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Inverted Left Nipple
All- I am hoping to get some support and insight from all of you as I don't really have anyone to talk to. About 6 months ago I noticed my left nipple was inverted. It never had been in the past but just thought it was a sign of menopause or something (I am 52). A few months later i googled it and saw it was a potential…
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Fat Necrosis or Recurrence in Chest Wall??
I hate the waiting. I am almost 9 years out from bi lateral mastectomy when during a routine CT thorax showed a small 1.5cm mass on chest wall. Ultrasound was inconclusive other than ruling out cyst and being BiRad 5. Today I had a biopsy and now have to wait up to 5 days for pathology results. All the medical…
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Telling people the news
I am inclined right now not to tell anyone much. My immediate family knows; my boss knows, and HR knows since I'm using sick time to supplement my contract hours to allow me to got 1/4 time this semester(I teach at a University). I haven't told many beyond that, since I don't have any outward symptoms (though I've lost…
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Dating after divorce and double mastectomy
This topic just makes me cry. My mastectomy was 10 years ago and I still hate it. I want my breasts back. I am divorced after 20+ years of marriage. I am 100% fine with the divorce and am happier now than I’ve been in a very long time. I want to date and I’d like very much to have sex again! How how how can I ever be…
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Where are our January 2024 biopsy people?
Had my MRI guided breast biopsy today. If positive this will be my third breast cancer, each being diagnosed 8 years apart. The only uncomfortable part was my head in the headrest and problems with a stuffed nose. I was told I will have the results next week. The preliminary report is online but only explains the procedure…
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Monday MBC Zoom thread place to keep chatting
This is a space held for our Monday MBC Zoom Meetup members to catch up in between meetups. To join the weekly virtual support group, Mondays at 2pm ET, please register here.
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Possible Recurrence - Can I do it alone... again?
Stage 1 triple negative in 2012. Treated with surgery, chemo and radiation. I really thought I was out of the woods. I had absolutely no concerns until I found a couple of hard lymph nodes just above the same breast a couple of days ago. I sent an email to my old oncologist to see if it was anything I should be concerned…
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Doctor says to wait several months after getting COVID before gettinng mammogram
My thyroid doctor told me that there is lots of evidence that getting a case of covid can frequently cause lymph nodes to swell and therefore recommended waiting several months before getting any sort of ultrasound or mammogram to avoid false alarms. I had covid a few weeks ago and have my mammogram scheduled for next…
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Cat scans - why?
This is my third breast cancer. For the first two, the doctors never suggested any cat scans. New oncologist said she would usually recommend scans to make sure everything else is ok and I said sure. Now I am concerned why they are suggesting scans this time. Does she think the cancer may have spread? The MRI shows a 5 mm…
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Who else is a Genealogy Nut??
I have been doing my family history for a few years now and I KNOW I am not the only one on here that dabbles in genealogy. Lets share our stories, our research queries and maybe along the way we can help each other with research. Or maybe we'll find out we are related!! My family roots go from Nebraska back to Scotland,…
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Advice 15 years out
I was diagnosed with invasive lobular carcinoma in 2008. I had a bilateral mastectomy and lymph nodes removed (a few did test positive). I underwent chemo, radiation and reconstruction. Unfortunately, my original reconstruction with implants failed and so I then had a DIEP flap. I do not allow blood drawers, IVs or BP on…
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List of what to do/get/pack to prep for Radiation Therapy
Hey all, We would like to put a complete-as-possible list together of your suggestions for getting through Radiation treatment in our next newsletter. Can you start sharing your ideas here? Thanks so much! The Mods **********HEY ALL, HERE IS THE LIST, AS OF MARCH, 2015. Please let us know if we missed things, and/or you…
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Suspicious tumor
I have been getting a contrast enhancement mammogram (CEM) every year since my diagnosis in 2013. I had one today and the radiologist saw a suspicious tumor so she did an ultrasound. Then told me I need to get a biopsy. When I asked if the cancer is back, she just kept repeating the tumor is suspicious and I need to go for…
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Blood Count -Liver High
Hi All Have been all good last 5 years but recent blood count showed liver emsymes out . ALP 230 jumped from 60 6 mths ago and LDH also raised above 200. No elevation to Cancer Markers both low and well within range , however had pain in right shoulder for 2 mths. Wondering if anyone has had similar high liver levels and…
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Oregonians With Breast Cancer
Hello Fellow Oregonians! I thought it would be helpful to have a thread where those of us can go to support our neighbors from the state of Oregon. Also this is a place where those of us from Oregon who are new to breast cancer can ask questions like: what drs did you use for surgery and treatment?did we like our dr? what…
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Mom going in for chest CT today
I am sadly back here again after a few years away. My mom previously was diagnosed with breast cancer. They did radiation treatment, and then it was discovered to have spread to a nearby lymph node; she underwent surgery to remove it. Several months later, she was declared cancer-free. Over the last few years, she has had…
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Weighing my options
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Insurance and MRIs on Silicone Implants
I see that the FDA recommends MRIs on Silicone implants to monitor for leaks. My PS recommends that also. Has anyone had any trouble getting insurance to pay for this? Thank you
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How many breast surgeons and plastic surgeons can I see under Medicare?
