-
Life does not end with a stage IV diagnosis (really!)
Our sister, kayrnic, started a thread celebrating being 2 years (hooray!) out from her stage IV dx. I was thinking along those same lines when I read her post. So often, those newly dx'ed stage IV, think they've been handed an immediate death sentence and panic or plunge into some very dark places. This is understandable,…
-
Awaiting results for stage 4 mets to liver and lung
Hello All. I was diagnosed with stage 3 BC 16 years ago and had mastectomy, chemo and radiation. Have been in survivorship program for 15 years. Persistent cough took me to Er last week - CT showed multiple lesions in my lung and liver - dr thinks it is metastatic spread to organs. Had a liver biopsy yesterday. Awaiting…
-
BioZorb Recall
I want to let all of you know that have had a BioZorb implanted during your breast cancer surgery that the FDA has recently made a Class 1 Recall on the device. This is the most serious FDA Recall possible. Google BioZorb Recall, Hologic BioZorb recall, FDA BioZorb Recall and you will read a lot of information about the…
-
Hematoma
So……. Had my follow up with my breast surgeon today 2 weeks post lumpectomy. I’ve been having increased pain and swelling and generally feeling like crap. I can feel quite a large lump that starts over the incision going all the way down to my stomach quite painful! My lump was near my cleavage at the 8 o’clock position…
-
Enhertu
good morning wondering how many people lost there hair on enhertu ?
-
ANGIOSARCOMA RECURRENCE AFTER 20 MONTHS...
2017- Original diagnosis lump right breast, lumpectomy, radiation. 2021 - husband diagnosed with Alzheimer's due to Agent Orange. Dec 2023 - Angiosarcoma diagnosis due to radiation. 2024 - Chemo, no radiation, double radical mastectomy with flap on right side. First recommendation mastectomy on right breast only. Got 2nd…
-
Trodelvy - Looking for positive feedback
Good morning everyone! I have been fighting this battle since 2004 when diagnosed with Stage 2 B breast cancer with metastasis to one node out of 15. After a partial mastectomy and taking Arimidex for 8 years, was in remission until 2019 until it came back with a vengeance to a Stage 4 with mets to my bones and a lesion in…
-
Leaving Stage 3 for Stage 4
I was hoping to make the 5 year mark this summer, and add my name to the list of those who did make it, but I found out yesterday afternoon in the ER, that the cancer has now spread to the bones in my chest and spine. Not sure about next steps, as need to get in touch with oncologist for "new plan", but not looking good…
-
Multiple skeletal Mets Strongly ER positive BC originally now showing as TNBC
originally diagnosed IDC grade 2 , stage 3A HR+ with Allred score 8/8 and HER2- at the age of 46, 10 years back . Surgery, chemo and radiation therapy done as part of treatment followed by 5 years of tamoxifen followed by 5 years of letrozole and Zolenic acid. Now got bone pain few months back. When done pet scan and MRI…
-
Surgery scheduled for December 2025? Join the surgery waiting room for support!
Are you scheduled to have a lumpectomy or mastectomy in the month of December? Join us here where we support each other as we prepare for our surgeries, ask questions about what to expect, share reservations and fears, and support one another through preparation and recovery. And, we encourage others who've "been there" to…
-
I just got diagnosed at 68, is this bad? Stage III (ER+, PR -, HER2 -)
I'd like to connect with people who have a similar diagnosis. • Primary tumor in the breast:
Invasive lobular carcinoma ILC
ER 95% positive
PR negative
HER2 negative
Ki 67 >10 • Cancer found in the axillary lymph nodes:
Invasive ductal carcinoma metastasis
ER 95% positive
PR negative
HER2 negative
Ki 67 >30
-
Hormone blockers
I am supposed to start an aromatase inhibitor. I am 72 yo and am concerned about the joint pain and damage to bone density. I have been reading about the supplements DIM and CDG as an alternative and I wondered if anyone is using either or both of these and what is your experience?
-
(Seek Help) Long Term Luminal A BC transformed into TNBC (Surgery done and under chemo)
Hi everyone who sees this post. I am posting this for my mom's circumstance. She has been diagnosed with breast cancer since 2007, which was luminal A category. She had reoccurance in 2016 and has been living as a metastasis patient since then with hormone therapy. Recently she has been newly diagnosed with a TNBC cancer…
-
Staying flat after nipple-sparing double mastectomy?
I'm curious if anyone has made this decision, and if they had subsequent surgeries to tighten up loose skin or fill in any concavity? I had my nipple-sparing DMX in Sept 2025, with the initial plan of reconstruction. However now that I am wrapping up chemotherapy, I am considering remaining flat. I'm not sure what to do…
-
Does Cancerization of Lobules = Microinvasion?
