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Boost Dose After Radiation for Some DCIS Reduces Recurrence Risk
Boost Dose After Radiation for Moderate- or High-Grade DCIS Reduces Recurrence Risk Aug 15, 2022 After whole-breast radiation, a boost dose to the area where the tumor was further reduced the risk of moderate- or high-grade DCIS coming back. Read more...
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Expander pain 3wks post-surgery
Hi all, wondering if there are others who have been through this-- I had a mastectomy (left side) and expander placed under the pec three weeks ago. The ps said there were two tears to the pec during surgery, one of which he repaired. I'm still in a lot of pain and am not looking forward to the first expansion, which…
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Perjeta/Herceptin Side Effects - Itching face, fine bumps
HI all, Completed chemo in April 2022, but still on Perjeta/Herceptin until January. Just completed C8 last week and now face is itching and I have small bumps (didn't have this before, but I think a nurse warned me that this could happen). The nurse said to use hydrocortisone or Benadryl. Overuse of hydrocortisone also…
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New Indent + Worsening Pain/Symptoms Over Last Few Weeks
I originally posted this in the “Concerned About IBC Start Here" thread, but quickly deleted it and decided to post separately. I hope that's okay. I've also thought of some details I'd originally left out, so added those below as well. I'm not sure if I should post here for this, but I am 29yo (30 in October), and started…
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Boost Dose After Radiation for Some DCIS Reduces Recurrence Risk
Boost Dose After Radiation for Moderate- or High-Grade DCIS Reduces Recurrence Risk Aug 15, 2022 After whole-breast radiation, a boost dose to the area where the tumor was further reduced the risk of moderate- or high-grade DCIS coming back. Read more...
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Weekly Taxol for Stage 4
I was wondering if there were any other Stage 4s doing weekly taxol. I know there is a group in the chemo forum, but most of them are doing for the 12 week cycle as part of primary treatment. According to my onc, I'll be doing weekly taxol until something changes, if you know what I mean . . . . Jennifer Edited 5/11/14: I…
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TNC metastasis to jaw?
Hi all. My dentist today found a strange spot in my left jaw. I'm going to have an oral surgeon look at it Monday. Anyone have triple negative BC metastasis to jaw?
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Nerlynx/neratinib
Has anyone been prescribed Nerlynx following full year of adjuvant Herceptin and perjeta
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Grief in the Digital Era: Mourning A Virtual Friend
Ive written this article to both reflect on the passing of a long-term BCO member of the IBC forums, and examine how possibly we can deal with grief in our digital world where true identity is masked by an avatar. https://advancedbreastcancer.net/living/grieving-virtual-friend/
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Podcast: Understanding How Mindfulness Meditation Reduces Pain
Understanding How Mindfulness Meditation Reduces Pain Aug 12, 2022 Mindfulness meditation seems to ease pain by allowing people to separate pain from things they're experiencing. Read more...
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Decided to do BMX, but scared. Advice?
Hi All, I'm blown away by the amount of support on this website. Your feedback would be so helpful. My surgery is scheduled for April 15. I have DCIS stage zero and another spot that is DCIS with micro invasions at stage 1A -- both are grade 3. All of my factors added together have helped me make my decision -- plus my…
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Am I the only one with super high tumor markers?
Hello. At the start of treatment in 2021, my tumor markers were in the 300 range. After each treatment failed. ( Ibrance then Piqray) my markers rose even higher. I just started Verzenio due to progression on Piqray. My Ca15-3 is 4900 and my Ca 27-19 is at 3576. I’d be more specific about treatments, but I am just too…
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Hysterectomy revealed additional mets in ovaries
Long time lurker here - can't tell you guys how much I appreciate following along on this journey. Bone mets were found in 2021, so I was on Verzino until I could no longer tolerate it, and then Ibrance since January 2022. I went in last week for a hysterectomy in order to stop taking the awful shots in my stomach to…
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15 years since diagnosis (de novo, oligometastatic)!
