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Unexplained Adverse Effects
I was diagnosed 2/28/22 with IDC & DCIS. I subsequently had a bilateral mastectomy with reconstruction. I received 12 weekly infusions of Taxol & Kanjinti completing in August 2022. Some of the side effects I experienced included chills, fatigue and body aches. I have since been receiving Kanjinti infusions every 3 weeks…
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Who is starting chemo in September 2016?
I thought I would be starting in August, but after an infection in my surgical incision, it looks like September it shall be. I will find out tomorrow from my MO what my treatment schedule will look like. I hope to meet some of you here, as I made tons of new friends in my August 2016 thread, lol xoxoMichelle
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Anxiety is real
Hello all wonderful women..I am new but not new. I have been lurking and posting occasionally for several years. My story started 26 years ago when my mom was diagnosed with BC at age 46. I was 26 and newly married. I am not sure what kind of breast cancer she had but it went from zero to 60 fast. It was so aggressive. She…
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The wait begins...lumps between breast & collarbone
Scans scheduled for next week, already told will likely also be biopsied. When I saw the lump last week had no idea it could be associated to breast cancer. Don't think anyone has ever even looked at or felt this area, even during breast exams. About 1" above the right breast, 2-3" below collarbone. Largest near the…
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Premenopausal Tamoxifen Users Need Advice
Hi All, Are there any premenopausal tamoxifien users who have had very thick uterine lining and there was no fibroids or cysts? I am looking for your experiences and treatment outcomes please! I am scheduled for D&C and Hysterscopy next week. I am really nervous! Thank you!!
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To continue with hormonal therapy beyond 5 years or not
I was premenopausal when I was diagnosed with Stage 1, grade 1, highly HR+, HER2 - breast cancer 4 years ago. Yesterday, my MO said I could be nearing the end of the hormone therapy, but she gave me two options. 1. Continue on Tamoxifen for 1 more year in order to complete 5 years of treatment and then stop or 2. Switch…
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Super Confused: Reconstruction vs Flat
Hello Warriors, I am extremely new and learning all the terms, jargons, abbreviations here. Please excuse me for any ignorance. Recently diagnosed: 43 yr old, F. Right: Stage 1, grade 3 Microinvasive. DCIS. Macrocalcification span of 8 CM Left: Microcalcifications. 11 mm mass. Multiple cysts are Benign. Genetic Test:…
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Metallic taste
My final chemo treatment was a little over 3 weeks ag. How long does it take for the metallic taste to go away? Food doesn't really taste bad, it's just the nasty taste in my mouth
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Another paid survey
Hi, everyone! This time they are looking for people who are ER+, Her2- who have been on hormone therapy but are no longer and are on second line or more. The list you've been on and are no longer includes Ibrance, Verzenio, Kisqali, and the following list. Please private message me if you're interested. If you have already…
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First mammogram. Biopsy next week. Freaking out and so worried
Hi. My name is Terrah. I had my first mammogram Tuesday as I'm over 40. Called back Wednesday. They found a mass right breast. US done that day. Radiologist recommends biopsy. I scheduled this for next Thursday. I'm freaking out as the word "hypoechoetic" was used in US report. Has anyone had similar findings and turned…
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Rads + Lx Doesnt Improve Overall Survival forCertain Older Women
Radiation After Lumpectomy Doesn't Improve Overall Survival for Certain Older Women Feb 21, 2023 For women ages 65 and older diagnosed with small, early-stage, hormone receptor-positive breast cancer, radiation after lumpectomy didn't improve overall survival. Read more...
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Rads + Lx Doesnt Improve Overall Survival forCertain Older Women
Radiation After Lumpectomy Doesn't Improve Overall Survival for Certain Older Women Feb 21, 2023 For women ages 65 and older diagnosed with small, early-stage, hormone receptor-positive breast cancer, radiation after lumpectomy didn't improve overall survival. Read more...
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Lump between collarbone and breast
While rubbing some lotion on a new psoriasis plaque I founf a lump between my breast and my collarbone. Kind of an oblong c shape. About 1" above top of my breast, 2" below collarbone. Thought it was one bump, then two bumps, but on feeling around it seems to connect by my sternum. It seems large to be a lymph node (or 2).…
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Questions about surgery for brain mets (to be followed by rads)
My sister already had stage IV lung cancer for the past 5 years (mets was only to pleura) - she was getting scans every 4 months and at the most recent one, it was found that the 2 of the 3 pleural lesions had grown and she completed 15 rads sessions last Monday. Then she had a brain MRI and they found mets to the brain.…
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Seeking Tamoxifen sucess stories
Hello, I am in my early 50s, had a lumpectomy for stage 1, grade 3 breast cancer in December, was able to omit chemo due to my Oncotype score of 13, and am finishing radiation tomorrow. I have been prescribed tamoxifen to start after radiation, and came here to read about what to expect. I probably shouldn't have started…
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Shorter Radiation Schedule Less Likely For Black Cancer Patients
Shorter Radiation Schedule Less Likely For Black Cancer Patients Feb 20, 2023 Black people diagnosed with breast or prostate cancer were less likely to receive radiation on a shorter, or hypofractionated, schedule. Read more...
