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Doing Well on Aromatase Inhibitors (AIs)
I read a suggestion that someone should start a topic for women who are NOT experiencing severe SEs while taking Arimidex, Femara, or Aromasin. I'm about to start taking Arimidex and when I read about the potential SEs I get discouraged. Maybe others would also like to hear about positive experiences. We would love to hear…
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Fatigue before treatment
I was diagnosed Aug 1,2024. Finally got surgery date of Nov 6, no other treatments yet but in the meantime I am growing increasingly fatigued by the day. It’s so bad that when I do get a good nights sleep it makes no difference. Has anyone else had intense fatigue before treatment?
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leptomeningeal metastasis
so I have been diagnosed with them (lesions in posterior cerebral fossa on cranial nerves and in spine). chemo changed for Enhertu trying to stave off a disease while the preparations for intratecal chemo via Omaya reservoir going. Looking back in the hindsight there were symptoms of it in August, just not visible on…
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Bioidentical hormones..is anyone taking after breast cancer?
I have 4 tx left of my weekly taxol. Prior to that I did 4 DD AC. Now that I am getting close to the end of my treatments, I have started to research diet, supplements, etc to hopefully help avoid recurrence. I have been reading Suzanne Somers, the Anticancer book, and some others. Overall, its been somewhat depressing as…
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2017 BC Diagnosis…how are you doing?
Hello Friends:💐 It’s been awhile since I’ve checked in. I’m curious how my 2017 friends are doing. Have you had a recurrence? Is all going well? I’d love to know how everyone from 2017 is doing. I’m doing well. This site has been a huge support to me and I just want to thank you all again for your support. I look forward…
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Not Sharing Genetic Risk
Hello I am new here, Our 45-year-old daughter died on May 14th of this year from triple negative breast cancer that metastasized to her brain and though a tumor was removed, it came back immediately and killed her. Unfortunately, family members knew back in 2020 that she should be tested for the RAD51D variant that had…
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Gardening, anyone?
I'm still under a ton of snow, and it's only 9 degrees today, but I just signed up for our county's Master Gardening program. Now I can't wait to dig in the dirt. I have little knowledge and hope these classes help. I love flowers and plants but do not have a clue what to do with them. I'd love to hear from others who…
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patty
Does anyone have info on Patty? Haven't seen her here for awhile.
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In Search of Holistic Treatment After Lumpectomy
Hello =) I am looking for like-minded people who would prefer to use holistic means rather than the traditional standard of care after surgery. What do you do? Intermittent fasting? Organic plant-based diet? No sugar/dairy? Quality supplements? Do you see a Functional Doctor for guidance? Do you get regular bloodwork work…
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Post mastectomy finger tingling and numbness
Has anyone experienced hand/finger numbness and tingling after mastectomy and sentinel node biopsy? I had mastectomy about six weeks ago. No chemo or radiation. My pinky and ring fingers experience numbness from time to time. I understand numbness in the armpit or chest area is normal. What about numbness in the hands and…
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So confused don’t know what to decide pT1A HER2+++
i was newly diagnosed with DCIS and mastectomy was done 3 weeks ago. After the surgery my diagnosis changed to IDC 3 foci largest is 3mm grade 3 with extensive high grade DCIS of 8cm grade 3 also and comedo type Lymph nodes negative I am ER- PR- Her2+++ ki-67 is 35% i am 30 years old now and i had 2 different opinions from…
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Cold Caps Users Past and Present, to Save Hair
Hi all, I wanted to start a forum for all us that are using the cold caps to try to save our hair. I am on FEC100 X3 followed by Taxotere X3. My dosage unfortunately is not a guaranteed success. I am 40 days out from my first treatment and will have my third June 17. So far I have thinned but have not required a wig. I…
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DIM- for menopause weight again
Hello, I've heard so much about DIM. I think I got BC from taking clomid to get pg. So anything- even supposedly natural- that talks about hormones frightens me. I've done a search on this sight and saw a lot of ladies who take it, but they were mostly still IN treatment or deciding to take it instead of AI. Has anyone…
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Which doctor will manage your regular check up/ monitoring after your breast surgery
Hello. I was just diagnosed with IDC. I’m still confused about the roles of different doctors. I know the surgeon does the surgery. The medical oncologist deals with meds (tamoxifen, etc). The radiology oncologist does radiation therapy. However, I’m not sure what doctor is devising the treatment plan (do I need chemo, do…
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Architectural distortion - good outcome
Hi, I recently found this group because of "scanaxiety" due to an abnormal mammogram. In case it's useful to anyone, wish to post about my good experience with a Birads 0 "area of architectural distortion" on my screening mammogram. This resulted in diagnostic mammography, ultrasound, biopsy, and more mammography with a…
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I am grateful
I am grateful for each day God gives me. I am grateful for friends. What are you grateful for?
