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Share your story of Genetic Testing
Dear Members, Would you be willing to share your story about genetic testing? (no pressure, only if you are inspired!) We are interested in the following questions: What led you to doing the testing? What were your results, and what choices have you made based on the findings? Was payment an issue? How have you discussed…
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Support
My daughter has stage IV breast cancer she was diagnosed De Novo and has been doing well for years I live 22 miles away which takes 46 minutes in normal traffic and over an hour with more traffic Between my autoimmune disease and neck issues and my 2 dogs that need medication for the car ride I find it stressful to make…
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Another biopsy, worried
Hi! I’m no stranger to having biopsies. Back in 2011, I had an excisional biopsy for a papilloma that was causing discharge from my nipple. At that time, it was revealed that along with the papilloma, I had ADH. Initially, I was offered Tamoxifen, but due to a blood clotting disorder, my doctor said I wasn’t a candidate.…
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Breast Cancer Index Test
Hello ladies, has anyone taken the Breast Cancer Index test to determine their risk of reoccurrence for the purpose of knowing how long they should be on Letrazole? Medical Oncologist for my cousin suggesting that she take the test but suggests waiting 5 years... My question, why wait 5 years?. Also is this test a…
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Mom caring for 20 yr old daughter .....
I spend my days and nights researching trying to find a way to save my 20 yr old daughter, she was only 2 months out of treatment when she found out she is now stage iv. Mets to brain skull spine breast lymph . Any moms with young daughters here? Triple Negative
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tooth extraction
hello warriors. i saw the gallow's humour thread - love, love, love! what a great idea. today's question is: do any of you fine persons in our category have any experience with tooth extraction? i gots a molar that gots to come out, and am researching because at this moment in time, i don't trust my onco. i did a quick…
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osteonecrosis of the jaw
I have just found out that I have osteonecrosis of the jaw due to my Zometa infusions. I am currently taking pain killers, antibiotics and oral rinse. I'm having a hard time finding an oral surgeon who will see me. I'm curious about people's experience with this diagnosis, if treatment has been effective, and what…
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Dating After a Breast Cancer Diagnosis
Getting back to dating after a breast cancer diagnosis can seem daunting, but it’s worth putting yourself out there if you want to meet someone new. https://www.breastcancer.org/managing-life/sex-intimacy/single-women
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Re-excision and surprise DCIS near ILC tumor
Hi friends, I had lumpectomy surgery last week and rec'd pathology back. Some mixed news! Good margins on the 5 mm tumor, and no lymph node involvement! That is wonderful news! However, they found DCIS in one of the margins. Surgeon recommends removing that, too. Maybe about 1 mm in size. She said some people radiate that…
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For those not recognized by the pink ribbon in October
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August 2015 Chemo Group
Hi Ladies! I figured it was time to start this thread . . . I hope I'm not overstepping any bounds. My name is Kate. I'm 36 and fighting high-grade triple-positive BC. I had a mastectomy on July 6 and am scheduled to start TCHP (given that I had aggressive, multifocal tumors--one over 2cm--I'm allowed to have TCHP as…
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Anastrozole and mood swings
Hi, After 1.5 years on tamoxifen, I became menopausal and the tamoxifen was changed to anastrozole. After 3 days of treatment, I am experiencing intense mood swings. My doctor suggested I can go back to tamoxifen. Is any other patient experiencing similar side effects with anastrozole? Do they go away after a few weeks?…
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3 years out - New Finding on Mammo Today (BiRad 4)
I was diagnosed with Stage 1, IDC, 100% hormone positive when I was 40. I'm now 43. I had a lumpectomy and 30 treatments of radiation. I'm currently on daily 20mg Tamoxifen and Lupron injections every 3 months. I went for my yearly mammogram today and they're seeing something in my opposite side. Original cancer was in my…
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Pain in only one expander?
So I've been getting fills for a while now and am down to just one or two more. They are getting progressively more painful, which I expected. I had a fill Friday and the left side is still pretty uncomfortable. The right side seems to have settled down. When I bend over, the left side hurts. Is this normal? There is…
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5 years out from stage1a and I think I have lumps
I have a doctor appointment next week. I had stage 1a IDC ER positive in 2018. I had lumpectomy, sentinel node removal (negative), and did 4 rounds of TC. Then radiation. Followed by Tamoxifen. At year 5 (7 months ago) I had a clear mammo, and took a break from tamoxifen bc I was having uterus issues with it. Issues being…
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Weekly Taxol group
Hey there! I didn't see a separate group for weekly Taxol treatment; thought I'd start one just so we can compare notes with each other......I always learn so much from everyone! Just finished treatment #3 this week, and so far my side effects have been loss of taste and fatigue, especially day 3-5. This has been easier on…
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Overfilling 400 CC Tissue Expanders
Quick question: How many ccs can a 400cc tissue expander actually hold if overfilled? I am at 540ccs right now…how much higher can I realistically go? Christina
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Share your story!
