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Hypersensitivity and tenderness
I am new to this site and wonder if what I'm experiencing is normal. I had DMX with immediate reconstruction with tissue expanders on December 20th. My PS filled the expanders with air during the surgery, then on January 2 I had air exchange and saline fill of 250cc. I am 4'11 and going for a full B size. Anyway, I'm…
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Cancer Tratment for 5 years on Stradexa
Thank you for sharing this page. I find it most interesting and informative. I am 76 years old. I do have Charcot Marie Tooth Muscular Distrophy. Had Mastectomy. Very active and healthy in every other way. I am trying to maintain that. But the side effects, and the little devels are creeping in. The predicted and expected…
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DCIS removed but... gene mutations... now what and family thinks I should be happy
Diagnosed with DCIS (ER+/PR+) in Sept. Had it removed in Oct. Doc talked abt possible radiation and/or hormones even though I'm one of the "lucky" ones- HA! Now I'm positive for CHEK2 and RAD51C w a family history of ovarian and colon cancer (1 + 1). Waiting to hear back from gyn to screen for ovarian cx and sons need to…
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Triple negative breast cancer
hi I have had triple negative breast cancer I finished my 6 month of chemotherapy but my pathology response wasn’t good I have axillary detection because of my lymph nodes wasn’t clear. I have been offered by my oncology team trial call MK-2870 (sacituzumab tirumorecan) for 6 month anyone have same experience or anyone…
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Starting chemo with no support. Advice?
Hello, I start chemo next Wednesday 8th of Jan. I live alone and my family are not in this country. I also just moved to the South Bay so I don’t have friends here either. any advice on how to go through this grueling period completely on my own ? Also, I am considering cold capping ( using penguin) but I’d need someone to…
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Phesgo loading dose for 18 cycles
Hello, has anyone been told they need to be on the loading dose of Phesgo 1200-600 every 3 weeks for 18 injections? I read that the first dose is 1200-600 and the remaining should be 600-600 as a maintenance.
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Difference between recurrence and new primary cancer
How do they tell the difference between a new primary cancer and a recurrence of the old cancer. I had ILC in 2017, treated with lumpectomy and radiation. I stupidly refused antiestrogens because I thought I would be OK. They have now found another tumour in the other breast, but say it's ductal this time. Has anyone else…
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Our treatment histories
Hello, So far, I've been a silent member only, so this is my first post. I have been following many discussions regularly, and found this forum an incredibly helpful and encouraging place. I was wondering if we could have a thread to collect our treatment histories? Which drugs we've been on, how long we've been on each,…
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CHEK2 Mutation
I was at my gastroenterologist last week. He passed on the following news adding that this is the first time (praticing over 30 years) that he has ever seen a risk being removed from guidelines. In August of this year, the National Comprehensive Cancer Network (NCCN) guidelines removed the warning that a CHEK2 mutation…
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Postmenopausal bleeding after stopping tamoxifen
I was diagnosed at age 47 and was on tamoxifen for just over 3 years, which I recently stopped. Was perimenopausal upon starting it and stayed that way for over a year. I'm 51 now and have not had a period for 25 months. Well, 3 days ago, I started what looks and is acting like a period. Was heavy for 2 days and is now…
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carnivore diet
Hello I just wonder if anyone from you is or was on a carnivore diet before, during or after the breast cancer diagnosis. I would like to hear from you. Ata
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DCIS Grade 2 Diagnosis
Hi all, this is my first time posting here and am so grateful that this forum exists. My wife has had an incredibly stressful few months to say the least. In September she went in for her yearly mammogram and a suspicious area was identified in her right breast. She subsequently had an ultrasound, biopsies and MRI and was…
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Anyone else currently in chemo?
Hi everyone, Me again Got through my second round of AC, just wondered if anyone else is currently going through it, just wanted some advice on how it’s mentally taking a toll and any advice on that? Thank you for any advice xx
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Any Metastases to the Internal Mammary Nodes Survivors?
I want to connect with anyone who has gone through what I have. I am almost a year out from ACT chemo and 8 wks of radiation. Having my first PET scan since all of that and facing the dreaded Fear coming up once again...
