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SBRT vs. Histrotripsy for Liver Mets
Hello, I am weighing the options of treating my liver mets with either histotripsy or SBRT. I am in communication with 2 different physicians, one who treats with histotripsy and the other with SBRT. The physician that uses histotripsy is still in the process of reviewing my images, and is expected to contact me soon as to…
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Post Masectomy Pain After Emptying Drains
After single masectomy (right) surgery a single drain was put in a has to be emptied throughout the day. After emptying, there is pain radiating side to side, which seems to be from the drain vacuum pressure when it's empty. Any recommendations for pain management? we are Taking pain medication as prescribed Emptying drain…
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DCIS
has anyone refused taking hormones after surgery and radiation with dcis nuclear grade 3
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DCIS Grade 2. Anyone told to skip hormone blockers?
I was diagnosed with a wide span of DCIS, Grade 2. I had a lumpectomy and reconstruction on my right breast and a reduction on my left, clear margins, no invasive detected. My oncologist recommends I do radiation but no hormone therapy. He feels it is not needed and will not change my long-term outcome. I am wondering if…
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Shattered- Failed Re excision
My re excision report shows 18 mm of DCIS on inferior margins.The surgeon said he cant do third re excision as doing it means taking whole breast tissue and it will be as good as mastectomy .He said that his experience says that there is a lot DCIS around .Already he has taken a 9 cm wide margins Mastectomy was not what I…
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Just diagnosed with ILC mets
Hi, all I had ILC back in 2008. Had radical mastectomy on the right breast and prophylactic on the left. Chemo AC→T, radiation and 7 years of Arimidex. 16 years later I am back in the game. Still in discovery phase. Had FDG Pet Scan that shows liver uptake, had endoscopy that shows little spot in the stomach consistent…
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Lost my job...am I being selfish?
I started a new job and then was diagnosed with stage1 breast cancer. I had a lumpectomy and oncoplastic reduction, and weeks of radiation still to do. My employer let me go a week after the reduction because I wasn't sure when I could return to full capacity. It's a small company. I guess I'm looking for insight and…
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MBC to the bones
Hello 🙂 My mother today was diagnosed with MBC to her spine and hips. I read on the web that life expectancy is 19 to 25 months. Is that true? Sounds so little. I read some of your stories and I see that many of you have already live much longer. My mother soon will be 76. I love her so much, and she is so though and…
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Scared, has this happened to anyone?
So here's my story. Back in July of 2024 I thought felt a lump in my breast. For about 2 years every month when I started my period I would feel a large lump but it would go away after my perky. When I went to the gynecologist he felt around but didn't feel anything, but he wanted to be sure so he sent me for a mammogram.…
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Newly diagnosed stage IV
I am newly diagnosed. I am also a year into a systemic sclerosis/scleroderma diagnosis. Looking to connect. I am angry and in denial after the past five years of fighting diseases to now be diagnosed with this.
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adriamycin heart damage
Hello, Just dx with heart damage due to adriamycin use in 2005. I was dx with Stage 1 bc, ER-PR- Her2+++. Had lumpectomy, chemo ACT then 10 months of Herceptin (had to stop twice due to low muga scores). Radiation. Had genetic testing Pos Braca 1 so had bilateral overies removed then bilateral mastectomy with silicone…
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Discovering Asexuality
After starting Tamoxifen and now Anastrozole, my sex drive dwindled to a flicker. Even before my mastectomy, we were having challenges with sex. After delivering my second child as a VBAC, sex was very painful except for a limited few positions. Turned out, my uterus was prolapsing, which put my cervix at a bad angle for…
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carnivore diet
Hello I just wonder if anyone from you is or was on a carnivore diet before, during or after the breast cancer diagnosis. I would like to hear from you. Ata
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Family History. Doctors not taking me seriously
Hi I'm Dani and I'm new here. I've never posted on a forum before so I guess this really feels like a last resort for me. I've had obsessive thoughts about getting breast cancer ever since I learnt of my alarming family history 5 years ago. I am currently 25 and after being in and out of therapy over this I don't want it…
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Letrozole effectiveness long term
I just posted on another thread that, after 14 years since initial diagnosis, I now have a single suspicious supraclavicular lymph node diagnosed on annual ultrasound. I have been taking Letrozole daily since 2011 up until about a month or two ago. I just became lazy taking several meds. I am wondering if this new finding…
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Abnormal lymph node above collarbone
Hello all I initially was treated for stage 2 ILC in 2010 and have been attending followup scans and doctor visits once or more times each year since then. I have also been taking Letrozole faithfully up until a month or two ago when I started to become lazy about taking it. Today, I had my annual breast imaging and my…
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Pulsatile tinnitus
Hello! Anyone experienced issues with hearing your heartbeat in your ears or pulsatile tinnitus? I’m 4 years post chemo & radiation & on tamoxifen. Curious if any connection to past treatments or tamoxifen.
