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“Last” chemo feelings
Hello everyone who has finished chemo! It’s my last chemo in a few weeks. I know I should be happy after five months of it but I’m having a hard time thinking/believing it’s the “end” of this particular treatment (my surgery is in July) - I feel I have a bullseye on my back, it’s going to get me again (various “bad”…
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Tamoxifen side effects; when do they start?
I have been on Tamoxifen for almost 8 weeks now and have yet to really have any side affects. My oncologist told me it takes about 4 weeks for them to start showing up. I've had some cramping but I had my IUD out the day before I started taking it. So that could be the culprit of the cramps. No hot flashes, maybe some…
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Looking for anyone stopping Tamoxifen after 5-10 years?
I am finally finished with Tamoxifen after 9 years. I wanted to reach out to others to see how they are doing weaning off the drug. The hot flashes, which was my main side effect seemed to have slowed down so I don''t have them as often. Wondering how anyone else was doing. It's been a long haul. Anyone who is still on…
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9 Years Out - Stage 3
Hi guys! On November 18, 2010 I was diagnosed with Stage 3 breast cancer - 5 cm tumor, loads of lymph node involvement, IDC & ILC and triple positive. I did ACT, double MX, Herceptin, and have been on Tamoxifen ever since. Still cancer-free today! I'm posting this because I know that there is someone who was just diagnosed…
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Post Radiotherapy treatment
Hi everyone just a quick question. I finished Radiotherapy 2 weeks ago and I have a patch of skinon my armpit that is red roar and today has started weeping. Cannot get hold of Oncology team now til Tuesday. Any ideas for short term help Thanks everyone
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Lymphedema self massage
Hi ladies! I wanted to share a link to a self lymphodema massage treatment that has helped me and my neighbor who also had breast cancer. Please ok it with your doctors before trying it, because our situations are all unique. I had a lumpectomy with node removal Mar 2021. I was able to see a lymphodema therapist soon after…
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Flying after surgery
Hello friends, I am flying to MD Anderson in Houston in a few days for a double mastectomy (without reconstruction) and I had a few questions about post operative recovery. * How long do you think I will need before I am able to to handle a 3 hour flight? Our surgeon said the next day, but that seems way too soon for me. I…
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Elevated CA 15-3
I am so sick of worrying about every little thing! Has anyone experienced this or have any knowledge of this? Had my blood work done and my CA 15-3 came back at 35, last time it was 27. I am told 25 is normal. All my other numbers were in the normal range. My onc wanted me to get a PET scan, but then her nurse said to me…
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Podcast: Treatments for Implant-Associated Anaplastic Large-Cell Lymphoma
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Under 45 with MBC Zoom Meetup: Place to keep chatting
This is a space held for our Zoom Meetup members to gather in between meetings for updates and support. Please remember to favorite/bookmark this thread for notifications of new posts If you haven't joined the group yet and just found this thread, feel free to join our virtual meet-up! Young (45 and under) with metastatic…
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Podcast: Cancer Ghosting: What It Is and How to Respond
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Podcast: Music Listening Helps Treat Cognitive Problems
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I thought survival rates were better. Negative thinking.
So, having a scare about recurrence I am doing all kinds of research and basically rotting my brain and increasing my worry. I have to say the mainstream media portrayal of breast cancer is that most people can live a long time now after it but then I see the rates of survival for some cancers and they act as though 5 year…
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Severe health anxiety
Ok had the worst night of sleep since this nightmare began at my 6 mo diagnostic mammo a few weeks ago. My background is that I suffer from intense health anxiety and have a long history of panic attacks. I do not medicate because I have an intense fear of medications. (was once given pain meds after a c section and had…
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Identifying the optimal therapeutics ... ER+ & Her2+
Identifying the optimal therapeutics for patients with hormone receptor- positive, HER2-positive advanced breast cancer: a systematic review and network meta-analysis https://www.sciencedirect.com/scienc...59702923004428
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Research News: 10 Years of Arimidex Reduces Recurrence Risk, But Doesn’t Improve Overall Survival
10 Years of Arimidex Reduces Recurrence Risk, But Doesn’t Improve Overall Survival May 5, 2023 Taking Arimidex for 10 years after breast cancer surgery reduced recurrence risk, but didn’t improve overall survival. Read more…
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CT scan before mammogram
Hi everyone. Just wondering due to high calcium i had a ct of neck chest abdomen and pelvis 3 months ago. All fine calcium normal now. Question is can I feel alittle less tense about my mammo tommoro as my chest was fine a few months ago? I am 6 months out from my last kadcyla.
