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Any coding/insurance experts?
I'm questioning the medical claims that my MO's office is generating, for my Zoladex injections. I have to pay coinsurance on the medication (which is now being reimbursed under a rebate, thank goodness), but I also get charged a specialist office visit copay. I checked with the insurance, and they said it's being coded as…
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Unusual side effects of Aromatase Inhibitors
Trying to find resources or breast cancer sisters and brothers' experiences who are using AI and have unusual side effects that are not on the medication list. In my case, my skin color has changed from pale white to orange/yellowish. My blood tests are normal including all liver tests. Anyone else has a similar side…
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Husband dealing with Tamoxifen needing to vent
Hello everyone! My wife was diagnosed with Stage 2A in June 2019, so we are coming up to 4 years. She has had a lumpectomy and follow up surgery, chemotherapy, radiation and now hormone therapy (taking Tamoxifen). My wife also has co-morbidities including thyroid cancer and Type 2 diabetes with complications (nephropathy),…
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Just diagnosed and started treatment for ILC (pleomorphic)
Hi. I have recently joined this forum as I was dx with grade 2, Stage IlB ILC (including LCIS and DCIS) in my left breast. I'm aged 49 years and apart from being a femaie, I don't bear the obvious risk factors for BC. So this has come as a shock to me! My surgery was a week ago. The histopathology showed that the margins…
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BI-RADS 4 Hypoechoic mass with increased flow
Good morning, yall! This is my first post and I've been doing lots of research because that's what I do when I'm anxious. For well over a year, I've gotten random spots on my breasts that become abscessed. I'm terrible about being proactive on medical care so I've ignored it, figuring it's from a bra rubbing wrong or…
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Lymphedema threat: are we ever out of the woods?
Dear all, It's been nearly 10 years since my lumpectomy. I had 11 nodes removed total. Since then I've been religious about using my left arm (lumpectomy done on right) for everything-blood draws, BP cuffs, vaccines (including Covid), etc. I should add I never had any sign of lymphedema, ever. I'm in great physical shape…
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Clavicle lymph nodes and axilla after DCIS 9 years ago
Back in October I felt a lump above my clavicle, after a biopsy and MRI I was told DCIS from 9 years ago has spread to Supraclavicular and axilla and pec region. There was a 1 % of this happening after the lumpectomy and 30 rounds of radiation 9 years ago. I just finished 4 rounds of Adriamycin and 4 rounds of Taxol. The…
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Life after finishing Tamoxifen
I was diagnosed with stage 1a breast cancer in 2018. Having lost my sister to the same disease at a young age, I chose to have a double mastectomy and went on a 5 year Tamoxifen regimen. I just came off tamoxifen in October after taking it for 4 1/2 years. Last gyno appointment showed endometrial thickening (benign,…
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Confused about histopathology report
Hi All my mom had breast cancer diagnosis on 4/12/23 after which she underwent a unilateral mastectomy. At first she was reluctant to undergo mastectomy but with support from you all she finally did. Throughout this journey I could not have done without support from the posts here as it helped me learn so much the…
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Travera
I may be overly optimistic, but I feel like I cannot share info about Travera enough. Travera testing can help to predict which cancer drugs are likely or unlikely to work for you. HOW AMAZING IS THIS? You might not have to go through the side effects, waiting, anxiety, etc. to wonder if a particular drug is going to work…
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IDC Grade 3
Hi everyone, I’m new and just beginning this journey. Had a callback from mammogram, and then biopsy after. Got pathology report today and it’s IDC, Grade 3. Mass is 6.5mm. The report says lymph nodes not identified but is that because they haven’t checked yet? Will I find out more on that later? I have to call an…
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I look for other flat chested women. A rant.
I know many of you wear prosthesis, so I probably wouldn't be able to see or 'know', but. I look for you. I want to see you. I want to form a union, lol. I wish it were even more accepted, acceptable to be flat. To not wear prosthesis, not feel the need to, to opt out of reconstruction-if that is your choice. I do hope…
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How long to take a break from HT?
Hi all, I'm finally experiencing, I think, some dramatic side effects from taking exemestane for 11 years. I want to take a break to see if the side effects are related to this long-term use of AI. Joint pain in hips, cracking in neck and back, urgency and incontinence, and now some belly fat. I wondered if 2 weeks would…
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Nearly passed out in shower after mastectomy... what next?
I had a unilateral mastectomy several days ago, and my surgeon cleared me for showering after 48 hours. I was so excited for my shower, but not to see my surgical site—I didn't even look, but apparently the whole experience was too much for me because just 30 seconds into the shower I started to feel like I was going to…
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GRRRRRRRRR I HATE LE..........
