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Stage III TNBC. Looking for stories of hope
Hi. My 30 year old wife's been diagnosed with TNBC. Unfortunately our treatment right from the start has not gone as per the standard algorithm. In fact her 4cm lump was determined to be a fibroadenoma and excised by a general surgeon, and it turned out to be tnbc with LVI, ki-67 65-70%, necrosis present, closest margin…
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Stage II w/Lymph Node Involvement
I am so thrilled we finally have a place to call HOME here! I was diagnosed w/IDC last year at the age of 39. It was in 2/6 lymph nodes. I was also HER2 and Estrogen Positive.I had dbl mastectomy w/implants. This summer, one of the implants failed. So, I underwent a DIEP procedure w/Dr. Massey and Dellacroce in New…
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Bi-Rad 0 and confused
I am 35 years old with no family history of breast cancer, and currently have a 3-4cm palpable mass in my right breast. I noticed it a few months ago, and last week at my annual OBGYN appointment, my provider noticed it as well. Today I had a mammogram and ultrasound, but did not really get any clarity. The radiologist…
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TC untolerable moved to AC
TC 1st round failed Taxotere. AC for round 2 and moving forward Er+Pr+Her2-, stage 1A, one node with 3mm, T1aN1, partial mastectomy 7-17-23, diagnosed 6-1-23, Oncotype Dx score 30. My 2nd of 4, infusions was yesterday. Less than 30 seconds into my 1st and only time with Taxotere I had a flushing reaction, nausea, back…
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This may help some financially
This is good info, if not for current or future needs. I was diagnosed with stage 4 denovo mbc in 2018. I was fortunate enough to access BCCP Medicaid. That paid for all my treatments and meds. In May I turned 65 and was signed up for Medicare (really I didn't sign up for it, they just put me on it.) My Medicaid is gone at…
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Chest X-ray to see breast tumor?
Does anyone have any experience of a chest X-ray showing a breast tumor? thanks in advance
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Reporting forum feedback and technical issues
Hello Everyone, As with any new technology, it can take time to work through issues and adapt to the new site. We thank you for your patience and understanding, and are here to help support you. Our team is dedicated to giving you the best experience possible, with plans for adding features and enhancements over time. We…
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Direct to implant, plastic surgeons only want to do prepectoral
Met with 2 plastic surgeons in my area and both said 'under the muscle' implants for reconstruction are a thing of the past and modern doctors only do prepectoral implants now with ADMs (allograft to create the pocket). The reason being that under the muscle implants can cause animation deformity when flexing the muscle.…
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List of what to do/get/pack to prep for Radiation Therapy
Hey all, We would like to put a complete-as-possible list together of your suggestions for getting through Radiation treatment in our next newsletter. Can you start sharing your ideas here? Thanks so much! The Mods **********HEY ALL, HERE IS THE LIST, AS OF MARCH, 2015. Please let us know if we missed things, and/or you…
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Do I need the contrast dye?
I have fibrocycstic breast tissue. The radiologist who performed my core needles biopsies in June recommended I get breast MRI's done. I go next Wednesday but I see the prep says I will be injected with contrast dye. I am very concerned about this as I have bad allergic reactions. I am wondering if anyone knows how…
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Use of Alternative Medicine for Cancer and Its Impact on Survival
Use of Alternative Medicine for Cancer and Its Impact on Survival
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Internal Mammary Lymph Node Biopsy specialist?
I had a IMLN biopsy attempt 10 days ago that was unsuccessful. The 2 nodes were too close to my lung and resulted in a pneumothorax. Has anyone had one completed successfully? If so, where? Is there someone who specializes in this type of biopsy? I'm finding very little information on IMLN, let alone biopsy. With thanks :)
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Just Diagnosed? Start Here
If you have just been diagnosed here are a few places to start from the main Breastcancer.org site: * Understanding your pathology report * Before Treatment: Planning Ahead for Survivorship * Breaking Research News about Planning Your Breast Cancer Treatment Also, a great thread chock full of advice for those just…
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Free Genetic counseling through eReach program!
Learn how you can receive free genetic counseling through Penn Medicine’s eReach program. If you live in the United States and you haven’t had genetic testing for a hereditary cancer syndrome, you may be eligible to receive free genetic counseling by participating in the eReach Study. Why participate in the eReach Study?…
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Free genetic counseling through eReach Study!
