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What topics/experts would you like to see on The Breastcancer.org Podcast?
Hello, I'm Jamie, senior editor at Breastcancer.org and host of The Breastcancer.org Podcast. I'd like to make sure the podcast is answering questions that Community members have. Are there topics you'd like to see covered? Experts you think I should talk to? Do you want to share your story? Questions you want answered?…
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Mother recently diagnosed with stage 4
My mother was recently diagnosed with metastatic cancer with “innumerable” mets throughout her bones. I’m still in so much shock from the diagnosis but really thinking about how to reorganize my life to be closer to her during this time. I currently live in another country with my partner and know that we need to make some…
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need to find how to treat it
I am asking on behalf of my mother. My mother is a 79-year-old woman with metastatic breast cancer involving the bones. She was originally treated with Letrozole for approximately 4.5 years. When Letrozole was stopped, she subsequently developed significant disease progression with severe hypercalcaemia and further…
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Diagnosed with Stage III Breast Cancer - Start Here
For more information on Stage III Breast Cancer check out these resources at our main site: Breast Cancer Stage III Treatment Options by Cancer Stage: Stage IIIA, Stage IIIB, Stage IIIC If you are interested in connecting with other members diagnosed with Stage III Breast Cancer check out this topic: A Place to Meet and…
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Poll: What surprised you most after being diagnosed with breast cancer?
After a breast cancer diagnosis and the whirlwind of treatment calms to a breeze, there can be pressure to move forward. To feel grateful. To seem okay again. But many people in our community describe something more complicated: learning how to carry a diagnosis while still trying to stay connected. To themselves, to the…
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Progression After Truqap (Capivasertib) + Fulvestrant – Seeking Experiences and Next-Step Options
I am seeking experiences and suggestions regarding next-line treatment options for my wife with HR-positive, HER2-low metastatic breast cancer. She has recently progressed on ibrance with exemestane then Capivasertib (Truqap) plus Fulvestrant, with PET imaging showing progression mainly in the liver and lymph nodes.…
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Occult bc ER low (5%) HER2 neg treated as TNBC
I was diagnosed May 26, 2026 with breast cancer after a lymph node was biopsied after routine MRI(I have had LCIS since 2011.) further test and biomarkers show no further metastatic cancer and the breast is the source. No tumor found, so they are calling it TNBC. My Ki67 is low, 11-15%. I feel like I’m the only one dealing…
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fungating tumor
how to treat a fungating breast cancer tumor
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Haiku for Fun
Hi everyone. I've seen some poetry and Haiku on individual threads, but thought we could use a separate thread. I am in no way an expert, and this is simply for fun, so we won't go nuts if you don't have a "cut" or nature theme or other rule. The only rule on this thread is a measured syllable poem. Most common is 5-7-5.…
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Is there just a general drop in breast cancer open forum that is current ?
Is there a breast cancer drop in text discussion group that is current ?
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Lumpectomy Lounge....let's talk!
WELCOME TO THE LUMPECTOMY LOUNGE! I've searched and searched BC.org and couldn't find a specific post just for those of us who have had lumpectomies (unless there was one and it got buried). So, I thought that it was about time that we had our own place that we can come to...where we can discuss, ask questions, tell…
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How to choose whether to do chemo or not
My oncologist has essentially told me that the decision about chemotherapy is mine. The research suggests that my type of cancer may not benefit much from chemo and that ovarian suppression may provide a similar benefit. I enrolled in the OFSET trial and was randomized to the arm that does not require chemotherapy, but my…
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Liposuction/Flying Squirrel
Hi. I have BCR lymphedema. It has been a long and difficult journey for me. I live in Tampa and have had limited success with treatment options and providers in this area. After being told by Moffitt there were no treatment options for me I went to Cleveland Clinic and met with Dr. Chen who recommended liposuction and…
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Invasive Lobular Cancer
Hi I'm Chris 73 years old diagnosed with Lobular invasive Breast Cancer grade 2 my first surgery was on the 6th May 2026 followed up with my report on the 4thJune 2026 meeting with my Surgeon. The tumour removed was 14mm and she also removed two smaller 3.5mm and 6mm ones in my left breast. I also had two Lymph Nodes…
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LVA surgery - bypass surgery - Have you done it?
