-
Anyone have 2 different BC diagnosed at the same time?!?!
I had originally been diagnosed with ADH with papillary changes. Was told it was "uncommon and complex". Decided to go to MDA for second opinion. 1 month later they redo my MRI and find thr ADH area is 10 cm and diffuse, and second breast now has NME. Biopsy determines 10 cm is DCIS grade 3, ER/PR+/HER2- and other NME is…
-
How do you feel about the "battle" terminology used about managing a breast cancer diagnosis?
How do you feel about the battle terminology (fight, warrior, strong) used about managing a breast cancer diagnosis? Take our poll and share your experiences below.
-
Starting Chemo September and October 2024 Support Thread
Join us here to support one another, share experiences, and ask questions. We're all here for you. What is the type of chemo and regimen you'll be doing? When do you start? Share your thoughts and get support!
-
BRCA2 negative and now positive
Hello, I was first diagnosed in 2015 with early stage IIb. I had genetic testing done at the time and was negative for all mutations including BRCA1 and 2. I had a recurrence in 2022 and I had the Caris test done on the tumor and again no BRCA found. Just within the last month I had a PET scan turn up some swollen lymph…
-
BRCA2 negative and now positive
Hi I posted this in Genetic testing but thought I would post her too. Hello, I was first diagnosed in 2015 with early stage IIb. I had genetic testing done at the time and was negative for all mutations including BRCA1 and 2. I had a recurrence in 2022 and I had the Caris test done on the tumor and again no BRCA found.…
-
Letdown feeling with discharge
Hi everyone, I am 36 years old, 6 years post hysterectomy. A couple weeks ago my breasts both started to become very tender, like they do when you start producing milk. It’s gotten bad enough it hurts to take my bra off, or rub up against anything. Today I had the letdown feeling. Went to check and I had a small amount of…
-
Triple Negative Breast cancer with brain metastasis
My wife was on Trodelvy and showed no progression in the body and brain during the last scans. But her latest MRI is showing new brain Mets though she’s asymptomatic and the doctor is wondering if they should stop Trodelvy. Has anyone had this situation with your loved ones and has Trodelvy pumped straight to the brain via…
-
Anyone have acceleration radiation?
Hi, I'm new here. My biopsy result was DCIS stage 0. A lumpectomy was performed, my surgeon said no further surgery is needed. Radiation is next but the thought of five days a week for six weeks depresses me. Has anyone did the acceleration radiation? I could handle that to shorten treatment. Can we firmly request it or…
-
Verzenio stage 2 or3
Has anyone taking Verzenio that is stage 2 or 3 done a dose reduction? Does anyone know if a dose reduction affects the effectiveness of it when taking as a preventative when you are stage 2 or 3? I talked to my physician and pharmacist about a possible dose reduction due to issues with D. The D is not terrible for me, but…
-
Hat
does anyone wear a wig or a sleep cap
-
*** UPDATE ** 5/31/2024
UPDATE 5/31/2024: Had double mastectomy 4/25. Great news. Path report showed clear margins! Thank God. Thank you for your thoughts and prayers. Haven't been able to visit my husband in Memory Care but will go this Sunday with my daughter. He is going downhill more rapidly. So sad to watch my once strong Marine going…
-
2nd time around - mammogram showed a mass
Hi all - I had DCIS in right breast in 2008, 2 lumpectomies and radiation and fine every since. I started having ultrasound along with mammogram a few years back upon recommendation of my surgeon. This year, I scheduled mammogram but could not get u/s till March. Mammogram usually shows architectural distortion, scar…
-
Dx 2003. IDC. ER+/PR+. HR 2 Neg
Had a "mole" removed on breast - (same breast where original cancer was) (3 wks ago) & path report from local hospital then sent biopsy out to The Cleveland Lab. No concrete explanation from my breast md except "perhaps something to do w blood vessels". Assured it was not cancer in July 2024 by same breast md. Advised it…
-
Worried About Breast Cancer Spread To Skin
Hi everyone, I am now worried about a small flat pink oval patch of skin about 4mm across in size that has suddenly come to my attention on the back of my hand. It looks a bit rough and scaly and I haven't had anything like it before. Has anyone had secondary subcutaneous breast cancer? Yet another visit to a medic will be…
-
How high is "high risk"?
When I have looked online at the forums here and on other websites, I'm frequently seeing people who mention being high risk because they have a lifetime calculated risk somewhere between 20% and 45%. I'm not seeing anyone mentioning a risk higher than that. I have a Tyrer-Cuzick model 73.2% calculated lifetime risk. I…
-
LYMPHA (Lymphovenous Bypass) Procedure With Mastectomy/Lumpectomy?
