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Liver mets: resection, ablation, SBRT, Y-90, anything else?
I'm interested in who has had local treatment for liver mets and what was your experience and outcome. I've been talking about this with my onc, and he seems a little hesitant. I have my regular appt. for a 2-mth MRI of brain and followup with rad onc. I plan to ask him about the possibilities. I think that some of the…
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Toxicity
I was diagnosed 13 years ago I am now 75 Metastatic breast cancer Her 2 positive a lifer for treatment of Herceptin/Perjeta @ 3 weeks for life. 01/26 no treatment for 8 months I have toxicity of my heart LVEF went down to 41 going in for a cardio cat scan. I am frightened that my cancer will come out of remission not being…
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DMX and Medicare Coverage
I have left side IDC and am getting ready to schedule surgery. My right side has scanned clear. I’m considering a DMX and going flat, for symmetry and so I don’t have to worry about future screenings and risks on the right side. A nurse navigator just told me that Medicare won’t pay for the double! In the two months I have…
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Does anyone else feel wiped out for hours after radiation?
Hi everyone, I’m currently halfway through radiation treatment, and I’ve been noticing that I crash completely about 2–3 hours after each session. It feels like my energy just disappears, and I need to lie down for the rest of the day. I expected some fatigue, but I didn’t realize it would hit this hard, this early. Has…
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Just diagnosed with IDC ER+ PR+ HER2+
I just was diagnosed with Invasive Ductal Carcinoma ER+ PR+ HER2+ on Dec 23rd, 2023 but still do not have an oncologist. I do not know what is normal for being diagnosed with cancer as I have never had cancer in my life before. I do not know the Stage or Grade of the tumour yet. I am in Canada. When looking up anything…
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Here I go again
I was originally diagnosed back in 9/2023 on my left side, 13 MM stage 1, grade 1 DCIS/IDC. Had lumpectomy with 20 sessions of radiation. Tried Lupron, which gave me hell for almost a year. Cant deal with Tamoxifen. Finally did a lot of holistic stuff and trying to live life again. Thought I was doing good and getting some…
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Breaking Research News from sources other than Breastcancer.org
I watch for research news on breast cancer, treatments, etc., and frequently see interesting articles. There is a topic on BCO called "Breaking Research News from Breastcancer.org." One of the moderators suggested that another topic might be appropriate for posting links and synopses of reports on research found elsewhere.…
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What mixed feelings are you carrying right now?
As a new year begins, many of us are holding more than one feeling at a time. That’s normal — and it’s okay. You might feel hopeful and scared. Grateful for support and tired of needing it. Relieved to move forward and sad that things have changed. Optimistic about each new treatment and quietly terrified it won't work.…
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Kadcyla- what to expect
I was diagnosed Dec 2025 with HER2 triple positive. Stage 1b, grade 3, tumor 2.3mm, invasive ductal carcinoma. Finished 6 rounds chemo- HPTC every 21 days, tumor shrunk by 90%. Chemo was absolute hell for me. Had my first Herceptin 3 weeks after last chemo- tolerated will. I had lumpectomy 11 days ago- dr only removed the…
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Weight Loss Drugs and Mammogram Results??
Hey all, Hope this is the same group I originally joined in 2002 when I first was diagnosed with Stage 1 breast cancer. Had lumpectomy, chemo & rads and was an active member for quite a while, but got burned out after a few years. Now, I'm seeking advice. Is anyone on the new weight loss drugs? I've been taking Zepbound…
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Back after years - lymphedema surgical resources?
Hi everyone. I was diagnosed with lymphedema I think in early 2011, so it’s been a while. I used to be on this board a lot back then. I’ve stayed active and used compression and not had much trouble with flares of swelling. My swelling never goes away completely, but it’s still soft and it’s honestly quite subtle to the…
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Thin Slices of Joy
I finished active treatment less than a month ago, and wow, you just don't bounce right back up. Before all this started I have had sciatica for a couple of years, and it worsened during treatment. In trying to recover from both, I've been feeling frustrated. Now, I'm tired of the pain, fatigue, and frustration. Oh, and…
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Hormone Replacement Therapy?
Hi all — I’ve been reading a recent research- esp. from the US, including the book Estrogen Matters, which questions the idea that women with breast cancer should automatically avoid Hormone Replacement Therapy (HRT), and how it can help with longevity etc. I’m planning to speak with my doctor about it, but I’m curious…
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Well here I am again…
After 10 years, here I am again. I meet with my oncologist and surgeon soon. Still waiting on HER Fish results. Will be going for an MRI soon. I figure I’m facing mastectomy as I had lumpectomy/radiation the first go round. It’s in same breast.
