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4 Letter Word Game
Hi Ladies, It is time to add a four letter word game. I received an email of a forwarded scrabble game. The game started with a four letter word and kept changing by one letter. I like playing here much better. Get your 4 letter words ready. First word: Word
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Looking for others with low risk, less than 2cm, IDC stage 1 grade 1HR+ HER2- on endocrine therapy
Are you like me? What endocrine therapy did you follow or are you following? Pre- or perimenopausal, stage 1, grade 1, low risk, node-negative, no genetic risk, screen detected ladies, let's hear from you! What were you prescribed and how have you changed it up over your therapy? What has worked for you? I've seen four…
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Here I go again
I was originally diagnosed back in 9/2023 on my left side, 13 MM stage 1, grade 1 DCIS/IDC. Had lumpectomy with 20 sessions of radiation. Tried Lupron, which gave me hell for almost a year. Cant deal with Tamoxifen. Finally did a lot of holistic stuff and trying to live life again. Thought I was doing good and getting some…
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Elevated CA 15-3, Stage 3, without metastases
Hello everyone, July 2024 – Diagnosis: breast cancer ER+ / HER2 negative, with lymph node involvement, no metastases, stage IIIA. I had a CT, MRI, and PET-CT before starting chemotherapy. August 2024 – I started chemotherapy, but before that I measured CA 15-3, which was elevated at 74 U/ml. It increased up to 92 halfway…
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New Protocols
I am a 10 year survivor of breast cancer (stage 1a, ER/PR+, HER2+). Now my 75 year old sister has been diagnosed with stage 1a, ER+,HER2- breast cancer. She Iives in a distant state, so I cannot go with her to all of her doctor's appointments. She saw her oncologist today for the first time and was told she is most likely…
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Need help deciphering what my QT results mean.
recently I had an MRI done and there was a mass observed on my right breast, They scored it at a BIRAD 4 and it was very concerning. Not wanting to get a mammogram, due to fear of causing trauma to the affected tissue, I elected to get a QT scan done, can anyone read this and tell me what they think this means,…
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Question about Sentinel biopsy results
Hi I had my lumpectomy with Sentinel node biopsy on Nov 14 and reviewed the pathology report with my doctor today. He said 5 nodes were removed during biopsy and 2 are confirmed to have cancer >2mm. Based on this, he advised chemo is required and ALND is on the table but he is going to review with the cancer board at the…
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Long term success stories of stage 1 triple positive with THP chemo regimen
I was diagnosed with stage 1B triple positive. Just had my BMX three weeks ago. Now about to start chemo. My MO recommended THP chemo regime because it has less side effects and she said it has similar efficacy as TCHP. I know that TCHP has been the gold standard for many years with proven long term record. Just looking…
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Tamoxifen side effects
Hi, I am a 69-year-old woman and and I was diagnosed with stage Ia invasive ductal carcinoma in April of this year. I had a wide surgical excision , 19 treatments of whole breast radiation, and now I have been taking Tamoxifen , 10 mg every other day for two months. I am in a Low Tam research study, that us why the dose us…
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Back after years - lymphedema surgical resources?
Hi everyone. I was diagnosed with lymphedema I think in early 2011, so it’s been a while. I used to be on this board a lot back then. I’ve stayed active and used compression and not had much trouble with flares of swelling. My swelling never goes away completely, but it’s still soft and it’s honestly quite subtle to the…
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Community Recommendations for EXTERNAL RESOURCES (Non-Book)
ALL EXTERNAL RESOURCES (Non-Book)Below is the consolidated list, and we invite you to please add in the discussion!! 🧠 Mental Health, Coping, Wellness Calm Meditation App — https://www.calm.com/ua-homepage Project Life (Virtual Wellness House) — https://www.projectlifembc.com/ Moving with Milly (YouTube)…
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Member Recommended Books and Readings for Living with MBC!
Metastatic Breast Cancer / Treatment The Complete Guide to Breast Cancer — Trisha Greenhalgh & Liz O’Riordan Not the Breast Year of My Life — Frankie Leigh Stand By Me: A Guide to Navigating Breast Cancer as a Couple — Claudia Gilmore Living With Illness / Mental Health Radical Acceptance — Tara Brach Full Catastrophe…
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gatekeeper nurse
I had a single mastectomy in August. Since then I've had a couple of followup visits with my breast surgeon and have been seeing the plastic surgeon who will do reconstruction. The plastic surgeon is an independent one-doctor office. He has staff for appointments, etc. but he answers emails himself. And in a very timely…
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November 2025 Chemo thread - let's support one another!
