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High creatinine, high ketones?
I am not sure how common these side effects are, but I've been experiencing them so I thought I'd check in and see if there's anyone who has already experienced these and can maybe shed some light on what I might expect. My meds include kisqali and letrozole. Not sure what might be causing the issues. TMI time: I noticed…
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Summer/Fall 2024 Radiation Support thread
Gather here to share experiences, ask questions, get encouragement, and support others who are going through radiation therapy along with you. Please share your diagnosis, any previous treatment you've had, and your scheduled start date along with your radiation schedule. We're all here for you!
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1 Year appointment and stressed!!
I just had my 1 year appointment. Everything went good, however my Dr. recommended me getting an ultrasound. I have had two mammograms since my lumpectomy and the first one said post surgical changes and a seroma and the second one said no changes. However, I have a hard lump directly where the lumpectomy bed is. It is…
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Chronically itchy nipple...Dx'd with PASH in 2020
Hi, all- Just a brief history: I am a 50 year old post-menopausal woman with dense breasts and a family history of BC. In 2020, my annual mammogram revealed a small cluster of calcifications in my right breast, after which time I underwent a stereotactic needle biopsy. The results were benign showing columnar cell changes…
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High risk and not getting taken seriously
Hi everyone I’m new here.. happy to find a group that I can discuss my concerns with cause Reddit has some mean girls on there haha. Long story short I’m 35F with family history of breast cancer.25% risk score. My mom passed away from TNBC she was diagnosed at 47. My mom’s aunt as well & my moms grandma POSSIBLY. I did…
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The wait begins...lumps between breast & collarbone
Scans scheduled for next week, already told will likely also be biopsied. When I saw the lump last week had no idea it could be associated to breast cancer. Don't think anyone has ever even looked at or felt this area, even during breast exams. About 1" above the right breast, 2-3" below collarbone. Largest near the…
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Her2+++ ER- PR- novo stage IV
I’m her2+++ ER-PR- novo stage IV, had multiple tumors in both lungs. I started in 08/2022 with Taxol Herceptin Perjeta. Stopped Taxol after 18 rounds and still continue every 3 weeks with Herceptin Perjeta. December 2022 after I completed Taxol all my tumors were gone so for the moment 2 years NED. Anybody longer than 5…
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Recurrence after mastectomy
Hi, I just found out there’s a tiny nodule with residual DCIS, 10 months post mastectomy. I’m freaking out about these new findings. Has anyone experienced a recurrence post mastectomy? My surgeon plans to perform a lumpectomy followed by radiation. I’m terrified it will have spread elsewhere since recurring so quickly.…
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Question about CEA levels...please
Hi everyone, I have a question and hope someone could help me find some awnsers. In 2023 she was diagnosed with breast cancer, there was no spreading to other organs but she did have 9 involved lymph nodes removed. My mom had to go trough 6 months of weekly Chemo and is now on chemo pills that she should take for atleast…
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NPR story sex after cancer treatment
https://www.npr.org/2025/01/19/nx-s1-5266845/cancer-sex-survivor-sexual-health
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Anyone out there with the Chek2 gene mutation???
my mom's genetic testing for her breast cancer was positive for the Chek 2 gene mutation. We were told this is a rare mutation, but a high risk one. I was tested a week ago and awaiting my results. Anyone out there like us???? Would love to hear how you navigated this or any info you may have.
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MRI for higher risk cases (for my daughter)
Hello, dear All I am this time trying to find out what to advice to my daughter, who is healthy, and she is 46 years old. But as my daughter(i had a breast cancer in 2019, had lumpectomy and radiation, taking exemestane for 5 years), she was told she has 20% risk to get breast cancer during lifetime. No BRCA gene issue, i…
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Low-Dose Tamox Reduces Recur & Invasive Risk After Non-Invasive
Low-Dose Tamoxifen May Be an Option to Reduce Risk of Recurrence, Invasive Disease After Non-Invasive Breast Cancer December 18, 2018 A low dose of tamoxifen after surgery reduced the risk of recurrence, as well as the risk of new invasive disease, in women diagnosed with hormone-receptor-positive breast intraepithelial…
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New Year wishes to our wonderful community members!
Sending you each gentle hugs, wherever you are in your experience, to help usher in 2025 with peace, love, reflection, hope, joy, appreciation, and whatever else you may be feeling as we turn the page to a New Year. We are so grateful for each of you who share here your struggles and advice, encouragement and challenges,…
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Worried About Inflammatory Breast Cancer? Start here
Hi! We know you're here and worrying about a symptom or change to your breast or breasts. You may have found yourself Googling your symptoms, which led you to finding information on inflammatory breast cancer (IBC). Before coming to any conclusion, we hope you can take a deep breath, and read below from the main…
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Dancing with the Stars
Calling all DWTS fans. It's that time again. Join us for some fun as we compare notes again this season.
