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Invasive Breast Carcinoma ER/PR+ HER2-
I recently found out my diagnosis early this month and has been taking it hard on myself for the past few weeks. My scheduled appointment with my Surgeon/Oncologist is on May 2nd. I'm 39yo, married with 3 kids (11, 8, 5). Been taking Tamoxifen 20mg every night at 8pm since April 11th and with just a few days in i got a…
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Histotripsy for Liver Mets. Experiences, Thoughts, Knowledge, Suggestions?
I am in the process of learning about histotripsy for possible liver mets treatment. My oncologist has told me something about the process, and I've read quite a bit also. It is not yet offered at all cancer centers (mine included), so it's sometimes necessary to go to a different clinic for the procedure. Has anybody here…
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Surprises continue
I was diagnosed with invasive lobular cancer, Stage 2, on March 6,2026. A mammogram in late July was read as normal. I had an MRI, which I pleaded for as my mother, and sister both had breast cancer. Done on March 5,2026. The after noon of the MRI, I got a call, to come in the next day for an ultrasound and possible…
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Recently diagnosed. 1/27/26 IDC grade2, Stage 1A ER+
Decided on double mastectomy, having mri with contrast today, then meet again with breast & plastic surgeons on 2/19 to schedule procedure. Anxious, scared, feeling like I'm forgetting something…..just crazy
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New
I went in for my regular mammogram. It was diagnosed with papillary breast cancer. I’m having a double mastectomy April 15. And I just don’t know what to expect. They said I don’t need chemo but they’re not 100% sure until after the surgery. Or radiation. What worries me is hormone blockers as I already live in chronic…
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Blog Discussion: Next Time We Talk, Let's Do This: Name What You Need Before the Conversation
Join us to discuss this blog post. Let us know your thoughts, feelings and experiences and if anything about this post resonates with you. We value your insight! https://www.breastcancer.org/community/blog/supportive-communication Post your thoughts on this blog post below.
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Breastcancer.org Podcasts: Experts discuss research & issues
Our podcasts feature experts discussing a wide variety of breast cancer issues and the latest research on breast cancer. Check out all of Breastcancer.org's Podcasts here. In the premiere podcast, we're excited to bring you a summary of the research highlights from first day of the San Antonio Breast Cancer Symposium 2013!…
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Nerve tingling 14 years post mastectomy
It’s a little unnerving to have something new happen 14 years after my bilateral mastectomy. I have been getting off and on tingling on the side of my breast under my armpit for about a week. I’m assuming it’s nothing serious, but wth?! How does this happen so long after?! Anyone have any insight or advice.
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Heightened sensitivity to medications and worsening allergies post chemo
Hi all, I was diagnosed with a rare nerve sheath sarcoma 25 years ago. It was removed at Sloane Kettering and required no further treatment. In 2012, I was informed that I had advanced breast cancer of the left breast. Stage IIIb (9-11 cm tumor, HERII & Estr. +. I underwent a radical mastectomy of the left breast and 18…
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Anyone on TRUQAP?
Hi all, it looks like I'm going to be starting TRUQAP soon as an alternative to Piqray. However, it looks like TRUQAP and Piqray both come with some pretty nasty side-effects. I was hoping T would be easier than P. From what I've read, it sounds like Imodium AD may become my newest friend. Yuck! I was hoping for an easier…
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I'm excited and grateful
I met with my oncologist yesterday and I will be starting Taxol + Herceptin once a week for 12 weeks starting on Tuesday. I'm excited because this means that along with my lumpectomy three weeks ago, I will REALLY be starting the process of becoming cancer-free. It's going to be a loooong year, because I will stay on the…
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💛 April 2026 Chemo Check-In — Step In, Share, Be Supported 💛
Starting chemo this April? This is your moment to step in and say hello. 💛 You don’t have to carry this quietly—and you don’t have to carry it alone. This space is here for the real experience of chemo. The anticipation. The fear. The courage it takes just to show up. The logistics, the unknowns, the late-night “how am I…
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My choice--refusing treatment
Hi everyone, My post won't be too popular but I'm entitled to feel the way I do--to fight cancer or not. Im 50 and recently dx with IDC. Clinical staging is in the works but regardless of the results, I just don't care to treat it. I have my reasons, and would like to talk with others who feel similar feelings. Thanks so…
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Stage 1-2 BC TNBC
I wanted to connect with ladies in same boat as mine. I was diagonised in Nov 25 and undergoing chemotherapy currently. Surgery will take place after chemo is completed. Anyone to connect and talk ?
