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Leg Cramps with Femara?.....
Hi Ladies, I am 2 months into Femara and Eligard (Lupron). The Hot Flashes are back! I am having lower back pain and front pelvic pain both of these are normally when I first wake up. Last night I flipped and flopped all night like a fish! Back hurt all night long. Also the past 4 nights I keep getting leg cramps. I keep…
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It's back - Terrified it has spread
Help! Thought it was gone forever, after having DCIS in 2017. Had a single side mastectomy with recon. In June this year, I saw a big lump on my chest. I went to the docs twice - saw a paramedic and a nurse. even though I explained my history, they were both convinced it was a fatty lipoma. I insisted I get seen, they said…
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New symptoms almost 2 years since completed treatment
Hi all. Suddenly, I had 2 bruise-like marks on my side directly to the right of my right breast. They were about the size of a silver dollar. This is the breast that had a lumpectomy. The bruises were red and irregular. They did not hurt or itch. I had not bumped myself. The bruises have slowly faded. In addition, the…
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Getting ready to start chemo? Join the December 2025 chemo support thread!
Is your chemo treatment scheduled soon? Let's share experiences and lift one another up here. We encourage you to share your feelings about starting chemo, what the planned regimen is, how you're preparing, ask questions and learn what to expect from others, side effects you're experiencing and how to alleviate them, and…
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Hello everyone, I am new to this.
I am scheduled for two lumpectomies on the left breast with needle localization. One lumpectomy is for an irregular enhancing mass measuring up to 2.1 cm at 2:00 o’clock, 8 cm from the nipple and the other lumpectomy left breast lower outer quadrant. I had my consultation yesterday for surgical planning and I feel like…
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Nipple Sparing Mastectomy in Nov 2023 - Whitish plug in the nipple
I had a nipple sparing mastectomy in Nov 2023. In May of 2024 I started getting some WHITE stuff in my nipple. Like a thick white spot/plug. Initially, my provider removed it and said it was debris. It came back. I had a MRI of the breast in January 2025 along with 2 ultrasounds and a nipple biopsy. Nothing shows. 2 or 3…
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Itchy silicone implant after more than 10 years!
I am a breast cancer survivor after more than 10 years. I had a left breast mastectomy with a silicone implant. Currently I recently got over a bad cold with a terrible cough and I feeling pain & intense itching inside my implant! Could it be that due to the terrible coughing it caused damage to the implant? The itching is…
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Going for a diagnostic mammogram
Since mid September I have been having sensitive nipples and my breasts seem to have fallen. I am 75 years old so fallen breasts are bound to happen. I can’t seem to get comfortable because of how my nipples are feeling. What I want to ask is are sensitive/tender nipples a symptom of breast cancer? I don’t have any…
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does tumor size increase after biopsy?
I had a biopsy 3 months ago, and did a follow up ultrasound last week to make sure the treatment was working. The US report showed the tumor had grown, and by volume calculations it was 150% larger than the ultrasound done 3 months ago (in August) right before the biopsy. For comparison, the tumor had increased only 60%…
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Cambria 1 and 2 clinical trials, Camizestrant
Hi, I would like to know if some one takes part in this trials? Is Camizestrant better medicine than letrozol? Are there people who take it?
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I am devastated pls can someone help me
I already talked with the nurse and going to see the surgeon so . The nurse told me I have to still wait for pathology results to come back and find out am I going to get chemo or not . So far this result I have . Cancer is in my family . Please help me out . I just want to know if someone had similar experience or any…
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new diagnosis
I was recently diagnosed with her2 negative metastatic breast cancer stage 4 that is not in breast but now in bronchial, bone , abdomen , pelvis. I have been coughing a full year. Had breast cancer stage 1b in 2020. So recurrence. Wonderful Pulmonologist was one that finally found what was wrong through lung biopsy ! Went…
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Irritability with Letrozole?
Is anyone else dealing with high irritability and low frustration tolerance while taking Letrozole? I'm usually an easy-going person. I ended up in a full-fledged tantrum this weekend over something really stupid. This is so outside my normal behavior, and it's starting to negatively impact my life. Has anyone else dealt…
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Phesgo - Clinical trial
Hi everyone! New here. I am enrolled in the ADEPT clinical trial for women that have breast cancer that is invasive ductal carcinoma stage 1 triple positive. I refuse to do chemo for a small tumor and stage 1 cancer, so my oncologist suggested that I enrolled in this trial. I started on April 1st 2025 with the PHESGO…
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Mourning the person I was
Watching Physical: Asia which is a competition show about people at the peak of their physical ability. It's a great show and I love it. But I found myself crying watching them realizing that I am past my peak physical self. The joint pain I have from Lupron stops me from going to the gym most days. Today included. I was a…
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ILC and on Arimidex for 5 years….now metastasis in lower spine and ribs and sacrum
has anyone had any experience with this. The pain is horrible, and they gave me didlidid for pain but tamoxifen for cancer. I am 72.