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Risk of diagnosis or recurrence after COVID booster(s)
Just a thought… I was watching today a youtube medical channel (Dr. John Campbell) and saw scientists interviewed coming up with evidence that the Covid boosters were extremely dangerous and the statistics of cancers are off the charts because of the spike protein vac. I myself was diagnosed triple negative 5 months after…
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Worries about local recurrence
Hi Everyone, it's been awhile. I just passed my 3 year cancerversary, and it's been a tough ride. In a nutshell, I feel like I've aged about 20 years due to stress and having all the estrogen sucked out of my body. I've also struggled with AI side effects and had several legit health scares (all turned out ok or at least…
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MRI after benign breast biopsy
I wanted to see if anyone else had this happen after their biopsy. My mammogram showed an asymmetry and distortion and the US showed an hypoechoic mass and another hypoechoic area with shadowing. I was thrilled when they said the biopsy showed benign fibrous changes. The radiologist wants me to have an MRI in 4 weeks to…
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Ultra hypofractionated (accelerated RT) in large breast cup? Help - need to decide!
I have stage 1 node negative invasive lobular breast cancer. Oncotype score of 9. I met with my radiation oncologist who gave me the option of the 3 week whole breast radiation with 1 week targeted boost (standard of care) or the ultra hypofractioned 1 week whole breast with same 1 week boost. Studies show it is equal in…
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Any New Brunswickers with stage IV?
Finding it difficult to find local ladies dealing with Stage IV. Would love to hear from you!
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Drinking Alcohol!
Hello, I figured I better come here for some advice. I am a 8 year Breast Cancer Survivor. I have a history of Breast Cancer on my Mothers side of the family. However, I am a bit worried. I drink alcohol. I have about 4 drinks a week. If not more. I am a social drinker. I am to the point of getting worried that my Cancer…
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Pain in Breast 7 years post Radiation
I am seven years post radiation therapy on my right breast. I am very active and work out regularly. I have had very few issues. All my mammograms have been normal except showing fibrosis of the right breast. I was discharged early from my cancer doctors because I was not able to tolerate Hormone Therapy. Over the several…
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Just found out today
I'm so glad there's a group like this! Just got results from the patient portal - TN IDC stage 2 in my left just like I had 13 years ago in my right. The MRI I had in May was totally clean. As you can imagine I'm feeling all the feels. None of my providers has actually called to speak with me yet (in fairness the results…
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Breast lymphadema (what does it feel like)?
I am newly diagnosed with breast and arm lymphadema. My symptoms are a tightness across my breast/chest and upper arm. Swelling and aches in both my arm and chest. My breast almost feels like when you put a wet washcloth on it. Sounds weird, but it’s the only way to describe it! Does anyone else experience this? I’m seeing…
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Letrozole Side effects-- throaty
Have been taking letrozole for about 4 months after DCIS (w/clear margins), and preventative radiation treatment. Seem to be free of noticeable side effects except it appears to cause a cough and a 'drippy' feeling in the back of my throat. I confirmed this by going off it for 2 weeks, when these symptoms disappeared. Has…
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ER & PR positive, HER2 negative - chemo or no chemo??
Evening all, new here and looking for some opinions xx In Nov 2024 i had surgery to remove cancer in my right breast after biopsy (Oct 2024) confirmed a 20mm core ER8, PR8 and HER 2+1. The surgery wasn’t completely successful and the final histology reported it to be 47mm stage 3 ER8, PR positive and HER 2 negative with…
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AC-T Latest advice?
hi all, Am starting AC-T and wanted to know if there is any up to date advice or tips to consider? I have heard cold cap isn’t good with it but will use it anyway. Anyone used Paxman with AC-T? Welcome any tips to keep me sane!
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Scar Tissue
I wanted to share some vital info. I've been having chest tightness for over 2 years. I've been tested for PE's, acid reflux, etc., but everything would come back negative or not something they could fix. I do have acid reflux and take Prilosec twice a day to keep it under control. I kept asking all of my doctors if it…
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RCB III - Terrified
Hello! Recently (12/12) I successfully underwent a double mastectomy. I'm healing pretty well and my pain seems to be getting better every day. Today, I had a post op appointment with my Medical Oncologist that has made me both sad and scared. We went over my post surgery pathology and there were more infected lymph nodes…