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My mom was just diagnosed
Greetings everyone. After months of not knowing, my mom has just been diagnosed with "metastatic adenocarcinoma and [results] are most consistent with origin from breast primary." The results are from colonoscopy and pathology is showing ER/PR+ and HER2-. For some background, she was diagnosed in 2013 with IDC on the right…
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Focal Non Mass Enhancement with Washout Kinetic Enhancement
Hello- I'm back again…I have dense breast tissue (48y/o) and finally advocated my way to an MRI approval. In January I had my annual mammogram which was clear (I've had 4 biopsies over the last 8 years, so it's rare that it's completely clear). However, I'm in peri-menopause and have had left side arm-pit pain (right where…
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Breast Reconstruction with Latissimus Dorsi Flap
My name is Sherry and i'm 58 yrs old. This is my 2nd bout with breast cancer. I had it in 2002 and I had a lumpectomy, chemo and radiation. It came back in December 2021 in the same breast. This time my surgeon said that I would need a mastectomy. I have also seen my plastic surgery. On February 16, 2022, they will be…
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Waiting on biopsy
Hi! Never thought I'd be here, but I guess that's the same for everyone. Long story short, I found a lump while in the shower a few weeks ago. Went to see PCP, referred for mammogram and ultrasound. Got back the report with a bi rads score of 5. Findings: Heterogeneously dense breasts. Upper Inner quadrant, 1 o'clock,…
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Abemaciclib Verzenio for All Stages
I've noticed there is a Verzenio discussion in the Stage IV only section, and another in the Stage III forum. I'm starting this thread because I think there could be a benefit from sharing between all the stages - especially when, and if, Verzenio becomes a more common standard of treatment. I started Verzenio 14 months…
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Waiting on Biopsy
I just had a mammogram and ultrasound done and the radiologist put Birad 4 and told me I needed to get a biopsy. Looking at the details, it seems that I have two areas of "fine pleomorphic" one with grouped distribution and one with linear. I have a biopsy scheduled next week. I am very very upset with this news and am…
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Birad 4 -suspicious abnormality
Hello all of you wonderful brave women, This is my 2nd time coming back to this site and reading through posts of encouragement from others. At 41, I had a suspicious finding and a stereotypic biopsy. Results were benign. Now I am here again 5 years later and playing the wait game. My annual mammogram was April 18th and on…
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Rib pain after Double Mastectomy
I had a double mastectomy three weeks ago. I’m now having pain in my left side which may? Be a rib out. I’ve never had a rib out before. Is this common after a double mastectomy to have rib pain or possibly a rib out of place? I don’t feel ready to go to the chiro but boy does it bother me 😫
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Tips for fighting the dark clouds
I've started this thread at the urging of fellow Stage IV sisters. I've been fortunate enough to get a lot of really good advice from friends, healers, therapists, etc., on how to fight the dark clouds that come with Stage IV. Not everything will work for everyone and not everything will work all the time. But hopefully…
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Important Links About ILC
For helpful information, check out Breastcancer.org's ILC section. Podcast: Imaging Tests for Lobular Breast Cancer Lobular Breast Cancer Alliance Brochure - Information for Patients There is also advice and personal experiences from other community members here on the discussion boards, including: ILC Long Term Survivors…
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Pain in back over rib cage
Hi y'all. I just was getting into the car yesterday and my back hurt really bad when it brushed past my rib cage. There is a raised and tender area right there on the side/back of those ribs. Have others experienced this? Cancer survivor brain is real thing I guess. Everything that comes up becomes cancer returning.
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fatigue on ovarian suppression and AI?
It's been a long time since I've posted here. I was so scared when I was initially diagnosed but have gotten through a lot - surgery, chemo, and several years of endocrine therapy - no small feat! I'm finding endocrine therapy mostly quite tolerable but have pretty consistent fatigue. Does anyone else experience this on…
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Stage IV - mets to liver and bones need advice
Hi all, Does anyone have experience with ascites/fluid build up caused by liver mets? To give a bit of context, my mum had breast cancer around two years ago and underwent chemo, lumpectomy, and radiotherapy and given the all clear. Over the past couple of weeks her abdomen has been swelling up and it was noticed she was…
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Newly diagnosed - just feeling very lost
Hi everyone, I was newly diagnosed with breast cancer, about two weeks ago. I am just feeling very lost, and for now, just looking for some words of encouragement as I figure out next steps. I was referred to a breast surgeon by my GP, and while the doctor was very nice and kind, she dropped this bombshell very casually…
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DIEP FLAP SURGERY AND RECOVERY SUGGESTIONS
I will be having DIEP flap surgery in February. I am 13 years out from ILC/ bilateral masectomy w/ silicone implants. I have struggled with BII for 4-5 years. Exhausting many specialists, knowing it was silicone toxicity I was struggling with the last 2 years, I finally had Explant surgery last October.i was scheduled for…
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Breast pain
I had IDC at the end of 2019 with lumpectomy and reduction surgery. This past week and a half, I've had uncomfortable pain in the same surgical spot that comes and goes. It's like a burning feeling. I'm FREAKED OUT! I have an appointment with my oncologist next week and am due for my yearly mammogram. Has anyone had…
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Was fat grafting worth it?