Sharing some news here. I responded to treatment with a complete remission and have been NED since 2008 although there is a spot they are monitoring on my left lung as first seen on my last scan (October 2021). I am still off the cancer meds and the spot hasn't grown so I'll continue to call myself NED. Of course, stable…
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Tumor Markers Crazy
Does anyone know how reliable tumor marker tests are? I am a nine year survivor and my oncologists is having me get a endoscopic ultrasound so they can take samples of some swollen lymph nodes near my liver for a biopsy. Today they did blood work for tumor markers and two results CEA and AFP tumor markers came back normal…
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Pathology Received-Need Help Understanding
Hi Everyone, Just received my pathology on MyChart. Can’t talk to the surgeon and need help understanding the size of the invasive component? I’m confused on whether it is 28 mm plus DCIS or 20mm of DCIS and 8mm of invasive? Your ValueThe localization lumpectomy specimen in part E has been submitted in its entirety for…
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ER+, menopause, and severe depression
Good evening all, I had a stage III ER+ diagnosis in 2004, so incredibly fortunate to be 18 years' NED last February. Here's the thing, I refused oophorectomy because I was terrified about quality of life by going into instant menopause at age 35 after having extremely high estrogen since birth I guess. I spoke with a…
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Stage 4 support, MBC and CKD
Hi all, Our family is going through a tough time and I'm looking for some guidance. My sis-in-law is now stage 4 BC with mets to brain and chest nodes. This is her 4th reoccurrence, and first metastatic reoccurrence. She is triple negative and her first diagnosis was 20 years ago when she was 32. My question is, how can I…
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Maria Elena is back home with Father God
Tomorrow at exactly 9.43 am local central time, will mark one week since my mother left to go back home to God Almighty. She was 73 springs old, merciful, joyful, pious, and devout. Her agony started in December 2021, however, we, her daughters are too fucking stubborn to just let her go, so we clung to her and pulled her…
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Nerve pain
I was wondering if anyone has experienced nerve pain in reconstructed breasts, years after DIEP surgery in Nola? In the past few weeks I have had pain in one or both breasts that is a burning type pain. If I didn’t know any better, I would think I have shingles, but there is nothing there. No lumps, no rash, nothing. Just…
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35 and I hate my life thanks to Tamoxifen
I'm 35 yrs. old, and I had Stage 1 IDC, Less than a cm, Grade 1, 0/5 Nodes, ER/PR+, BRCA1&2 Negative, Oncotype Score 9. Lumpectomy, Radiation, Tamoxifen. I have been on tamoxifen for 4 years now, and I am miserable. Here is the list of side effects I have from tamoxifen: Depression, Mood swings, Bone loss (is known to…
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Re: How to know Mets or when to do more exams?
Hi everyone, I am writing this post on behalf of my mom. She is recently diagnosed with invasive breast cancer on February 11, lump size 1.3cmx1cmx1.3cm. Grade 2, ER+/HER2-. She is 58 years old and choosing bilateral mastectomy without reconstruction. The surgery is scheduled on March 11, 2022. We have met with our nurse…
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July, 2022 Surgery- Tips, Words of Wisdom, Others Scheduled?
Hi everyone, New to this site, and I'm already feeling much less lonely reading all of your posts. 39 y/o, scheduled for bilateral mastectomy on July 6, nipple/skin sparing with expander placement. I am absolutely stricken with fear for the surgery and anxiety about the pain. I heard that the drains are very painful, and I…
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Chances of it becoming metastatic
Hi all. Asking for a relative who was diagnosed with stage 2 hormone positive cancer - what are the chances of it coming back with chemotherapy? Asking you here as it is quicker than trying to search for information myself.
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12 years mbc
on July 19, I celebrated making it to 12 years. I was diagnosed with 2 liver mets, er-, her2+. I have been Ned for over 11 years and off all meds for over 7 years. When I was first diagnosed in 2010, I remembered reading that 2-3 % of stage 4 patients are “ cured” - ie- they get to Ned and remain there the rest of their…
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Implant breast reconstruction and Multiple Sclerosis
I will have a single mastectomy next month and decided I want to have a reconstruction with expander and then silicone implant but after reading a lot about recovery and risks I am not sure if this is the right choice for me. I have Multiple Sclerosis since 7 years and had my last MS relapse last year. I am scared that…
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AIs being used by bodybuilders...
I was scanning the net reading about side effects on Aromisin and came across a whole lot of info on AIs being used by bodybuilders especially just prior to comepetition. It robs their body of estrogen so they can build mass. I found it ironic that for the last two years I have been working out so hard 4 times a week and…
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Lupron shot vs. oophorectomy
Hi all, I've been getting a Lupron shot every four weeks to suppress ovarian function so that I can be on Ibrance and Letrozole. Isn't medically induced menopause so much fun?? My MO said that it was my choice whether I wanted to continue to get this shot every four weeks forever, or to have my ovaries removed. I'm not…
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Shopping/packing/to-do list for surgery + recovery....
OK, I admit it, I am a compulsive planner. I have had some great suggestions and tips not only regarding what to bring to the hospital, but also on how to prepare the house to make the recovery as easy as possible. I am travelling for surgery so, for me, "packing" includes the first 10 days of post-op care. I thought I…
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Back pain 3 1/2 years out from diagnosis
HI; As you can see from my signature, I'm more than three years out from a triple negative diagnosis. I overdid it swimming laps and woke up a week ago with terrible lower back pain, mostly on left lower back. I am seeing NP today for a scheduled checkup and I'm terrified that it's a recurrence. I feel like I could…