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Discussion List
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What do you use for dryness when on hormone blockers?
I am a month or so in on hormone blockers (Letrozole) and already went through menopause. Before cancer, I had been using Meno vaginal moisture pills and they were working just fine to keep up the moisture, but now that I'm on the blockers, I'm like the Sahara down there. What have you used that works because the usual oil…
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Hx DCIS L BREAT 5 years ago
jade mastectomy with direct reconstructive sx . Implants bilaterally. Fat graphing 1 year later on right breast for symmetry. Now 6 years later found 1.4 cm polymorphic lesion on mammo. Scheduled for stereotactic bx. Have severe health anxiety. Looking for positive stories that may point to this being benign or caused from…
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Just Diagnosed- Get Prepared
My breast cancer was diagnosed in Jan 09. My husband was dx'd with lymphoma in April. The following are some things we learned on our journey. I hope they help. Rather than rewrite everything in sequence, because I missed putting the fax in the rewrite of the outline, I'll put it here. I strongly recommend you get a fax…
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Truqap experience
stage 4 Mets to lung, liver, bones and lymph On the sixth week of truqap, handling it pretty well. Some diarrhea that is unpredictable so I always have Imodium on hand. Sometimes I get nauseous and my taste is off. My concern is for the blood sugar levels. Trying to keep my diet during the four days which is no sugars but…
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Bariactric surgery - post bilateral mastectomy
Im looking for opinions. Recently I have been reading studies about hormone production in women who have/had hormone receptive cancers. In my case I was Er/pr+ her2-. My BMI is 38. My insurance considers the reoccorance of cancer as a comorbidity and will likely cover the bariactric surgery. I would LOVE to connect with…
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29, Newly Diagnosed, and Trying to Stay Encouraged
Hi everyone, I’m 29 years old and was recently diagnosed with breast cancer. I’m still very new to all of this, and honestly, it has been a lot to process. I’m preparing to start chemotherapy soon, and the past few weeks have felt like a whirlwind of appointments, scans, biopsies, phone calls, treatment decisions, and…
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New Diagnosis - Recurrence less than 1 year
I had DCIS last year, had a lumpectomy with neg margins, no necrosis, 90% Er/PR positive. Tiny, so no additional testing. I did not do radiation, but i was on tamoxifen. Almost a year to the the day of my lumpectomy, I had a screening MRI. Two spots came up as “new” (I have extremely dense and “busy” breasts). Had to wait…
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Wrongly diagnosed, had mastectomy and PAP flap operation
I'm in constant pain in my leg, I was diagnosed after a routine mammogram and after 3 biopsies told the best option for me was a mastectomy, I was told that having my own tissue was the superior way to go, the rolls royce of mastectomies. I was told i was a ticking time bomb and this was the best option. ie; preferred to…
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Birads 4, concern or no concern
As I posted earlier, I am brand new to this site and new to the world of breast cancer or a scare of breast cancer, I don't know which just yet. I am 38 yoa and I have had a lump in my left breast since mid May, had a mammo, and ultrasound, only to tell me that it's a suspicious abnormality. I noticed another topic about…
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On edge with Kisqali
Hi all, I am currently getting my lupron shot to stay in menopause. I am also taking letrazole and kisqali (on for 3 weeks and off for 1 week). I feel like an angry monster when I am on Kisqali. My doctor says it’s not kisqali but I promise you it is. I feel less angry on my off week. I find myself being easily irritable…
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AFC (aesthetic flat closure)
I am one year out from my bilateral mastectomy. I decided that I wasn’t doing any kind of reconstruction and just wanted to get the surgery over with. I am now considering an AFC and wondering if anyone has done this months or year(s) after. What was the process like? Recovery? Any and all advice is welcome
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Did you go over 20 years NED and then got diagnosed again?
I'm an oldie here. I was 1st diagnosed in September 2003 at age 36 with IDC. I had a right breast lumpectomy because of my age and according to my oncologist surgeon back in NJ; it was followed by 4 chemos and 33 rads. From 2004 to 2024, I went thru several biopsies, including a 2010 left breast lumpectomy for atypical…
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Small pimple on top of right Breast
Greetings I was diagnosed with ER+ level 2 Grade 3 breast with positive sentinel lymph nodes (12/2021) Lumpectomy performed Lymph nodes removed Red devil for chemo Radiation for 30 rounds with a bolus pad to increase the power I am on AROMATASE INHIBITOR daily for a ten year course Today I felt something the size of a…
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Origins of Genetic Mutation
If you are a known carrier of BRCA 1/2 pathogenetic mutation, have you tried to research the origin of your mutation? I have IVS5-11T>G / c.213-11T>G Any advice welcome.
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Just diagnosed TNBC
This discussion was created from comments split from: Next Steps??.
