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Scalp during/after hair loss
I’m 17 days post first infusion. My scalp started being very tender about day 13. Hair started falling in earnest on day 14. I’m not bald yet, but it’s coming out in clumps. I’ve read many posts about hair loss, but I’m wondering more specifically about the scalp pain. Does the pain stop when the hair is all gone? If not,…
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What were your symptoms of IBC?
And please forgive me if this is the wrong forum :) I'm just curious as to what your story was. Thanks
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Up for donation: Freezer Packs - Hands and Feet
Hi, We went the cold cap route for our daughter when she was going through chemo for IBC. We purchased a number of freezer packs for her hands and feet. She was able to retain her hair and didn't suffer from neuropathy. So it does work! I would love to donate the freezer packs to someone who is in need. Please reach out. JW
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Madame X
I am starting Madame X next week and just wanted to reach out to the experts about dietary restrictions. It seems that there are a lot of foods that contain folate so I was wondering if anyone had recommendations of things to definitely avoid, my main concern is Hand and Foot Syndrome as I am an avid Pickleball player and…
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Finishing verzenio
I have just finished two years of abemaciclib, following on from surgery, chemo and radiotherapy. I was lucky that just as I finished radiotherapy, Verzinio was approved in the UK for stage 3 BC patients with high risk of recurrence. Given the pretty awful side effects as well as the timing, it means that there aren't many…
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Anyone else have spinal compression fractures?
Mine is apparently from osteoporosis, probably chemo / femara induced. My T scores are not awful (worst is -2.5 in hips; others in -2 range). I’ve been on Fosomax for a few years. But now that I’ve found out about this compression fracture, endocrinologist is recommending Evenity or Tymlos. Both have potential scary side…
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Capecitabine
Hello , My name is Jill and I will be starting Xeloda next week. I was on Ibrance/Letrozole for 16 months and it has stopped working. I am curious about the new meds and wanted to talk to you ladies about a few things. I have not met with the Onc Pharmacy yet to discuss the drug and ask various questions so I figured I…
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Vinorelbine - the end of the line??
Hello all-I have just been recommended to move to Vinorelbine as my 9th line. My oncologist pulled me off DATROWAY due to severe SEs and told me this is one of the last drugs on the shelf for me. Not only is this a scary piece of information, but I also can’t find much online about this drug in terms of user experience.…
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Mepitel Thoughts and Tips
I've learned so much on these boards that I wanted to give back a little and share some things I learned for anyone thinking about trying Mepitel fIlm for radiation. I only ended up using the film for half of my radiation treatment because I was allergic to it. But at my one month follow-up appointment, my RO was surprised…
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CA27-29 elevation
I am 11 year survivor and just has an elevation to 42 from 30 on the CA 27-29. I have to wait 4 weeks for new bloodwork. I am so nervous. Anyone have a similar experience.
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Honoring KBL, Kris B.
07/02/1961 - 08/16/2025 Kristine Mary Blake, age 64 of Murphy, NC passed away Saturday, August 16, 2025. She was born in Suffern, New York to the late Charles and Betty Bryant Brown. Kristine worked as a court reporter. She enjoyed spending time with her grandson, Colton and family. In addition to her parents she was…
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Chia Seeds Safe for Estrogen Positive Breast Cancer?
I have recently heard a lot of positive things about the benefits of chia seeds and yesterday bought a bottle for myself. However, once I got it home started to wonder about its connection to flax seed (which my oncologist suggested I avoid) and whether chia seeds were safe to use if you have been diagnosed with estrogen…
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Has someone received EVENITY injection for osteoporosis?
Good Envening ! Has someone received EVENITY injection for osteoporosis treatment? My wife has taken Fosamax for 5 years and received Reclast infusion for 2 years (one dose per year). Now, the Doctor suggested my wife to receive EVENITY injection for another year (one injection per month). Since EVENITY is relative new…
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Reconstruction of a lumpectomy from late 2005 possible?
Hi. I was originally on this great platform as jcp back in like early 2006. I had to changey name bc it won't take my old user name of "jcp" but still recognized my old email so switched that out. Basically, my rt lumpectomy from late 2005 in past four years ( age) is so much smaller than my left breast that was always…
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DATROWAY advice
Hello all-I’m stage IV MBC since 2017. Was NEAD for nearly 7 years and now have been through five lines of treatment that have failed. Have been recommended to DATROWAY and am wondering if anyone has experience with this relatively new drug. The side effects are pretty terrifying and I can’t find any real world information…
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BRCA1+: what's in your surveillance/ survivorship plan?
