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MBC Virtual Support Groups: Register Here to Share Face-to-Face
Please join us for one of our Virtual Support Groups on Zoom -- register by clicking the links below: Do you have metastatic breast cancer (MBC; also called stage IV)? Register: Mondays at 2:00 PM EST, Tuesdays at 8:30 PM EST and Wednesdays at 4:00 PM EST Metastatic Lobular Breast Cancer Register: Third Thursday of every…
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Newly diagnosed DCIS
I just received my DCIS diagnosis on 2/20. My physician has ordered me an MRI due to punctuate calcifications seen between the two DCIS positive sites in my breast (which are 7 cm apart). Has anyone else had this?
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Stage III Cancer Survivors ...Five + Years and Out.
A place to post hope for those who are stage 3. Please posts your stories of HOPE for those just starting this journey.
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De Novo Stage IV
I'm wondering if there is a topic just for de novo Stage IV. I'd like to know how people found out. Did you have symptoms that led you to the doctor for an answer? Was it found out of the blue when you had another issue and how was it found? Are there others like me who have never shown it in your breast but only where it…
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Aromatase Inhibitors and GERD?
Hello friends, Has anyone dealt with reflux or GERD while taking AI’s? If so, have you used medication to deal with it and what was the result? (I’m on my second AI, so that’s 2 1/2 years with severe reflux. Working with a gastroenterologist now to manage the reflux and try to stay on Exemestane for a few more years.)…
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Cancer Free!
I found 2 lumps in my breast in Jan. 2026, ( Mamo of last yr. did not pick them up) My Dr. worked fast, got me into a surgeon in Lewiston, Id. I have Metastic Breast Disease, surgery on Feb. 5th. Removing 1 Breast, yesterday follow up, to find I am " cancer free." The Surgeon removed 6 lymph nodes, 3 under my arm, 3 from…
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Hello out there!
Hi, I'm looking to connect with other women in their 40's. I'm 46, was diagnosed with ER/PR +, HER2- IDC in 2022. I've been looking through the threads but I can't find anything that is recent. Thanks so much!
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Fearful of Gadolinium Breast MRI
Hello, My dr. wants me to get a breast MRI which uses gadolinium. I am very afraid of this as my dad had a cardiac arrest during contrast and also in addition to BC in my family there's a lot of Parkinsons. I also have autoimmune issues! Basically…I don't need any more problems. The dr will not allow me to have it without…
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Tiffany`s Twenty Terrific Tips for TC
I just wanted to share with everyone my tips for getting through TC chemo, which I think helped me a lot. My only symptoms were a touch of nausea on days 3-4, a bit of diarrhea, constipation, dry mouth, and fatigue. I never got sick. 1. During chemo and for several days afterwards, drink a LOT of water. I drank 3 liters a…
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LCIS - BC in family -- NIGHTLY HOT FLASHES & PALPITATIONS - Can't sleep - MISERABLE & CONFUSED
Hello, I am 61 and have been in menopause one decade. I lost my dear sister to BC at age 42. About 10 years ago I had a surgical biopsy that said LCIS. Since then normal mammos but dense breasts. I have waited for these symptoms to "pass" but now it's pretty clear they never will. My nightly routine is horrible…
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82 years old
And yes, Metastic Breast cancer, removed 1 breast, now cancer free. No chemo, no radiation. All in 1 month time. Odd that health insurance says, " no more Mammograms after 80 yrs. of age. " Insisted my Dr. order one, he did, it did not find the lump last yr. But this year there was 2 lumps, I found. Quickly assessed, and…
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Post Radiation Side Effects
While my radiologist shared all of the pros and cons, he didn't share the "by the way" side effects. On a positive note, I discovered, thru trial and error, that calendula GEL is very helpful in healing the deep pitting and leathery issues post radiation. On the not so positive side, about a year after the radiation, I…
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New diagnosis IDC stage IV + lymph node
I just got diagnosed with IDC stage 4 right breast and right armpit lymph node. They haven't biopsed the left breast yet but they want to asap! My question is isn't more important to see if the cancer has spread anywhere else in my body before the slightly suspicious left breast?? Its been really hard getting STRAIGHT…
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Post surgery, pain
is it normal to not be able to sleep on the side that had surgery and radiation about a year ago? Feels like a big bruise that has been getting worse over the past year after treatment. Just being paranoid,
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Angiosarcoma of breast
Hi everyone - I was diagnosed with a very rare cancer called Angiosarcoma - it appeared in my left breast and due to its aggressive natural I had a mastectomy and radiation I am feeling blue and feeling awful about my body although I am in remission and I feel guilty as I should be grateful instead of feeling the way I do…
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💗 January 2026 Surgery Crew—You’re Not Doing This Alone 💗
Are you scheduled for a lumpectomy or mastectomy this January? This space is for you. Come gather with others who truly get it as we prepare for surgery together—sharing questions, nerves, fears, tips, and hard-won honesty. This is a place for real talk, reassurance, and mutual encouragement before and after the big day.…
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is there something to take to raise low blood test numbers
On my 3rd infusion, and when blood is taken some of the numbers are low.