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Having swellings on fingers and arm 8 hours after surgery. Is it common?
Hi, I had a unilateral mastectomy today. Surgery was completed about 8 hours ago. I just noticed that my arm and fingers on the side where I had a surgery are slightly swollen. Before surgery I had read the symptoms of lymphedema. In my case, surgeon took 3 lymph nodes away. I’m at risk of developing lymphedema. I know I…
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TUMOR MARKERS
Hi, wondering. If mammo is okay but markers slightly high what is the protocol?
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Clinical utility of liquid biopsy in breast cancer: A systematic review
Clinical utility of liquid biopsy in breast cancer: A systematic review DefineMBC™: A clinical experience summary from 25 United States-based cancer centers on the clinical utility of a comprehensive liquid biopsy in metastatic breast cancer https://www.oncology-central.com/wp-...per_1Nov22.pdf
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Research News: Cancer Prevention Lifestyle Reduces Risk of Recurrence, Death in High-Risk BC
Cancer Prevention Lifestyle Reduces Risk of Recurrence, Death in High-Risk Breast Cancer May 26, 2023 Following cancer prevention lifestyle recommendations before, during, and after being diagnosed with high-risk breast cancer cuts the risk of recurrence and death. Read more…
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Recovery and Exercise Stamina Issues
Wow, I still am having a hard time maneuvering around the forums since the .org blew them up. I have no idea if I'm posting in the right place, but here goes.. I'm seventeen months past my treatment plan, and doing pretty well. But I don't seem to be able to build up exercise stamina. As in, I'm now doing a lot of…
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Hylecta
Is anyone receiving Hylecta only? I was dx October 2011 with MBC. Was on Herceptin and Perjeta until August 2015. Then Herceptin only until 2019 when we switched to Hylecta. Hylecta was easy breezy. Until 2022 when we found some pesky small lung mets. Wondering if Hylecta was not a wise choice for someone with MBC. Thank…
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Scalp pain from Arimidex?
Are there any others who have scalp pain after starting Arimidex? I've been on this stuff since late Feb (8 months) and have scalp pain on the top of my head since then. It is NOT constant, but there most times. Just feels like before my hair fell out and hurts. Like someone is pulling my hair backwards, or against the…
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Concerned about conflicting advice -
Hi everyone. Thank you for taking the time to read this. I was really happy to receive a BIRADS 2 diagnosis for microcalcifications that my doctor was keeping an eye on. My radiologist told me I was all set and to come back when I’m 40 (I was 36). I’m now 37 and pregnant with my first. Going over my records, I see dr…
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DCIS + mastectomy now swollen clavicle node & other symptoms
I'm worried, though statistically this "shouldn't" be happening, I had DCIS on my left side but got a double mastectomy due to my young age (35) and the fact my mom had her breast cancer return just 2yrs later on her opposite side. But now I'm having some issues with my right (prophylactic) side. I forget what happened…
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Anyone repeat BRCA2 gene mutation test
I learned through genetic testing after getting diagnosed with IDC that I had the BRCA2 mutation. The genetics counselor said it had to have been passed down from my father or mother and they would have had it passed to them through their parents. My dad died at 47 of a heart attack but my mom died in her 80’s of a…
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Not Sure
I am recently diagnosed with IDC still waiting on what stage. I know it is about 2cm with only one lymph node possibly affected. It is 90% hormone responsive. HER2 negative. Not sure what all that means. I am scared. My doctor is trying to get as much information before we discuss a plan of action.
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how many flat women (NOT DOG EARS) have needed a REVISION?
My surgery was over 4 years ago, I go to an educational hospital and one side was clearly done by an inexperienced surgeon. Letting them operate on me is one of the biggest regrets of my life. They left behind a row of tissue/fat below my scar, it is like a row of fat that clashes when I move my body. I also had a seroma…
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Freaking out over recent breast mri
Hi all! I was diagnosed 9 years ago and have had breast MRIs yearly since then - all negative. After diagnosis I had a modified radical mastectomy on the left side and an implant removed from might right side. This breast never developed due to birth defects I just received the results of my recent breast mri and it said;…