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FDA Approves Orserdu for ER+ MBC (oral SERD)
FDA Approves Orserdu for Metastatic, Estrogen Receptor-Positive Breast Cancer Jan 27, 2023 The FDA has approved Orserdu, a new oral medicine to treat metastatic, estrogen receptor-positive, HER2-negative breast cancer with an ESR1 mutation. Read more....
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Lymph Node Morphology Type
Can someone help me understand my Ultrasound report. I know findings are suspicious…waiting for authorization for CT scan. What does type 2 and type 6 MORPHOLOGY mean? I was told it means LOCATION in the neck, however about auxiliary lymph nodes I found an article that says it has to do with likelihood of metastasis….
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My first day as a cancer patient
Hi all, I have been on a 3 month process which resulted in my test results coming back today as the following: invasive ductal carcinoma grade 2 Ductal carcinoma in situ grade 3 with comedonecrosis , calcifications and extension into lobules. help!!! I saw the results in MyChart this morning at around 9am and still have…
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grade 1, Oncotype 35
My cousin has a grade 1 IDC, 1.7cm, ER/PR+ (ER is 90% I believe), HER2- but Oncotype is 35. I got her text at 3 am and was shocked. For grade 1 tumors less than 1cm, 97% had low Oncotypes. Granted hers is slightly larger. She is 70, already in ill health with IgA immune deficiency (she has been getting IVG) with frequent…
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Leaving Stage 3 for Stage 4
I was hoping to make the 5 year mark this summer, and add my name to the list of those who did make it, but I found out yesterday afternoon in the ER, that the cancer has now spread to the bones in my chest and spine. Not sure about next steps, as need to get in touch with oncologist for "new plan", but not looking good…
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flat focal atypia
hey all, i just had a new biopsy on my left breast now because of microcalcifications. the found a couple benign findings and "flat focal atypia". i cant find any results for this directly, just for "flat epithelial atypia". does anyone have any idea? i dont think its considered malignant, but willthey typically want to…
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Stereotactic for 2cm Mass. Your thoughts?
I (43F) had my yearly mammogram in September. Shortly thereafter I was called to come back in for a 2nd one + ultrasound due to discovery of a 2cm mass in my left breast that was not there 1 year ago. The mass appears solid white on the screen with no clear shape. 2nd mammo showed the mass again, same size, but the…
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Exercise after breast reduction- your experience?
I'm having an oncoplastic reduction in 2 days, about a week after a lumpectomy. I feel like recovery from the lumpectomy was fairly easy but I know the reduction will be a bigger surgery. I'm moving from a 38G to a C or D. I'm curious to hear stories of similar recoveries. I have a vacation planned about 2.5 weeks post…
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When is Onc score run?
Bi lateral N/S mastectomy with reconstruction 1/12 - I guess I assumed they would automatcially run the OncDX score but nurse said they wait for results first. Took 2 lymph nodes (SN plus one). Multiple areas of suspicious calcifications (4) all over left breast and 2 small tumors. Not sure why they would wait to send it…
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Dana Farber 2022-2023 EMBRACE MBC Virtual Forum Series
Hi all! We wanted to share with you a helpful series of five free online virtual forums about promising areas of research and treatment in metastatic breast cancer hosted by Dana Farber's 2022-2023 EMBRACE MBC program. You can access the recordings here: * Welcome Session | 2022-2023 EMBRACE MBC Virtual Forum Series *…
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Dana Farber 2022-2023 EMBRACE MBC Virtual Forum Series
Hi all! We wanted to share with you a helpful series of five free online virtual forums about promising areas of research and treatment in metastatic breast cancer hosted by Dana Farber's 2022-2023 EMBRACE MBC program. You can access the recordings here: * Welcome Session | 2022-2023 EMBRACE MBC Virtual Forum Series *…
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Biopsy coming up, Bi-Rads 4
They found an area of concern on screening mammo. I am 55 years old and my sister had a double mastectomy, breast cancer in both breasts found at her very first mammogram at the age of 40. Because I don't have any lumps or masses I can't find any information on my report. I copied and pasted some of it below. Went for…
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Collar Bone Bump
Hi,ladies. Seeking reassurance. Last night I found a bump on my collar bone, near the center of my chest. I was due for my yearly neck US (I have enlarged lymph nodes in my neck that just seem to hang around.) so when I called my Onc office, they offered to move up my US a couple of weeks to check out this new bump. It…
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Newly Diagnosed
I’ve recently been diagnosed with Stage IV and am a nervous wreck. I’m still in the process of getting scans and a biopsy to determine the extent of it. I can’t seem to cope with the anxiety. How have people here dealt with the anxiety? I’m not sure how to reach some level of acceptance so as to carry on and do what I need…
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Tamoxifen and periods??