Is your chemo treatment scheduled soon? Let's share experiences and lift one another up here. We encourage you to share your feelings about starting chemo, what the planned regimen is, how you're preparing, ask questions and learn what to expect from others, side effects you're experiencing and how to alleviate them, and…
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Vaginal estrogen for intercourse, testosterone supplementation for muscle mass
Hi. Previously my oncologist said we could consider vaginal estrogen after 2 years with no recurrence. I am at about 2 years 4 months now and asked if I could get vaginal estrogen prescribed, and they said no without providing a reason why. No answer. None of their suggested remedies helped. I tried ALL OF THEM. I also…
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Enhertu hair loss
I was told I’d keep my hair but it started dropping out fast. Looking back it may have helped keep more hair had I not brushed as aggressively, started modest iron supplements before iron & other numbers dropped requiring one transfusion. And switched hair products sooner. I think it would have prevented or slowed hair…
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Xeloda (Capecitabine)
Has anyone with Triple Negative Breast Cancer taken Xeloda that went through chemotherapy and then had a double mastectomy and lymph nodes removed? I am going to have radiation but, my oncologist wants me to take Xeloda but, I want to hear some feed back.
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ER-, PR-, Her2+ Roll call
Hello everyone My mom was dx in November 2010. She is in her Chemo courses and only 2 sessions left. She is so well now and is very hopefull.My little niece makes her so happy and she is planning for the ceremony of her first birthday. Since she was dx I've explored in this site in different cathegories but sisters with…
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I am grateful
I am grateful for each day God gives me. I am grateful for friends. What are you grateful for?
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Reconstruction after radiation?
Hi everyone, Back in 2022 I was diagnosed with high-grade DCIS in my right breast. I had two wide excisions but still ended up with positive margins. At that point, I could have had a third surgery or a mastectomy, but I decided instead to go with radiation and close monitoring. Since then, I’ve been having mammograms,…
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Diep flap vs Hybrid
I’m trying to make my decision for my next surgery after having my BMX a couple of months ago. I need some advice! I’m trying to decide between Diep flap vs hybrid. I’ve spoken to 2 women that had the Diep done many years ago and are very unhappy with their results. Hoping to get some more feedback about Diep and the…
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IDC - Just diagnosed from Core Biopsy - Questions for Surgeon?
Hi from Canada! This is my first post! Just diagnosed with IDC, (Grade 2 features) ER Positive, PR Positive, Negative for HER 2 Protein Overexpression by IHC (Score 1+) To be honest not sure what this all means. I have appointment with surgeon Dec. 5th. Would love to have some suggestions for what Questions I should be…
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Hello
I’ve been reading for a while and decided to join earlier in the week. I live in New Orleans , Louisiana. I, fortunately, already had a breast doctor to whom I was referred by a NP friend of mine because I have fibrocystic and dense breast. I’ve been a patient of his for almost seven years. In the beginning, I would get a…
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Revision/Corrective Reconstruction Surgery - What's Your Experience?
Please share in this thread your experiences with revision or corrective reconstruction surgery. As a reminder, we'll be hosting a webinar called Corrective Breast Reconstruction: Getting the Results You Want on July 9 at 6pm ET. You can register here:…
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Post unilateral mastectomy - recovery
I’ve read through a lot of the recovery posts, but am wondering how long (roughly) does it take before lifting heavy and doing things like vacuuming are ok after a mastectomy without reconstruction. I realise our healing is individual but would just like others timelines.
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AI twin, mega cognitive therapy, how to get enough sleep and hhoe to be happy.
I have had bc for 8 years and I’ve been fighting depression, I think it’s because my oncologist was not supportive. She sent me to psy and I tried a lot of treatments plus medication but I don’t feel good. I have been having stomach pain and am on the fodmaps diet. Today very little pain. I have depression mainly from the…
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Brain Mets Sisters
Starting this for a friend. Edited to explain that the friend was imbell who was feeling overwhelmed by wbr. She helped us all by starting this. Shes in peace now. See you in the clouds, imbell.
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Has Anyone Tried These Immunotherapy Options for Stage IV Breast Cancer?
Hi everyone, I’m Ralph , and I hope it’s okay that I jump in here. I’ve been reading the forum quietly for a while, but this is my first time actually posting. I was diagnosed with stage IV breast cancer last year it spread to a couple of bones, so things have been a bit up and down ever since. Right now I’m on hormonal…
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Planning surgery for November 2025? Join the waiting room for support.
Are you scheduled to have a lumpectomy or mastectomy in the month of November? Join us here where we support each other as we prepare for our surgeries, ask questions about what to expect, share reservations and fears, and support one another through preparation and recovery. And, we encourage others who've "been there" to…
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November had lumpectomy just had first chemo
I am a retired registered nurse. I have two younger sisters who have had breast cancer, I am just realizing my journey.