-
No hormone therapy needed?
I recently had a double mastectomy and am in the process of reconstruction. All sentinel node‘s (8) we’re negative, and I had lobular invasive and LCIS. The Largest cancer was 3mm. PR +, ER + HER2 negative. Stage 1B My breast surgeon said there is no need for radiation or chemo therapy due to the size of the largest cancer…
-
Has anyone quit or reduced dosage of the hormonal therapy?
I am considering to quit, after taking Tamoxifen for a year, Letrozole for three months, then Exemestane for a month. Side effects, especially joint pains and fatigue, get worse and worse and have come to the point to make me think if I should quit. Or, would there be any option of reducing dosage, like taking every other…
-
Has anyone had a VUS for VHL ended up with BC ?
Hi Friends ~ While waiting for my BC diagnostic & pathology reports, I paid to have BRCA 1&2 testing done through Life Labs here in 🇨🇦 which use INVITAE in California (I tested negative for both BRCA 1&2) I then had an additional panel evaluate 47 genes & received the following result. "A VUS, identified in VHL. VHL, Exon…
-
Ductal Excision- Is this normal?
On Thursday, 6/8 I had a central duct excision due to bloody nipple discharge. I have pretty extensive bruising (which i expected) but now I am noticing something strange. On the nipple itself (not the areola), away from the incision, i am noticing these dark almost black spots forming. This morning one of the black spots…
-
Self adhesive prosthetic?
So, I had my “fitting” for my prosthetic today (and I used that term very loosely because what she did was gave me a catalog and told me to pick three styles of bra I liked, and berated me for “wearing the wrong size bras”… it was an ordeal). After the way today went, I’m resigning myself to having to research a prosthetic…
-
New to Piqray
I just started Piqray, 300 mg, 14 days ago. I am a type 2 diabetic. I have been able to manage my blood glucose without insulin. However, this piqray has done a number on my blood glucose. My endocrinologist started me on insulin, and started me at bedtime and before each meal. I go back to the endocrinologist and my…
-
T1A, High Grade 3
Hello Friends ~ Hoping to hear if anyone with Stage T1A high grade 3 was treated with surgery only & not used Adjuvant therapy & doing Ok. Thank you so much. Wishing you all the best of everything always 🤗
-
Immunotherapy - Anastrozole to Tamoxifen
I am through surgery, chemo and radiation and actually did fairly well through all three, all things considered. I started on Anastrozole in January 2022 but found the joint pain to be almost unbearable. Switched to Tamoxifen in October 2022. Joint pain much better so that's a plus. But I just don't feel like myself. I…
-
Any high Ki67 survivor stories out there?
I would LOVE to hear from ANY survivors who had high Ki67 !!!! (Also hormone positive with high Ki67). My Ki67 is 75%, which feels like a death sentence, even though half way through chemo, the tumor has shrunk by about 80%. It has been an emotionally challenging week and I could use some positive (really positive) stories.
-
Stubble Head
Strange question. I had my head shaved 2 weeks after my first TC-H chemo when my hair started falling out in clumps. I’ve had 2 more treatments since and my hair “stubble” is still just like it was after clipping. Stubbly, prickly, pulling my scarves all over my head. Is this normal? Will this stubble eventually fall out…
-
Stage T1A Grade 3 / Lung nodules & Set backs
Hello Friends ~ I was diagnosed in July 2022 & opted for a double mastectomy (without reconstruction) completed Sept 2022. My cancer was discovered diagnostically through a high-risk program here in 🇨🇦. (My mum had BC before 50 & my sister had Usual Ductal Hyperplasia) I did have a few post surgical set backs: The first) a…
-
Sex and cancer. The dirty talk - from intimacy to roommates
My husband and I had a strong intimate relationship before cancer. I understood we would have down cycles in our marriage, but breast cancer brought a new definition into my home for the word "downcycle." After my diagnosis, my husband and I discussed the expected changes to our intimacy. We knew it would change, but we…
-
Severe depression after finishing treatment
I finished 6 months of chemo and had double mastectomy with reconstruction almost 4 months ago(very end of February) for TNBC. I had pCr… Since then I deal with adrenal insufficiency caused by Keytruda/Pembrolizumab and went few times at the ER for low Na levels. But in the aftermath, the most horrific is the depression…
-
Bone Pain from Mets or AI?
I am recovering from my third breast cancer dx and have been getting numbness and pain in my ribs, legs and hips. It gets worse at night when I lay down. During the day it doesn't bother me too much or stop me from going about my normal daily activities. I just had my normal bloodwork which was ordered by my cardiologist.…
-
Anyone have problems with fatigue prior to diagnosis?
