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rib pain at previous fracture site
I broke a rib about five years ago in a biking accident. The past week I have been having pain at the fracture site. It is not very painfull and only hurts when I move a certain way. It feels like the pain is from the muscles in between the ribs but I'm concerned that this may be metatasis. I've sent a message to my…
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ILC removed but "extensive" LCIS found
I'm new here, 50 y.o. Just recovering now from lumpectomy and SLNB (8 nodes!) for ILC (ER+, PR+, HER2-, grade 2). My pathology report had clean ILC margins and found only a few single isolated tumor cells in one of the nodes, so that was good news. But my tumor was much larger than the doctors expected from prior imaging…
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vibration platform for bone health
Hi there! Has anyone tried or researched using a vibration platform for improving/stabilizing your bone density? This was recommended by an orthopedic surgeon, and honestly, it sounded crazy. But I researched on PubMed and found this meta-analysis which showed promising results, especially with "side alternating"…
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Medicare Cranial Prosthesis Process / Coverage
Wondering if anyone has experience getting a wig aka "cranial prosthesis" through Medicare. My doctor tells me it has been submitted but something is keeping it from getting to Medicare. Any ideas? I keep pestering the doc admin and they keep trying, but not having any luck (since July 22). Odd because they said they can…
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IBC Fear- swelling and now redness
Hi there, thank you so much to anyone reading this that can offer support. I’m a mom of two young kids and absolutely terrified I have IBC. After I finished breastfeeding my littlest, and everything went back to normal, my one breast remained larger with some inflammation under my arm and random pains. That was 12 months…
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anastrazol
i am 3 months out from my last kadcyla. just had bloodwork and all looks pretty good except alk phos and calcium slightly high. i have read anastrazol can cause this and have been taking since march. anyone else?
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Digestive side effects from Verzenio
Hi there. I was initially diagnosed with Stage 3a HR+, Her2- breast cancer at the age of 39 (2004). Treatment included a mastectomy with 23 lymphnodes removed (1 positive one), typical AC/T chemo regimen, radiaction, and Tamoxifen for 5 years. I was in remission. Fifteen years later, almost to the day, I started to have…
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Lymphovascular Invasion Present and Perplexing Pathology Report
Hi All, I am new here, and have spent the last seven hours crying. I received the pathology results today, and as you may have guessed, it's not good. Not good, confusing, scary, and I have discovered Google is not my friend tonight. My pathology diagnoses results were: -Foci of ductal carcinoma in situ, intermediate…
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Does your tumor start to shrink after one cycle?
Hello Everyone! When does your tumor start to shrink? One cycle or longer? What happens if it doesn’t shrink
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Palpable findings not seen on mammogram or US.
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Help! Compression for armpit area?
Any advice on locating compression garments for "trunk" but especially armpit? I had a bilateral without reconstruction so bras with extra room for boobs don't compress on me. I am a small person, so men's compression sizes are too large. I don't even know where to look.
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Ibrance beginner.
What is the process for a beginner prescribed Ibrance? I understand I take the pill for 3 weeks on and one week off., but how to get it through the pharmacy confused me. I appreciate any help. Thank you and take care.
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Medicare and genetic testing
I just was assessed at the high risk breast clinic and one of the recommendations was genetic testing. I'm all for that but I can't find anywhere whether Medicare covers it or now. I'm just wondering if anyone here has experience with that situation? Thank you!
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Just had MO appointment
what an overwhelming appointment. Nurse navigator, NP, social worker and then Dr. it hit me pulling into the parking lot, right by the Cancer Center sign. When nurse navigator asked some cancer questions the tears came. The NP came in, was very "stiff" but okay. but the Dr? He flaly refused to work with me. I had questions…
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Cachexia / extreme weight loss
Wanted to share this recipe/article for anyone having trouble keeping their weight up. I found this for a friend recently who is struggling w stage 4 Lung Cancer and cachexia http://www.anticancerbook.com/post/The-best-way-to... This smoothie is designed to provide nutrition AND address reducing inflammation in the system…
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New Here - Merry Christmas, oh and you have cancer
That heading is a joke, but not really as that is my lived experience right now. I found out this week that I have invasive ductal carcinoma (IDC) on Wednesday. Here are the specifics: 11/10/2022 - A screening mammogram found a developing focal asymmetry in my right breast when compared with previous imaging from 2/7/2020…
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Just diagnosed - IDC no special type w/DCIS Grade 2
Hello community! I had a mammo & Ultrasound 6/4- BIRADS 5 - masses and calcifications, left @ 9:00 and 12:00 Needle Core Biopsies 6/10. Confirmed IDC grade 2, nuclear grade high, solid and cribriform, necrosis present, E cadherin present. 2 lymph nodes tested (axilla and supraclavicular) both negative. MRI 6/18: confluent…
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Back to Work After Surgery??