Learn how you can receive free genetic counseling through Penn Medicine’s eReach program. If you live in the United States and you haven’t had genetic testing for a hereditary cancer syndrome, you may be eligible to receive free genetic counseling by participating in the eReach Study. Why participate in the eReach Study?…
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Free Genetic counseling through the eReach study!
Learn how you can receive free genetic counseling through Penn Medicine’s eReach program. If you live in the United States and you haven’t had genetic testing for a hereditary cancer syndrome, you may be eligible to receive free genetic counseling by participating in the eReach Study. Why participate in the eReach Study?…
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How Many Stage 4 Girls are getting SS disability..
Seems like a lot of stage 4 US citizens are getting Social Security Disability Insurance payments. So lets see how many there are! If you were denied, please comment if it was for medical issues. My understanding is denials are more "not paid in enough" issues than medical. PLEASE TAKE POLL ONCE ONLY!
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Suspected intraductal papilloma
Hi there, I’m in the process of getting answers but curious what others have experienced. I am 41, likely perimenopausal. Over a month again I first had spontaneous clear discharge from one breast. That happened a few times. One month ago I woke up and had a circle of clear discharge on my shirt. Over the next few days it…
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Thyroid Cancer
I wasn’t sure where to post I could just use support. I finished treatment in October 2015. IDC, lumpectomy, chemo, rads. Actually the last couple years I’ve really felt my body heal from everything I went through. I was in a good space mentally and physically. The last few months though I’ve been having trouble…
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Sunken/dent in breast around nipple
I am 24 years old, I do check my breast but not regularly. Today I have noticed while lying on my back my right Breast sinks/dips in next to my nipple. Where as my left breast does the normal fall to one side and sort of keeps the shape where as the right one stays where it is and sinks in near my nipple. I am getting some…
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Tamoxifen and reoccurence
I just had my bilateral mastectomy and will be starting tamoxifen soon. I’m so worried about weight gain. Is this common? Has anyone had the cancer return and if so, in what way?
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Monday MBC Zoom thread place to keep chatting
This is a space held for our Monday MBC Zoom Meetup members to catch up in between meetups. To join the weekly virtual support group, Mondays at 2pm ET, please register here.
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Tumor markers elevated, a little worried right now.
Hi, everyone. I am almost an 8 year survivor. I just ended Aromasin after being on it for 6 1/2 years.My blood work results just came back and I have slightly elevated tumor markers. My onc told me not to panic, emphasizing they were slightly abnormal. Normal being under 38, and mine were 67.9. Has anyone else had this…
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Multiple Organ Mets and on Kisqali/Ribociclib (3+yrs)
I always hear amazing stories from those with dx’d with bone mets de novo on this drug. Curious to hear from those with multiple organ mets or were dx’d secondary who have done well long term on the Kisqali/Ribociclib combo. Where were your mets, and how long have you been on this treatment?
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Hormone Blocking Therapy
Hi all, Is there any alternatives to taking hormone blockers for 5 years? I plan to discuss this with my oncologist during our next appointment but want to gather some feedback, either way. I've never been compliant with medications and prefer not taking them. Any suggestions?
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Stage III Cancer Survivors ...Five + Years and Out.
A place to post hope for those who are stage 3. Please posts your stories of HOPE for those just starting this journey.
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Triple Negative Stage IV
This is a way for us to find each other, please add your post so everyone can be found. We can discuss on this thread (hope this works out!)
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Old Mastectomy Scar Itching
I'm wondering if anyone else has had to deal with intense itching of an old mastectomy scar. I had my first mastectomy (right) in March 2010 (the prophylactic second one in December of the same year). The past couple of days, the end of the scar under my right armpit has really started itching like CRAZY. Can anyone…
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TRIPLE POSITIVE GROUP
This is primarily for people who find themselves with THREE +'s by their diagnosis. If you are new to breast cancer, please click on the link below and read. It is "What I Wish I Knew At the Beginning of Treatment." http://community.breastcancer.org/forum/6/topic/797454
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Plastic Surgeon in Maine Recommendations for Treatment of Capsular Contracture
Hi all. I had bilateral mastectomies in 2008 after a diagnosis of bilateral BC. I had implant reconstruction with a successful outcome. However, in the past couple of months, I have noticed capsular contraction on one side. Since my surgery, we have moved to Maine and I need to find a plastic surgeon who is an expert in…