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Ibc concern
Hi everyone, I'm posting of concerns of my mom. She noticed around 5 days ago a bite below her nipple. She also seemed what to be a bite on her upper chest as well. The bite on her upper chest is just a small scab now, but the bite under her nipple is red. The redness has seemed to have lightened up a bit. It's only one…
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I’m back
Hi everyone, I seem to post once a year or every couple years as I have issues after my screenings. I'm 39, extremely dense breasts. My mom had bc twice in her thirties, so I'm decently at risk. Last year I had a fast growing fibroadenoma removed from the right breast. They couldn't rule out a phyllodes tumor so they also…
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Help for edema post double mastectomy
Bonjour from France and OUF! This gets old really quickly, doesn't it? I'm 11 days post-op after both breasts were removed (sentinel nodes only removed on the right side as the tumours on the left remained in situ) and muscle expanders were placed under my pectoral muscles for the future reconstruction. I'm having a lot of…
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Shorter Radiation Schedule Less Likely For Black Cancer Patients
Shorter Radiation Schedule Less Likely For Black Cancer Patients Feb 20, 2023 Black people diagnosed with breast or prostate cancer were less likely to receive radiation on a shorter, or hypofractionated, schedule. Read more...
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Full on canyon like dimpling freaking out
A few months ago I started experiencing some pain, chalked it up to hormones. It persisted and worsened, then started being accompanied by what felt like an upcoming ingrown hair or something under the surface of my armpit but nothing ever came up. Now all of that continues with the added bonus of a full on canyon from my…
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Calcifications
so I’m 42 and freaking out! I have had three annual mammograms since 2018 and all fine. Went to my annual yesterday and got the results uploaded to MyChart that I need to go for a diagnostic on left breast due to “segmental calcifications on left lower inside breast”. Googling seems to tell me that segmental is the worst…
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In Search of post-op Physical Therapist recommendation
Hi all, I have been experiencing pain around one shoulder since my mastectomy in Nov 2022. Does anyone have recommendation for a physical therapist in Downtown Manhattan, who has experience with post-op especially post-mastectomy recovery? I appreciate any recommendations! Luna
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Coming off tamoxifen early to have a baby
Hi everyone I'm a little lonely over here in the UK and was hoping to find some kindred spirits. I'm now almost two years on from my diagnosis. I was diagnosed with Her 2+, weakly ER+ breast cancer in April 09 at the age of 37 about three months before we were due to be married and a few weeks after completion of our first…
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Growing lump not seen on scan and now second lump beside it
I’ve had mri with contrast, ultrasound and mammogram and none show a palpable lump. I found it last spring and doctor confirmed but it’s not visible. Since the spring it has increased in size and changed in shape. A new smaller lump has sprung up next to it. Both are confirmed by my GP. The hospital does not want to biopsy…
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Pathology
Can someone explain this to me in layman’s terms??? I know they got good clean margins and found nothing in my lymph nodes when I had my DMX. And I had chemo before surgery. It has been a while since surgery I was just reading this and trying to understand Does this mean no viable tumor was left even though there was tumor…
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Successful Reconstruction After Losing TE's to Infection?
So I had a double mastectomy with immediate reconstruction with TE's at the very beginning of January. My incisions were not healing due to some necrotic tissue on both sides and possible infection, so the TE's were removed on Feb. 1st and the incisions revised. I have since learned that reconstruction with TE's has a…
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My New Treatments: Piqray and Orserdu
Today is Day Six on the former, Day Two on the latter. Wish me luck! Tina
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Anyone with ATM gene variant that decided to have a mastectomy?
Hello everyone. I finished chemo today and now trying to decide between a lumpectomy with radiation or a bilateral mastectomy. I'm seriously thinking about a mastectomy. Would anyone in a similar situation as me be willing to share their feedback on what helped you decide to go for a bilateral mastectomy? How are you…
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ATM gene mutation and mastectomy?
Hi all, My name is Silvia , I'm 28 years old and I'm from Italy and I was diagnosed with breast cancer HER2+ stage 2 grade 3 Ki67 30% in March 2022. I'm now under treatment with neoadjuvant chemotherapy and my surgery will schedule in October 2022. I was diagnosed last week with ATM gene mutation. Before the genetic test…