Started Medicare in August and diagnosed this January. I would like to meet with several breast surgeons and plastic surgeons before making a decision on my team. From what I read, Medicare allows you to get a second opinion and if the second and first opinion don't match you can seek a third consult. I am scared to make…
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Additional ultrasound
So I live in a state that does not automatically do an additional ultrasound when you have dense breasts.. I've asked about getting an ultrasound in addition to my mammogram but they tell me they don't do it.. is there any way to approach my doctors so I can get a supplemental ultrasound?... I would actually even pay for…
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Off Topic - Sometimes Life’s Not Fair
My oldest brother’s oldest son (my oldest nephew), passed away today. In his 50s, he was diagnosed out of the blue with stage iv melanoma in October. He’d started chemotherapy/immunotherapy but it was too late. It’s devastating news to our extended family. It all happened so fast; it’s like getting hit with a wrecking ball…
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NEED YOUR KIND HELP WITH PATHOLOGY REPORT >> SUSPICIOUS FOR MARGIN INVOLVEMENT ??
Hello Everyone, I was reading my pathology report (after lumpectomy) once again, and I am starting to wonder if I should ask my BS to perform a re-excision. The margins from the IDC component look pretty good. However, a suspicious margin involvement from the DCIS part of it is having me worried. My BS kind of dismissed my…
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New mom and super worried about my recent results
Hi everyone, just found this support forum and been reading a lot. Super grateful to find y'all , I'm in my head a lot right now and still waiting for the biopsy scheduling phone call and looking for some support. My 2nd spot mamogram has referred me to biopsy, here are my results ---- In the left upper outer quadrant are…
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1 year Scan after almost year on letrozole
There may have been a better place to post this. I have my 1 year Dx mammogram scan next Monday. I had Dx scan of the R breast at 6 months and this one will be both breasts. I am feeling anxious on and off since I noticed this appointment is coming up. I have been taking my letrozole daily except when they didn't let me…
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Quit AI drugs - how long to wait before osteo arthritis interventions like PRP?
I was on AI drugs 15 months (Letrozole 11 months, transition 1 month, Anastrozole 3 months). I was unable to tolerate the joint pain and now take Tamoxifen 20 mg (1 month). My knee osteo arthritis advanced during last year. Symptoms were lack of range of motion, pain when moving, and loss of strength to stand (likely…
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December 2023 Surgery? Gather here.
Join and share here to get and give support if you're planning surgery for this month. Please share your diagnosis, planned surgery and date, so we can all support you as you navigate treatment — we're all here for you!
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Delaying Xeloda
Happy new year to everyone. Ufortunately I didn't celebrate yesterday evening as my husband and kid were sick. I'm ok but I still have alittle vold. So the oncologist gibe me antibiotics and want to delay Xeloda for 10 days! I don't feel that bad enough to take antibiotics and delay capecitabina... I'm so afraid of…
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Pengiun Cold Capped and have lost 50% of my hair 20 days post first TC
Does it keep coming out? With each chemo session (my 2nd one is tomorrow) will I just lose the other 50%? It's so disheartening. I was prepared to lose some hair…. but I wasn't expecting to lose so much it early on. Right now the bald spots are at the nape of my neck so it is covered by the rest of my hair. But if I keep…
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Breast lump found
I found a pea sized mobile lump in my breast earlier this week and have a mammogram with ultrasound scheduled for the 19th. I’m high risk due to having NF1 so started mammos at 35. My first mammo at 35 they found a small lump in the same breast opposite side diagnosed as a BIRADS CAT 3 fibroadenoma with monitoring at that…
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Sister just diagnosed with TNBC
Good morning, everyone, My sister was just diagnosed with TNBC, in fact she hasn't been staged yet but the Onc feels she's probably at IIIB given the size and at least one Node involvement. She will be getting her scans this coming week then starting Chemo. She lives in Georgia and I'm in PA so I can be at her dr appts to…