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Camizestrant CAMBRIA 1 Clinical trial
Hello, Has anyone gotten any information on this trial or are participating in it? I have been reading up on it and have just found out through my oncology center that I can participate. Here's some information on it: CAMBRIA-1: A Phase III, Open-Label, Randomised Study to Assess the Efficacy and Safety of Extended Therapy…
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Moved: DCIS removed but... gene mutations... now what and family thinks I should be happy
This discussion has been moved.
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DCIS removed but... gene mutations... now what and family thinks I should be happy
Diagnosed with DCIS (ER+/PR+) in Sept. Had it removed in Oct. Doc talked abt possible radiation and/or hormones even though I'm one of the "lucky" ones- HA! Now I'm positive for CHEK2 and RAD51C w a family history of ovarian and colon cancer (1 + 1). Waiting to hear back from gyn to screen for ovarian cx and sons need to…
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Information on GATA 3+ Cancer
Hello Friends, Thank you for accepting me in the group. I am ER+, HER2+ and GATA3 +. I was recently diagnosed (December 12, 2022) with Stage 4 Breast cancer with metastasis to Bones, lymph nodes and spleen. My chemotherapy regimen includes Trastuzumab(once every 3 weeks), Paclitaxel (every week) and Zoledronic acid (every…
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Ovarian Suppression and AI
Hi! How much more effective is ovarian suppression plus anastrazole compared to just tamoxifen alone in preventing recurrences in premenopausal women?
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Single Hormone Receptor Positive -> ER+/PR-/HER2-
Anyone else in this same boat? Would love input or sharing your experience. Feeling a little alone in this boat!
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Moved: Stage 1a to Stage 4 in 6 years. 39 yo. Mets to liver & bone. Chek2+
This discussion has been moved.
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Hormone therapy resistant
Hi! I was diagnosed with bc at 62, had a lumpectomy and radiation and am now 63. Currently I'm having a hard time moving forward with hormone therapy. My MO is prescribing Anastrozole for five years but I am worried about the many side effects, especially weak bones I had a bone density test six months ago and I have some…
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What do you find most difficult about caregiving?
November is National Family Caregivers Month. We'd like to take a moment to acknowledge the challenges our caregivers face and show them some support. As a caregiver, can you share with us what you find most difficult about caring for a loved one with breast cancer? Take our poll and elaborate in the thread below!
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changing treatment
I was originally hoping for mastectomy of right breast for stage 2 invasive ductal carcinoma, but dince I am HER2 positive, I now have to have chemo before surgery. Anyone else been down this road? How long was chemo?
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Reclast iv ordered for osteopenia.
Has anyone experienced any major side effects and how long do they last?
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November 2024 Surgery Support Thread
Please gather here to get and give support. Feel free to share your type of surgery, date, and let us know how you're preparing and how you're doing post-surgery. We're all here for you!
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Women with young children
Does the fear and sadness ever get easier? I was diagnosed with stage 2 breast cancer 6 months ago, and I can't stop thinking about leaving my 2 year old daughter behind. I know there's women who have it a lot worse than me. I'm just trying to figure out how you all are so strong. I'm on anxiety medicine and sought out…