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Plant-Based & Vegan - support & recipes
This is going to be a thread for people interested in plant-based diets* or becoming vegan*. Whether it's just a meal or an entire lifestyle, whether you're already there or are just curious and considering how to increase plants in your diets, you're welcome here. If you have a nutritional requirement that you would like…
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Elacestrant (ORSERDU)
Starting this topic to share info about the new medication elacestrant. Elacestrant (ORSERDU) was recently FDA approved for ER+/HER2- MBC for patients with the ESR1 mutation. Just before it was FDA approved, I was able to obtain the drug through an expanded access program (thanks to WeninWI for the info!). The expanded…
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Elacestrant/Orserdu
1QT.2024 My TM CA-15-3 went up. I am very nervous. I just started Elacestrant its my 2nd week and i am getting mixed messages here about that it causes spikes in tumormarkers activity for some patients and not so much for others. I was taken off my previous meds Kisqali+Letrozole on Jan 5th after PET scan that showed new…
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Watch: 2 New Videos to Get Started
An overview of the new discussion forums: How to access and edit your Profile, add and edit your Post Signature, and adding your Avatar We hope this helps!! —Your Mods
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Anyone in the Bay Area?
Hi everyone, I’m 30 and recently diagnosed with breast cancer. I desperately need community that understands what this is like. I have a wonderful support system that I’m beyond grateful for, but I’m hoping to meet people in my area that can relate to this on a personal level. Sending everyone warm hugs.
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Hypersensitive skin/nerves after mastectomy
Hi, I am new to the forum, so I apologize if the question has been asked and answered in the past. I had a double mastectomy 7 weeks ago (no recon) and the second week after it I started experiencing a strange kind of pain in the upper chest area and armpits. It feels like a bad sunburn being rubbed over with sandpaper. It…
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Has anyone gotten the newer Mentor Boost implants?
I am ready for a 10-year implant exchange surgery and my PS is recommending the newer Mentor Boost implants that came out in 2022. Does anyone have these? What are your thoughts? Are they too firm to feel natural?
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When positive thinking doesn't work !
I am two weeks post surgery and I know I am incredibly lucky - with cancer diagnosed very early, isolated to one breast and nothing in the lymph nodes, I am counting my blessings every day. Up to now I have managed to remain positive, positive thinking, healthy diets, entertaining an endless stream of visitors and…
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HORMONES
I had breast cancer in 2011 and had double mastectomy and completed chemo in 2012. Several years after I had to go back taking compounded Progesterone and Estrogen because I had so many issues physically and emotionally since getting medically put in Menopause at the age of 40 in 2011 and now I'm 53 yrs old. I also take…
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Different regimens
hi just had my 2nd cycle of phesgo with docetaxal I’m her2 positive and oestrogen positive - for 4 cycles of phesgo and then 4 of EC then surgery. Just wondered if anyone had been down the same path and what I can expect? So far cold cap not saved my hair but been advised to keep going as helps regrowth?
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Impostor Syndrome anyone??
So I started my breast cancer journey just 3 months ago. I went for my first mammogram and within 1 month I was diagnosed with Breast Cancer. Despite my diagnosis, I must say that I have been blessed. The size of my tumor wasn't too big, grade 1 with no genetic mutations found in my genetic testing. A low-ish Oncotype…
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Osteoporosis and Tamoxifen
I am wondering if there is anyone out there who has been taking Tamoxifen and has been diagnosed with Osteoporosis. I am 48 and just had a DEXA scan, and it confirms Osteoporosis. :( My oncologist said that typically it shouldn't cause issues in pre-menopausal women, but there are some paradoxical instances where it does!…
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Medication to diminish/remove distress
Hi, I am not searching the answer to my query which may be somewhere here - forgive me, my eyesight is not good for it. what is the most correct one to use -please note that my distress is coming from progressive loss of hearing ,limitations on movement, progressive loss of vision ,speech, eating, drinking, body not…
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ROLL CALL ---- High risk oncodx and chose no chemotherapy
Just trying to find out if the following: (People with hisk oncodx and no chemo) Oncodx number Number of years NED
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Focal Asymmetry
Hello! My recent mammogram showed focal asymmetry on my left breast, something that has not been present in prior mammograms. Has anyone else had this and what should I expect if anything? I have a follow up mammogram of the left breast and ultrasound.
