancer research meetings being halted. Here's a link to the article. https://www.nature.com/articles/d41586-025-00231-y
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Risk of discontinuing tamoxifen
I have read several reports from others that noted that their medical oncologist gave them a percentage benefit from tamoxifen (or AI’s). When I asked my MO she would not provide me with this type of information. Can anyone tell me where this type of information would come from? I want to be prepared for my next…
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Brain mets in stage 4 more common than thought
https://www.sciencedaily.com/releases/2025/01/250128162827.htm
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Considering TH regimen for HER2+ microinvasive (very early stage) BC
Anyone have feedback who has done Taxol plus Herceptin? I just met with a medical oncologist to discuss possible chemo as I was thought to have DCIS but in fact, at mastectomy, was found to have about 8 foci of microinvasion (defined as < 1mm each). I was wondering what your experience has been with the TH regimen. The…
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In Search of Holistic Treatment After Lumpectomy
Hello =) I am looking for like-minded people who would prefer to use holistic means rather than the traditional standard of care after surgery. What do you do? Intermittent fasting? Organic plant-based diet? No sugar/dairy? Quality supplements? Do you see a Functional Doctor for guidance? Do you get regular bloodwork work…
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Looking for answers!
Hi All. I am 41years old. When I was in my 20's I was diagnosed with PCOS. In 2023 I experienced a slight tingle in my right breast I knew was hormonal, but to appease my nagging husband, I went and was seen by my GP. She agreed that it was most likely a blocked milk duct as there were no other abnormal signs. I check…
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Need help thinking through AI with ovarian suppression
My MO would like me to start an AI and ovarian suppression/removal. I am 42. Onc score was 31 for IDC with lobular component. No nodes. I understand that I do have a risk of recurrence but I also value an active lifestyle. I had no question mentally regarding the mastectomy and chemo. I do not feel peaceful about the…
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Obesity going into DIEP/Reconstruction
I am currently undergoing chemotherapy. I will have a bilateral mastectomy then reconstruction with DIEP. I am not sure I understand the timeline, it seems there is alot of dancing around regarding my weight. I am currently 41 BMI. Due to loss of insurance and gaining new I have not been able to talk to either surgeon. I…
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FDA Approves Dato-DXd for advanced-stage HR+, HER2- breast cancer
https://www.breastcancer.org/treatment/targeted-therapy/dato-dxd
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23 Years of Stage 4!
Today is the first day of my 23rd year after being diagnosed with Stage 4 MBC de novo. The past few years have been very challenging since my body has been protesting against so much chemo, but I am doing my best to hang in here. Sending love to all of you! Denise
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Newly Diagnosed with Invasive Ductal - How do you tell your kids?
Good afternoon. I just got the call that the biopsy confirmed Invasive Ductal Carcinoma. They said that I have to wait for my appointment with the surgeon for me to find out any other details. I have three adult children, the youngest being a senior in college 2500 miles away. I did not let them know that it was a…
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Questions regarding Metastatic BC
Previously had stage 2 Invasive Ductal Carcinoma=lumpectomy, 7 weeks radiation, then tamoxifen (stopped taking after 1.5 yrs).BRACA testing at this time was negative. OncoDX number was 11. Fast forward 7 years, It is now Metastatic. I am ER +, PR+, HERS2-. PET Scan a couple days ago, received results ..alot of "no's/none"…
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Zometa and knee replacement surgery?
I am scheduled for my first Zometa infusion next week and I have a partial knee replacement ia month later (and my pre-op med review is two weeks before the surgery). Does anyone know anything about having bone surgery within a month of Zometa? Want to get this surgery behind me so I can get back outside!
