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Need advice on ice/cold caps and ice gloves/ socks
my wife is about to start chemotherapy next week for her triple negative b.c. Trying to find cold caps and ice gloves / socks for the procedure. Seems like insurance companies has no idea about these. We can only see those items on Amazon but not sure what to pick. Any suggestions or recommendations?
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20 years cancer free and and now recurrence
Hi Friends, I spent a lot of time on this board in 2004-2005. I was 37 years old, stage II invasive ductal carcinoma. I did the lumpectomy, FEC chemo cocktail, Taxol, radiation a year of Herceptin and Tamoxifen. My life was rolling along and I finally put cancer in my rearview window until this past March when I started…
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Possible round 2 with cancer and scared
10 years ago I had idc stage 1 grade 2 in my right breast. Hormone receptor positive her- brca 1/2 negative Had lumpectomy, 25 rounds radiation and 5 boosts. 5 years of tamoxifen. Hysterectomy and oopherectomy in 2020 after issues with ovarian cysts and heavy bleeding. Had more genetic testing and nothing showed. Could not…
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Scheduled for Surgery in September 2025? Gather here to support one another!
Are you scheduled to have a lumpectomy or mastectomy in the month of September? Join us here where we support each other as we prepare for our surgeries, ask questions about what to expect, share reservations and fears, and support one another through preparation and recovery. And, we encourage others who've "been there"…
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My Update—6 years post diagnosis
Hi Friends: I thought I’d post a update on myself 6 1/2 years after my stage 1, grade 1 Invasive Ductal Carcinoma diagnosis. I chose to only have surgery. I did not go on hormone blocking drugs. I chose not to have radiation. I’m doing very well! What was my treatment plan post cancer? I try to eat as plant based as I can.…
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TNBC Can Change Hormone Receptor Status If It Comes Back
Sep 23, 2025 Triple-negative breast cancer may come back as hormone receptor-positive disease about a third of the time. Triple-negative breast cancer is negative for both estrogen and progesterone receptors. So, it’s hormone receptor-negative. People diagnosed with this type of breast cancer aren’t offered hormonal…
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Xgeva concerns about whitening my teeth
I’ve gone down the rabbit hole so many times trying to find answers on my own and then I stumbled upon this group. Maybe someone is in my situation and can help? I was diagnosed with PE+ and HER- breast cancer in 2014. I had 3 months of Adryimician/Cytoxin followed by 3 months of Taxotere. I am one of the many that my hair…
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LCIS - BC in family -- NIGHTLY HOT FLASHES & PALPITATIONS - Can't sleep - MISERABLE & CONFUSED
Hello, I am 61 and have been in menopause one decade. I lost my dear sister to BC at age 42. About 10 years ago I had a surgical biopsy that said LCIS. Since then normal mammos but dense breasts. I have waited for these symptoms to "pass" but now it's pretty clear they never will. My nightly routine is horrible…
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Managing Hormonal Therapy Side Effects
Jun 11, 2025 World-renowned breast cancer expert Dr. Hope Rugo offers strategies for the most troubling side effects. At the 2025 American Society of Clinical Oncology Annual Meeting, Hope Rugo, MD, chaired a session on managing the side effects of new breast cancer treatments and also presented information on how to…
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Aromatase inhibitors versus tamoxifen
I had a double mastectomy in October of 2023, radiation, fortunately no chemo. I began an aromatase inhibitor, Anastrozole, in January of 2024. At about five months in, I began to experience joint pain. It wasn't bad, just a little annoying. As the months passed, it got a bit worse, so my doctor switched me to another AI,…
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Liposuction for lymphedema/Vaser treatment
Any input anyone on these treatments. Grateful for any info Good wishes to all Anna
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Had my first chemo
I started chemo treatments after getting cancer again in the other breast. I have a gene mutation that has caused my cancer which is why I agreed to chemo. My sleep is inconsistent, but I am staying positive. I pray a lot!
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Follow up imaging after having radial scars
if you have had radial scars diagnosed and removed what was the ongoing follow up monitoring recommended by your surgeon? 12 months ago I had two radial scars removed at age 32. I had an ultrasound 1 yr post surgery and imaging was all ok - BIRADS 2. I am meant to follow up with my surgeon for the post 1yr mark. However,…
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Cold Caps Users Past and Present, to Save Hair
Hi all, I wanted to start a forum for all us that are using the cold caps to try to save our hair. I am on FEC100 X3 followed by Taxotere X3. My dosage unfortunately is not a guaranteed success. I am 40 days out from my first treatment and will have my third June 17. So far I have thinned but have not required a wig. I…
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Stomach pain post Diep flap
I’m nearly three years out from DIEP flap surgery. Since the very beginning I’ve had issues with extreme muscle cramping in one spot of my left lower abdomen. I even get hard charley horses there! Any ab workouts or heavy lifting triggers this. Has anyone else experienced this, and did you find any treatments or solutions?
