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How high is "high risk"?
When I have looked online at the forums here and on other websites, I'm frequently seeing people who mention being high risk because they have a lifetime calculated risk somewhere between 20% and 45%. I'm not seeing anyone mentioning a risk higher than that. I have a Tyrer-Cuzick model 73.2% calculated lifetime risk. I…
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LYMPHA (Lymphovenous Bypass) Procedure With Mastectomy/Lumpectomy?
My surgeon told me that for her institution, after axillary dissection, the bypass is only done on for the arm, and not breast. If you have experience with bypass, what is done for both arm and breast? Also, there is comment that the bypass might be destroyed by radiation. Have you heard about this? Thank you.
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DCIS with Isolated Tumor Cell in Sentinel Node
Has anyone had this? My primary tumor is DCIS, and no definite invasion seen from path report. But the one sentinel they took showed Isolated Tumor Cell. The surgeon wasn't too worried about it, said it's treated as negative and won't affect overall treatment plan. She said it might be from biopsy. But I feel uneasy about…
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Breast reconstruction
I had a double mastectomy a decade ago. I had decided at that time that I did not want reconstruction. I have now changed my mind, but so afraid of choosing the right doctor. I've seen some horror stories and pictures for which I do not want to be a victim. How do I find the right one? I don't know anyone that can refer…
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Mastectomy prep list
This site got me through treatment. There used to be lists - how to prep for mastectomy. That list was soooooo helpful for me. I have a friend who is having a double mastectomy in two weeks. I can’t remember every tip and trick I learned because that was 2015. Is this list somewhere I can’t find? If it’s no longer…
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Weakness and spasms after DIEP
I had a Diep flap reconstruction in September of 2021. I had ongoing problems with lower abdominal weakness and cramps like large charley horses since recovery. It’s only on one side. I’ve had pt with a group who specializes in breast cancer patients, and pt remotely through MD Anderson. They all focus on building strength…
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Metastatic Recurrence Risk After Early-Stage Breast Cancer Drops
Metastatic Recurrence Risk After Early-Stage Breast Cancer Drops Nov 14, 2024 Treatments after surgery are more effective today and studies now include more women with lower-risk disease. Read more…
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Explant Surgery-
Hi- I had breast cancer and bilateral mastectomies 13 years ago and immediate reconstruction using silicone implants. I’m having the implants removed and plan to go flat. The surgeon I saw said that he could only partially remove the capsule since I have no breast tissue. Everything I read says it’s best to have the full…
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The wait for the biopsy is on
I am a walking mess. I had MOHS surgery for skin cancer on my nose in 2012, it came back, and I am waiting for surgery on that on December 19. I scheduled my mammogram /ultrasound prior to the surgery and guess what - a lump, round mass, whatever we call it in the same breast I had DCIS in 2008 (had 2 lumpectomies and…
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Hormonal Birth Control Ups Breast Cancer Risk in Women With BRCA1 Mutations
Hormonal Birth Control Ups Breast Cancer Risk in Women With BRCA1 Mutations Oct 23, 2024 The longer women with the mutation used hormonal contraception, the bigger the increase in risk. Read more…
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Verzenio didn't work for me
Hello, I was treated for my 2nd round of breast cancer from 2022-2023. I went on Verzenio/exemesthane regimen in May 2023. I was supposed to do two years on verzenio, however I was just diagnosed with MBC. I had a lymph node biopsy done because I had 3 swollen lymph nodes in the retroperitineal region show up on a PET…
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Black Women and Hormonal Therapy Sexual Side Effects
Black Women and Hormonal Therapy Sexual Side Effects November 22, 2024 Hormonal therapy is more likely to affect physical quality of life for Black women than white women. Dr. Janeane Anderson discusses her research on the topic. In the THRIVE trial, sexual side effects caused by hormonal therapy led to lower mental…
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Diagnosed With Breast Cancer at 26
Diagnosed With Breast Cancer at 26 November 8, 2024 When cancer researcher LaShae Rolle found a lump in her breast at age 26, she didn’t think it could be cancer, but decided to have a check-up just to be safe. She’s glad she did. Being diagnosed with breast cancer at any age is frightening and unexpected. But if you’re…
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Needing another MRI
This past September I had a screening MRI (strong family history of ovarian and breast cancer, BI-RADS D breast density). It showed a "10 x 9 x 11 mm homogeneously enhancing but slightly spiculated nodule in the axillary tail of the left breast". BI-RADS 5. The radiologist recommended targeted ultrasound with possible…
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What You Need to Know About Inflammatory Breast Cancer
What You Need to Know About Inflammatory Breast Cancer October 25, 2024 Dr. Filipa Lynce discusses the symptoms and treatment of inflammatory breast cancer. Inflammatory breast cancer is a rare and aggressive type of breast cancer; only about 1% to 5% of all breast cancers diagnosed in the United States are inflammatory.…
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Newly diagnosed and in treatment can’t sleep enough yet
There is so much to know and the only one I’m trusting is the oncologist. The tests are factual but there are too many initials and I haven’t memorized what they all mean. There’s a super supportive team at the High Risk Breast Center but I don’t yet fit in. The less professional employees aspire to be in the know but they…
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1 Year appointment and stressed!!
