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Progression after ribociclib (or cdk4/6) and letrozole
Hi I had her2 neg er+ breast cancer in 2018. In 2022 i had recurrence in my bones (all over with 3 collapsed vertebrae) and liver. I was on ribociclib and letrozole that worked really well, pet was negative and most metastasis disappear. In August I had liver recurrence. Blood test and markers are ok and i feel well so i…
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Introduction—Has it been hard to tell people?
Hi, I am newly diagnosed with IDC grade one. My doctors so far are optimistic about treatment and prognosis. My lumpectomy is scheduled for next week. I am nervous about the pathology report. I actually met with my surgeon on my 68th birthday. Happy birthday to me! Aside from my family, I’ve only told one other friend, so…
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Period after chemopause
I went through AC-T chemo 7 years ago at 40 which put me into chemopause. I have been taking aromatase inhibitors since then. I am now 47 and am having my first period. Did anyone else have this happen? I have a call into my oncologist and ob-gyn. Just wondering if it has happened to anyone else.
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Compression Sleeve for Long Flights?
Background: I do not have lymphedema post lumpectomy and sentinel lymph node removal (May 2023). However I did end up with painful cording a few weeks after surgery which subsided with physio and massage. The lymphedema specialist (who I proactively consulted) said the arm sleeve might be beneficial and wouldn’t hurt…
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Lumpectomy after bloody discharge
hi all. im looking for anyone to shed light on my risk with the following. im 41. two years ago i had a lumpectomy for what turned out to be a fibroadenoma. just had another surgery to remove a duct that was seen to be dilated with a lesion on ultrasound. i had bloody nipple discharge with this. my pathology reports showed…
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MRI Biopsy
Hi, I was diagnosed with ADH in June of this year after my mammogram, ultrasound and biopsy. I decided to get a second opinion for several reasons. The second Oncologist practice contacted me in July indicating after reviewing my images that I actually have DCIS stage 0. They recommended that I have an MRI and also…
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Talking to Children About Metastatic Breast Cancer
Talking to Children About Metastatic Breast Cancer Sep 8, 2023 Kelly Grosklags, a licensed clinical social worker and grief counselor, helps Community Director Melissa Jenkins moderate a special Virtual Community Meetup on talking to children about metastatic breast cancer. Finding the words to talk to children about…
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Breast Cancer Screening for Women in Their 40s Improves Survival
Breast Cancer Screening for Women in Their 40s Improves Survival Sep 6, 2023 Breast cancer screening for women in their 40s led to better survival for those who were diagnosed with the disease. Read more…
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People Receiving Cancer Treatment Benefit From Extra COVID-19 Boosters
People Receiving Cancer Treatment Benefit From Extra COVID-19 Boosters Sep 6, 2023 If you’re in treatment for breast cancer, you’re likely to benefit from extra COVID-19 boosters. How often you get them depends on the medicines you’re receiving. Read more…
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Healthcare Red Tape Means People May Skip or Delay Cancer Treatment
Healthcare Red Tape Means People May Skip or Delay Cancer Treatment Sep 5, 2023 People diagnosed with cancer who have to do paperwork associated with paying for their care are more likely to skip or delay treatment. Read more…
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Mindfulness Practices Recommended for Anxiety, Depression in People With Cancer
Mindfulness Practices Recommended for Anxiety, Depression in People With Cancer Sept 5, 2023 Two professional cancer organizations have formally recommended mindfulness practices to ease anxiety and depression in people diagnosed with cancer. Read more…
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Uni mastectomy 2021, want other side out now
I had IDC in 2021 and had a uni mastectomy with rads and chemo, currently on AI and ovarian suppression. I find I'm having more anxiety about recurrence and I'm not sure why. Perhaps it partly has to do with recently finding out that a family member is now dealing with her new diagnosis of IDC. I'm also seeing that the…
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Helpful tips on using the new discussion forums
Some quick links to resources Watch some videos to help you get started: Forum overview and Updating your Profile, post signature, and avatar If you'd like to re-upload your previous profile image (avatar), go to Profile Dashboard to get detailed instructions on how to find and re-upload your photo. To copy and paste your…
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Ultrasound detected irregular hypoechoic VERY NERVOUS
In January of this year I felt a lump in my breast went the next day and my gynecologist referred me for ultrasound. This came up as a cyst. Then, I noticed how big and tense it feel and my skin is puckering. Now they ordered a biopsy category 4. I’m scared to death! Based on my results can anyone tell if have similar…
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MRI Results
I have LCIS in my left breast and the lesion was removed. I am now under the regular screening program. The latest MRI was done last week. The doctor called back saying she saw a few areas in my right breast and one in my left breast that have a different color showing in the MRI images. Now she wanted me to go back for an…
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Update —- Lumpectomy with Breast Reduction - Larger Ladies - Questions!