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Two Hospitals Provided fully two different treatments, I can not believe that
I was diagnosed Breast Cancer , ER+ 90, PR-, KI67-30% Tumor 1.8cm, her2 negative, ALAND lymph notes 3/6 positive found from surgery. stage 2, I have done surgery 07/30/2025. Oncotype score 14, UT Southwester Hospital provided the treatment with T 12 time once a week, and AC 4 times, every two weeks. Radiation 30 days. I…
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Bioidentical hormones..is anyone taking after breast cancer?
I have 4 tx left of my weekly taxol. Prior to that I did 4 DD AC. Now that I am getting close to the end of my treatments, I have started to research diet, supplements, etc to hopefully help avoid recurrence. I have been reading Suzanne Somers, the Anticancer book, and some others. Overall, its been somewhat depressing as…
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AXIN2 Gene- Do you have it?
So I’m wondering how many of us here have the Axin2 gene? I have it with a variant of unknown significance. But my breast cancer surgeon told me years ago that they are learning new stuff all the time, unlearning other stuff and there is still a lot they still don’t know about breast cancer. Just curious how many of us…
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6 Month Follow Up
In April I went for a diagnostic mammogram of my left breast. The radiologist had several mammography pictures taken and also a magnifying mammography round of pictures taken. He stated that they found an Indeterminate 6 mm group of tight calcifications in the outer breast at middle depth and that a stereotactic guided…
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Looking to talk to a woman who has been through a mastectomy, chemotherapy AND radiotherapy
I'm actually reaching out on behalf of a friend. His partner has had a mastectomy, and has been through a treatment of chemotherapy. Doctors are now heavily encouraging her to undergo a course of radiotherapy. My friend, based on his own research, and his knowledge of his partner's unique situation, is quite strongly of…
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What to expect?
I am recently diagnosed and am having a lumpectomy with Sentinel node removal in 5 days. Looking for suggestions from real people, who have been through this, for when I come home. Will I be able to wash my hair? Or should I just cut it off? Serious question. I've had a few neck surgeries and cutting it off was easier…
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Decorative/artist tattoo on reconstructed foobs
Are there gals here who have done decorative tattoos on their reconstructed foobs? Every time I see photos of them, they are gorgeous. Through a wonderful organization, I have to privilege of having mine done. I'm 16+ years old from diagnosis - finished radiation 16 years ago this week. Finally at my senior age, I love…
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New, never used, lightweight, quick dry drain holder
I bought this quick dry drain holder on Amazon to use in the shower. Then my surgeon decided I wasn’t allowed to take a shower with the drain, so I never used it. Will mail it free to US address.
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Pelvic pressure/painful bladder syndrome while taking Tamoxifen
Diagnosed with Stage 1a IDC in april 2025. Had excision surgery, 19 sessions of whole breast radiation and now i have been taking a low dose of Tamoxifen, 10mg every other day for 2 months. Since taking Tamoxifen I have had pelvic pressure, low back pain, and painful bladder syndrome. Anyone else have this? My oncologist…
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Second time around needing Chemo - just wondering about the prescribed treatment
Double mastectomy 7 years ago. New 1-2 cm cancerous lump found on breast and also in three sentinel nodes have all been removed. Same cancer (EST+, HER2- ). Having more surgery next week to remove 1st and 2nd level nodes. After surgery, my oncologist is prescribing Doxorubicin and Cyclophosphamide every two weeks for 4…
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Tamoxifen side effects with diagnosis of osteoporosis
I was diagnosed with breast cancer 1A one year ago. I had a lumpectomy with 16 radiation treatments. I began 20 mg of tamoxifen almost 8 months ago. Side effects have not been bad until about 1 month ago. I seem to bruise easily, having headaches more frequently, terrible hot flashes and my body hurts if I exercise. Prior…
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mastectomy and possible reconstruction
I had lumpectomy a couple of months ago. A week or so later surgeon called and told me she didn't get it all. So I had a single mastectomy about ten days ago with the intention of having an implant and a lift on the other side. The plastic surgeon wasn't able to put the expander in during the mastectomy so I'm left with a…
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Cancer in all three levels of Axillary lymph nodes.
Reoccurrence of EST+ HER2- breast cancer. Results from PET FES shows cancer in all three levels of Axillary lymph nodes. Are there any options beside surgery? I worry about Lyphodema.
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Second time around questions
After 7 years past double mastectomy without issue (no other treatment at that time), I was recently diagnosed with a new breast cancer occurrence, a 1-2 cm lump in my breast skin. After two surgeries and three lymph nodes removed, all testing positive for same breast cancer (ER+, PR+, HER2-), I'm told I will have to do a…
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Triple Negative Stage IV
This is a way for us to find each other, please add your post so everyone can be found. We can discuss on this thread (hope this works out!)