I have been on tamoxifen for almost two years. A couple of months after I finished chemo, my periods came back pretty close to regularly... Do periods get irregular on tamoxifen the closer we get to being put into "menopause?" My period came a week early last week and lasted about 3 days, but all of a sudden, I'm bleeding…
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Dentist appointment while on Herceptin?
Hi - has anyone had a dentist appointment, while on Herceptin, Perjeta, or Phesgo? My chemo ended in April, but I'm on Phesgo until Feb. Phesgo is just injectible Herceptin plus Perjeta. I have a dentist appointment on Tuesday (checkup with cleaning). Just wondering whether anyone had any problems. Thanks!
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Am I crazy to consider a DIEP this far out?
My bilateral mastectomy was in 2010 when I was 44. Not skin or nipple sparing - wouldn't want to have "spared" any of the breast with the worse problems, that's for sure. Back then, I was adamant I did not want to discuss reconstruction because I was so afraid of dying and I did not want to miss an extra minute with my…
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Minor rib fractures
I had a fall in the bathroom a few weeks ago and was experiencing some pain on movement so I had a chest x-ray. My doctor's nurse just called me to state that the x-ray showed minor fractures on two ribs. I have made an appointment to speak with my doctor tomorrow. In the meantime, could the fractures signal metastasis?
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Nipple Dimpling after Lumpectomy
I had a lumpectomy 2 weeks ago and will have a follow up with the breast surgeon next week. Today was the first day since surgery that I went without a bra. I am having more pain and I noticed that my nipple has a dimple. Has anyone experienced this? It was not dimpling before surgery and my lum was in my right breast at…
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High Risk - MRI ?
Dear All, I have posted 1-2 times before here and find this to be wonderful, caring and supportive community. I am high risk. Tyrer - Cuzick is 23.9 % lifetime (without co-morbidities) and 20.3% (with co-morbidities turned on). Mom had BC at 59. I have had mammos at 35, 38, 40, 41, and about to have my next one at age 42.…
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Why chemo?
Hi! I'm pretty new around here. I am in the midst of the thumb-twiddling days of waiting for my MRI and genetic testing results to come in prior to my 2/9/23 surgery date. I'm definitely having a mastectomy of my left breast. I might end up going for DMX. Still not sure. Here's my question. If I end up having no lymph node…
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What will an MRI tell me that I don't already know?
I was recently diagnosed with IDC grade 1 100% ER and PR + HER2 -, I'm currently waiting on genetic testing results and going for an MRI in a couple of days. My question(s) is what is the purpose of the MRI? Is this standard procedure? Will it possibly show something more than they have already seen? I'm just ready to get…
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Quit Tamoxifen Cold Turkey?
Hello everyone, Wondering if there are any thoughts on stopping tamoxifen cold turkey vs. tapering off. Is there any evidence of one being better than the other? I'm at 5 years on tamoxifen, just received results from the Breast Cancer Index that said there is no benefit to continuing anti-hormonals, so I'll probably stop…
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Spotting at Incision
Hi! I had my bilateral mastectomy about two and half weeks ago. I still have the surgical tape/glue in place on my incisions, but I have a couple of spots (literally just a spot here and there) where the incision seems to have bled a little. Nothing dramatic at all, but whenever I change my bra, there are always new spots,…
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Feeling close to being back...
Over the years things pop up and I run to the doctor. Thankfully, nothing has turned out to be anything. Go for my annual ROUTINE mammo on Monday. Its always diagnostic...and I was waiting longer than normal. Told my self they were busy. Then the lady walks in and says follow me we are doing an ultrasound. I stared at…
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Does anyone use Signatera?
Someone in my Paxman Facebook group mentioned Signatera to monitor for possible recurrence in early breast cancer. Does anyone use this blood test? Is it effective? Or another liquid biopsy test?
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Lymph node ultrasound?
Hi! I am new here. I was diagnosed with IDC on 12/21/22. I had an appointment with my surgeon on 1/10 where I learned that my breast cancer is stage 1 and triple positive. I am scheduled for a mastectomy on 2/2 followed by Chemo, possibly radiation, and HER2 therapy. I'm very comfortable with the doctors I have lined up,…
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Metastatic or Terminal
Some posters have pondered what to call it. Many posters to this forum have wondered about this. When I tell people that I have Stage 4 Metastatic Breast Cancer, I get a whole range of reactions. Many do not know what Stage 4 means - to them, either you have cancer or you don't. Metastatic (it's all Greek to me) is usually…
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Well HERE's a freaky story...
Last July our new puppy gifted me with a flea bite on my right hand (my right arm being devoid of 20 lymph nodes, mind you) which within days turned into cellulitis. A couple of days later, my fake right hip started hurting. Since artificial joints are magnets for infection, I of course immediately assumed the worst. 10…