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Zoom Meet-Up Bonded by Breast Cancer: Place to Keep Chatting
Hey Everyone, Here is a place to keep sharing between meetups. Warmly, The Mods
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Have you experienced PTS or PTSD following a breast cancer diagnosis?
Please share below your experiences with PTS (post-traumatic stress) or PTSD (post-traumatic stress disorder). How has this affected your life, the way you feel, your relationships, activities? And how are you managing?
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Just diagnosed, feeling shocked, anxious, lost
Hello, I've been on this forum for the last several days and just joined today as my GP advised me this afternoon that my biopsy results came back confirming breast cancer. I don't have much info other than the size of lump which is 3.75cm x 2.75 cm x 2.75 cm. Feeling all over the place with this diagnoses and also kicking…
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Diagnosed with LCIS and ALH on the right breast and ADH on the left
Diagnosed with LCIS and ALH on the right breast (affected area: 10cm8cm5cm) and ADH on the left breast. Lots of lumps on both breast. One surgeon suggest excisional biopsy for both affected area. It will include removal of part of affected area of right breast. Second surgeon said I can consider bilateral mastectomy with…
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Herceptin - Quick Side Effects Poll
Hi, This is a quick & easy resource for the people who are going to begin Herceptin and the people already on Herceptin. If you are looking for what others have experienced, this is the place. If you are DONE with chemo (or else the side effects are too tangled), please briefly list your Herceptin side effects and state…
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Estradiol levels not dropping
I had a total hysterectomy and was on bio-identical hormone therapy (pellets) for over 10 years. I was diagnosed with breast cancer last year. I had a lumpectomy with a lymph node dissection and radiation. I'm now seeing a medical oncologist and he has me on 20 mg of Tamoxifen until my estradiol levels decrease and then…
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Stage IV NED crew : lets support each other
Well, I'm now a stage four NED girl, and would like to connect with other stage four people who are also in remission. Could this be a thread for supporting us all through the complex world of stage four remission, check ups and routine scans, anxiety, side effects, ongoing treatment, expectations from family and…
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Honoring Our Caregivers: Share your appreciation!
In the U.S., November is National Family Caregivers Month. We're taking a moment to recognize those friends, family, and loved ones who provide us support. Share your caregiver story, praise, or tips for caregivers here. This will help caregivers know they aren't alone, to honor them, and provide them some helpful insight…
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De Novo Stage IV
I'm wondering if there is a topic just for de novo Stage IV. I'd like to know how people found out. Did you have symptoms that led you to the doctor for an answer? Was it found out of the blue when you had another issue and how was it found? Are there others like me who have never shown it in your breast but only where it…
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Excisional Breast Biopsy
Hello there. This is all so new and overwhelming, but reading your stories is so moving and inspirational. I had an abnormal yearly mammogram in February with follow-up scans, an ultrasound, and a core needle biopsy in September. They were unable to obtain microcalcifications needed for testing after retrieving 15 tissue…
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Starting radiation October 2025? Let's support each other!
Are you scheduled to start radiation soon? Let's make a space where we can encourage each other who are traveling radiation road together — share experiences, get tips, ask questions and get answers from those who've "been there." We encourage you to share your diagnosis, any previous treatment you've had, and your…
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Capivasertib and fulvestrant injection
Hi All, just about to start this treatment and was wondering if there is anyone already on this combo and could share their experience with me. Thanks in advance 😊
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Poll: How does Breast Cancer Awareness Month make you feel?
Select the answer below that best matches your emotions and expand your thoughts in the thread below.
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nerve pain in first few weeks after recovery
Hi there! Sorry this is going to be longg… TLDR: OWWWWWWWI!!! I had lumpectomy and breast reduction on both sides on 10/9. I've ben having nerve pain which feels like a pretty bad sunburn in most places and in a couple spots like an itch. (at one point it covered my whole chest & upper abdomen down to a few inches above…
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ELAINE 3 trial
just wanted to share with all those who have ESR1 mutation a comment from one participant. Looks like it’s working so there is hope for an approval. This is from a different site and a patient named Irit. Hi everyone, I promised an update on the clinical trial I participate in since March 2024, so here it is. The trial is…
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Letrozole and osteoporosis
hi. I have osteoporosis due to letrozole. The bone loss is severe and my doc is concidering injection instead of risedronate pills that I am taking now to fight osteoporosis more effectively. I am 5 years out. Why if I reduce the letrozole dosage from every day to every two days? Anyone did this or any of your oncologists…
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Tampa Bay, FL BC Survivors
Would love to find sister support in my community who understand the struggles of trying to "go back to normal" after treatment
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Taxotere vs. 12 Weekly vs. 4 Biweekly Taxol: Advice from Those Who’ve Been There?
