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When you don't fit the studies and your doctors disagree
Hi all. I'm recently diagnosed (March) with regional recurrence in right axillary nodes, 17 years after double mastectomy/chemo/tamoxifen for IDC right side (with negative sentinel node biopsy). Surgery in April removed 4 positive nodes and 4 negative nodes. Cancer is again ER+, PR+, HER2 negative (but this time HER2 low).…
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Zometa - What was your experience?
My last bone scan showed mid-level osteopenia, and my doc recommended Zometa. I was lucky enough that my cancer seems to have been caught by my mastectomy - no chemo or rads. I'm on anastrozole just to be safe. Most of the other Zometa threads seem to be for very complex cases where the posters are juggling many conditions…
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Tamoxifen: start or no?
Hi After meeting with my MO yesterday and we agree to stop Lupron as the emotional side effects are just not doing well with me. I am premenopausal, age 47, and Oncology score is 22. My risk of distance occurrence in 9 years was 13%, with tamoxifen it would reduce to 8% and if using ovarian suppression or chemo, it would…
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diagnosed with DCIS - advice welcome
Hi Everyone, First time posting here. Great forum with lots of information and support, and I’m hoping to garner some after finding out today via a pathology report that I have DCIS. I had a lumpectomy back in 2016 for a papilloma that turned out to be benign, and just this past month, experienced an excruciatingly sharp,…
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Breast Reconstruction
Hello, I just had a bilateral mastectomy with immediate reconstruction. It’s been 48 hours since my surgery and I feel that both of my breasts are becoming warm to the touch closer to the armpit area. Is it normal? I don’t have fever and generally feel well recovering from the surgery. There is a lot of swelling and…
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Maybe a dumb flat question?
I had surgery Monday. Modified radical on the left and simple on the right. This may be a silly question but will my chest become more flat instead of concave? I am having a very hard time processing what I see under the bandages right now and try not to look because I just cry when I do. Will it look any better? The…
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Comfort dogs
Okay, I am just throwing this out there: does anyone else feel closer to their dog than to humans through this roller coaster journey? I have a wonderful life and great support, but my little blind shelter dog Lewie (a white poodle mix) has been constantly by my side- whether I am sleeping on the couch after chemo or in…
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Deciding on your implant location; Subpectoral or prepectoral
Good Afternoon Group. I met with both my BS and PS this week and was not aware of some decisions I need to make. Specifically under or over the muscle. I was naive and thought it was just a done deal to go under the muscle/Sub-pectoral. Turns out this was not the case. Both surgeons made arguments for and against both…
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Pain and tightness around implant after radiation
I’m 13 months post final radiation and have extreme tightness around my implant. There isn’t a time when I don’t have an uncomfortable feeling or down right pain. Now the back story and questions. Original Dx 6/2016. Dbl mastectomy, SLN Bx, under muscle reconstruction with textured implants. Woke up feeling as if I was…
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Biopsy Results
Greetings - just diagnosed today - more testing to come. I had 2 areas biopsied via stereotactic biopsy (right breast). Area of architectural distortion came back benign - with stroll fibrosis, columnar cell change, usual ductal hyperplasia and focal features suggestive of a radial scar. Calcifications came back -…
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Multicentric ILC
Hello, I am new to this site but hope to find support with others who have my condition. When I was first diagnosed with BC, I was optimistic based on the initial results, namely very early stage because of the tumor size. However, as I proceeded with additional testing - biopsy and MRI - the diagnosis just kept getting…
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TC vs. CMF
I had a lumpectomy a month ago. The tumor was smallish with micrometastatic carcinoma in one lymph node. The doctors initially thought that I would need radiation but not chemo, but after getting my oncotype (28), the medical oncologist is strongly recommending chemo, too. She's given me two choices: AT (4 doses, each 3…
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ADH and low dose Tamoxifen
I’m 65 years old and have had normal mammograms until this year. I had a lumpectomy last month after a biopsy indicated atypical ductal hyperplasia. Because of this and the fact that my mother, her sister, and her aunt all had breast cancer, I am now considered high risk and my oncologist is recommending low dose Tamoxifen…
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Exchange City
We love to include everyone's surgery dates - Please PM me and I will update the list to include you! The list keeps changing since we try to move forward as the dates move forward. Thanks. - Jean Useful web sites: Mentor: http://www.justbreastimplants.com/implants/mentor_specs.htm…
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Anyone take Tamoxifen after Uterine Cancer
just wondering if anyone out there has taken Tamoxifen after a hysterectomy for uterine cancer.
