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Fat necrosis, Bi-Rad 2
hi all, DMX 9 years ago for DCIS. (2017) Been followed since then for ultrasounds every 6 months as precaution. recently felt a small, firm pea sized lump in non cancerous side. Both ultrasound and mammogram came back as Fat Necrosis. Had the breast surgeon and two radiologists look at the imaging. My question.. why NINE…
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Benign adenosis with discordant results
I have a 17mm lump in my left breast. The imaging (mammogram and ultrasound) looked highly suspicious (e.g., BIRADS 3), but the two separate biopsies only showed benign adenosis, therefore, the results are discordant. I am also experiencing nipple discharge (yellow colour). At this stage, I have declined to have a…
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Delayed Reconstruction..5 wks post up. What did he do??
Hi everyone. I am five weeks postop and due to see my surgeon this Wednesday.. I’m trying to prepare myself because what I asked for and what he did seem to be two different things. I had existing implants and decided on doing a simple explant with a lift on my good side.. on my cancer side he has done a tuck and roll with…
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Letrozole
Hi, I have been taking letrozole for 1.5 years and have decided to stop. I had stage 1 invasive ductal carcinoma. Treatment involved partial mastectomy, 20 treatments of radiation and letrozole 10 mg daily for 5 years. The hot flashes, insomnia and fatigue is really affecting my quality of life. I’m curious how many of you…
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Iron Infusion—have you had one?
Hello Friends: I had a phone appt with my MO today. We talked about my blood work. My iron deficiency panel is just not changing much. My ferritin hasn’t gone above 27. It’s 16 now. She said it should be around 100.My body isn't absorbing iron so she is ordering a iron infusion. Have any of you had iron infusions? Are…
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Contemplative practices - Affirmations, white light visualizations, healing meditations
Do you have a contemplative practice? A spiritual lifestyle ? imagery or healing meditations you like? Let’s share the love of positive affirmations and meditations. I just finished Ian Gawler's book You Can Conquer Cancer , and I was reminded how much I love self healing practices. I do white light meditations every…
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BRCA2 gene mutation of uncertain significance.
Hello everyone, I have been diagnosed with Stage 2 BC recently. Got my genetic report yesterday. I have got a finding of BRCA2 Variant of uncertain significance c.9307A>G and MSH6 VUS c.943T>A Anyone with similar mutation? I have a family history of breast cancer in mother and sister. Genetic testing not done in them.…
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Listing our BRCA mutations - maybe we can find matches
My idea is that we can use this topic to post our genetic mutation on the off chance that we can find someone else with the same mutation. I realize that this is a long shot because there are so many variations, but what the heck? I tried searching FORCE for mine with no luck. Here's my family's: BRCA2 - 2024del5
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Share your story of Genetic Testing
Dear Members, Would you be willing to share your story about genetic testing? (no pressure, only if you are inspired!) We are interested in the following questions: What led you to doing the testing? What were your results, and what choices have you made based on the findings? Was payment an issue? How have you discussed…
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Architecture distortion with benign biopsy but sent to MRI and surgeon
Hi everyone, I am new here and just went through a roller coaster with my breast exams over the past week. Hoping to get some help and support from this group. I am 38 and just finished breastfeeding my 1 yr old. I did my first mammogram last Friday and got callback for diagnostic mammogram followed by ultrasound. I was…
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Long term "high oncotype test" survivors
Is there any long term survivors who have had a high oncotype score. I know that this test is relatively new but I also know that it has been on the market at least 4 years. So I know that "long term" regarding this test isn't very long term. I had it done 3 years and 4 months ago. My oncotype score was 52. My onc told me…
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Should Phytoestrogen foods be avoided in ER+?
Hello everyone, I have been recently diagnosed with Stage 2a BC Grade 3 IDC HR+ Her2 neg. Currently I am on Letrozole. Should I avoid foods with phytoestrogens like soy, berries, flaxseeds, walnuts, dates, prunes?
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Ribociclib benefit vs risk
Hello, anyone with T2N0-Hormone positive and Her2neu negative-Grade 3 IDC- Ki67 30 pc- LVI present, please connect. If you are someone with similar profile and post menopausal (50years+) and taking Letrozole+ Ribociclib, please let me know.
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Kisqali
hello everyone, I am new to this forum and wonder if anyone can help me. I have invasive lobular cancer which had spread to my lymph glands by the time I was diagnosed, a year on and I an I have had a mastectomy, completed radiotherapy and have started taking Letrozole.. My Oncologist yesterday has offered to start me on…
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NATALEE TRIAL
My dr. wants me to join the Natalee trial which is based on the success of the Monaleesa trial for women with Stage 4 breast cancer. the drug is Kisqali (ribociclib) tablets. It was administered in 6 mg tablets for the Monaleesa trial and will be given in 4 mg for the Natalee trial. The problem I am having with it is the…
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Anyone have experience with SERDs or off-label use of weight loss drugs instead of AIs?
