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HER2-Positive Brain Mets Respond to Enhertu
HER2-Positive Brain Mets Respond to Enhertu September 12, 2014 The targeted therapy Enhertu (chemical name: fam-trastuzumab-deruxtecan-nxki) helped control areas of metastatic HER2-positive breast cancer in the brain, according to results from the DESTINY-Breast12 study presented on Sept. 13 at ESMO 2024. Read more…
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New Hormone-Free Hot Flash Treatments
New Hormone-Free Hot Flash Treatments August 14, 2024 Hot flashes can dramatically affect some women’s quality of life. New research shows hormone-free options can offer relief. Read more…
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Got Prunes? Fruit Linked to Better Bone Health
Got Prunes? Fruit Linked to Better Bone Health August 16, 2024 Eating about six prunes a day can help maintain bone density and strength. Read more…
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Chemo Brain Isn’t All In Your Head, Your Gut Plays a Role
Chemo Brain Isn’t All In Your Head, Your Gut Plays a Role August 28, 2024 The way chemotherapy affects your gut may help explain why some people experience cognitive decline or chemo brain. Read more…
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Exercise May Lower Risk of Breast Cancer Coming Back in Some Women
Exercise May Lower Risk of Breast Cancer Coming Back in Some Women September 5, 2024 A French study found doing just a modest amount of exercise – about 1.5 hours of brisk walking per week – lowered the risk of metastatic recurrence in pre-menopausal women with hormone receptor-negative breast cancer. Read more…
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Fatigue before treatment
I was diagnosed Aug 1,2024. Finally got surgery date of Nov 6, no other treatments yet but in the meantime I am growing increasingly fatigued by the day. It’s so bad that when I do get a good nights sleep it makes no difference. Has anyone else had intense fatigue before treatment?
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leptomeningeal metastasis
so I have been diagnosed with them (lesions in posterior cerebral fossa on cranial nerves and in spine). chemo changed for Enhertu trying to stave off a disease while the preparations for intratecal chemo via Omaya reservoir going. Looking back in the hindsight there were symptoms of it in August, just not visible on…
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Not Sharing Genetic Risk
Hello I am new here, Our 45-year-old daughter died on May 14th of this year from triple negative breast cancer that metastasized to her brain and though a tumor was removed, it came back immediately and killed her. Unfortunately, family members knew back in 2020 that she should be tested for the RAD51D variant that had…
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patty
Does anyone have info on Patty? Haven't seen her here for awhile.
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So confused don’t know what to decide pT1A HER2+++
i was newly diagnosed with DCIS and mastectomy was done 3 weeks ago. After the surgery my diagnosis changed to IDC 3 foci largest is 3mm grade 3 with extensive high grade DCIS of 8cm grade 3 also and comedo type Lymph nodes negative I am ER- PR- Her2+++ ki-67 is 35% i am 30 years old now and i had 2 different opinions from…
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DIM- for menopause weight again
Hello, I've heard so much about DIM. I think I got BC from taking clomid to get pg. So anything- even supposedly natural- that talks about hormones frightens me. I've done a search on this sight and saw a lot of ladies who take it, but they were mostly still IN treatment or deciding to take it instead of AI. Has anyone…
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Architectural distortion - good outcome
Hi, I recently found this group because of "scanaxiety" due to an abnormal mammogram. In case it's useful to anyone, wish to post about my good experience with a Birads 0 "area of architectural distortion" on my screening mammogram. This resulted in diagnostic mammography, ultrasound, biopsy, and more mammography with a…
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Sacituzumab Govitecan (Trodelvy)
My wife was diagnosed with Stage IV metastatic breast cancer in 2022 and was on remission for a year, before her cancer relapsed in 2023. She had brain Mets and had her full brain radiated and was taking Capecitabine before the brain Mets came back in July 2024. She started her 1st chemotherapy in Aug 2024, but her WBC…
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Scar Care
Hi! I'm curious about the best ways people have found to care for their incision scars. I'm three weeks out from my lumpectomy and sentinel node biopsy. My physical therapist suggested Vitamin E or coconut oil and gentle self-massage. I did a quick/limited search online and found several studies that determined that…
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Anyone here a long-term survivor who refused hormone treatment?