I've been reading on the mayo clinic's website about the many possible causes of fatigue during chemo (I'm in my 3rd chemo cycle); one that is mentioned is that the cancer itself can cause fatigue. I was diagnosed in May with Stage 1 IBC, a 1.1cm tumor, no node involvement. It seems unlikely to me that it would have caused…
-
Male Breast cancer
I have just joined this group, I have recently been dignosed with Metastatic Breast cancer, I am a male, do we have any Males in this group
-
Needing a ultrasound
I had a small bruise on my right breast. I got a script from my doctor for my mammogram from the physician’s assistant. I had the mammogram on Monday night. The hospital imaging called me back the next morning and recommended I come back. They found a 1cm asymmetry nodule on the right breast. They recommend an ultrasound…
-
Phase 3 SONIA Trial Challenges the Routine Practice of Using a 1st Line CDK4/6 Inhibitor
Those with HR+, HER2- MBC may find this interesting! The Phase 3 SONIA study of 1,050 patients with HR+, HER2- MBC evaluated progression free survival (PFS) and overall survival (OS) from the initiation of first line treatment through failure of second line treatment. It compared two groups of patients. One group took the…
-
Bra after reconstruction, 5 years out
Hello! I haven't posted on here in ages but wanted to reach out to ask if anyone else if having issues feeling comfortable with their foobs in a bra. I have over the muscle, direct to implant reconstruction and they are pretty small, measure out to a 32c. I have a very lean chest and almost zero body fat on my chest. So…
-
Reoccurrence following reconstruction with implants
October is Breast Cancer Awareness month and cancer decided to make me acutely aware of what month it is. I received my biopsy results last night. Original diagnosed 6/3/2016, now 10/13/2022. It has been a while since I had my implants checked. My oncologist called and asked me to make an appt. Had to wait almost 3 months…
-
Pap Flap reconstruction and recovery?
Hi all! I'm due to have a single sided Mastectomy and immediate Pap Flap Reconstruction in a week or so. I would really like to hear anyone's experience of Pap flap recovery as I'm struggling to find any tips/ advice about recovery. Thanks so much in advance!
-
Any other queer community members on here lately?
Holy Moses, it's been awhile since anyone posted! But sometimes all it takes is one person to make others feel comfortable, so I'll step into the void. Join me if you are so moved. :) I am a straight-passing, cisgendered female in a monogamous, hetero relationship, but identify as a member of the queer community, have a…
-
Immunotherapy for hormone positive, HER2- breast cancer
I like to keep up with medical trials and research for breast cancer and was wondering if anyone knew anything about using keytruda for hormone positive, HER2- tumors. It seems there are some trials going on right now with it but I can't get an inkling on how it's going. Any news that anyone knows about? Just wondering if…
-
Crusty Nipple 3 Months after Completing Rads
Hi all. I haven't been here in a while after recovering from my radiation after 3 months. I just noticed this week that I started having stabbing pains at the surgical site, which caused me to pay closer attention to my breast. I noticed the orange peel look had returned to my breast and that a layer of crust had developed…
-
Prior calcifications, now bloody discharge
Hi all, I know this is not a board for medical advice, I guess I just needed to write this down in a place where people would "get it". I'm in my early 40's, two years ago my annual mammogram came back with a cluster of microcalcifications in my right breast. I had a follow up diagnostic, and was categorized as BIRADS 4.…
-
Is seven weeks too long to wait for radiation after lumpectomy?
I had my surgery on May 4th and can't even get in to see a radiologist until June 9th. The front office said radiation would usually start two weeks after this visit. I'm concerned as everything I've read said ideally radiation should start 4-6 weeks for older people (I'm 60) to prevent reoccurance. Has anyone else had to…
-
fat necrosis
I was diagnosed with breast cancer back in December. I had lumpectomy in January and started radiation 8 weeks later. During radiation i felt like I did pretty good besides the sunburn like feeling and look. I felt i was recovering good. Now in the last couple of months i been in really bad pain. It feels sore under my…
-
Getting more Information
I now have a little more information and it helps with decisions. I am stage 2a with er+90% pr neg her2 neg and Ki67 up to 90% ( not sure what that means) My oncologist is sending the biopsy off to get the Ocotype. I do not want to do chemo because of the major side effects. My surgery is being pushed back because of…
-
IDC diagnosis this morning
Hello, have just learned my biopsy was positive for IDC. First meeting with breast surgeon May 10th. I don’t have my biopsy report yet. I know from my mammo it is 0.5x0.6x0.5. The nurse said pathology shows er+ but pr-. HER status not yet known. This all started from a 6 month diagnostic. Pretty scared.
-
Bilateral IDC
hi, I have been diagnosed with bilateral IDC. My scans came up as non-mass, although the physical lumps are very large. I have been told it is grade 2. going for a CT tomorrow and oncologist Monday. anyone else with bilateral IDC?