Hi all. My double mastectomy with reconstruction is scheduled for a week from today (1/4). I currently work full-time from home for a hospital system doing desk work that is completely not physical other than some typing/mouse usage. I have had several other surgeries (4 minimally invasive back surgeries, although one…
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Why Don't Chemo-Resistant Cancers Respond to Immunotherapy?
Why Don't Chemotherapy-Resistant Breast Cancers Respond to Immunotherapy? Dec 22, 2022 Early research hints at why breast cancer cells that survive chemotherapy also don't respond to immunotherapy. Read more...
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How to discuss declining endocrine therapy with your oncologist
I have decided that given my priorities, the specifics of my cancer, and medical history, I have decided not to take tamoxifen. (I did try AI's and was a train wreck). Do any of you have advice on how to discuss refusing endocrine therapy with your oncologist in a productive way? She really has been great in every other…
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Mammogram Travel Time Still Long for Many U.S. Women
Mammogram Travel Time Still Long for Many U.S. Women Dec 19, 2022 Travel time to the nearest mammography center is long for many U.S. women, especially women in rural areas. Read more...
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Women With Intermediate Recurrence Score Can Skip Chemo
Updated TAILORx Results Confirm Women With Intermediate Recurrence Score Can Skip Chemotherapy Dec 19, 2022 Four more years of follow-up continue to show that women with an Oncotype DX Breast Recurrence Score of 11-25 can safely skip chemotherapy; their risk or recurrence wasn't higher than women who received chemotherapy.…
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Kisqali + Hormonal Tx Better as 1st Tx for Advanced-Stage BC
Kisqali Plus Hormonal Therapy More Effective Than Chemotherapy as First Treatment for Advanced-Stage Breast Cancer Dec 19, 2022 Pre-menopausal women diagnosed with advanced-stage, hormone receptor-positive, HER2-negative breast cancer got more benefits from Kisqali and hormonal therapy than chemotherapy as a first…
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33, TNBC, skin mets, and chest wall recurrence.
Hi All, not really a point to make but at 33 this is an isolated club to be a part of. Just want to share my experience, thoughts and treatment incase anyone is going through what I am. I found a lump in 2020 at 31. Was told it was nothing. 6 months later I was diagnosed with stage 3, TNBC. I did 4 AC, 4 Taxol, 1 failed…
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Calcifications question
Hello, I had a mammogram due to my gyn finding a lump. While the lump turned out to just be fibrous changes, they consequently found that I have regional amorphous calcifications bilaterally. I was given a Birads3 score. Everything I’ve read online indicates that amorphous should be considered for biopsy. I am just curious…
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3d mammogram callback
I am 46, and had a callback on my 3d mammogram. Developing asymmetry in my left upper breast. I don't have my next appointment untill February......I'm going to try to stay calm, but I have a strong family history. My last mammogram was in 2019. I got off track because of COVID. I'm not really sure what to do with myself…
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Research
Count Me In has joined hands with Stand Up to Cancer. They are requesting data from people who have been treated for cancer. They remove identifying information and make the data available to researchers. Hopefully, this will speed up efforts to understand and treat cancer. Currently, the data is in virtual silos with a…
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Hysteroscopy and D& C Question
Hello, I have been on tamoxifen for about 15 months. I developed an enlarged uterus. I went to obgyn today and had an ultrasound. It showed uterine thickening, when I asked Dr how thick, he replied and said a 4..not sure what that means..He scheduled a d&c and hysterscopy. Has anyone had this done? What was your recovery?…