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Has anyone used Docs from different healthcare systems?
I just switched oncologists from Penn to Fox Chase. Has anyone used breast surgeons from outside the system that their oncologist is in? I like my Penn Surgeons.
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Two biopsies in two weeks?
Hello— I went for my screening mammogram and an area of distortion was found. I went back for a diagnostic mammogram and ultrasound, and the distortion was still there as well as a mass. I had the mass biopsied, and the doctors originally thought the mass was the same spot as the distortion, but the follow up mammogram…
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Open Letter
I am a husband/ caregiver... I didn't know where this should be posted---and since my wife is going through treatment now, I just picked here. I have lurked since my wife's diagnosis and have been posting only for a few days. I can recognize a sisterhood when I see one. An army of kind souls. I am humbled by your humanity.…
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Fenbendazole, Ivermectin, Mebendazole, Methylene blue for Breast Cancer
I’m curious if anyone here has tried any of these. I’ve read some success stories but would love to hear firsthand experiences. It seems like the medical community has been hesitant to share much information about how these options might benefit people with cancer, whether it’s breast, colon, or other types.…
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Just diagnosed - big drinker, hard job, feeling depressed
42 and diagnosed 11/7 via annual mammogram, right breast idc grade 2, ER+ 90% PR+ 80% HER 2 minus. Got an mri that showed some more things, MRI Biopsy on right for NME, all clear. Did left yesterday and awaiting results. But given Xmas cruise planned likely will not schedule surgery til new year (is that bad?). I’m hoping…
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Any horseback riders have experience to share on implant reconstruction?
Bilateral mastectomy in October 2024 (IDC Stage 2A – grade 2). No radiation/no chemo. I live in a rural underserved area so delayed reconstruction was the only option. Surgeon performed an aesthetic flat closure. I am waiting to meet with a PS who is 3 hours away. I am normally slight in stature, but a very strict…
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Making that Final Surgery Decision
Hi to everyone. I am new to the group. I was diagnosed early in the year with ER and PR - and HER2 + with lymph node involvement breast cancer. (stage 3A). I have completed my last treatment about 4 weeks ago and trying to mentally prepare for the surgery. I am at the point where I need to make a decision but having a bit…
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Looking for others with low risk, less than 2cm, IDC stage 1 grade 1HR+ HER2- on endocrine therapy
Are you like me? What endocrine therapy did you follow or are you following? Pre- or perimenopausal, stage 1, grade 1, low risk, node-negative, no genetic risk, screen detected ladies, let's hear from you! What were you prescribed and how have you changed it up over your therapy? What has worked for you? I've seen four…
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Elevated CA 15-3, Stage 3, without metastases
Hello everyone, July 2024 – Diagnosis: breast cancer ER+ / HER2 negative, with lymph node involvement, no metastases, stage IIIA. I had a CT, MRI, and PET-CT before starting chemotherapy. August 2024 – I started chemotherapy, but before that I measured CA 15-3, which was elevated at 74 U/ml. It increased up to 92 halfway…
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Need help deciphering what my QT results mean.
recently I had an MRI done and there was a mass observed on my right breast, They scored it at a BIRAD 4 and it was very concerning. Not wanting to get a mammogram, due to fear of causing trauma to the affected tissue, I elected to get a QT scan done, can anyone read this and tell me what they think this means,…
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Question about Sentinel biopsy results
Hi I had my lumpectomy with Sentinel node biopsy on Nov 14 and reviewed the pathology report with my doctor today. He said 5 nodes were removed during biopsy and 2 are confirmed to have cancer >2mm. Based on this, he advised chemo is required and ALND is on the table but he is going to review with the cancer board at the…
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Long term success stories of stage 1 triple positive with THP chemo regimen
I was diagnosed with stage 1B triple positive. Just had my BMX three weeks ago. Now about to start chemo. My MO recommended THP chemo regime because it has less side effects and she said it has similar efficacy as TCHP. I know that TCHP has been the gold standard for many years with proven long term record. Just looking…
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Community Recommendations for EXTERNAL RESOURCES (Non-Book)
ALL EXTERNAL RESOURCES (Non-Book)Below is the consolidated list, and we invite you to please add in the discussion!! 🧠 Mental Health, Coping, Wellness Calm Meditation App — https://www.calm.com/ua-homepage Project Life (Virtual Wellness House) — https://www.projectlifembc.com/ Moving with Milly (YouTube)…
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Member Recommended Books and Readings for Living with MBC!
Metastatic Breast Cancer / Treatment The Complete Guide to Breast Cancer — Trisha Greenhalgh & Liz O’Riordan Not the Breast Year of My Life — Frankie Leigh Stand By Me: A Guide to Navigating Breast Cancer as a Couple — Claudia Gilmore Living With Illness / Mental Health Radical Acceptance — Tara Brach Full Catastrophe…