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Hair loss 3.5 years later
so I finished chemo 3.5 years ago, my hair grew back and was never as thick as it was pre chemo but that was actually a gift from chemo (it was waaay too thick before) I was very happy with my chemo curls and all of a sudden it began thinning several months ago. In talking with two individuals who went through chemo at the…
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Starting chemo April 2023
I didn’t see a thread for this so I was hoping to find some chemo buddies. I just found out today that I will start chemo next week. I am an American in Finland and had an occult 11mm ER+, HER2+ IDC tumor found in my final pathology after my mastectomy 4 weeks ago for 9 cm of DCIS. As an added surprise, one sentinel node…
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Shana Tova!
Our Jewish sisters thread has been very quiet lately. So, to start the new year… SHANA TOVAH UMETUKA , HAVE A HAPPY SWEET NEW YEAR!
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It it safe to take L-glutamine?
Hi, my mom is recently diagnosed with ER/PR + , HER2 – cancer that has spread to lymph nodes. Stage still unknown due to unknow how many lymph nodes are involved. She started her first chemo. Her doctor says it is safe to take L-glutamine during chemo treatment to help with mouth sore, gut lining and improve immune system.…
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Risk of dcis
Hi hope all is doing ok. Apologies if im posting to the incorrect thread. I didnt get responses from my other discussion. Moderators please feel free to move this to a more appropriate space. So a little history, im 41, no children, menstruation started at 10, never been pregnant , never breastfed. Family history with…
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How long should I wait for an appt to get a second opinion?
Hi! I was diagnosed with high-grade DCIS by a local oncologist but I wanted a second opinion so I scheduled another appointment at a bigger cancer research center but the earliest appointment they have is one month and a week away. I’m nervous to wait that long since my local surgeon can do a lumpectomy this coming Monday.…
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Can a biopsy needle rupture the membrane of a DCIS and make it invasive?
Hi! I’m concerned about the consequences of having a biopsy. I know it is to lower the number of surgeries regarding benign lesions but I wonder: The definition of DCIS is (according to cancer.org) that “ the cells that line the ducts have changed to cancer cells but they have NOT spread through the walls of the ducts into…
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Mammograms and Colonoscopies
I'm only six months in on my stage IV diagnosis but I keep forgetting to ask my doctor about my upcoming 60th birthday and the dreaded colonoscopy. He already told me that I don't need to get mammograms but does that hold true for colonoscopies? (Fingers crossed).
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FGFR1 amplification
Hi everyone, I have been looking at the results of my Foundation One testing and saw that I had the FGFR 1 amplification. I did some research into this and saw that it can cause resistance to endocrine therapy and cdk inhibitors. I am currently on Kisqali and Anastrazole (for about 4 cycles). I was wondering if anyone else…
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51 years old, image - new microcalc group & mass but many ok in past
will have 1 or 2 biopsies in 12 days and after screening tomo mammo & ultrasounds came back with a new mass and cluster of microcalcifications in left breast. I’ve had 10 years of 6 month follow ups and 1 biopsy 7 years ago in upper outer left breast. Meanwhile my MD has just retired and no new MD. Kindly the radiologist…
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Met my new oncologist - Don't Like Her - At All - UGH!!!
I need to complain. So, I have been very impressed with my surgeons, schedulers, navigators, and everyone I have come into contact with for my treatment so far. Then, I met the oncologist assigned to me this morning. I have to go back and do a uniMX after they found a ton of DCIS in my reduction tissue. The Onc starts by…
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Starting TCHP Chemo…
I’m starting TCHP chemo this week and am really frightened by the side effects that may happen. Please post advice and tips for getting through this challenging regimen. Thank you.
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Asymmetry on first screening mammogram. Scared. Please help.
I'm 40 and got my first screening mammogram (3D) a few days ago. They found a "small lateral asymmetry best seen on CC tomosynthesis" on my left breast. They didn't see any microcalcifications. They captured a few extra images, so I'm guessing they saw it on multiple ones. The BIRADS score is 0, which means they need…
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Can bone mets pain come and go for 5 years ?
I am hoping this posts to the appropriate place. I am trying to post inside the “not stage 4 but have questions “ group but each time I try to submit a question box my phone is redirecting me. my question is whether any of you have experienced pain that comes and goes for an extended period of time that turned out to be…
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Breast implants
Is anyone happy with their breast implants? I have expanders currently. Need to decide on what to do. Is there such a thing as fat transfer? Please advise.
