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What to ask at first appt?
I need help understanding what to ask and how to advocate for myself at my appointment tomorrow. First, my condition: My right breast has hurt for five weeks, it’s really sore, but not hormonal sore. Totally different feeling. Sometimes it’s a low key burning sensation, sometimes a shooting pain, sometimes throbbing, but…
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Scanxiety and accuracy of scans
Hi all, I am right now having tremendous scanxiety about two scans I had on Tuesday. One was a nuclear bone scan, the other was a CT scan. They were supposed to reveal progress (or progression) after 3 months of Fulvestrant and 300 mg of daily Verzenio. I never had a bone scan before. The stupid technician came in after it…
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Replacing implants after 15 years
Has anyone had implants replaced? I would appreciate sharing about the experience.
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Recurrence symptoms: swelling and heaviness?
Hi all, Has anyone experienced mild swelling or a feeling of heaviness in the breast as a symptom of local recurrence? No pain, redness or itching, but something just feels “off”. Laying on my back feels like something kind of heavy it sitting on my treated breast. Already have yearly mammo and US next week and will…
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Mammogram - recall severe anxiety and depression
I’m terrified ..I was recalled after my mammogram for the results below.. I’m going for a diagnostic mammogram/ultrasound .. can’t eat or sleep … I need information because Google has me in panic mode….any help would be appreciated… I’m 67 with dense breasts
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Kisqali (Ribociclib), Faslodex (Fulvestrant), Femara (Letrozole) - is anyone on this combo?
After many years on Faslodex and Femara, my onc has decided to add Kisqali to the mix as my tumour markers are rising to the 100s although my ct scans appear stable. I haven't noticed anyone posting about this particular combination. I'm very nervous about the side-effects and I'd love to hear how people are doing. Is it…
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What’s on your bucket list?
I am currently working on my bucket list and it got me wondering what everyone else wants to see and do. My list below in no particular order. Go parasailing (done May 2018) Go on a cruise (done Feb 2019) Go to the Bahamas (done Feb 2019) Go to Jamaica Go to Hungary and Ireland See the Northern Lights See Hepcat (Ska band)…
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TE/Implant OVER pectoral Can exercise, comfortable &NO RIPPLES!
I want to put this out there as an option for implant reconstruction. Initially I had uni mx and delayed reconstruction with a TE put under my pectoral muscle. Hated, just hated it. Was painful and crampy for all the muscles of my chest. No strength because my pectoral muscle was cut. So bad I couldn't open a bag of chips.…
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My whole body feels scared - possible findings, biopsy and axillary aspiration
I was nervous just coming up on five years, and then my sonogram was inconclusive which caused days of fear, and then the second reading found a mass just by my nipple (on the good side) and enlarged lymph nodes (on my surgery side). Now I need a biopsy and an axillary aspiration and the soonest appointment is next Monday.…
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Skull mets
I was told back in the beginning of 2021, after a brain MRI, that I had skull mets to the calvarium. I wasn’t offered any treatment for them. I’m assuming because I had no symptoms. Lately I’ve seen a number posting about skull mets and having SBRT. Am I assuming if I had no symptoms and I’m covered from skull to femurs in…
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Mammogram recall
I have been getting mammograms every 6 months for about 5 years now and every other time they use contrast enhanced dye. In all that time, I was never recalled for further diagnostic imaging… until now. I’m a bit stressed to say the least. How often have you guys been recalled? Has the outcome always been good? Did it end…
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Anyone Watching & Waiting tiny DCIS?
Curious if there are women whose doctors suggested watching a small piece of dcis instead of lumpectomy? And if so, how long did you wait it out? This is my second bout of dcis, the first, I did have a lumpectomy. No radiation. I was supposed to take Tamox—Didn't, for a variety of reasons. Fast forward a few years, new…
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Recurrence after mastectomy
Hi, I just found out there’s a tiny nodule with residual DCIS, 10 months post mastectomy. I’m freaking out about these new findings. Has anyone experienced a recurrence post mastectomy? My surgeon plans to perform a lumpectomy followed by radiation. I’m terrified it will have spread elsewhere since recurring so quickly.…
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Non Mass Enhancement IDC
Hello everyone - am back here after a good 2.5 years. This time instead of triple positive, I might be just Her2 (waiting for FISH results tomorrow). I have a 12.1 x 10 x 11 cm NON mass enhancement on MRI that was biopsied to be IDC. They want to do scans to see if anything has spread. Is the norm now CT/Bone Scan and then…
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Breast pain & fibrosis 6.5 years later!!
