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Scared about this diagnosis
Scared about this diagnosis and I have surgery August 1. How to remain positive about. All of this
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Verzenio
H was your experience taking Verzenio???
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How has a nurse helped you through breast cancer?
At Breastcancer.org, we often hear how much nurses mean to people going through breast cancer. It’s the nurse who often explains the diagnosis and treatments to you in simple language, helps manage your side effects, offers you reassurance, and connects you with the care you need. Nurses are also a source of emotional…
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Lung nodules and scarring
I am 6 years out from treatment and have been NED. my RO gets a chest ct yearly (I understand this is not standard of care). He goes over the scan with me every year but it goes to our radiology group for the official read. Year 5 he notices what he says is scarring in my right lower lung, in comparison to the previous…
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Has anyone here developed Pre-Diabetes during Hormone Therapy
I see BCO has an article about this https://www.breastcancer.org/research-news/link-between-hormonal-tx-and-diabetes My story so far - after always having fasting blood sugar in the 80s or even the 70s, my last two readings at the oncologists office, three weeks apart, were over 100. The first time, I had a smoothie not…
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Were you diagnosed young (under 45) with breast cancer? We'd love to hear from you!
Were you diagnosed with breast cancer at age 45 or younger? Or are you caring for someone who was? Navigating this experience can be lonely — it can sometimes feel like no one gets it. What do you wish others knew about having breast cancer at a young age? What do you wish you had known? Your answers may help others. Click…
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Nervous about switch from Letrozole to Exemestane
Hi - I have been on Letrozole for 2 years (invasive ductal carcinoma, node positive, did chemo and radiation, double mastectomy and oophorectomy...was diagnosed right after my 46th bday). Recently I've had neuropathy for the first time (it moves around/switches which limbs it affects...strangest thing). Ruled out…
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hysterectomy and oophorectomy
I am Having a hysterectomy and oophorectomy next week via robot but my fibroids have made it too big to come out my vagina. I have to do this because the Lupron was not working to suppress my ovaries. (I think they are just bitter I've never used them) What kinds of healing expectations should I have? I'm a little unclear…
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Wigs and Warm Weather: Five Tips for Staying Cool and Comfortable
https://www.instagram.com/p/CvdyTaXNgur/?utm_source=ig_web_copy_link&igshid=MzRlODBiNWFlZA== Share your thoughts and tips below!
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New symptoms almost 2 years since completed treatment
Hi all. Suddenly, I had 2 bruise-like marks on my side directly to the right of my right breast. They were about the size of a silver dollar. This is the breast that had a lumpectomy. The bruises were red and irregular. They did not hurt or itch. I had not bumped myself. The bruises have slowly faded. In addition, the…
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Do I need a 2nd opinion?
I am very newly diagnosed with IDC, 6mm, Er/Pr very low @2% HER2 has been sent for FISH, grade 2 I've seen an oncologist who I really like and listened to my anxieties about the fact I was two year over due for my mammogram and my biggest concern was how long this has been growing in my body. She was very reassuring that…
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Treatment for Triple negative breast cancer but not technically Triple Negative
My daughter was diagnosed with breast cancer in 2023. Had double mastectomy and 4 rounds of chemo. Now, 2 years later had cancerous node removed in lymph nodes. A PET scan was done and they found a 3.5cm oblong tumor in chest wall. She does not meet all the criteria for triple negative but Oncologist want to treat it like…
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Afinitor - anyone have input?
Hello out there, I am switching from Verzenio after bone mets have spread to possibly multiple organs. Still waiting for PET and results. Tumor markers climbing along with liver enzymes. One of the meds I am being told is next for me is Afinitor (everolimus). Info I have been given is not sounding like it’s going to be…
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Alisertib clinical trial at Mayo
I am starting a clinical trial next week for Alisertib (plus Fluvestrant) and I would love to hear people's experience with Alisertib. I was diagnosed Stage 4 in May and this will be my second line of treatment (Kisqali didn't work for me.) I have mets in my liver, lungs, bones and lymph nodes.…
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Important Stage IV Topics and Links for Stage IV Newbies
Here are some helpful resources if you've just been diagnosed with stage IV breast cancer, also known as metastatic or MBC. Join our free Virtual Support Groups for MBC! All with Metastatic Breast Cancer (MBC; also called stage IV) Register: Mondays at 2:00 PM EST, Tuesdays at 8:30 PM EST and Wednesdays at 4:00 PM EST…
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Double Mastectomy
First post. I am scheduled for a double mastectomy I have choose not to have reconstuction . I am going though such a deep depression. The thought of loosing my breasts is so devestating to me . I would like to talk to others that have gone though this and help me to know what to expect and how you managed to get though…
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My Pet Scan and 48th cycle of Palbociclib +Fulverstant
I want to mention that my Pet Scan today shows NEAD and am on my 48th Cycle of Pablo+Fulvestrant.. also my 21st year of initial diagnosis and 4th year if mets. So my message is hang in there, medical science has brought a lot of hope .