Hi guys, I was diagnosed with stage 3 bc in February. Currently seriously considering not taking the tamoxifen and five years of zoladex I have been prescribed. I'm researching a lot and it seems based on the date that hormone treat may give me max a 10% reduction in my recurrence rate. I did AC-T chemo, had a double…
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Maca powder?
I wonder if anyone out there is using this and, if so, what your personal experience has been. My integrative oncologist has just added maca powder to my lengthy regimen of supplements, and today, quite by accident while researching something else, came across some information that suggests it may raise estrogen levels.…
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Know what bugs me?
I'm new to a breast cancer diagnosis. This site is the most comprehensive I've found, for which I'm grateful. What I'm NOT grateful for is nearly every post is filled with acronyms that are not first defined for some of us who have no idea what you're talking about! Please be thoughtful and define the acronyms at least…
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Kisqali (ribociclib) and ILC
I am having results with Kisqali, anastrozole, and Zometa undergirded with lots of prayer. I have had debilitating bone pain in my back for over 2-years. Finally diagnosed with Advanced ILC 27 Sep 2022. I started anastrozole in Oct, Kisqali in November, and had a Zometa injection in December. Two days ago, I became aware…
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June and July 2024 Surgery Support Thread
Please gather here to get and give support. Feel free to share your type of surgery, date, and let us know how you're preparing and how you're doing post-surgery. We're all here for you!
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Stacked DIEP or latissimus dorsi?
I am currently trying to decide between stacked DIEP and latissimus dorsi. I'm leaning torwards latissimus dorsi mainly because of the faster recovery (I have a four year old) but also because I'd prefer a scar on my back to across my stomach. However, I just read a few threads about latissimus dorsi that are scaring me!!…
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Lumpectomy Surgery with SCOUT
First time posting and have had months of waiting for diagnosis due to long wait times for scheduling mammograms, ultrasound and finally a biopsy on May 6th. I have DCIS grade 3 and found out today that genetic testing for 70 mutations was negative. I have lumpectomy planned for August 7 and will have SCOUT procedure…
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Non dairy.....why I feel let down by Jane plant
So...it transpires that one of the chief proponents of anti- dairy diet has had a recurrence. As someone who is following this diet i can't help but feel let down. This is primarily because of the way that the news has been buried deep within a website (you'd have to be a bit of a sleuth to find the news), which I find…
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August 2024 Surgery Support thread
Please gather here to get and give support. Feel free to share your type of surgery, date, and let us know how you're preparing and how you're doing post-surgery. We're all here for you!
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So what to do with this information
Hello, my daughter had a mammogram and ultrasound, everything was ok. She is 44 years old. this is the first time she had breast cancer risk determined and it is 22%. Because i had a few years ago breast cancer. We are confused now. Should she every year have 3 tests done: mammo, ultrasound and MRI. It seems too many tests…
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Has anyone had a relapse after treatment with Verzenio?
Hi, I have to make a hard decision for me, whether to take Verzenio (Abemaciclib) with letrozole or no….im on stage 2 with 2 lymph nodes, 69 years old, not in very good fit, and im afraid of side effects…Has anyone had a relapse after treatment with Verzenio? I think it can help me to make a right choice for me. Thank you.
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Are medicinal mushrooms safe for ER/PR + survivors?
I’m a seven year stage III hormone positive survivor and will be completing 7 years of hormone therapy (currently on Exemestane, but been on Tamox and Letrozole also) in Nov 2024. My Onc recommends I stay on the max length of 10 years. But I’m struggling so much from the side effects and/or what seems like irreversible…
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Peritonial carcinomatosis - help
Hello everyone! Today I learned from the CT examination that peritoneal carcinomatosis appeared. I am desperate because things were going well! I am waiting for encouragement and opinions from those with this type of breast cancer metastasis: peritoneal carcinomatosis. Has anyone tried HIPEC therapy or PIPEC therapy? I…
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AIs - trading one problem for another
Please let me know if I am understanding this correctly. I am at low risk for recurrence. 7% risk of recurrence in 10 years with AIs, and 14% without. That means I have an 86% chance of NOT having a recurrence without AIs. If this means that out of 100 women, 86 will NOT have a recurrence without AIs, then 86 women will…
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What is the best DIM supplement?
I'm researching diindolylmethane (DIM), trying to find the best brand name, there are so many. Recommendations by your doctors would be highly appreciated. Thank you!