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Did women who had an easy menopause and periods, have an easy time with IA?
I'm supposed to start Letrozole. I just got over chemo and RT and just waiting to get back on my feet before starting this poison. Trying to talk myself into it. I can't seem to get straight answers that satisfy me. Get tired of the Standard of Care or One Size Fits All. Why isn't a hormone test done at the beginning and…
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Heart issue(s) and breast cancer: What's your story?
Share with others here ❤️ For more information, please see our new page on Heart Tests for People With Breast Cancer.
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Pre- and Post-surgery supplements, vitamins and foods
I've been looking into what are good supplements to take before and after surgery. It's too late for me to start taking anything PREsurgery, but I thought this would help others--this is from Dr. Steven Sinatra. I plan on taking various supplements right after surgery to help with healing. Power Healing is a term I've…
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Can stretching cause breast pain?
ks ago I was doing some stretching and after that I noticed that a part of my lower left breast hurts when touched. I did not pay attention to it at first but until now it still doesn't go away. I am also nearing my period so I am thinking maybe it's just PMS but why is it only on that part and when I touched it, it feels…
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Estrogen prohibitor meds
Has anyone tried Anestrosole and Exemestane and have horrific leg pain. I've given up. It wakes me up and it hurts all day. They say you must take one of these for 5 years. There is no way I can do this without taking a strong pain/antiinflamatory. Discouraged Liz
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Her2 low / negative with Brca1 mutation
good day, I was recently diagnose with breast cancer. I have appt to see a breast surgeon soon. I have just got my pathology report and I used Chatgpt to get a better understanding of all of it. though am still confused at one point I am ER- PgR- and Her2 low / negative I was also genetic tested a few years back with the…
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CTdna positive results anyone?
Hi all, I'm just over 5 years out from a diagnosis of ER/PR+ Her2- stage III breast cancer . I did alllllll the treatment options back in the day and have been on hormone therapy (OS+letrozole) ever since. Recently I decided to do the fairly new circulating tumor DNA test to potentially take part in a clinical trial and it…
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Vepdegestrant?
has anyone tried this drug? there is a trial opening near me for combination of this and cdk4. not sure if two drugs in trials is less safe?
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January 2025 Surgery Support Thread
Please gather here to get and give support. Feel free to share your type of surgery, date, and let us know how you're preparing and how you're doing post-surgery. We're all here for you!
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downsizing
Hello whippetmom, I have had dcis stage 0 and they have done 9 recons with 2 blood sepsis with the first surgeion that I had 8 surgeries with,I had been working the whole time. My new surgeon placed 310 high profile in and I feel too big, am 59, 120 lbs 34d bleh,
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Ladies in their 40s
Hello All, I just wanted to start a new thread for ladies in their 40s. Although we are considered "middle aged," many of us are still dealing with issues concerning young women, such as fertility, pre-menopausal status and related treatment decisions, young children at home, being single etc. Both younger ladies (in their…
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Not diagnosed but worried….Input or Advice
Hi there, I'm posting this because I would appreciate some advice. I am very regular with my mammo/Ultrasounds as my sister was diagnosed with breast cancer at 49. I also have 2 aunts that have had breast cancer as well. Both my parents have passed from cancer(not breast). I have never been called back until now. I also…
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Post mastectomy nerve pain
OMG!!!! Does anyone else have shooting pains and your boobs feel like they are on fire? I'm a week post double mastectomy and the shooting pain and the feeling that my right breast is still there is not something to joke about. I have an extremely high tolerance for pain. I cooked supper two days post pop and have resumed…
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Hanging on to Hope.