UPDATE!! I just found this online that says COVID Vaccine can cause Radiation Recall Phenomenon that describes perfectly what I have. I am making an appointment with an Oncology Surgeon since I can go back to my old clinic since I changed insurance. Please read this and I will also post it separately!! I had lumpectomy &…
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BMX with DIEP Flap reconstruction at later date question
Unfortunately I’ve had a decent wait for surgery because I decided to do the BMX with DIEP flap reconstruction. So we have come to the conclusion I’m going to have to do it separately because they just can’t do it all at once in a reasonable time period. has anyone been flat and still was successful with the DIEP flap…
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Fat grafting for reconstruction after implant loss
Hi, I am looking to find more recent experience of fat grafting for reconstruction. ie using only liposuction obtained fat, not the DIEP procedure. My surgeon has suggested this for me. It would result in a very small cup, possibly further procedures to "top up" with. He mentioned downtime and pain was "minimal". I was…
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Waiting on Biopsy
I just had a mammogram and ultrasound done and the radiologist put Birad 4 and told me I needed to get a biopsy. Looking at the details, it seems that I have two areas of "fine pleomorphic" one with grouped distribution and one with linear. I have a biopsy scheduled next week. I am very very upset with this news and am…
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"What a revoltin' development this is."
When I was very young, my grandparents and I would watch a TV comedy, "The Life of Riley." The protagonist would turn to the camera at some point and declare, "What a revoltin' development this is" when something untoward had occurred. It always brought a big laugh from the soundtrack. Several weeks ago, I had a bone scan…
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Mastectomy after dx with liver Mets stage IV
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STFU (Shut the F*** UP)
Less than a week before my surgery and my new favorite words are STFU (Shut the F*** Up). Yes, clearly I'm completely in the throws of the anger stage. So far I only say it in my head, but I can't promise it's not going to slip out soon. I don't want to hear: "Oh, well you don't have it as bad as a friend of mine who had…
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Changes in body shape after double mastectomy and taking aromatase inhibitor
I'm pretty old (age 74), and had my double mastectomy in August 2022 and did not have any reconstruction. I have followed-up with anastrazole daily medication. And even though my body has changed a lot over the years, I have noticed recently that my stomach/abdomen seems much larger. My weight is the same now as before the…
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I feel like it will never end
Hello, I'm new to posting but not new to this site. 12 years ago, at age 33, I was diagnosed with stage 3a invasive ductal carcinoma. I found this forum helpful then and have returned for support. That year I completed chemotherapy, had a unilateral mastectomy with multiple recons over the years, and completed radiation…
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Starting Chemo August 2023
Hey All, If you're starting this month, please let's join together here! 🤗
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Uterine biopsy question on low dose Tamoxifen
I was wondering if anyone can fill me in with the procedure for a uterine biopsy? (Just don't scare me, I can barely get thru a pap smear!) How long does it take? Post menopausal, started low dose Tamox/dcis for a month only, and my uterus went crazy. Achey, discomfort, heaviness….. I stopped the medicine and within 24…
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TNBC Survivorship plan
I was diagnosed with TNBC in July 2022. I had a lumpectomy in August, then chemo Oct-Dec. Because of the genetics results, I elected to have a bilateral mastectomy with breast reconstruction using my own abdominal fat in January 2023. I have recovered quite well. By April 2023, my med onc discharged me to family practice,…
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Bible Gateway Devotional Verse of The Day
Romans 15:13 New King James Version Now may the God of hope fill you with all joy and peace in believing, that you may abound in hope by the power of the Holy Spirit. Read at Bible Gateway Read all of Romans 15
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Kadcyla side effects
Hi, Like to know how tolerable Kadcyla is and it’s side effects. Appreciate any comments.?
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Book Lovers Club
I've been receiving marvelous book suggestions on another thread and it was recommended that I start a Book Lovers thread. This is not for BC or health books -- this is pure escapism!!! I've collated the suggestions (with snippets describing the plots) I've received thus far. Please post your recommendations too!!
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Weight Gain
Trying to find some solution to weight gain. Has anyone had any experience with anything to help lose weight and help with the hot flashes? I have read on so many different things out there that are supposed to help with the hot flashes and weight gain but wanted to check in here to see if anyone has any success.