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Scared and alone. Please help.
Diagnostic mammogram and ultrasound today. The radiologist said it was for sure cancer. Large 3-5cm mass in breast with 1 enlarged lymph node. Both bi-rad5 for malignancy. I’m scared to death. Biopsy scheduled for tomorrow. I’m only 39. I have 4 young children. I just finished breastfeeding. I have no idea how I missed…
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Ki-67- ONCOTYPE? What was everyone’s experience?
I’m just sort of curious. For those who had a ki-67 number before your oncotyoe, what were your numbers? I’m wondering how often a high ki-67 results in a high oncotype, and vice versa. What’s your experience?
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Could There Be Some Real Hope on the Horizon for ER/PR+?
I just came across this article and thought I'd share. Wasn't quite sure just where to post, but since hormone therapy is an ER/PR+ thing, I thought I would put it here. This new study looks amazing - maybe too good to be true? They've got some ways to go yet of course; as it hasn't even been tested yet in humans, but I…
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Triple Positive- Stage 2- Herceptin/Pertuz side effects
Hello- I am triple positive stage 2- status post lumpectomy, taxol with herceptin/pertuz, 30 day radiation. I am currently getting herceptin/pertuz every three weeks along with IV dexamethasone- 9 more to go. I have not yet started Tamoxifen. I am finding that I am still getting a fair amount of side effects- GI upset,…
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Side effect difference going from tam to an ai
There’s a chance I will switch from tamoxifen (2 1/2 years now) to an AI. I am premenopausal but contemplating hysterectomy then switching. I haven’t had much trouble with weight gain or hot flashes on tamoxifen, and I wanted to know if that for sure will change if I switch. Also, is it a dramatic change in side effects or…
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Great article in newsletter
Kate!!!! Your story was amazing in the newsletter. Thank you for putting your story into words. 💗
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Torso sensitivity
I posted about this 5 years ago, and never received a response from anyone who could relate. I hoped I'd "outgrow" this sensation, but that's not the case. So I'm circling back now, after discussing this at my annual check-up. Has anyone experienced hyper-sensitivity after a double mastectomy? Specifically, along the bra…
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Not diagnosed with metastasis but mixed tumor marker results
Hello again, It’s been a long time since I’ve posted on these forums. I’m almost 10 years out. I had 3 different tumor markers ordered by my GP in Bulgaria and done at an accredited lab. CA-15 (13.1 U/ml) and CEA (1.72 ng/l) were normal but a new marker I’m not familiar with was elevated. It’s called CYFRA 21-1 and seems…
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Wife given AC/T + HP for --+ (her2 3+)
Hi, after doing significant research, I've realized that TCHP is the international standard chemotherapy for neoadjuvant Her2 positive breast cancer. However, my wife's oncologist says he prefers AC. She just had her 1st infusion of AC. I also discovered that the AC is down dosed by 25%. Normally in the AC leg the standard…
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VERY overwhelmed!
I have recently been diagnosed with IDC Stage 2 Grade 3, it is negative in my lymph nodes. Everything is so overwhelming, I had a EKG and EX-Rays yesterday and go into get my port tomorrow morning. I attend chemo class on Monday and start chemo on Tuesday. I am just very overwhelmed, I have friends that suggest that I go…
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Aromatase Inhibitors and GERD?
Hello friends, Has anyone dealt with reflux or GERD while taking AI’s? If so, have you used medication to deal with it and what was the result? (I’m on my second AI, so that’s 2 1/2 years with severe reflux. Working with a gastroenterologist now to manage the reflux and try to stay on Exemestane for a few more years.)…
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CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
I'm hoping there isn't another thread like this. I did a search and saw one for stage 4, but nothing for everyone else. My very special friend on BCO (Tomboy), and I have talked about a Crazy Town thread for awhile now. I know she will be happy I finally took the bull by the horns!! I wrote a little story about visiting…
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Antibiotics use linked to poor survival in MBC??
Hi everybody I just read several studies that link antibiotics use to worst oucome in breast cancer... But been metastatic with continue cures and low white blood cells I unfortunately have to use them from time to time. Now I got a cold with ear infection and I'm terrified to have to take them, after I'm reading all this!…
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What to expect after a masectomy
Hello- My sister has breast cancer and will either be getting a single or double masectomy depending on her next MRI results. I will by flying up to help with recovery in July. I'm trying to research what to expect, and how best to help, and thought I'd reach out and ask this community. What were the must have's for…
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How Are Your Oncologist’s Communication Skills?