Sharing your story or stories - in writing or verbally - may not only help you process your cancer experience, but serve to encourage or inform others. Each person living with cancer has experiences to share… individual in its twists and turns and ups and downs. Please, share with us here. We may add your story to our…
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How useful are Blood Reports and XRay / Ultrasound in MBC
Am concerned as my MO believes that frequent scans should be done in MBC if there are any symptoms, he relies on Blood tests and XRays / Ultrasound, so I have not got scans done for 6 months. Are normal blood and ultrasound etc reliable indicators? I have had Bone, Liver and Lung mets which got completely resolved with…
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Tubular IDC?
Most of the discussion about the tubular sub category here are not recent. It’s a rare type occurring in 1-2% of breast cancers. My surgical pathology came back and I have a Grade 1, Stage 1 0.7 cm Tubular cancer. Wonder if anyone else here has/had the same? Wondering about current treatment protocols.
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Hair loss 3.5 years later
so I finished chemo 3.5 years ago, my hair grew back and was never as thick as it was pre chemo but that was actually a gift from chemo (it was waaay too thick before) I was very happy with my chemo curls and all of a sudden it began thinning several months ago. In talking with two individuals who went through chemo at the…
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Starting chemo April 2023
I didn’t see a thread for this so I was hoping to find some chemo buddies. I just found out today that I will start chemo next week. I am an American in Finland and had an occult 11mm ER+, HER2+ IDC tumor found in my final pathology after my mastectomy 4 weeks ago for 9 cm of DCIS. As an added surprise, one sentinel node…
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Shana Tova!
Our Jewish sisters thread has been very quiet lately. So, to start the new year… SHANA TOVAH UMETUKA , HAVE A HAPPY SWEET NEW YEAR!
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It it safe to take L-glutamine?
Hi, my mom is recently diagnosed with ER/PR + , HER2 – cancer that has spread to lymph nodes. Stage still unknown due to unknow how many lymph nodes are involved. She started her first chemo. Her doctor says it is safe to take L-glutamine during chemo treatment to help with mouth sore, gut lining and improve immune system.…
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Risk of dcis
Hi hope all is doing ok. Apologies if im posting to the incorrect thread. I didnt get responses from my other discussion. Moderators please feel free to move this to a more appropriate space. So a little history, im 41, no children, menstruation started at 10, never been pregnant , never breastfed. Family history with…
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How long should I wait for an appt to get a second opinion?
Hi! I was diagnosed with high-grade DCIS by a local oncologist but I wanted a second opinion so I scheduled another appointment at a bigger cancer research center but the earliest appointment they have is one month and a week away. I’m nervous to wait that long since my local surgeon can do a lumpectomy this coming Monday.…
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Can a biopsy needle rupture the membrane of a DCIS and make it invasive?
Hi! I’m concerned about the consequences of having a biopsy. I know it is to lower the number of surgeries regarding benign lesions but I wonder: The definition of DCIS is (according to cancer.org) that “ the cells that line the ducts have changed to cancer cells but they have NOT spread through the walls of the ducts into…
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Mammograms and Colonoscopies
I'm only six months in on my stage IV diagnosis but I keep forgetting to ask my doctor about my upcoming 60th birthday and the dreaded colonoscopy. He already told me that I don't need to get mammograms but does that hold true for colonoscopies? (Fingers crossed).
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FGFR1 amplification
Hi everyone, I have been looking at the results of my Foundation One testing and saw that I had the FGFR 1 amplification. I did some research into this and saw that it can cause resistance to endocrine therapy and cdk inhibitors. I am currently on Kisqali and Anastrazole (for about 4 cycles). I was wondering if anyone else…
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51 years old, image - new microcalc group & mass but many ok in past
will have 1 or 2 biopsies in 12 days and after screening tomo mammo & ultrasounds came back with a new mass and cluster of microcalcifications in left breast. I’ve had 10 years of 6 month follow ups and 1 biopsy 7 years ago in upper outer left breast. Meanwhile my MD has just retired and no new MD. Kindly the radiologist…