Recent Discussions
Discussion List
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Weight gain on treatment
I am currently on letrozole, zoladex, and verzinio with stage 4 bone mets with a hip replacement, kyphoplasty and spinal injury. It is hard to be active because of pain but I try to work out 3 days a week...I have gained 20 lbs in 6 months and am only eating 1500 calories a day. Looking for advice- I am 5"2 and never been…
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Awaiting MRI for Bone Mets
Hi! Probably a common situation… finished BC treatment a year ago this week. Two months ago hip started aching on and off. Now a little more consistent especially at night. Went to GP thinking he would send me with referral to PT. Instead X-ray ordered and result is “patchy areas of sclerosis with two largest 3.1 cm on…
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What Helps Women Stick to Hormonal Therapy Treatment Plans After Surgery?
What Helps Women Stick to Hormonal Therapy Treatment Plans After Surgery? August 25, 2023 Lowering medicine prices seems to be one of the best ways to help women stick to their hormonal therapy treatment plans after breast cancer surgery. Read more…
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Parathyroid disease and breast cancer
I keep on seeing posts that people have had these dual diagnoses; sometimes the parathyroid disease pre-dated the bc and sometimes the other way round. I am becoming convinced that the two are causally related, so am interested to see just how many of you have been affected. Many of us are getting osteoporotic and blaming…
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Increase In Tumor Markers but Pet/Scans show stable
The doctor just called and said that since my markers have increased they want another scan in 3 months instead of 6 months. She told me that it was just a precaution since the scan has been stable and the markers increased, they just wanted to triple-check that the meds are working. Diagnosis in 11/22, two recent scans…
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High Blood Calcium Levels
Hi, I was diagnosed with Stage 2 Breast cancer 5 years ago - completed lumpectomy, chemo and radiation. Been on Tamoxifen for almost 5 years because I am still pre-menopausal as measured by my estradiol count. I went to my primary care physician for my annual physical, and she called me back to say that my calcium level…
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Burning and itching near old incision site after recent injury.
I had a skin sparing bmx about 4 years ago, and had pre pec silicone implants placed shortly thereafter. I have not had any issues with pain in the region since the removal of my port, a few months after the exchage surgery for the implants. Only the occasional unscratchable internal itch and some aching from cold. The bmx…
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Just diagnosed, trying to make surgical decisions
Hi. I was just diagnosed with IDC, ILC, E+, P+, HER2-, 1.3cm & 1.7cm tumors (left breast only), 7% growth rate, Grade 2, staging to be done with surgery. Was initially considering lumpectomy with radiation, but am concerned that I have had ILC for a while and it hasn't shown up on imaging. I have had multiple mammograms,…
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Single Mastectomy vs double Mastectomy
I am 37 years old and have been diagnosed with DCIS high grade in my right breast. I decided to do Mastectomy but not sure what to do with left breast as I want to keep it. I have a family history of breast cancer. any suggestions?
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Thoughts about going flat after single side Mastectomy
Hi, I am 37 years old, diagnosed with DCIS stage 0. Planning to do Mastectomy but wanted to go flat without reconstruction. my bra size is 34D and need suggestions about the prostheses and bras to use.
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Just diagnosed
I, despite knowing I should have a mammogram earlier, had my first one last month at age 50. I have dense breasts, which I knew already of course. They saw an area on the mammogram they wanted to do a needle biopsy of, which came back with LCIS. I have an MRI scheduled for Monday (they will draw blood for genetic testing…
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implant exchange
Hello. I had a bilateral skin and nipple-sparing mastectomy with a tissue expander on 9/19/23. My PS and I decided not to expand further as the size works for me. This means I have not done any expansion since the surgery, which he placed 200cc at that time. The next step is the implant exchange, and I decided to go with…
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Trust your gut re: Pneumonitis
All, This is a warning to all of you who are having symptoms of pneumonitis. In the past two years, I have had severe adverse reactions to Ibrance and Piqray. The Piqray episode sent me to the ER and the hospital for five days. This was in late March. My oncologist (former) gave me this drug when I had progression on…
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Pain in entire body
Hi Friends, I am 45 and I was diagnosed in 2019 on right side, mastectomy was one and then implant was placed. I have been taking Tamoxifen since 2019. My Dr explained lot of side effect of Tamoxifen and I am aware of them. After surgery I was going to lymphoma clinic to drain and then Physio Therapy because I started…
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Review of Early Symptoms
Hello, I am 46, Ashkenazi Jewish, with two nodules in left breast. One only .2 cm and the other 1cm. Blood tests came back with mild anemia and possible infection. Symptoms include pain on left side. Not where I feel the nodule, but my breast feels heavy almost like something is pulling it when lying down. My left underarm…
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Neuropathy after taxol
Hi! I finished my 4AC/12Taxol treatments in 9/27. I start rads in a week. I used the frozen booties and mitts during every taxol treatment. Towards about treatment 7 of T I noticed a little neuropathy in my finger tips that didn’t get much worse as I finished treatments. Now that chemo is done it seems like the neuropathy…
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Mom has wounds on right breast with blood ooze, biopsy result pending
Last week I cane to know that my mom has blood discharge from tumors on her right breast. She did not tell.anyone and has been managing for past 3 years. Last week as she had problem in breathing and we rushed her to emergency that's how we came to know about the situation. She had lung infection and got treated for that,…
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removal of ovaries vs lupron
hello curious if anyone considered just getting ovaries removed instead of taking lupron/tamixofin? i am done with having kids. just can't get over the idea of getting lupron shots every month for 5yrs and then what? what is the point? just want your thoughts, thanks.