I recently traveled to the University of Iowa to meet with Dr. Wei Chen a supermirosurgeon/plastic surgeon. I was referred to him by my PS. I had the Indocyanine Green Lymphography done and was amazed at what was seen both in my healthy arm and diseased arm. I was diagnosed under the Campisi Staging at Stage 2 as my LE is,…
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Liposuction for lymphedema/Vaser treatment
Any input anyone on these treatments. Grateful for any info Good wishes to all Anna
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Back after years - lymphedema surgical resources?
Hi everyone. I was diagnosed with lymphedema I think in early 2011, so it’s been a while. I used to be on this board a lot back then. I’ve stayed active and used compression and not had much trouble with flares of swelling. My swelling never goes away completely, but it’s still soft and it’s honestly quite subtle to the…
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Stage 2B with positive nodes
Husband here. If there's already a thread for Stage 2B with positive nodes, I apologize, as I missed it. I see a lot of discussion between ladies with Stage lll and between ladies with Stage l and a lot of dialogue for Stage lV only----but not much for Stage ll. I was interested in reaching out and finding what everyone's…
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Scares That Turned Out To Be Nothing
Husband here. My wife was diagnosed about 2 1/2 years ago. She is doing well. But that's not to say there haven't been more than a few moments of high anxiety thinking something's wrong or just waiting for test results to rule out a recurrence or mets. I hope it's ok with the great members here that I start a thread that's…
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Open Letter
I am a husband/ caregiver... I didn't know where this should be posted---and since my wife is going through treatment now, I just picked here. I have lurked since my wife's diagnosis and have been posting only for a few days. I can recognize a sisterhood when I see one. An army of kind souls. I am humbled by your humanity.…
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Mastectomy on the other breast
Hi, I had a mastectomy on my left breast in January. No reconstruction. I recovered well and relatively quickly. My other breast is "busy," according to my oncologist . I am seriously thinking about getting a mastectomy on the other side as well. Not because it will eliminate cancer on that breast, but my surgeon says this…
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Questions about Radiation treatment? Join us on Zoom.
Our professionally facilitated In Treatment Zoom meetups are a great space to meet others going through surgery, chemotherapy, radiation, or reconstruction to talk face-to-face and get support while going through active treatment. You'll pick up great tips from others who've been there, gain immeasurable support, and learn…
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The Long Middle - Does the idea of “the long middle” reflect your experience?
Check out this article and let's discuss. I have stage four cancer – there will be no cure, but death isn’t necessarily imminent: this is how it feels to live in the long middle | Death and dying | The Guardian The author describes living with stage 4 cancer as being in “the long middle”, a space where there is not a cure,…
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"Roll Call" for those who've stopped Hormonal Therapy early - short post to share status?
If you quit or reduced hormone therapy and don't mind sharing future status at least once a year, could you share concisely current cancer status (no evidence of disease, metastisis, new breast cancer) or other health facts? This will give an easy to follow thread of results of quitting. It is such a gut wrenching decision…
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Blog Discussion: When It Feels Like Your Body Is Betraying You
Join us to discuss this blog post. Let us know your thoughts, feelings and experiences and if anything about this post resonates with you. We value your insight! https://www.breastcancer.org/community/blog/when-your-body-betrays-you Post your thoughts on this blog post below.
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Just diagnosed w/a new breast cancer for the 3rd time
I had ER/PR+ Her2- in the left in 2020 and then ER/PR+ Her2- in the right in 2022. Now I've been diagnosed, 2026, with ER/PR- Her2 3+ Ki-67 20% in the left. Can anyone help me understand this new diagnosis or share their experiences?
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Poll: What's the one piece of advice you'd give to someone newly diagnosed with breast cancer?
Getting diagnosed with breast cancer can be scary. If you had a chance to share with a newbie one piece of advice to get them through, what would it be? Choose from the options below or add your own in the discussion to give new folks a sense of calm and understanding.
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Very heavy periods post-Tamoxifen
I stopped taking Tamoxifen last year after being on it for 10 years. I am in my early 50s and my periods while on Tamoxifen in the last couple of years were every few months and fairly light. Since going off, my periods are every 25-30 days and are very heavy for 3 days (with lighter bleeding lasting another week). My…
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I am new here
Hi just got diagnosed on may 11th have breast cancer on left breast very tiny will have to do surgery in July really nervous about it any info would be great thx Dianna
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Angiosarcoma
I have been diagnosed with angisarcoma. Caught very early and removed from breast. Actually double mastectomy. Stage 1. Now getting second opinion on treatment. It is very very rare. Anyone out there with it?