EVERYONE can tell I have it... my arm just looks so fat..... I have been to.... and going back to.... therapy..... with a LE specialist... I wrap... I wear compression garments when flying.. exercising... BLAH BLAH BLAH...... I do it all, and I do it right. As a Stylist..... I was told... My job was a good profession to be…
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Just started TC chemo, 1 of 4 for Invasive TNBC Stage 1 grade 3
Monday was my first treatment, felt good for a few days then on Thursday it me. Nausea, flu like symptons and then diarrhea. Starting to feel better toda6, but have little or no energy. I go Monday for f/u with my Oncologist hopefully she has some tips to relieve side effects. I find it hard to stay hydrated though. Any…
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Anyone on just Taxotere and Cytoxan?
I just started a regimen of taxotere and cytoxan for four rounds. I really need to talk to someone who has been on just this regimen. My first session did not go well. It dropped my sodium levels too low and I had a couple of seizures. They kept me in the hospital for two nights. I have been achey and weak since. Does it…
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Biopsy 6/30
Hello, I’m new here. I had my first screening mammogram on 6/12 and was recalled. I had a diagnostic mammogram and ultrasound today, 6/23, and my results are below. They scheduled me for a biopsy on 6/30. I’m a little freaked out. BIRADS CATEGORY 04-SUSPICIOUS FINDING-Biopsy Should Be Considered ******** ORIGINAL REPORT…
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Lumps of the mastectomy scar
Hi! I had a lumpectomy, at the age of 40, for Lcis in the right breast in 2017. In the same year, I had a bilateral mastectomy with reconstruction because I could not control my anxiety. In 2019, I did lipofilling, after which oily cysts formed in both breasts. 2 days ago I had an ultrasound scan because a lump appeared on…
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Xeloda and TNBC
There's been a lot of news about the Japanese study where they administered Xeloda to TNBC patients after standard treatment, i.e., neoadjuvant chemo, surgery, radiation, who were NED but not PCR at surgery. MY MO is advising that I start this treatment this summer. I haven't seen much about going on Xeloda or dealing with…
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Fatigue after surgery
A month ago I had a lumpectomy. The surgical pathology report indicates it turned out to be a larger mass and more aggressive than first thought. I declined radiation and hormone treatment. My particular type of cancer does not respond to chemo (pure mucinous cancer). Prior to surgery I went into "training" to be as strong…
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Best moisturizer to keep from burning or skin damage
I will be beginning radiation in March. It will be about four months from DMX to expanders. I feel like my skin has healed quite well and am praying I don’t have crazy burning etc with rads. What is the best this you all used? And what was your experience with radiation? Did anyone get by unscathed? Did anyone manage to…
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Diagnosed yesterday - Intermediate Ductal Carcinoma
Hi everyone, I'm Jayne. I would like to say it's so nice to meet you all, but this is a forum I never expected to find myself. I'm 52, relatively healthy with an absolutely amazing husband and was loving life, running our own business, kids left home, travelling, living the dream to be honest. Seven weeks ago I had my…
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How About A Stage 4 Gallows Humor Thread?
There used to be a gallows humor thread many years ago on this web site. I can't find it. There are many times I still rely on gallows humor in order to cope with my situation. I think my family appreciates it too. I have forgotten so many good zingers during all this time, but I'll start with some tee shirts I bought over…
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Extremely claustrophobic and need an MRI
Hope everyone here is doing well. I have a question. I have been diagnosed (by a biopsy) with breast cancer and now they want to do an MRI. I am being told it will be a closed MRI and I will be given two valium. I am EXTREMELY claustrophobic (had a donut CT scan and freaked out even on that) so am wondering if there are…
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Waiting
I was diagnosed June 6. I finished all my imaging tests in Friday. I get a call that night, saying it looks more spread then they thought and in both breast. So I'm being scheduled for more tests. I'm scared enough with it being stage 1a I'm not sure how to handle more. I'm 33, my mom keeps crying, brother cry's but not…
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What could this be?
Hello all, I'm 29, no family history of bc. If you are interested you can take a peek at my post history, this has been going on for a few years now... but the tl;dr is that in one breast I've been noticing the tissue get thicker/firmer than the tissue on the other side. It still feels like normal breast tissue according…
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Self Examination after Mastectomy
I had an appointment today with my BS. I asked about a small lump I found near my breast bone. It's painful. I guess he couldn't feel it, but it is there, because I can feel it. His comment to me was to "leave the examination to the experts, breast surgeons and medical oncologists and stop doing self examinations!" I…
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Waiting again - the unknowns are bliss and welcome this time.
I visited the Orthopedist due to hip and knee pain (walking with a limp). It came about suddenly after standing up from a sitting position and didn't go away. It is on one side of my body, and I have numbness in my leg and foot. I let it ride out, thinking it must be from my AI. After a short time, I caved and went to the…
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Misdiagnosed as Fibroadenoma
My wife noticed a family large lump (4cm) on her left outer breast on 8th sept. We immediately consulted a general surgeon who said he was absolutely certain that it was a fibroadenoma. He sent us to get an ultrasound, and the radiologist saw two lesions 3cm and 1cm next to each other, and said they're definitely…