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Feeling nervous about starting the Baby Tam
Hi everyone. So, I was diagnosed with ADH recently , I had a lumpectomy with clean margins about a month ago. My Breast Surgeon/Oncologist recommended that i start taking 5mg Tamoxifen daily for 3 years. She said that i have a 41% chance of getting breast cancer in my life but if I do the baby tam protocol it would reduce…
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Scared and Confused
Hi! I'm sorry to keep posting, I'm just so confused and scared about my diagnosis. I spend most of my time googling which is making things worse and it's because my surgeon and RO seem to be on the same page but my oncologist says something different so I don't understand what is going on. I was diagnosed with ER positive…
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The husband's and partner's corner
A gathering space for the partners of loved ones with breast cancer to discuss your unique experiences.
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BREAST IMPLANT SIZING 101
DISCLAIMER! I am not a physician or medical professional. The information provided is my own personal opinion. You must discuss every aspect of your reconstruction with your plastic surgeon. PLEASE NOTE: New information!! Allergan now has a very easy chart to follow to help you see how sizing works in relationship between…
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Regaining Muscle Strength and atrophy
I am early in this journey. I had my first consultation with the plastic surgeon yesterday. I'm 66 and opting for a bilateral mastectomy with reconstruction. The oncologist will take one lymph node on the right side. I am concerned about the recovery time and loss of strength in my arms as I am a ceramic/ clay artist and…
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High liver enzymes
Hi, This is my first post. In December 2024 i found out my original breast cancer from 2020 had returned, metastasised to my sternum & lungs. I started Kisqali in January 2025, halfway through cycle 2 I had to stop taking my tablet due to acute raised liver enzymes, I am currently 4 weeks off the tablet, my ALTs are…
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Important new info for HR+ patients.
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Does anyone have experience with Dr. David Otterburn in NYC?
I am strongly considering a revision surgery to go from sub-pectoral to pre-pectoral implants. While I have a good (sub-pectoral) cosmetic result if I stand up very straight and don't move, I have felt inhibited by animation deformity and ptosis for so many years (I am single). I have talked to several surgeons, and they…
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Lymph-bypass in forearm after unsuccessful axilla surgery
Hello, I was supposed to have LYMPHA (bypass) during my double mastectomy/ALND in 2023. The surgeon at that time could not find any good vessels to make the connection in the axilla. So, I wear a sleeve 8 hours every day and do regular manual lymph drainage to manage mild lymphedema and keep it from progressing. I've also…
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Has anyone had success with DO IT YOURSELF Cold Capping to prevent hair loss
I’ve found that Cold Capping for an AC-T regimen (4 AC and 12 Taxol treatments) will cost $4,700.00 in Ontario. Was wondering if anyone had success with purchasing their own cooling caps and just using ice vs dry ice to cool caps. If so what caps did you purchase and how many? Thanks in Advance.
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Finishing verzenio
I have just finished two years of abemaciclib, following on from surgery, chemo and radiotherapy. I was lucky that just as I finished radiotherapy, Verzinio was approved in the UK for stage 3 BC patients with high risk of recurrence. Given the pretty awful side effects as well as the timing, it means that there aren't many…
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Use of Signatera testing in stable disease
I just had my latest scans, and I am still stable with my current treatment plan- Lynparza, Lupron, Xgeva. In fact, the scan said "no evidence of metastatic disease in the abdomen"- I had tumors in the liver we were monitoring. I ask my MO if there was any way to monitor molecular progression- progression before it is…
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Didn't have a clean margin, go back in and re-excise?
I had surgery 2 weeks ago (lumpectomy); and just got to meet with my surgeon. One of my margins wasn't clear and she's recommending going back in and doing another surgery. I'm scheduled to start chemo next week, and then radiation. Isn't the whole point of doing chemo and radiation to kill anything that might still be…
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Low positive ER, HER2+ treatment
I'm wondering if anyone has had early stage cancer that is low positive ER and HER2+? My ER is only 5%, but my oncologist wants me to do the standard radiation/tamoxifen protocol. I've seen several studies that indicate a low positive ER should be treated as negative, and that hormone therapy doesn't help low positive ER…
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Any Texas Hill Country BC Warriors?