Dear all, I’d really appreciate your insights as I’m struggling to make a decision on how to continue. I’ve had a bumpy start with neoadjuvant chemo and have now completed 2 of 4 EC cycles. I’m hormone-positive, HER2-negative, with IDC grade 3. After EC, I’ll move on to either Taxol or Taxotere. A second-opinion oncologist…
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Long term "high oncotype test" survivors
Is there any long term survivors who have had a high oncotype score. I know that this test is relatively new but I also know that it has been on the market at least 4 years. So I know that "long term" regarding this test isn't very long term. I had it done 3 years and 4 months ago. My oncotype score was 52. My onc told me…
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Treatment plan
Hello! I'm 56 yrs old and found my lump a year ago. It appeared almost overnight and I assumed it was a cyst or a byproduct of the life long fibrocystic disease I had growing up. Finally broke down and had it checked. Invasive Ductal Carcinoma, Stage 2, Grade 3, Estrogen positive, Her2 positive. I am scheduled for a…
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Reoccurrence
I 42 was diagnosed in 2018 with Estrogen and Progesterone positive breast cancer, Her2 negative. Back in July I was told I had pneumonia kept going back for cheat x-rays, and had a CT in July that didn't say anything about a reoccurrence. I went to the ER because I was having pain in my leg and the week before it was pain…
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Stage III Cancer Survivors........20+ years and out
I was waiting for someone else to start this…..but I guess it will be me:))))). Oh how I wish there was this thread when I was diagnosed. I had a huge tumor…8cm… with at least 17 nodes positive….some with cancer just bursting out of them….and a bit in my skin. My prognosis was poor and as I traveled from oncologist to…
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Long term survivor examples.
Just an idea came across my mind. Can we share stories and examples of long term triple negative survivors. They dont participate in such forums. So its only by word of mouth that we get to hear about them. But I also see few of them in this website, who themselves are long term survivors. I feel so happy to see how they…
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Thin Slices of Joy
I finished active treatment less than a month ago, and wow, you just don't bounce right back up. Before all this started I have had sciatica for a couple of years, and it worsened during treatment. In trying to recover from both, I've been feeling frustrated. Now, I'm tired of the pain, fatigue, and frustration. Oh, and…
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Second DCIS, same breast, strong family history -- remove one breast or both?
I had DCIS 18 years ago, treated with lumpectomy and radiation; I was 41 and premenopausal at diagnosis. I tried Tamoxifen but stopped after 6 weeks because I couldn't tolerate it. Now I have DCIS again, same breast. My sister was diagnosed with advanced invasive breast cancer at 39. I tested as BRCA negative 18 years ago.…
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Can you say “no” to chemo?
it’s been a whirlwind since I was diagnosed with breast cancer. After the lumpectomy they said it was stage 2a with 2 lymph nodes affected, which they removed. I had a cat scan afterwards with a slightly suspicious node nearby. I had been told that I would have radiation for 4 weeks followed by hormone blockers for 5 years…
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2 Word Phrase Game
This game has the poster making a new 2 word phrase starting with the second word of the last post. Only Two Words! Now let's begin the game~ Age Old
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Calling all TNs
I think that we tn's need to have a sign up list like some of the other threads have...maybe put your age, and also what treatment you have had or are now having. What to do you think? I can start: age 50, diagnosed at age 49 1/2, lumpectomy, 4 AC Dose dense (every two weeks) and 4 Taxol, Dose Dense every 2 weeks. 35 rads…
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Starting Chemo September 2019
Hi All, I haven't seen a September 2019 chemo thread so I thought I'd start one. I am scheduled for my first treatment on Wednesday 9/4/19. I will be having Cytoxan and Taxotere every 3 weeks for 4 cycles. Tracy ------------------------------------ 8/28/19 - Snaffle53 - AC+T 9/4/19 - tmh0921 - TC 9/4/19 - Ryanrose - AC+T…
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Benign papillomas after biopsy
Im postmenopausal. Biopsy for palpable lump was benign papilloma. I never had a papilloma before. I have extreme dense breasts. I have to have lumpectomy to confirm benign. I was considering having double mastectomy even if benign. What are your thoughts please?