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LCIS and ADH
Hi, everyone, I am new in this community and 49 years old. looking for advice from you. 0n 05/19, DX: ALH and radial scar, left breast from core needle biopxy; on 06/30,surgical lumpectomy performed on left but DX: LCIS, ALH, ADH, I have young kids, what should I do? any suggestion? thanks! SoWorried
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LD flap surgery - can you share your post-op experiences?
I am a two-time breast cancer survivor and have been radiated twice. I opted for no reconstruction after a unilateral mastectomy in 2019 and am now having a latissimus dorsi flap surgery on August 19. I am not getting a new breast however, rather just a flap to cover up a chronic wound over my mastectomy scar. I developed…
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Rupture/replacement
Hi everyone, After a stressful few days of possible “Bia-ALCL vs something else” it has been determined that the pain and swelling in Lefty is likely due to a rupture in the lower part of the implant. An MRI has been ordered to confirm. Even without the MRI, my PS is ready to schedule an implant exchange, and said on the…
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Am I just being paranoid? Dental X-ray concern.
I had routine panoramic films done at the dentist recently. He was going over them with me and points to an area on my lower jaw and says it is “ just a bone abnormality .” Of course i internally panic. I called and got a copy of the X-ray and thought I would show it to my RO as I have one last appointment with him in…
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Podcast: Post-Traumatic Stress Disorder After a Cancer Diagnosis
Post-Traumatic Stress Disorder After a Cancer Diagnosis December 19, 2018 For nearly 25 years, Kelly Grosklags has dedicated her practice to minimizing suffering through her work in oncology, palliative care and hospice. An experienced therapist, Kelly is a licensed clinical social worker and a board-certified diplomat in…
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Surgery before chemo, for a large-ish HER2+ tumor?
Hi - I was recently diagnosed with ER-/PR-/HER2+++ IDC/ILC. Largest tumor is about 3 cm, and at least one lymph node is positive (was biopsied). Has anyone here with a similar diagnosis been given the option of having surgery first, and chemo afterward?
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Swelling after lumpectomy and SLNB
Hi everyone - I am a week out from lumpectomy (about 2.5 cm plus margins) and SLNB (3 or 4 nodes). My armpit is still a bit swollen. Just sort of generalized mild swollen-ness of the whole underarm area. It's soft, not hard, and not hot or painful (just achy if I stretch or poke at it). Does anyone here remember whether…
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Timing to switch to a new MO during her2 treatment
Hi, I would like some suggestions on when to switch to a new MO. I'm right now having 6 cycles of chemo. Then will have surgery followed by radiation. Right after chemo, will continue 9 months of immunotherapy, herceptin/perjeta orTDM1, depending on surgery result. (My MO is local while surgeon is in MSK, will choose a…
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Philadelphia plastic surgeon
Good afternoon. Would anyone feel comfortable reccomending a plastic surgeon in Philadelphia that performs removal of aging breast implants and followup with new implants/fat grafting? Thank you.
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Cancer Survivors Have Higher Risk of Cardiovascular Disease
Cancer Survivors Have Higher Risk of Cardiovascular Disease July 11, 2022 Cancer survivors have a higher risk of developing cardiovascular disease, including heart failure and stroke, than people with no history of cancer. Read more...
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Question about pathology results versus biopsy results
I am newly diagnosed with breast cancer and my pathology report after surgery was a little different from my biopsy report and I want to understand what that means. My surgeon says it doesn't affect any treatment decisions since essentially the pathology confirmed the biopsy results and the chemo decision is still waiting…
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Mets lymph node., lung cancer, scan-nodal uptake.
Feb. 2022 Mets to a lymph node located one inch above my right breast mastectomy site in the chest wall. Treating with tamoxifen only. Dx'd with stage 1 lung cancer 4/2021. Treated with 5 SBRT radiations. 6/13/22 My recent pet scan there are multiple new sites of nodal uptake and increasing hypermetabolism in the left lung…
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Mammogram call back terrified!
I had my yearly mammogram on Thursday and received a call Friday that i am to come back Monday to have another mammogram and ultrasound and I am terrified its going to be bad news! Can anyone read this report from my mammogram and tell me what they think? OBSP MAMMOGRAM: br>br>ABNORMAL br>br COMPARED TO PREVIOUS: YES br…
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Port Placement Prior to Starting Chemo
Has anyone started weekly taxol prior to have a PORT placement? My doctor has told me it is ok to start treatments prior to having my PORT placed. I would like to postpone the PORT as long as possible, but I’m concerned how I will feel once I start taxol treatments. Thank you for any feedback.
