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Letrozole vs Exemestane
has anyone switched from exemestane and noticed relief from some of the side effects of letrozole?
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Asking For Help on Information about what I'm going through thank you Lynn
asking I went for a follow up 3D mamagram and very hurtful sonagram and afterwards was told they found a small spot in My left breast and to come back in six months I didn't like hearing that at all to wait to see if it grows I'd like it out immediately the doctor I went to afterwards didn't seem to think waiting was just…
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Just diagnosed, what can I expect?
I'm 48 and got the results back a few days ago…2.2 cm tumor left side ER+ PR+ HER- ki67 20.6% with atleast one confirmed positive node. I’m seeing the surgeon in a few days to discuss treatment. There is so much information and i don’t even know what questions to ask. My first grandbaby is due in a few weeks, I love my job…
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Hematoma and infection from mri core biopsy
I had a mri core biopsy 3.5 weeks ago, they took 12 core samples from a 2.6 cm linear nonmass enhancement found on mri. The biospy numbing was very painful because of the retroareolar area being the target. I had lots of bleeding and had to wear a compression wrap home, instead of a bra. I developed a large hematoma but…
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New primary diagnosis
I was unsure about where to post this, since I have a few questions that probably overlap with other groups—probably an atypical scenario. Was just diagnosed with invasive lobular cancer at the scar site of a previous lumpectomy (8 years ago) for tubular cancer—a rare and non-aggressive subtype. Pathology report also…
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Just scared
Hello all. I haven't posted in quite a while. In October 2025 I celebrated my 5 year cancerversary. On May 1,, 2026 I was in the ER for a completely different reason, and had a CT scan with contrast of my thorax. The results from the radiologist took longer than the ER docs expected. When they came back in to talk…
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Triple positive grade 3, stage 3A
I just recently finished surgery and pathology. Imaging showed a complete response. But then path comes back as RCB 3! I had 2 nodes with extranodal extention and now have to go back for alnd. What the heck 😭 I need encouragement and maybe long term survivor stories. I’m 43 w 3 small daughters.
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TRIPLE POSITIVE GROUP
This is primarily for people who find themselves with THREE +'s by their diagnosis. If you are new to breast cancer, please click on the link below and read. It is "What I Wish I Knew At the Beginning of Treatment." http://community.breastcancer.org/forum/6/topic/797454
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eye (ocular) metastasis - a rare location for metastatic breast cancer
Three weeks ago I thought I might have a retinal tear when I woke up one morning with bright flashes in my eye. But my optometrist saw something different. Long story short he referred me to an ocular oncologist and she diagnosed me with breast cancer eye metastasis after almost 9 years NED. It's a rare location (only…
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Tumor Marker
hi all – new here. I am HR positive her2- with one met to my bone. I had chemo, double mastectomy, radiation to my bone and chest/ breast and my ovaries removed. I am on letrozole and have done 1.5 cycles of kisqali. On a break bc of numbers. I started getting g my markers checked in January 1x a month and they are below.…
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Upgraded post-lumpectomy to IDC
I am new to this forum and want to share my experience so far at this very early stage. I went in for surgery in mid-April for a lumpectomy / excisional biopsy) of what was previously diagnosed per biopsy as ADH (atypical ductal hyperplasia) which is a benign condition. Pathology of removed tumor upgraded me to IDC ( ER+/…
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What Do You Wish You’d Known Earlier in Your Breast Cancer Journey?
We’ve all had those “I wish someone had told me…” moments — whether it was about treatment, emotional health, relationships, body image, or navigating the healthcare system. What’s something you learned along the way that you wish you’d known earlier?
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Anastrozole
Any advice on best time of day to Anastrozole. Also wondering how much Herceptin infusions play into general tiredness & anxiety or is it lingering side effects from chemo & radiation. Could it also be all-of-the-above?!!
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I worried because I got a ct iv iodine dye for clots and suspect breast cancer and red flag and the
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Stage 3A
Diagnosed with big 7.5 tumor, lymph nodes involved. ER+PR+HER2- just finished AC chemo, did one taxol 11 weeks to go. I know I have a long road ahead, and I’m very frightened!! Any positive stories out there
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Stage III Cancer Survivors ...Five + Years and Out.
A place to post hope for those who are stage 3. Please posts your stories of HOPE for those just starting this journey.
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Has anyone with Her2+++ achieved pCR before surgery using only paclitaxel and Phesgo?