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Confused and Scared
Hi. I'm glad I found this forum. I just turned 63, and in mid-January, I went for my mammogram, and they told me I had 3mm calcifications that "were probably nothing." It wasn't nothing. A biopsy showed HER-2-positive cancer (negative for estrogen and progesterone). I had surgery a week ago. Invasive Ductal Carcinoma,…
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introduction and looking for people to connect with
Hey everyone! I have been in this "journey" for quite a few months now and have been feeling increasingly isolated. I was diagnosed at 25 and am currently 26 years old. I was diagnosed with invasive ductal carcinoma in the fall after a long journey to be seen properly for the lump I found. Once I was officially diagnosed,…
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Stage III Cancer Survivors........20+ years and out
I was waiting for someone else to start this…..but I guess it will be me:))))). Oh how I wish there was this thread when I was diagnosed. I had a huge tumor…8cm… with at least 17 nodes positive….some with cancer just bursting out of them….and a bit in my skin. My prognosis was poor and as I traveled from oncologist to…
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Help with Helping Mom
Hi all, My mom was diagnosed with breast cancer ER+90%, PR_70% HER-2 2+ on IHC and FISH negative in 2011. Remission in 2012; mets in her hip in 2020. She was on Ibrance for five years, and then they found fluid in her lung a few months ago. They found it after a fall where she broke her hand and bruised her leg, so they…
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Intense itching on side of reconstructed breast
I am curious if anyone else has had sudden intense itching around the reconstructed breast area. I am three years out from a LD flap reconstruction and I may have had a little tiny itching here and there, but suddenly tonight is so intense! I have no feeling on the skin in that area so scratching certainly doesn’t help.…
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Breast reduction
Hello. I had breast cancer treatment (lumpectomy, Chemo and radiotherapy) 20 years ago. For 19 years I have been very unhappy. I have one breast that is significantly larger than the other one. It is very depressing! I have brought special bras, padding, fillets etc but nothing works. Does anyone know if the NHS would…
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Advice on single or elected double mastectomy
Hi everyone, I’m 49, a mum of two young kids, and have been diagnosed with ER-positive, HER2-negative breast cancer in my right breast. It’s quite extensive, so I’m scheduled for a full mastectomy soon. My surgeon has recommended a single mastectomy, but has said they would support a bilateral mastectomy if that’s what I…
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12 Years of multiple callbacks
Twelve years ago I had spontaneous nipple discharge from my right breast. Following a mammogram, ultrasound, and biopsy, I ended up having a lumpectomy to remove an intraductal papilloma. All was good until 6 month after the surgery and the spontaneous discharge started again and continues still now, 12 years later. No…
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Hormone blockers - looking for others like me
This discussion was created from comments split from: Connect with others by creating your profile! Here's how..
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Premenopausal and Starting Tamoxifen -- Looking for an Ongoing Chat
I took my first dose of tamoxifen last night and am feeling so much dread around it. I put it off due to avoidance and confusion around the small impact that taking it has on my future recurrence rate (4% vs 8%). Looking to find peace in this journey and am wondering how others have figuratively 'swallowed the pill' of…
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Hormone Therapy - this counts as hard!
Shared with gratitude to the original author, Kylie Dahl. Expressing what so many of us feel but aren’t always able to put into words. “No one warned me that this part could hurt like hell. I’m on Herceptin and a hormone blocker, and the joint pain is relentless. Hands, hips, knees, shoulders, back, feet stiff, aching,…
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Use of Signatera testing in stable disease
I just had my latest scans, and I am still stable with my current treatment plan- Lynparza, Lupron, Xgeva. In fact, the scan said "no evidence of metastatic disease in the abdomen"- I had tumors in the liver we were monitoring. I ask my MO if there was any way to monitor molecular progression- progression before it is…
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Breast cancer and work
I was diag 3/17 tripple positive IDC with aggression my treatments are aggressive chemo. Then surgery then radiation....had 2st round chemo 4 days ago and I work as a nurse in LTC. Is this doable? Anyone experience? Im already so exhausted and afraid to work make it worse
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Realistic looking custom wigs
Bout to start treatment in the coming months. Hunting for a good, high quality, realistic looking wig. Found a couple promising ones (ie wigs by tiffani and high definition hair). Seems the one closest to what I am looking for is High Definition Hair (highdefinitionhair.com). They seem to be custom made wigs (custom…
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Ca 27-29 Tumor Markers increasing
I am freaking out! My oncologist does tumors markers as part of my regular bloodwork every 6 months or so. I have always been in a range of 12.5 to 17.5 on my CA 27-29 for the last 6 years. But my numbers have been increasing over the last 4 times (about a year and a half) from 13.6 to 20.6 on September 14. It jumped from…
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Potassium level
Just got a call that test results showed my potassium levels are high. Has anyone else had an issue with that happening? I don't think it is related to the Anastrozole or radiation treatments but it is so hard to tell what causes what, is it the cancer or something else? Hard to know how to try and fix something when you…