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Incidental finding in lung
Hi all, thanks in advance for your comments. I just had a heart calcium score done and the CT scan found “atelectasis/consolidation” in my lower right lung. The scan notes did say that “no determinant mass or suspicious nodes are seen.” However, I cannot figure out why this has happened to my lower lung. I do have seasonal…
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FUNCTIONAL MEDICINE /Integrative Medicine Doctors
I would like to ask any members of the group to share your experience with Functional Medicine MDs? A local Cancer Community group offered a Zoom meeting that I attended with a Functional Medicine MD. (Not a Naturopathic Doctor or NP) A hefty group of cancer patients attended, each with some devastating cancers, not just…
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Genderless Breast Cancer Research: We Need More
"Breast cancer is a genderless disease with research concentrated on only one gender. Historically, males and other genders either have been mostly excluded from clinical trials for drugs to treat breast cancer. So, these cohorts are often forgotten when it comes to research. Because this group makes up less than one…
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(pCr) after neoadjuvant chemo, still worried about recurrence.
Diagnosed with Her2+, ER/PR Negative, Ki-67 90%, Stage 2B IDC, 2 positive nodes worried that even with pCr some people still have recurrence. Are any others in this same situation? I understand that the high Ki-67 is a double edge sword… it should respond well to Herceptin and Perjeta (which it did) but if there are any…
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Post mastectomy and feeling alone
hello, I am 7 weeks post-op bilateral mastectomy and feeling alone. I have gained weight and having a hard time with the pain from the tissue expanders. I am so disfigured and over my normal weight that I won’t go out in public. I am finding myself in a dark place and having trouble getting through the day. Did anyone else…
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20 years of Stage 4 MBC de novo!!!
Yay me! Today is the start of my 20th year of Stage 4 Metastatic Breast Cancer de novo! 20 years of chemo sure has been a challenge. And after 20 years of CT and PET scans, why don't I glow in the dark? Doing my best to hang in here and I sure have been Blessed!
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I would love your input!!
I am a former cancer caregiver for my mom and going through the breast cancer care journey with her gave me a passion to work with the breast cancer care community! I am finishing my doctoral degree in occupational therapy, and I have committed my final project to address the unmet needs of women with breast cancer to…
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mixed feelings
I don't know how to start this topic I am still waiting to see the surgeon Thursday and I can't tell you how the waiting time feels like... every single cell in my body is literally aching, I just go to bed and sleep to run away from the current moment.. I have been posting randomly under several sections in this forum to…
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Feeling Inconsequential
I don't know if any of you feel this way, or if I'm just in a funk, or if I'm just a crazy person, but I'm feeling…inconsequential. I went to law school almost 20 years ago, and people I went to school with and worked with now have important jobs. Think federal appellate judge. And I have...MBC. I hated being a lawyer, and…
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Cryoablation - A better treatment option for some?
I've looked into Cryoablation extensively and am now interviewing doctors and medical facilities that offer this treatment. It appears insurance companies are staying far away from this for many reasons as it appears to be a much safer, shorter, long term solution that is much less expensive if that makes any sense.…
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Mammogram frequency after cancer
What have you heard or experienced about this... My oncologist will not allow me an 18 month after breast cancer mammogram , yet aren't you supposed to get mammos every six months for the first two years? If so, does anyone know a way to get one without an onco referral? thank you!
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I'm back..
7 Years of clean scans, finally stopped being my first and last thought of every day and here I freaking am. Mets on multiple vertebrae and probably in my right lung as well but not sure about that one yet, waiting on test results. At least my kids are grown this time.. but now I have grandbabies. I'm freaking out.
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Newly diagnosed IDC
My story starts in March, just before I turned 50. I had a biopsy for microcalcifications. They found an intradermal papilloma, and I was referred to a breast surgeon. I saw the surgeon mid-May, and because of a couple of lumps she felt on physical exam, she wanted an ultrasound of the left breast to make sure she knew…
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Hormonal therapy as an alternative to surgery
Hi ladies I am posting on behalf of my Mom She was diagnosed with recurrence a month back and since then we are discussion treatment options based on the findings and labs investigation She is 78 with no co morbidity The oncologist said that they will decide about surgery after the PET scan He said in case they find Mets…
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Still afraid after punch biopsy
Hi again everyone. I made a post here back May about IBC concerns. Well, I saw a breast specialist and had a punch biopsy done and it came back as chronic inflammation with no evidence of malignancy. I should feel better but I don't. Im still anxious. I can't help but wonder.. what if the test were wrong? What if they…