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What are your favorite ways to relax and destress during your breast cancer experience?
Choose one or more options below and feel free to elaborate and share specific recommendations in the comments below! We'd love to hear from you!
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Enlarged axillary lymph nodes suggestive of BC recurrence found UPDATE - it's cancer again
Hi, y'all — I guess the diagnosis is not official yet but it seems to be a foregone conclusion. I am almost 9 years out from left breast cancer diagnosis. Did the mastectomies, 9 weeks of Taxol (all I could tolerate); did 18 Herceptin treatments; 4 months of Arimidex; 3 years of Exemestane; 8 months of Tamoxifen —- all…
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arimidex and carpal tunnel
My wrists are SO jacked up! Arimidex has caused such pain w Carpal Tunnel... both hands are completely numb alternating with shooting pains. Has anyone else experienced this? And if you have, what treatment avenues have you pursued? Outcome? Thanks in advance
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Keto
As you can see from my bio, I’m stage IV, and for 12 months after my diagnosis I felt terrible; no energy, foggy brain, elevated sugar, putting on weight etc etc. At the beginning of January I decided to go Keto and have had some amazing results. My blood pressure and sugar is back in the normal range, I’ve lost 7K, my…
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Gray zones for everything
Hi, I have a case that’s full of gray areas. I’m 51, pre menopausal, extensive LVi, multi focal, bi lateral, high ki67 of 54% but low oncotype of 18. I am considered technically node free but had some isolated tumor cells in node found in breast. None in sentinel nodes. my situation makes all the doctors I’ve talked to…
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Endo thickening and heavy bleeding 2 years after Tamoxifen
I'm 56. Had bilat mast, chemo in 2011, then tamoxifen for 10 yrs ending 11/2021. Hadn't had a period since chemo at age 43. Had routine screening pelvic/tva in Feb. not because of symptoms, but mom died of ovarian ca, and because I was concerned about years of Tamox. It should 12 mm abnormal thickening. Uterine bx in Mar.…
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Going from Letrozole to Faslodex
I have been on Verzenio and Letrozole since my Stage 4 diagnosis 14 months ago. My Mets are in my left lung pleural lining and a node in my right axillary. I found out this week that my most recent PET/CT scan showed mild progression so my oncologist wants to keep me on the Verzenio but change me from Letrozole…
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ADH and LCIS treatment recommended is anastrozole for 5 years
Hormonal Therapy recommended for LCIS and ADH by an oncologist. Medicine they are asking me to take is Anastrozole and I am looking for feedback from the community on the side effects experienced from this drug. It is not actually FDA approved for this prophylactic treatment of post menopausal women and these types of pre…
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Suspicious for focal lymphovascular invasion
I am so sad that I returned to this board reporting after 3 years of left mastectomy, I just found from MRI that I have developed DCIS in my right breast and "suspicious for focal lymphovascular invasion". I did not have MRI in the past 3 years. All I had was diagnostic mamo and ultrasound which is all clear. I wonder what…
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Report understanding...
Hi I'm a 34(f). I have been having ultrasound ds and mammos for about 3yrs (family history). I recently went in for follow-up US and my doctor didn't like the way the report was written, and that they didn't follow up previous findings. An addendum was made. This is the current report attached. I don't fully understand the…
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Left breast masectomy with reconstruction January 2023
I was told that my breast would be symmetrical with surgery. I had a tummy tuck with the surgery. My reconstructed breast is heavy and tight. I have been in extreme pain all year and had to have my reconstructed breast drained twice. They are only here to collect fees and get paid for their work so they are done with me. I…
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Suspicious lymphovascular invasion and Triple negative DCIS?
I am so sad that I returned to this board reporting after 3 years of left mastectomy, I just found from MRI that I have developed DCIS in my right breast and "suspicious for focal lymphovascular invasion". I did not have MRI in the past 3 years. All I had was diagnostic mamo and ultrasound which is all clear. I wonder what…
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Can lumpectomy scar break open?
I had DCIS in 2013 and had lumpectomy and 30 rads. In 2001 dx stage 4mets to liver. 2 years treatment and liver Mets have shrunk but my breast has changed and Pet showed active increase in that breast nodule and the scar has stretched almost into nipple. Is there a chance it can “bust” open? I see surgeon next week but I…
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Chemo Sensitivity test
Hi, I’m in NZ - stage 4 lobular snd looking at the tests that tell you what chemo will work. I’ve done Foundation One which my oncologist recommended. I’ve just found out about the Geonostics Exacta Test - snd the Gradient test I’m confused so just wondering if anyone knows what the differences are - or which one is best.…
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I need support please
I am 41, married with 3 kids. I had a mammogram followed by an ultrasound yesterday. I am now scheduled for an ultrasound guided biopsy later this month. I also have a surgeon appointment in a few days. I’m terrified. The waiting, wondering. The ultrasound shows a birad 5. That seems like a likely malignant diagnosis. The…
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MRI after benign breast biopsy
I wanted to see if anyone else had this happen after their biopsy. My mammogram showed an asymmetry and distortion and the US showed an hypoechoic mass and another hypoechoic area with shadowing. I was thrilled when they said the biopsy showed benign fibrous changes. The radiologist wants me to have an MRI in 4 weeks to…
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A Retreat for Peaceful Contemplation
I have been told by many, that my pictures are so peaceful. So here is Picture #1 to start your journey. Come here to retreat whenever you like and remember to Breathe. Know that God and the ladies on this board are here for you. Please keep long conversations in PMs to each other.