Hello everyone, I am here to tell my story, and I am here to get support, opinions, prayers, and maybe some answers. My name is Millie, I am 35 years old, and I have a wonderful and beautiful 8 year old daughter that needs me. In October 2028 the Dr's decided to perform a partial hysterectomy. We'll years passed and…
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ADH and LCIS treatment recommended is anastrozole for 5 years
Hormonal Therapy recommended for LCIS and ADH by an oncologist. Medicine they are asking me to take is Anastrozole and I am looking for feedback from the community on the side effects experienced from this drug. It is not actually FDA approved for this prophylactic treatment of post menopausal women and these types of pre…
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One year into this and noticed something new
Hi all so last January I had a biopsy due to microscopic calcifications in my left breast that were grouped and suspicious, the results came back radial scar with hyperplasia, my breast surgeon suggested lumpectomy in Feb, those results showed radial scar with atypical ductal hyperplasia. My dr had put me on the high risk…
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Quitting Tamoxifen
Hi ladies. I'd love to know: -How was going off Tamoxifen in general? Any side effects from Stopping? -Has anyone quit after 5 years though Dr wanted you on for 10???? Tamoxifen has made me hold Immovable weight. I've been on for a little over 5 years and would love to ditch it - unless any of you have info of problems…
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Some thoughts as we Progress in our Journey
We had our first visit back to the clinic after starting treatment yesterday. Not a lot new to report. Bloodwork was good and liver function is fine. Nadia also seems to feel that the tumor in her breast is shrinking. As a husband, I am still waiting for the objective measure that we are making progress against this. She…
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Nerlynx/neratinib and vegetarianism
I’m about to start a year of Nerlynx and I’ve been a vegetarian for more than 20 years. I eat a ton of beans, nuts and raw vegetables (got cancer anyway). These are all things the pharmacist and nurses recommends avoiding to help with diarrhea risk. I’m wondering if the fact that these are already such a part of my diet…
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Has anyone had a preventative DMX years after Lumpectomy?
When I was going through breast cancer in 2021, my breast surgeon, my radiation oncologist, and my oncologist counseled me to get a lumpectomy and radiation. They told me that getting a SMX or DMX for what was thought to be a 5mm tumor (it turned out to be 3mm) was like trying to kill an ant with a sledgehammer. The…
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Pre surgery questions and aftercare
I met with the consultant yesterday and he told me the results from my second biopsy (on a 2nd lump that showed up on MRI) came back as non cancerous, but atypical cells. He is awaiting further investigation on that biopsy. I thought this was positive news because now l can get booked in for surgery. I wanted to ask if…
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Where to get financial and disability / work advice?
I am a veteran with PTSD who had a bilateral mastectomy in 2020. I have not had health insurance or care for about 3 years, since the VA is not trustworthy, and it lost my community care case referral (out to a community facility, since the VA itself lacks breast cancer resources where I was). I am also now bankrupted.…
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Sacituzumab Govitecan (Trodelvy)
Hello everyone. I was wondering if anyone(s) could share any experiences they have had using sacituzumab govitecan (Trodelvy) either in a clinical trial or as recently approved by the FDA. We are trying to determine if it's the best plan of action for my wife at this time. There are 2 key things we are trying to determine.…
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Worried to skip Radiation Therapy following Mastectomy and pCR - DCIS w/ lymph node
First time post. Thank you for any input. I apologize if I’m not describing this correctly and am too long winded in my description. I am 60 years old and was diagnosed initially with DCIS (Grade 3, ER, PR negative) Stage IIA, but have some invasive component as I had one positive lymph node following biopsy. Lymph node…
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Lower back pain fear
Hello everyone, sorry for my not very good english. I have been reading this forum for a long time and I thank you because here I have often found answers to many of my questions and also a lot of hope. I am 39 years old. I got diagnosed with IDC in february 2024 : 2.5 cm T2N0M0 no LVI, + - - (ER 50% PR 5% Her2 1+).…
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Kisqali and Time to Response
hi there. My wife is about 22 months into a stage IV diagnosis, original mass in right lung and multiple bone mets . PET report today showed avidity in the liver. She’s a little over 2 months into Kisqali. I’m wondering how long it took for the drug to “kick in” for you. Basically I’m just trying to find a reason to be…
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TRIPLE NEGATIVE (Age 74) Lumpectomy (twice) ONE positive sentinel node - REFUSING TREATMENT
Good day, I'm writing on behalf of my 74 year old mother. She was diagnosed February 2023 with Invasive Ductal Carcinoma and Ductal Carcinoma In Situ (IDC & DCIS). Triple negative was our diagnosis. Ki67 is 20-25%, Grade 2, Apocrine features. First lumpectomy - (March 2023) clear margins, one out of six sentinel lymph…
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3D tattoo vs. nipple reconstruction or both
I see that someone posted a similar question on a different forum without a lot of responses. I thought I'd post here too. I've had my bilateral mastectomy and implant reconstruction and am now at the point where I have to decide between nipple reconstruction, 3D tattoo or both.( I have decided to do something, not just…
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Breast cyst or I think what is this
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What should be my next step?
My biopsy confirms that I have Invasive Mammary Carcinoma in my right breast, which is hormone receptor-positive (HR+), HER2-negative, and a high Ki-67 proliferation rate of over 80%. Can someone tell me more about that Ki-67 number? Is it normal? Also the doctor initially said it was only one centimeter but the report…