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PALB2 mutation
Anyone else get tested for PALB2 gene mutation?
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Horrible time on Taxol
Note - most people find Taxol much easier than AC. I seem to be an exception so if you're hoping Taxol will be better it most likely will be - stop reading now! But I'm struggling. Feeling awful. Sinuses, mouth constantly dry so that I can't sleep. Everything tastes terrible. I have a constant bad taste in my mouth which…
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Re: explanting and going flat
Hello! I am 5 years out from my mastectomy and reconstruction and I want to remove my implants. I don't like the feeling of them in my body to put it simply. I am a tall thin person and don't qualify for any fat transfer but I do have a decent amount of skin (32C) over my implants and have been reading about the goldilocks…
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Lymphadenectomy - Right Breast Cancer
Hi, I am presently undergoing chemotherapy for a Triple-negative Right Breast Cancer. Very soon, I will have to decide if I undergo a "Lymphadenectomy"! I have been reading a lot about the side effects would worries me a lot - but I understand that it's a lose-lose situation. Because, if I don't undergo a "Lymphadenectomy"…
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Radiation December 2018
I don’t think anyone has started this group yet, so here goes. Anyone else doing this over Christmas?
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Night sweats - any practical tips on how to manage?
Hi all, I've just started the Taxol phase of AC-T chemo and am suffering night sweats, sometimes three times a night. I went into menopause 20 years ago following my first episode of breast cancer, so I've been post-menopausal for a long time. No night sweats at all then. I'm not on any anti-hormone Rx - just the Taxol.…
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Interpreting Mammograms: Architectural Distortion
from the American College of Radiology Breast Imaging Boot Camp (ligaments referred to are Cooper's Ligaments part of the support structure of normal breast tissue)
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Hi I’m new to the group and would like to hear others stories
Hi recently had lumpectomy and resection. Now have clear margins. would like to connect w others in similar situation…..
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Imaging Tests for Lobular Breast Cancer
Imaging Tests for Lobular Breast Cancer Nov 9, 2023 Maxine Jochelson, MD, explains the imaging tests for lobular breast cancer, as well as why lobular disease is harder to see on mammograms. Lobular breast cancer is cancer that starts in the lobules, the glands in the breast that produce milk. Lobular breast cancer is the…
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I'm thinking about discontinuing all doctor visits.
I'm three years out, had stage 1, grade 2, lymph node negative, Oncotype 7 IDC with DCIS. I had a mastectomy and proceeded to go through a year of hell on hormonal meds until I stopped those. The doctors told me that until I reach year 5, I need to see my breast surgeon ever 6 months, my oncologist every 6 months, and my…
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Phyllodes Tumor Diagnosis Advice
I had a lumpectomy of a benign phyllodes tumor with clear margins on 6/14/23 followed by a bilateral breast reduction on 6/22/23. On 10/19/23 I had an ultrasound of a new lump that I found in August of 2023. An irregular hypoechoic solid lesion was identified, but the findings were indeterminant so a needle biopsy is…
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Bra after reconstruction, 5 years out
Hello! I haven't posted on here in ages but wanted to reach out to ask if anyone else if having issues feeling comfortable with their foobs in a bra. I have over the muscle, direct to implant reconstruction and they are pretty small, measure out to a 32c. I have a very lean chest and almost zero body fat on my chest. So…
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Anyone NOT get nausea with Enhertu?
I am ready for my fifth treatment of Enhertu. My onc does a half hour anti nausea IV drip before Enhertu. My body's reaction is severe constipation. So for the 4th treatment I requested a different anti-nausea medicine. Guess what my side effect was? Severe diarrhea. Before I go back to the first anti nausea iv drip, is…
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My insurance company wants me to switch aromatase inhibitors! Why!
I've been on exemestane for almost 4 years, tolerating it remarkably well. Just got a letter from my insurance company. Starting in January, exemestane is "non-preferred" and will cost me more. The insurance company suggests I "switch to anastrozole." I'm angry! I don't want to switch medications, given that the one I'm on…
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Veozah
Has anyone started Veozah to manage AI induced hot flashes? Had my well woman visit today and my GYN recommended it. Thanks!