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Women on Ovarian Suppression + Hormonal Therapy Unite!
Hi all! I'm starting this thread for those of us premenopausal women who are receiving ovarian suppression treatment (Lupron, Zoladex, oopherectomy, etc.) plus hormonal therapy (tamoxifen, exemestane, or another AI). For me, there's a lot of fear and worry over how this will impact my overall well-being... how it will age…
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Experiencing itching/tingling/tickling sensation behind only one nipple
I cannot find much information on this, and have been experiencing this for the last 2-3 months and it happens frequently throughout each day. In the past, dense tissue has prompted my doc to follow up with repeat mammos. No other obvious symptoms are showing up. Have a mammo with ultrasound scheduled in a few weeks.…
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Long thin lump?
Hi everyone, It has been a long time since I have been on the community. My breast anxiety was pretty well under control. But recently I felt something very strange in my breast. I was massaging my breasts, I don't know why actually. And I came across some sort of longish lump/ridge. Maybe 3mm x 15 mm long. So almost like…
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Stage IV ER+, PR- and HER2+
Hello, I was wondering if there are others who are also dealing with Stage IV breast cancer that is ER+ (2%), PR-, and HER2+ and has spread to their bones. Recently diagnosed earlier this year and completed six cycles of PACL(W)+PERT+TRAS and am currently receiving PERT+TRAS every three weeks. I'm interested in learning…
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Radiology onc referral & does gender matter?
After a brief discussion, my medical oncologist hurriedly set up a consultation with a male RO. Said he was detailed, a little OCD (joking)… inferred I would like him because, dunno, I ask technical questions. He named a female RO “if that would make you more comfortable.” I went with the male. Now I am mulling it over.…
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Ibrance for early-stage breast cancer?
To be clear, I am not stage 4. I am currently on Tamoxifen and Verzenio after a stage 2b diagnosis, surgery, chemo, and radiation. A recent CT scan indicated 15-20 lung nodules, largest 1.5cm, that were "suspicious for metastasis" per radiologist. Oncologist is concerned with the risks of trying to biopsy, so I will have a…
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Weird sensation
Hi! Quick background, Stage 1A IDC, triple positive, grade 3. Tx: lumpectomy, chemo, radiation, 1 year of herceptin and now on tamoxifen. Just recently I've started experiencing a weird feeling in my cancer breast akin to the sensation of milk letting down. Starts up by the arm pit and moves to the nipple. My youngest is 9…
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Ibrance
I have been taken Ibrance with AI for over 2 years. I have bone only Mets when I first diagnosed as MBC. Ibrance worked very well in the first year and second and brought my CEA to 1-2 range. Since early this year, my CEA went up to 3, 4, and 5. My CEA lab yesterday is 7 and CA15-3 is 37. My CT/bone scan shows no changes…
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Eyelashes and eyebrows
Hi all. Starting last December, I had 4 A/C treatments (every other week), followed by 12 weekly Taxol treatments. The hair on my head fell out in late December. I finished A/C in late January and started Taxol then. During all that, I didn't have much loss of eyebrows or eyelashes. I noticed some thinning of my eyebrows…
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Question about Fatigue and Radiation
Has anyone had any side effects such as fatique and tenderness in the rib and area that is being treated? I'm exhausted and everytime I bring it up I get told its too early to have any side effects. But I literally feel like a truck ran me over backed up and did it again. Even before treatement began I felt exhausted (the…
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On the edge of SEVENTEEN
And this year my cancerversary actually falls on the same day of the week that it did in 2006. I remember that Friday as if it were yesterday - and yet it still feels as if it happened to a different person. This year, instead of waiting for my husband to get home from work so I could collapse into his arms with the…
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Scared thick uterus lining
Hi everyone! Went in today for a vaginal US which shows very thick uterine lining. No polyps or fibroids. My last two periods have been very heavy and painful and last longer than usual. The Dr said this could be caused by the tamoxifen but that I need a biopsy. I'm obviously scared, and sad. Just hearing the word biopsy,…
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