I can’t figure this out. Googling hasn’t helped. Does anyone know if Cancerization of Lobules (COL) by high grade DCIS means that patient had a type of Microinvasion, or not? I don’t know if it’s significant: My biopsy pathology was done by the lab of first breast surgeon, whom I fired for good reason. (No point getting…
-
Long term benefits vs awful short term sacrifices
Hello all Lumpectomy Oct 21, post op meeting with surgeon, she said"pathology looks good, got the tumor, nothing in the lymph nodes, treatment remains radiation A week later, met with the MO who blindsided me with my high oncotype score(31), and recommended chemo. The idea of going through LBC/risk of infection, hair loss,…
-
Feeling isolated after comedocarcinoma
Anyone out there who had grade 3 DCIS, subtype comedo (aka comedocarcinoma) with expansile comedo necrosis? I was ER- and also had cancerization of lobules by high grade DCIS. I had a bilateral mastectomy 2 months ago, which my surgeon and Nurse Navigator fully supported. I think they were relieved that I understood how…
-
Zoom Meet-Up Bonded by Breast Cancer: Place to Keep Chatting
Hey Everyone, Here is a place to keep sharing between meetups. Warmly, The Mods
-
Older Woman Age 78 Triple Positive Update
Sharing My Current Findings: Jan 2026 Age: 78, soon to be 79 next month, Breast Cancer Confirmed: Location: Lower outer quadrant of the LEFT breast Size: 3.5 × 2.9 × 3.2 cm Nature: FDG-avid, heterogeneously enhancing, lobulated soft-tissue mass SUVmax: 8.83 Local spread: Overlying skin: Not involved Underlying chest…
-
💛Starting chemo in January 2026? You don’t have to do this alone.💛
This is your space to show up exactly as you are—and to be surrounded by people who get it. Whether you’re feeling scared, strong, overwhelmed, hopeful, or all of the above, we invite you to share: How you’re feeling as chemo approaches Your planned regimen (if you want to share) How you’re preparing—physically,…
-
Tamoxifen side effects
Hi, I am a 69-year-old woman and and I was diagnosed with stage Ia invasive ductal carcinoma in April of this year. I had a wide surgical excision , 19 treatments of whole breast radiation, and now I have been taking Tamoxifen , 10 mg every other day for two months. I am in a Low Tam research study, that us why the dose us…
-
Aromatase Hormone inhibitor “5 year pill” side effects?
Has anyone used these? what were your experiences as far as side effects? cardio-muscular-bone damage?
-
Anyone with ATM gene variant that decided to have a mastectomy?
Hello everyone. I finished chemo today and now trying to decide between a lumpectomy with radiation or a bilateral mastectomy. I'm seriously thinking about a mastectomy. Would anyone in a similar situation as me be willing to share their feedback on what helped you decide to go for a bilateral mastectomy? How are you…
-
Proton Therapy Better Than Traditional Radiation for Leptomeningeal Disease
Proton Therapy Better Than Traditional Radiation for Leptomeningeal Disease Jan 6, 2026 When treating breast cancer that’s spread to the cerebrospinal fluid, proton therapy controlled the cancer better than traditional X-ray radiation. Read more…
-
Enhertu Dose Reduction Results
Hi! I've had 8 infusions of Enhertu at the full dose level and have experienced side effects of fatigue and general crappiness, not in keeping with my quality of life wishes. Because of this, I'm seriously considering going to a lower dose of 4.4 mg. I can't find any data on how effective the drug is at this lower level,…
-
Giredestrant Reduces Recurrence Risk More Than Tamoxifen, Aromatase Inhibitors
Giredestrant Reduces Recurrence Risk More Than Tamoxifen, Aromatase Inhibitors Dec 22, 2025 Results from the lidERA trial suggest that giredestrant could be a new standard of care for early-stage hormone receptor-positive breast cancer. Read more…
-
Adding Tukysa to First Treatments Delays Growth of Metastatic HER2-Positive Breast Cancer
Adding Tukysa to First Treatments Delays Growth of Metastatic HER2-Positive Breast Cancer Dec 22, 2025 Delaying cancer growth may keep people out of the chemo chair. Read more…
-
Breaking Research News from Breastcancer.org
Breastcancer.org strives to bring you updates on the latest breast cancer research through its Research News program. Medical experts at Breastcancer.org provide easy-to-understand summaries of what the research means for YOU. Favorite this thread to get notifications on all the breaking news about current breast cancer…
-
Podcast: Exercise As Cancer Treatment
Exercise As Cancer Treatment January 6, 2026 Dr. Kerry Courneya discusses the CHALLENGE trial, the first study to show exercise improved survival after cancer treatment. The CHALLENGE trial found that a three-year, structured exercise program after chemotherapy for stage III colon cancer reduced the risk of the cancer…
-
ELAINE 3 trial
just wanted to share with all those who have ESR1 mutation a comment from one participant. Looks like it’s working so there is hope for an approval. This is from a different site and a patient named Irit. Hi everyone, I promised an update on the clinical trial I participate in since March 2024, so here it is. The trial is…