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DCIS, too much info, just saw biopsy result, confused
I just saw my biopsy result on the medical page. My Dr appointment is not till Tues the 29th. I had rt breast discharge, MRI showed 'something"..so decided to do a excision biopsy. Had that the 18th...still sore! Results show DCIS, grade 2. there's a bunch of other stuff I don't understand, even with looking it up. There's…
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AIs and blood pressure
Hello, I am taking exemestane for 2.5 years now. And noticed that have elevated blood pressure often: 140/90. Do you, dear all, have this issue? I am not sure it is a side effect at all, but would like to know from others? Also if you do, how it is controlled? thank you!
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Anyone want to commiserate about scar tissue?
For three and a half years after my lumpectomy and radiation I felt like I'd gotten off really easy. My surgeon concealed the scar so well that in certain positions it wasn't obvious anything had happened. Then in May I noticed a small patch of reddened skin at the end of the scar, kind of like a lollipop on a stick. The…
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CK4/6 comparisons
Of the three CK4/6 drugs which are Kisquali, Ibrance and Verzinio is there one that is the most effective when used with letrozole? Also is there one that has fewer side effects than the others. I am anticipating that my oncologist will put me on one of these and trying to gather info to discuss my options. Thanks for any…
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Post-mastectomy radiation after pathologic complete response ?
Hi everyone - I'm trying to choose whether to have PMRT. I am in a grey area. I was node positive (probably 2 nodes), but had complete pathological response to chemo. Surgery found no cancer in breast or nodes. No one knows whether PMRT helps or harms patients like me. The guidelines go back and forth, but PMRT is the…
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Life during breast cancer.
Hi. I was dx'd with metastatic lobular carcinoma in 2018. I had gone to a dermatologist because of a sore on my thigh. Turns out it was positive for MBC. I saw an Oncologist , and was informed it was stage 4 terminal. So I was on Ibrance for 4 years, and was doing well. But then my cancer markers started to go up. But not…
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Anxiety
would seeing a therapist who specialized in cancer survivors help me get rid of anxiety. Meds don’t work. It’s 6 years. I feel terrible all the time, like I’m dying. I’m not dying now, will someday but want to stop it. i wake up with anxiety bd, then exercise it gets a little better by evening it is much better. it’s very…
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Underarm Tightness After Swap/Fat Grafting
I had my swap and fat grafting last Monday. Fat grafting was done from the front of my underarms. It’s becoming increasingly more painful to lift one of my arms. It feels like the muscle/tendon at the front of the armpit is super tight. (It’s bringing me back to how I felt after the BMX). It is still swollen from the fat…
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Mets to Lung?
So I had a clear CT in January 2022 and had another in November with a suspicious area.The doctor says cancer does not grow that quickly….usually. Is this true? I posted the full info under CT results but figured to ask this question here to get some feedback from people. Thanks!
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Fall 2015 Rads
A shy hello to all the lovely participants on these boards! I was reminded by someone starting an 'August rads' thread that there may be others out there undergoing radiation this fall, and thought to start a thread for that/us/anyone who's interested. My sim/official intake's on August 26th, and I'll start rads on August…
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Blue Stain on Toilet Seat: The Mystery
OK, friends, this is NOT a photo of my own toilet seat, but one I borrowed from google, and a good illustration of what I'm talking about. A couple of days ago my hubs said, what's with the blue stain on the terlit? it's a light indigo, almost a shadow effect, but(t) the exact shape of my own patootie when I park it there.…
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Xeloda for "Maintenance" purposes (not Stage IV)
I was given Xeloda last year for "maintenance" purposes, and to say that I had a difficult time on it is an understatement. After some adjustments to the dosage, I was taken off of it after only three cycles (we tried lower doses.) I was diagnosed with a recurrence in July. It was physically present a month after having…
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Weekly Zoom meet up for those of us still working
The Mods contacted me via private message to see what time and day would work best for those of us who are still working and finding it hard to participate in the current stage 4 weekly Zoom calls. They are trying very hard to get a meeting that will work for us. If you could please post which day(s) and time(s) would work…
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Heart damage from radiation?
I had radiation on my left breast 11 years ago when I was 41 and am concerned about potential heart damage. At the time, I asked my radiation oncologist because the cancer was so close to my heart, and he blew me off and said the way they do it now doesn't cause damage. This was February/March 2010. I do not have any…
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Welcome to our Metaplastic Breast Cancer Forum! Say Hi Below...
MpBCAdmin_Laura here.... this is my first post
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October Surgeries/ No Need for Awareness, It's Reality!
