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A Place To Say Thanks to Members Who Helped You!
Hi Everyone! I am hoping that this will become the longest thread on BC dot org someday. The purpose of this thread is to give some public recognition for a member or those members who have helped you with their posts. We have some members who really go above and beyond to share their knowledge with newbies and worried…
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Signatera blood test for detecting molecular residual disease
I’ve just finished my chemo (year), surgery and radiation and even though I had a PCR after the neoadjuvant TCHP, I’m super anxious about this recurring given that my tumor was HER2+/Hormone negative with a Ki67 of 90%. (Anything over 20% is classified as “high” so knowing mine is 90% seems like extremely bad news. My MO…
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Terrible pain from tissue expanders
Hi there, Last week I had a skin sparing double mastectomy/sentinel node removal with the placement of tissue expanders (300 cc's put in the left expander and 240 in the right). I am experiencing terrible pain/burning sensation along the bottom of the implant (top of rib cage area). I was in the hospital one night and was…
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Atypical Ductal Hyperplasia , Usual Ductal Hyperplasia
* I am a 40 year old , I started my journey in Dec 2019 with discharge from the nipple went int to the er and was told of possible breast cancer. I was sent for diagnostic mammogram and ultrasound which was 3.5mm only shaped mass on the top of my right breast it had fluid and solid compound in which I was then scheduled to…
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Anxious
Hello I am 43 43. I've been getting routine mammograms for quite sometime. Yesterday I got a call back The report says "there is a developing asymmetry in the posterior upper outer quadrant of the right breast" . I went to google which I know is dumb. I can't stop. I have two sons. My mind is racing. I will go back this…
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Sub-clinical lymphedema?
I had a Sentinel node biopsy, radiation along with a lumpectomy on the right side three years ago. I am right handed. After treatment I completed the Livestrong program. My upper body has never been the strongest, but I had my pre-surgery strength on my right side. I actually went back packing in Croatia 3 weeks after…
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Bilateral Cataracts & P. Vitreal Separation
hi: Do you think mysituation Med related or metastatic cancer progression? I have stage 4 Mets x5 years on I/F therapy & Bilateral "RAPIDLY ADVANCING" Cataracts & posterior Vitreal separation (<1 mo. Apart) Rapidly advanced cataracts from grade 2-9 in ~ 6 mos. while taking Ibrance/Femara (I/F) combo for past 5 years with…
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Beauty products: Hair Dye? Sunscreen? Face products/retinol?
I'm far from being done with treatment - waiting on 2nd set of scans (MRI, bilateral mammo) after consulting radiologist saw extra stuff on my original imaging, joy - but I'm trying to build a plan NOW for "after treatment" since I'm a big long-term planner and it calms my anxiety to be able to make little plans for the…
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13 yrs ago Aug 8
Hi! Haven't been around for a while - some may remember me from a while ago. I was DX'd with IBC ( Inflammatory Breast Cancer ) 13 yrs ago on Aug, 8 ,2009. Just wanted say I'm still 'around' living and loving' every minute of life!
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Back to the waiting game
Hello all! Back in early 2018 I went through a fun-filled MRI, followed by an MRI-guided biopsy which found atypical ductal hyperplasia. I had an excisional biopsy a couple of weeks after that, and luckily nothing else was found. Since then I've been seen at our high-risk breast clinic regularly, and have been on the…
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Intermittent Fasting May Help Cancer Treatments Work Better
Intermittent Fasting May Help Cancer Treatments Work Better, Small, Early Study Suggests November 30, 2021 A small study suggests that a specific type of intermittent fasting is safe and possible for people diagnosed with cancer and may boost the effectiveness of cancer treatments such as chemotherapy, immunotherapy, and…
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allergy and skin issues post-chemo?
Hi all, I finished active chemo in Oct 2018 - did a year and a half total of Taxol, Red Devil, Cisplatin and Xeloda. I'm having so many allergy issues and skin problems and I wonder if anyone else has had these problems after chemo. I feel permanently altered. Right now, I have swelling under my eyes and extremely…
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Flat closure results - Shameless request for surgeon info
Has anyone had a flat closure mastectomy with Michelle Specht at MGH, or Tari King at Dana Farber/Brigham? How did it go? I could use any info at all (feel free to PM me). I'm trying to choose, and I need to decide right away. They both seem fine, but different, and information is scarce (I'm out in the boonies of New…
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Need Encouragement
This is my first time posting on here but wanted some encouragement. ❤️ I was diagnosed in Jan. 2022 with stage 4 her2 positive to liver. I recently have completed my chemo THP and my scans are all clear other than 2 small spots still decreasing in my liver.( which my dr. believes is scar tissue) My breast mass was quite…
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Surgery Delayed/Possible SAVI instead of Wires
Went in yesterday afternoon for my Pre-Op with my surgeon to 'finalize' everything for my surgery scheduled for Monday, 29 August. I was prepared, had my list of questions, my mind set, etc. I have my little baby tumor, and I also have another spot (biopsied 3 weeks ago) that was ALH. The surgeon explained how (since both…
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Boost Dose After Radiation for Some DCIS Reduces Recurrence Risk
Boost Dose After Radiation for Moderate- or High-Grade DCIS Reduces Recurrence Risk Aug 15, 2022 After whole-breast radiation, a boost dose to the area where the tumor was further reduced the risk of moderate- or high-grade DCIS coming back. Read more...
