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Lumpectomy
Hi, I have IDC and I just had my lumpectomy. Surgery went well, the surgeon said he only took one lymph node. I do believe he also said that the tissue wasn’t enough to get a pathology report. But it looked normal when he removed it. I have my follow-up appt. Next week to find out more about the next steps. I would like to…
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What do you do for joint pain?
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Hormone Therapy - this counts as hard!
Shared with gratitude to the original author, Kylie Dahl. Expressing what so many of us feel but aren’t always able to put into words. “No one warned me that this part could hurt like hell. I’m on Herceptin and a hormone blocker, and the joint pain is relentless. Hands, hips, knees, shoulders, back, feet stiff, aching,…
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Joint pain on Trastuzamab (Kanjinti)
Hi everyone, I completed 12 weeks of Taxol + Kanjinti at the end of January. Since then I have received 2 Kanjinti infusions, and will continue with these every 3 weeks until November. I am wondering if anyone has experienced joint pain in their elbows related to this treatment? Both of mine ache, especially after sleeping…
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💛 February 2026 Chemo Check-In—This Is Your Circle 💛
If chemo begins for you this February, you don’t have to walk into it alone. This space is here so you can land somewhere soft, honest, and understanding—surrounded by people who truly know what this chapter can feel like. Come as you are. Brave, anxious, exhausted, hopeful, unsure. All of it belongs here. We invite you to…
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Seeking Advice After Being Newly Diagnosed with DCIS
Greetings y'all, I learned on Thursday that the pathologist found DCIS in two biopsy samples taken from a clumped 3.6 cm lesion in my left breast (which was discovered via a MRI scan). The radiologist was unable to biopsy an additional 0.9 cm area of nonmass enhancement noted posterior along the pectoralis muscle 1.1 cm…
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Post radiation skin reaction
I’m 3 weeks post radiation treatment. Last week, my right breast (treated area) turned bright pink and itchy. I was given a topical steroid and have seen my radiation oncologist twice this week. He’s hoping the cream will start to do its job. Next step is an oral steroid. The need to want to itch is horrible. The more I…
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Occult Primary with Lymph Node Metastases
Does anyone else out there have experience with an Occult Primary Breast Cancer? I was diagnosed this week with Breast Cancer in a Left Axillary Lymph Node but they can't find any cancer in my breast - I've had whole breast US, breast MRI, and biopsy of two small lesions in my breast that they didn't think looked like…
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Very ill newbie asks about long term use of perjeta
Hi, first I'm very sorry that these things might have been adressed already, but I am very ill with ME and after had perjeta/herceptin treatment for more than 9 years now, my body and brain feels like it is breaking down and I have a hard time thinking, searching for info etc. I'm bed bound from ME, and have been so prior…
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Dentist appointment while on Herceptin?
Hi - has anyone had a dentist appointment, while on Herceptin, Perjeta, or Phesgo? My chemo ended in April, but I'm on Phesgo until Feb. Phesgo is just injectible Herceptin plus Perjeta. I have a dentist appointment on Tuesday (checkup with cleaning). Just wondering whether anyone had any problems. Thanks!
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Losing weight
Hello Came here for some tips on losing weight. I started a diet almost a month ago and I'm struggling because I see almost nothing. It's my first attempt to diet since the diagnosis and I'm sad to see and feel how different my body is now. I don't recognise myself. I don't want to quit but i really need to see something…
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48, DCIS, IDC, ER-,PR-,HER2+
Hello, newly diagnosed 2/16 with 2 sites of DCIS in left breast, IDC of 3mm per biopsy, HER2+ and waiting for my surgical oncologist appointment 3/2. The waiting is definitely hard.
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How long does bone pain last from Neulasta injection?
I had my first TCH on Friday 12/16 and then Neulasta on Sunday 12/28. I haven't had too many side effects except pain in my hips and lower back that is not relieved by Ibuprofen and Tylenol. I have chronic pain in those 2 areas anyway and usuallytake 1/2 dose NyQuil to sleep. This pain is much worse and just throbs…
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Before
will see Radiation Oncology in a couple weeks. Ny dr did say it would be the next step in my evaluation for treatment if necessary
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Just diagnosed with ILC
I was just diagnosed, and I'm meeting with my surgeon today. what questions should I be asking and what else should I be thinking about. Thats probably a very big question, it all feels very overwhelming. I just found this site yesterday, any other sites I should visit? thank you for your help.
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Starting my 24th year of MBC de novo!