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Post mastectomy tops you’d recommend
Hello, I’m about a week post-op from my double mastectomy. I got a couple soft, button down short sleeve shirts to wear around the house that have been ok. Now that I’m going to be venturing out of the house a bit more, I’m hoping to find some tops that are still button or zip front that can have a place to conceal my…
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Anyone had implants after radiation?
So I just saw my PS for the first time and her PA told me that they don’t recommend doing implants if I have radiation even after having radiation because it can cause capsular contracture etc.. and I’m an A cup and very badly want to be bigger like a C.. so diep flap won’t give me the size I want (I don’t think) I only…
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Not triple negative but have questions.
I was diagnose over a year ago and I have finished treatment up. I have been doing some research since I can handle it now. My tumor came back as aggressive basal type breast cancer which from my research is said that 80% of triple negative is basal type and the other 20% is like me with estrogen + mine was 20%. I did…
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Oncologist webinar and Q&A on ESR1 mutations
I came across this and thought it might be helpful to some as it has a Q&A with an oncologist and is just for patients. It is about ESR1 mutations and what treatments are available that target it. Here is the info: https://us02web.zoom.us/webinar/register/3716946173479/WN_I7tieDjBTzmi7n67dP3Nwg
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Oncologist webinar for patients about ESR1...
I came across this and thought it might be helpful to some as it has a Q&A with an oncologist and is just for patients. It is about ESR1 mutations and what treatments are available that target it. Here is the info: https://us02web.zoom.us/webinar/register/3716946173479/WN_I7tieDjBTzmi7n67dP3Nwg
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Would you mind sharing your age at time of diagnosis?
To those here who are willing, would you mind sharing your age at time of diagnosis? I was nearly 54.
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Sizing questions and saying hello!
Is anyone still on this thread? The last ones I saw were from 2014.. anyway hello anyone who’s there! I’m 38yrs old diagnosed with triple neg stage 3 grade 3 , going through neoadjuvant chemo and immunotherapy abs almost done. I have met with my bs, meeting with PS this Thursday. I’m a 36A/34B 5’6 130lbs so I’m pretty…
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Music to help kick cancer's ass
I really believe in the positive power of music. Lots of kinds of music! Since my diagnosis, I have put together playlists for myself — classical music for calming (and techno when I needed to concentrate on work and not let my mind wander), but now that my lumpectomy went well, one to keep me on the positive track. I'm…
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Liver damage with Tamoxifen?
Hey, peeps. Context: A little over a year ago, shortly before my BC diagnosis, I had skyrocketing ALT and AST levels and was sent for a liver biopsy. I was diagnosed with liver damage of unknown origin (they theorized I'd been exposed to something chemical somehow), NASH and NAFLD. I had mild scarring on my liver and lots…
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When to be concerned about lesions
I have about 4 lesions on my lung and liver that showed up on scans before and after chemo. They range from 2-5 mm. My MO said they aren’t of concern right now and we will just keep an eye on them. This is constantly going to be on my mind that my breast cancer may have metastasized. How big do lesions have to get before…
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Recurrence in mastectomy incision?
Hi! I'm wondering if anyone has had a recurrence in their mastectomy incision? Can you tell me what it looks like? I'm 11 mo post mastectomy and about 6 months post reconstruction. The scar looks fine except for on the very end I have a small swollen red spot that is mildly tender (kind of hard to tell because I'm numb but…
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Question about Residual Disease
Hi. I finished Kadcyla this past April. My original diagnosis was October 2021, triple positive, Stage 2, pathogenic ATM gene variant. Started chemo (first Taxotere then Taxol (every week) plus Herceptin and Perjeta (every 3 weeks). Mastectomy in March 2022. There was residual disease so I had to start Kadcyla in June…
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This does get better?????
I am feeling just awful. Three days post dose #3 of AC, and I feel pretty bad. Lots of nausea. I'm trying all the things I've done before - small meals, hydration, Compazine, lorazepam, and I still feel very nauseous and very down. Like this is never going to end. We've just moved house as well and I can't find anything.…
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From Lumpectomy Reduction to Mastectomy
Oh cancer is twisty. I had my lumpectomy with reduction last week. It went perfectly and could not be happier. I’m recovering nicely at home. My plastic surgeon gave me lovely perky boobs that I’m just getting used to Then the surgeon called today with all the pathology reports and now I have to go back for a left…
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Liver surgery
Hi everybody Did anybody with liver met did surgery? If yes, in what cases is suggested and when not? Please tell md about your case!