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Thanks, Tamoxifen? - and an anticlimactic milestone
3 years ago I had my first bone density test. The results came back showing mild osteopenia. Yesterday I had my second scan, and the results came back this morning with about 5% improvement, putting me in normal range. I had no idea bone density could improve! Naturally, my hypervigilant anxious brain immediately told me I…
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Tamoxifen
Hello, I have been on Tamoxifen for 5 years and my oncologist indicated after testing that I should stop taking it and no further benefit would I receive to continue. For those of you who stopped taking Tamoxifen after 5 years, what side effects good or bad did you experience? Did you have a reoccurrence. thanks
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2nd cancer - melanoma
I can't believe I am back to the beginning again. After surviving the last year of IDC dx, surgery, chemo, rads + hormonal blockers...I just had a skin biopsy come back as melanoma. Not sure where to post, I thought maybe there was somewhere for secondary type cancers. I am wondering if there is a link somehow? I am always…
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Starting Tamoxifen: What are the Side Effects
Hello, I will be starting Tamoxifen in about a month's time. My doctor advised to take aspirin everyday as there is a risk of developing blood clots. Have you been taking aspirin with Tamoxifen? What are the usual side effects that you've experienced?
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BRCA2 mutation, IDC and lumpectomy and sentinel node
I found out that I had IDC and then through genetic testing, found out I have the BRCA2 mutation. After research and multiple discussions with surgeon and oncologist, I have decided to have lumpectomy and sentinel node biopsy at this time. Now waiting for pathology report and will do every 6 month surveillance. Have others…
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Can Chemotherapy Before Surgery Eliminate the Need for Surgery?
Can Chemotherapy Before Surgery Eliminate the Need for Surgery? Nov 2, 2023 Dr. Henry Kuerer shares the results of his study looking at whether some women can skip surgery after chemotherapy before surgery. At the European Society for Medical Oncology (ESMO) 2023 Congress in Madrid, Spain, Dr. Henry Kuerer presented…
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Promising New Treatment for Metastatic Breast Cancer
Promising New Treatment for Metastatic Breast Cancer Nov 2, 2023 Dr. Aditya Bardia discusses encouraging results from a study on a new medicine for hormone receptor-positive, HER2-negative breast cancer. At the European Society for Medical Oncology (ESMO) 2023 Congress Aditya Bardia, MD, MPH, presented results from the…
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Pregnancy After Breast Cancer: Is It Safe?
Pregnancy After Breast Cancer: Is It Safe? Nov 2, 2023 Dr. Ann Partridge discusses the research on pregnancy after breast cancer and the factors women need to consider. At the European Society for Medical Oncology (ESMO) 2023 Congress Ann Partridge, MD, MPH, chaired a session titled, “Pregnancy After Breast Cancer: Is It…
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Dato-DXd Seems Promising As New Treatment for Certain Metastatic Breast Cancers
Dato-DXd Seems Promising As New Treatment for Certain Metastatic Breast Cancers Nov 1, 2023 The experimental medicine Dato-DXd may be a new treatment option for certain metastatic, hormone receptor-positive breast cancers. Read more…
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Short-Term Fasting Improves Quality of Life During Chemotherapy
Short-Term Fasting Improves Quality of Life During Chemotherapy Oct 30, 2023 “The short-term fasting group didn’t even develop any clinically visible fatigue,” according to the study presenter. Read more…
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Stage II and on Verzenio?
I am Stage IIB, and Verzenio was approved by my insurance today. I was curious how many other "early stage" folks were taking it; my MO suggested she only has three patients on Verzenio, total. Anyone?
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Long-Term Exposure to Fine-Particle Air Pollution Increases Breast Cancer Risk
Long-Term Exposure to Fine-Particle Air Pollution Increases Breast Cancer Risk Oct 30, 2023 Living and working in places with high levels of a specific type of air pollution increases breast cancer risk. Read more…
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Preventive Removal of Ovaries, Fallopian Tubes Linked to Better Survival in BRCA+ Breast Cancer
Preventive Removal of Ovaries, Fallopian Tubes Linked to Better Survival in BRCA-Positive Breast Cancer Oct 25, 2023 Removing the healthy ovaries and fallopian tubes improved survival in women with a BRCA mutation who were diagnosed with breast cancer. Read more…
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Women More Satisfied When Breast Reconstruction Uses Their Own Tissue
Women More Satisfied When Breast Reconstruction Uses Their Own Tissue Oct 25, 2023 Even though the surgery is more complex, women are more satisfied with their breasts if they have reconstruction using their own tissue. Read more…
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Shorter Radiation Schedule Seems As Effective As Standard Schedule After Breast Reconstruction
Shorter Radiation Schedule Seems As Effective As Standard Schedule After Breast Reconstruction Oct 19, 2023 An accelerated radiation schedule after breast reconstruction saves women time and money. Read more…