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Taxol liver toxicity
Hi , my name is Gaudys . Recently Dx with inflammatory breast Cancer , ER 100% +, PR -, Her2 -, grade 3. Currently on my chemo , liver enzymes are high and my Dr decreased taxol by 20% , made me worried about treatment efficiency on shrinking my tumor . Anyone on the same boat? I also have moderate neuropathy as a side…
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Follow up imaging recommendations post bilateral mastectomy
what is the follow up imaging post mastectomy? MRI ? There is still residual breast tissue post mastectomy! My oncologist is very casual about it and tells me there’s nothing to worry about. My high grade DCIS was grade 3 comedeonecrosis ! No need for tamoxifen (my score was 3+estrogen positive! ) worried about the lack of…
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Spring/Summer 2024 Radiation thread
Gather here to share experiences, ask questions, get encouragement, and support others who are going through radiation therapy along with you. Please share your diagnosis, any previous treatment you've had, and your scheduled start date along with your radiation schedule. We're all here for you!
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tubular carcinoma
Anyone out there also diagnosed with tubular carcinoma? I know it is a rare kind, rarely spreads, is highly estrogen positive and has a good prognosis. If you have tubular carcinoma, I am wondering about your treatment. I had lumpectomy, radiation, and tamoxifen. I am curious to know if all of this treatment is necessary…
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Poll: How are you feeling as we start the New Year?
How are you feeling as we approach the end of 2024 and the beginning of 2025? Take our poll on what you most feel this year, and share more below in the conversation.
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Delayed allergic reaction to Taxotere
Has anyone had a delayed allergic reaction to Taxotere? I had a severe reaction 9 days after my 3rd treatment of Taxotere. I thought I was having a heart attack, it turned out to be a severe reaction. It started with hives all over my head then moved to my arms. I was taken to the hospital by ambulance and they gave me…
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Anyone with enlarged mediastinal lymph node?
I was diagnosed with IDC 11/14/21. Surgery has not ben completed but biopsy showed HR+, HER2-, grade 1. Recent PET/CT showed enlarged (2.5cm) superior mediastinal lymph node. There was no metabolic activity shown on PET or, FDG uptake was low enough to classify it as non-malignant. The Radiologist made no recommendation…
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Has anyone here declined aromatase inhibitors?
I am 70 and recently had a lumpectomy for stage 1 invasive ductal carcinoma, 7mm. No lymph nodes involved. My oncologist prescribed anastrozole but I refuse to take it. I've done my homework and it's a quality of life issue for me. I already have mild arthritis, osteoporosis and thinning hair. I don't need more of that and…
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SLNB pain
Hi and happy holidays (or at least coping holidays—whatever we can muster at this point, I think), I just wondered if anyone had any thoughts or remedies or experiences to help me think through my SLNB. I had a delayed SLNB, so I got it after the mastectomy. Well, it hurts so much more than I had ever imagined. I know that…
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Upper back pain, tingling and numbness in left arm and both feet
Good morning, I haven’t posted here in a while but, I do check in to read the posts from time to time to gain knowledge and peace. I’m very thankful for the ladies here, though I wish none of us were here. So, if I could get some of you to offer advice, prayers, or experiences I would appreciate it. So, in early October I…
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Breast MRI call back
I had an mri a month ago. I finally called my Dr to get the results. I was told over the phone no cancer but I could schedule an appointment to discuss. I put it off because of hearing no cancer but yesterday I got a call to find out why I haven’t booked an appointment. (??). So now I’m going in on Monday and I’m not even…
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Celebrex/Celecoxib
I'm just curious as to who else is taking Celecoxib. I have arthritis but am really taking it as an anti-inflammatory that I hope will delay progression. I've been taking it daily since last June but today a Physician's Assistant refused to renew my prescription. Her reasoning was that my kidney numbers on the GFR test are…
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Small asymmetry in tissue and scared
hi! I’m f22 and felt something asymmetrical in my left breast a few months ago. I do acknowledge I have a lot of health anxiety, so things like this are blown out of proportion. I have no family history or risk factors. A couple months ago in my left breast, right above where the top of my areola ends, when I press in I…
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It's OK - No Surgery, No Chemo
Hi Community I haven't found this topic yet, so here's a start (if it's too long, I apologise in advance): I'm in Stg IV with the HER2 cancer growing from the right breast, and first discovered a grape-size lump in Aug 2018. I couldn't get a biopsy until June 2019 (SSA had cut SSI funds), directly before which my PCN said…
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Anastrazole
hello! I’m supposed to start anastrazole but I suffered a fall and broke my tailbone. I’m wondering if anastrazole will slow the healing time for the fracture? Has anyone experienced that or heard of that? Also, I just got hot flashes and night sweats and chemo induced foot neuropathy under some control and I’m honestly so…