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BC & Autoimmune Diseases: How many? What does the research say?
A 7-year BC survivor, I've developed an autoimmune disease that so far has not been clearly diagnosed: different docs say different things: Rheumatic arthritis; psoriatric arthritis, testing positive for lupus without the typical symptoms ... My symptoms are a progressive eczema on my hands: skin thickening, itchy then…
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Tested for Illegal Drugs
At our last office visit my MO gave me a print out of the previous week's labs. I didn't notice until I got home, but in addition to the usual labs, they tested my blood for cocaine, methamphetamine, fentanyl and others, mostly schedule II drugs. Could this be something to do with Medicare regulations?
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Did breast cancer prematurely age your brain?
Hi, I was diagnosed with Stage 3 hormone positive BC when I was 54. I underwent a bilateral mastectomy and had 16 lymph nodes removed which caused lymphedema (albeit mild, luckily). I’m going to be 61 in a few weeks and happy to say that as far as I know, I’m still cancer free. Yeah! But the disease and the hormone therapy…
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Bone Mets and Told I Need Hip Replacement
I am in the ER and being told I need a hip replacement due to the bone mets. The ER is at my local hospital not the cancer center in Pittsburgh I go to. I came here due to hip and leg pain. The ER doc has a call into my oncologist in Pittsburgh. I want to hear what she says. I am very shocked and surprised by this turn of…
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Origins of Genetic Mutation
If you are a known carrier of BRCA 1/2 pathogenetic mutation, have you tried to research the origin of your mutation? I have IVS5-11T>G / c.213-11T>G Any advice welcome.
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Experience with Verzenio???
Hello, I am new here, I was recently diagnosed with Stage 4 breast cancer. all at once, no previous diagnosis, it was missed in previous mammograms. IN some ways i am so lucky because i didn't have to go through the mastectomy (it would have limited my ability to do my job for months, i would have lost my job for sure) or…
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Verzenio and hair loss.
I’m going to be starting verzenio in a few days and I read that 30% of people who take this medication experience hair loss. I asked the pharmacist about this and he made it sound like I could go completely bald again like I was from chemo. It sounded like he was reading from a script and I’m not sure if he really knew…
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Anyone starting chemo August 2016?
I don't have the details yet, just wondering who else is in my boat with me.
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Completed 8 years on Letrozole - trying to control hormones/hot flashes/weight gain
It's been nearly 10 years since my diagnosis of Stage 2 Breast Cancer at age 48. After surgery & treatment, I was on letrozole for nearly 8 years. It was a challenge to tolerate it - joint pain, hair loss, exhaustion etc., but I did for almost 8 years hoping the benefits would outweigh the risks. Unfortunately my blood…
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Stage III Cancer Survivors...15+ years and out
Let's just see what happens here...This is a "build it and they will come" experiment. It's time. If you are not a 15 year survivor but know the story of someone who is, please join in.
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So scared and spiraling and need help
I had my six month check up today. Ironically for the first time ever, everything is in the normal range. However, my ALP is going up like gangbusters. It was 110 today and it's been creeping up since diagnosed although this was the biggest jump. I was 76 last time. My NCI oncologist (or her PA more specifically) is not a…
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Redness / swelling 4 weeks after lumpectomy
Hi all, I’m just curious if anyone developed sudden redness and swelling and increased tenderness several weeks after their surgery? My lumpectomy seemed to be healing very well until day 28, when I suddenly woke up with more pain/swelling and developed redness in the breast. I saw my surgeon that day, who aspirated some…
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4mm irregular mass
Hi, I had a 3D mammo and they found a 4mm irregular mass in the middle lower base. They said because of insurance reasons I have to wait for a diagnostic mammo and ultrasound. I am losing my mind. She said try not to worry because the mass didn’t show up on one view and she said that’s common with dense breast tissue. Does…
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NEW TO STAGE IV……WHAT ABOUT THESE TREATMENT DRUGS?