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Expander pain 3wks post-surgery
Hi all, wondering if there are others who have been through this-- I had a mastectomy (left side) and expander placed under the pec three weeks ago. The ps said there were two tears to the pec during surgery, one of which he repaired. I'm still in a lot of pain and am not looking forward to the first expansion, which…
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Perjeta/Herceptin Side Effects - Itching face, fine bumps
HI all, Completed chemo in April 2022, but still on Perjeta/Herceptin until January. Just completed C8 last week and now face is itching and I have small bumps (didn't have this before, but I think a nurse warned me that this could happen). The nurse said to use hydrocortisone or Benadryl. Overuse of hydrocortisone also…
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New Indent + Worsening Pain/Symptoms Over Last Few Weeks
I originally posted this in the “Concerned About IBC Start Here" thread, but quickly deleted it and decided to post separately. I hope that's okay. I've also thought of some details I'd originally left out, so added those below as well. I'm not sure if I should post here for this, but I am 29yo (30 in October), and started…
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Boost Dose After Radiation for Some DCIS Reduces Recurrence Risk
Boost Dose After Radiation for Moderate- or High-Grade DCIS Reduces Recurrence Risk Aug 15, 2022 After whole-breast radiation, a boost dose to the area where the tumor was further reduced the risk of moderate- or high-grade DCIS coming back. Read more...
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Weekly Taxol for Stage 4
I was wondering if there were any other Stage 4s doing weekly taxol. I know there is a group in the chemo forum, but most of them are doing for the 12 week cycle as part of primary treatment. According to my onc, I'll be doing weekly taxol until something changes, if you know what I mean . . . . Jennifer Edited 5/11/14: I…
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TNC metastasis to jaw?
Hi all. My dentist today found a strange spot in my left jaw. I'm going to have an oral surgeon look at it Monday. Anyone have triple negative BC metastasis to jaw?
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Nerlynx/neratinib
Has anyone been prescribed Nerlynx following full year of adjuvant Herceptin and perjeta
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Grief in the Digital Era: Mourning A Virtual Friend
Ive written this article to both reflect on the passing of a long-term BCO member of the IBC forums, and examine how possibly we can deal with grief in our digital world where true identity is masked by an avatar. https://advancedbreastcancer.net/living/grieving-virtual-friend/
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Podcast: Understanding How Mindfulness Meditation Reduces Pain
Understanding How Mindfulness Meditation Reduces Pain Aug 12, 2022 Mindfulness meditation seems to ease pain by allowing people to separate pain from things they're experiencing. Read more...
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Decided to do BMX, but scared. Advice?
Hi All, I'm blown away by the amount of support on this website. Your feedback would be so helpful. My surgery is scheduled for April 15. I have DCIS stage zero and another spot that is DCIS with micro invasions at stage 1A -- both are grade 3. All of my factors added together have helped me make my decision -- plus my…
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Am I the only one with super high tumor markers?
Hello. At the start of treatment in 2021, my tumor markers were in the 300 range. After each treatment failed. ( Ibrance then Piqray) my markers rose even higher. I just started Verzenio due to progression on Piqray. My Ca15-3 is 4900 and my Ca 27-19 is at 3576. I’d be more specific about treatments, but I am just too…
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Hysterectomy revealed additional mets in ovaries
Long time lurker here - can't tell you guys how much I appreciate following along on this journey. Bone mets were found in 2021, so I was on Verzino until I could no longer tolerate it, and then Ibrance since January 2022. I went in last week for a hysterectomy in order to stop taking the awful shots in my stomach to…
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15 years since diagnosis (de novo, oligometastatic)!
Sharing some news here. I responded to treatment with a complete remission and have been NED since 2008 although there is a spot they are monitoring on my left lung as first seen on my last scan (October 2021). I am still off the cancer meds and the spot hasn't grown so I'll continue to call myself NED. Of course, stable…
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Tumor Markers Crazy
Does anyone know how reliable tumor marker tests are? I am a nine year survivor and my oncologists is having me get a endoscopic ultrasound so they can take samples of some swollen lymph nodes near my liver for a biopsy. Today they did blood work for tumor markers and two results CEA and AFP tumor markers came back normal…