How Are Your Oncologist’s Communication Skills? Jun 4, 2024 Dr. Fumiko Chino discusses her research on doctor-patient communication. At the 2024 American Society of Clinical Oncology (ASCO) Annual Meeting Fumiko Chino, MD, presented the results of research she conducted with Breastcancer.org on how doctors’ communication…
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Top Breast Cancer Research at ASCO 2024
Top Breast Cancer Research at ASCO 2024 Jun 2, 2024 Dr. Eleonora Teplinsky explains the results with the most immediate implications for people with breast cancer. The 2024 American Society of Clinical Oncology (ASCO) Annual Meeting featured five days of presentations and educational sessions on all types of cancer. Dr.…
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Predicting Triple-Negative Breast Cancer Risk in Young Black Women
Predicting Triple-Negative Breast Cancer Risk in Young Black Women Jun 1, 2024 Drs. Holly Pederson and Elisha Hughes explain their research on polygenic risk scores. Black women have a higher risk of developing triple-negative breast cancer at a young age than white women. At the 2024 American Society of Clinical Oncology…
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The Boob Bus
The Boob Bus May 24, 2024 Rena Vanzo started The Boob Bus to make mammograms more personalized and fun. There are many reasons women don’t get annual mammograms, including the distance to a mammogram facility, lack of transportation, or not having a primary care doctor. Licensed, certified genetic counselor Rena Vanzo…
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Easing Cancer Pain in People With a History of Addiction
Easing Cancer Pain in People With a History of Addiction May 10, 2024 Dr. Natalie Moryl discusses how she works to control pain in people with a history of addiction. Pain is a common side effect of breast cancer. The cancer itself may cause pain and nearly all breast cancer treatments may cause some type of pain. If…
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Some People With Early-Stage Breast Cancer Don’t Need Axillary Lymph Node Surgery
Some People With Early-Stage Breast Cancer Don’t Need Axillary Lymph Node Surgery Jun 10, 2024 Skipping axillary lymph node surgery may be an option for certain people with small, early-stage breast cancer, even if one or two sentinel nodes are positive for cancer. Read more…
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Most Young Women Can Have Children After Breast Cancer
Most Young Women Can Have Children After Breast Cancer May 29, 2024 Women who had procedures to freeze their eggs or embryos before starting breast cancer treatment had more successful pregnancies than those who did not have these procedures. Read more…
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Genetic Mutations More Likely in Breast Cancer Found Between Mammograms
Genetic Mutations More Likely in Breast Cancer Found Between Mammograms May 15, 2024 Having a family history of breast cancer and a mutation in any of the five main breast cancer genes may increase the chance that you may discover breast cancer between your routine mammograms. Read more…
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More Immune Cells in Triple-Negative Breast Cancer May Mean Lower Recurrence Risk
More Immune Cells in Triple-Negative Breast Cancer May Mean Lower Recurrence Risk Apr 24, 2024 Higher numbers of certain white blood cells in a tumor may mean triple-negative breast cancer is less likely to come back. Read more…
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Triple-Negative Breast Cancer Has Unique Risk Factors
Triple-Negative Breast Cancer Has Unique Risk Factors Apr 23, 2024 Being older when having your first child and breastfeeding seem to offer some protection against triple-negative breast cancer. Read more…
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Abnormal Mamo & Ultrasound not how I thought my day was gonna go
Went in for a diagnostic mamo yesterday for one thing and came out needing a biopsy for another. It was BIRADS 4 so trying not to think too much of it, would feel better if it said round or ovoid but I got irregular, angular, and indistinct. Biopsy on 6/25 so I will just try and enjoy my vaca next week and not worry about…
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Numbness/ tingling in left arm… how concerned should I be that this is cancer?
I am a 45 year old woman and there is breast cancer in my family history. My mom died of a rare aggressive form of it last year, but it was technically a sarcoma (phyllodes tumor) and not a true breast cancer. I am negative for BRCA and she was negative for sarcoma genes, but I’ve been getting annual mammograms since I was…
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Anyone been taking Verzenio?
Hi, I found out today that I will start on an AI drug along with Verzenio after I finish my radiation in about 6 weeks. I am reading about Verzenio and it is pretty daunting reading about all the possible side effects. Anyone taking it now that could share their experience? Also, how did you get it paid for since it is…
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Delaying Chemotherapy for a Second Opinion
Hi- I'm just wondering if anyone on here has experienced the need to delay chemotherapy at any point in their journey. I was diagnosed back in Feb 2024, had my partial mastectomy with reconstruction bilaterally in April 2024 but developed a pretty bad infection due to an allergy to the blue dye they use when they inject…
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If you belong to our LGBTQ+ community, do you feel you’ve experienced bias in your care?
Please feel free to share any details of your experience(s) and how you managed.
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Setting off Airport TSA scanners
This is an out there question but has anyone’s cancer ever been flagged on the airport tsa scanners. In the last year I have flown about 6 times and every airport to/from my trip highlights my abdomen. I have to get my stomach patted down. I finished treatment for triple negative in 2016 but every ache and pain still makes…