BONE METS AFTER 13 YEARS NED SUDDENLY IN TREATMENT AGAIN So in January 2023 My Oncologist sent me for scans following a high CANCER ANTIGEN 27.29 blood test, which I’ve gotten every 6 months with followups with him. Since 2009 until recently my CA 27.29 blood test was always Low ranging from 22 to 26, 27. It’s been like…
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I am so mad
I hate being here but here I am. Diagnosed stage IV to liver (20+ lesions), lung, spine, pelvis, skull (so I am not long for this world). I have no symptoms. It was caught during a routine MRI for my ongoing bulging disk issues. I have had other radiology over the past 7 months and there was nothing in these places. I had…
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Visible changes and waiting on a mammogram
I'm 51, post-menopause, and have had a mammogram annually since 2020. In Dec. 2020 I had a biopsy on the right breast, it came back negative. (Yay.) This summer, the left nipple became inverted. I was dealing with other medical issues, so put off going to a doctor about that specific one. Now a doctor has seen it, and also…
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Daughter just diagnosed stage II
Hello , I am new to this site. My youngest daughter just found out she has stage 2 grade 3 Cancer. We saw her surgepn for the firs time yesterday and next week we see her oncologist. I am not new to Cancer, my mother had breast cancer 33 years ago and fought it for 8 1/2 years. I remember being so angry at God because I…
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Watch: Beyond Treatment: How to Get the Follow-Up Care You Need
Follow-up care after breast cancer is essential. Getting good follow-up care can make a big difference in your long-term health and quality of life. In this Breastcancer.org webinar, you’ll find out how often you should see your oncologist after your treatment ends and get other practical advice from our expert panelists…
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Magnesium spray
I stopped taking the magnesium pills and have been using this. I have been sleeping better than ever! It's amazing! Magnesium spray: Magnesium flakes (https://www.amazon.com/dp/B084HLHHWJref_=cm_sw_r_apin_dp_9T5Q2WQRCAR5PWW56ZZB) Distilled water Lavender essential oil Boil 1 part distilled water and add it to 1 part…
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For Arimidex (Anastrozole) users, new, past, and ongoing
I found a couple of older threads about Arimidex, but they covered a large time span with a gazillion posts, so I thought I would start a new thread for Arimidex/Anastrozole users. I am starting on Anastrozole today. Plan is to take it for 5 years, possibly longer. I already have osteopenia and osteoarthritis (limited to…
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Waiting for results of Biopsy for Melanoma
I finished tx for HR- Her2+ BC in November 2022. I just had a dark, very small mole biopsied. Im waiting for results. Im also at the one year mark to do scans. I was doing so well but now Im terrified again. I have so much anxiety. I feel like Im worse now than 2 years ago. I cant get past the fear that cancer is going to…
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My stereotactic biopsy experience
ok ladies, just home from this procedure and thought I would share in hope of helping someone in the future facing the anxiety and worry. History: I am 49, mom had bc that presented as a lump she discovered on her own at exactly same age as I am currently, but she avoided medical attention to it for 9 years. Yes 9 years.…
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Lets do a Sh*t People say to Metastatic BC Patients
Give me your best lines!! I want to make a fun video.
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Stage 4- Docetaxol (Taxotere) Treatment
Last week, I started a new-to-me IV Chemo after progression while on Doxil. I have searched the Stage 4 posts but not finding much so wanted to have a thread to post my “story” to allow a place to ask questions as well as posting experiences, hoping to help others if they move to Docetaxel, too.
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Axillary region soft tissue
Left lumpectomy 2/23 and the radiation Months later, and I’m dealing with a chronic bronchitis cough. I had a Chest CT with contrast this past weekend. They ruled out a pulmonary embolism- due to other symptoms I have with the cough. The radiologist reported: “Soft tissue density that has increased size compared with the…
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Indent
So I have had a mammogram and ultrasound in September that came back fibrocystic breast I have also lost 70 pounds in a year now I have a indent one my breast I have seen multiple doctors and oncologist said it’s from weight loss I am so scared
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Mixed Messages from the Medical Community
Maybe it is just me, but I feel there are so many mixed messages from the medical community that it is no wonder patients are confused. Example: After having breast cancer three times, I am now experiencing bone pain. I finally was convinced by many here, including the moderators, to see my MO sooner than scheduled. I have…
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Buckle up ladies, Puketober is upon us
Fall is my favorite season.. but I absolutely hate the pink washing that happens every October. And the anniversary of my 1st diagnosis is never a “fun” day. Ugh...31 days.. we can do this!
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Aromatase Inhibitors
Hi guys How are you dealing with the pain in your joinths and muscles while on anastrazole. I am alergic on pain killers and anyway wouldn't be ideal to use them all the time. I am an Aromatherapist and I am using essential oils to help me out with pains in my back, arms and legs. I am using Aloe gel and adding essential…
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Stage 2 Sisters Club
Welcome to the newly formed Stage II Breast Cancer Club! And Thank You Mods for facilitating its creation.