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CBD and Estrogen
Does anyone have knowledge of the relationship of CBD with Estrogen? I recently heard an expert in a lecture say that canabinoids provide estrogen. That contradicts other information available. Does anyone have anything current?
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Practical Advice About Home Hospice/Home Care
Started this thread because I found that the transition to hospice at home was more complex than I expected and there are many others here who had helpful tips. Many tips were not from those in hospice but from friends who figured out how to do things despite limited mobility. Looking at the past posts, the following was…
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Exercise to prepare for surgery
I would like to start a thread, if anyone is interested, to record our efforts to exercise in order to prepare for surgery. I was inspired by a report online of a young woman who exercised a lot to prepare for her surgery. "I wasn’t thinking about the surgery or worrying about the surgery—I was focused on getting my body…
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What to expect after Mastectomy/reconstruction
I'm scheduled for Mastectomy/reconstruction Monday, May 15th. I'm getting more and more nervous as the day gets closer. I have been told TRex arms for the first few weeks and not to lift anything heavier than a gallon of milk. MY PS has a whole list of do's and dont's along with a list of medicines and when and how to take…
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LYMPHA (Lymphovenous Bypass) Procedure With Mastectomy?
Hello all. Today I had a meeting with my surgical oncologist to discuss my upcoming single mastectomy. I was kind of bummed to hear that that many nodes will be removed, and mentioned that I have a fear of lymphedema. The SO said that a plastic surgeon will be called in to do the mastectomy close, and he also does a…
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Lumpectomy vs DMX post?
I saw a reply to a post yesterday that went through every pro and con for each of lumpectomy, SMX and DMX. It was incredibly thorough and gave excellent points for all options. Of course, now I can’t find it. I wanted to review it again before my visit with the surgeon tomorrow if anyone could point me in the right…
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Keystone 522 protocol -anyone experiencing side effects to immunotherapy?
Hi Everyone, I was diagnosed with TNBC stage 2 in Feb and have undergone neoadjuvent (chemo + immunotherapy) with 11 rounds taxol weekly and 3 rounds of cisplatin and keytruda. But since week 7 I’ve developed side effects to the immunotherapy. My heart rate elevated, I got breathe less, low grade fever of up to 100.5 daily…
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Jewish Warrior Sisters
Even though I love hearing about all the flavors of G-d, I'd like a place where Jewish women can share their stregnth, fears, and hope. Can it be here? If you know what kugel is, know what it means to 'not roll on Shabbos', or even are just gastronomically Jewish (you like the food), let's share here!
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No one cares about this
I've become increasingly aware of the myths surrounding breast cancer, perpetuated by the media, and fed to the media usually by women that are only about 6-12 months out of treatment, declaring that they are 'cancer free'. We know that breast cancer is not this simple and easy - you can never know if you are cancer free -…
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After mastectomy problem.
Hi My mother has triple negative breast cancer,stage 1,tumor grade 2, no lympnode are affected . After the doctor said it was cancer, the operation was done. The type of operation was mastectomy. It has been 44 days since the operation but the seroma is still not closing. Now what can be done in this situation? What could…
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Is Oncotype test always ordered? Are there are genetic tests I could request in addition?
Had a lumpectomy 10 days ago and SBN. Stage 1, grade 1, no lymph no involvement 90/98 EST/PR. My surgeon has made no mention of the Oncotype score and when I called the lab for my biopsy results, they said I would need to ask my surgeon to submit for genetic tests. Is this normally how it's done? Also, are there any…
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Vitamin C IV PharmaLife Laboratories dosage
Can someone guide me with the dosage for Mega Dose Vitamin C IV from PharmaLife Laboratories? The ampoule has a concentration of 10,000 mg in 100 ml of liquid If there is someone who has already used...
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Looking for Her2 Positive survivor stories
Hello, I was dx in February with Her2+ BC. I went through the chemo, the mastectomy and now in the midst of radiation. I will finish that in December and will be on the Herceptin through March. I, like so many BC survivors, have a constant fear of metastisis. I can't shake it. I think what I need is to read stories of…
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After mastectomy problem.