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The Next Person Game
In this game you make a statement about the next person. The next person answers true or false to that statement. They then make a statement for the next person, and so on. Example: If the person before me stated - The next person owns a dog. I would answer - True - and add my statement - The next person has curly hair.…
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Any one with Bone only Mets with ER/PR discordance?
strongly hormone positive originally 10 years( 46 years age) back IDC grade 2, stage 3A 5 years tamoxifen , 5 years Letrozole with Zolenic acid Multiple bone mets 1 year after stopping letrozole Bone biopsy came triple negative . Very concerned :(
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Recurrence after Mastectomy, then positive margins
Hello, I am hoping to connect with people who might have a similar situation to mine, although I think (?) my situation might be on the rare side. Six years ago I was diagnosed with Stage 1B IDC. I am BRCA2. I did a double mastectomy with reconstruction (implants) and was told chemo/radiation not needed since my tumor was…
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New and Confused
45yo Newly diagnosed with ILC Stage 1A and LCIS. Us found 1 tumor at 6mm. MRI biopsy found a 2nd tumor at 7mm with Lcis. Will be getting double mastectomy with reconstruction. All the waiting in between has caused so much anxiety and stress. Genetic were negative and no family x of bc. ++, her- Do you feel a sense of…
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I am not grateful to my oncologist and care team
I am facing my last treatment for triple positive breast cancer next Thursday. I had heard that ending treatment can be difficult and I have been trying to prepare myself by building other support outside my care team. However, I find that the biggest problem is the reckoning with what has happened to me. There have been 5…
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New Year 2026: A Gentler Kind of Intention. What's yours?
You don't need to set big, lofty resolutions in the New Year that can set you up to fail, causing disappointment. Some of the most powerful and attainable intentions we hear from this community sound more like this: “I’m learning to protect my energy.” “I’m saying what I need out loud, even when it’s uncomfortable.” “I’m…
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Double Mastectomy without reconstruction
Hi, I was diagnosed in July 2025 with TNBC. Stage 2a. I have gone through my 12 cycles of taxol/ carbo/ keytruda. My AC/ keytruda was stopped it landed me in hospital during Thanksgiving. I am scheduled to have a double mastectomy without reconstruction on 12/30/2025, I am a little nervous and trying not to be depressed.…
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HRT with ADH
I was diagnosed with ADH 11 years ago. Recently I have been going through perimenopause and have been having hot flashes along with other symptoms. Has anyone been put on HRT and had issues with it causing any issues with your breast health?
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tamoxifen side effects--25 years post menopausal
hi there! diagnosed in august with idc, lumpectomy and mammaoplasty (bilateral breast reduction), finished 5 fraction whole breast radiaiton on Dec 5, just started tamoxifen yesterday, 20 mg . didn't really expect side effects this soon, but… felt just generally weird both yesterday and today; sneezed a lot this morning…
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Cold Caps Users Past and Present, to Save Hair
Hi all, I wanted to start a forum for all us that are using the cold caps to try to save our hair. I am on FEC100 X3 followed by Taxotere X3. My dosage unfortunately is not a guaranteed success. I am 40 days out from my first treatment and will have my third June 17. So far I have thinned but have not required a wig. I…
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Métastases cérébrales (brain metastasis)
Bonjour, J’ai eu Phesgo pendant 8 mois pour une métastase au foie. Réponse complète métabolique. J’ai fait une crise d’épilepsie début janvier 2026 et on a découvert des petites métastases cérébrales. À venir Stéréotaxie et Enhertu … je recherche des témoignages, j’étais en pleine forme , prise de sang ok …. J’ai besoin de…
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Just had my lumpectomy today
I think it went well. Some initial pain that is manageable with Tylenol and advil. Looking forward to recovery and next steps!
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help! vagifem no longer working :(
Forced medical menopause at age 31 (first with Lupron, then ovary removal due to cancer/BRCA1). In the beginning, using vagifem 2x/week worked amazingly. No pain or dryness. Over time, I had to go to 3x/week (highest safe frequency), and add all kinds of things the other nights: coconut oil, vit e, Replens, Revaree, KY…
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GOLDILOCKS MASTECTOMY (aka SWIM reconstruction)
anyone has experience with Goldlocks mastectomy? Please share your experience Thanks
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6 Letter Word Game
This is the same as the 5 letter word game, but this one's 6 letters. Change just one letter from the previous word and make a new word: record
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How can they tell the difference between osteonecrosis of the jaw & osteoradionecrosis?
I am in the early stages with a periodontist about puss in my gums. I have not had any dental issues before and get my teeth cleaned twice a year. The periodontist thinks I have osteonecrosis of the jaw from using XGEVA and have caught it early. I saw him in December and will go back in a few days for my second…