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Skull mets
I was told back in the beginning of 2021, after a brain MRI, that I had skull mets to the calvarium. I wasn’t offered any treatment for them. I’m assuming because I had no symptoms. Lately I’ve seen a number posting about skull mets and having SBRT. Am I assuming if I had no symptoms and I’m covered from skull to femurs in…
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Mammogram recall
I have been getting mammograms every 6 months for about 5 years now and every other time they use contrast enhanced dye. In all that time, I was never recalled for further diagnostic imaging… until now. I’m a bit stressed to say the least. How often have you guys been recalled? Has the outcome always been good? Did it end…
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Anyone Watching & Waiting tiny DCIS?
Curious if there are women whose doctors suggested watching a small piece of dcis instead of lumpectomy? And if so, how long did you wait it out? This is my second bout of dcis, the first, I did have a lumpectomy. No radiation. I was supposed to take Tamox—Didn't, for a variety of reasons. Fast forward a few years, new…
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Non Mass Enhancement IDC
Hello everyone - am back here after a good 2.5 years. This time instead of triple positive, I might be just Her2 (waiting for FISH results tomorrow). I have a 12.1 x 10 x 11 cm NON mass enhancement on MRI that was biopsied to be IDC. They want to do scans to see if anything has spread. Is the norm now CT/Bone Scan and then…
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Breast pain & fibrosis 6.5 years later!!
UPDATE!! I just found this online that says COVID Vaccine can cause Radiation Recall Phenomenon that describes perfectly what I have. I am making an appointment with an Oncology Surgeon since I can go back to my old clinic since I changed insurance. Please read this and I will also post it separately!!…
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BMX with DIEP Flap reconstruction at later date question
Unfortunately I’ve had a decent wait for surgery because I decided to do the BMX with DIEP flap reconstruction. So we have come to the conclusion I’m going to have to do it separately because they just can’t do it all at once in a reasonable time period. has anyone been flat and still was successful with the DIEP flap…
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"What a revoltin' development this is."
When I was very young, my grandparents and I would watch a TV comedy, "The Life of Riley." The protagonist would turn to the camera at some point and declare, "What a revoltin' development this is" when something untoward had occurred. It always brought a big laugh from the soundtrack. Several weeks ago, I had a bone scan…
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Mastectomy after dx with liver Mets stage IV
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STFU (Shut the F*** UP)
Less than a week before my surgery and my new favorite words are STFU (Shut the F*** Up). Yes, clearly I'm completely in the throws of the anger stage. So far I only say it in my head, but I can't promise it's not going to slip out soon. I don't want to hear: "Oh, well you don't have it as bad as a friend of mine who had…
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Changes in body shape after double mastectomy and taking aromatase inhibitor
I'm pretty old (age 74), and had my double mastectomy in August 2022 and did not have any reconstruction. I have followed-up with anastrazole daily medication. And even though my body has changed a lot over the years, I have noticed recently that my stomach/abdomen seems much larger. My weight is the same now as before the…
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I feel like it will never end
Hello, I'm new to posting but not new to this site. 12 years ago, at age 33, I was diagnosed with stage 3a invasive ductal carcinoma. I found this forum helpful then and have returned for support. That year I completed chemotherapy, had a unilateral mastectomy with multiple recons over the years, and completed radiation…
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Starting Chemo August 2023
Hey All, If you're starting this month, please let's join together here! 🤗
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Uterine biopsy question on low dose Tamoxifen
I was wondering if anyone can fill me in with the procedure for a uterine biopsy? (Just don't scare me, I can barely get thru a pap smear!) How long does it take? Post menopausal, started low dose Tamox/dcis for a month only, and my uterus went crazy. Achey, discomfort, heaviness….. I stopped the medicine and within 24…
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TNBC Survivorship plan
I was diagnosed with TNBC in July 2022. I had a lumpectomy in August, then chemo Oct-Dec. Because of the genetics results, I elected to have a bilateral mastectomy with breast reconstruction using my own abdominal fat in January 2023. I have recovered quite well. By April 2023, my med onc discharged me to family practice,…
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Bible Gateway Devotional Verse of The Day
Romans 15:13 New King James Version Now may the God of hope fill you with all joy and peace in believing, that you may abound in hope by the power of the Holy Spirit. Read at Bible Gateway Read all of Romans 15
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Weight Gain
Trying to find some solution to weight gain. Has anyone had any experience with anything to help lose weight and help with the hot flashes? I have read on so many different things out there that are supposed to help with the hot flashes and weight gain but wanted to check in here to see if anyone has any success.