Nothing says "fall" like October and Breast Cancer Awareness Month, unless, like me, you are having surgery for breast cancer! Those like myself, know all too well about breast cancer! I am definitely not looking forward to endless public service announcements and commercials about breast cancer! This is my third time with…
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Worrisome 6 month follow up MRI results.
Hello, first time poster here In November I had a follow up breast MRI as a management course to my previous MRI of a radial scar with then a MRI guided biopsy which was b9. This current MRI is showing doubling in size and more linear clumped non mass enhancement. It says the CADD was progressive. I've read that that…
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Extensive liver mets - 9th line of treatment, any hope?
Hi everyone, my mum was diagnosed in April 2019 with Stage 4 breast cancer (de novo) with widespread mets to spine, liver and lungs. At the time she was only given 3 weeks to live however by some miracle she learnt to walk again ( after tumours broke her spine) and has been fighting this disease ever since. She was well in…
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Pain Following Unilateral Mastectomy?
Hi all--having unilateral mastectomy on Tuesday, wondering what to expect, pain-wise. For context, over the past year I've undergone three diagnostic mammograms (one that was attempting to visualize an area near the nipple was significantly painful, requiring me to do some mindful breathing and self-talk exercises), two…
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Online Sales on Lymphedema/Mastectomy Retail Sites
I have gotten emails from several on-line sellers of mastectomy and lymphedema supplies and garments about sales for the Labor Day weekend. I thought I'd share them here in case someone might find them of use. There is a code of LD25 for 25% off on the WearEase website; ends September 5. The Busted Tank is also having a…
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Re-incision
Hello, I was recently diagnosed with DCIS. I had my lumpectomy on 10/31/2022. My labs resulted in margins that were not clear. The lateral was on the rim and the other 2 slides (superior/inferior) were 1.5 CM with DCIS. Radiation oncologist wants me to have re-incision but surgeon is not sure that is the answer. The DCIS…
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A laypersons guide to DCIS
This is a reposting and updating of my "DCIS facts and misconceptions" thread. In setting up that thread, I wanted to share basic information about DCIS that I'd learned from my research and in my years on this board. I also wanted to provide links to reliable websites that have good general information about DCIS - there…
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Adhesive TAPE - help need to find non-allergic
Thanks to folks posting here and the full support of my surgeon (new hospital due to employer's changed insurance plan), I have recently had success using 3M Cavilon Barrier Film (I prefer the swab applicators.) >> WHEN APPLIED CORRECTLY <<. If your department does not stock them, have the department see if they can obtain…
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LYMPHEDEMA TREATMENT ACT
Breaking News: FULL HOUSE TO VOTE ON THE LYMPHEDEMA TREATMENT ACT THIS WEEK!!!!! If you have lymphedema and do not get their emails, go to: LyphedemaTreatmentAct.org It is a very active advocacy group for those with Lymphedema. They are sending out more information pertaining to this week's vote, but we need all hands on…
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Need biopsies again
My MRI showed two new areas of concern, so I have to get a MRI guided biopsy. Last spring I had a biopsy at the scar site come back with fat necrosis, giant cell reaction, and fibrosis, and it seems reasonably likely that the first spot is related to that, but the second spot seems to be a slightly different area, although…
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Nowhere to go on Thanksgiving or Christmas. Suggestions?
Hello friends. I spent the holidays with a close friend for many years, but he is not well, very reclusive this year, so we aren't spending the holidays together. I really don't have a family per se. Life has been emotionally challenging from the very day of my diagnosis, and circumstances like this don't help. Does anyone…
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Beginning?
Hi all....I never thought I would try to conenct in with a community like this... but I am finding I could use some back up as far as my thoughts/reactions/scaredness. Is it normal? Mammorgram caused some discharge...and it has continued randomly since then. sometimes months without anything then YUCK. Grosses me out…
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Say NO to hormonal therapy!!!
The ATLAS Study out of Oxford was massive. it resulted in the recommendation to go from five years to ten years for hormonal therapy after BC treatment. The figurehead Harvard researcher is quoted " if it is being tolerated well, why not ?"He was referring to AIs in the article I sent him a picture of my face, two years…
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Assymetry Birads 0
I am new here, and am struggling to contain my anxiety over being called back for more testing. For the first time in 20 years of mammograms (I’m 61), I received a Birads rating of 0, with the description of an Assymetry seen in the right breast that is “indeterminate.” I had 3D imaging for the last few years, and my…
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Anyone try acupuncture for neuropathy?
I’m about at my wits end with this neuropathy. It is throughout my leg; hip to toes. I’ve had scrambler therapy, that worked, just didn’t last. I could do it again but it a bit of a hassle as it is everyday and is not exactly close by where I live. I’ve read acupuncture helps, but wanted to see what your experience was. I…