Hi! I am just stepping into this world. I'm recently diagnosed and I don't have all my mass typing info back. What I do know is that I am meeting with a surgeon on the 22nd, unless something changes. I am a 36DDD. I feel like there is a ton of tissue and if I do the lumpectomy with reduction/lift, I could get some really…
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Seroma
Hi I’m wondering if anyone can help me out with 2 issues actually The most important is that I had a total L mastectomy July 20th The Dr removed the drains 1 week later,which both myself &my home care nurse thought was way too soon bc of the amount of fluid still coming out Of course 1 wk later I had this massive Seroma…
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Not diagnosed, waiting for results
I have never posted in anything like this before. I was given a BI RADS 5 rating with an axillary lymph node with 7mm cortical thickening. There’s zero family history, I’m 45 years old, I’ve never had an unusual test result before and other than a few extra pounds I am very healthy. This time I felt a lump but it came out…
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Itchy chest wall 2 yrs after reconstruction
I had double mastectomy with immediate reconstruction after previous DCIS lumpectomy and recurrent cancer in both breasts. I wanted my original C cup, but ended up with D cups (go big or go home surgical approach?). The extra weight is not fun, and the chest wall itching started after year one. What helps me the most is…
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Anxious about mixed scan results
Hi all, ER+ HER2- with mets to lung, liver and bones for 6 years. Been on xeloda for about 4-5 months now and had my first scan, which showed significant improvement in all areas except for two stupid little bone mets. It worked in my lungs, liver, every other bone, aside from these 2 (one spot on hip and one in femur)…
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Third time unlucky Stage 4
I had my first diagnosis and treatment for breast cancer in 1994 when I was living in the US. I had a lumpectomy, chemo and radiation. I was cured! and we never looked back. In 2017 my mammogram showed a reoccurrence in the same sight. By this time I had moved permanently to the UK. I had been widowed and still grieving…
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Scared and Worried
I have just been diagnosed with an Invasive Ductal Carcinoma which resulted in also being a Triple Negative Breast Cancer. I will be seeing my oncologist for the first time on Monday. Not sure what to expect, the information out there seems to be a little scary. Any thoughts with the same problem as me. Thanks.
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30 years later.
I had breast cancer in my left breast when I was 27. Last year I was diagnosed again on my right breast at 57. I couldn’t believe it. Now after the expander's didn’t take and then my body rejected the implant as well. This was hell for me.. invading my body 3 times. This time around I felt like cattle. Come in and out no…
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Fentanyl nausea
Dears, how are you dealing with fentanyl nausea? The patch (smalledst dose patch) gave me the most horrible nause and vomiting I had in my life, way worse than chemo, had to remove the patch after a few hours. The pills form didn’t cause such crippling reaction, but still caused nausea and vomiting.
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oncotype dx roll call
I'm looking to find out what's others oncotype was and wha t they decided to do.. How old were you? I've now read so much in regards to oncotype and know they recently changed staging of breast cancer based on the onco type.
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Bone Pain
I just posted in the wrong group by accident, now I have to explain this all over again, in this group, the right group. My hip/thigh bone and down my leg to my knee is aching. The groin area gets painful and I cannot get up off a chair or go up stairs very well. This started about 2 weeks ago. I just had a Lattimus Dorsal…
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Weight Loss--Wegovy or Alternatives?
Hello everyone. I finished Kadcyla back in April and have been on Anastrozole for almost a year. (By the way I'm triple positive and probably need to update my profile since I haven't posted in a while). Anyway, after chemo, 4 surgeries (including removing my ovaries), targeted treatment, and all the trauma over the past…
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I have autoimmune diseases
I’ve just been diagnosed and have serious concerns about chem if I need it. Not sure if I’ll be able to continue those meds or not, if not then do those symptoms go hog wild. I would be sick from the chemo and sick from the Sjogrens. Then there’s the osteoporosis, will the chemo make that worse and can I continue with…
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September 2023 Surgery Support
A place for those scheduled for lumpectomy, mastectomy, reconstruction, or other surgeries to gather and support one another through treatment and recovery.
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Finish Line Scanxiety
I have an appointment with my MO on 25 September. I have to get blood work done several weeks ahead of time to make sure all the results are in for the appointment, so I’m planning to do that on 1 September. This should be my final 6 month check up and if my blood work looks good, it will mean 3 years in remission, which…