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Intermittent dosing of aromatase inhibitors (AI) to improve tolerance in post-menopausal women
An interesting study. I'm hopeful! Abstract P1-12-15: Intermittent dosing of aromatase inhibitors (AI) to improve tolerance in post-menopausal women Clinical rationale: A significant proportion of post-menopausal, patients treated with AI reports side-effects, especially bone pain. In such patients, the difficulties to…
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INSOMNIACS place to talk in the wee hours
Welcome. This is called the insomnia thread, but we post 24/7/365. We call ourselves Owlettes :) No nastiness, bullying, stalking or such allowed. I would like to keep the kind fabric of this thread intact. Discussion will flow where it will as all threads do. This will be a happy place. I hope with lots of laughing. Talk…
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Discussion on taxol and taxotere
hi All, My sister is undergoing for chemo for DCIS Er and Pr positive, nonow she is on taxol drug but she become so weak and few side effects are effecting her life style so now doctor suggested to take taxetre from next chemo cycle can some one suggest which is better and less side effects and she is 37 years old
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Mastitis after lumpectomies
lumpectomies Friday Mar 8. Post op mastitis March 14.
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Risk Assessment after removal of radial scar
Hi - My daughter had a radial scar removed at age 39. She is currently 43. We tried to do a risk assessment on her using Tyrer Cusick calculator, but radial scar isn't on the calculator. How do you determine risk if radial scar is not one of the questions on the calculator?. Are there risk assessment calculators that…
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A place to greet and meet newbies to stage III
I am be wrong, but I thought MAYBE we needed a place for newly dx stage III people to post their concerns, fears, questions or simple to say "Hi I am joining the group"! I know we have so many wise, caring, gracious stage III sisters and men that would be willing to welcome newbies as well as comfort, answer questions and…
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Realistic looking custom wigs
Bout to start treatment in the coming months. Hunting for a good, high quality, realistic looking wig. Found a couple promising ones (ie wigs by tiffani and high definition hair). Seems the one closest to what I am looking for is High Definition Hair (highdefinitionhair.com). They seem to be custom made wigs (custom…
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Curious about time to recurrence for Lobular (ILC)
Hi there fellow lobular thrivers, I was basically a De Novo Stage IV as I had progression shortly after I was diagnosed when I had just started neoadjuvant chemo. But I’m curious how long it was for others between their first diagnosis and recurrence to a distant (non-breast) metastasis. My theory is that the statistics…
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Experimental Inavolisib Seems Promising for Certain Metastatic Breast Cancers
Experimental Inavolisib Seems Promising for Certain Metastatic Breast Cancers Dec 7, 2023 If approved, the medicine may be an alternative to Piqray for treating certain cancers with a PIK3CA mutation. Read more…
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Let’s talk lymph nodes…
I was diagnosed feb 1 with grade 3 IDC in right breast. I had a follow up breast MRI which showed no lymph node involvement. But lately I’ve been feeling some pain in my right armpit. I’m starting to worry, but also trying to stay positive because I’m not feeling any hard lumps that indicate spreading. But wanted to hear…
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Canadians in British Columbia
I'm wondering how many West Coast Gals we currently have on here. It makes it a little easier to compare notes as our health-care is provincial. Would be nice to share tips and such to each other as we wade though the health-care Bureaucracy. I'm in Richmond BC (a part of the Vancouver Lower Mainland) and the majority of…
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You name the group/artitst
Hi All, This game is a bit of trivia, may take a little thinking on our part but hey, we are good. Here is how it goes. Songs category 50's-80's. You name the song then you the next person names the band, then you list a song the next person names the band etc . One entry per turn as usual . Thanks for playing have a great…
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Looking for your recommendations: Wigs, hats, turbans, and more
For any of you who chose to use wigs, hats, turbans, or any other head covering during chemo, we're looking for personal recommendations in your area! Was there a certain type of wig or hat you found that worked for you? A great brand of turbans? Did you try a full-service wig salon or hair loss center that offered fitting…
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Uterine discomfort with low dose Tamoxifen?
I've only been on a low dose of Tamoxifen (5mg) for about a month and I've noticed a 'heaviness' in the low pelvic area. I've never felt it before, so obviously it's from the medicine. I know that Tamox is estrogenic to the uterus, but I didn't think I would feel anything so fast with such a low dose. So, if anyone can…