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Considering no more Anastrozole
I am 56 years old. Healthy. Work out 3-5 days a week (walking, weight bearing exercise etc. ) I was diagnosed with invasive ductal, hormone positive HER2- , T1 in December 2025. Lumpectomy removed 9 mm tumor with clear margins. Radiation completed successfully. MO advised that after surgery and radiation I have prevented…
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Questions re: SNB
I'm scheduled for an ultrasound of lymph nodes, with needle biopsy if indicated. I fear that I could have long-term side-effects even from just one node biopsied. Is my fear justified? Also, from posts I've read in various forums, it seems like even if a node is biopsied pre-surgery and negative, it's quite common for…
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Unilateral or Bilateral Mastectomy - Pros & Cons for ILC
Hi, I learned on April 12th that both biopsies taken from my left breast on March 26th have ILC. The MRI showed at least three more (Stage 1a). They are all very small, but given there are now at least five, the surgeon's recommendation is unilateral mastectomy. I am about 95% certain I'd like to just go for the bilateral,…
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Medicare coverage of post-reconstruction MRI
I had bilateral mastectomy with silicone implant reconstruction when I was in my 50’s, and had private insurance. As recommended by my plastic surgeon, I’ve had surveillance MRIs every 3 years to evaluate the stability of the implants. This year I had my first with Medicare, and I received a notice of potential nonpayment…
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HRT after Breast Cancer? Maybe!
I just wanted to share this information I've found. The first is a book cowritten by an oncologist, Dr Bluming, called Estrogen Matters. The second is an article he just had published in Cancer Journal entitled 'HRT after Breast Cancer - It Is Time.' I would be happy to send a copy of the article to anyone as he was kind…
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27-29 at 48
My tumor marker is 48 after Kisqali and Letrozole. Is that high
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Advice new diagnosed
Close family member in her 80s dx with breast cancer two weeks ago. Struggling to get breast surgeon consult and medical oncologist scheduled. Expecting urgency but response has been poor. What is reasonable expectation? Am I being un reasonable to expect things to be scheduled within days not week of Dx? Thxs
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Doctors said it is a cancer before biopsy.
Hi all, I had a lump under my arm upper my right breast it started as a tiny one hardly seen or felt. I left the UK had so many issues that affected my psychological side, this lump started appearing the same month my period stopped I was about 51 years old. the lump starts growing and growing and I war treating it as…
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Surgery date
hi, I’ve triple negative, stage 2, nodes seem clear, surgery 7th July for lumpectomy. Nervous but need my life back, and my hair 😊
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Just diagnosed with IDC ER+ PR+ HER2+
I just was diagnosed with Invasive Ductal Carcinoma ER+ PR+ HER2+ on Dec 23rd, 2023 but still do not have an oncologist. I do not know what is normal for being diagnosed with cancer as I have never had cancer in my life before. I do not know the Stage or Grade of the tumour yet. I am in Canada. When looking up anything…
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MRI screening results.
Hello. New To the group here. I do have a healthy dose of health anxiety and my recent breast MRI results are not helping. I am a 41-year-old female with very depressed tissue and my mother had breast cancer at age 62. It was recommended due to my dense breast tissue to have the MRI. I had it done yesterday. With contrast,…
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Tamoxifen treatment for endocrine cancer survivors
Hello. I was diagnosed in April, and finally got a surgery date for July 6th. My prognostic report said my cancer was estrogen and progesterone positive and moderately invasive. My surgeon has told me I will be put on Tamoxifen after surgery. I am concerned because I am an Endometrial Cancer Survivor and had a total…
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Chemo next cycle
Hello all you other warriors! It still blows my mind that this is happening, this diagnosis and I am now in the fight. Diagnosed in April stage 2 palpable lump and positive in auxiliary lymph, high oncotype, grade 3, E+P+ and BRCA1 (got hit with all the things) 😑 But, I am going for weekly treatment #9 on Monday of the…
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Share Your TNBC Story
Hello, everyone! Share your triple-negative breast cancer story here to give hope to others recently diagnosed.Thank you for contributing! --The Mods
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Premenopausal and Starting Tamoxifen -- Looking for an Ongoing Chat
I took my first dose of tamoxifen last night and am feeling so much dread around it. I put it off due to avoidance and confusion around the small impact that taking it has on my future recurrence rate (4% vs 8%). Looking to find peace in this journey and am wondering how others have figuratively 'swallowed the pill' of…
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- Research News 116
- Mastectomy 111
- Podcast 97
- Metastatic Breast Cancer (MBC or Stage IV) 95
- Invasive Ductal Carcinoma (IDC) 86
- Lumpectomy 78
- tamoxifen (Nolvadex; Apo-Tamox; Tamofen; Tamone; Soltamox) 69
- Anxiety 68
- Triple-Negative Breast Cancer 63
- Ductal Carcinoma In Situ (DCIS) 58
- Lumpectomy vs. mastectomy 57
- ER-positive 53
- Breast implants 49
- Femara (letrozole) 45
- Taxol (paclitaxel) 42
- AIs (Aromatase Inhibitors) 42
- AC: Adriamycin and Cytoxan 41
- Arimidex (anastrozole) 41
- Dense breasts 41
- AC+T (Taxol): Adriamycin and Cytoxan plus Taxol 40
- Abdominal Pain 36
- Recurrent Breast Cancer 36
- Kisqali (ribociclib) 36
- Hormone receptor-positive HER2-negative 36
- Verzenio (abemaciclib) 36