Now that active treatment is over, I imagine my next few appointments we'll be working on the surveillance plan. It would be so helpful to hear what others are doing. I've had TNBC twice before age 50, treated successfully (I hope) both times, and am BRCA1+. Before the second diagnosis I was getting a mammogram +…
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Finishing AC and starting T
I just finished my last infusion of AC and in two weeks will start Taxol. My doctor originally told me 1 infusion of Taxol per week for 12 weeks but during our last appointment he recommended I do 8 weeks of Taxol with an infusion every 2 weeks so a more dose-dense treatment. He recommended that because I tolerated the AC…
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ILC recurrence grade 2 pls need advice
my mom had breast cancer and she done with her long treatment almost ten years ago. Her cancer was advanced stage 3B. Now she started to have pain under her shoulder and the doctor did biopsy and it’s confirmed she has recurrence. My mom is 73 years old and can someone guide me what kind of treatment they might do? Or if…
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who' s had lumpectomy plus bilateral breast reduction? let's talk!
Hi friends, I'm 72 ad live o my ow in Portland OR. I was diagnosed in August with what turned out to be stage 1 grade 1 tubular tumor E/P+ER- approx 1.4 mm at 5 o'clock position in my right breast. I was offered bilateral breast reduction (mammoplasty) as a form of reconstruction and jumped on that like a duck on a…
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What surprised you most about palliative care? What's your experience?
Palliative care is often misunderstood as “end-of-life care,” but in truth, it’s about living as well as possible during and after cancer treatment, for people experiencing all stages of breast cancer. We really want to hear your questions and experiences!
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Old implants, new cancer diagnosis. Want lumpectomy with implant removal at same time.
I just received a new cancer diagnosis and want to proceed with a lumpectomy. I have 30 yo implants I want to have removed at the same time. I'm afraid of looking disfigured afterward.
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Start here: We're here for you
We’re so glad you’ve joined the Breastcancer.org community. No matter the time of day, we’re here to support you with trusted information and a caring community to help you make informed decisions about breast cancer. Get Started in the Community 💬 Join the Discussions: Ask questions and get answers from knowledgeable…
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Testosterone Pellets. Anyone on them? Desperate for some answers!
I am 14yrs post ER/PR stage one. My doc says I'm low on testosterone, and that is the reason for all my symptoms in menopause. He suggested the pellet and feels it is safe but I am so scared to try it! No Dr I've reached out to has said either way, just "no data to help us'. Hoping some people hear have had good guidance,…
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Biopsy not concordant with breast images
I an 37 years old, went to m GYN due to pain on the left breast. She sent me for a mammogram and u/s. Mammogram repeated for more images. Results BIRAD4 And radiologist said Highly suspicious for malignancy. Stereotactic biopsy was done results Benign fribosis and benign fibroadipose tissues. My GYN wasn’t comfortable and…
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Suffocating in the waiting...
For the last 6 months I have been experiencing a strange shooting pain sensation on my left side, right between my armpit and my breast and it would radiate through my breast. I ended up going to the ER because I thought that I was having a heart attack. I am almost 37 years old. The ER told me I had inflammation in my…
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Low WBC
Dear worriers, I hope you all are doing well. I need your collective wisdom. My wife finished chemotherapy 2 months ago and radiotherapy 3 weeks ago, but her WBC count doesn’t seem to be recovering that fast. I was wondering, how long after your last chemo, did your levels achieve baseline again? Thank you all for the…
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skin sparing mastectomy without implant
I had a single mastectomy about a month ago. the doctors spared the skin but the plastic surgeon wasn't able to put the expander in at the time of the surgery. Now I'm thinking of not getting the implant but can I keep the skin or will I have to have another surgery to go flat?
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Change in friendships after cancer
I’ve been reflecting on my cancer journey and how grateful I am for the love I’ve received. While most relationships and friendships have deepened over the last year, there are some that have surprised and unfortunately disappointed me. I find it easy to move forward with the ones that stood strong with me, but I’m…
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Advice on MRI over 5 years post treatment
Hello all. Just curious if everyone is still having MRIs? My oncologist and breast surgeon have different opinions on this and I'm leaning to just doing mammograms at this point. Concerned about all that contrast dye accumulating. I am a TNBC 12 year survivor and tested negative for the BRCA genes however my mom had breast…
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Stabbing pain from biopsy
Hello all, I've just had my second biopsy on my right breast, which was fortunately negative. I'm high risk due to several family members having had breast cancer, which is why I'm checked every six months. This biopsy, however, was horrible. I told the doctor I wasn't completely numb, but she told me that I was just…