Hello from Tokyo. I am currently undergoing treatment for Her2+++(ER+1%) The preoperative regimen is 12 doses of weekly paclitaxel and 4 doses of Phesgo every 3 weeks, and if the tumor does not disappear, EC will be added. I searched on X and found that there was one woman in Osaka,Japan who underwent a clinical trial of…
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Aesthetic Flat Closure
I had surgery 1/14/26. I think my posture has changed or something because my ribs kind of flare out. I’m not sure if this happens to everyone- I think it is pretty common? Another change is I’ve had pretty radical mood swings and my period has been erratic since my surgery. Anyone else live through feeling crazy after…
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No reconstruction
I chose to go "flat" and have both breasts removed, but I blead to much and my cancer obliterated my left breast. She took four hours on just my left breast. Of course I was asleep but my family was very worried because it was taking so long. The surgery was my greatest fear besides death in this whole thing. I worries…
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Newly Dx: IDC 7mm, Grade I, ER/PR + (100% 3+ intensity for both), HER2 negative, Ki-67: 16%
Right Breast, 9:00, posterior depth 8cmfn. Hate that I'm here, but so thankful for a place to go. So far, prognosis seems good based on what we know right now (still need MRI, awaiting genetic testing, don't know staging, etc.). I met with 2 different surgeons in DFW are this week. Both said similar things and both seem to…
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Stage III Cancer Survivors...15+ years and out
Let's just see what happens here...This is a "build it and they will come" experiment. It's time. If you are not a 15 year survivor but know the story of someone who is, please join in.
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Newly diagnosed stage 1 Invasive Ductal Carcinoma
Trying to decide between lumpectomy and radiation or bilateral mastectomy. Want to hear from some who have gone through each
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Triple-Negative Breast Cancer Treatment: Where Are We?
Triple-Negative Breast Cancer Treatment: Where Are We? Dr. Lisa Carey explains the latest research on TNBC treatments. Mar 7, 2025 About 10% to 15% of breast cancers are triple-negative. This means they don’t have receptors for the hormones estrogen or progesterone, and don’t have too many HER2 proteins. So, hormonal…
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Poll: What part of your breast cancer experience feels hardest to explain to others?
Some things take time to feel. Others take time to say. They show up later. In a post sent at 2 a.m. In a reply that starts with, "I didn't know anyone else felt this way." Scanxiety that sticks around even after good news. A body that feels different, whether treatment is behind you or still ongoing. Conversations with…
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BECOMING ILL DURING CHEMOTHERAPY
Hello everyone My sister has had surgery for Stage 2b HER2+++ breast cancer and has received her second course of TCHP (Total Chemotherapy).Meanwhile, she went to the doctor because she had a slight hoarseness and cough. She is on antibiotics. She feels better and has no fever, and she doesn't feel weak except for the…
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prepectoral breast implant revision - does it end the discomfort?
Hi everyone - it's been 10 years since I've been active in this community, so if you all have seen this question and answered it, sorry for the repeat! I'm having my implants replaced on June 25 and have chosen to have the new ones placed above the chest muscle instead of below it, which is what was done the first time.…
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Enhertu questions and experiences
Hello, My original diagnosis in June 2022 was Stage IB (T2N1mi) ER-93% PR-70% HER2 - (2+ by IHC 1.0 by FISH ) Ki-67-80% I did lumpectomy and breast reduction, 4 rounds of TC, and anastrozole switched to fulvestrant due to side effects. In April of 2025, my CA27-29 spiked and imaging was ordered. Signaterra negative for…
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Anylink between tumor markers and covid vaccine?
Assuming that your tumor markers (Ca27.29, Ca15-3) have always been correlated with imaging, after covid vaccine, does anyone experience rise in tumor markers WITHOUT correlation with increase in size of tumor from imaging? Thanks. Nguyen
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COVID and Flu May Activate Breast Cancer Cells in Lungs
COVID and Flu May Activate Breast Cancer Cells in Lungs Aug 20, 2025 People with a history of breast cancer may want to consider COVID and flu vaccinations, according to the researchers. Read more…
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DCIS Grade 2 Diagnosis
Dear Brave Pals, I had lost my Mum to Metastatic Gallbladder Cancer at the age of 60 within 2 months of no symptoms to diagnosis to farewell. So cancer is the most dreaded word in my family. Unfortunately, last month I was diagnosed with DCIS Grade 2 (with expansive Camedo Necrosis, ER/PR+ as per my Biopsy report). They…