Yay! Today is the start of my 24th year after my dx of Stage 4 MBC de novo. Still hanging in here! Here's my history.....Dx’d in December, 2002. ER+, Pr-, Her2+++ Metaplastic BC. Had A/C & Taxotere. Left side was DCIS and Her2+++, but right side was tubular and Her2-.In 2004 my liver was filled with tumors. I had a liver…
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Her2 positive, ER negative ,PR negative
I am interested to hear from folks who have this specific sub type and compare notes. I was diagnosed 6/2021 with L. Breast Ca Stage 11B, 2 positive nodes. Ki-67 90%. Had neoadjuvant TCHP x 6 July’21, double mastectomy 11/21, (tissue expanders, exchange to implants hopefully November 22) followed by Phesgo every 3 wks…
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Chemo starting April 2018
I am very new to these boards so I am not too familiar with all the terms and abbreviations but I do find the posts very helpful. I've been lurking around but have never posted anything until now. I had a mastectomy on my left breast on March 5th and reconstructive surgery at the same time. Surgery wasnt too bad and…
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Preparing for a DIEP Flap Reconstruction
Hi everyone, I'm 2 months out from DIEP Flap Reconstruction. I'm doing a delayed reconstruction on the left (had a total left mastectomy 12/24) and also getting a right mastectomy and immediate reconstruction on the right. I'd love any tips on what to have or buy to support recovery from this surgery. I understand that…
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MBC Virtual Support Groups: Register Here to Share Face-to-Face
Please join us for one of our Virtual Support Groups on Zoom -- register by clicking the links below: Do you have metastatic breast cancer (MBC; also called stage IV)? Register: Mondays at 2:00 PM EST, Tuesdays at 8:30 PM EST and Wednesdays at 4:00 PM EST Metastatic Lobular Breast Cancer Register: Third Thursday of every…
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Newly diagnosed DCIS
I just received my DCIS diagnosis on 2/20. My physician has ordered me an MRI due to punctuate calcifications seen between the two DCIS positive sites in my breast (which are 7 cm apart). Has anyone else had this?
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introduction and looking for people to connect with
Hey everyone! I have been in this "journey" for quite a few months now and have been feeling increasingly isolated. I was diagnosed at 25 and am currently 26 years old. I was diagnosed with invasive ductal carcinoma in the fall after a long journey to be seen properly for the lump I found. Once I was officially diagnosed,…
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Stage III Cancer Survivors ...Five + Years and Out.
A place to post hope for those who are stage 3. Please posts your stories of HOPE for those just starting this journey.
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De Novo Stage IV
I'm wondering if there is a topic just for de novo Stage IV. I'd like to know how people found out. Did you have symptoms that led you to the doctor for an answer? Was it found out of the blue when you had another issue and how was it found? Are there others like me who have never shown it in your breast but only where it…
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Aromatase Inhibitors and GERD?
Hello friends, Has anyone dealt with reflux or GERD while taking AI’s? If so, have you used medication to deal with it and what was the result? (I’m on my second AI, so that’s 2 1/2 years with severe reflux. Working with a gastroenterologist now to manage the reflux and try to stay on Exemestane for a few more years.)…
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Cancer Free!
I found 2 lumps in my breast in Jan. 2026, ( Mamo of last yr. did not pick them up) My Dr. worked fast, got me into a surgeon in Lewiston, Id. I have Metastic Breast Disease, surgery on Feb. 5th. Removing 1 Breast, yesterday follow up, to find I am " cancer free." The Surgeon removed 6 lymph nodes, 3 under my arm, 3 from…
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Hello out there!
Hi, I'm looking to connect with other women in their 40's. I'm 46, was diagnosed with ER/PR +, HER2- IDC in 2022. I've been looking through the threads but I can't find anything that is recent. Thanks so much!
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Fearful of Gadolinium Breast MRI
Hello, My dr. wants me to get a breast MRI which uses gadolinium. I am very afraid of this as my dad had a cardiac arrest during contrast and also in addition to BC in my family there's a lot of Parkinsons. I also have autoimmune issues! Basically…I don't need any more problems. The dr will not allow me to have it without…
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Tiffany`s Twenty Terrific Tips for TC
I just wanted to share with everyone my tips for getting through TC chemo, which I think helped me a lot. My only symptoms were a touch of nausea on days 3-4, a bit of diarrhea, constipation, dry mouth, and fatigue. I never got sick. 1. During chemo and for several days afterwards, drink a LOT of water. I drank 3 liters a…
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LCIS - BC in family -- NIGHTLY HOT FLASHES & PALPITATIONS - Can't sleep - MISERABLE & CONFUSED
Hello, I am 61 and have been in menopause one decade. I lost my dear sister to BC at age 42. About 10 years ago I had a surgical biopsy that said LCIS. Since then normal mammos but dense breasts. I have waited for these symptoms to "pass" but now it's pretty clear they never will. My nightly routine is horrible…