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Seriously? First IDC, then DCIS, now possible DCIS again.
Has anyone had multiple new DCIS primaries rather than recurrences? I had IDC in my left breast (treated with lumpectomy and radiation ) in 2011, DCIS in left breast (treated with left-side mastectomy) in 2021, and today my radiologist found new calcifications in my right breast. I'm having a biopsy on Wednesday. She…
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Biopsy
hi I had surgery 4 years ago for a DCIS . This year I’ve been called back for a biopsy today after they say there is an area which could be calcifications. I had a nightmare biopsy as it was nearly on my chest wall. Worried now , is this normal to happen after surgery around the area and why would they do a biopsy what…
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Early Stage Breast Cancer - anyone on Letrozole and Ribociclib?
Wondering if anyone has been diagnosed with Early Stage Breast Cancer and on AI/Ribociclib regimen? I’m going to start after radiation and wondering how your treatment is going and if there are any tips out there! Thanks in advance!
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Any Texas Hill Country BC Warriors?
Just reaching out to any and all Texas Hill Country BC Warriors? Where are you on this BC journey...newly diagnosis, in treatment, finishing treatment. Thought it might we might be surprised to find somebody right in our own backyard who can come alongside and offer encouragement, support, tears, laughter, just be there.…
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Kisqali/ribociclib, Faslodex/fluvestrant & Xgeva combo - Anyone?
I've been on this combo since Nov 2019. Since all treatment combos seem to offer their own side effects and challenges, I'd like to hear from others taking these drugs. Especially your experiences, duration of success and how you deal with the fatigue, itchiness, etc that goes along with this treatment.
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How does a lump feel like?
Hello, i am 21 years old. Today i felt a lump about the size of marble on my right breast and then when i grabbed it and held it properly it felt much bigger - about the size of a tennis ball - . If i try and squeeze or push it, i can move the lump along to the left or right, or up or down. Its literally feels like theres…
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Grade 3 long term survivors
Hi diagnosed last year with a primary breast cancer aggressive Grade 3 in two nodes. I wondered if anyone had long-term survivor stories. I'm terrified of secondary and have read lots of posts of survival but they tend to be stage 3 but grade 1 or maybe 2. Is there anyone with a Grade 3 in nodes with a positive story.…
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DCIS: choosing surgery only, followed by monitoring
Hi all, Would love to start a thread for those with DCIS who chose surgery only, no RT or HR meds. I've done a lot of research and am comfortable with my decision based on my pathology and low Oncotype score. I will have monitoring twice a year, once w GYN & mammogram and once w BS & ultrasound, so should anything change…
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13 Years Since Breast Cancer Diagnosed in 2012 - Where are you now?
It's been 13 years since I joined the Breast Cancer Boards in 2012 when I was blindsided by a Stage II diagnosis on August 31, 2012. I felt alone and hopeless until I found the support and wisdom of the community members here. It's a journey that has had many ups and downs and curves in the road but the people I've met…
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مشاكل النوم
انا ناجية من سرطان الثدي اشتخدم الان العلاج الموجه فيسكو كل ٣ اسابيع اعاني من مشاكل ف النوم وثقل ف الراس لا استطع النوم لا صباح لا مساء جربت العديد من حبوب مساعدة ولكن من دون فايدة ارجو النصح
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For ALL Not Diagnosed Newbies: Imaging & Common Symptoms FAQs
Our very helpful member djmammo has taken the time to research and put together some extremely helpful information for all newbies who find themselves here, worried about a symptom, a test result, or interpreting image results. Please take a moment to read through the thread links applicable to your situation below. Many…
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Looking to connect with others for support and guidance
Looking to connect with others who have had a second primary breast cancer. First diagnosis was in 2016, found on a routine mammogram. I was 43 at that time Stage 1A no nodal involvement, oncotype 7 had lumpectomy, radiation and 5 years of Tamoxifen. I had a young family at the time and kept it from my youngest as he was…
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Going in for Mammogram soon!
I am so anxiety filled. I am very high risk and haven't had a mammogram for 10 years so I'm 100% sure they are going to find something. I am terrified of the outcome. It consumes most of my time if I'm not keeping myself busy. I am working with a therapist and that seems to be helping a little. I guess no matter what the…