My surgeon told me that for her institution, after axillary dissection, the bypass is only done on for the arm, and not breast. If you have experience with bypass, what is done for both arm and breast? Also, there is comment that the bypass might be destroyed by radiation. Have you heard about this? Thank you.
-
DCIS with Isolated Tumor Cell in Sentinel Node
Has anyone had this? My primary tumor is DCIS, and no definite invasion seen from path report. But the one sentinel they took showed Isolated Tumor Cell. The surgeon wasn't too worried about it, said it's treated as negative and won't affect overall treatment plan. She said it might be from biopsy. But I feel uneasy about…
-
Breast reconstruction
I had a double mastectomy a decade ago. I had decided at that time that I did not want reconstruction. I have now changed my mind, but so afraid of choosing the right doctor. I've seen some horror stories and pictures for which I do not want to be a victim. How do I find the right one? I don't know anyone that can refer…
-
Mastectomy prep list
This site got me through treatment. There used to be lists - how to prep for mastectomy. That list was soooooo helpful for me. I have a friend who is having a double mastectomy in two weeks. I can’t remember every tip and trick I learned because that was 2015. Is this list somewhere I can’t find? If it’s no longer…
-
Weakness and spasms after DIEP
I had a Diep flap reconstruction in September of 2021. I had ongoing problems with lower abdominal weakness and cramps like large charley horses since recovery. It’s only on one side. I’ve had pt with a group who specializes in breast cancer patients, and pt remotely through MD Anderson. They all focus on building strength…
-
Metastatic Recurrence Risk After Early-Stage Breast Cancer Drops
Metastatic Recurrence Risk After Early-Stage Breast Cancer Drops Nov 14, 2024 Treatments after surgery are more effective today and studies now include more women with lower-risk disease. Read more…
-
Explant Surgery-
Hi- I had breast cancer and bilateral mastectomies 13 years ago and immediate reconstruction using silicone implants. I’m having the implants removed and plan to go flat. The surgeon I saw said that he could only partially remove the capsule since I have no breast tissue. Everything I read says it’s best to have the full…
-
The wait for the biopsy is on
I am a walking mess. I had MOHS surgery for skin cancer on my nose in 2012, it came back, and I am waiting for surgery on that on December 19. I scheduled my mammogram /ultrasound prior to the surgery and guess what - a lump, round mass, whatever we call it in the same breast I had DCIS in 2008 (had 2 lumpectomies and…
-
Hormonal Birth Control Ups Breast Cancer Risk in Women With BRCA1 Mutations
Hormonal Birth Control Ups Breast Cancer Risk in Women With BRCA1 Mutations Oct 23, 2024 The longer women with the mutation used hormonal contraception, the bigger the increase in risk. Read more…
-
Verzenio didn't work for me
Hello, I was treated for my 2nd round of breast cancer from 2022-2023. I went on Verzenio/exemesthane regimen in May 2023. I was supposed to do two years on verzenio, however I was just diagnosed with MBC. I had a lymph node biopsy done because I had 3 swollen lymph nodes in the retroperitineal region show up on a PET…
-
Black Women and Hormonal Therapy Sexual Side Effects
Black Women and Hormonal Therapy Sexual Side Effects November 22, 2024 Hormonal therapy is more likely to affect physical quality of life for Black women than white women. Dr. Janeane Anderson discusses her research on the topic. In the THRIVE trial, sexual side effects caused by hormonal therapy led to lower mental…
-
Diagnosed With Breast Cancer at 26
Diagnosed With Breast Cancer at 26 November 8, 2024 When cancer researcher LaShae Rolle found a lump in her breast at age 26, she didn’t think it could be cancer, but decided to have a check-up just to be safe. She’s glad she did. Being diagnosed with breast cancer at any age is frightening and unexpected. But if you’re…
-
Needing another MRI
This past September I had a screening MRI (strong family history of ovarian and breast cancer, BI-RADS D breast density). It showed a "10 x 9 x 11 mm homogeneously enhancing but slightly spiculated nodule in the axillary tail of the left breast". BI-RADS 5. The radiologist recommended targeted ultrasound with possible…
-
What You Need to Know About Inflammatory Breast Cancer
What You Need to Know About Inflammatory Breast Cancer October 25, 2024 Dr. Filipa Lynce discusses the symptoms and treatment of inflammatory breast cancer. Inflammatory breast cancer is a rare and aggressive type of breast cancer; only about 1% to 5% of all breast cancers diagnosed in the United States are inflammatory.…
-
Newly diagnosed and in treatment can’t sleep enough yet
There is so much to know and the only one I’m trusting is the oncologist. The tests are factual but there are too many initials and I haven’t memorized what they all mean. There’s a super supportive team at the High Risk Breast Center but I don’t yet fit in. The less professional employees aspire to be in the know but they…