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The Hermit Club
Hey all.....just got done reading a great thread under this topic about feeling like a hermit through this process, was wondering who else out there feels like cocooning themselves right now? I'm mid treatment with my chemo, and have basically isolated myself somewhat because I feel that all my energy is expended just…
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Radiation as Palliative Care
Hello everyone. I hope it's ok that I'm starting this thread because I did a search and couldn't find anything specific to this topic. I'm looking for feedback from anyone who has received Radiation treatment for palliative purposes only. What was your experience with it? Did it actually help ease the pain or did it…
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Osteoporosis and Tamoxifen
I am wondering if there is anyone out there who has been taking Tamoxifen and has been diagnosed with Osteoporosis. I am 48 and just had a DEXA scan, and it confirms Osteoporosis. :( My oncologist said that typically it shouldn't cause issues in pre-menopausal women, but there are some paradoxical instances where it does!…
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Pissed off.
I was recently diagnosed with invasive ductal carcinoma. I've decided if this can come back, I want a double mastectomy. My mother in law asks me what does your husband think of that? My response, he is supporting me in whatever I decided to do. Then she says, Remember we're all going through this. I want to say NO YOUR…
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walnut-sized lump at chest wall
i went in for an ultrasound yesterday and the radiologist told me that the lump she sees and feels is “more than likely” cancerous - especially because of a lymph node in my armpit that looks like its swollen. Why would she tell me this without a biopsy? The images didn't show any fingers sprouting it was just a black lump…
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Recurrence in same breast previous 2 lumpectomies - mastectomy?
I have just been dx with IDC, tumor 1.2 cm grade 2, in same breast that I had DCIS, 2 lumpectomies and radiation 16 years ago. We are talking mastectomy, but wondering if anyone ever had a small tumor in a previously treated breast and just had lumpectomy? Some scattered DCIS was also found on the biopsy this month. Just…
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Need help in making decision on starting AI and ovarian suppression vs Tamoxifen alone
Im ER+, PR+, HER-, Stage 1 ,grade 2, 1 lymph node, post double mastectomy with oncotype of 12. The oncologist said my risk of recurrence is 13% and will go down by 2.3% if I do Chemo or take Anastrazole with ovarian suppression. As an alternative I can take Tamoxifen. I declined Chemo as 2.3% seems not significant to go…
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How about kidney stones!
I was getting ready to go to work (two days ago) when I was struck by the most incredible pain on my left side/flank. Something was very wrong. For about 30 seconds I thought I could drive myself to the ER but realized that an ambulance was needed (texted family who called 911 for me). I simply cannot describe the pain and…
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First mammo. Focal asymmetry. I'm frightened.
Hi, 51 with first mammo last week. Call today, scattered fibro glandular densities. Left breast no suspicious findings. Right breast focal asymmetry. No calcifications or architectural distortion in either breast. Benign appearing lymph nodes in both axillae. Grade B density. I go for diagnostic mammo and possible us in…
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Change in breast lump
When I first discovered my lump, it was about an inch deep in my breast. It's now at the surface, red and swollen. This is my fear, I've had lumps before and they always want away.
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Piqray users, what is your experience?
I just started on Piqray and Faslodex after Ibrance and Arimidex stopped being effective. I am weakly ER positive and PR negative, so I can't say it was a complete surprise that at some point that would occcur. I would be interested in hearing from others how you are doing on this very new medication. So far, the only side…
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PCOS
Hi, I have polycystic ovarian syndrome (PCOS). I have not been officially diagnosed but I most likely have HR+ breast cancer. I also have a serious history of depression. Tamoxifen interacts with my medications. I understand that ovarian function needs to be suppressed in pre-menopausal women which is why aromatase…
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MRI Biopsy
I am 8 years out from triple negative BC and have been doing well. My last mammogram showed a very small area of concern. Watch and wait was suggested but my last cancer was very aggressive and grew quickly so I'm not inclined to watch and wait. I have asked for a biopsy but because it is so small, it will be difficult to…
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Salpingo-oophorectomy experiences and tips?
Hello, I decided to get this procedure done so I don't need to be dependent on the monthly shots. I understand that the surgery itself is pretty quick and straightforward, but I was surprised about the recovery instructions and a whole month without lifting more than 10 pounds. Also the doctor recommended two weeks off…
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What part of day-to-day life during your breast cancer experience has been most challenging for you?
Take our poll and share details in the thread below!