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Another elevated CA 27.29 question
8 years out. Stage 2-3. Number has always been around 30-41. Last time it was 32. Yeah! But this time it was 46. (Different lab from the last two years, btw.) Read this on a medical site: "An elevated serum CA 27.29 level in patients in remission of stage II or III breast cancer provided a positive predictive value of…
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Memory causing marital problems
I know I can’t be the only person whose memory is causing marital problems. I have trouble remembering our discussions & decisions that we have made together. I got married 9 yrs after treatment so I’m not sure that he completely understands how the treatments have affected my memory but it is causing a huge problem. He…
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Starting Chemotherapy in February 2023
Hi, folks I see these topics don't always get started for recent months, but I'll give it a shot. Started Taxol + Herceptin + Perjeta yesterday, Feb 6. The Perjeta was a last-minute surprise, but there's some anomalous blip in my liver and dear MO is not taking any chances. I was in the hospital ALL DAY, 9 to 5. They gave…
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Ibrance or Kisquali? Can you share your experience
I am on Ibrance and had an allergic reaction. My Onc says if I want to go on something stronger with more impact I should consider Kisquali. I am wondering if anyone has experience with both or either? Seems Kisquali has a longer span of time it works, but maybe greater side effects? He said once I switch I can not go back…
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Paget's recurrence?
Anyone out there ever have a recurrence of Paget's? I'm 10 years out from a DX of Paget's and DCIS, grade 3. Had 2 MX. Cancer was on L side. A couple of months ago, I developed this concave circle area on my L chest. Then I developed this very small fine rash on the top edge of this circle. Today I had a punch biopsy of…
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Seeking DIEP recovery stories
I had a bilateral mastectomy with tissue expanders and am now trying to decide between implants and DIEP reconstruction. If you have had DIEP reconstruction, here's what I'm curious about: - How did you make your decision? - What was recovery was like? - How long ago was your surgery and how you feel about the outcome?…
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Waiting on biopsy results and imaging tomorrow...
Last weekend (the 22nd) I developed painless, non-itching skin changes (redness, flat and kind of spotty) over the site where my tumor was with a spread counterclockwise around about 1/2 of my breast into the inframammary fold. I had a regular follow up appointment with my MO last Tuesday and brought it up. I had a…
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Newly diagnosed
Hi, Received the msg. from dr. that the breast lump I discovered and they biopsied is Cancer. I don't know what stage etc, so I have to wait two weeks. Im trying to prepare myself but am so distraught at which way to move constructively forward at this point. Any suggestions?
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7 Letter Word Game
Okay girls, here we go. You have all done so well at sharpening the ol' chemo brain, that I thought it would be a good time to kick it up a notch!...and SHARPEN it even more. LOL So... Here's a 7 letter word. You can change 2 letters (or just 1 letter) to make a new 7 letter word. I'll start with 2 examples: SUPPORT PROPOSE
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Is anyone on T-Dm1 (Kadcyla) concurrently with Lapatinib (Tykerb)?
Hello, Is there anyone on T-Dm1 (Kadcyla) concurrently with Lapatinib (Tykerb)? Thanks.
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FDA Approves Truqap for Certain Metastatic, Hormone Receptor-Positive Breast Cancers
FDA Approves Truqap for Certain Metastatic, Hormone Receptor-Positive Breast Cancers Nov 17, 2023 Truqap is a new targeted therapy option for metastatic, hormone receptor-positive breast cancer with specific genetic mutations that has stopped responding to other hormonal therapy medicines. Read more… q
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Pain/Pink Skin/Brown discharge
I am 42 years old. After several nights of drinking alcohol in a row (not sure if this is related or not), I woke up with somewhat localized unilateral breast pain. This was about 8 days ago. This occasionally happens to me, so I didn't think too much about it. Two days later the pain was still there and I noticed a light…
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Starting Chemo November 2023?
A place for the November chemo sisters to gather and support each other! Please share your start date, regimen, side effects, and tips for others here. For inspiration and what to expect, see the Starting Chemo Sept 2023 thread. Good luck with your treatment — we're all here to support you!