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New Protocols
I am a 10 year survivor of breast cancer (stage 1a, ER/PR+, HER2+). Now my 75 year old sister has been diagnosed with stage 1a, ER+,HER2- breast cancer. She Iives in a distant state, so I cannot go with her to all of her doctor's appointments. She saw her oncologist today for the first time and was told she is most likely…
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Lets conduct our own study on how we all got breast cancer
We have an excellent cohort of diagnosed people here, let's see if we can find the common denominator among us. We've all learned with this disease, we need to doctor ouselves, why not conduct our own scientific research? It can't be that difficult. I'll go first. 1. how many of you women, in junior high school, ever had a…
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New Diagnosis
I was diagnosed with invasive ductal carcinoma, two large masses in my left breast. HER negative, estrogen/progesterone positive. My radiologist told me she was pretty positive it was cancer before official results, which was really helpful for me to process. I’m meeting with the oncologist and surgeon next week. I’ve been…
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Shopping/packing/to-do list for surgery + recovery....
OK, I admit it, I am a compulsive planner. I have had some great suggestions and tips not only regarding what to bring to the hospital, but also on how to prepare the house to make the recovery as easy as possible. I am travelling for surgery so, for me, "packing" includes the first 10 days of post-op care. I thought I…
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Radiation Shrinkage after Lumpectomy
While I am grateful to have only needed a lumpectomy, one breast is now half the size of the other breast as a result of radiation. As a woman, I am very conscientious of this, and wish I had reconstruction options under insurance now two years post surgery. While I have found a bra in which I can add extra padding, I…
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Love, Connection, and Everything in Between
February is supposed to be about love... from a partner, family, friends, or yourself. But for many of us living with breast cancer, whether in treatment, long after diagnosis, or with metastatic disease, love can look different now, partnered or not. Relationships shift. Bodies change. Futures may feel uncertain. And…
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BCO In Memoriam thread, Part 2
(The original BCO In Memoriam thread started by Milica has gotten too long and is difficult to load or make additions. We need to start Part 2 of this thread, starting 5/3, 2023 to make it easier to load in this new platform. The Original thread (Part 1) will remain and can be accessed for viewing but will not allow for…
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Elacestrant (ORSERDU)
Starting this topic to share info about the new medication elacestrant. Elacestrant (ORSERDU) was recently FDA approved for ER+/HER2- MBC for patients with the ESR1 mutation. Just before it was FDA approved, I was able to obtain the drug through an expanded access program (thanks to WeninWI for the info!). The expanded…
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Doing Well on Aromatase Inhibitors (AIs)
I read a suggestion that someone should start a topic for women who are NOT experiencing severe SEs while taking Arimidex, Femara, or Aromasin. I'm about to start taking Arimidex and when I read about the potential SEs I get discouraged. Maybe others would also like to hear about positive experiences. We would love to hear…
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ATM 2026 NCCN Guidelines
I had genetic testing done in 2019 and have a ATM variant. I was diagnosed with BC in 2017 (Stage 1 and tumor under 1 CM) and had a lumpectomy followed by radiation treatments. Took the Breast Cancer Index Test and results showed benefit of taking Arimidex for 10 years so I have one more year to go yay. The question I have…
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How Will Health Insurance Changes Affect People With Metastatic Breast Cancer?
How Will Health Insurance Changes Affect People With Metastatic Breast Cancer? February 3, 2026 Triage Cancer CEO Joanna Doran answers questions about Medicare, Medicaid, and metastatic breast cancer. Float RightMediumAccessibilityDelete The changes to federal- and state-run health insurance programs can be confusing,…
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AIMSS: How Aromatase Inhibitors Can Affect Hands and Wrists
AIMSS: How Aromatase Inhibitors Can Affect Hands and Wrists January 13, 2026 If you’re taking an aromatase inhibitor, you may have pain in your hands and wrists. Dr. David Bozentka explains the syndrome. Float RightMediumAccessibilityDelete Bone and joint pain are some of the most common side effects of aromatase…
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Poll: Has breast cancer changed the way you experience intimacy?
Intimacy can mean many things — touch, closeness, trust, comfort. How has it shifted for you? If you feel comfortable, please answer the poll and elaborate how in the thread below.