I've been on letrozole almost a month and, while I can pretty much deal with the hot flashes, as a primary caregiver I'm very concerned about the joint pain preventing me from assisting my mom. I've already experienced pain in my right elbow and shoulder (the C side) when helping her get to her feet; feels like the joint's…
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Anyone on Kisqali and Exemestane? SE?
Hi, all I switched to Exemestane from Letrazole due to unbearable rash with the Kisqali/Letrozole combo. But on Exemestane the skin on my palms and feet is scaling, peeling off. Any advice? Also my hair is thining. What SE do you have and how do you deal with them? Thanks
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Newly diagnosed stage 1 Invasive Ductal Carcinoma
Trying to decide between lumpectomy and radiation or bilateral mastectomy. Want to hear from some who have gone through each
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Should I find a new oncologist
I finished treatment for breast cancer 9/25. I’m still waiting to get these @#$&$#& expanders out. Radiation did a number on my skin and were waiting another month to get as much healing as possible. My issue now is that I don’t like my oncologist. I’m okay with my surgeon. Love my plastic surgeon. Don’t care at all for my…
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64 yr. Old with clear nipple discharge and scaly red patch on areola
Diagnostic Mammo and US found nothing, but was referred for breast mri. I need an mri that can be done without lying on my stomach, that is causing confusion and delay in getting the mri. I had my yearly dermatology skin check today. She noticed the red scaly red area and wants to biopsy it if it does not go away soon. I…
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Vinorelbine - the end of the line??
Hello all-I have just been recommended to move to Vinorelbine as my 9th line. My oncologist pulled me off DATROWAY due to severe SEs and told me this is one of the last drugs on the shelf for me. Not only is this a scary piece of information, but I also can’t find much online about this drug in terms of user experience.…
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Post Mastectomy Pain Syndrome (PMPS)
The purpose for this forum is to discuss the concerns of women experiencing pain several months following their mastectomy. A portion of an abstract from Pain Management Nursing, 2009, describes it this way: Chronic neuropathic pain affects between 20% and 50% of women after their breast cancer treatment. Breast cancer…
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changing from Medicare to Medicare Advantage
My medical group stopped accepting Advantage a couple of years ago. I wanted to keep my doctors so now I'm paying over $300 for a supplemental plan. I had a mastectomy several weeks ago. I'm not getting chemo or radiation so the only treatment I have left (hopefully) is possible reconstruction. I'm following up on my…
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Nipple Sparing Mastectomy with immediate reconstruction
I had a bilateral nipple sparing mastectomy with immediate reconstruction on December 15, 2009. In my research I did not find a lot of posts about this particular procedure. I wanted to start a forum for women who have had the same surgery, or who are considering this type of procedure. We could share helpful…
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Anyone on low dose Enhertu?
Hi all, I’ve completed 12 infusions of Enhertu + Perjeta for stage IV HER2-positive breast cancer. My last scan, and Signatera were negative and my tumor markers are in the normal range so I’m currently considered NEAD (no evidence of active disease). Due to side effects like ongoing weight loss and loss of appetite, I’m…
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Mammography Post-Tramatic-Stress
During my pre-surgery mammographies, all of the caregivers were gentle, thoughtful, careful, and informative in explaining what each procedure was for, including chip marker injections. I had not experienced much pain other than the expected discomfort with all mammos. September 2024 I scheduled and went for my first full…
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Differentiating side affects of "normal" life vs cancer treatment
How do you distinguish if the heartburn (or other symptoms) you are experiencing is from stress or diet related instead of treatment medication related? I am taking the lower dose of kisqali. Started with 400mg (1 cycle), and finished the second cycle last week taking 200mg. On my second day of the off week I started…
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ulcerating tumour
mother 94 , advanced Alzheimer probably stage 6 , her breast tumor has started ulcerating , 2 weeks ago first liquid now blood, she is living in a memory care center , wondering how this will evolve , prognosis etc. Does it mean metastasis? Evidently no medical intervention is wanted to prolong her life , except palliative…
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Has your relationship with patience and balance changed since your diagnosis?
As the seasons start to shift, March feels like a good time to talk about balance. Not the polished version — the lived one. Treatment and living, appointments and dinners, showing up for others when your energy is already gone. The quiet, ongoing negotiation between being a patient and being a person. Balance isn’t a…
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Caregivers: What's the most difficult part for you?
We know caregiving brings both love and exhaustion, courage and worry. What part of the caregiving experience has been the hardest for you to navigate?