Just reaching out to any and all Texas Hill Country BC Warriors? Where are you on this BC journey...newly diagnosis, in treatment, finishing treatment. Thought it might we might be surprised to find somebody right in our own backyard who can come alongside and offer encouragement, support, tears, laughter, just be there.…
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Thickened womb lining
Hi all. I don't even know where to start, can't quite believe iv found myself on this path again. I was diagnosed with BC back in Nov 2021 had chemo and mastectomy etc and was put on zoladex injections for 19months, finished them a year ago and have been on tamoxifen ever since. Iv not had periods since starting chemo as…
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Bi-Rads 4: Waiting for Biopsy
Hi, this week as been a mind F. I got the below MRI results and my biopsy in in 11days. I am very concerned. I researched the mri respults and all together I am very worried about a diagnosis. I am 42 with two young children. I dont know how i am going to be able to get through the next week and a half of not knowing what…
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Accuracy of markers in Bone Mets
Hi All Just wondering if anyone knew accuracy of CA153 and CEA in detecting bone mets I am very anxiously awaiting results Initial blood test showed ALP was above 200 however CA153 and CEA were well within normal ranges etc Were your markers elevated when bone mets discovered?? and any other symptoms?? Many thanks Love to…
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Got mammo results. awaiting my call back appointment, in a month.!
I’m 77 yr old and have had abnormal mammo. Family history my sister ( diagnosed age 49) who’s had bilateral mastectomies and a paternal aunt who had unilateral mmastectomy. I don’t have any pathology reports on their Cancers. my recent mammo report says: There is an irregular focal asymmetry with spiculated margin in left…
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Is exemestane a steroid?
Hi, everyone. After 2 years on anastrozole, my oncologist has switched me to exemestane, due to my complaints about how I feel. I am now reading about exemestane and many articles refer to it as a steroid. My oncologist had not mentioned this to me, so I just called her to discuss it. She told me that it is NOT a steroid,…
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LVI positive survivors
I’m having a hard time with the fact that my grade 3 tumor had LVI. My oncologist doesn’t think it’s a big deal since my nodes or negative, but I’ve read a lot of mixed info online about it and it keeps me up at night. Hoping that someone who has been through it can help me understand what this means as far as my…
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Break from Letrozole for 2 1/2 months
I will be going back on letrazole after a break after 2 1/2 months due to sudden onset of constant palpitations and one short episode of a/fib. I had to get a cardiac work up and getting that done has taken time. Getting in to see a cardiologist, wearing a zio patch for two weeks, waiting for the results and then scheduled…
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How long after your diagnosis did you stop getting bloodwork to check tumor markers?
I am 5 years out from my stage 1 diagnosis, and I have been getting the bloodwork done every six months since then. They now want me to start getting it done once every year indefinitely. Is this normal? When did you stop?
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Enhertu
good morning wondering how many people lost there hair on enhertu ?
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VITAMIN K2 combined with Vitamin D3 IMPROVES bone density
Something I never see mentioned, which was never mentioned to me even when I saw an orthopedic specialist after breaking my foot, was that Vitamin K2 deficiency along with Vitamin D3 deficiency increases the risk of fractures. Just look at the following research about it. Vitamin K2 works SYNERGISTICICALLY with Vitamin D3…
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Honoring my Mother
My mother died of breast cancer 47 years ago, when I was 30. I was diagnosed 2 years ago and had 2 lumpectomies and radiation. I've written a book about her cancer and mine called "Given Time." The title comes from a poem about olives needing time to ripen on the tree to become edible and the cover is Van Gogh's painting…
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Surgery for DCIS
Tomorrow I will undergo a partial mastectomy not really nervous but I am wondering how long it will be before I make a good recovery? Not sure what to expect in the next few weeks.
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What do you find is best at helping you manage fatigue?
Choose the option that you find helpful to you, and maybe get some ideas, too! Share your thoughts in the discussion below.
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Catholics
Hello, I am Catholic., and I have been walking with Jesus my whole life...and He has saved me from "me" many times...LOL.... One thing I do, is pray.. a lot. I think we all do as Christians. I headed this thread Catholic only because of what I am posting. All are welcome to pray this anytime.. but I did not want to offend…
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Starting Chemo January/February 2025
Let's all join together here for support 😍