Hello, seeking feedback from those who had fat grafting with their exchange from TEs to implants. All input appreciated, with particular interest in results on those carrying a moderate/lower amount of fat. Was the resultant appearance of your breasts worth the extra procedure and recovery? How did the sites from which the…
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How to Ease Stress
How to Ease Stress Apr 12, 2024 Dr. Pamela Ginsberg offers tools and tips on how to ease stress and anxiety after a breast cancer diagnosis. That being diagnosed with breast cancer is stressful is an understatement. It may be difficult to accept the diagnosis. You may feel overwhelmed by making so many decisions at once:…
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Primary endocrine resistance
hello. I was dx with stage IV de novo in July 2023. ER/PR+, Her2 - small Mets to pelvis Treatment was Letrozole with Ribociclib. First scan after 4 months showed reduction. Second scan 3 months later showed bone mets reduced but small spots on liver. Told I was primary endocrine resistant. Moved on to capacetabine. On…
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Questions List for 1st Onc Appt
Please jump in and help me craft a list of questions for my first oncology appointment tomorrow? Here is what I’ve got so far: Can you explain my pathology report findings in detail, including the grade, stage, and subtype of my breast cancer? Based on my cancer characteristics (IDC, HER2+, ER-, PR-, grade 3 / Bloomberg 9,…
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Tissue Expanders- I hate them!!
I had surgery on Monday and they put in tissue expanders and down the road plan to do the DEIP flap. I’m really starting to regret my decision on the TE’s. Do they ever get more comfortable? The one on the right feels like it’s over too far and affecting my right arm mobility. And have constant aches and pains associated…
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Newly diagnosed. Stage 3 and grade 2. Anyone?
my preliminary biopsy results came back yesterday. IDC, locally advanced to one confirmed lymph node completed replaced with cancer. They said moderately differentiated (grade 2?). I feel this is overall stage 3, as my tumor is 3.5cm, but the disease in my breast extends to 5.3cm. I guess that means it’s spread to the…
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Newly-dX'ed today
Hi everyone. I received my biopsy results this afternoon. I don't have the full picture yet, but I'm looking for some guidance and support from others who may have had a similar experience. Here are my details: 50-yo, possibly newly post-menopausal Diagnosis: Invasive Ductal Carcinoma (IDC) HER2 Status: Positive Hormone…
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Radiation Before Mastectomy: Switching Treatment Order Allows for Immediate Reconstruction
Radiation Before Mastectomy: Switching Treatment Order Allows for Immediate Reconstruction Apr 26, 2024 Dr. Benjamin Smith discusses his research on giving radiation before mastectomy, which allows for immediate reconstruction during mastectomy surgery. If early-stage breast cancer has a high risk of recurrence – coming…
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Bi Rads 4 Suspicious Hypoechoic Lesion
Hello everyone, I had a lump pop up out of no where back in December. Reached out to my doctor a month later to let him know I was feeling a possible lump. At this point still thinking it was period related or a cyst or something like that. Two months later the lump had not gone away so I went into the doctors to get his…
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Multiple MRI's w/varied BIRADS
I am higher risk due to family history and I have had a total of 4 biopsies, 2 in each breast (needle x1, needle core x2, and wire guided surgical x1) within the past 8 years (architectural distortion, masses, & cysts). Thankfully all have been benign. My last mammogram was the first normal mammogram I've had, BRIAD2, July…
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How often you do PET scan
I am writing this post on behalf my mother, who has breast cancer and is undergoing hormonal treatment. Her doctor performs a PET scan every year. There were nodules on her lung and a lymph node, but with treatment, there has been significant improvement, and the tumor has reduced in size considerably. Today, she had her…
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Waiting for Surgery- what’s next? Ugh!
I was recently diagnosed with early stage grade 2 or 3 (there were two looks) IDC with DCIS characteristics (whatever that means) HR positive, HER2 negative, ki-67 40% high. back in 2021 they saw a spot, did a second mammogram to conclude it was benign breast tissue. 2022 same spot noted but disregarded because previous…
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Neoadjuvant EC Regimen precautions
Posting this on behalf of my wife (aged 34) who had been diagnosed with TNBC in October 2023. She had recently completed her weekly 12 sessions of TC regimen : Paclitaxel (120mg) and Carboplatin (200mg). Although there was Hair Loss and slight nail discoloration from 3rd week onwards, she had Nausea from Day 1-4 post every…
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Nipple-sparing double mastectomy with immediate breast reconstruction
Hello, I apologize if this is not the place to ask or if I could have found this answer elsewhere. I am new to the forum and was a little confused trying to navigate. My mother was diagnosed with breast cancer at 47 years old. She is the first in her family to get breast cancer. My father was diagnosed with prostate cancer…