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CT and Lung Nodules
I cannot find my previous thread, but this is my newest CT scan. So far I have had them in November, January, April, and today. I had a PET in November that lit up on a couple of spots in my left lung and three level 2 cervical nodes. Currently on a watch and see. Anyone have some information on this newest scan? Not…
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Time to replace implants
Hi all, I haven't been on here for a very long time! I have a few questions regarding having to replace silicone implants and whether to go with saline or silicone this time aroung. I recently saw my PS and since one of my current implants (silicone) is 10.5 years old, he is recommending replacing both soon. I have been…
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Recurrence and Now Down the Rabbit Hole
I was dx in 2011 with IDC ER+PR+Her2-. It was in the left breast around 1.2cm. I had a lumpectomy, chemo (TCx4) and rads. I couldn't tolerate Tamoxifen so I took Aspirin each day as the theory back then was it could keep inflammation down and possibly ER+ away. So here I am 13 years later and my mammo showed I now have 2…
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Starting Chemo July and August 2024 Support Thread
Join us here to support one another, share experiences, and ask questions. We're all here for you. What is the type of chemo and regimen you'll be doing? When do you start? Share your thoughts and get support!
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Itching after biopsy this morning
Silly question probably - I had ultrasound guided biopsy this morning. It’s been six hours. Not much pain but my nipple is itching like crazy. The biopsy was 3 cm away from the nipple. Is this normal? The aftercare instructions didn’t say anything about itching. I had an mri guided biopsy and a stereotactic biopsy and…
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Family History. Doctors not taking me seriously
Hi I'm Dani and I'm new here. I've never posted on a forum before so I guess this really feels like a last resort for me. I've had obsessive thoughts about getting breast cancer ever since I learnt of my alarming family history 5 years ago. I am currently 25 and after being in and out of therapy over this I don't want it…
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Mammogram results
My mom had breast cancer in her 40s. Had genetic testing which was neg. I had my first mammogram 2.5 years ago (before age 40) bc of that. No evidence of cancer. But extremely dense tissue noted. Followup at age 40. Fast forward to this past week. I am now 40. So had my second one. This report, my density was changed to…
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Stupid comments ....
I will soon go for more surgery on Feb 27th, admitting diagnosis " undefined probable malignancy left breast" Once again I had to bear stupid comments as in the first time I was diagnosed. Stupid comment 1 " Oh we all have cancer cells and have concerns " I wanted to say 'Ok you take my daily cancer concerns and I'll take…
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Aromatase inhibitors
Hi I am post lumpectomy, micro metastasis in 1 removed lymph node and now faced with the far more daunting ( to me) prospect of taking letrazole oestrogen inhibitor. Does anyone have anything positive to say about them? All I hear is the negative side effects. Others experience would be very welcome. I’m 61, normal weight,…
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Weird…Mark? On left breast
Hi, I’m 31 years old and for around six months maybe a bit more, I’ve had this weird, um well I don’t know what to call it really…a mark? On my left breast, sort of underneath it but not right underneath. It was small and blue/purple to start off with and I saw a a dr about 4 months ago and she didn’t really know and just…
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Sacituzumab Govitecan (Trodelvy)
Hello everyone. I was wondering if anyone(s) could share any experiences they have had using sacituzumab govitecan (Trodelvy) either in a clinical trial or as recently approved by the FDA. We are trying to determine if it's the best plan of action for my wife at this time. There are 2 key things we are trying to determine.…
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NorCal Kaiser Dr Rec??
Hi. I was diagnosed last week with DCIS and I am feeling pretty overwhelmed. I need a mastectomy and I am considering an asthetic flat closure. Does anyone have any experience with a good Kaiser surgeon & plastic surgeon? I’m in the SF Bay Area so I can travel to any nearby Kaiser. I just don’t know which Kaiser has the…
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Waiting for her 2 result
Hi. I was newly diagnosed with invasive ductal carcinoma left breast lower inner quadrant . It took a while for me to seek care as my presentation was unusual. I initially felt pain to left of sternum a year ago but did not feel a lump. I had had a normal physical and mammogram last fall. (I never read my mammogram report…
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Any chance that 1cm spiculated mass (bi-rads 4c) be postoperative scarring, or fat necrosis?
mamma :1cm spiculated mass seen at 10 o'clock, 3cm from nipple ultrasound: 1.0 x 1.0 x 0.9 cm round, hypoechoic mass at 10 o'clock, 3cm 4c was given, and biopsy is scheduled. I had a biopsy 2021 at 10 o'clock, 5cm for a 1.3 cm mass which turned out to be fibroadenoma. I was over-poked during the biopsy as I can see from…
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Repeated Ki67 and result is shocking
my first ki-67 is + in 35% of the cells I had to change hospital because my first hospital refused to give treatment and suggested just surveillance The second hospital asked to repeat the test on all the tissue and all the results were pretty similar except for ki-67 Second test Ki-67 is + in 90% of the cells I am so…