Hi My mother has triple negative breast cancer,stage 1,tumor grade 2, no lympnode are affected . After the doctor said it was cancer, the operation was done. The type of operation was mastectomy. It has been 44 days since the operation but the seroma is still not closing. Now what can be done in this situation? What could…
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Surgery December 29th - exchange with fat transfer
Hi everyone, I have received a date for my exchange surgery with a fat transfer over implants on December 29th, 2021. I didn't see a thread for December surgeries. I am wondering what to expect as far as recovery (I had no radiation)? I am SO excited to get these horrible TE's out and have seen people say that they get a…
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Local Recurrence Scare Post Mastectomy - 13 Years Out
Hi all! I was here back in 2010 and it was so helpful. Since then, I've been through a left mastectomy with reconstruction, chemo, 5 years of Tamoxifen followed by 5 years of Femara. I have been doing well. BUT … A couple weeks ago I was outside in the sun for an extended time (covered, not bare). I felt a stinging…
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inverted nipple and abnormal mammogram
Last Thursday I had my first mammogram. I am 42 years old and had my first mammogram scheduled the month after the initial covid lockdown in 2020. I put it off for 2 years because I don't want to go into a hospital if not nexeasary due to covid. I received notice Thursday evening that they found abnormalities in mu…
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More Tips (and a Shopping List) for Getting Through Chemo
These lists may be read in conjunction with the conversation created by www.breastcancer.org member Melissaga ("Tips for Getting Through Chemotherapy") on December 6th, 2006. Melissa's tips are great. (Posts by member "otter" are invaluable, and reliable). (The initial list & tips were compiled by my wonderful friend Miki,…
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Update…
A bit of history: routine mammogram, two more mammograms plus an ultrasound, biopsy, clip placement, diagnosed with both DCIS and IDC on April 21. Saw all three doctors, needed to do MRI to see extent of disease and also wait for HER2 results (we know ER and PR are positive). I saw my surgeon yesterday, and the MRI…
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Mastectomy recovery
Hi All, I had a unilateral mastectomy with no reconstruction 6 days ago. The incision itself doesn’t have much pain but I feel a great amount of discomfort and small amounts of pain where the drain is under my skin- particularly under my armpit where there is some extra skin for a delayed reconstruction. Has anyone else…
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Full Body Cramping and Muscle Spasms
I finished treatment a little over a year ago and recently I've been having terrible muscle cramping. The cramps are all over my body... jaw, chest, back, thighs, etc. If I yawn I get a horrible cramp in my neck and jaw and it's making me nuts. I've tried all the usual remedies but this is miserable. I had muscle cramps…
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PT for Lymphedema?
Hi! Has anyone else been sent to PT to stave off lymphedema after having lymph nodes removed? My surgery was a month ago and I have no symptoms. I just don’t want to waste more time and money if I don’t need to. Thank you for any insight!
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Feeling confused and concerned
Hi there, I’m a recently turned 40 year old woman in Colorado, USA. I went in on April 10 for my screening mammogram and was called back due to a focal asymmetry in my left breast at 3 o’clock posterior depth, approximately 7cm from nipple. There was no mass noted in the screening mammogram. This morning I went in to…
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Seeking affordable certified medications
Hello everyone I'm in search of a trustworthy online pharmacy where I can purchase medications that are both affordable and certified. I've heard that some countries, like Mexico, offer prescription drugs at a lower price compared to the US. However, I'm hesitant to buy from there since I'm not sure about the quality and…
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Has someone received EVENITY injection for osteoporosis?
Good Envening ! Has someone received EVENITY injection for osteoporosis treatment? My wife has taken Fosamax for 5 years and received Reclast infusion for 2 years (one dose per year). Now, the Doctor suggested my wife to receive EVENITY injection for another year (one injection per month). Since EVENITY is relative new…
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Waiting is the worst….
This is my first post so I apologize If I’m doing this wrong. According to biopsy results I have both IDC and DCIS. Lucky me. 🙁 I met with surgeon, medical oncologist and radiation oncologist yesterday, but nothing can be decided until MRI is completed and HER2 results come back. I’m a mess and don’t know what to do with…
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Considerations: Lumpectomy w/Rads vs. UMX vs. BMX
Years ago I put together a list of considerations for someone who was making the surgical choice between a lumpectomy, mastectomy and bilateral mastectomy. Over time I continued to refine the list and add to it, thanks to great input from many others. Over the years I have posted this many times, and although I don't spend…
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Port Placement
Hi all, I was hoping to hear other peoples’ experiences on having their port put in. I recently had mine put in and it was not a great experience for me. I knew I’d be in a “twilight” state, but I was told I wouldn’t feel or remember anything. However, I felt quiet a bit and was feeling a little panicked during the…
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ASCITES
Hello all. I am actually writing on behalf of my best friend. She has metastatics breast cancer, Im sure hers is lobular. She has been living with it for 10 years. 5 years ago it spread to her peritoneal lining. Estrogen blockers & a chemo type pill kept it at bay, but it has become resistant to them. She has had one type…
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Tamoxifen after ALH diagnosis
Just joined the group. Recently diagnosed with ALH (Atypical Lobular Hyperplasia). Met with an oncologist and discussed about going on 5mg Tamoxifen for 5 years. I am 52 and perimenopausal…had some heavy bleeding issues in the last few years and did a endometrial biopsy which came back negative. I have to decide whether to…