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Lymphedema Support Group--Los Angeles
Hello! I am starting a LE Support Group in Rancho Cascades (Sylmar) starting Oct 2024. It will be a combo of an easy exercise class, with potluck and discussion session. Please see the attached flyer and call with questions! Thanks.
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Sacituzumab Govitecan (Trodelvy)
My wife was diagnosed with Stage IV metastatic breast cancer in 2022 and was on remission for a year, before her cancer relapsed in 2023. She had brain Mets and had her full brain radiated and was taking Capecitabine before the brain Mets came back in July 2024. She started her 1st chemotherapy in Aug 2024, but her WBC…
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Scar Care
Hi! I'm curious about the best ways people have found to care for their incision scars. I'm three weeks out from my lumpectomy and sentinel node biopsy. My physical therapist suggested Vitamin E or coconut oil and gentle self-massage. I did a quick/limited search online and found several studies that determined that…
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Preventative Measures Screening/monitoring guidelines after completing BC treatment
I just want to check with this community about screening methods guidelines after you have gone thru your initiate breast cancer treatment. I am near the finish line and reading up on next steps. Read about the Survivorship Program (thank you for that Breastcancer.org). Trying to get in touch with a local place that offers…
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Verzenio stage 2 or3
Has anyone taking Verzenio that is stage 2 or 3 done a dose reduction? Does anyone know if a dose reduction affects the effectiveness of it when taking as a preventative when you are stage 2 or 3? I talked to my physician and pharmacist about a possible dose reduction due to issues with D. The D is not terrible for me, but…
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Anyone here a long-term survivor who refused hormone treatment?
Hi guys, I was diagnosed with stage 3 bc in February. Currently seriously considering not taking the tamoxifen and five years of zoladex I have been prescribed. I'm researching a lot and it seems based on the date that hormone treat may give me max a 10% reduction in my recurrence rate. I did AC-T chemo, had a double…
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Maca powder?
I wonder if anyone out there is using this and, if so, what your personal experience has been. My integrative oncologist has just added maca powder to my lengthy regimen of supplements, and today, quite by accident while researching something else, came across some information that suggests it may raise estrogen levels.…
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Know what bugs me?
I'm new to a breast cancer diagnosis. This site is the most comprehensive I've found, for which I'm grateful. What I'm NOT grateful for is nearly every post is filled with acronyms that are not first defined for some of us who have no idea what you're talking about! Please be thoughtful and define the acronyms at least…
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Kisqali (ribociclib) and ILC
I am having results with Kisqali, anastrozole, and Zometa undergirded with lots of prayer. I have had debilitating bone pain in my back for over 2-years. Finally diagnosed with Advanced ILC 27 Sep 2022. I started anastrozole in Oct, Kisqali in November, and had a Zometa injection in December. Two days ago, I became aware…
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June and July 2024 Surgery Support Thread
Please gather here to get and give support. Feel free to share your type of surgery, date, and let us know how you're preparing and how you're doing post-surgery. We're all here for you!
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Pik3ca E110del mutation? it's rare
anyone have a PIK3CA E110del mutation? I do. it's rare, like 1 in 4000 Pik3ca mutation is E110del. it kept me out of a clinical trial because I didn't have one of the top 10 mutations. arghghgh. we're going to try Piqray anyways. arghagrhgargharghghhgh. Same thing happened with my ESR1 mutation as well. I guess I'm…
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Grade 3 long term survivors
Hi diagnosed last year with a primary breast cancer aggressive Grade 3 in two nodes. I wondered if anyone had long-term survivor stories. I'm terrified of secondary and have read lots of posts of survival but they tend to be stage 3 but grade 1 or maybe 2. Is there anyone with a Grade 3 in nodes with a positive story.…
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Spring/Summer 2024 Radiation thread
Gather here to share experiences, ask questions, get encouragement, and support others who are going through radiation therapy along with you. Please share your diagnosis, any previous treatment you've had, and your scheduled start date along with your radiation schedule. We're all here for you!
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AC or CMF?
I am trying to decide between AC chemo (8 weeks) or CMF (6 months) Wondering if anyone has any words of wisdom? I am most worried about long term effects on the heart or nervous system. I had my 1st cancer 15 years ago on the other breast and had TC chemo which messed with the nerves in my legs, so I didn't want to do that…