I just had my 1 year appointment. Everything went good, however my Dr. recommended me getting an ultrasound. I have had two mammograms since my lumpectomy and the first one said post surgical changes and a seroma and the second one said no changes. However, I have a hard lump directly where the lumpectomy bed is. It is…
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Slipped Disc or something else?
I haven’t posted here in a while but, I do check in to read the posts from time to time to gain knowledge and peace. I’m very thankful for the ladies here, though I wish none of us were here. So, if I could get some of you to offer advice, prayers, or experiences I would appreciate it. So, in early October I started to…
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IBC lounge: roll call, support and just a good place to hang out
Hey all, I am starting this thread to give us a place to meet up and check in. We all know this "ain't Facebook" and since some of us have left the boards recently let's have a roll call and start fresh here. Some of the "IBC ladies" and other threads have gone a bit untended so let's see who we are: I'll go first: dx June…
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Advice on explant/DIEP surgery
I’ve had my implants for over 10 years, and lately, they’ve started feeling uncomfortable. I’ve also been dealing with some health issues, though I’m not sure if they’re related to the implants. I’m also worried about the potential risk of developing another type of cancer from the implants. Looking back, I probably…
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Treatment options scare me more than DCIS
hello! I am 49 and in October I was diagnosed with DCIS in my left breast stage 0 grade 3. Also, I had an MRI on 11/21 which was inconclusive (unbeknownst to me and my doctors I had an infection at the site of the biopsy I had on 10/15!?) but showed that I may have a lesion and something else in my right breast so I am…
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Hello new here anyone good at reading pathology?
hi everyone I had a us guided needle biopsy on Friday. I had two areas but they only biopsies the larger one. Today the results say fibroepithelial lesion with increased stromal cellularity and myxoid change they are suggesting surgery to remove both areas to make sure it is a fibroadenoma and not a phyllodes tumor. Is the…
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stress test
has anyone had to have a stress test before surgery? When my port was put in they noticed slow blood flow to my heart. Now surgeon wants a stress test done before breast surgery
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ILC Long Term Survivors
Does anybody know people, or are you someone who has survived ILC long term, (more than 5 to 10 years) without a recurrence? Please post! I was diagnosed in 2004, and think I am fine, but, as I see from the boards, you can never be 100% sure. Thanks! Nancy
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Lump in nipple of nipple sparing mastectomy
Hi! I’m wondering whether there are others who have had a nipple sparing mastectomy that developed a lump in that nipple and it wasn’t something to be concerned about? I’m two years out from surgery and have a hard lump right in that nipple. There has been some gunky white stuff that has come out too but I think that is…
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Antidepressants
Are there any Stage 3ers on an antidepressant and if so which one.
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Breast skin and scar after surgery and reconstruction
Hi I had double mastectomy and immediate reconstruction with implants two months ago. I had nipple removed so my scars are across my breast. It’s been two months but my skins over that area are still super red and stiff/hard in texture. I don’t feel anything since I had no sensation over time area. I’m wondering if that is…
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Solitary Lung Nodule
Hi friends have a question . Did anyone have an experience of having one Solitary lung nodule 5 years after cancer. I am still waiting for a biopsy.
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What do you want from your caregiver(s) after being diagnosed?
November is National Family Caregivers Month. We thought it might a good idea to share here what you might want from your caregiver(s) so they know how to best support you through your breast cancer experience. So, what are you looking for from your caregiver(s)? Information, emotional support, help with daily tasks,…
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Long term "high oncotype test" survivors
Is there any long term survivors who have had a high oncotype score. I know that this test is relatively new but I also know that it has been on the market at least 4 years. So I know that "long term" regarding this test isn't very long term. I had it done 3 years and 4 months ago. My oncotype score was 52. My onc told me…