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Have to make a radiation decision
I have IDC…stage 1, HR+, PR+, HER2-, Grade 2. I’ve had a lumpectomy with tissue rearrangement and sentinel node biopsies. The sentinel nodes came back clear. The RO said that since I’m 73 yo and the tumor was small, 1.9 cm, that I can either have no radiation or a partial breast accelerated radiation course of 5 days. Even…
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Long term side effects of radiation theraphy
for my sister doctor suggested her for 33 sessions of radiation theraphy after mastectomy I just want to long term side effects of radiation and how soon we can go for radiation theraphy after mastectomy kindly share your experience
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ISO a really skilled surgeon
Hello, I was diagnosed Stage 1A Triple Positive IDC in 2019. Genetics showed positive for ATM mutation. Had a bilateral mastectomy with direct to implant reconstruction, three fat grafting surgeries. All well until now. I need more fat grafting AND I think I may have BII. My right foob is really swollen and irritated after…
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THIS or THAT Game
Which do you prefer....THIS or THAT? Express your preference....and then present a new question! Salty or Sweet?
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Upcoming biopsy for "subareolar mass" 1 year after mastectomy for extensive DCIS
I am trying not to get too panicky yet, and I'm more annoyed than scared at this point. I was diagnosed with DCIS in January 2023 after many years of monitoring and multiple biopsies that showed benign papillomas. I then found out I was CHEK2 positive and stepped up the monitoring with annual MRIs. I had very "busy"…
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HRT after Breast Cancer? Maybe!
I just wanted to share this information I've found. The first is a book cowritten by an oncologist, Dr Bluming, called Estrogen Matters. The second is an article he just had published in Cancer Journal entitled 'HRT after Breast Cancer - It Is Time.' I would be happy to send a copy of the article to anyone as he was kind…
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which Chemo for 2. Primary Breastcancer Hormonal + Her-
Dear Ladies, I had Hormonal + Breatcancer in 2009 T1, N1, G3, Her- which was treated with 4 EC and 12 Pacly. And 10 years Tamoxifen as I was 35 at that time. Now I have a new one in the other Breast (T1C, N?, G3, Her -) and gettin Neoadjuvant TC 6x Chemo. I am still not in Menopause. No E this time. I am living in Germany…
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Unofficially Diagnosed?
Hi all! I am 42, and went for a diagnostic mammogram and ultrasound yesterday. I’ve been going since I was 30 since my mother had bc at the age of 40. I had noticed some tethering of the underside of my left breast and then felt around and found a new lump. I have firbrocystic breasts with multiple cysts and fibroadenomas…
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Worried
Hello All, I am a 38 year old female with two small children. I have been having breast discharge (only when squeezed) since I last breastfed 3 years ago. I thought this was normal but I mentioned it at my last check up. I had a normal mammogram and ultrasound. However, they tested the fluid and found Rare atypical…
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Young Women With No Genetic Mutations Have Low Risk of Second Primary Breast Cancer
Young Women With No Genetic Mutations Have Low Risk of Second Primary Breast Cancer Jun 17, 2024 The risk of a young woman developing a second primary breast cancer is relatively low, unless she has a mutation linked to breast cancer. Read more…
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Gene BLM pathogenic variant
Anyone with stage 1, grade 1 HR+, HER2- Invasive Ductal Carcinoma with a pathogenic BLM variant? Still waiting for final pathology after lumpectomy. With this genetic variant, a history of eczema & atopic dermatitis and numerous allergies, sensitive skin and hypermobility (connective tissue disorder), I am leaning towards…
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Interactive decision support tool!
Hi All, We're letting you know about a new interactive decision support tool for patients that could be helpful in making treatment decisions for people with a metastatic breast diagnosis. It was developed by Clinical Care Options, LLC, and it can provide you with recommendations from 5 experts regarding treatment. We hope…
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Primary lung cancer after treatment with chemo
Just read this article - https://www.epicresearch.org/articles/women-with-breast-cancer-especially-those-who-received-chemotherapy-at-increased-risk-for-subsequent-lung-cancer Apparently new information has come out showing a higher rate for primary lung cancer after breast cancer treatment with chemo. Something like a 57%…
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14 YEAR STAGE 3 ILC SURVIVOR
I’m hoping someone can provide me some guidance. I am a 14 year Stage 3A ILC survivor. I did all the right things including chemo rads double mastectomy and 13+ years of Arimidex. Believing that you get long term benefit of protection from long term use of Arimidex, I made the decision to stop taking it because I was…